Venting also!!

[Guest guest]

Hi Skye and Red...

Sorry that you're having a tough time. Vent away..and I will jump

on this bandwagon.

I have to say that I feel better when the sun is out but that's

mentally feeling better not physically. I love to get into bed and

putting the feet and legs up but hate the thought of having to try

and get out of it in the morning. I'm on humira but that is not

helping me at all. I'm getting mouth sores because of it. Have quit

taking it. I know my dr does not want me on it if that is the

case. I don't know what he will put me on next. I was on celebrex

but that was removed..didn't help much anyway. I've been on

methotrexate but that affected my liver and the dr took me off of

it. So, who knows what he will give me next that will barely work.

It's horrible this pain and feeling of not being able to do

anything. I stay inside during the winter months...don't even have

the wanting to get dressed with all the layers. Glad when summer

comes and there are less clothes to deal with. Eating isn't much

fun and the juggling of utensils and food to the mouth. Going to

order some special utensils soon. Balance is crappy too.

I'm glad that I was approved for disability because I don't know how

I could stand it like you...with bills and meds too. But still

trying to make it on a little over $500 a month is hard. Bills and

living are enough to deal with besides this disease on top of it. i

have to give you all credit.

I hope you have a better day today. This disease is very hard to

endure....we don't look sick but we sure feel the pain everyday. I

want the drs and med field...maybe family and friends just have 24

hours of what we endure to get a feel of it. Only a full day from

wake up to bed...that's all.

Hope you're having a better day..

hugs..a in ohio

[Guest guest]

Thank you for your hug. It put a smile on my face, the first real one

of the day.

red

--- In Rheumatoid Arthritis , " a " <pdelarosa@n...>

wrote:

>

>

> Hi Skye and Red...

>

> Sorry that you're having a tough time. Vent away..and I will jump

> on this bandwagon.

>

> I have to say that I feel better when the sun is out but that's

> mentally feeling better not physically. I love to get into bed and

> putting the feet and legs up but hate the thought of having to try

> and get out of it in the morning. I'm on humira but that is not

> helping me at all. I'm getting mouth sores because of it. Have quit

> taking it. I know my dr does not want me on it if that is the

> case. I don't know what he will put me on next. I was on celebrex

> but that was removed..didn't help much anyway. I've been on

> methotrexate but that affected my liver and the dr took me off of

> it. So, who knows what he will give me next that will barely work.

> It's horrible this pain and feeling of not being able to do

> anything. I stay inside during the winter months...don't even have

> the wanting to get dressed with all the layers. Glad when summer

> comes and there are less clothes to deal with. Eating isn't much

> fun and the juggling of utensils and food to the mouth. Going to

> order some special utensils soon. Balance is crappy too.

>

> I'm glad that I was approved for disability because I don't know how

> I could stand it like you...with bills and meds too. But still

> trying to make it on a little over $500 a month is hard. Bills and

> living are enough to deal with besides this disease on top of it. i

> have to give you all credit.

>

>

> I hope you have a better day today. This disease is very hard to

> endure....we don't look sick but we sure feel the pain everyday. I

> want the drs and med field...maybe family and friends just have 24

> hours of what we endure to get a feel of it. Only a full day from

> wake up to bed...that's all.

>

> Hope you're having a better day..

>

> hugs..a in ohio