Re: Hi...we're new !

[Guest guest]

Hi Marla!

No, you are not being a downer at all...I understand all too well the

stress. We have been on the SCD now for only about 1 1/2 weeks and

Kayla is still having blood in her stools. She is also on Humira

which I mentioned earlier and Prednisone. She did not eat her lunch

yesterday or today at school. No wonder she looks and feels weak. We

sent her with sliced grilled chicken, a ripe banana and some

applesauce. She only ate the applesauce. Said she felt sick. I

don't know what to do! Will things get better??? Will we start

seeing results??? UGH...this is major stress! I do know why you

start feeling pessimistic.

Therese

>

> Hi, me again.

> I just felt like I was such a downer just now with what I wrote to you.

> I've realized lately that I'm a pessimist in a lot of ways, and I

hate that.

> You have to understand that I've been dealing with this stress since

July and even though she's starting to get back to school, I won't be

able to relax until she graduates from HS.

> I'm kidding (sort of).

> Anyway, I just wanted to say that this blog is great. And the diet

seems to have helped so many people. Your daughter doesn't have what

my daughter has so we can't really compare the 2. I know you'll find a

lot of help on here. These people are great. They respond to questions

quickly.

> As far as weight gain, that's a concern I have right now with

also.

> As far as the dry curd cottage cheese, I can find it at Jewel or

Meijer. You probably don't have a Meijer by you. It's more Michigan

based. I'm in Chicago area. But technically Rach can't have it anyway

since she has the dairy intolerance.

> My advice would be to start slowly like a few have said to you to

do. They told me it's like treating your daughter's stomach like an

infant's stomach. You do the intro first and then the stages. That's

really the best way to go.

> I hope I redeemed myself a little by writing back. Obviously I

wouldn't be doing this diet for her if I didn't think it would help.

The gastro doc couldn't find anything wrong with Rach in Sept. It was

the nutritionist who found the bacterial overgrowth and put Rach on

this diet. So, like I said, we just keep plugging away on it.

> Marla

>

>

>

>

> ________________________________

>

> To: BTVC-SCD

> Sent: Thursday, December 11, 2008 10:23:19 AM

> Subject: Hi...we're new!

>

>

> Hi...I am new and wanted to introduce myself...

>

> I am Therese and my daughter Kayla is 13 1/2 years old and has

> Ulcerative Colitis. She was diagnosed just over two years ago. She

> has been hospitalized quite a few times, and has been on every med out

> there just about. She is currently on Humira and just got out of the

> hospital this past Friday after a 9 day stay. The dr. has me doing

> the Humira injections every week now. She is also on 40 mg. of

> Prednisone since leaving the hospital. We have decided to give the

> SCD a shot. I would love to hear success stories and especially words

> of encouragement from parents of kids on this diet. It is hard with a

> teenager, but she is determined to try it! She actually said to me

> today after leaving the doctors office that all she wants for

> Christmas is to be healthy and not have to go into the hospital again.

> My daughter is only 78 pounds so I am wondering in the beginning

> of the diet, how she is supposed to get all the calories she needs?

> Also, my dr. suggested putting her on Centrum for kids so she gets the

> vitamins she needs. We are starting with the intro diet and my yogurt

> maker should be here today, and my almond flour tomorrow. I cannot

> find the dry curd cottage cheese anywhere! We live in the Tampa area

> of FL. I have tried Publix, Walmart, Winn Dixie, Fresh Market and

> another health food grocery store over here. Any suggestions?

>

> Thanks in advance for any advice, encouragement, ideas for the diet

> etc..!!

>

> Therese

>