Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 I am so glad you got an attorney to help you. But it makes me very upset when I hear how these school districts are not in compliance with IDEA. Every child has a right to an education in the least restrictive environment. I am a parent of a child with a physical and developmental disability and the things I have had to fight for! As a family we have enough to deal with (whether the child has a physical, mental, or health involvment) and then to have to fight the schools too! I could go on a soap box about this (I have before) but I will cut it short. I'm glad you won and I will keep praying for you and . P Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 Tammy, That is such wonderful news!!! I am almost finished with Petition targeting the AAP's Task Force on Infant Positioning and SIDS, and the American Board of Pediatrics. I see no reason why it shouldn't be launched by then. If you would like any help, please feel free to ask!! This is very exciting!! Sierra 07/99 11/97 Redford, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 - Get me a copy if you can. I would love to pass on a copy to this guy! Could easily incorporate that info. Pass any thing my way. That would be a great help. Tammy & 12/8/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 That is wonderful!!! > Well, I finally heard from my local newspaper guy today. It has been over a > month since I sent him a letter and I spoke to him last July. Crazy. > Anyway, he said he would really like to do a story on tort/plag and we set up > a time to get together next Tuesday. Now if he shows up. Claims he gets > people calling and writing him all the time on topics and is really swamped. > I guess I am grateful he is still interested. At least is in his STAR > Band. He was surprised and said he would bring a camera crew out to take > pictures. Anyway, going to suggest one with the dog and none of me. I take > such terrible pictures. Boy, I hope it goes good. I sent him lots in > writing and other articles. I guess I'll have to brush up on " stuff. " > > Tammy & 12/8/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Wow, that is good news!!! More of us should try that - it certainly would get the word out!! Good luck - you will do GREAT!! Marci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Tammy... Why did you decide to go to the news? What gave you the idea? What have they said and what are they going to write about? Getting the word out? Peds need to be more informed?....of course our lists could go on and on...right?!! Let me know, sounds like something I could do here in Miami area. and 6/26/00, banded 12/22 and doing great. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Iammy, I will have it made available ASAP. > - Get me a copy if you can. I would love to pass on a copy to this > guy! Could easily incorporate that info. Pass any thing my way. That would > be a great help. > > Tammy & 12/8/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2001 Report Share Posted January 10, 2001 Tammy: Congratulations for getting this guy's attention! I am sure it will go great! Sue Luck ----- Original Message ----- From: bailykuhn@... plagiocephalyegroups ; torticolliskidsegroups ; CAPSORG-owneregroups Sent: Monday, January 08, 2001 4:27 PM Subject: Good News Well, I finally heard from my local newspaper guy today. It has been over a month since I sent him a letter and I spoke to him last July. Crazy. Anyway, he said he would really like to do a story on tort/plag and we set up a time to get together next Tuesday. Now if he shows up. Claims he gets people calling and writing him all the time on topics and is really swamped. I guess I am grateful he is still interested. At least is in his STAR Band. He was surprised and said he would bring a camera crew out to take pictures. Anyway, going to suggest one with the dog and none of me. I take such terrible pictures. Boy, I hope it goes good. I sent him lots in writing and other articles. I guess I'll have to brush up on "stuff." Tammy & 12/8/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Hooray!!! Marci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 , Thank you for sharing. Your story was just what I needed to hear right now as I am waiting to do the dance with the new insurance company before Riley can be casted for her second band. I'm so happy things worked out for you. I can only hope for the same. Keep your fingers crossed. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Yeah , I wish I could get a copy of the news. I was thinking of contacting our station because the ancor has a small baby and thought it might prick her interest. How did you go about it? great news on the 2nd band and Sam, --- In Plagiocephaly@y..., " Cummings-Hall, " <tcumming@o...> wrote: > Hi all! > > I wanted to share our good news! We found out yesterday that Aetna has > approved our 2nd DOC band (good thing since we've had it for 5 weeks now!) > I was beginning to worry that they would not cover it since Hunter was 13 > months old when he was casted. I guess they covered it because it was his > 2nd band and he still met the measurements requirement. (Becky, I know this > will interest you if you do decide to get a 2nd band!) > > Also, we now only have about 6 weeks left in the band. I don't know if it > was a growth spurt or if the 2nd band just fits better but it seems to be > working like magic! We brought home the 1st " head on a stick " and it's just > amazing what a difference there is! I think I've shown it to every one I > know! As I look at the 1st mold of his head I know without a doubt that all > the trips back and forth to Houston, all the money spent, all the stickers > bought, all the cleaning every bit of it was worth it and I'm so thankful > that we had the support and resources to pursue the treatment. We have been > in the DOC Band for 20 weeks now (with 6 more to go - that's 6 months) and > we wore a locally made band for 3 months so it has been a long road but now > that I can see the light at the end I know it was all worth it! > > I know that some of you are struggling right now but don't give up hope! > > (Hunter's mom) > Baton Rouge, LA > > PS. We did the interview last Friday (with our local news station) and it > should air one day this week. It really went well I think, I wasn't nervous > like I thought I would be! Thanks for all the support! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 Hooray!! Marci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 Yeah!!! You are soooo lucky. and SAm > I spoke to the Orthotist that will be doing Max a little while ago. He was > wonderful. He told me about all the research he has done on Plagio and that > he has tried several times to get CT to open a clinic in NY. He said that he > can't wait to start working with Max. He answered all my questions without > hesitating and also said that he would be very interested in helping our > group in any way...he said that he will give me a link to a web site tomorrow > and he can answer questions for us when we need it....I AM SO HAPPY!!!!!!!! > YEAH!!!! FINALLY!!!! Someone actually knew what I was talking about and > cared!!! > Just wanted to share the good news..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 - Glad to hear the good news! Keep it coming. Stacey and Hannah -- In Plagiocephaly@y..., syddesi2@a... wrote: > I spoke to the Orthotist that will be doing Max a little while ago. He was > wonderful. He told me about all the research he has done on Plagio and that > he has tried several times to get CT to open a clinic in NY. He said that he > can't wait to start working with Max. He answered all my questions without > hesitating and also said that he would be very interested in helping our > group in any way...he said that he will give me a link to a web site tomorrow > and he can answer questions for us when we need it....I AM SO HAPPY!!!!!!!! > YEAH!!!! FINALLY!!!! Someone actually knew what I was talking about and > cared!!! > Just wanted to share the good news..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2001 Report Share Posted March 18, 2001 nice to hear ----- Original Message ----- From: " " <lisarich.com@...> < > Sent: Sunday, March 18, 2001 3:58 AM Subject: [] Good News > Greetings Everyone, > > I had to share my good news. The doctor removed my stitches on Friday and > now I am sporting a walking cast (looks like the same type cast with a > canvas shoe to wear). The Longview Mall will never be the same.....I > shopped until I dropped. Needless to say, my foot is throbbing but it was > so wonderful to be able to go out shopping alone!!! Of course I just had to > make a couple of purchases! > > Everyone have a great weekend. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2001 Report Share Posted March 18, 2001 -----Original Message----- From: Dennis Overskov <webmaster@...> < > Date: Sunday, March 18, 2001 2:16 AM Subject: Re: [] Good News nice to hear ----- Original Message ----- From: " " <lisarich.com@...> < > Sent: Sunday, March 18, 2001 3:58 AM Subject: [] Good News > Greetings Everyone, > > I had to share my good news. The doctor removed my stitches on Friday and > now I am sporting a walking cast (looks like the same type cast with a > canvas shoe to wear). The Longview Mall will never be the same.....I > shopped until I dropped. > > >>>>>>>Way To Go Girl!!! LOL, but be careful, can't do it all at first, go slow, then pick up speed! LOL, ~>Becky M. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2001 Report Share Posted March 18, 2001 always glad to hear good news . E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Hey everyone, I went to my GP yesterday and I got GREAT news! I lost 3.5 pounds! I haven't done anything different and it is winter but I'm not questioning it!!! My parents didn't really appreciate this but I figured all of you would. Also, my SED rate was a 3!!!!!!!! This is the 1st time since the onset of my arthritis that the SED rate has been a single digit. WOOHOO! For all of you newbies ... I'm 27 and was diagnosed with inflammatory seronegative arthritis when I was 22 and in my last semester of college. My current meds are: Remicade, Azulfidine EN, Prednisone, Folic Acid, Methotrexate, Fosomax and Ibuprofen. Take care, Steph in VA ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~, Thanks for your informative message. I know how hard it is to 'accept' your diagnosis - I still cant believe it - 2.5 years on! I still get really upset when I flare and am almost surprised that it is still there - denial!! Goodluck with your trial, I will be very interested in the results, we need all the research we can get into this debilitating illness - for all our sakes! Take care,suzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Congratulations, Steph! I don’t know about everyone, but my weight goes up and down about 10 lbs When my joints swell. I’m glad to hear you’re doing well. Love and peace yellow Improve it. Agitate. Promote freedom and justice. Educate and empower. Use your resources to reach those who have not been where you have been, nor seen what you have seen. In doing this we build a stronger nation. -----Original Message----- From: DeNicola [mailto:sdenicola@...] Sent: Thursday, March 10, 2005 8:44 AM To: Rheumatoid Arthritis Subject: Good news Hey everyone, I went to my GP yesterday and I got GREAT news! I lost 3.5 pounds! I haven't done anything different and it is winter but I'm not questioning it!!! My parents didn't really appreciate this but I figured all of you would. Also, my SED rate was a 3!!!!!!!! This is the 1st time since the onset of my arthritis that the SED rate has been a single digit. WOOHOO! For all of you newbies ... I'm 27 and was diagnosed with inflammatory seronegative arthritis when I was 22 and in my last semester of college. My current meds are: Remicade, Azulfidine EN, Prednisone, Folic Acid, Methotrexate, Fosomax and Ibuprofen. Take care, Steph in VA ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ , Thanks for your informative message. I know how hard it is to 'accept' your diagnosis - I still cant believe it - 2.5 years on! I still get really upset when I flare and am almost surprised that it is still there - denial!! Goodluck with your trial, I will be very interested in the results, we need all the research we can get into this debilitating illness - for all our sakes! Take care, suzie Quote Link to comment Share on other sites More sharing options...
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