RE: Oh no! Positive ANA test

[Guest guest]

Ann,

Have you tried about.com's " Best thyroid doctors " List? Worth a try.

[Guest guest]

Count me in for spa week !

I recently went through something similar...got a positive ANA. Mine was

1:180. Doc did follow up tests for lupus (anti ds DNA antibodies and some

others) all came back negative...but they did find my insulin resistance in

that additional testing.

I of course did some digging when my positive ANA came back and learned that

there are often false positives. I don't know what your titer was...but it's

not uncommon to see 1:3,000 from what I read.

Try not to stress yourself out like I did. I hope it's a false positive!

Doris

[Guest guest]

I'm all over the spa idea ! Just tell me where and when!

I'm betting your ANA (I don't even know what that is!) is because of your

Reynauds... keep insisting on the T3 test, and don't forget that there are

doctors out there that will treat your thyroid based on symptoms, not tests.

At least, I keep hearing of these doctors

I obviously haven't investigated hypo treatments... but are there any

nutritional or herbal remedies that might help with all or some of your hypo

symptoms? I think I remember some stuff on ithyroid.com....

Pam B.

[Guest guest]

Can someone tell me where I can find one of those doctors who treat based on

symptoms? My doc today just told me all my tests came back negative (thank

God! I have no pheochromocytoma, no carcinoid syndrome and no menopausal

problems). My TSH is at 3.10, I have a F4 of 9.18 and a FT3 123. I was rushed

to the hospital two nights ago for what turned out to be panic and anxiety

attacks. I spoke to my doc today and she insists that my thyroid is

functioning normally. My levels as she put it are " beautifully in the normal

range. " When I asked her about hashitoxicosis, she responded with, it would

be reflected in an up and down movement of the TSH levels. When I told her

that is only the case when the symptoms last for a week or so, she debunked

what I had learned from Elaine. She more/less wrote me off and told me I need

to abandon the idea of it being my thyroid and to seek a remedy of a medical

professional who can deal with the panic attacks. I am so upset, I cried all

day at work. My husband is furious and told me I should get mad. I need a

doctor who will listen and treat my symptoms. All these symptoms started when

I was diagnosed with thyroid. My levels reflected it then and they don't now.

So what makes the symptoms any less credible now? By the way, the doc is

still keeping me on PTU because it's keeping my thyroid normal. She also told

me that being on PTU prevents one from getting hashitoxicosis. I'm just so

depressed!

Ann

Re: Oh no! Positive ANA test

I'm all over the spa idea ! Just tell me where and when!

I'm betting your ANA (I don't even know what that is!) is because of your

Reynauds... keep insisting on the T3 test, and don't forget that there are

doctors out there that will treat your thyroid based on symptoms, not tests.

At least, I keep hearing of these doctors

I obviously haven't investigated hypo treatments... but are there any

nutritional or herbal remedies that might help with all or some of your hypo

symptoms? I think I remember some stuff on ithyroid.com....

Pam B.

[Guest guest]

Hi Ann, is that a typo or is your FT3 really 123? If so, what is the range

for that? Plus a TSH of 3.10 would be hypo for many of us. I know when mine

was 2.3 I was complaining of hypo symptoms.

Is this your endo or GP telling you it's not your thyroid? Maybe you need a

second opinion? I agree you probably need a new doctor. Where do you

live? Maybe someone near you knows of someone good... or, have you checked

with the Thyroid Top Docs directory? http://www.thyroid-info.com/topdocs.htm

Or what about trying a naturopath?

Re: Oh no! Positive ANA test

>

>

> I'm all over the spa idea ! Just tell me where and when!

>

> I'm betting your ANA (I don't even know what that is!) is because of your

> Reynauds... keep insisting on the T3 test, and don't forget that there are

> doctors out there that will treat your thyroid based on symptoms, not

tests.

> At least, I keep hearing of these doctors

>

> I obviously haven't investigated hypo treatments... but are there any

> nutritional or herbal remedies that might help with all or some of your

hypo

> symptoms? I think I remember some stuff on ithyroid.com....

>

> Pam B.

>

>

>

>

[Guest guest]

Pam -

I think Ann's measurement is in different units. I had 2 different labs do

FT3's and one was 7.47 and the other was 197. I can't remember the units,

but it's just a decimal point conversion like from cm to m. So if that's it,

Ann's result would be 1.23 on the scale you're used to.

Re: Oh no! Positive ANA test

> >

> >

> > I'm all over the spa idea ! Just tell me where and when!

> >

> > I'm betting your ANA (I don't even know what that is!) is because of

your

> > Reynauds... keep insisting on the T3 test, and don't forget that there

are

> > doctors out there that will treat your thyroid based on symptoms, not

> tests.

> > At least, I keep hearing of these doctors

> >

> > I obviously haven't investigated hypo treatments... but are there any

> > nutritional or herbal remedies that might help with all or some of your

> hypo

> > symptoms? I think I remember some stuff on ithyroid.com....

> >

> > Pam B.

> >

> >

> >

> >

[Guest guest]

Hey Ann -

I just read in The Thyroid Solution book that panic attacks can be a symptom

of a mildly underactive thyroid. I think your TSH of 3.10 is likely the

culprit. I understand your frustration of doctors looking off in odd

directions instead of the more obvious! I'd definitely shop around for

another doctor and ask specifically what TSH range the doc considers to be

subclinically hypo when you call them. That will hopefully at least give you

some idea whether you should waste your time going to that one. From what

I've seen, a TSH over 3 is considered clinical hypo.

Good luck - hope it's better than mine lately!

Re: Oh no! Positive ANA test

>

>

> I'm all over the spa idea ! Just tell me where and when!

>

> I'm betting your ANA (I don't even know what that is!) is because of your

> Reynauds... keep insisting on the T3 test, and don't forget that there are

> doctors out there that will treat your thyroid based on symptoms, not

tests.

> At least, I keep hearing of these doctors

>

> I obviously haven't investigated hypo treatments... but are there any

> nutritional or herbal remedies that might help with all or some of your

hypo

> symptoms? I think I remember some stuff on ithyroid.com....

>

> Pam B.

>

>

>

>

[Guest guest]

Pam -

Got to check for hypo things on ithyroid, but I'd still like to find out if

it's a T3 problem. I don't think that can be corrected with supps, but I

could be wrong!

Spa sounds so wonderful - don't I wish!

Re: Oh no! Positive ANA test

> I'm all over the spa idea ! Just tell me where and when!

>

> I'm betting your ANA (I don't even know what that is!) is because of your

> Reynauds... keep insisting on the T3 test, and don't forget that there are

> doctors out there that will treat your thyroid based on symptoms, not

tests.

> At least, I keep hearing of these doctors

>

> I obviously haven't investigated hypo treatments... but are there any

> nutritional or herbal remedies that might help with all or some of your

hypo

> symptoms? I think I remember some stuff on ithyroid.com....

>

> Pam B.

>

>

>

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[Guest guest]

Thanks Doris!

I won't get the titer back until next week sometime. I checked out your post

from when it happened to you and Elaine said that ANA can be positive from

Raynaud's, so I hope it's just that! But in the meantime, all this still

isn't getting me anywhere to feeling better

I might have to ask you about some of the sites you found when you were

researching it later.

Re: Oh no! Positive ANA test

> Count me in for spa week !

>

> I recently went through something similar...got a positive ANA. Mine was

> 1:180. Doc did follow up tests for lupus (anti ds DNA antibodies and some

> others) all came back negative...but they did find my insulin resistance

in

> that additional testing.

>

> I of course did some digging when my positive ANA came back and learned

that

> there are often false positives. I don't know what your titer was...but

it's

> not uncommon to see 1:3,000 from what I read.

>

> Try not to stress yourself out like I did. I hope it's a false positive!

>

> Doris

>

>

>

>

[Guest guest]

Ann:

You can feel HORRIBLE with a TSH of 3.10. n I did. My endo put me on

synthroid with that level. Your doctor is living in the dark ages. Forget

her and move on. Check the top docs list. Call endos that your insurance

company covers and ask to talk to the nurse/doctor to see if they will treat

people based on symptoms rather than numbers: that's what I did, in part.

Get rid of this doctor.

B

Re: Oh no! Positive ANA test

>

>

> I'm all over the spa idea ! Just tell me where and when!

>

> I'm betting your ANA (I don't even know what that is!) is because of your

> Reynauds... keep insisting on the T3 test, and don't forget that there are

> doctors out there that will treat your thyroid based on symptoms, not

tests.

> At least, I keep hearing of these doctors

>

> I obviously haven't investigated hypo treatments... but are there any

> nutritional or herbal remedies that might help with all or some of your

hypo

> symptoms? I think I remember some stuff on ithyroid.com....

>

> Pam B.

>

>

>

>

[Guest guest]

Believe it or not. The last doc was from that list. She wasn't a top doc as

far as I was concerned.

Re: Oh no! Positive ANA test

Ann,

Have you tried about.com's " Best thyroid doctors " List? Worth a try.