Need Help

[Guest guest]

Carolyn,

I have never been married to an alcoholic but I was raised by one who was not

only a drunk, but a drug addict and an abusive man to my mother and my

sister. I am also a recovering alcoholic.

He is not going to quit drinking unless he wants to. We have choices these

days that my mother never had. Can your 20 year old help you and help you

with the younger children? I agree with your doctor that I can't see how

they could take your children away but then I am not lawyer so this is my

opinion only.

I can tell you this much. Children are better off without your husband but

only if they stay with you. You sound like a very caring and loving mother.

Have you applied for SS disability? If not, start now. Start trying to get

your life in order so that your husband can go to detox and you are still

able to live. Detox is h***. After you go through it once, I for one cannot

see why you would every want to drink again and be forced into detox again.

Please take care of yourself,

Irene

co-moderator

> thanks sarah, but im srill married to a alcoholic for 11 yrs, they want to

> force him to rehab and since i stay so sick and in pain and extemely

> fatigued, they say i cant take care of kids but thats their opinion they

> live 1800 hun. miles away. my husband is being one big jerk with every new

> problem ive had over last 3 yrs. i do need help in a 24 hr with the 3 yr old

> but the 20,10 and 6 are wonderful helpers!!!!!!!!!! they have truly blessed

> me and there happy kids except dads drinking. but if i live or he leaves im

> disabled, little money and no insurance in i dont get approved at alj. my

> drs. think it would be close yo impossible to take away kids from me unless

> i get to were people who know me see i cant do it at all. so im praying,

>

[Guest guest]

Hi Carolyn,

I am new to this group but not to fibro. I was

married 12 years to an alcoholic, and I believe that's

why I got fibro. I was in too much pain to take the

steps to leave. We had a 4- and 6-year old. Well, I

finally realized I would never get better living with

him, so I snuck out while he was at work, took my two

kids, and moved in with a girlfriend and shared rent.

My health improved about 50 percent the first day I

was away from him. About a month after our divorce

was final, he remarried a woman with a 14-year-old

son. Three or four months later he shot and killed

them both. He is serving a life sentence. It's hard

to leave, but it's so worth it. Now, my fibro pain is

very minimal. I'm still working (31 years--27 of

those with fibro), and I can barely remember my life

back then.

Joanne

--- patidu@... wrote:

> Carolyn,

>

> I have never been married to an alcoholic but I was

> raised by one who was not

> only a drunk, but a drug addict and an abusive man

> to my mother and my

> sister. I am also a recovering alcoholic.

>

> He is not going to quit drinking unless he wants to.

> We have choices these

> days that my mother never had. Can your 20 year old

> help you and help you

> with the younger children? I agree with your doctor

> that I can't see how

> they could take your children away but then I am not

> lawyer so this is my

> opinion only.

>

> I can tell you this much. Children are better off

> without your husband but

> only if they stay with you. You sound like a very

> caring and loving mother.

>

> Have you applied for SS disability? If not, start

> now. Start trying to get

> your life in order so that your husband can go to

> detox and you are still

> able to live. Detox is h***. After you go through

> it once, I for one cannot

> see why you would every want to drink again and be

> forced into detox again.

>

> Please take care of yourself,

> Irene

> co-moderator

>

> > thanks sarah, but im srill married to a alcoholic

> for 11 yrs, they want to

> > force him to rehab and since i stay so sick and in

> pain and extemely

> > fatigued, they say i cant take care of kids but

> thats their opinion they

> > live 1800 hun. miles away. my husband is being one

> big jerk with every new

> > problem ive had over last 3 yrs. i do need help in

> a 24 hr with the 3 yr old

> > but the 20,10 and 6 are wonderful

> helpers!!!!!!!!!! they have truly blessed

> > me and there happy kids except dads drinking. but

> if i live or he leaves im

> > disabled, little money and no insurance in i dont

> get approved at alj. my

> > drs. think it would be close yo impossible to take

> away kids from me unless

> > i get to were people who know me see i cant do it

> at all. so im praying,

> >

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi Carolyn,

I am new to this group but not to fibro. I was

married 12 years to an alcoholic, and I believe that's

why I got fibro. I was in too much pain to take the

steps to leave. We had a 4- and 6-year old. Well, I

finally realized I would never get better living with

him, so I snuck out while he was at work, took my two

kids, and moved in with a girlfriend and shared rent.

My health improved about 50 percent the first day I

was away from him. About a month after our divorce

was final, he remarried a woman with a 14-year-old

son. Three or four months later he shot and killed

them both. He is serving a life sentence. It's hard

to leave, but it's so worth it. Now, my fibro pain is

very minimal. I'm still working (31 years--27 of

those with fibro), and I can barely remember my life

back then.

Joanne

--- patidu@... wrote:

> Carolyn,

>

> I have never been married to an alcoholic but I was

> raised by one who was not

> only a drunk, but a drug addict and an abusive man

> to my mother and my

> sister. I am also a recovering alcoholic.

>

> He is not going to quit drinking unless he wants to.

> We have choices these

> days that my mother never had. Can your 20 year old

> help you and help you

> with the younger children? I agree with your doctor

> that I can't see how

> they could take your children away but then I am not

> lawyer so this is my

> opinion only.

>

> I can tell you this much. Children are better off

> without your husband but

> only if they stay with you. You sound like a very

> caring and loving mother.

>

> Have you applied for SS disability? If not, start

> now. Start trying to get

> your life in order so that your husband can go to

> detox and you are still

> able to live. Detox is h***. After you go through

> it once, I for one cannot

> see why you would every want to drink again and be

> forced into detox again.

>

> Please take care of yourself,

> Irene

> co-moderator

>

> > thanks sarah, but im srill married to a alcoholic

> for 11 yrs, they want to

> > force him to rehab and since i stay so sick and in

> pain and extemely

> > fatigued, they say i cant take care of kids but

> thats their opinion they

> > live 1800 hun. miles away. my husband is being one

> big jerk with every new

> > problem ive had over last 3 yrs. i do need help in

> a 24 hr with the 3 yr old

> > but the 20,10 and 6 are wonderful

> helpers!!!!!!!!!! they have truly blessed

> > me and there happy kids except dads drinking. but

> if i live or he leaves im

> > disabled, little money and no insurance in i dont

> get approved at alj. my

> > drs. think it would be close yo impossible to take

> away kids from me unless

> > i get to were people who know me see i cant do it

> at all. so im praying,

> >

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi Carolyn,

I am new to this group but not to fibro. I was

married 12 years to an alcoholic, and I believe that's

why I got fibro. I was in too much pain to take the

steps to leave. We had a 4- and 6-year old. Well, I

finally realized I would never get better living with

him, so I snuck out while he was at work, took my two

kids, and moved in with a girlfriend and shared rent.

My health improved about 50 percent the first day I

was away from him. About a month after our divorce

was final, he remarried a woman with a 14-year-old

son. Three or four months later he shot and killed

them both. He is serving a life sentence. It's hard

to leave, but it's so worth it. Now, my fibro pain is

very minimal. I'm still working (31 years--27 of

those with fibro), and I can barely remember my life

back then.

Joanne

--- patidu@... wrote:

> Carolyn,

>

> I have never been married to an alcoholic but I was

> raised by one who was not

> only a drunk, but a drug addict and an abusive man

> to my mother and my

> sister. I am also a recovering alcoholic.

>

> He is not going to quit drinking unless he wants to.

> We have choices these

> days that my mother never had. Can your 20 year old

> help you and help you

> with the younger children? I agree with your doctor

> that I can't see how

> they could take your children away but then I am not

> lawyer so this is my

> opinion only.

>

> I can tell you this much. Children are better off

> without your husband but

> only if they stay with you. You sound like a very

> caring and loving mother.

>

> Have you applied for SS disability? If not, start

> now. Start trying to get

> your life in order so that your husband can go to

> detox and you are still

> able to live. Detox is h***. After you go through

> it once, I for one cannot

> see why you would every want to drink again and be

> forced into detox again.

>

> Please take care of yourself,

> Irene

> co-moderator

>

> > thanks sarah, but im srill married to a alcoholic

> for 11 yrs, they want to

> > force him to rehab and since i stay so sick and in

> pain and extemely

> > fatigued, they say i cant take care of kids but

> thats their opinion they

> > live 1800 hun. miles away. my husband is being one

> big jerk with every new

> > problem ive had over last 3 yrs. i do need help in

> a 24 hr with the 3 yr old

> > but the 20,10 and 6 are wonderful

> helpers!!!!!!!!!! they have truly blessed

> > me and there happy kids except dads drinking. but

> if i live or he leaves im

> > disabled, little money and no insurance in i dont

> get approved at alj. my

> > drs. think it would be close yo impossible to take

> away kids from me unless

> > i get to were people who know me see i cant do it

> at all. so im praying,

> >

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi-

4 days sounds like quite a long time to adjust to the cast. With my son it

was less than 24 hours (he was 17 days) and he was fine. Have you checked to

make sure your son's circulation is still good in his toes? Look at make

sure they are warm and not cold or blue. It really shouldn't take that long

to adjust. Maybe they overcorrected his foot too much for the first cast and

he is in alot of pain. I would definately take him back to the doctor and

have them remove the cast and try again. This doesn't sound normal to me

from my experience with my son or from what I have read. Please keep us

updated.

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Need Help

>Date: Fri, 08 Nov 2002 06:30:41 -0000

>

>Our child is 19 days old - With our trouble in getting an

>appointment, he was only diagnosed as having a clubfoot 4 days ago

>and had the first cast put on that day. We are trying to learn a much

>as we can about his condition and the Ponseti Method. However, our

>current most pressing issue is that he is very uncomfortable and

>screaming constantly. He barely stops for short sleeps and feeds, but

>then back to screaming. Is this normal? are there special ways to

>soothe/hold/comfort a baby with a cast? Please advise

>

_________________________________________________________________

The new MSN 8: smart spam protection and 2 months FREE*

http://join.msn.com/?page=features/junkmail

[Guest guest]

Hi-

4 days sounds like quite a long time to adjust to the cast. With my son it

was less than 24 hours (he was 17 days) and he was fine. Have you checked to

make sure your son's circulation is still good in his toes? Look at make

sure they are warm and not cold or blue. It really shouldn't take that long

to adjust. Maybe they overcorrected his foot too much for the first cast and

he is in alot of pain. I would definately take him back to the doctor and

have them remove the cast and try again. This doesn't sound normal to me

from my experience with my son or from what I have read. Please keep us

updated.

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Need Help

>Date: Fri, 08 Nov 2002 06:30:41 -0000

>

>Our child is 19 days old - With our trouble in getting an

>appointment, he was only diagnosed as having a clubfoot 4 days ago

>and had the first cast put on that day. We are trying to learn a much

>as we can about his condition and the Ponseti Method. However, our

>current most pressing issue is that he is very uncomfortable and

>screaming constantly. He barely stops for short sleeps and feeds, but

>then back to screaming. Is this normal? are there special ways to

>soothe/hold/comfort a baby with a cast? Please advise

>

_________________________________________________________________

The new MSN 8: smart spam protection and 2 months FREE*

http://join.msn.com/?page=features/junkmail

[Guest guest]

Hi, welcome to our board! I agree with , that doesn't

sound " normal " to me. In addition to feeling if his toes are cold,

you can check circulation by gently squeezing one of his toes, the

skin should turn whitish when you squeeze it, and then get color

again quite fast when you let go. If it stays white for a long time,

his circulation is being compromised.

Are the top edges of the casts padded well, or is the plaster

scraping against his skin?

If you tell us in what area you're located, we can hopefully make

recommendations for doctors in your area that are experienced in

treating clubfoot with the Ponseti method. If you're not sure if

your current doctor is using the method, and you definitely want to

try it, it might be better to leave your son uncasted until you can

see a doctor qualified in the method.

I would recommend that you go in and see the doctor right away- it

doesn't sound like he's just " adjusting " , he sounds like he's

miserable! There's no special way to hold a baby with a cast except

to support the casted leg so there isn't a lot of weight on that hip

socket- at that age, my daughter acted the same with and without the

casts on. If you have any specific questions or concerns, please let

us know. Please keep us posted!!!!!!

Regards,

& (3-16-00)

left clubfoot, switched to Ponseti method at 4 months old

http://ponseticlubfoot.freeservers.com/

> Our child is 19 days old - With our trouble in getting an

> appointment, he was only diagnosed as having a clubfoot 4 days ago

> and had the first cast put on that day. We are trying to learn a

much

> as we can about his condition and the Ponseti Method. However, our

> current most pressing issue is that he is very uncomfortable and

> screaming constantly. He barely stops for short sleeps and feeds,

but

> then back to screaming. Is this normal? are there special ways to

> soothe/hold/comfort a baby with a cast? Please advise

[Guest guest]

Hi, welcome to our board! I agree with , that doesn't

sound " normal " to me. In addition to feeling if his toes are cold,

you can check circulation by gently squeezing one of his toes, the

skin should turn whitish when you squeeze it, and then get color

again quite fast when you let go. If it stays white for a long time,

his circulation is being compromised.

Are the top edges of the casts padded well, or is the plaster

scraping against his skin?

If you tell us in what area you're located, we can hopefully make

recommendations for doctors in your area that are experienced in

treating clubfoot with the Ponseti method. If you're not sure if

your current doctor is using the method, and you definitely want to

try it, it might be better to leave your son uncasted until you can

see a doctor qualified in the method.

I would recommend that you go in and see the doctor right away- it

doesn't sound like he's just " adjusting " , he sounds like he's

miserable! There's no special way to hold a baby with a cast except

to support the casted leg so there isn't a lot of weight on that hip

socket- at that age, my daughter acted the same with and without the

casts on. If you have any specific questions or concerns, please let

us know. Please keep us posted!!!!!!

Regards,

& (3-16-00)

left clubfoot, switched to Ponseti method at 4 months old

http://ponseticlubfoot.freeservers.com/

> Our child is 19 days old - With our trouble in getting an

> appointment, he was only diagnosed as having a clubfoot 4 days ago

> and had the first cast put on that day. We are trying to learn a

much

> as we can about his condition and the Ponseti Method. However, our

> current most pressing issue is that he is very uncomfortable and

> screaming constantly. He barely stops for short sleeps and feeds,

but

> then back to screaming. Is this normal? are there special ways to

> soothe/hold/comfort a baby with a cast? Please advise

[Guest guest]

Hi, welcome to our board! I agree with , that doesn't

sound " normal " to me. In addition to feeling if his toes are cold,

you can check circulation by gently squeezing one of his toes, the

skin should turn whitish when you squeeze it, and then get color

again quite fast when you let go. If it stays white for a long time,

his circulation is being compromised.

Are the top edges of the casts padded well, or is the plaster

scraping against his skin?

If you tell us in what area you're located, we can hopefully make

recommendations for doctors in your area that are experienced in

treating clubfoot with the Ponseti method. If you're not sure if

your current doctor is using the method, and you definitely want to

try it, it might be better to leave your son uncasted until you can

see a doctor qualified in the method.

I would recommend that you go in and see the doctor right away- it

doesn't sound like he's just " adjusting " , he sounds like he's

miserable! There's no special way to hold a baby with a cast except

to support the casted leg so there isn't a lot of weight on that hip

socket- at that age, my daughter acted the same with and without the

casts on. If you have any specific questions or concerns, please let

us know. Please keep us posted!!!!!!

Regards,

& (3-16-00)

left clubfoot, switched to Ponseti method at 4 months old

http://ponseticlubfoot.freeservers.com/

> Our child is 19 days old - With our trouble in getting an

> appointment, he was only diagnosed as having a clubfoot 4 days ago

> and had the first cast put on that day. We are trying to learn a

much

> as we can about his condition and the Ponseti Method. However, our

> current most pressing issue is that he is very uncomfortable and

> screaming constantly. He barely stops for short sleeps and feeds,

but

> then back to screaming. Is this normal? are there special ways to

> soothe/hold/comfort a baby with a cast? Please advise

[Guest guest]

Have you given him some infant tylenol? If so, does it make any difference?

I swear by the stuff. At least if it makes a difference, then you know that

he's in some kind of discomfort if he starts crying again after 3 1/2 to 4

hours.

Are you dressing him in sleepers or gowns? I stopped using gowns when Zoe

got her cast because the cast was rubbing on her good leg and causing

chafing.

Sometimes the top of the cast would also rub her leg, so I had to check to

make sure it was padded properly. I think someone already mentioned this.

I would definitely call the doctor immediately and let him/her know what is

going on.

Does your child have one clubfoot or two?

Good luck and keep us posted.

Joanne W. mom to zoe (3-25-01) right clubfoot

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Need Help

>Date: Fri, 08 Nov 2002 06:30:41 -0000

>

>Our child is 19 days old - With our trouble in getting an

>appointment, he was only diagnosed as having a clubfoot 4 days ago

>and had the first cast put on that day. We are trying to learn a much

>as we can about his condition and the Ponseti Method. However, our

>current most pressing issue is that he is very uncomfortable and

>screaming constantly. He barely stops for short sleeps and feeds, but

>then back to screaming. Is this normal? are there special ways to

>soothe/hold/comfort a baby with a cast? Please advise

>

_________________________________________________________________

MSN 8 with e-mail virus protection service: 2 months FREE*

http://join.msn.com/?page=features/virus

[Guest guest]

Have you given him some infant tylenol? If so, does it make any difference?

I swear by the stuff. At least if it makes a difference, then you know that

he's in some kind of discomfort if he starts crying again after 3 1/2 to 4

hours.

Are you dressing him in sleepers or gowns? I stopped using gowns when Zoe

got her cast because the cast was rubbing on her good leg and causing

chafing.

Sometimes the top of the cast would also rub her leg, so I had to check to

make sure it was padded properly. I think someone already mentioned this.

I would definitely call the doctor immediately and let him/her know what is

going on.

Does your child have one clubfoot or two?

Good luck and keep us posted.

Joanne W. mom to zoe (3-25-01) right clubfoot

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Need Help

>Date: Fri, 08 Nov 2002 06:30:41 -0000

>

>Our child is 19 days old - With our trouble in getting an

>appointment, he was only diagnosed as having a clubfoot 4 days ago

>and had the first cast put on that day. We are trying to learn a much

>as we can about his condition and the Ponseti Method. However, our

>current most pressing issue is that he is very uncomfortable and

>screaming constantly. He barely stops for short sleeps and feeds, but

>then back to screaming. Is this normal? are there special ways to

>soothe/hold/comfort a baby with a cast? Please advise

>

_________________________________________________________________

MSN 8 with e-mail virus protection service: 2 months FREE*

http://join.msn.com/?page=features/virus

[Guest guest]

Have you given him some infant tylenol? If so, does it make any difference?

I swear by the stuff. At least if it makes a difference, then you know that

he's in some kind of discomfort if he starts crying again after 3 1/2 to 4

hours.

Are you dressing him in sleepers or gowns? I stopped using gowns when Zoe

got her cast because the cast was rubbing on her good leg and causing

chafing.

Sometimes the top of the cast would also rub her leg, so I had to check to

make sure it was padded properly. I think someone already mentioned this.

I would definitely call the doctor immediately and let him/her know what is

going on.

Does your child have one clubfoot or two?

Good luck and keep us posted.

Joanne W. mom to zoe (3-25-01) right clubfoot

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Need Help

>Date: Fri, 08 Nov 2002 06:30:41 -0000

>

>Our child is 19 days old - With our trouble in getting an

>appointment, he was only diagnosed as having a clubfoot 4 days ago

>and had the first cast put on that day. We are trying to learn a much

>as we can about his condition and the Ponseti Method. However, our

>current most pressing issue is that he is very uncomfortable and

>screaming constantly. He barely stops for short sleeps and feeds, but

>then back to screaming. Is this normal? are there special ways to

>soothe/hold/comfort a baby with a cast? Please advise

>

_________________________________________________________________

MSN 8 with e-mail virus protection service: 2 months FREE*

http://join.msn.com/?page=features/virus

[Guest guest]

Hi,

My daughter was born on 3/02 and her 1st doc put on her cast to

tight. At the time we didn't know any better. The doc turned her

foot all the way to the 'correct' position and casted her. It was

extremely painful. At home she would cry and never seem to be

comfortable. Any movement would hurt her. Her toes were cold and

discolored. Needless to say her cast was cut off later that same

day. Doc's can put the cast on too tight so I would go back to your

office and have them take it off. Do NOT feel bad about questioning

the doctor. The next cast we had put on(by another office) did not

bother my daughter at all. Good luck

Helen

- In nosurgery4clubfoot@y..., " nathanialamm " <allisonmerker@s...>

wrote:

> Our child is 19 days old - With our trouble in getting an

> appointment, he was only diagnosed as having a clubfoot 4 days ago

> and had the first cast put on that day. We are trying to learn a

much

> as we can about his condition and the Ponseti Method. However, our

> current most pressing issue is that he is very uncomfortable and

> screaming constantly. He barely stops for short sleeps and feeds,

but

> then back to screaming. Is this normal? are there special ways to

> soothe/hold/comfort a baby with a cast? Please advise

[Guest guest]

Hi,

My daughter was born on 3/02 and her 1st doc put on her cast to

tight. At the time we didn't know any better. The doc turned her

foot all the way to the 'correct' position and casted her. It was

extremely painful. At home she would cry and never seem to be

comfortable. Any movement would hurt her. Her toes were cold and

discolored. Needless to say her cast was cut off later that same

day. Doc's can put the cast on too tight so I would go back to your

office and have them take it off. Do NOT feel bad about questioning

the doctor. The next cast we had put on(by another office) did not

bother my daughter at all. Good luck

Helen

- In nosurgery4clubfoot@y..., " nathanialamm " <allisonmerker@s...>

wrote:

> Our child is 19 days old - With our trouble in getting an

> appointment, he was only diagnosed as having a clubfoot 4 days ago

> and had the first cast put on that day. We are trying to learn a

much

> as we can about his condition and the Ponseti Method. However, our

> current most pressing issue is that he is very uncomfortable and

> screaming constantly. He barely stops for short sleeps and feeds,

but

> then back to screaming. Is this normal? are there special ways to

> soothe/hold/comfort a baby with a cast? Please advise

[Guest guest]

Hi,

My daughter was born on 3/02 and her 1st doc put on her cast to

tight. At the time we didn't know any better. The doc turned her

foot all the way to the 'correct' position and casted her. It was

extremely painful. At home she would cry and never seem to be

comfortable. Any movement would hurt her. Her toes were cold and

discolored. Needless to say her cast was cut off later that same

day. Doc's can put the cast on too tight so I would go back to your

office and have them take it off. Do NOT feel bad about questioning

the doctor. The next cast we had put on(by another office) did not

bother my daughter at all. Good luck

Helen

- In nosurgery4clubfoot@y..., " nathanialamm " <allisonmerker@s...>

wrote:

> Our child is 19 days old - With our trouble in getting an

> appointment, he was only diagnosed as having a clubfoot 4 days ago

> and had the first cast put on that day. We are trying to learn a

much

> as we can about his condition and the Ponseti Method. However, our

> current most pressing issue is that he is very uncomfortable and

> screaming constantly. He barely stops for short sleeps and feeds,

but

> then back to screaming. Is this normal? are there special ways to

> soothe/hold/comfort a baby with a cast? Please advise

[Guest guest]

Hi all,

Just been lurkin' and praying for everyone.

I have some newish symptoms thats got me worried. 8 weeks ago I

started having what I thought was kidney pain. I went to the doctor

and they ran test which were neg. I'm having pain and ALOT of

weakness in my rib area, front and back. Its hard to sit up long. My

legs and shoulders are also much weaker. I'm VERY tired and any

activity wears me out. I'm also running a low grade temp.

I'm going to make a appointment to see my PCP. What test should I ask

him to run. I know something is wrong. I tried to weigh this out, but

I've had no improvment in 8 weeks.

I have a very large unencapsulated lipoma. I went to see a specialist

who said it has to come off, but because my daughter and I both came

to see him for the same thing he called a geneticist and a muscle

special. The muscle sp. wants to see me because he said there are

muscle disorders that an unencapsulated lipoma are a symptom of. He

is at a top hospital in Manhatten,n.y. I have my hopes up for this

visit. July 21st

so again, what should I ask my PCP to check for? Thanks!

[Guest guest]

I can't remember if you are on the cocktail or not. If so, you might want to

ask your doctor if upping the CoQ10 might help with the weakness. I don't

actually have weakness, but the exercise intolerance in my trunk. It isn't

from exercising per say, but just using the muscles for sitting. I have

found that periodic time in my recliner really helps. When I am walking and

more so when standing, I get muscle spasms (which are severe) in the kidney

area. Sitting down right away will usually relax them.

Lipomas are more common in mito than in the general population. I have more

than 100.

I hope you get some answers from the genetics doctor.

laurie

>

> Reply-To:

> Date: Tue, 08 Jul 2003 15:09:06 -0000

> To:

> Subject: Need Help

>

> Hi all,

>

> Just been lurkin' and praying for everyone.

>

> I have some newish symptoms thats got me worried. 8 weeks ago I

> started having what I thought was kidney pain. I went to the doctor

> and they ran test which were neg. I'm having pain and ALOT of

> weakness in my rib area, front and back. Its hard to sit up long. My

> legs and shoulders are also much weaker. I'm VERY tired and any

> activity wears me out. I'm also running a low grade temp.

>

> I'm going to make a appointment to see my PCP. What test should I ask

> him to run. I know something is wrong. I tried to weigh this out, but

> I've had no improvment in 8 weeks.

>

> I have a very large unencapsulated lipoma. I went to see a specialist

> who said it has to come off, but because my daughter and I both came

> to see him for the same thing he called a geneticist and a muscle

> special. The muscle sp. wants to see me because he said there are

> muscle disorders that an unencapsulated lipoma are a symptom of. He

> is at a top hospital in Manhatten,n.y. I have my hopes up for this

> visit. July 21st

>

> so again, what should I ask my PCP to check for? Thanks!

>

>

>

>

>

[Guest guest]

Louise,

We purchased 2 Frazer Bilt ambulances in 2003 that were on Ford F350 chassis

and had the L 6.0 engines in them, which was a change over from the previous

purchases of the Ford F 350 and L 7.3 engine.

Other than a few minor things, adjustments, and battery replacements (1 set

for 2004) we have not had the major problems you may be hearing. There are

noticeable difference in the performance of the L 6.0 vs the 7.3 L. The L 6.0

has been better at acceleration and fuel economy. Coupled with Ford's

transmission, the units perform very well in the rural setting such as ours

where long

distances are covered..

I hope that this answers your questions. I don't believe that your service

will have an option here, unless you special order the L 7.3 from Ford in the

Ambulance prep package (if they will do this).

Respectively,

Scarborough, EMT/P

EMS Supervisor

Austin County Emergency Medical Services

Sealy, Texas

[Guest guest]

Louise,

We purchased 2 Frazer Bilt ambulances in 2003 that were on Ford F350 chassis

and had the L 6.0 engines in them, which was a change over from the previous

purchases of the Ford F 350 and L 7.3 engine.

Other than a few minor things, adjustments, and battery replacements (1 set

for 2004) we have not had the major problems you may be hearing. There are

noticeable difference in the performance of the L 6.0 vs the 7.3 L. The L 6.0

has been better at acceleration and fuel economy. Coupled with Ford's

transmission, the units perform very well in the rural setting such as ours

where long

distances are covered..

I hope that this answers your questions. I don't believe that your service

will have an option here, unless you special order the L 7.3 from Ford in the

Ambulance prep package (if they will do this).

Respectively,

Scarborough, EMT/P

EMS Supervisor

Austin County Emergency Medical Services

Sealy, Texas

[Guest guest]

Louise,

We purchased 2 Frazer Bilt ambulances in 2003 that were on Ford F350 chassis

and had the L 6.0 engines in them, which was a change over from the previous

purchases of the Ford F 350 and L 7.3 engine.

Other than a few minor things, adjustments, and battery replacements (1 set

for 2004) we have not had the major problems you may be hearing. There are

noticeable difference in the performance of the L 6.0 vs the 7.3 L. The L 6.0

has been better at acceleration and fuel economy. Coupled with Ford's

transmission, the units perform very well in the rural setting such as ours

where long

distances are covered..

I hope that this answers your questions. I don't believe that your service

will have an option here, unless you special order the L 7.3 from Ford in the

Ambulance prep package (if they will do this).

Respectively,

Scarborough, EMT/P

EMS Supervisor

Austin County Emergency Medical Services

Sealy, Texas

[Guest guest]

Something else to add, We have a 2003 and 2005 F350 Crew

cab 1 ton pickups with the 6.0L and we found out early to

add an additional water seperator to the fuel

system.[water in the fuel cost us a new engine in the

2003] Myron [TGC parks dept]

On Sat, 11 Dec 2004 08:43:52 EST

sremtp20@... wrote:

>

> Louise,

>

> We purchased 2 Frazer Bilt ambulances in 2003 that were

>on Ford F350 chassis

> and had the L 6.0 engines in them, which was a change

>over from the previous

> purchases of the Ford F 350 and L 7.3 engine.

>

> Other than a few minor things, adjustments, and battery

>replacements (1 set

> for 2004) we have not had the major problems you may be

>hearing. There are

> noticeable difference in the performance of the L 6.0 vs

>the 7.3 L. The L 6.0

> has been better at acceleration and fuel economy.

> Coupled with Ford's

> transmission, the units perform very well in the rural

>setting such as ours where long

> distances are covered..

>

> I hope that this answers your questions. I don't

>believe that your service

> will have an option here, unless you special order the L

>7.3 from Ford in the

> Ambulance prep package (if they will do this).

>

> Respectively,

>

> Scarborough, EMT/P

> EMS Supervisor

> Austin County Emergency Medical Services

> Sealy, Texas

>

>

>

[Guest guest]

Louise:

We just purchased a Fazer built F350 ambulance. On our part we have not

had any problems with this particular unit.

The setup is a little different but other than that everything else is

ok. It runs much smoother than the older models that we have which is

the old 2004 style units.

The only things that have changed which is think is an option is the

lighting package that we have. It is all LED lights instead of

strobe/LED. If there are any other questions that you need let me know

at jeremytidwell@...

Sincerely

Tidwell

EMT

Orange County Ambulance Service

Re: Need help

Louise:

If you want a Ford chassis, its going to have a 6.0L. Part of Ford's

Ambulance Prep Package. No way around it. Ford produces a special

chassis for

conversion to ambulances. All warranties are voided if you build an

ambulance on

any other Ford product.

This all started with several Ford ambulances caught fire about 10 years

ago,

due to the ambulance manufacture's modification. Ford paid out millions

in

these cases for a problem that was not their responsibly. Ford then

became

very involved with what could be done with their vehicles.

In a message dated 12/9/04 5:26:40 PM Central Standard Time,

lwhitsoncen@... writes:

> Kimble County EMS is funded by an Emergency Service District and

> some of the Board members have expressed concern about the specs for

> a new 6.0L Ford ambulance vs. the 7.3L. I have been told there are

> mega problems with the 6.0L...I would appreciate any information

> with references to give to this Board of Dir. You may email me

> direct at lwhitson@..., fax#: , call me at 325-

> 446-3321 Ext: 112 or respond to this email.

> Thanks,

> Louise Whitson, RN CEN LP

> Kimble County EMS QAPI Coord.

>

[Guest guest]

Louise:

We just purchased a Fazer built F350 ambulance. On our part we have not

had any problems with this particular unit.

The setup is a little different but other than that everything else is

ok. It runs much smoother than the older models that we have which is

the old 2004 style units.

The only things that have changed which is think is an option is the

lighting package that we have. It is all LED lights instead of

strobe/LED. If there are any other questions that you need let me know

at jeremytidwell@...

Sincerely

Tidwell

EMT

Orange County Ambulance Service

Re: Need help

Louise:

If you want a Ford chassis, its going to have a 6.0L. Part of Ford's

Ambulance Prep Package. No way around it. Ford produces a special

chassis for

conversion to ambulances. All warranties are voided if you build an

ambulance on

any other Ford product.

This all started with several Ford ambulances caught fire about 10 years

ago,

due to the ambulance manufacture's modification. Ford paid out millions

in

these cases for a problem that was not their responsibly. Ford then

became

very involved with what could be done with their vehicles.

In a message dated 12/9/04 5:26:40 PM Central Standard Time,

lwhitsoncen@... writes:

> Kimble County EMS is funded by an Emergency Service District and

> some of the Board members have expressed concern about the specs for

> a new 6.0L Ford ambulance vs. the 7.3L. I have been told there are

> mega problems with the 6.0L...I would appreciate any information

> with references to give to this Board of Dir. You may email me

> direct at lwhitson@..., fax#: , call me at 325-

> 446-3321 Ext: 112 or respond to this email.

> Thanks,

> Louise Whitson, RN CEN LP

> Kimble County EMS QAPI Coord.

>

[Guest guest]

Thanks to all of you who have responded to my cry for Help! If

anyone else has comments, I appreciate the information.

Louise

> been watching this sting and am interested in the difference in

the F350 and

> the F450 as we are looking to purchase this year...thanks to all

for in put

>

> Ted s, BBA, EMT-B

> Director, Hardeman County EMS

> PO Box 30

> Quanah, Texas 79252

> Fax:

>

>

> Re: Need help

> >

> > Louise:

> >

> > If you want a Ford chassis, its going to have a 6.0L. Part of

Ford's

> > Ambulance Prep Package. No way around it. Ford produces a

special

> > chassis for

> > conversion to ambulances. All warranties are voided if you

build an

> > ambulance on

> > any other Ford product.

> >

> > This all started with several Ford ambulances caught fire about

10 years

> > ago,

> > due to the ambulance manufacture's modification. Ford paid out

millions

> > in

> > these cases for a problem that was not their responsibly. Ford

then

> > became

> > very involved with what could be done with their vehicles.

> >

> >

> >

> > In a message dated 12/9/04 5:26:40 PM Central Standard Time,

> > lwhitsoncen@y... writes:

> >

> >

> > > Kimble County EMS is funded by an Emergency Service District

and

> > > some of the Board members have expressed concern about the

specs for

> > > a new 6.0L Ford ambulance vs. the 7.3L. I have been told

there are

> > > mega problems with the 6.0L...I would appreciate any

information

> > > with references to give to this Board of Dir. You may email me

> > > direct at lwhitson@t..., fax#: , call me at 325-

> > > 446-3321 Ext: 112 or respond to this email.

> > > Thanks,

> > > Louise Whitson, RN CEN LP

> > > Kimble County EMS QAPI Coord.

> > >

> >

> >

> >

> >

> >

[Guest guest]

Thanks to all of you who have responded to my cry for Help! If

anyone else has comments, I appreciate the information.

Louise

> been watching this sting and am interested in the difference in

the F350 and

> the F450 as we are looking to purchase this year...thanks to all

for in put

>

> Ted s, BBA, EMT-B

> Director, Hardeman County EMS

> PO Box 30

> Quanah, Texas 79252

> Fax:

>

>

> Re: Need help

> >

> > Louise:

> >

> > If you want a Ford chassis, its going to have a 6.0L. Part of

Ford's

> > Ambulance Prep Package. No way around it. Ford produces a

special

> > chassis for

> > conversion to ambulances. All warranties are voided if you

build an

> > ambulance on

> > any other Ford product.

> >

> > This all started with several Ford ambulances caught fire about

10 years

> > ago,

> > due to the ambulance manufacture's modification. Ford paid out

millions

> > in

> > these cases for a problem that was not their responsibly. Ford

then

> > became

> > very involved with what could be done with their vehicles.

> >

> >

> >

> > In a message dated 12/9/04 5:26:40 PM Central Standard Time,

> > lwhitsoncen@y... writes:

> >

> >

> > > Kimble County EMS is funded by an Emergency Service District

and

> > > some of the Board members have expressed concern about the

specs for

> > > a new 6.0L Ford ambulance vs. the 7.3L. I have been told

there are

> > > mega problems with the 6.0L...I would appreciate any

information

> > > with references to give to this Board of Dir. You may email me

> > > direct at lwhitson@t..., fax#: , call me at 325-

> > > 446-3321 Ext: 112 or respond to this email.

> > > Thanks,

> > > Louise Whitson, RN CEN LP

> > > Kimble County EMS QAPI Coord.

> > >

> >

> >

> >

> >

> >