How long before the bleeding stops?

[Guest guest]

I understand that everyone is different, and that it took a long to

get sick and thus will take a long time to get better, but I am hoping

for some perspective on when I might expect to see some positive

results, as I am getting rather frustrated and discouraged.

On the plus side, I've finally tapered all the way off of prednisone,

and I'm NOT having the debilitating joint/fever/non-GI symptoms that

have previously accompanied my flares.

On the down side, the bleeding and D seem to be getting worse, if

anything, not better. I can't figure out what I should eat. I've

been on SCD since March, and I've experimented with various

permutations: Intro diet, Stage 1, non-dairy SCD, vegan SCD,

supplements, no supplements. Because I'm so concerned about blood

loss and anemia putting me back in the hospital (I've been feeling

very fatigued), I've even started eating red meat recently, for the

first time in 25 years.

Nothing really seems to make difference. Am I not giving things

enough time to take effect? Was the effect of continually-lowering

prednisone doses throwing things off? Should I start again now that

I'm off prednisone (but still on Asacol)?

I'm frustrated and don't know what to do next. If I could stabilize

things enough (get the bloody D to stop) with a very simple diet, I

could add things back slowly and see what has an effect. But I can't

seem to find anything that I *can* eat to alleviate the symptoms. I

welcome your input and advice and am grateful to this group.

Thanks for your help!

Christy

Crohn's (in my colon) 10 yrs

SCD since 3/08

Asacol (just tapered off pred.)

various supplements