Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Questions 1) What is the difference betwen Crohn Disease (CD) and colitis (UC), how can it be diagnosed ? For those who have CD, how was it diagnosed, through endoscopy or colonoscopy ? 2) Can 1 person have both CD and UC ? 3) I am undergoing my second colonoscopy and biopsy after 1 week, from which parts should I tell my GI to take biopsies for correct diagnosis? 4) Could it be possible that I have both UC and CD? I am asking this becuase I have sacrificed so much food and taken Mesalamine already for 3 months, still no improvement? 5) I have read that CD can attack even the Esophagus and stomach, should I get another endoscopy done? I had the previous one done before 6 months. It had shown deodenum ulcer, inflammation in stomach due to H. Pylori Infection and GERD, Afetr 2 rounds of triple antibiotic therapy the H. Pylori got solved, then I took 4 months Nexuim (Acid supressor) to get cured from deodenum ulcer, Reflux and inflammation in stomach (the damage caused by the bacteria H. Pylori), immediately after this was curetd , I was hit by a stronger disease, chronic colitis, then my workld turned upside down, because just when I was about to cure one disease, a secdn ond disease hits my body. It is like a chain, 1 disease after another, I am not understanding what is happening to my body, my body is not under my control. Does it mean my immune system is weak, that is why it is happening like this ? But I read that UC amnd CD are caused by overactive immune system. Pls clear my doubt. 6) I heard that in CD, the pain is acute like appendicitis pain and there is blood in stool, but I don't have such severe pain and no blood in stool. I had diarrhoea before, but after starting SCD I dont have diarrhoe, but loose stool 2-3 times a day, the symptoms are worse in the morning with loose stool, extreme fatigue and extreme nausea and no appetite to see any food. Pls clear my doubts, I am very confused , I have undergone blood tests today, I will write, if anything abnormal in my blood result. Thanking you always Sandhya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Hi, I was first diagnosed with Crohn's Colitis via endoscopy and colonoscopy. They did biopsies and the doctor said skipped diseased patches on my colon. There was a lot of information I didn't take in at the time so I can't remember what all the report said. They gave me pictures with every scope too. GERD, ulcers, etc. I also took Nexium to start. They switched me to Protonix when it came out which worked so much better for me. After several tries at other drugs, I was put on Pentasa because it covers the stomach on down. I went to a different GI doc that my PCP requested. He did a Prometheus blood test first to determine if it was Crohn's or UC. Came back positive for Crohn's. Ruled out UC (maybe Celiac but I'm not really sure anymore). I had another endoscopy because my stomach was just killing me all the time. Didn't matter what food, medicine, anything. I finally got the doctor to do 'something' which was an endoscopy. That came back with acute crohn's in the stomach. Prednisone knocked these out every time. So I stayed up and down on Prednisone until SCD. So some you can have Crohn's Colitis. I've been told it's either one or the other. Crohn's can be from mouth to anus. UC is only the colon. www.ccfa.org is a foundation for CD and UC--the main, largest information source for each disease and how it's diagnosed. Good luck, I hope you get more information. Usually (I'm in Texas, USA and I'm not sure where you are) CCFA.org sent me a big envelope with all kinds of information when I first got ill/diagnosed. Otherwise, I was googling everything since I was totally unfamiliar with it. Your doctor may be able to get that type of information to you or contact CCFA to see if they will send you information. Everything you described seems to get better when the cd gets better so it's not like multiple diseases. It is auto-immune from what I've been told. I think there are antibiotics for the H. Plori (sp?). Talk to your doc and get some answers. Hopefully they have patience to answer you. If not, email ccfa for information. Debbie 39 cd dx'd 3/2002 scd originally 12/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Sorry, that was supposed to say " Some say they have Crohn's Colitis but they can pinpoint which one you have with a Prometheus test. " > Hi, I was first diagnosed with Crohn's Colitis via endoscopy and > colonoscopy. They did biopsies and the doctor said skipped diseased > patches on my colon. There was a lot of information I didn't take in > at the time so I can't remember what all the report said. They gave > me pictures with every scope too. GERD, ulcers, etc. I also took > Nexium to start. They switched me to Protonix when it came out which > worked so much better for me. After several tries at other drugs, I > was put on Pentasa because it covers the stomach on down. > > I went to a different GI doc that my PCP requested. He did a > Prometheus blood test first to determine if it was Crohn's or UC. > Came back positive for Crohn's. Ruled out UC (maybe Celiac but I'm > not really sure anymore). > > I had another endoscopy because my stomach was just killing me all the > time. Didn't matter what food, medicine, anything. I finally got the > doctor to do 'something' which was an endoscopy. That came back with > acute crohn's in the stomach. Prednisone knocked these out every > time. So I stayed up and down on Prednisone until SCD. > > So some you can have Crohn's Colitis. I've been told it's either one > or the other. Crohn's can be from mouth to anus. UC is only the > colon. www.ccfa.org is a foundation for CD and UC--the main, largest > information source for each disease and how it's diagnosed. > > Good luck, I hope you get more information. Usually (I'm in Texas, > USA and I'm not sure where you are) CCFA.org sent me a big envelope > with all kinds of information when I first got ill/diagnosed. > Otherwise, I was googling everything since I was totally unfamiliar > with it. Your doctor may be able to get that type of information to > you or contact CCFA to see if they will send you information. > > Everything you described seems to get better when the cd gets better > so it's not like multiple diseases. It is auto-immune from what I've > been told. I think there are antibiotics for the H. Plori (sp?). > > Talk to your doc and get some answers. Hopefully they have patience > to answer you. If not, email ccfa for information. > > Debbie 39 cd dx'd 3/2002 > scd originally 12/05 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Debbie, As I understand you no longer need to take prednisone after your started the SCD ? SCD was such a powerful cure for you? Sandhya > Hi, I was first diagnosed with Crohn's Colitis via endoscopy and> colonoscopy. They did biopsies and the doctor said skipped diseased> patches on my colon. There was a lot of information I didn't take in> at the time so I can't remember what all the report said. They gave> me pictures with every scope too. GERD, ulcers, etc. I also took> Nexium to start. They switched me to Protonix when it came out which> worked so much better for me. After several tries at other drugs, I> was put on Pentasa because it covers the stomach on down.>> I went to a different GI doc that my PCP requested. He did a> Prometheus blood test first to determine if it was Crohn's or UC.> Came back positive for Crohn's. Ruled out UC (maybe Celiac but I'm> not really sure anymore).>> I had another endoscopy because my stomach was just killing me all the> time. Didn't matter what food, medicine, anything. I finally got the> doctor to do 'something' which was an endoscopy. That came back with> acute crohn's in the stomach. Prednisone knocked these out every> time. So I stayed up and down on Prednisone until SCD.>> So some you can have Crohn's Colitis. I've been told it's either one> or the other. Crohn's can be from mouth to anus. UC is only the> colon. www.ccfa.org is a foundation for CD and UC--the main, largest> information source for each disease and how it's diagnosed.>> Good luck, I hope you get more information. Usually (I'm in Texas,> USA and I'm not sure where you are) CCFA.org sent me a big envelope> with all kinds of information when I first got ill/diagnosed.> Otherwise, I was googling everything since I was totally unfamiliar> with it. Your doctor may be able to get that type of information to> you or contact CCFA to see if they will send you information.>> Everything you described seems to get better when the cd gets better> so it's not like multiple diseases. It is auto-immune from what I've> been told. I think there are antibiotics for the H. Plori (sp?).>> Talk to your doc and get some answers. Hopefully they have patience> to answer you. If not, email ccfa for information.>> Debbie 39 cd dx'd 3/2002> scd originally 12/05> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Hi, no I took the 7 day pack last January for a asthma/chest cold problem but as far as CD and prednisone, I have not had to take prednisone once. The yogurt/chicken soup seems to calm everything down again. I go back to the intro. I have had a couple of bad spells but very short like one night. The thing is by not being extremely 'strict' it doesn't help with other problems like sleeping all night and moods. And anemia. So I was reading the BTVC and have decided to go extremely strict with a rotation diet and take it from there. There's definitely enough difference to do it. Good luck, the learning curve at the beginning (making yogurt, etc.) is the worst part. Debbie 39 cd scd originally 12/05 > As I understand you no longer need to take prednisone after your started the > SCD ? SCD was such a powerful cure for you? Quote Link to comment Share on other sites More sharing options...
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