Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 In a message dated 11/8/2003 10:05:09 PM Eastern Standard Time, Tristy_d@... writes: > Does anyone know what other genetic testing > is available? If so pleases let me know so I can ask about it. > > Two other genetic ones are Pendrin and BOR. I believe these are syndromes and there are some subtle physical signs that the doctor will look for as an indicator that there might be a chance that the child has one of these. (mom to , 3 yrs, CI 7/30/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 In a message dated 11/8/2003 10:05:09 PM Eastern Standard Time, Tristy_d@... writes: > Does anyone know what other genetic testing > is available? If so pleases let me know so I can ask about it. > > Two other genetic ones are Pendrin and BOR. I believe these are syndromes and there are some subtle physical signs that the doctor will look for as an indicator that there might be a chance that the child has one of these. (mom to , 3 yrs, CI 7/30/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 God!! Does that mean I'm dead?:-) Wondered why I felt so cold!!:-)) The results of your test came back... sorry to tell you, you failed...;;)) Cody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 God!! Does that mean I'm dead?:-) Wondered why I felt so cold!!:-)) The results of your test came back... sorry to tell you, you failed...;;)) Cody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 God!! Does that mean I'm dead?:-) Wondered why I felt so cold!!:-)) The results of your test came back... sorry to tell you, you failed...;;)) Cody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 God!! Does that mean I'm dead?:-) Wondered why I felt so cold!!:-)) The results of your test came back... sorry to tell you, you failed...;;)) Cody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 God!! Does that mean I'm dead?:-) Wondered why I felt so cold!!:-)) The results of your test came back... sorry to tell you, you failed...;;)) Cody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 The results of your test came back... sorry to tell you, you failed...;;)) Cody testing testing..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 The results of your test came back... sorry to tell you, you failed...;;)) Cody testing testing..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 I don't understand it either. We tried to get our Pediatric GI to explain how our child could be producing such a high level of gluten antibodies and not need to avoid gluten, regardless of the biopsy outcome. Her explanation was inadequate and "all over the place" One comment was a possible problem with the testing. Our reponse was, then lets repeat the testing. Then she tried to say that some people just produce have high levels of gluten antibodies and it isn't related to gluten consumption - WHAT? We didn't buy it. One year gluten-free and his antibodies dropped from 80 to 12, proving that the antibody production was related to gluten consumption (as were all of his symptoms which went away when going GF) The really interesting thing is that if you get the celiac rash DERMATITIS HEPAFORMA (sp?) and they diagnose you with that, they don't do the endoscopy. So why if you have other celiac symptoms, should you wait until your villi are damaged to get a diagnosis and get onto the road to good health. I think things in the medical community will change over time, but not soon enough. When people have high blood pressure, we don't wait until they have a heart attack/heart damge to treat the blood pressure. SUsan in GA Testing Can anyone explain to me why it is necessary to have an endoscopy if your blood test comes back positive for gluten sensitivity? It is my understanding that if you are gluten sensitive you should avoid it, regardless of whether or not you have damage yet. Is the blood test ever wrong? I had bloodwork at my allergist's office (a year ago) and it was positive for gluten intolerance. I just went to a GI who is re- doing the bloodwork, and I am scheduled for an endoscopy. I want to do it if I need to. I guess I just don't understand why this test is part of the diagnosis. I'm sure it gives you a better idea of the damage, but what's the point if the diet reverses it anyway?? My GI told me that I "fit" the celiac profile but that we can't be sure until all the testing is done (even though she's seen my previous bloodwork) Ahhhhhhhhhhhh! Confused !!!!!!!!!!!! I really, really feel positive I have celiac; however, it is nice to have a DEFINITE diagnosis to make it easier to stick to the diet. I just want to make sure all of this testing is necessary to get a definite diagnosis. When my allergist initially told me I was intolerant to gluten, he said I might not have full blown Celiac disease (because i didn't have any vitamin or mineral deficiencies. I think I misunderstood him. I took the "not fullblown" to mean I did not have the disease, that I was just intolerant to gluten, and that it was possible to have the disease. Can you be gluten intolerant and not have celiac? or are there just different stages of celiac disease??? Sorry for so many questions. My doctor explained it but i was still confused. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 I don't understand it either. We tried to get our Pediatric GI to explain how our child could be producing such a high level of gluten antibodies and not need to avoid gluten, regardless of the biopsy outcome. Her explanation was inadequate and "all over the place" One comment was a possible problem with the testing. Our reponse was, then lets repeat the testing. Then she tried to say that some people just produce have high levels of gluten antibodies and it isn't related to gluten consumption - WHAT? We didn't buy it. One year gluten-free and his antibodies dropped from 80 to 12, proving that the antibody production was related to gluten consumption (as were all of his symptoms which went away when going GF) The really interesting thing is that if you get the celiac rash DERMATITIS HEPAFORMA (sp?) and they diagnose you with that, they don't do the endoscopy. So why if you have other celiac symptoms, should you wait until your villi are damaged to get a diagnosis and get onto the road to good health. I think things in the medical community will change over time, but not soon enough. When people have high blood pressure, we don't wait until they have a heart attack/heart damge to treat the blood pressure. SUsan in GA Testing Can anyone explain to me why it is necessary to have an endoscopy if your blood test comes back positive for gluten sensitivity? It is my understanding that if you are gluten sensitive you should avoid it, regardless of whether or not you have damage yet. Is the blood test ever wrong? I had bloodwork at my allergist's office (a year ago) and it was positive for gluten intolerance. I just went to a GI who is re- doing the bloodwork, and I am scheduled for an endoscopy. I want to do it if I need to. I guess I just don't understand why this test is part of the diagnosis. I'm sure it gives you a better idea of the damage, but what's the point if the diet reverses it anyway?? My GI told me that I "fit" the celiac profile but that we can't be sure until all the testing is done (even though she's seen my previous bloodwork) Ahhhhhhhhhhhh! Confused !!!!!!!!!!!! I really, really feel positive I have celiac; however, it is nice to have a DEFINITE diagnosis to make it easier to stick to the diet. I just want to make sure all of this testing is necessary to get a definite diagnosis. When my allergist initially told me I was intolerant to gluten, he said I might not have full blown Celiac disease (because i didn't have any vitamin or mineral deficiencies. I think I misunderstood him. I took the "not fullblown" to mean I did not have the disease, that I was just intolerant to gluten, and that it was possible to have the disease. Can you be gluten intolerant and not have celiac? or are there just different stages of celiac disease??? Sorry for so many questions. My doctor explained it but i was still confused. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 I don't understand it either. We tried to get our Pediatric GI to explain how our child could be producing such a high level of gluten antibodies and not need to avoid gluten, regardless of the biopsy outcome. Her explanation was inadequate and "all over the place" One comment was a possible problem with the testing. Our reponse was, then lets repeat the testing. Then she tried to say that some people just produce have high levels of gluten antibodies and it isn't related to gluten consumption - WHAT? We didn't buy it. One year gluten-free and his antibodies dropped from 80 to 12, proving that the antibody production was related to gluten consumption (as were all of his symptoms which went away when going GF) The really interesting thing is that if you get the celiac rash DERMATITIS HEPAFORMA (sp?) and they diagnose you with that, they don't do the endoscopy. So why if you have other celiac symptoms, should you wait until your villi are damaged to get a diagnosis and get onto the road to good health. I think things in the medical community will change over time, but not soon enough. When people have high blood pressure, we don't wait until they have a heart attack/heart damge to treat the blood pressure. SUsan in GA Testing Can anyone explain to me why it is necessary to have an endoscopy if your blood test comes back positive for gluten sensitivity? It is my understanding that if you are gluten sensitive you should avoid it, regardless of whether or not you have damage yet. Is the blood test ever wrong? I had bloodwork at my allergist's office (a year ago) and it was positive for gluten intolerance. I just went to a GI who is re- doing the bloodwork, and I am scheduled for an endoscopy. I want to do it if I need to. I guess I just don't understand why this test is part of the diagnosis. I'm sure it gives you a better idea of the damage, but what's the point if the diet reverses it anyway?? My GI told me that I "fit" the celiac profile but that we can't be sure until all the testing is done (even though she's seen my previous bloodwork) Ahhhhhhhhhhhh! Confused !!!!!!!!!!!! I really, really feel positive I have celiac; however, it is nice to have a DEFINITE diagnosis to make it easier to stick to the diet. I just want to make sure all of this testing is necessary to get a definite diagnosis. When my allergist initially told me I was intolerant to gluten, he said I might not have full blown Celiac disease (because i didn't have any vitamin or mineral deficiencies. I think I misunderstood him. I took the "not fullblown" to mean I did not have the disease, that I was just intolerant to gluten, and that it was possible to have the disease. Can you be gluten intolerant and not have celiac? or are there just different stages of celiac disease??? Sorry for so many questions. My doctor explained it but i was still confused. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 Hi , I am not an expert, but from what I understand the endoscopy and biopsy is the " gold standard " for diagnosing Celiac Disease. I guess you can't get a false result on an actual piece of damaged intestine. Also, yes, it is possible to be intollerant to gluten and NOT have CD. I know of at least 2: my Mom and a friend of my dh's. HTH, Laurie in NJ " jennhenn813 " wrote: >Can anyone explain to me why it is necessary to have an endoscopy if >your blood test comes back positive for gluten sensitivity? It is my >understanding that if you are gluten sensitive you should avoid it, >regardless of whether or not you have damage yet. Is the blood test >ever wrong? I had bloodwork at my allergist's office (a year ago) and >it was positive for gluten intolerance. I just went to a GI who is re- >doing the bloodwork, and I am scheduled for an endoscopy. I want to >do it if I need to. I guess I just don't understand why this test is >part of the diagnosis. I'm sure it gives you a better idea of the >damage, but what's the point if the diet reverses it anyway?? My GI >told me that I " fit " the celiac profile but that we can't be sure >until all the testing is done (even though she's seen my previous >bloodwork) Ahhhhhhhhhhhh! Confused !!!!!!!!!!!! I really, really feel >positive I have celiac; however, it is nice to have a DEFINITE >diagnosis to make it easier to stick to the diet. I just want to make >sure all of this testing is necessary to get a definite diagnosis. >When my allergist initially told me I was intolerant to gluten, he >said I might not have full blown Celiac disease (because i didn't >have any vitamin or mineral deficiencies. I think I misunderstood >him. I took the " not fullblown " to mean I did not have the disease, >that I was just intolerant to gluten, and that it was possible to >have the disease. Can you be gluten intolerant and not have celiac? >or are there just different stages of celiac disease??? Sorry for so >many questions. My doctor explained it but i was still confused. > > > > __________________________________________________________________ Switch to Netscape Internet Service. As low as $9.95 a month -- Sign up today at http://isp.netscape.com/register Netscape. Just the Net You Need. New! Netscape Toolbar for Internet Explorer Search from anywhere on the Web and block those annoying pop-ups. Download now at http://channels.netscape.com/ns/search/install.jsp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 Hi , I am not an expert, but from what I understand the endoscopy and biopsy is the " gold standard " for diagnosing Celiac Disease. I guess you can't get a false result on an actual piece of damaged intestine. Also, yes, it is possible to be intollerant to gluten and NOT have CD. I know of at least 2: my Mom and a friend of my dh's. HTH, Laurie in NJ " jennhenn813 " wrote: >Can anyone explain to me why it is necessary to have an endoscopy if >your blood test comes back positive for gluten sensitivity? It is my >understanding that if you are gluten sensitive you should avoid it, >regardless of whether or not you have damage yet. Is the blood test >ever wrong? I had bloodwork at my allergist's office (a year ago) and >it was positive for gluten intolerance. I just went to a GI who is re- >doing the bloodwork, and I am scheduled for an endoscopy. I want to >do it if I need to. I guess I just don't understand why this test is >part of the diagnosis. I'm sure it gives you a better idea of the >damage, but what's the point if the diet reverses it anyway?? My GI >told me that I " fit " the celiac profile but that we can't be sure >until all the testing is done (even though she's seen my previous >bloodwork) Ahhhhhhhhhhhh! Confused !!!!!!!!!!!! I really, really feel >positive I have celiac; however, it is nice to have a DEFINITE >diagnosis to make it easier to stick to the diet. I just want to make >sure all of this testing is necessary to get a definite diagnosis. >When my allergist initially told me I was intolerant to gluten, he >said I might not have full blown Celiac disease (because i didn't >have any vitamin or mineral deficiencies. I think I misunderstood >him. I took the " not fullblown " to mean I did not have the disease, >that I was just intolerant to gluten, and that it was possible to >have the disease. Can you be gluten intolerant and not have celiac? >or are there just different stages of celiac disease??? Sorry for so >many questions. My doctor explained it but i was still confused. > > > > __________________________________________________________________ Switch to Netscape Internet Service. As low as $9.95 a month -- Sign up today at http://isp.netscape.com/register Netscape. Just the Net You Need. New! Netscape Toolbar for Internet Explorer Search from anywhere on the Web and block those annoying pop-ups. Download now at http://channels.netscape.com/ns/search/install.jsp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 Hi , I am not an expert, but from what I understand the endoscopy and biopsy is the " gold standard " for diagnosing Celiac Disease. I guess you can't get a false result on an actual piece of damaged intestine. Also, yes, it is possible to be intollerant to gluten and NOT have CD. I know of at least 2: my Mom and a friend of my dh's. HTH, Laurie in NJ " jennhenn813 " wrote: >Can anyone explain to me why it is necessary to have an endoscopy if >your blood test comes back positive for gluten sensitivity? It is my >understanding that if you are gluten sensitive you should avoid it, >regardless of whether or not you have damage yet. Is the blood test >ever wrong? I had bloodwork at my allergist's office (a year ago) and >it was positive for gluten intolerance. I just went to a GI who is re- >doing the bloodwork, and I am scheduled for an endoscopy. I want to >do it if I need to. I guess I just don't understand why this test is >part of the diagnosis. I'm sure it gives you a better idea of the >damage, but what's the point if the diet reverses it anyway?? My GI >told me that I " fit " the celiac profile but that we can't be sure >until all the testing is done (even though she's seen my previous >bloodwork) Ahhhhhhhhhhhh! Confused !!!!!!!!!!!! I really, really feel >positive I have celiac; however, it is nice to have a DEFINITE >diagnosis to make it easier to stick to the diet. I just want to make >sure all of this testing is necessary to get a definite diagnosis. >When my allergist initially told me I was intolerant to gluten, he >said I might not have full blown Celiac disease (because i didn't >have any vitamin or mineral deficiencies. I think I misunderstood >him. I took the " not fullblown " to mean I did not have the disease, >that I was just intolerant to gluten, and that it was possible to >have the disease. Can you be gluten intolerant and not have celiac? >or are there just different stages of celiac disease??? Sorry for so >many questions. My doctor explained it but i was still confused. > > > > __________________________________________________________________ Switch to Netscape Internet Service. As low as $9.95 a month -- Sign up today at http://isp.netscape.com/register Netscape. Just the Net You Need. New! Netscape Toolbar for Internet Explorer Search from anywhere on the Web and block those annoying pop-ups. Download now at http://channels.netscape.com/ns/search/install.jsp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Thanks Does anyone know if you have to be quite as strict on the diet if you are only gluten intolerant?? I don't react very much to gluten but i have been very sick overall for about 2 years. I have been told i might be able to tolerate gluten " every now and then. " However, the past 6 months i have gotten very close to getting well, and i have never taken gluten completely out of my diet. My stomach does grumble and I might get excess gas and some mild digestive pains in my sides but nothing really bad. Also, can anyone tell me if the endoscopy will be accurate if i've only had large amounts of gluten in my diet here and there (thanksgiving, christmas, and the past 2 weeks)? I've never been careful about gum, toothpaste, asking many questions eating out....etc, but i eat mostly gluten free foods at home. I guess you could say i've had myself on a very lax " gluten- free " diet. for a long period of time. When i get the endoscopy, I will have purposefully been eating normal amounts of gluten for about 3-4 weeks. I certainly don't want to go through an endoscopy and it not be accurate !!!!!!!!!!!!!!!! Thanks, > > >Can anyone explain to me why it is necessary to have an endoscopy if > >your blood test comes back positive for gluten sensitivity? It is my > >understanding that if you are gluten sensitive you should avoid it, > >regardless of whether or not you have damage yet. Is the blood test > >ever wrong? I had bloodwork at my allergist's office (a year ago) and > >it was positive for gluten intolerance. I just went to a GI who is re- > >doing the bloodwork, and I am scheduled for an endoscopy. I want to > >do it if I need to. I guess I just don't understand why this test is > >part of the diagnosis. I'm sure it gives you a better idea of the > >damage, but what's the point if the diet reverses it anyway?? My GI > >told me that I " fit " the celiac profile but that we can't be sure > >until all the testing is done (even though she's seen my previous > >bloodwork) Ahhhhhhhhhhhh! Confused !!!!!!!!!!!! I really, really feel > >positive I have celiac; however, it is nice to have a DEFINITE > >diagnosis to make it easier to stick to the diet. I just want to make > >sure all of this testing is necessary to get a definite diagnosis. > >When my allergist initially told me I was intolerant to gluten, he > >said I might not have full blown Celiac disease (because i didn't > >have any vitamin or mineral deficiencies. I think I misunderstood > >him. I took the " not fullblown " to mean I did not have the disease, > >that I was just intolerant to gluten, and that it was possible to > >have the disease. Can you be gluten intolerant and not have celiac? > >or are there just different stages of celiac disease??? Sorry for so > >many questions. My doctor explained it but i was still confused. > > > > > > > > > > __________________________________________________________________ > Switch to Netscape Internet Service. > As low as $9.95 a month -- Sign up today at http://isp.netscape.com/register > > Netscape. Just the Net You Need. > > New! Netscape Toolbar for Internet Explorer > Search from anywhere on the Web and block those annoying pop-ups. > Download now at http://channels.netscape.com/ns/search/install.jsp > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Thanks Does anyone know if you have to be quite as strict on the diet if you are only gluten intolerant?? I don't react very much to gluten but i have been very sick overall for about 2 years. I have been told i might be able to tolerate gluten " every now and then. " However, the past 6 months i have gotten very close to getting well, and i have never taken gluten completely out of my diet. My stomach does grumble and I might get excess gas and some mild digestive pains in my sides but nothing really bad. Also, can anyone tell me if the endoscopy will be accurate if i've only had large amounts of gluten in my diet here and there (thanksgiving, christmas, and the past 2 weeks)? I've never been careful about gum, toothpaste, asking many questions eating out....etc, but i eat mostly gluten free foods at home. I guess you could say i've had myself on a very lax " gluten- free " diet. for a long period of time. When i get the endoscopy, I will have purposefully been eating normal amounts of gluten for about 3-4 weeks. I certainly don't want to go through an endoscopy and it not be accurate !!!!!!!!!!!!!!!! Thanks, > > >Can anyone explain to me why it is necessary to have an endoscopy if > >your blood test comes back positive for gluten sensitivity? It is my > >understanding that if you are gluten sensitive you should avoid it, > >regardless of whether or not you have damage yet. Is the blood test > >ever wrong? I had bloodwork at my allergist's office (a year ago) and > >it was positive for gluten intolerance. I just went to a GI who is re- > >doing the bloodwork, and I am scheduled for an endoscopy. I want to > >do it if I need to. I guess I just don't understand why this test is > >part of the diagnosis. I'm sure it gives you a better idea of the > >damage, but what's the point if the diet reverses it anyway?? My GI > >told me that I " fit " the celiac profile but that we can't be sure > >until all the testing is done (even though she's seen my previous > >bloodwork) Ahhhhhhhhhhhh! Confused !!!!!!!!!!!! I really, really feel > >positive I have celiac; however, it is nice to have a DEFINITE > >diagnosis to make it easier to stick to the diet. I just want to make > >sure all of this testing is necessary to get a definite diagnosis. > >When my allergist initially told me I was intolerant to gluten, he > >said I might not have full blown Celiac disease (because i didn't > >have any vitamin or mineral deficiencies. I think I misunderstood > >him. I took the " not fullblown " to mean I did not have the disease, > >that I was just intolerant to gluten, and that it was possible to > >have the disease. Can you be gluten intolerant and not have celiac? > >or are there just different stages of celiac disease??? Sorry for so > >many questions. My doctor explained it but i was still confused. > > > > > > > > > > __________________________________________________________________ > Switch to Netscape Internet Service. > As low as $9.95 a month -- Sign up today at http://isp.netscape.com/register > > Netscape. Just the Net You Need. > > New! Netscape Toolbar for Internet Explorer > Search from anywhere on the Web and block those annoying pop-ups. > Download now at http://channels.netscape.com/ns/search/install.jsp > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Thanks Does anyone know if you have to be quite as strict on the diet if you are only gluten intolerant?? I don't react very much to gluten but i have been very sick overall for about 2 years. I have been told i might be able to tolerate gluten " every now and then. " However, the past 6 months i have gotten very close to getting well, and i have never taken gluten completely out of my diet. My stomach does grumble and I might get excess gas and some mild digestive pains in my sides but nothing really bad. Also, can anyone tell me if the endoscopy will be accurate if i've only had large amounts of gluten in my diet here and there (thanksgiving, christmas, and the past 2 weeks)? I've never been careful about gum, toothpaste, asking many questions eating out....etc, but i eat mostly gluten free foods at home. I guess you could say i've had myself on a very lax " gluten- free " diet. for a long period of time. When i get the endoscopy, I will have purposefully been eating normal amounts of gluten for about 3-4 weeks. I certainly don't want to go through an endoscopy and it not be accurate !!!!!!!!!!!!!!!! Thanks, > > >Can anyone explain to me why it is necessary to have an endoscopy if > >your blood test comes back positive for gluten sensitivity? It is my > >understanding that if you are gluten sensitive you should avoid it, > >regardless of whether or not you have damage yet. Is the blood test > >ever wrong? I had bloodwork at my allergist's office (a year ago) and > >it was positive for gluten intolerance. I just went to a GI who is re- > >doing the bloodwork, and I am scheduled for an endoscopy. I want to > >do it if I need to. I guess I just don't understand why this test is > >part of the diagnosis. I'm sure it gives you a better idea of the > >damage, but what's the point if the diet reverses it anyway?? My GI > >told me that I " fit " the celiac profile but that we can't be sure > >until all the testing is done (even though she's seen my previous > >bloodwork) Ahhhhhhhhhhhh! Confused !!!!!!!!!!!! I really, really feel > >positive I have celiac; however, it is nice to have a DEFINITE > >diagnosis to make it easier to stick to the diet. I just want to make > >sure all of this testing is necessary to get a definite diagnosis. > >When my allergist initially told me I was intolerant to gluten, he > >said I might not have full blown Celiac disease (because i didn't > >have any vitamin or mineral deficiencies. I think I misunderstood > >him. I took the " not fullblown " to mean I did not have the disease, > >that I was just intolerant to gluten, and that it was possible to > >have the disease. Can you be gluten intolerant and not have celiac? > >or are there just different stages of celiac disease??? Sorry for so > >many questions. My doctor explained it but i was still confused. > > > > > > > > > > __________________________________________________________________ > Switch to Netscape Internet Service. > As low as $9.95 a month -- Sign up today at http://isp.netscape.com/register > > Netscape. Just the Net You Need. > > New! Netscape Toolbar for Internet Explorer > Search from anywhere on the Web and block those annoying pop-ups. > Download now at http://channels.netscape.com/ns/search/install.jsp > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Thanks Does anyone know if you have to be quite as strict on the diet if you are only gluten intolerant?? I don't react very much to gluten but i have been very sick overall for about 2 years. I have been told i might be able to tolerate gluten " every now and then. " However, the past 6 months i have gotten very close to getting well, and i have never taken gluten completely out of my diet. My stomach does grumble and I might get excess gas and some mild digestive pains in my sides but nothing really bad. Also, can anyone tell me if the endoscopy will be accurate if i've only had large amounts of gluten in my diet here and there (thanksgiving, christmas, and the past 2 weeks)? I've never been careful about gum, toothpaste, asking many questions eating out....etc, but i eat mostly gluten free foods at home. I guess you could say i've had myself on a very lax " gluten- free " diet. for a long period of time. When i get the endoscopy, I will have purposefully been eating normal amounts of gluten for about 3-4 weeks. I certainly don't want to go through an endoscopy and it not be accurate !!!!!!!!!!!!!!!! Thanks, > > >Can anyone explain to me why it is necessary to have an endoscopy if > >your blood test comes back positive for gluten sensitivity? It is my > >understanding that if you are gluten sensitive you should avoid it, > >regardless of whether or not you have damage yet. Is the blood test > >ever wrong? I had bloodwork at my allergist's office (a year ago) and > >it was positive for gluten intolerance. I just went to a GI who is re- > >doing the bloodwork, and I am scheduled for an endoscopy. I want to > >do it if I need to. I guess I just don't understand why this test is > >part of the diagnosis. I'm sure it gives you a better idea of the > >damage, but what's the point if the diet reverses it anyway?? My GI > >told me that I " fit " the celiac profile but that we can't be sure > >until all the testing is done (even though she's seen my previous > >bloodwork) Ahhhhhhhhhhhh! Confused !!!!!!!!!!!! I really, really feel > >positive I have celiac; however, it is nice to have a DEFINITE > >diagnosis to make it easier to stick to the diet. I just want to make > >sure all of this testing is necessary to get a definite diagnosis. > >When my allergist initially told me I was intolerant to gluten, he > >said I might not have full blown Celiac disease (because i didn't > >have any vitamin or mineral deficiencies. I think I misunderstood > >him. I took the " not fullblown " to mean I did not have the disease, > >that I was just intolerant to gluten, and that it was possible to > >have the disease. Can you be gluten intolerant and not have celiac? > >or are there just different stages of celiac disease??? Sorry for so > >many questions. My doctor explained it but i was still confused. > > > > > > > > > > __________________________________________________________________ > Switch to Netscape Internet Service. > As low as $9.95 a month -- Sign up today at http://isp.netscape.com/register > > Netscape. Just the Net You Need. > > New! Netscape Toolbar for Internet Explorer > Search from anywhere on the Web and block those annoying pop-ups. > Download now at http://channels.netscape.com/ns/search/install.jsp > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Thanks Does anyone know if you have to be quite as strict on the diet if you are only gluten intolerant?? I don't react very much to gluten but i have been very sick overall for about 2 years. I have been told i might be able to tolerate gluten " every now and then. " However, the past 6 months i have gotten very close to getting well, and i have never taken gluten completely out of my diet. My stomach does grumble and I might get excess gas and some mild digestive pains in my sides but nothing really bad. Also, can anyone tell me if the endoscopy will be accurate if i've only had large amounts of gluten in my diet here and there (thanksgiving, christmas, and the past 2 weeks)? I've never been careful about gum, toothpaste, asking many questions eating out....etc, but i eat mostly gluten free foods at home. I guess you could say i've had myself on a very lax " gluten- free " diet. for a long period of time. When i get the endoscopy, I will have purposefully been eating normal amounts of gluten for about 3-4 weeks. I certainly don't want to go through an endoscopy and it not be accurate !!!!!!!!!!!!!!!! Thanks, > > >Can anyone explain to me why it is necessary to have an endoscopy if > >your blood test comes back positive for gluten sensitivity? It is my > >understanding that if you are gluten sensitive you should avoid it, > >regardless of whether or not you have damage yet. Is the blood test > >ever wrong? I had bloodwork at my allergist's office (a year ago) and > >it was positive for gluten intolerance. I just went to a GI who is re- > >doing the bloodwork, and I am scheduled for an endoscopy. I want to > >do it if I need to. I guess I just don't understand why this test is > >part of the diagnosis. I'm sure it gives you a better idea of the > >damage, but what's the point if the diet reverses it anyway?? My GI > >told me that I " fit " the celiac profile but that we can't be sure > >until all the testing is done (even though she's seen my previous > >bloodwork) Ahhhhhhhhhhhh! Confused !!!!!!!!!!!! I really, really feel > >positive I have celiac; however, it is nice to have a DEFINITE > >diagnosis to make it easier to stick to the diet. I just want to make > >sure all of this testing is necessary to get a definite diagnosis. > >When my allergist initially told me I was intolerant to gluten, he > >said I might not have full blown Celiac disease (because i didn't > >have any vitamin or mineral deficiencies. I think I misunderstood > >him. I took the " not fullblown " to mean I did not have the disease, > >that I was just intolerant to gluten, and that it was possible to > >have the disease. Can you be gluten intolerant and not have celiac? > >or are there just different stages of celiac disease??? Sorry for so > >many questions. My doctor explained it but i was still confused. > > > > > > > > > > __________________________________________________________________ > Switch to Netscape Internet Service. > As low as $9.95 a month -- Sign up today at http://isp.netscape.com/register > > Netscape. Just the Net You Need. > > New! Netscape Toolbar for Internet Explorer > Search from anywhere on the Web and block those annoying pop-ups. > Download now at http://channels.netscape.com/ns/search/install.jsp > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 Val, Do you know what test I need for Aldosterone/renin. I have had a Aldosterone test and it was 2. I asked my physician to test the renin to see if I need to see another doctor as he does not treat this. these are the test he has listed at Quest. Could you please help me on which one I should have. I read on the thyroid madness to test during menstrual cycle, but not sure what test to do. I was unable to sign on the adrenals group. Thank you, Rhonda Regarding Labs Dr. Pippert, I would like to have my renin and my ferritin tested. I noticed they are not on the labs to be tested. I understand you are not comfortable with treating low Aldosterone and renin issues, but I would like to have the renin tested so that I can present it to a nephorologist or internal medicine doctor. Thank you, Rhonda Connelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2010 Report Share Posted February 21, 2010 *Both 2 & 3 * <http://www.questdiagnostics.com/hcp/testmenu/jsp/showTestMenu.jsp?fn=16846.html\ & labCode=WDL> -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ http://groups.yahoo.com/group/HypoPets/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Is there anything I need to do b 4? No salt, test aldosterone during menstrual cycle?Sent from my Verizon Wireless BlackBerryDate: Mon, 22 Feb 2010 00:04:47 -0500To: <RT3_T3 >Subject: Re: Testing *Both 2 & 3* <http://www.questdiagnostics.com/hcp/testmenu/jsp/showTestMenu.jsp?fn=16846.html & labCode=WDL> -- Artistic Grooming- Hurricane WVhttp://www.stopthethyroidmadness.com/http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/http://health.groups.yahoo.com/group/RT3_T3/http://groups.yahoo.com/group/HypoPets/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 For qldosterone testign no salt 24 hours before the test adn you want to test the first 1-2 days of your cycle. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://health.groups.yahoo.com/group/RT3_T3/ http://groups.yahoo.com/group/HypoPets/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Thank u!!Sent from my Verizon Wireless BlackBerryDate: Mon, 22 Feb 2010 09:48:07 -0500To: <RT3_T3 >Subject: Re: Testing For qldosterone testign no salt 24 hours before the test adn you want to test the first 1-2 days of your cycle.-- Artistic Grooming- Hurricane WVhttp://www.stopthethyroidmadness.com/http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/http://health.groups.yahoo.com/group/RT3_T3/http://groups.yahoo.com/group/HypoPets/ Quote Link to comment Share on other sites More sharing options...
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