Feedback

[Guest guest]

,Thanks for the document. Here are some initial thoughts, it is likely that I will have more to add later. I also have a couple of questions that have arisen as I make progress on my research. Sometimes the more you learn, the more you realize what you don't know and how many layers of complexity lie beneath the surface of this pandemic. It is helpful to remind myself that the bottom line is that lives are needlessly being lost, families are being destroyed, and the fate of many nations lies perilously in the balance. Just for background, is this proposal primarily for the eyes of the organisations listed in order to galvanize support for this alliance? And/or is the proposal for the review and consumption of potential funders? Has the organizing committee brainstormed a list of potential foundations, corporations, or philanthropists to fund the initial stages of this proposal? What is the commitment (financial or otherwise) of the member/contributing organisations? In the " context section " you may want to specify in real dollar terms the amount of money already allocated to AIDS prevention and treatment in order to demonstrate the significant gap between current pledges/funding and the conservative estimate of UNAIDS of $3 billion per year for Africa alone. This is critical information that I'm currently trying to collect. It would also be interesting to see how much the private sector and foundations have provided so far and as of late. I know the Gates Foundation is an exception in terms of overall neglect. In the context section, you might want to make the argument that the AIDS pandemic in Africa represents a political, economic, social, public health, and moral/ethical crisis of biblical proportions. This is certainly clear to most people from the statistics, but you might want to make the case more clear. Without castigating the international community for years of under-funding/apathy and overly criticizing African governments for failing to respond, you might want to mention that due to the stigma/denial/and sensitive feelings surrounding AIDS, a new type of coalition and approach is that much more urgent/necessary! I have always loved the African proverb that it takes a village to raise a child (thus stressing our collective responsibility and interdependence). In the context of the AIDS pandemic, it will take the global village to break the silence and adequately addresss the crisis. 1. In the mission statement you may want to add and " ameliorate its impact in both the short and long term " .2. You could also say that the organizing committee intends to prioritze Africa, due to the disproportionate...3. Specific objective number 1 is slightly confusing. I recommend clarifying the objective. For instance, mobilize resources through public and private sources to fully fund the global HIV/AIDS response....4. Just semantics but say galvanize public demand...5. I haven't researched the particulars of the AIDS Trust Fund, however, what is your inroad into this initiative. In other words, what is the World Banks's incentive/rationale to form a partnership with GAAA. And if you don't have a direct connection, how can this alliance apply the pressure in order to force the World Bank to include it formally into the Fund's stewardship and leadership? 6. On the GAAA Advocacy and Legislative Agenda, I'm excited to get the BGAN AIDS group more formally connected with this nascent alliance(I will raise the issue at our meeting this Wed.) We still need to find a name for ourselves, though right now we are a sub-group of the Boston Global Action Network. In terms of the four papers, this list could easily be revised and expanded. The importance here is not necessarily the exact list of topics but to include in the functions of the Alliance to sponsor and/or facilitate policy research for addressing the AIDS pandemic(in terms of bolstering the international response, effective policymaking and implementation of AIDS programs, debt relief, drug pricing, etc.). As it stands right now, I don't want to prematurely commit CID or myself to completing all four papers. Right now it looks as though there are three researchers working on some version and combination of all four papers. I know our BGAN AIDS subgroup has also added topic for papers to this list. A database of sources, information, and papers would be a very practical and fairly straightfoward initial project for the alliance to organize, including an informative and accurate web-site with links to all member organizations and to information on the pandemic from the perspective of civil society organisations from across the world!7. I like the idea of organizing student activism. I think the more we can connect with Schools of Public Health and other International Affairs/International Development graduate programs the better. Perhaps a conference held at Harvard could bring in more students into the movement. 8. Can you break down the costs associated with establishing the Secretariats and Staff ($175,000). This seems slightly high, though a better sense of how many people this means and their potential structure/functions would be helpful. Overall I think this is an excellent plan. I know there are more ideas and responses to add. Its a little to late for my mind to think clearly, particularly in terms of specific legislative and advocacy strategies. How many of these potential partners have you contacted? From who/where have you received interest and support? In terms of questions, Lant Pritchett(my academic adviser and a former World Bank employee) is really challenging many of my positions on debt relief and AIDS funding. One question that you could help me with is whether from your perspective the World Bank and donor community tried to push AIDS prevention and treatment projects in development negotiations(including CG meetings)? Lant argues that these projects were largely rejected by African governments(either due to stigma, lack of concern, or other priorities). Lant puts forward the argument that policy activists in the World Bank/donor agencies have been pushing money/loans for AIDS(besides the more recent assistance) for quite some time with little or no success? I know this has been a factor but it is difficult to quantify to what extent? This issue undermines the striking emperical evidence of abyssmal financial assistance from the international community for AIDS control and abatement. Can you tell me whether this was or wasn't a major factor and where it was a factor? What are your thoughts about recent offers by the World Bank to provide IDA loans for AIDS? Where can I get more information on the Africa Trust fund proposal?As always, it is encouraging and inspiring to know that there are so many people/activists working on this. It is often all too easy to feel isolated in our activism for social/poltical/and economic change/justice. Powers and principalities don't budge or give in without a fight. With the nature of AIDS pandemic the fight needs to be much more sophisticated and targeted. I think we are on the right track. Adam

[Guest guest]

Patty:

Thank you.

Love,

LM

[Guest guest]

Another thing is you do not have to remove the CI if the ear does itch. I kept

reaching up to remove my HA when I first got the CIs so I could scratch. Got a

good laugh out of it...Sharon Myers

M Jansen <nucleus24@...> wrote:Hi Alice,

You mentioned no feedback as one of the things CI users brag about.

Another is no more itchy ears, or sweaty ear canals, etc. All the

annoying moisture that used to collect in the ears and cause you to want

to scratch because of the ear molds. Another huge improvement over HAs.

Nucleus Volunteer

Pete,

With a CI, there is absoluely no feedback which is a

welcomed relief after being a hearing aid user. In

fact, it's one of the thing ci users brag about.

________________________________________________________________

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[Guest guest]

Hello ...

My husband did not want me to get my boobs 3 years ago. He never has been a "boob" man anyhow. He likes legs. Anyhow, when I was explanted he said I look much better. Not so heavy. I feel he is upset that it has cost me my health with my hypothyroidism, which I had post implant. My hypothyroidism went nutty. He would like me to run again. Still cannot. Anyhow, he is upset about how much it has cost us, but I know he realizes that I am on the road to recovery. Do not get me wrong, he is a wonderful man and is very supportive. He just never really thought I needed the boobs, I did. ( I was an "a", weighed 138lbs, now post explant a large "a", nice lift and the doctor fixed my tubular shape, my weight is 148lbs...still fighting the weight)... S

----- Original Message -----

From: naturalbeauty38

Sent: Wednesday, September 17, 2003 9:24 AM

Subject: Feedback

Hey I got into a debate with a woman on another site about getting implants for a man. I would love to get some feedback on this site, because I am curious. Maybe I should do a poll as well. Anyhow I would love to know how many of you got them for your husband or partner? I would love to know what you guys think about this as well. I mean I we all want to look nice for our men, but at what price? How far are some of us willing to do to look good for our men? I personally think any guy who would push his wife to get implants, or that has that big of a "boob" fetish is a total loser. I mean all men pretty much like breasts, but don't you guys think that most men with class love their wives for who they are not the size of their breasts? Anyhow this woman said that she did not care one way or the other but that it meant so much to her husband that she was getting reimplanted. I just found it amazing that she would do this for her man. She had silicone implants for 15 years that leaked and she claims she never got ill from them, she had them removed and now is going to reimplant all because her husband likes her better with implants. I don't know, I guess this just blew me away because if it was my husband I would feel very very hurt by that. I also think that men who are that into boobs have some psychological issues.anyhow ladies thanks for any feedback on this topic it certianly sparked some debate on this other site.Hugs

[Guest guest]

I was about 16 when I met Tom, and began our relationship. 5 years later, he was a runner up to Mr Illinois, and an incrediable body builder. He was my 1st love and very special to me at the time. Really all I had. I met him when I was 15, a sophmore in highschoool- My mother had divorced and remarried when I met him, and moved me from my high school and my only hometown to move into a new house with a new dad. It was very hard on me.Girls at school were very snotty and mean to me being the new girl, I think they were jealous. Really , I know they were. Anyway, my mother and step father were literally like honeymooners for years, and my step father- well it was his 1st at being a parent , and was a bad one. Thay had no time for me, couldnt get along, and I had no friends at school. I went from being a popular cheerleader, and volleyball payer at my school with childhood friends , to a stooty communtiy with no firends. It was bad. Realy bad. Tom was all I had, abusive or not. Well he was so obsessive about appearance (mine too) and we worked out everyday, for 2 hours a day. And ate this crazy diet , it was crazy. He became quite controling, now I Am wondering if he was on steroids.

Anyway, he started making comments round the time I was 19 that the women in his fitness magazines were realy healthy looking, and that it was "too bad ", when you lose body fat, you lose breasts, They got implants, you should think about it. And look how healthy they are!These comments went on for around 2 years. Before -I had never gave it much thought, and liked my healthy body style. But then I began noticing. I would go to the contests, every women had them, and became insecure with them around him, like inferior. Not complete. Maybe I did need them, and all the hard work I put into my body, I deserved it. Then, the women I worked with always made fun of my small size, soemthing I never gave a second thought to, and now , it really affected me. (I couldnt go to my mom for reassurance, as we were in such different places, and really felt she didnt care about me. ) I really believe that on the contrary, pretty girls have alot of pressure to live up to perfection. And it can get dangerous. Often - jealous people point out your inperfections, to make themsleves feel better, and you are expected to look good all the time.It becomes your life, if you arent smart enough not to let it.

So I went to the library and look up info, talked to my doc, and made sure it was safe. I met with three doc, and finally settled on one. But I cancelled surgery three times. Something told me different.But I didnt listen. The pain was unbearable for 3 weeks, and Icouldnt waitress for 6! Overhead lifting? Who are you kidding? I wont lie, I did feel complete, beautiful for the longest time, everything a guy could wish for. I truely felt that I was perfect now, complete. What a sad, sad thing.It wasnt until year later, I began to realy hate them, and they way they disturbed my sleep, and hurt when intimate. My husband Joe was never thrilled about them. Didnt like how they felt or made me feel. So when I got sick, there was no question, he was driving me to timbucktoo, to get them out.

I talked to my ex, and told him what was going on, and he felt terrible that he pressured me into it. I told him I made the decision, and it was my fault. The he said something I had to agree with, "If I only had told you, you didnt need them, and you were perfect, you never would have gotten them .You got them for me. You got them for what Men, like myself who thought waht you should look like"

You know what? He's right.

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[Guest guest]

Thanks for sharing. I think it is so so sad that women will go

to such legnths for a man! ARG! Anyhow, this girl I was speaking with

about this, when I told her that most men would not be willing to go

to the same extent like women, she made the comment that her husband

would def do anything for her, even platic surgery! HA I think that

is so crazy. To me it makes absolutely NO sense to have to feel like

you would sacrifice anything for your relationship! If you love each

other why not just love eachother the way you both are HA HA! Oh

well, whatever. I swear I just never thought about boobs much at all

till mine got shriveled up and saggy after wieght loss and pregnancy!

I was always happy enough with my Large A small B boobs. It was nice

to be so carefree about breasts, I wish I could be that way again

sometimes ya know, I mean I don't think about boobs as much as I used

to but when I was in my teens and twenties i never even thought about

my boobs being anything but great. I wore a push up bra sometimes if

I wanted some cleavage and that was the extent. I guess the men in my

life have always been happy enough with my breasts as well because NO

ONE EVER told me to do anything to change them. Even when they were

saggy my ex never said to do anything about it. I feel like that is

about as rude as telling a guy to get his nose fixed or his penis

enlarged, I mean it just makes no sense. If you don't like something

about someone, then why not just go find someone who your completely

happy with? Why impose your desires on someone else? I guess I also

have never been with a guy that was a boob man either. I did ask my

hubby once what he was, ya know boob, butt or whatever kind of man,

he told me the cutest thing he said " I am just a guy " ha ha.

That was pretty awesome!

Anyhow thanks for sharing all of you i realy hope that women will not

risk their health for a guy, after all it is the woman who has to pay

the price for the implants,with her health and she has to live with

them in her body 24/7. If guys like them so bad maybe they should get

a set of their own ha ha.

hugs

<juliejp61@m...> wrote:

>

[Guest guest]

Ya know I hear allot of women say that same thing, that their men did

not want them to get implants, so it would seem that not all women

get them for their boyfriends or husbands. For me it was all about

fixing the saggy shriveled skin up. If only I had just gotten a lift!

Thanks for sharing honey

In , " "

<julieyourrealtor@c...> wrote:

> Hello ...

>

> My husband did not want me to get my boobs 3 years ago. He never

has been a " boob " man anyhow. He likes legs. Anyhow, when I was

explanted he said I look much better. Not so heavy. I feel he is

upset that it has cost me my health with my hypothyroidism, which I

had post implant. My hypothyroidism went nutty. He would like me to

run again. Still cannot. Anyhow, he is upset about how much it has

cost us, but I know he realizes that I am on the road to recovery. Do

not get me wrong, he is a wonderful man and is very supportive. He

just never really thought I needed the boobs, I did. ( I was an " a " ,

weighed 138lbs, now post explant a large " a " , nice lift and the

doctor fixed my tubular shape, my weight is 148lbs...still fighting

the weight)... S

> ----- Original Message -----

> From: naturalbeauty38

>

> Sent: Wednesday, September 17, 2003 9:24 AM

> Subject: Feedback

>

>

> Hey I got into a debate with a woman on another site about

getting

> implants for a man. I would love to get some feedback on this

site,

> because I am curious. Maybe I should do a poll as well. Anyhow I

> would love to know how many of you got them for your husband or

> partner? I would love to know what you guys think about this as

well.

> I mean I we all want to look nice for our men, but at what price?

How

> far are some of us willing to do to look good for our men? I

> personally think any guy who would push his wife to get implants,

or

> that has that big of a " boob " fetish is a total loser. I mean all

men

> pretty much like breasts, but don't you guys think that most men

with

> class love their wives for who they are not the size of their

> breasts?

>

> Anyhow this woman said that she did not care one way or the other

but

> that it meant so much to her husband that she was getting

> reimplanted. I just found it amazing that she would do this for

her

> man. She had silicone implants for 15 years that leaked and she

> claims she never got ill from them, she had them removed and now

is

> going to reimplant all because her husband likes her better with

> implants. I don't know, I guess this just blew me away because if

it

> was my husband I would feel very very hurt by that. I also think

that

> men who are that into boobs have some psychological issues.

>

> anyhow ladies thanks for any feedback on this topic it certianly

> sparked some debate on this other site.

>

> Hugs

>

>

>

>

[Guest guest]

, That is great the way your husband is. Its sad that most are not like the ones we have been blessed with . Another thing , I know if I would have anyone tell me at this age to get them, Id tell them to take a hike! I was so insecure back then. I know if I had better support my naive self wouldnt have gotten the best of me.I mean remeber 20? Please, I was still such a young kid! Anyway, it is upsetting, and there are so many insecure girls out there in this culture of exceeded expectations, and ultimate perfection. Its so sad, and so real .Look at the increasing numbers of gals getting them. I remember I was dating , and it wasnt until the 4th month after being intimate, that he knew they were fake.He was shocked. I had no more scars at all, I mean I had themabout 3 yeasr at the time. And the 1st thing he said was," what happens if one breaks? Wont you need more surgeries? "and I said yes. And he said,"wow, thats like a time bomb or something. Doesnt that make you nervous? " So I joked it off, and we called them ,bombers 1 and 2. Not we dont call them that, or joke about it all. Its not funny anymore.

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[Guest guest]

, I got my implants for me, just like I had my teeth whiten and veneered. It is true that improving ones self does make a better impression on those who dont know you. If I meet a man with yellow teeth, I wouldnt be inclined to speak to him. That may sound shallow, but some people work out to improve their looks (and some say health) but there are those who find that attractive as well. We all do things to ourselves for different reasons, but no one should ever be pushed into something they do not feel comfortable with.

My husband could care less whether I kept the implants or not. They were not hard nor could you feel them. I was a D cup when I got them. I have them put in when a had a lift so they would be more full around the top. When I got sick, he said get them out. They do not look as good now without the fullness on top but I feel better. Dont get me wrong, they dont sag, it's just different. I liked them better implanted. As I said, my husband is indifferent and glad I'm feeling like my old self again.

>From: "naturalbeauty38"

>Reply- > >Subject: Feedback >Date: Wed, 17 Sep 2003 16:24:52 -0000 > >Hey I got into a debate with a woman on another site about getting >implants for a man. I would love to get some feedback on this site, >because I am curious. Maybe I should do a poll as well. Anyhow I >would love to know how many of you got them for your husband or >partner? I would love to know what you guys think about this as well. >I mean I we all want to look nice for our men, but at what price? How >far are some of us willing to do to look good for our men? I >personally think any guy who would push his wife to get implants, or >that has that big of a "boob" fetish is a total loser. I mean all men >pretty much like breasts, but don't you guys think that most men with >class love their wives for who they are not the size of their >breasts? > >Anyhow this woman said that she did not care one way or the other but >that it meant so much to her husband that she was getting >reimplanted. I just found it amazing that she would do this for her >man. She had silicone implants for 15 years that leaked and she >claims she never got ill from them, she had them removed and now is >going to reimplant all because her husband likes her better with >implants. I don't know, I guess this just blew me away because if it >was my husband I would feel very very hurt by that. I also think that >men who are that into boobs have some psychological issues. > >anyhow ladies thanks for any feedback on this topic it certianly >sparked some debate on this other site. > >Hugs > > Try MSN Messenger 6.0 with integrated webcam functionality!

[Guest guest]

Thanks for the post VIckie. I think that there are so many reasons

that women do get implants. I know I got them to fix my breasts which

looked really sad after losing wieght. I was ending a relationship so

I did not really do it for a man, although I admit the thought of

ever taking off my top in front of a guy with those sad saggy breasts

did not seem very exciting at all. I was pretty sure I would never

have sex again if I did not fix my boobs. So yeah in a round about

way I did do it for man/sexual reasons. If I had only known that a

lift might have been enough I may not have gotten implants but no ps

would have suggested a lift alone. Anyhow, it sounds like you have a

great guy. I must say that it seems that most men don't really like

implants that much, but it is interesting that most men do seem to

like big breasts. I think guys just don't realize that most small and

thin women don't have big breasts and that so many of these women

they see with huge boobs have implants. I mean there are some women

that have big boobs naturally, but not allot. It sounds like you did

have larger breasts than average if you were a natural D. Did you

lose any size after your explant? Did you get a lift?

Congrats on your surgery by the way.

Take care

In , " Vickie "

<vickiemsmith17@h...> wrote:

>

[Guest guest]

This guy reminded me of you...

[Guest guest]

sorry I meant to send your note to my husband who is about to start treatment..

[Guest guest]

Hi Dave

I'm on .5 pegitron per week & 7 ribovarin caps a day

I'll make ya a list.

Starting 1 or 2 hrs after da shot...(for me Friday PM)

(btw ... for me , the fatty part on the inside of the upper leg works best

the skin is not as tough as the top or out side of the leg and there is less

discomfort, and reaction, folks do differ)

Low grade fever 100 - 101, chills and flue like symptoms (ya can take it<G>)

for the next 48 hrs ya feel like crap , Lazy Boy and movie time.

low energy and achy.

Sometimes I get head aches and a shortness of breath

(no jogging)

This usually is worst in the beginning, it does lighten up.

Sat. I nap allot, Sun. I stare to feel better. Mon. is "OK" (not great, but ok)

Tuesday --almost normal .

The energy thing is the worse , especially if ya do physical labor

at your job.

Upset stomach , feeling a "bit of a sick tummy" it kills your appetite

I crave sweet & sour, chocolate milk shakes and my wife's dill pickles

(not at the same time)

I'm a fat guy and in the 10 weeks of treatment I've lost 33 lbs

(down to a "slim" 258 <G>)

Libido---- well everything works, ya just don't feel like it much.

BUT... a bit of Love does wonders for the head

Speaking of da head , most are on one anti depressant or another.

One Does get *sick* of being sick.

Anger, depression , resentment (why me?) and a very low level of tolerance.

As in All things Self Control *is* important,

If I expressed or acted out every thing I felt, I'd be a maniac...

but that's another story.

You Can Do It ... others have and we can too.

Good Luck Bro , Hang Tough

Harold (Hoot) Fink

[hepatitis_co_support] feedback

im gonna start interferon treatmenants pretty soon it appears. would like some feedback on what i can expect

[Guest guest]

JILL- that AS walk in my shoes idea is brilliant! Very smart and accurrate

(as much as it can be)

ALL- As far as Ive been educated, isn't dismemberment considered also a gross

mishandeling and/or desicration of a corpse, which I thought was a felony.

These judges are hmmmm, to put it nicely- uneducated and judgementally

impaired. lol

[Guest guest]

I am still in awe that they let him off.

MISSY

SAHM to some special kids!!!

Excuse Me While I Go

Raise Tomorrow's Future.

Re: ( ) Feedback

> JILL- that AS walk in my shoes idea is brilliant! Very smart and

accurrate

> (as much as it can be)

>

> ALL- As far as Ive been educated, isn't dismemberment considered also a

gross

> mishandeling and/or desicration of a corpse, which I thought was a felony.

> These judges are hmmmm, to put it nicely- uneducated and judgementally

> impaired. lol

>

>

>

>

>

[Guest guest]

>>> Are there any parents on this list serve/group that have utilized

the enzymes successfully without utilizing a diet, be it GFCF,SCD or

FD?

There are lots around. This is start school week in my area, so some

are rather busy this week getting kids settled in and meeting with

all the teachers.

I started enzymes after trying to do GFCF for a couple months. CF

okay, but not entirely GF. Started enzymes as soon as Peptizyde came

out with smashing success so we didn't bother with GFCF after that. I

wasn't very comfortable with eliminating entire food groups either.

It's been about 3 1/2 years with enzymes.

After that, I looked into FG and do try to keep reasonable well on

that. Probably about 80% or a little better overall on that.

>>>>> I have book " special diets for special kids " and I

see that 80% of kids show some signs of improvement from the diet.

Anyone have successes without?

Yes, we had success. The 80% might not be 80% of all people with

autism, but just 80% of those that do GFCF for over 3 months. I was

always told 1 out of 3 might respond to GFCF and this was at a

conference with one of the GFCF people speaking. One thing these

numbers don't account for is that often when someone says they are

GFCF they really take out many other foods as well. It also doesn't

account for improvement from reducing highly processed foods, taking

out artificial additives, or sharply reducing sugar content. It just

hasn't been tested which of these might really be responsible for

improvements.

This summer I was hearing a double-blind placebo etc study on GFCF

with autism at the ASA national meeting. The only real result they

found was that there was a huge placebo effect. Each group of

families did 6 weeks on GFCF and 6 weeks off. I don't have the

details of how the study was executed but information was sent for.

There were no significant differences in behavior scored on several

scales, in peptide urine tests, or anything else. Parents were asked

to guess which 6 weeks their child was GFCF out of the 3 month

period. The majority guessed wrong.

All this means is that this really needs to be more thoroughly

studied so exactly what is going on can be figured out. On the other

hand, Feingold type diets and the effects of additives have been

studied on end. So that is more concrete.

Oh, and what is really interesting is that a fair number of people

who use Peptizyde and put casein and gluten back in the diet see

improvement over GFCF. So for them, gluten and casein foods in the

diet are much more beneficial than GFCF. Don't really know why

exactly but just letting you know that is a possibility.

Basically, you can just try the eating plan of your choice and see

how it works for you. I think enzymes are better to try first because

they can make anything you eat better absorbed, do healing that food

eliminations can not, and might make diets, many food eliminations

and many supplements unnecessary. Then after you are settled on

enzymes, you can explore some food or chemicals eliminations that

might be helpful too.

Best,

.

[Guest guest]

,

Thanks for your thorough response. Just waiting for my HNI enzymes

to arrive. I will start with peptizide and No-Fenol. My son was CF

for a few weeks, had some ice cream cake at a birthday. No change.

Then a couple days ago, I gave him milk...looking for a change

(Oh,mac & cheese too (no additives). There was actually a positive

note. His teacher said he was sooo happy, ate all his food and did

wonderful on his lessons ever since. Better

focus,behavior...Figures....He has been eating yogurt everyday,

Something with even a fraction of nutrional value. He won't eat

fruits or veggies, and now..doesn't even want to drink Juice!

I think alot of that is due to supplements we've given him since,

cause he still has a long way 2 go. But his diet being so picky now,

removing whatever things he enjoys make him so grouchy!

Ann in WPB

[Guest guest]

HUGE success without diet. HUGE. HUGE.

> Are there any parents on this list serve/group that have utilized

the

> enzymes successfully without utilizing a diet, be it GFCF,SCD or

FD? I

> work full-time. I'm a single Mom of a 5 y/o with HFA. We had our

first

> appt with our DAN this month. He just suggested SNT and CLO plus

epsom

> salt baths. It has helped so far. I eliminated, just by chance,

casein

> from his diet for weeks and I didn't notice any change/improvement

and

> then when he had some, there was no reaction. I have

book

> " special diets for special kids " and I see that 80% of kids show

some

> signs of improvement from the diet. Anyone have successes without?

>

> Thanks

[Guest guest]

,

When you have more time I would love to hear about your success with

enzymes and no diet. I am hoping for this as well.

Thank you, Janelle

> > Are there any parents on this list serve/group that have

utilized

> the

> > enzymes successfully without utilizing a diet, be it GFCF,SCD or

> FD? I

> > work full-time. I'm a single Mom of a 5 y/o with HFA. We had our

> first

> > appt with our DAN this month. He just suggested SNT and CLO plus

> epsom

> > salt baths. It has helped so far. I eliminated, just by chance,

> casein

> > from his diet for weeks and I didn't notice any

change/improvement

> and

> > then when he had some, there was no reaction. I have

> book

> > " special diets for special kids " and I see that 80% of kids show

> some

> > signs of improvement from the diet. Anyone have successes

without?

> >

> > Thanks

[Guest guest]

Hi Janelle,

I'm really flying through these posts tonight and can't ever resist

the opportunity to talk about my sweetie.

Here is my first post to the group following our introduction of AFP:

From: " melmeighen " <melmeighen@y...> Date: Sat May 10, 2003 11:55

amSubject: Please calm me down

I am sorry. But I MUST run this past the group. Yesterday -- yes,

YESTERDAY -- we started AFP. (You might remember we had troubles with

ZPrime and stopped everything for a bit.) TODAY, approximately 30

hours later, my son SAT WITH ME FOR 30 MINUTES AT HIS LITTLE TABLE,

IN HIS LITTLE CHAIR, READING AND COLORING. 30 MINUTES. I didn't know

I could hold my breath for 30 minutes. After he got up, I thought I'd

try a little test. I sang the if you're happy and you know it song,

and HE MIMICKED THE CLAPPING, AT THE RIGHT TIME, FOR THE FIRST TIME

EVER. THEN, he did a few more things in the song.I just have to ask,

could this really be the enzymes??? This fast??? Please tell me to

calm down. I am expecting him to talk by tomorrow at this point. Has

anyone else seen results this fast, or is this a fluke???He's a

little hyper and a little grouchy, so it's not all roses, BUT COME

ON. IS THIS HAPPENING???

Occassionally I paste this entry into a response, usually someone

asking if enzymes really work, and it never ceases to give me the

chills. That was the day I knew there was hope for my son and for

our family.

Anyway, we had a pretty monumental response to the AFP, not everyone

experiences results that quickly. But things have only improved

since then, and I know the progress continues from the AFP, not just

from the other supplements we've introduced.

My son has always been very sweet-natured, fairly even-tempered, very

happy (all this from my husband, believe me, lol), but he just

couldn't control himself. You could see it in his face. He would

just run, run, run, no matter where we were, parking lots, grocery

stores, run crazy with no listening. His face was like a blank. I

remember a few weeks after starting AFP, we went to the park, and I

took him out of the car, stood him next to the car, got out my purse,

locked the doors, HE STOOD THERE, then I took his hand, and WE WALKED

TOGETHER INTO THE PARK. LIKE NORMAL PEOPLE DO EVERYDAY.

It took quite some time to get his stools improved, but it's clear

that it's the AFP that keeps them looking great. If we don't give

enough AFP, or life is just interferring with our great care of his

diet, the stools can be a real mess. A meal or two of diligent

dosing and they're back to normal. Only twice in the year-plus since

we've started the AFP have we had serious infractions. It is the

saddest thing to witness. Back to the blank face, the mindless

running... But we are at a point now where we can have very small,

occassional snacks without AFP and he's okay. So I do believe he's

healing.

We also give occassional No-Fenol when needed and couldn't live

without it when it's necessary. When we started there was only

regular Zyme Prime, and he couldn't tolerate that, probably because

of the papain and bromelain. Someday we'll be trying the SCD version

of ZP, just haven't gotten there yet.

I guess I better stop or I'm going to crash with the length of

this reply. If I can answer anything else specifically, just let me

know.

Good luck,

> ,

>

> When you have more time I would love to hear about your success

with

> enzymes and no diet. I am hoping for this as well.

>

> Thank you, Janelle--- In

[Guest guest]

Can you tell us what changes you saw w/ enzymes and how fast they occurred??

I am just starting enzymes now (my son has been on the diet for 6 mos - and I am

thrilled w/ his progress) -- and am still unsure of dosage, frequency and what

I'll be looking for...good and bad.

Thanks so much

Maribeth

Re: Feedback

HUGE success without diet. HUGE. HUGE.

> Are there any parents on this list serve/group that have utilized

the

> enzymes successfully without utilizing a diet, be it GFCF,SCD or

FD? I

> work full-time. I'm a single Mom of a 5 y/o with HFA. We had our

first

> appt with our DAN this month. He just suggested SNT and CLO plus

epsom

> salt baths. It has helped so far. I eliminated, just by chance,

casein

> from his diet for weeks and I didn't notice any change/improvement

and

> then when he had some, there was no reaction. I have

book

> " special diets for special kids " and I see that 80% of kids show

some

> signs of improvement from the diet. Anyone have successes without?

>

> Thanks

[Guest guest]

Maribeth,

Here is my response to Janelle:

/message/64202

So as you can see, we had a near-immediate and dramatic response.

Some kids take longer to respond, some respond in other ways. I hope

you have as much success with the enzymes as you've had with the

diet! Many who are on the diet (I assume you mean gfcf) experience

even more progress when they layer in the enzymes.

Let me know if you need any greater detail. Good luck.

> Can you tell us what changes you saw w/ enzymes and how fast they

occurred??

[Guest guest]

,

Thanks for your response. We have been GFCF since Feb 2004 and

enzymes since May. Of all his supps/vit, the enzymes have helped

the most. I hope one day to not have to worry about gfcf, but I am

not ready to try yet.

I am really excited when I hear of kids who don't need gfcf for life.

Janelle

P.S. I will be off list for a few weeks but checking home email.

[Guest guest]

Thank you so much.

Honestly, reading about your child's success gives me so much hope that

hopefully

there is a light at the end of this tunnel!!

Maribeth

Re: Feedback

Maribeth,

Here is my response to Janelle:

/message/64202

So as you can see, we had a near-immediate and dramatic response.

Some kids take longer to respond, some respond in other ways. I hope

you have as much success with the enzymes as you've had with the

diet! Many who are on the diet (I assume you mean gfcf) experience

even more progress when they layer in the enzymes.

Let me know if you need any greater detail. Good luck.

> Can you tell us what changes you saw w/ enzymes and how fast they

occurred??

[Guest guest]

My son was not on the diets.The only thing we did do intially was give him

lots of fats and protein (like a ketogenic diet) but it was for less than 3

months.

R