Jeannie

[Guest guest]

Jeannie:

Welcome to the list. If you want to know who is who, Georgina is the

moderator, and others are listed in the members section of the web site.

See /files/ /BirthdayInfoChart/

for a handy reference of not just birthdays but also of who is the patient,

who is the parent, etc.

Generally, I think most doctors would agree that one has to be aggresive

with JRA treatment to avoid joint damage and to allow quality of life, etc.

Treatments many use incluse naprosyn, methotrexate, prednisone (steroids),

enbrel, etc. Sometimes people need to use cyclosporines. People on the

list will have lots of experience if you have particular questions about

proposed next steps in medications.

Good luck.

Charlie

[Guest guest]

Jeannie,

Tell us what meds is on at the moment, and which symptoms is he

still experiencing. Did DR Pachman talk about Enbrel yet?

[Guest guest]

Hi Jeannie, This is Steph in VA, adding my 2 cents on your post. Welcome to the group. I'm sorry for your reasons for joining us, especially being a nurse and single mom.

I'm 27 and was diagnosed in 1999 at the age of 22 while in my last semester in college. I tried a bunch of meds before finding my current cocktail: prednisone, Azulfidine EN (brand for Sulfasazine), Ibuprofen, Methotrexate, Folic Acid, generic for Flexerall, and Remicade. I have also tried Celebrex, Vioxx, Enbrel, and Naproxyn. Where in NYS are you? I attended college at Mansfield University in north central PA (about 45 minutes south from Elmira, NY). I was diagnosed by a WONDERFUL rheumy at my college's teaching hospital in Sayre, PA (he also had an office in Corning, NY). He is now at a Geisinger hospital in PA. I can get you the contact info if you are unhappy with the rheumy you see next week.

I know it's probably been mentioned, but the biologics aren't always as successful without methotrexate. Of course, weighing the risks/benefits/side effects of the available meds is probably one of the harder decisions we have to make living with arthritis.

I love the combination I'm on, although I do hope to be off prednisone by the end of the year or early 2006.

Take care,

Steph in VA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~My first appt w/ a Rheum is 4/12. At this point I want it treated aggressively. I'm

willing to take Enbrel and Sulfasalazine, but not prednisone or MTX.

Any thoughts or comments on any of these meds would be appreciated.

I'm 41 now and raising my 8 year-old completely on my own...I would

like to keep working for a long time...as long as possible. Smiles to

all, Jeannie.

[Guest guest]

Warm

water is great. Talk to your doc, but PLEASE do not feel hesitant about staying

active.

If you

don’t, the fact that you are trying not to articulate your joints will

cause certain muscles to atrophy

and if

you are particularly affected all of the natural detriments of inactivity will

prove to be a real problem.

I know it’s

cliché, but it is definitely vital that you keep moving.

If you

can walk, do that, some can still jog…

The elliptical

machines (gazelle) at bally’s are really great for cadio and a lot easier

on my joints. Exercise

is good

for you, but remember to keep a close tab on what your body is telling you. It

can wear you out

and ruin

the next three days and it’s really easy to put too much stress on a

joint or two and pay for it.

I’ve

learned that it’s just like before when I worked out, except that I don’t

feel that infinite pit of power…

That’s

ok, too. J Just remind yourself that your

effort is to be as fit as possible and every move you make

conscientiously

is a gift to yourself.

There is

no greater feeling than a good sweat, especially on those days when I would

prefer to huddle under

the

covers, and you can still have that with a carefully modified program.

Make a

schedule, get out there and do something, but listen to your body.

Love,

peace and a great workout to you

Yellow

-----Original Message-----

From: jeannie curvo

[mailto:jmcrn2b@...]

Sent: Thursday, April 07, 2005

7:58 PM

To:

Rheumatoid Arthritis

Subject: Re:

Jeannie

Thanks for the support. I was wondering if you

or any of the other folks in the group have had any luck with physical therapy

of any kind...especially massage or aquatherapy? I used to be very

athletic but I'm reluctant to do anything that will make my situation worse.

DeNicola

<sdenicola@...> wrote:

Hi Jeannie,

This is Steph in VA, adding my 2 cents on your post. Welcome

to the group. I'm sorry for your reasons for joining us, especially being a

nurse and single mom.

I'm 27 and was diagnosed in

1999 at the age of 22 while in my last semester in college. I tried a bunch of

meds before finding my current cocktail: prednisone, Azulfidine EN (brand for

Sulfasazine), Ibuprofen, Methotrexate, Folic Acid, generic for Flexerall, and

Remicade. I have also tried Celebrex, Vioxx, Enbrel, and Naproxyn.

Where in NYS are you? I attended college at Mansfield

University in north central PA (about 45 minutes south from Elmira, NY). I was

diagnosed by a WONDERFUL rheumy at my college's teaching hospital in Sayre, PA

(he also had an office in Corning, NY). He is now at a Geisinger hospital in

PA. I can get you the contact info if you are unhappy with the rheumy you see

next week.

I know it's probably been

mentioned, but the biologics aren't always as successful without methotrexate.

Of course, weighing the risks/benefits/side effects of the available meds is

probably one of the harder decisions we have to make living with arthritis.

I love the combination I'm

on, although I do hope to be off prednisone by the end of the year or early

2006.

Take care,

Steph in VA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~My first appt w/ a Rheum is 4/12. At this point I want it treated aggressively. I'mwilling to take Enbrel and Sulfasalazine, but not prednisone or MTX.Any thoughts or comments on any of these meds would be appreciated.I'm 41 now and raising my 8 year-old completely on my own...I wouldlike to keep working for a long time...as long as possible. Smiles toall, Jeannie.

__________________________________________________

[Guest guest]

What you have said is sooooooo true. For me, just driving, I've found if I hang

onto the steering wheel in the same position for any length of time, I can

hardly open my hand. And I love to knit, and it's the same thing, if I hold onto

the knitting needles for a while, it is a definite OUCH. If I remember to open

and close my hands from time to time, I'm ok.

Kathy

--- " Zoom " <zoom@...> wrote:

From: " Zoom " <zoom@...>

Date: Thu, 7 Apr 2005 21:32:37 -0400

<Rheumatoid Arthritis >

Subject: RE: Jeannie

Warm water is great. Talk to your doc, but PLEASE do not feel

hesitant about staying active.

If you don’t, the fact that you are trying not to articulate

your joints will cause certain muscles to atrophy

and if you are particularly affected all of the natural

detriments of inactivity will prove to be a real problem.

I know it’s cliché, but it is definitely vital that you keep

moving.

If you can walk, do that, some can still jog…

The elliptical machines (gazelle) at bally’s are really great

for cadio and a lot easier on my joints. Exercise

is good for you, but remember to keep a close tab on what your

body is telling you. It can wear you out

and ruin the next three days and it’s really easy to put too

much stress on a joint or two and pay for it.

I’ve learned that it’s just like before when I worked out,

except that I don’t feel that infinite pit of power…

That’s ok, too. J Just remind yourself that your effort is to

be as fit as possible and every move you make

conscientiously is a gift to yourself.

There is no greater feeling than a good sweat, especially on

those days when I would prefer to huddle under

the covers, and you can still have that with a carefully

modified program.

Make a schedule, get out there and do something, but listen to

your body.

Love, peace and a great workout to you

Yellow

-----Original Message-----

From: jeannie curvo [mailto:jmcrn2b@...]

Sent: Thursday, April 07, 2005 7:58 PM

Rheumatoid Arthritis

Subject: Re: Jeannie

Thanks for the support. I was wondering if you or any of the

other folks in the group have had any luck with physical

therapy of any kind...especially massage or aquatherapy? I

used to be very athletic but I'm reluctant to do anything that

will make my situation worse.

DeNicola <sdenicola@...> wrote:

Hi Jeannie,

This is Steph in VA, adding my 2 cents on your post.

Welcome to the group. I'm sorry for your reasons for joining

us, especially being a nurse and single mom.

I'm 27 and was diagnosed in 1999 at the age of 22 while in

my last semester in college. I tried a bunch of meds before

finding my current cocktail: prednisone, Azulfidine EN (brand

for Sulfasazine), Ibuprofen, Methotrexate, Folic Acid, generic

for Flexerall, and Remicade. I have also tried Celebrex, Vioxx,

Enbrel, and Naproxyn.

Where in NYS are you? I attended college at Mansfield

University in north central PA (about 45 minutes south from

Elmira, NY). I was diagnosed by a WONDERFUL rheumy at my

college's teaching hospital in Sayre, PA (he also had an office

in Corning, NY). He is now at a Geisinger hospital in PA. I can

get you the contact info if you are unhappy with the rheumy you

see next week.

I know it's probably been mentioned, but the biologics

aren't always as successful without methotrexate. Of course,

weighing the risks/benefits/side effects of the available meds

is probably one of the harder decisions we have to make living

with arthritis.

I love the combination I'm on, although I do hope to be

off prednisone by the end of the year or early 2006.

Take care,

Steph in VA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

My first appt w/ a Rheum is 4/12. At this point I want it treated

aggressively. I'm

willing to take Enbrel and Sulfasalazine, but not prednisone or MTX.

Any thoughts or comments on any of these meds would be appreciated.

I'm 41 now and raising my 8 year-old completely on my own...I would

like to keep working for a long time...as long as possible. Smiles to

all, Jeannie.

__________________________________________________

[Guest guest]



What you have said is sooooooo true. For me, just driving, I've found if I hang onto the steering wheel in the same position for any length of time, I can hardly open my hand. And I love to knit, and it's the same thing, if I hold onto the knitting needles for a while, it is a definite OUCH. If I remember to open and close my hands from time to time, I'm ok.Kathy

Funny thing about knitting, sometimes the first few stitches are killers but by the time I have a few rows done, I can open and close my hands normally-the only time since this started

Kathy S who finally sees the rheumatologist for the first time on Mon and my hands are getting better

[Guest guest]

My RA started off in my feet and ankles, and I figured just having to walk was

physical enough. But when it went to my wrists, arms and elbows, I found

myself babying them and not doing things, like cooking or talking on the

telephone without a headset. I feared I would lose function in them if I did

not

have some sort of PT, and I think in conjunction with my medication it worked

out very well.

Just remember not to push yourself, you know best what you are capable of

doing when it comes to the using weights.

>

>

>

>

>

> Hi Jeannie,

> This is Steph in VA, adding my 2 cents on your post. Welcome to the

group. I'm sorry for your reasons for joining us, especially being a nurse and

single mom.

>

> I'm 27 and was diagnosed in 1999 at the age of 22 while in my last

semester in college. I tried a bunch of meds before finding my current

cocktail: prednisone, Azulfidine EN (brand for Sulfasazine), Ibuprofen,

Methotrexate, Folic Acid, generic for Flexerall, and Remicade. I have also

tried Celebrex, Vioxx, Enbrel, and Naproxyn.

> Where in NYS are you? I attended college at Mansfield University in

north central PA (about 45 minutes south from Elmira, NY). I was diagnosed

by a WONDERFUL rheumy at my college's teaching hospital in Sayre, PA (he

also had an office in Corning, NY). He is now at a Geisinger hospital in PA. I

can get you the contact info if you are unhappy with the rheumy you see next

week.

>

> I know it's probably been mentioned, but the biologics aren't always as

successful without methotrexate. Of course, weighing the risks/benefits/side

effects of the available meds is probably one of the harder decisions we have

to make living with arthritis.

>

> I love the combination I'm on, although I do hope to be off prednisone by

the end of the year or early 2006.

>

> Take care,

>

> Steph in VA

>

>

>

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~~~~

>

>

>

> My first appt w/ a Rheum is 4/12. At this point I want it treated

aggressively.

I'mwilling to take Enbrel and Sulfasalazine, but not prednisone or MTX.Any

thoughts or comments on any of these meds would be appreciated.I'm 41

now and raising my 8 year-old completely on my own...I wouldlike to keep

working for a long time...as long as possible. Smiles toall, Jeannie.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

Thanks for your response. I have been "guarding", and I have to make a conscious effort to do range of motion exercises daily. Dorey <ddorey@...> wrote:

I had the occupational therapist teach me exercises to do for my hands and wrists, she gave me tools to use as well. I was limited to 5% movement of my wrists at their worst. I did my therapy in a hot bath many times per day and it seems to have worked, I have complete mobility back.

I also did therapy each day for my shoulders, the shoulder is such a complicated joint that we must maintain motion. The therapist had me draw a rope over the rafters in the basement and use this rope to assist me to lift my arm in various directions to maintain shoulder mobility. The reason for the rope was when assisted the arm would move correctly, unassisted it's natural to adjust the movement avoiding pain.

For the rest of my body I went to the wave pool where the water is warm and I could move all my joints maintaining some level of fitness. I had been advised to be cautious of weight bearing exercise while I had alot of inflamation in my ankles and knees, so this was my answer.

It takes alot of determination but if we're determined I believe we can find some way to fight back.

Good luck to you

Dorey

www.LivingWithRheumatoidArthritis.com

----- Original Message -----

From: jeannie curvo

Rheumatoid Arthritis

Sent: Thursday, April 07, 2005 4:58 PM

Subject: Re: Jeannie

Thanks for the support. I was wondering if you or any of the other folks in the group have had any luck with physical therapy of any kind...especially massage or aquatherapy? I used to be very athletic but I'm reluctant to do anything that will make my situation worse. DeNicola <sdenicola@...> wrote:

Hi Jeannie, This is Steph in VA, adding my 2 cents on your post. Welcome to the group. I'm sorry for your reasons for joining us, especially being a nurse and single mom.

I'm 27 and was diagnosed in 1999 at the age of 22 while in my last semester in college. I tried a bunch of meds before finding my current cocktail: prednisone, Azulfidine EN (brand for Sulfasazine), Ibuprofen, Methotrexate, Folic Acid, generic for Flexerall, and Remicade. I have also tried Celebrex, Vioxx, Enbrel, and Naproxyn. Where in NYS are you? I attended college at Mansfield University in north central PA (about 45 minutes south from Elmira, NY). I was diagnosed by a WONDERFUL rheumy at my college's teaching hospital in Sayre, PA (he also had an office in Corning, NY). He is now at a Geisinger hospital in PA. I can get you the contact info if you are unhappy with the rheumy you see next week.

I know it's probably been mentioned, but the biologics aren't always as successful without methotrexate. Of course, weighing the risks/benefits/side effects of the available meds is probably one of the harder decisions we have to make living with arthritis.

I love the combination I'm on, although I do hope to be off prednisone by the end of the year or early 2006.

Take care,

Steph in VA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~My first appt w/ a Rheum is 4/12. At this point I want it treated

aggressively. I'm

willing to take Enbrel and Sulfasalazine, but not prednisone or MTX.

Any thoughts or comments on any of these meds would be appreciated.

I'm 41 now and raising my 8 year-old completely on my own...I would

like to keep working for a long time...as long as possible. Smiles to

all, Jeannie.

__________________________________________________

[Guest guest]

Thanks for your post and for all the other replies to my question. I'm applying for a summer job as the nursing director at a summer camp, and I'm hoping to spend some time hiking. The camp is in the Adirondacks. It's especially good because my daughter will get to go for free!Zoom <zoom@...> wrote:

Warm water is great. Talk to your doc, but PLEASE do not feel hesitant about staying active.

If you don’t, the fact that you are trying not to articulate your joints will cause certain muscles to atrophy

and if you are particularly affected all of the natural detriments of inactivity will prove to be a real problem.

I know it’s cliché, but it is definitely vital that you keep moving.

If you can walk, do that, some can still jog…

The elliptical machines (gazelle) at bally’s are really great for cadio and a lot easier on my joints. Exercise

is good for you, but remember to keep a close tab on what your body is telling you. It can wear you out

and ruin the next three days and it’s really easy to put too much stress on a joint or two and pay for it.

I’ve learned that it’s just like before when I worked out, except that I don’t feel that infinite pit of power…

That’s ok, too. J Just remind yourself that your effort is to be as fit as possible and every move you make

conscientiously is a gift to yourself.

There is no greater feeling than a good sweat, especially on those days when I would prefer to huddle under

the covers, and you can still have that with a carefully modified program.

Make a schedule, get out there and do something, but listen to your body.

Love, peace and a great workout to you

Yellow

-----Original Message-----From: jeannie curvo [mailto:jmcrn2b@...] Sent: Thursday, April 07, 2005 7:58 PMRheumatoid Arthritis Subject: Re: Jeannie

Thanks for the support. I was wondering if you or any of the other folks in the group have had any luck with physical therapy of any kind...especially massage or aquatherapy? I used to be very athletic but I'm reluctant to do anything that will make my situation worse. DeNicola <sdenicola@...> wrote:

Hi Jeannie, This is Steph in VA, adding my 2 cents on your post. Welcome to the group. I'm sorry for your reasons for joining us, especially being a nurse and single mom.

I'm 27 and was diagnosed in 1999 at the age of 22 while in my last semester in college. I tried a bunch of meds before finding my current cocktail: prednisone, Azulfidine EN (brand for Sulfasazine), Ibuprofen, Methotrexate, Folic Acid, generic for Flexerall, and Remicade. I have also tried Celebrex, Vioxx, Enbrel, and Naproxyn. Where in NYS are you? I attended college at Mansfield University in north central PA (about 45 minutes south from Elmira, NY). I was diagnosed by a WONDERFUL rheumy at my college's teaching hospital in Sayre, PA (he also had an office in Corning, NY). He is now at a Geisinger hospital in PA. I can get you the contact info if you are unhappy with the rheumy you see next week.

I know it's probably been mentioned, but the biologics aren't always as successful without methotrexate. Of course, weighing the risks/benefits/side effects of the available meds is probably one of the harder decisions we have to make living with arthritis.

I love the combination I'm on, although I do hope to be off prednisone by the end of the year or early 2006.

Take care,

Steph in VA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~My first appt w/ a Rheum is 4/12. At this point I want it treated aggressively. I'mwilling to take Enbrel and Sulfasalazine, but not prednisone or MTX.Any thoughts or comments on any of these meds would be appreciated.I'm 41 now and raising my 8 year-old completely on my own...I wouldlike to keep working for a long time...as long as possible. Smiles toall, Jeannie.

__________________________________________________

[Guest guest]

-Hi Jeannie I meant to tell you that you probably should be able to

have one if you want they are not as big as they used to be. I am a

pretty small person and when I had mine done I was very skinny due

to pain and not eating or sleeping hardly at all. Plus I am only 5'2

so I am not tall either And I never had any trouble with

microwaves or electric doors although I have heard of one other

person who did with doors at WM stores. True you can not have an MRI

done I had to have CAT scans done afterwards to see what else was

wrong with me. Just email me if you want anymore info. Sharon Group

Owner

-- In neck pain , Abbott

<jeannieboo1@...> wrote:

>

> Hi all,

> My girlfriend has one implanted, it helped her for awhile, but now

she wants it out! They haven't found exactly what is wrong with her,

she has so much pain from her neck to her toes, and she just got

Medicare-she got the stimulator before losing her old insurance. You

have to turn it off and on when you're near electric doors,

microwaves, she can't have MRI's done with it. But-it may be helpful

to others. I was told I can't have one because I'm too skinny, part

of it protrudes like a pacemaker, and I don't have enough fat to

cover it and keep it from rubbing against anything. I know they do a

pre-test to see if you are suitable for it. When you're in so much

pain, I think most people are willing to try anything to alleviate

it, including myself.

>

>

> Jeannie

>

>

>

> hey ya'll

>

> There was an article in the Detroit Free Press Sunday that was

brought

> to my attention I tried to find a link to it online but was not

able to.

> I did however find a link to the device they wrote about and I have

> included it in this email. The article was about a guy that

survived

> the Ford Rouge Plant explosion 8 years ago. He says he is nearly

pain

> free now with this implant and the story states the the device is

> covered by most insurances. Just thought I would pass this info on

to

> you guys. Maybe it can help someone... The link is

>

> http://www.controly ourpain.com/

>

> I hope this helps someone

>

> Vikki

>

>

>

>

>

>

>

_____________________________________________________________________

_______________

> Now that's room service! Choose from over 150,000 hotels

> in 45,000 destinations on Travel to find your fit.

> http://farechase./promo-generic-14795097

>

>

[Guest guest]

-Hi Jeannie I meant to tell you that you probably should be able to

have one if you want they are not as big as they used to be. I am a

pretty small person and when I had mine done I was very skinny due

to pain and not eating or sleeping hardly at all. Plus I am only 5'2

so I am not tall either And I never had any trouble with

microwaves or electric doors although I have heard of one other

person who did with doors at WM stores. True you can not have an MRI

done I had to have CAT scans done afterwards to see what else was

wrong with me. Just email me if you want anymore info. Sharon Group

Owner

-- In neck pain , Abbott

<jeannieboo1@...> wrote:

>

> Hi all,

> My girlfriend has one implanted, it helped her for awhile, but now

she wants it out! They haven't found exactly what is wrong with her,

she has so much pain from her neck to her toes, and she just got

Medicare-she got the stimulator before losing her old insurance. You

have to turn it off and on when you're near electric doors,

microwaves, she can't have MRI's done with it. But-it may be helpful

to others. I was told I can't have one because I'm too skinny, part

of it protrudes like a pacemaker, and I don't have enough fat to

cover it and keep it from rubbing against anything. I know they do a

pre-test to see if you are suitable for it. When you're in so much

pain, I think most people are willing to try anything to alleviate

it, including myself.

>

>

> Jeannie

>

>

>

> hey ya'll

>

> There was an article in the Detroit Free Press Sunday that was

brought

> to my attention I tried to find a link to it online but was not

able to.

> I did however find a link to the device they wrote about and I have

> included it in this email. The article was about a guy that

survived

> the Ford Rouge Plant explosion 8 years ago. He says he is nearly

pain

> free now with this implant and the story states the the device is

> covered by most insurances. Just thought I would pass this info on

to

> you guys. Maybe it can help someone... The link is

>

> http://www.controly ourpain.com/

>

> I hope this helps someone

>

> Vikki

>

>

>

>

>

>

>

_____________________________________________________________________

_______________

> Now that's room service! Choose from over 150,000 hotels

> in 45,000 destinations on Travel to find your fit.

> http://farechase./promo-generic-14795097

>

>

[Guest guest]

- Well your lucky in one respect there are some places where opiates

are eleagal cus im there suffering -- In PainInTheNeck-

Back , Abbott <jeannieboo1@...> wrote:

>

> Hi all,

> Ever since I've been on the opiate I take 3x daily, I have a very

hard time watching TV as I have a tendency to drift off...but can't

sleep at nite w/o the aid of xanax, plus the anxiety of my husband

working graveyard doesn't help. I've tried sleep medications, they

interact with my meds. and I'll have nite terrors or bad dreams. I've

had a problem with insomnia, nite terrors and bad dreams all my life,

so now I just try to stay away from anything that will trigger them.

I go to pain dr. tomorrow, he'll be badgering me for an injection

again, and now I really can't afford them as my daughters' husband

got himself fired-he's been severely depressed for over a year, but

wouldn't get help. Now I'm scared to death of what will happen to

them and their two kids, we live in an apt. in another state-I'm

afraid they'll end up in a shelter. I really don't sleep well now.

They have no one to move in with, he's sleeping all day, she's trying

to get signed up

> for whatever they can, their car needs repaired which he can do,

and my grandson is autistic. I know there are miliions of others who

are facing the same problem, I wish I didn't feel so guilty that I

only have SSDI and my husbands' job to rely on-I used to work in a

casino and make good tips and a pretty good salary till my body fell

apart. I know I shouldn't feel guilty, but when things like this

happen to my only child, even tho she's a grown-up, I want to

make her problems go away. She can't work because of the lack of

jobs, plus the cost of day care, plus she has to take her son to his

special programs. Well, I appreciate the chance to run on like this,

I get so overwhelmed and try not to put it all on his shoulders with

everything else we have to deal with. I hope you all are having a

better day than I am.

> Sincerely

> Jeannie

>  

> Jeannie

>

>

>

> ________________________________

>

>

>

>

>

>

>

>

>