Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 > > Can a gluten reaction last this long? > (Geez, I only ate one bowl of soup with some kind of hidden > wheat in it) A bowl of soup got me once, too. After I got sick, hubby re-read the ingredients list and said " it was probably the maltodextrin and/or MSG that got you " . Those maybe-yes/maybe-no ingredients are REALLY TRICKY!! Anyway.... I don't get the exhaustion symptom that you get. But yes, a gluten reaction can last for many days for me. I can have pain, nauseau, cramping, and " back door explosions " for days and days after a glutening. And I can get follow-on symptoms, too, like the mouth ulcers that make it hurt to smile or talk! Hugs. Sorry you're feeling so poorly. May you recover completely PRONTO! Esther in RI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 > > Can a gluten reaction last this long? > (Geez, I only ate one bowl of soup with some kind of hidden > wheat in it) A bowl of soup got me once, too. After I got sick, hubby re-read the ingredients list and said " it was probably the maltodextrin and/or MSG that got you " . Those maybe-yes/maybe-no ingredients are REALLY TRICKY!! Anyway.... I don't get the exhaustion symptom that you get. But yes, a gluten reaction can last for many days for me. I can have pain, nauseau, cramping, and " back door explosions " for days and days after a glutening. And I can get follow-on symptoms, too, like the mouth ulcers that make it hurt to smile or talk! Hugs. Sorry you're feeling so poorly. May you recover completely PRONTO! Esther in RI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Well, I never thought to link celiac to fatigue during my period. But I always am exhausted during that time. I've read about women having the most trouble sleeping the week of their period. But I am the opposite. I sleep best when I have my period, I'm exhausted and ready for bed about 8pm during that week. But yes, i do tend to drag when that week comes. > > Okay, I'm starting to get really frustrated. Prior to Christmas and prior to my celiac diagnosis, I was starting to feel pretty good for the most part. I finally got my thyroid diagnosed and had been on Synthyroid for 2 months and it was like a miracle the difference it made. I actually didn't even think of a nap. > > I started the gf diet just before New Years day, and I've been so tired since that week. I am just dragging, and not keeping up with much around the house. We homeschool, so getting the boys work done is all I've had energy for (and just the basics, at that). I started taking vitamins a week ago, hoping that would help. > > It started to get a little better last week and then I started my period and also accidentally got some gluten at about the same time (last Friday/Sat). I'm back to square one again...I'm just dragging my body today, which feels like I have lead weights attached to my arms and legs, and although I woke up at 8, I'm ready for a nap here at 10:00. I really don't get it and don't know what to do next. > > Can the celiac thing cause these problems in a cyclical way (with your monthy cycle), even if you are on the diet? Can a gluten reaction last this long? (Geez, I only ate one bowl of soup with some kind of hidden wheat in it) > > Thanks again, > > - > > > --------------------------------- > Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, & more on new and used cars. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Well, I never thought to link celiac to fatigue during my period. But I always am exhausted during that time. I've read about women having the most trouble sleeping the week of their period. But I am the opposite. I sleep best when I have my period, I'm exhausted and ready for bed about 8pm during that week. But yes, i do tend to drag when that week comes. > > Okay, I'm starting to get really frustrated. Prior to Christmas and prior to my celiac diagnosis, I was starting to feel pretty good for the most part. I finally got my thyroid diagnosed and had been on Synthyroid for 2 months and it was like a miracle the difference it made. I actually didn't even think of a nap. > > I started the gf diet just before New Years day, and I've been so tired since that week. I am just dragging, and not keeping up with much around the house. We homeschool, so getting the boys work done is all I've had energy for (and just the basics, at that). I started taking vitamins a week ago, hoping that would help. > > It started to get a little better last week and then I started my period and also accidentally got some gluten at about the same time (last Friday/Sat). I'm back to square one again...I'm just dragging my body today, which feels like I have lead weights attached to my arms and legs, and although I woke up at 8, I'm ready for a nap here at 10:00. I really don't get it and don't know what to do next. > > Can the celiac thing cause these problems in a cyclical way (with your monthy cycle), even if you are on the diet? Can a gluten reaction last this long? (Geez, I only ate one bowl of soup with some kind of hidden wheat in it) > > Thanks again, > > - > > > --------------------------------- > Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, & more on new and used cars. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 , I hope you feel better soon. Are you taking Iron supplements? I (male) was anemic for years before I was Dx'd with Celiac's. I could always tell when I needed to take the supplements, as fatigue would take over. I couldn't walk up a flight of stairs with out stopping. Changing your diet from enriched wheat breads may have taken most of the iron out of your diet. Iron helps make red blood cells which carry oxygen to your muscles. And add to it even less red blood cells during your time of the month, would point to anemia related fatigue. If you can, have a blood test soon, and talk to your Dr. about iron supplements. Good luck and hang in there, Mike in MA > > Okay, I'm starting to get really frustrated. Prior to Christmas and prior to my celiac diagnosis, I was starting to feel pretty good for the most part. I finally got my thyroid diagnosed and had been on Synthyroid for 2 months and it was like a miracle the difference it made. I actually didn't even think of a nap. > > I started the gf diet just before New Years day, and I've been so tired since that week. I am just dragging, and not keeping up with much around the house. We homeschool, so getting the boys work done is all I've had energy for (and just the basics, at that). I started taking vitamins a week ago, hoping that would help. > > It started to get a little better last week and then I started my period and also accidentally got some gluten at about the same time (last Friday/Sat). I'm back to square one again...I'm just dragging my body today, which feels like I have lead weights attached to my arms and legs, and although I woke up at 8, I'm ready for a nap here at 10:00. I really don't get it and don't know what to do next. > > Can the celiac thing cause these problems in a cyclical way (with your monthy cycle), even if you are on the diet? Can a gluten reaction last this long? (Geez, I only ate one bowl of soup with some kind of hidden wheat in it) > > Thanks again, > > - > > > --------------------------------- > Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, & more on new and used cars. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hi , Yes, a gluten reaction can cause exhaustion that lasts a while. For me it lasts about 2 weeks! This is not saying that I am bed-ridden for two weeks, only that I am dragging myself around for that long. I accidentally got gluten last Monday (1/16) and I am still suffering through it. My pattern of symptoms goes like this. Day 1, horrible stomach pain, bloating, gas, tenderness... Day 2-4, diarrhea, gas, bloating, tenderness, stomach pain (but less severe), DH breaks out usually on my scalp and exhaustion Day 5, joint pain starts and sometimes a headache, constipation starts, tumy still gassy and tender and the exhaustion drags on. I am so tired, but I also can't sleep. Day 6-10 everything continues, but gets a little less severe each day. Day 11-14 the rash is still annoying and my tummy is mostly back to normal, and the exhaustion is less severe, but I am still more tired than normal. It takes me forever and a day to finally get rid of the rash sores, but they are the only symptom that will continue past the two week mark for me. When I tell " normal " non-celiac friends what even a small amount of gluten does to me, then they can understand why I am so careful all the time. I am so upset about how my kids and I got it too. We were eating at HOME! We were eating a Zatarain's rice mix that we have had at least 3 times before and it is supposed to be gluten free. We had no problems with it before. In fact I never got to eat much before because my kids always inhaled it all before I could do anything but taste it. Thsi time they all grabbed a bowl, took a few bites and left it. I tasted it and it was spicy, but I didn't realise how much more than normal (having only had a few bites before!). So I ate 2 bowls full right before we headed out to go shopping. Oh my gosh! I was in so much pain by the time we got home. The only thing I can figure is that the box was mispackaged and there was a more spicy glutened rice mix in the box and not the one we normally have. My older son said the rice was even darker than it used to be...So needless to say we won't be eating Zatarain's again. All of my kids have been suffering mild symptoms this week. I am thankful they didn't eat as much as I did. But even a few crumbs worth of gluten could make a person so sick. Even just a bowl of soup like you had. Also, it can take a while to really start feeling great on the diet. I felt really tired for the first month on the diet. I think my body just needed some down time while it was healing. I hope you and I both are feeling better soon! Just be careful. I know that I will have to rethink the whole idea of purchasing products from companies that also make gluten foods now. It isn't worth the pain to have the convenience of buying more foods from the regular grocery store. God bless, nn ~Original Message~ Okay, I'm starting to get really frustrated. Prior to Christmas and prior to my celiac diagnosis, I was starting to feel pretty good for the most part. I finally got my thyroid diagnosed and had been on Synthyroid for 2 months and it was like a miracle the difference it made. I actually didn't even think of a nap. I started the gf diet just before New Years day, and I've been so tired since that week. I am just dragging, and not keeping up with much around the house. We homeschool, so getting the boys work done is all I've had energy for (and just the basics, at that). I started taking vitamins a week ago, hoping that would help. It started to get a little better last week and then I started my period and also accidentally got some gluten at about the same time (last Friday/Sat). I'm back to square one again...I'm just dragging my body today, which feels like I have lead weights attached to my arms and legs, and although I woke up at 8, I'm ready for a nap here at 10:00. I really don't get it and don't know what to do next. Can the celiac thing cause these problems in a cyclical way (with your monthy cycle), even if you are on the diet? Can a gluten reaction last this long? (Geez, I only ate one bowl of soup with some kind of hidden wheat in it) Thanks again, - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hi , Yes, a gluten reaction can cause exhaustion that lasts a while. For me it lasts about 2 weeks! This is not saying that I am bed-ridden for two weeks, only that I am dragging myself around for that long. I accidentally got gluten last Monday (1/16) and I am still suffering through it. My pattern of symptoms goes like this. Day 1, horrible stomach pain, bloating, gas, tenderness... Day 2-4, diarrhea, gas, bloating, tenderness, stomach pain (but less severe), DH breaks out usually on my scalp and exhaustion Day 5, joint pain starts and sometimes a headache, constipation starts, tumy still gassy and tender and the exhaustion drags on. I am so tired, but I also can't sleep. Day 6-10 everything continues, but gets a little less severe each day. Day 11-14 the rash is still annoying and my tummy is mostly back to normal, and the exhaustion is less severe, but I am still more tired than normal. It takes me forever and a day to finally get rid of the rash sores, but they are the only symptom that will continue past the two week mark for me. When I tell " normal " non-celiac friends what even a small amount of gluten does to me, then they can understand why I am so careful all the time. I am so upset about how my kids and I got it too. We were eating at HOME! We were eating a Zatarain's rice mix that we have had at least 3 times before and it is supposed to be gluten free. We had no problems with it before. In fact I never got to eat much before because my kids always inhaled it all before I could do anything but taste it. Thsi time they all grabbed a bowl, took a few bites and left it. I tasted it and it was spicy, but I didn't realise how much more than normal (having only had a few bites before!). So I ate 2 bowls full right before we headed out to go shopping. Oh my gosh! I was in so much pain by the time we got home. The only thing I can figure is that the box was mispackaged and there was a more spicy glutened rice mix in the box and not the one we normally have. My older son said the rice was even darker than it used to be...So needless to say we won't be eating Zatarain's again. All of my kids have been suffering mild symptoms this week. I am thankful they didn't eat as much as I did. But even a few crumbs worth of gluten could make a person so sick. Even just a bowl of soup like you had. Also, it can take a while to really start feeling great on the diet. I felt really tired for the first month on the diet. I think my body just needed some down time while it was healing. I hope you and I both are feeling better soon! Just be careful. I know that I will have to rethink the whole idea of purchasing products from companies that also make gluten foods now. It isn't worth the pain to have the convenience of buying more foods from the regular grocery store. God bless, nn ~Original Message~ Okay, I'm starting to get really frustrated. Prior to Christmas and prior to my celiac diagnosis, I was starting to feel pretty good for the most part. I finally got my thyroid diagnosed and had been on Synthyroid for 2 months and it was like a miracle the difference it made. I actually didn't even think of a nap. I started the gf diet just before New Years day, and I've been so tired since that week. I am just dragging, and not keeping up with much around the house. We homeschool, so getting the boys work done is all I've had energy for (and just the basics, at that). I started taking vitamins a week ago, hoping that would help. It started to get a little better last week and then I started my period and also accidentally got some gluten at about the same time (last Friday/Sat). I'm back to square one again...I'm just dragging my body today, which feels like I have lead weights attached to my arms and legs, and although I woke up at 8, I'm ready for a nap here at 10:00. I really don't get it and don't know what to do next. Can the celiac thing cause these problems in a cyclical way (with your monthy cycle), even if you are on the diet? Can a gluten reaction last this long? (Geez, I only ate one bowl of soup with some kind of hidden wheat in it) Thanks again, - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Thanks for sharing with me, nn. I was thinking about what you said and realized that if indeed I'm going to react like this, I'll have to be very diligent about the diet. It's bad enough to feel real draggy on an average week, but what if it happens right before an important event? I'm starting a photography business and can't afford to feel horrible at a wedding I'm shooting. For that matter, what if I decide to put the kids in school and go to work. How will I make it through the day? This is really scary stuffnn wrote: Hi ,Yes, a gluten reaction can cause exhaustion that lasts a while. For me itlasts about 2 weeks! This is not saying that I am bed-ridden for twoweeks, only that I am dragging myself around for that long. I accidentallygot gluten last Monday (1/16) and I am still suffering through it. Mypattern of symptoms goes like this. Day 1, horrible stomach pain, bloating, gas, tenderness...Day 2-4, diarrhea, gas, bloating, tenderness, stomach pain (but lesssevere), DH breaks out usually on my scalp and exhaustionDay 5, joint pain starts and sometimes a headache, constipation starts,tumy still gassy and tender and the exhaustion drags on. I am so tired, butI also can't sleep.Day 6-10 everything continues, but gets a little less severe each day.Day 11-14 the rash is still annoying and my tummy is mostly back to normal,and the exhaustion is less severe, but I am still more tired than normal.It takes me forever and a day to finally get rid of the rash sores, butthey are the only symptom that will continue past the two week mark for me.When I tell "normal" non-celiac friends what even a small amount of glutendoes to me, then they can understand why I am so careful all the time. Iam so upset about how my kids and I got it too. We were eating at HOME! We were eating a Zatarain's rice mix that we have had at least 3 timesbefore and it is supposed to be gluten free. We had no problems with itbefore. In fact I never got to eat much before because my kids alwaysinhaled it all before I could do anything but taste it. Thsi time they allgrabbed a bowl, took a few bites and left it. I tasted it and it wasspicy, but I didn't realise how much more than normal (having only had afew bites before!). So I ate 2 bowls full right before we headed out to goshopping. Oh my gosh! I was in so much pain by the time we got home. Theonly thing I can figure is that the box was mispackaged and there was amore spicy glutened rice mix in the box and not the one we normally have. My older son said the rice was even darker than it used to be...So needlessto say we won't be eating Zatarain's again. All of my kids have beensuffering mild symptoms this week. I am thankful they didn't eat as muchas I did. But even a few crumbs worth of gluten could make a person sosick. Even just a bowl of soup like you had.Also, it can take a while to really start feeling great on the diet. Ifelt really tired for the first month on the diet. I think my body justneeded some down time while it was healing.I hope you and I both are feeling better soon! Just be careful. I knowthat I will have to rethink the whole idea of purchasing products fromcompanies that also make gluten foods now. It isn't worth the pain to havethe convenience of buying more foods from the regular grocery store.God bless,nn~Original Message~ Okay, I'm starting to get really frustrated. Prior to Christmas and priorto my celiac diagnosis, I was starting to feel pretty good for the mostpart. I finally got my thyroid diagnosed and had been on Synthyroid for 2months and it was like a miracle the difference it made. I actually didn'teven think of a nap.I started the gf diet just before New Years day, and I've been so tiredsince that week. I am just dragging, and not keeping up with much aroundthe house. We homeschool, so getting the boys work done is all I've hadenergy for (and just the basics, at that). I started taking vitamins a weekago, hoping that would help.It started to get a little better last week and then I started my periodand also accidentally got some gluten at about the same time (lastFriday/Sat). I'm back to square one again...I'm just dragging my bodytoday, which feels like I have lead weights attached to my arms and legs,and although I woke up at 8, I'm ready for a nap here at 10:00. I reallydon't get it and don't know what to do next.Can the celiac thing cause these problems in a cyclical way (with yourmonthy cycle), even if you are on the diet? Can a gluten reaction last thislong? (Geez, I only ate one bowl of soup with some kind of hidden wheat init)Thanks again,- What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 The person who is frustrated if you need to talk private email me or if you have instead message I was diosmosed recently From: SillyYaks [mailto:SillyYaks ] On Behalf Of wendy pandolfo Sent: Tuesday, January 24, 2006 12:19 AM To: SillyYaks Subject: RE: Frustrated Thanks for sharing with me, nn. I was thinking about what you said and realized that if indeed I'm going to react like this, I'll have to be very diligent about the diet. It's bad enough to feel real draggy on an average week, but what if it happens right before an important event? I'm starting a photography business and can't afford to feel horrible at a wedding I'm shooting. For that matter, what if I decide to put the kids in school and go to work. How will I make it through the day? This is really scary stuff nn wrote: Hi , Yes, a gluten reaction can cause exhaustion that lasts a while. For me it lasts about 2 weeks! This is not saying that I am bed-ridden for two weeks, only that I am dragging myself around for that long. I accidentally got gluten last Monday (1/16) and I am still suffering through it. My pattern of symptoms goes like this. Day 1, horrible stomach pain, bloating, gas, tenderness... Day 2-4, diarrhea, gas, bloating, tenderness, stomach pain (but less severe), DH breaks out usually on my scalp and exhaustion Day 5, joint pain starts and sometimes a headache, constipation starts, tumy still gassy and tender and the exhaustion drags on. I am so tired, but I also can't sleep. Day 6-10 everything continues, but gets a little less severe each day. Day 11-14 the rash is still annoying and my tummy is mostly back to normal, and the exhaustion is less severe, but I am still more tired than normal. It takes me forever and a day to finally get rid of the rash sores, but they are the only symptom that will continue past the two week mark for me. When I tell " normal " non-celiac friends what even a small amount of gluten does to me, then they can understand why I am so careful all the time. I am so upset about how my kids and I got it too. We were eating at HOME! We were eating a Zatarain's rice mix that we have had at least 3 times before and it is supposed to be gluten free. We had no problems with it before. In fact I never got to eat much before because my kids always inhaled it all before I could do anything but taste it. Thsi time they all grabbed a bowl, took a few bites and left it. I tasted it and it was spicy, but I didn't realise how much more than normal (having only had a few bites before!). So I ate 2 bowls full right before we headed out to go shopping. Oh my gosh! I was in so much pain by the time we got home. The only thing I can figure is that the box was mispackaged and there was a more spicy glutened rice mix in the box and not the one we normally have. My older son said the rice was even darker than it used to be...So needless to say we won't be eating Zatarain's again. All of my kids have been suffering mild symptoms this week. I am thankful they didn't eat as much as I did. But even a few crumbs worth of gluten could make a person so sick. Even just a bowl of soup like you had. Also, it can take a while to really start feeling great on the diet. I felt really tired for the first month on the diet. I think my body just needed some down time while it was healing. I hope you and I both are feeling better soon! Just be careful. I know that I will have to rethink the whole idea of purchasing products from companies that also make gluten foods now. It isn't worth the pain to have the convenience of buying more foods from the regular grocery store. God bless, nn ~Original Message~ Okay, I'm starting to get really frustrated. Prior to Christmas and prior to my celiac diagnosis, I was starting to feel pretty good for the most part. I finally got my thyroid diagnosed and had been on Synthyroid for 2 months and it was like a miracle the difference it made. I actually didn't even think of a nap. I started the gf diet just before New Years day, and I've been so tired since that week. I am just dragging, and not keeping up with much around the house. We homeschool, so getting the boys work done is all I've had energy for (and just the basics, at that). I started taking vitamins a week ago, hoping that would help. It started to get a little better last week and then I started my period and also accidentally got some gluten at about the same time (last Friday/Sat). I'm back to square one again...I'm just dragging my body today, which feels like I have lead weights attached to my arms and legs, and although I woke up at 8, I'm ready for a nap here at 10:00. I really don't get it and don't know what to do next. Can the celiac thing cause these problems in a cyclical way (with your monthy cycle), even if you are on the diet? Can a gluten reaction last this long? (Geez, I only ate one bowl of soup with some kind of hidden wheat in it) Thanks again, - What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 The person who is frustrated if you need to talk private email me or if you have instead message I was diosmosed recently From: SillyYaks [mailto:SillyYaks ] On Behalf Of wendy pandolfo Sent: Tuesday, January 24, 2006 12:19 AM To: SillyYaks Subject: RE: Frustrated Thanks for sharing with me, nn. I was thinking about what you said and realized that if indeed I'm going to react like this, I'll have to be very diligent about the diet. It's bad enough to feel real draggy on an average week, but what if it happens right before an important event? I'm starting a photography business and can't afford to feel horrible at a wedding I'm shooting. For that matter, what if I decide to put the kids in school and go to work. How will I make it through the day? This is really scary stuff nn wrote: Hi , Yes, a gluten reaction can cause exhaustion that lasts a while. For me it lasts about 2 weeks! This is not saying that I am bed-ridden for two weeks, only that I am dragging myself around for that long. I accidentally got gluten last Monday (1/16) and I am still suffering through it. My pattern of symptoms goes like this. Day 1, horrible stomach pain, bloating, gas, tenderness... Day 2-4, diarrhea, gas, bloating, tenderness, stomach pain (but less severe), DH breaks out usually on my scalp and exhaustion Day 5, joint pain starts and sometimes a headache, constipation starts, tumy still gassy and tender and the exhaustion drags on. I am so tired, but I also can't sleep. Day 6-10 everything continues, but gets a little less severe each day. Day 11-14 the rash is still annoying and my tummy is mostly back to normal, and the exhaustion is less severe, but I am still more tired than normal. It takes me forever and a day to finally get rid of the rash sores, but they are the only symptom that will continue past the two week mark for me. When I tell " normal " non-celiac friends what even a small amount of gluten does to me, then they can understand why I am so careful all the time. I am so upset about how my kids and I got it too. We were eating at HOME! We were eating a Zatarain's rice mix that we have had at least 3 times before and it is supposed to be gluten free. We had no problems with it before. In fact I never got to eat much before because my kids always inhaled it all before I could do anything but taste it. Thsi time they all grabbed a bowl, took a few bites and left it. I tasted it and it was spicy, but I didn't realise how much more than normal (having only had a few bites before!). So I ate 2 bowls full right before we headed out to go shopping. Oh my gosh! I was in so much pain by the time we got home. The only thing I can figure is that the box was mispackaged and there was a more spicy glutened rice mix in the box and not the one we normally have. My older son said the rice was even darker than it used to be...So needless to say we won't be eating Zatarain's again. All of my kids have been suffering mild symptoms this week. I am thankful they didn't eat as much as I did. But even a few crumbs worth of gluten could make a person so sick. Even just a bowl of soup like you had. Also, it can take a while to really start feeling great on the diet. I felt really tired for the first month on the diet. I think my body just needed some down time while it was healing. I hope you and I both are feeling better soon! Just be careful. I know that I will have to rethink the whole idea of purchasing products from companies that also make gluten foods now. It isn't worth the pain to have the convenience of buying more foods from the regular grocery store. God bless, nn ~Original Message~ Okay, I'm starting to get really frustrated. Prior to Christmas and prior to my celiac diagnosis, I was starting to feel pretty good for the most part. I finally got my thyroid diagnosed and had been on Synthyroid for 2 months and it was like a miracle the difference it made. I actually didn't even think of a nap. I started the gf diet just before New Years day, and I've been so tired since that week. I am just dragging, and not keeping up with much around the house. We homeschool, so getting the boys work done is all I've had energy for (and just the basics, at that). I started taking vitamins a week ago, hoping that would help. It started to get a little better last week and then I started my period and also accidentally got some gluten at about the same time (last Friday/Sat). I'm back to square one again...I'm just dragging my body today, which feels like I have lead weights attached to my arms and legs, and although I woke up at 8, I'm ready for a nap here at 10:00. I really don't get it and don't know what to do next. Can the celiac thing cause these problems in a cyclical way (with your monthy cycle), even if you are on the diet? Can a gluten reaction last this long? (Geez, I only ate one bowl of soup with some kind of hidden wheat in it) Thanks again, - What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 The person who is frustrated if you need to talk private email me or if you have instead message I was diosmosed recently From: SillyYaks [mailto:SillyYaks ] On Behalf Of wendy pandolfo Sent: Tuesday, January 24, 2006 12:19 AM To: SillyYaks Subject: RE: Frustrated Thanks for sharing with me, nn. I was thinking about what you said and realized that if indeed I'm going to react like this, I'll have to be very diligent about the diet. It's bad enough to feel real draggy on an average week, but what if it happens right before an important event? I'm starting a photography business and can't afford to feel horrible at a wedding I'm shooting. For that matter, what if I decide to put the kids in school and go to work. How will I make it through the day? This is really scary stuff nn wrote: Hi , Yes, a gluten reaction can cause exhaustion that lasts a while. For me it lasts about 2 weeks! This is not saying that I am bed-ridden for two weeks, only that I am dragging myself around for that long. I accidentally got gluten last Monday (1/16) and I am still suffering through it. My pattern of symptoms goes like this. Day 1, horrible stomach pain, bloating, gas, tenderness... Day 2-4, diarrhea, gas, bloating, tenderness, stomach pain (but less severe), DH breaks out usually on my scalp and exhaustion Day 5, joint pain starts and sometimes a headache, constipation starts, tumy still gassy and tender and the exhaustion drags on. I am so tired, but I also can't sleep. Day 6-10 everything continues, but gets a little less severe each day. Day 11-14 the rash is still annoying and my tummy is mostly back to normal, and the exhaustion is less severe, but I am still more tired than normal. It takes me forever and a day to finally get rid of the rash sores, but they are the only symptom that will continue past the two week mark for me. When I tell " normal " non-celiac friends what even a small amount of gluten does to me, then they can understand why I am so careful all the time. I am so upset about how my kids and I got it too. We were eating at HOME! We were eating a Zatarain's rice mix that we have had at least 3 times before and it is supposed to be gluten free. We had no problems with it before. In fact I never got to eat much before because my kids always inhaled it all before I could do anything but taste it. Thsi time they all grabbed a bowl, took a few bites and left it. I tasted it and it was spicy, but I didn't realise how much more than normal (having only had a few bites before!). So I ate 2 bowls full right before we headed out to go shopping. Oh my gosh! I was in so much pain by the time we got home. The only thing I can figure is that the box was mispackaged and there was a more spicy glutened rice mix in the box and not the one we normally have. My older son said the rice was even darker than it used to be...So needless to say we won't be eating Zatarain's again. All of my kids have been suffering mild symptoms this week. I am thankful they didn't eat as much as I did. But even a few crumbs worth of gluten could make a person so sick. Even just a bowl of soup like you had. Also, it can take a while to really start feeling great on the diet. I felt really tired for the first month on the diet. I think my body just needed some down time while it was healing. I hope you and I both are feeling better soon! Just be careful. I know that I will have to rethink the whole idea of purchasing products from companies that also make gluten foods now. It isn't worth the pain to have the convenience of buying more foods from the regular grocery store. God bless, nn ~Original Message~ Okay, I'm starting to get really frustrated. Prior to Christmas and prior to my celiac diagnosis, I was starting to feel pretty good for the most part. I finally got my thyroid diagnosed and had been on Synthyroid for 2 months and it was like a miracle the difference it made. I actually didn't even think of a nap. I started the gf diet just before New Years day, and I've been so tired since that week. I am just dragging, and not keeping up with much around the house. We homeschool, so getting the boys work done is all I've had energy for (and just the basics, at that). I started taking vitamins a week ago, hoping that would help. It started to get a little better last week and then I started my period and also accidentally got some gluten at about the same time (last Friday/Sat). I'm back to square one again...I'm just dragging my body today, which feels like I have lead weights attached to my arms and legs, and although I woke up at 8, I'm ready for a nap here at 10:00. I really don't get it and don't know what to do next. Can the celiac thing cause these problems in a cyclical way (with your monthy cycle), even if you are on the diet? Can a gluten reaction last this long? (Geez, I only ate one bowl of soup with some kind of hidden wheat in it) Thanks again, - What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Hi , I have another thought. When you are doing your Gluten Free diet are you consuming a lot of substitute products? Like GF toast, sandwiches, cookies, etc? GF products have a draw back, they are loaded with simple carbs which turn into sugar rather quickly rising you glycemic index quickly with a sharp fall (the tiredness). The difference is in that wheat products carry a good amount of protein with the carb that helps to stabilize blood sugars. With Thyroid issues, possible Celiac Disease the last thing you need is a blood sugar issue. However, it would be prudent to have a fasting sugar test or an A1, just to either rule it in or out. Try having your toast with a protein like an egg or meat. If you eat a cookie have it with some cheese (baring in mind you are not having dairy issues). My little boy slept the first 2 wks on the GF diet, he would fall asleep at 4pm and not wake up until morning. I was really getting worried that his sugars were a problem. He wasn't eating much at all, so I know they were an issue to some extent. No one could tell me yeah, that happened to me too. I just believe that maybe for the first time in his life he was without pain and was catching up on 3 1/2 years of lost sleep. Rejoyce Winchester, VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Hi , I have another thought. When you are doing your Gluten Free diet are you consuming a lot of substitute products? Like GF toast, sandwiches, cookies, etc? GF products have a draw back, they are loaded with simple carbs which turn into sugar rather quickly rising you glycemic index quickly with a sharp fall (the tiredness). The difference is in that wheat products carry a good amount of protein with the carb that helps to stabilize blood sugars. With Thyroid issues, possible Celiac Disease the last thing you need is a blood sugar issue. However, it would be prudent to have a fasting sugar test or an A1, just to either rule it in or out. Try having your toast with a protein like an egg or meat. If you eat a cookie have it with some cheese (baring in mind you are not having dairy issues). My little boy slept the first 2 wks on the GF diet, he would fall asleep at 4pm and not wake up until morning. I was really getting worried that his sugars were a problem. He wasn't eating much at all, so I know they were an issue to some extent. No one could tell me yeah, that happened to me too. I just believe that maybe for the first time in his life he was without pain and was catching up on 3 1/2 years of lost sleep. Rejoyce Winchester, VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Hi , I have another thought. When you are doing your Gluten Free diet are you consuming a lot of substitute products? Like GF toast, sandwiches, cookies, etc? GF products have a draw back, they are loaded with simple carbs which turn into sugar rather quickly rising you glycemic index quickly with a sharp fall (the tiredness). The difference is in that wheat products carry a good amount of protein with the carb that helps to stabilize blood sugars. With Thyroid issues, possible Celiac Disease the last thing you need is a blood sugar issue. However, it would be prudent to have a fasting sugar test or an A1, just to either rule it in or out. Try having your toast with a protein like an egg or meat. If you eat a cookie have it with some cheese (baring in mind you are not having dairy issues). My little boy slept the first 2 wks on the GF diet, he would fall asleep at 4pm and not wake up until morning. I was really getting worried that his sugars were a problem. He wasn't eating much at all, so I know they were an issue to some extent. No one could tell me yeah, that happened to me too. I just believe that maybe for the first time in his life he was without pain and was catching up on 3 1/2 years of lost sleep. Rejoyce Winchester, VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 While you may not wish to buy a bunch of pre-made gluten free products, things that you make yourself can be as healthy (and high fiber, protein etc) as you choose. On pg. 26 and 27 of the Gluten free gourmet makes dessert, bette compares the relative carbohydrate, protein, fat, and fiber of alternative GF flours to wheat flour. It is interesting to note that wheat flour has a carbohydrate food value of 76 %, 10% protein, 1%fat and 3% fiber. In contrast, (auth foods)bean flour can have 23% protein, 6.5% fat, 7.5% fiber. quinoa is another good one, with 66% carbs, 12% protein, 5% fat and 7% fiber. brown rice flour is 79% carb, 6% protein, 1% fat, and 2% fiber...corn flour is also surprisingly high in fiber (14%), and buckwheat is quite high in protein (11.5%). Using blends using these ingredients can really make a difference. In contrast, white rice flour has 6% protein and no fiber... tapioca starch is all carbs (99%) and only 1% protein and no fiber. It's interesting to look at... and makes you realize what a difference the ingredients you use can make! I like using the four flour bean mix, which has 6% protein (you add egg or other protein to make it equiv. to wheat), and light bean flour mix, which has 8% protein. I use her featherlight mix for some recipes as well, although it is only 2% protein. > I thought that any white flour product processed though quickly. I didn't > realize that the gf flours were even worse. > I really do believe their is something to the theory that the processed > (white) flours and rice (and even corn flour) are not nearly as good for > you as whole grain, minimally processed (brown) flours and rice. So if I'm > following you correctly, I shouldn't be too quick to jump on the gf > processed foods or even baking my own bandwagon? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 While you may not wish to buy a bunch of pre-made gluten free products, things that you make yourself can be as healthy (and high fiber, protein etc) as you choose. On pg. 26 and 27 of the Gluten free gourmet makes dessert, bette compares the relative carbohydrate, protein, fat, and fiber of alternative GF flours to wheat flour. It is interesting to note that wheat flour has a carbohydrate food value of 76 %, 10% protein, 1%fat and 3% fiber. In contrast, (auth foods)bean flour can have 23% protein, 6.5% fat, 7.5% fiber. quinoa is another good one, with 66% carbs, 12% protein, 5% fat and 7% fiber. brown rice flour is 79% carb, 6% protein, 1% fat, and 2% fiber...corn flour is also surprisingly high in fiber (14%), and buckwheat is quite high in protein (11.5%). Using blends using these ingredients can really make a difference. In contrast, white rice flour has 6% protein and no fiber... tapioca starch is all carbs (99%) and only 1% protein and no fiber. It's interesting to look at... and makes you realize what a difference the ingredients you use can make! I like using the four flour bean mix, which has 6% protein (you add egg or other protein to make it equiv. to wheat), and light bean flour mix, which has 8% protein. I use her featherlight mix for some recipes as well, although it is only 2% protein. > I thought that any white flour product processed though quickly. I didn't > realize that the gf flours were even worse. > I really do believe their is something to the theory that the processed > (white) flours and rice (and even corn flour) are not nearly as good for > you as whole grain, minimally processed (brown) flours and rice. So if I'm > following you correctly, I shouldn't be too quick to jump on the gf > processed foods or even baking my own bandwagon? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 While you may not wish to buy a bunch of pre-made gluten free products, things that you make yourself can be as healthy (and high fiber, protein etc) as you choose. On pg. 26 and 27 of the Gluten free gourmet makes dessert, bette compares the relative carbohydrate, protein, fat, and fiber of alternative GF flours to wheat flour. It is interesting to note that wheat flour has a carbohydrate food value of 76 %, 10% protein, 1%fat and 3% fiber. In contrast, (auth foods)bean flour can have 23% protein, 6.5% fat, 7.5% fiber. quinoa is another good one, with 66% carbs, 12% protein, 5% fat and 7% fiber. brown rice flour is 79% carb, 6% protein, 1% fat, and 2% fiber...corn flour is also surprisingly high in fiber (14%), and buckwheat is quite high in protein (11.5%). Using blends using these ingredients can really make a difference. In contrast, white rice flour has 6% protein and no fiber... tapioca starch is all carbs (99%) and only 1% protein and no fiber. It's interesting to look at... and makes you realize what a difference the ingredients you use can make! I like using the four flour bean mix, which has 6% protein (you add egg or other protein to make it equiv. to wheat), and light bean flour mix, which has 8% protein. I use her featherlight mix for some recipes as well, although it is only 2% protein. > I thought that any white flour product processed though quickly. I didn't > realize that the gf flours were even worse. > I really do believe their is something to the theory that the processed > (white) flours and rice (and even corn flour) are not nearly as good for > you as whole grain, minimally processed (brown) flours and rice. So if I'm > following you correctly, I shouldn't be too quick to jump on the gf > processed foods or even baking my own bandwagon? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Have you been back to your to doctor to be tested for vitamin and mineral deficiencies? They can cause severe, dragging exhaustion - I know this from experience! At last fall's celiac conference, one of the MD's speaking (and these are celiac experts) suggested being tested annually for: Ferritin B12 Zinc thyroid and a couple other things I hope somebody else here can remember. And one rather strange suggestion that works for me: (I got this from the celiac listserv group) - at a time when you feel like your body is dragging and your arms and legs are heavy, try drinking a small amount of water with 1/2 tsp of table salt in it. I don't know why this helps, or actually if it is even safe, but I know it makes me feel much better in about 5 minutes. And isn't homeschooling fun on days when you're dragging? ;-) This morning I just want to go back to sleep, but it is time to start spelling - which my son hates! Maureen > > Okay, I'm starting to get really frustrated. Prior to Christmas and prior to my celiac diagnosis, I was starting to feel pretty good for the most part. I finally got my thyroid diagnosed and had been on Synthyroid for 2 months and it was like a miracle the difference it made. I actually didn't even think of a nap. > > I started the gf diet just before New Years day, and I've been so tired since that week. I am just dragging, and not keeping up with much around the house. We homeschool, so getting the boys work done is all I've had energy for (and just the basics, at that). I started taking vitamins a week ago, hoping that would help. > > It started to get a little better last week and then I started my period and also accidentally got some gluten at about the same time (last Friday/Sat). I'm back to square one again...I'm just dragging my body today, which feels like I have lead weights attached to my arms and legs, and although I woke up at 8, I'm ready for a nap here at 10:00. I really don't get it and don't know what to do next. > > Can the celiac thing cause these problems in a cyclical way (with your monthy cycle), even if you are on the diet? Can a gluten reaction last this long? (Geez, I only ate one bowl of soup with some kind of hidden wheat in it) > > Thanks again, > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Have you been back to your to doctor to be tested for vitamin and mineral deficiencies? They can cause severe, dragging exhaustion - I know this from experience! At last fall's celiac conference, one of the MD's speaking (and these are celiac experts) suggested being tested annually for: Ferritin B12 Zinc thyroid and a couple other things I hope somebody else here can remember. And one rather strange suggestion that works for me: (I got this from the celiac listserv group) - at a time when you feel like your body is dragging and your arms and legs are heavy, try drinking a small amount of water with 1/2 tsp of table salt in it. I don't know why this helps, or actually if it is even safe, but I know it makes me feel much better in about 5 minutes. And isn't homeschooling fun on days when you're dragging? ;-) This morning I just want to go back to sleep, but it is time to start spelling - which my son hates! Maureen > > Okay, I'm starting to get really frustrated. Prior to Christmas and prior to my celiac diagnosis, I was starting to feel pretty good for the most part. I finally got my thyroid diagnosed and had been on Synthyroid for 2 months and it was like a miracle the difference it made. I actually didn't even think of a nap. > > I started the gf diet just before New Years day, and I've been so tired since that week. I am just dragging, and not keeping up with much around the house. We homeschool, so getting the boys work done is all I've had energy for (and just the basics, at that). I started taking vitamins a week ago, hoping that would help. > > It started to get a little better last week and then I started my period and also accidentally got some gluten at about the same time (last Friday/Sat). I'm back to square one again...I'm just dragging my body today, which feels like I have lead weights attached to my arms and legs, and although I woke up at 8, I'm ready for a nap here at 10:00. I really don't get it and don't know what to do next. > > Can the celiac thing cause these problems in a cyclical way (with your monthy cycle), even if you are on the diet? Can a gluten reaction last this long? (Geez, I only ate one bowl of soup with some kind of hidden wheat in it) > > Thanks again, > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Really " good " caterers should know what is in their products... As a wedding guest I have had decent luck with asking chefs etc. and having a somewhat limited meal. I once had the best broccoli ever- and tuxedo chocolate strawberries, mmm... inspired me to have them at my wedding! tee hee.. > > I know it will be sad not to eat the catered meals if they are from good caterers, not to mention trying the cakes. I'll have to bring Power Bars and almonds I guess..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 With weak adrenals you need ot give this dose raise abotu a week for your body to stabilize and use it correctly. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ http://groups.yahoo.com/group/HypoPets/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 I have been dosing my t3 as 25mcg upon waking 37.5 mcg 5 hours later 25mcg bedtime I was thinking about switching to the schedule on Nick's site and tyring 7am 25mcg 10am 25mcg 1pm 12.5mcg 4pm 12.5mcg bedtime 12.5mcg would this help or hurt adrenals? - > > With weak adrenals you need ot give this dose raise abotu a week for > your body to stabilize and use it correctly. > > -- > Artistic Grooming- Hurricane WV > > http://www.stopthethyroidmadness.com/ > http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ > http://health.groups.yahoo.com/group/RT3_T3/ > http://groups.yahoo.com/group/HypoPets/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 >then yesterday my temp ave was 98.6! Then today I woke up feeling like crap (as usual) and my temp has been around 98.0 97.8. > >I really don't know what to do. My hc was the right dose b/c my temps have been stable for almost a month....yet adding t3 has just made me more tired. This is part of the juggling act. Additional T3 can need more HC as it is " used up " by the T3 getting into the cells. This is sometimes only a temporary need, you may be able to taper back down 3 or 4 days later when your body is used to the extra Otherwise taking the T3 in more but smaller doses can help avoid that Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Hi Nick, Thanks for replying. So since I went to 75 and the temps steadily dropped, and now i've gone up 12.5 and they dropped, should I switch to the 5xday t3 schedule AND add some more HC? Any idea why my temp was a steady 98.6 yesterday out of the blue? - > > >then yesterday my temp ave was 98.6! Then today I woke up feeling like crap (as usual) and my temp has been around 98.0 97.8. > > > >I really don't know what to do. My hc was the right dose b/c my temps have been stable for almost a month....yet adding t3 has just made me more tired. > > This is part of the juggling act. Additional T3 can need more HC as it > is " used up " by the T3 getting into the cells. > > This is sometimes only a temporary need, you may be able to taper back > down 3 or 4 days later when your body is used to the extra > > Otherwise taking the T3 in more but smaller doses can help avoid that > > Nick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Thanks so much Nick I'm going to drop to 62.5 tomorrow by doing 12.5 five times a day I will dose hc 10, 10, 7.5, 5bedtime I'll give it a week and check back. Thanks! > > >So since I went to 75 and the temps steadily dropped, and now i've gone up 12.5 and they dropped, should I switch to the 5xday t3 schedule AND add some more HC? > > I would go to 5 times a day and add some extra HC but lower the T3 for > the first day to 50 or 62 depending how you feel. It is possible that > the extra HC would make the 75 too much > > > >Any idea why my temp was a steady 98.6 yesterday out of the blue? > > Passing through a good place maybe?? > > Nick > Quote Link to comment Share on other sites More sharing options...
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