Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Hi , Yes, Jeff had the micropenis. Jeff was given the injections once a month for 8 months. It took a few months before we began to notice slight changes such as: his behaviors increased, growth of pubic hairs, enlarging of his penis and testes, more muscular, and facial hair. Facial wise and otherwise, he went from a boyish look to looking like a man. I wish we would have never used the Testosterone. As I said earlier, not being in puberty didn't bother Jeff in the least, in fact, he didn't know the difference. Reaching puberty was something that he, nor we, needed to deal with. It escalated his behaviors and we now deal with acne, shaving, and much pubic hair in the diaper area. Jeff is oblivious to all this of course, and it makes personal cares much more involved. Since we now know there are other ways to slow and prevent the progression of osteoporosis, that is what we wished we would have done. It appears that Jeff will eventually be on these anyway. Best of luck in making your decision. Smiles from, Baker - Mom to Jeff (21 yrs. CHARGEr), Steve (almost 23 yrs., attending BYU/Provo, & getting married in 3 weeks), and others with families of their own, providing me with 4 handsome, active grandsons, and 2 beautiful, curly-haired granddaughters, one a special angel with CdLS (Cornelia de Lange Syndrome). Idaho, USA http://www.caringbridge.org/me/jeffbaker Re: osteoporosis > > In a message dated 2/24/2006 12:37:04 P.M. Eastern Standard Time, > Bakersmom@... writes: > > The > Testosterone did what it was suppose to do as far as putting him into > puberty. I then had a young man that was still a child mentally, in a > man's > body. Since Jeff wasn't completely toilet trained, all the pubic hair > made > things more difficult. I have to shave him daily as he has a very heavy > beard growth. Plus Jeff became much stronger muscle wise. I now know > that > there are other things they can do to prevent osteoporosis. I guess what > I'm trying to say is if Mark isn't aware that he is different and it > doesn't > bother him, you might want to think twice about introducing him to > hormones > that will bring about puberty. Just know that there are other options to > prevent osteoporosis. > > > > , > Oh my gosh those are my concerns exactly. I am not sure which was > to go. He has a follow up in 1 month. I might address it then. How long > did > the hormone take to work. Did Jeff also have " micropenis " ? Mark has > bladder > control issues now UGH. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 , I hope you don't mind my frequent questions on this subject but it is weighing heavily on me. I think part of it is that as they get older sometimes it gets harder. Thank you so much for your help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 In a message dated 2/26/2006 3:12:38 P.M. Eastern Standard Time, sa.prouty@... writes: Although we have not seen any behaviors or aggression associated with the testosterone, every person is different. Andy is VERY strong and has a very thick beard... Hi there, I did mention my concerns with the endocrinologist. He said he was starting him on a VERY low dose. He did not mention and behaviors associated with it to me. I actually read somewhere online it can improve moods (I'm not sure how true that is) Do you feel it was beneficial to Andy? I just am concerned and wanted all the input from other Charge families who have went through this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 , I don't mind at all. I know EXACTLY what you mean! Smiles from, Baker - Mom to Jeff (21 yrs. CHARGEr), Steve (almost 23 yrs., attending BYU/Provo, & getting married in 3 weeks), and others with families of their own, providing me with 4 handsome, active grandsons, and 2 beautiful, curly-haired granddaughters, one a special angel with CdLS (Cornelia de Lange Syndrome). Idaho, USA http://www.caringbridge.org/me/jeffbaker Re: osteoporosis > , > I hope you don't mind my frequent questions on this subject but > it > is weighing heavily on me. I think part of it is that as they get older > sometimes it gets harder. Thank you so much for your help. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 HI , Andy received the injections like Jeff when he was ~ 15. Initially, every 6 months and eventually every month. Last year he was switched to the daily gel, " Androgel " . The difference between the injection and patch is the amount of testosterone delivered. With the monthly injection, there is a big push of testosterone which gradually fades over the 30 days. The gel patch is thought to match more normally with the body rhythm as the body normally produces testosterone constantly, not once a month. Although we have not seen any behaviors or aggression associated with the testosterone, every person is different. Andy is VERY strong and has a very thick beard.... I would listen to , as I have heard this before. I have asked our Endocrinologist if increased aggression is associated with testosterone delivery and he said no. Considering Mark is already on 3 behavior meds, I would check this out thoroughly, ESPECIALLY if there is an alternative, as mentioned. GOOD LUCK!!! Sally (Mom to Andy, 24) > Date: Sat, 25 Feb 2006 19:51:50 EST > From: KAV427@... > Subject: Re: osteoporosis > > , > They are recommending the gel for Mark. I can tell you right now I > will not be able to deal with the behaviors. He is on 3 behavior meds already > and we finally have them in check. How old was Jeff when he had the shots? > Is the gel something different? I might call his family Dr on Monday. I am a > bit nervous about it all. Is the change gradual? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Michele, I don't know about Aubrie but Patty was allergic to milk so she couldn't drink it. We supplemented her with giving her calcium but honestly sometimes I forgot to give it to her. We also bought things with calcium added in it like orange juice and tums with calcium. Do whatever you can think of to build up her bones to let her grow well. Calcium isn't only important when our children are older, it is important from infancy on. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 , Just a quick word re; reflux, acid indigestion and osteo meds. We're on a little merry-go-round now, as seems to have some acid/reflux problems, and she has osteoporosis. I was told the Rx meds for osteo aggrevate reflux. The reflux meds give her headaches ..Duh! Well, that gave ME a headache, probably from looking at them cross-eyed ! so, I put her on TUMS 2x daily while I gear up to having them tell me this catch 22 all over again-LOL. So, hopefully, Jeff has an iron stomach. Oh yeah, I forgot about iron.........next trip. in Ma. Mom to , 20 yrs old (CHARGE), 22 yrs. and partner to Alan (12 years now) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Hi Kim, Actually, I have learned very little. Jeff was diagnosed in 2003 with borderline osteoporosis. Currently we are giving him added calcium and he wears a weighted vest for most of the day. The vest actually serves two purposes...1) It helps with weight bearing for the osteoporosis. (Exercise helps to strengthen the bones but since Jeff is limited with the exercise he can do, the vest helps.) 2) It helps with his sensory integration issues. The next Dexa scan he has (which I will be setting us soon) will tell us the next step. I have been assured by the Dr. that either Fosamax or Actonel will keep the osteoporosis from getting worse. (There might be others too, but those were the two he mentioned.) It won't undo any damage already done, but it will prevent it from getting worse. Jeff is not on either of these medications at this point, but like I said, we will be checking the next Dexa scan results to see if and when they are needed. Smiles from, Baker - Mom to Jeff (21 yrs. CHARGEr), Steve (almost 23 yrs., attending BYU/Provo, & getting married in 10 days), and others with families of their own, providing me with 4 handsome, active grandsons, and 2 beautiful, curly-haired granddaughters, one a special angel with CdLS (Cornelia de Lange Syndrome). Idaho, USA http://www.caringbridge.org/me/jeffbaker osteoporosis >> >> >>> Hello, >>> Well we have started yet another journey in our latest health >>> issue. >>> My son Mark who is 22 went to his Dr and I mentioned he should have a >>> bone >>> scan well our baseline turned out to be more than that, He had already >>> shown >>> signs of severe bone loss. We were sent to an endocrine specialist and >>> he >>> is >>> now on Calcium twice daily and a multivitamin along with Androgel >>> cream. >>> (he >>> still has swallowing problems so I am already looking for a different >>> Calcium >>> and vitamin the one's recommended were way too big) I should have seen >>> it >>> coming. I might be saying goodbye to the " baby face " he has had for the >>> last 22 >>> years. I cannot believe how this latest issue has affected me I am a >>> bit >>> on >>> the emotional side over it. We'll see. Just thought I would share >>> another >>> chapter. >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
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