Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 Hi Joyce, > Hello Tess....My name is Joyce...I also have RA and > I am 33 years old. I understand about looking for > friends and health. I have not figured out how to use > this support group...I recieved a reply once from > someone which was very comforting. I have no idea what > I did wrong. I hope you find some good support in this > group...I enjoy reading the stories of strength from > the group members. Sometimes when I think I can't take > anymore and I read some stories and realize I can keep > going....I will say some prayers for you as I do for > all and hope that you are blessed and enriched in your > life everyday. God Bless...Joyce Can you tell us more about your situation? Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 Hi Sue I saw your e-mail on the list. I was wondering what type of therapy did your daughter rec. for her apraxia. I have an 8 year old daughter who has apraxia and I feel that I am not doing enough for her. She rec. speech therapy in school 4x's a week for 1/2 hour (1 group 3 ind.) and she also rec. private 1x week for 1/2 hour. My older daughter and I can understand her 99 % of the time, the outside world 70%. If you could maybe give me some ideas on whatelse we can do that helped your daughter I would greatly appreicate it. Thank you for your help Ginny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 Hi Joyce.... I imagine it is tough for your son to be 1 of only 4 left. I am so glad that you have each other. I know you're both very sad. I am sad also that you have both gone thru so much. Hang in there.. I'm here for you if you need me. Hugs..a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2005 Report Share Posted March 27, 2005 Thank you so much a. I so appreciate this..........Joyce ----- Original Message ----- From: paula delarosa Rheumatoid Arthritis Sent: Saturday, March 26, 2005 5:40 PM Subject: Joyce Hi Joyce.... I imagine it is tough for your son to be 1 of only 4 left. I am so glad that you have each other. I know you're both very sad. I am sad also that you have both gone thru so much. Hang in there.. I'm here for you if you need me. Hugs..a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2005 Report Share Posted September 16, 2005 Hello there! I just want to welcome you to the group! I am looking forward to the wisdom that you will bring! I am glad that you are here! I hope that you will find this group to be informative as well as understanding! I'm confident that you will make many new friends as well! I hope that today is a good day for you! Take care and God Bless! XXX's Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2005 Report Share Posted September 16, 2005 Hello there! I just want to welcome you to the group! I am looking forward to the wisdom that you will bring! I am glad that you are here! I hope that you will find this group to be informative as well as understanding! I'm confident that you will make many new friends as well! I hope that today is a good day for you! Take care and God Bless! XXX's Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Joyce - did your doctor say why the pupils should not be exposed while they sleep? (Wondering because when Micah first falls asleep you can only see white on his eyes but once he's fast asleep you can see the whole pupil - like he's looking right at you.) Thanks! April --- joyceaibitoye@... wrote: > It is early days for us yet, but I think both my > girls are able to blink, I > think they use the brows to control the movement. > They re both able to shut > their eyes when they sleep. Once fast asllep I can > see a little of her white > eyeballs. I spoke to the doctor about this and they > said it is not a big issue > as long as the pupils are not exposed. > > Hope this helps > > Joyce > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Hi april - exactly like me and Emy. clarexxxxapril Eisele <aprileisele@...> wrote: Joyce - did your doctor say why the pupils should notbe exposed while they sleep? (Wondering because whenMicah first falls asleep you can only see white on hiseyes but once he's fast asleep you can see the wholepupil - like he's looking right at you.)Thanks!April--- joyceaibitoye@... wrote:> It is early days for us yet, but I think both my> girls are able to blink, I > think they use the brows to control the movement.> They re both able to shut > their eyes when they sleep. Once fast asllep I can> see a little of her white > eyeballs. I spoke to the doctor about this and they> said it is not a big issue > as long as the pupils are not exposed.> > Hope this helps> > Joyce> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 I know from my kids ...if the pupil shows they need gel at night before bed to keep it lubricatted because the cornea dries out, scaring occurs and it can and will effect vision in time. april Eisele <aprileisele@...> wrote: Joyce - did your doctor say why the pupils should notbe exposed while they sleep? (Wondering because whenMicah first falls asleep you can only see white on hiseyes but once he's fast asleep you can see the wholepupil - like he's looking right at you.)Thanks!April--- joyceaibitoye@... wrote:> It is early days for us yet, but I think both my> girls are able to blink, I > think they use the brows to control the movement.> They re both able to shut > their eyes when they sleep. Once fast asllep I can> see a little of her white > eyeballs. I spoke to the doctor about this and they> said it is not a big issue > as long as the pupils are not exposed.> > Hope this helps> > Joyce> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Joyce. Regarding constipation- had recommended to me to try several things tot for spasticity, I bought them all and am doing them. I have noticed a difference with magnesium and calcium. Cyndy had said in another e-mail that magnesium makes a difference for constipation. I am noticing a difference. Have you tried that? I can't say that all the other stuff is doing anything for my problem of spasticity, -- [low dose naltrexone] Re: LDN 4.4 and the "First Day Miracle." When I tried to increase from 3.0 to 4.5 or even 3.5 I had increased numbness and spasticity which resolved after I returned to 3.0. So I think there must be a point where the body does not react well to the drug. I am still on 3.0. I also experienced that first day or first couple of days "miracle." Maybe it is the yeast or maybe just the body adjusting to the change, but I never had it again. And yes, I am still dreaming and also waking momentarily between 3 am and 4 am every day. Does anyone have a good idea for handling mild constipation which will not create "emergency conditions?" Everything I have tried so far doesn't work because of that. Enjoy the Labor Day Holiday..it is rainy and windy here in NY Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 My rheumatologist recommended 1200 to 2400 mg of Malic acid a day in divided doses. mjh"The Basil Book"http://foxhillfarm.us/FireBasil/ Posted by: "Conni Lawrence" summerwind1@... Sat Sep 2, 2006 4:02 pm (PST) I agree with the magnesium. Go to the health food store and get malic acid.Take only half the pill if it is 800 mg. If you are in the middle of aserious problem, (constipation) take the 800 mg. If you take half a pill aday it major helps with muscle aches, and keeps you regular in the best way.You won't even think about it, it just happens. Conni-----Original Message----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 I agree with the magnesium. Go to the health food store and get malic acid. Take only half the pill if it is 800 mg. If you are in the middle of a serious problem, (constipation) take the 800 mg. If you take half a pill a day it major helps with muscle aches, and keeps you regular in the best way. You won’t even think about it, it just happens. Conni [low dose naltrexone] Re: LDN 4.4 and the " First Day Miracle. " When I tried to increase from 3.0 to 4.5 or even 3.5 I had increased numbness and spasticity which resolved after I returned to 3.0. So I think there must be a point where the body does not react well to the drug. I am still on 3.0. I also experienced that first day or first couple of days " miracle. " Maybe it is the yeast or maybe just the body adjusting to the change, but I never had it again. And yes, I am still dreaming and also waking momentarily between 3 am and 4 am every day. Does anyone have a good idea for handling mild constipation which will not create " emergency conditions? " Everything I have tried so far doesn't work because of that. Enjoy the Labor Day Holiday..it is rainy and windy here in NY Joyce Quote Link to comment Share on other sites More sharing options...
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