Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Hi, . Welcome to our little group. My name is Dawn and I was just dx'd. with PM last Dec. I'm sure once they do the EMG and biopsy, you'll have a better idea where you stand (with the exception of poor Ed.) Like you, I mostly suffer from pain and not so much weakness, except for a few odd instances. I was started on 60 mg. of Prednisone and stayed on that for quite awhile and am now down to 5 mg. and hope to be off all together in Aug. Don't know if that will happen though. I also take 15 mg. of Methotrexate once weekly and I feel that's what gave me the most improvement. I don't suffer from any side affects from the Methotrexate (nauseau, fatigue, etc), so I'm very fortunate. Good luck to you and we look forward to hearing more from you. Dawn wrote: > Hi all, > > My name is and I have been tentatively dx with pm. I live in the > Bay Area of CA. I just saw a rheumotologist for the first time yesterday. > He says that I may have pm, but is not really sure. He wants me to see a > neurologist and have an EMG test done, then possibly a muscle biopsy. He > says it could also be ibm or some kind of dystrophy. Evidently I don't have > a classic case of pm in that my muscles do not feel weak in themselves, just > painful. (just! LOL) And the muscles involved are mainly in my forearms and > upper arms, but also involve the wrist and shoulder area. > My cpk has gone from 495 to 356 in the past several months, which is good > news, but since I don't know what was normal for me, I don't know how just > how good. > I was taking Lipitor and Tricor (both statins) for several years, and > also Mirapex, for a separate neurological condition. All three of which are > known to cause muscle problems. The combination of the three may have even > been worse. Somehow I was under the impression that if muscle pain > occurred, and the medication was stopped, the muscle pain would also stop. > It hasn't, even though the medication was stopped over 2 months ago. > Depending on the test results, the rheumotologist thinks that a medication > called Methotrexate might help. Or pred. I have taken pred before and was > not real happy with the side effects, and that was just in the short term. > Is anyone here taking, or have taken, Methotrexate? What other meds are > used to treat pm or ibm? > > Thanks > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Hi, . Welcome to our little group. My name is Dawn and I was just dx'd. with PM last Dec. I'm sure once they do the EMG and biopsy, you'll have a better idea where you stand (with the exception of poor Ed.) Like you, I mostly suffer from pain and not so much weakness, except for a few odd instances. I was started on 60 mg. of Prednisone and stayed on that for quite awhile and am now down to 5 mg. and hope to be off all together in Aug. Don't know if that will happen though. I also take 15 mg. of Methotrexate once weekly and I feel that's what gave me the most improvement. I don't suffer from any side affects from the Methotrexate (nauseau, fatigue, etc), so I'm very fortunate. Good luck to you and we look forward to hearing more from you. Dawn wrote: > Hi all, > > My name is and I have been tentatively dx with pm. I live in the > Bay Area of CA. I just saw a rheumotologist for the first time yesterday. > He says that I may have pm, but is not really sure. He wants me to see a > neurologist and have an EMG test done, then possibly a muscle biopsy. He > says it could also be ibm or some kind of dystrophy. Evidently I don't have > a classic case of pm in that my muscles do not feel weak in themselves, just > painful. (just! LOL) And the muscles involved are mainly in my forearms and > upper arms, but also involve the wrist and shoulder area. > My cpk has gone from 495 to 356 in the past several months, which is good > news, but since I don't know what was normal for me, I don't know how just > how good. > I was taking Lipitor and Tricor (both statins) for several years, and > also Mirapex, for a separate neurological condition. All three of which are > known to cause muscle problems. The combination of the three may have even > been worse. Somehow I was under the impression that if muscle pain > occurred, and the medication was stopped, the muscle pain would also stop. > It hasn't, even though the medication was stopped over 2 months ago. > Depending on the test results, the rheumotologist thinks that a medication > called Methotrexate might help. Or pred. I have taken pred before and was > not real happy with the side effects, and that was just in the short term. > Is anyone here taking, or have taken, Methotrexate? What other meds are > used to treat pm or ibm? > > Thanks > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Hi, . Welcome to our little group. My name is Dawn and I was just dx'd. with PM last Dec. I'm sure once they do the EMG and biopsy, you'll have a better idea where you stand (with the exception of poor Ed.) Like you, I mostly suffer from pain and not so much weakness, except for a few odd instances. I was started on 60 mg. of Prednisone and stayed on that for quite awhile and am now down to 5 mg. and hope to be off all together in Aug. Don't know if that will happen though. I also take 15 mg. of Methotrexate once weekly and I feel that's what gave me the most improvement. I don't suffer from any side affects from the Methotrexate (nauseau, fatigue, etc), so I'm very fortunate. Good luck to you and we look forward to hearing more from you. Dawn wrote: > Hi all, > > My name is and I have been tentatively dx with pm. I live in the > Bay Area of CA. I just saw a rheumotologist for the first time yesterday. > He says that I may have pm, but is not really sure. He wants me to see a > neurologist and have an EMG test done, then possibly a muscle biopsy. He > says it could also be ibm or some kind of dystrophy. Evidently I don't have > a classic case of pm in that my muscles do not feel weak in themselves, just > painful. (just! LOL) And the muscles involved are mainly in my forearms and > upper arms, but also involve the wrist and shoulder area. > My cpk has gone from 495 to 356 in the past several months, which is good > news, but since I don't know what was normal for me, I don't know how just > how good. > I was taking Lipitor and Tricor (both statins) for several years, and > also Mirapex, for a separate neurological condition. All three of which are > known to cause muscle problems. The combination of the three may have even > been worse. Somehow I was under the impression that if muscle pain > occurred, and the medication was stopped, the muscle pain would also stop. > It hasn't, even though the medication was stopped over 2 months ago. > Depending on the test results, the rheumotologist thinks that a medication > called Methotrexate might help. Or pred. I have taken pred before and was > not real happy with the side effects, and that was just in the short term. > Is anyone here taking, or have taken, Methotrexate? What other meds are > used to treat pm or ibm? > > Thanks > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Hi ! My name is Lynn and I have DM. I took Lipitor for 3 years, then last august, I woke one morning with such achy arm muscles and my adventure with myositis began! My rheumy also felt the DM was caused by the statin. My CPK was at 3600. I stopped the statin about a week before all hell broke loose, and from August to November, my CPK dropped to 777 on its own. That's why she felt it was related to statins and I would return to normal. However, in November, I was started on 60mg of Prednisone and the CPKs continued to drop until April...I was down to 10 mg of Prednisone and 7.5 of Methotrexate, 400mg of Plaquenil and a wonderful CPK of 36!!! Then the spring sun came out. In one month my CPK jumped to 1922. My rheumy changed her tune. Firmed up my diagnosis (she was playing with the idea I had MCTD/UCTD). Now, I have dermatomyositis for sure. The Lipitor was the trigger. It's good to have an EMG. If you hear noise when the needles are stuck into your muscles, that's a bad sign...at rest, the muscles should be quiet. A biopsy is great...it's important that the lab knows how to prepare it, tho...my doc used the Armed Forces Pathology Institue and they have an excellent reputation. You might want to push to have an MRI done prior to the muscle biopsy so a " good " place is targetted to extract the tissue sample. Mine was taken from the upper left thigh (no MRI) and it showed myositis. The sample takes about 1 month to get back. I'm feeling good on Methotrexate, even tho I'm not wild about the drug. I hate Prednisone, can't convince my rheumy to try the antibiotic protocol, but I keep trying! Plaquenil is a mild immune suppressant drug, a member of the quinine family. Others here will share what they're on. Welcome to our group...you are going to get lots of information and support here! Honest...I don't know what I'd do without all the friends I've made here...they've become my family. It's hard on us, cause our friends at home have a hard time comprehending this disease... Lynn --- wrote: > Hi all, > > My name is and I have been tentatively dx > with pm. I live in the > Bay Area of CA. I just saw a rheumotologist for the > first time yesterday. > He says that I may have pm, but is not really sure. > He wants me to see a > neurologist and have an EMG test done, then possibly > a muscle biopsy. He > says it could also be ibm or some kind of dystrophy. > Evidently I don't have > a classic case of pm in that my muscles do not feel > weak in themselves, just > painful. (just! LOL) And the muscles involved are > mainly in my forearms and > upper arms, but also involve the wrist and shoulder > area. > My cpk has gone from 495 to 356 in the past > several months, which is good > news, but since I don't know what was normal for me, > I don't know how just > how good. > I was taking Lipitor and Tricor (both statins) > for several years, and > also Mirapex, for a separate neurological condition. > All three of which are > known to cause muscle problems. The combination of > the three may have even > been worse. Somehow I was under the impression that > if muscle pain > occurred, and the medication was stopped, the muscle > pain would also stop. > It hasn't, even though the medication was stopped > over 2 months ago. > Depending on the test results, the rheumotologist > thinks that a medication > called Methotrexate might help. Or pred. I have > taken pred before and was > not real happy with the side effects, and that was > just in the short term. > Is anyone here taking, or have taken, > Methotrexate? What other meds are > used to treat pm or ibm? > > Thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Hi ! My name is Lynn and I have DM. I took Lipitor for 3 years, then last august, I woke one morning with such achy arm muscles and my adventure with myositis began! My rheumy also felt the DM was caused by the statin. My CPK was at 3600. I stopped the statin about a week before all hell broke loose, and from August to November, my CPK dropped to 777 on its own. That's why she felt it was related to statins and I would return to normal. However, in November, I was started on 60mg of Prednisone and the CPKs continued to drop until April...I was down to 10 mg of Prednisone and 7.5 of Methotrexate, 400mg of Plaquenil and a wonderful CPK of 36!!! Then the spring sun came out. In one month my CPK jumped to 1922. My rheumy changed her tune. Firmed up my diagnosis (she was playing with the idea I had MCTD/UCTD). Now, I have dermatomyositis for sure. The Lipitor was the trigger. It's good to have an EMG. If you hear noise when the needles are stuck into your muscles, that's a bad sign...at rest, the muscles should be quiet. A biopsy is great...it's important that the lab knows how to prepare it, tho...my doc used the Armed Forces Pathology Institue and they have an excellent reputation. You might want to push to have an MRI done prior to the muscle biopsy so a " good " place is targetted to extract the tissue sample. Mine was taken from the upper left thigh (no MRI) and it showed myositis. The sample takes about 1 month to get back. I'm feeling good on Methotrexate, even tho I'm not wild about the drug. I hate Prednisone, can't convince my rheumy to try the antibiotic protocol, but I keep trying! Plaquenil is a mild immune suppressant drug, a member of the quinine family. Others here will share what they're on. Welcome to our group...you are going to get lots of information and support here! Honest...I don't know what I'd do without all the friends I've made here...they've become my family. It's hard on us, cause our friends at home have a hard time comprehending this disease... Lynn --- wrote: > Hi all, > > My name is and I have been tentatively dx > with pm. I live in the > Bay Area of CA. I just saw a rheumotologist for the > first time yesterday. > He says that I may have pm, but is not really sure. > He wants me to see a > neurologist and have an EMG test done, then possibly > a muscle biopsy. He > says it could also be ibm or some kind of dystrophy. > Evidently I don't have > a classic case of pm in that my muscles do not feel > weak in themselves, just > painful. (just! LOL) And the muscles involved are > mainly in my forearms and > upper arms, but also involve the wrist and shoulder > area. > My cpk has gone from 495 to 356 in the past > several months, which is good > news, but since I don't know what was normal for me, > I don't know how just > how good. > I was taking Lipitor and Tricor (both statins) > for several years, and > also Mirapex, for a separate neurological condition. > All three of which are > known to cause muscle problems. The combination of > the three may have even > been worse. Somehow I was under the impression that > if muscle pain > occurred, and the medication was stopped, the muscle > pain would also stop. > It hasn't, even though the medication was stopped > over 2 months ago. > Depending on the test results, the rheumotologist > thinks that a medication > called Methotrexate might help. Or pred. I have > taken pred before and was > not real happy with the side effects, and that was > just in the short term. > Is anyone here taking, or have taken, > Methotrexate? What other meds are > used to treat pm or ibm? > > Thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Hi ! My name is Lynn and I have DM. I took Lipitor for 3 years, then last august, I woke one morning with such achy arm muscles and my adventure with myositis began! My rheumy also felt the DM was caused by the statin. My CPK was at 3600. I stopped the statin about a week before all hell broke loose, and from August to November, my CPK dropped to 777 on its own. That's why she felt it was related to statins and I would return to normal. However, in November, I was started on 60mg of Prednisone and the CPKs continued to drop until April...I was down to 10 mg of Prednisone and 7.5 of Methotrexate, 400mg of Plaquenil and a wonderful CPK of 36!!! Then the spring sun came out. In one month my CPK jumped to 1922. My rheumy changed her tune. Firmed up my diagnosis (she was playing with the idea I had MCTD/UCTD). Now, I have dermatomyositis for sure. The Lipitor was the trigger. It's good to have an EMG. If you hear noise when the needles are stuck into your muscles, that's a bad sign...at rest, the muscles should be quiet. A biopsy is great...it's important that the lab knows how to prepare it, tho...my doc used the Armed Forces Pathology Institue and they have an excellent reputation. You might want to push to have an MRI done prior to the muscle biopsy so a " good " place is targetted to extract the tissue sample. Mine was taken from the upper left thigh (no MRI) and it showed myositis. The sample takes about 1 month to get back. I'm feeling good on Methotrexate, even tho I'm not wild about the drug. I hate Prednisone, can't convince my rheumy to try the antibiotic protocol, but I keep trying! Plaquenil is a mild immune suppressant drug, a member of the quinine family. Others here will share what they're on. Welcome to our group...you are going to get lots of information and support here! Honest...I don't know what I'd do without all the friends I've made here...they've become my family. It's hard on us, cause our friends at home have a hard time comprehending this disease... Lynn --- wrote: > Hi all, > > My name is and I have been tentatively dx > with pm. I live in the > Bay Area of CA. I just saw a rheumotologist for the > first time yesterday. > He says that I may have pm, but is not really sure. > He wants me to see a > neurologist and have an EMG test done, then possibly > a muscle biopsy. He > says it could also be ibm or some kind of dystrophy. > Evidently I don't have > a classic case of pm in that my muscles do not feel > weak in themselves, just > painful. (just! LOL) And the muscles involved are > mainly in my forearms and > upper arms, but also involve the wrist and shoulder > area. > My cpk has gone from 495 to 356 in the past > several months, which is good > news, but since I don't know what was normal for me, > I don't know how just > how good. > I was taking Lipitor and Tricor (both statins) > for several years, and > also Mirapex, for a separate neurological condition. > All three of which are > known to cause muscle problems. The combination of > the three may have even > been worse. Somehow I was under the impression that > if muscle pain > occurred, and the medication was stopped, the muscle > pain would also stop. > It hasn't, even though the medication was stopped > over 2 months ago. > Depending on the test results, the rheumotologist > thinks that a medication > called Methotrexate might help. Or pred. I have > taken pred before and was > not real happy with the side effects, and that was > just in the short term. > Is anyone here taking, or have taken, > Methotrexate? What other meds are > used to treat pm or ibm? > > Thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 ...I'm Annette and I have DM. I have a dear friend who's husband was on Lipitor for years and he developed severe muscle pain in his arms and legs. He went on prednisone and was feeling a little better, but he's still having trouble with his pain. One can't but suspect that some myositis-like symptoms are caused by statins, I think. Annette Re: newbie Hi ! My name is Lynn and I have DM. I took Lipitor for 3 years, then last august, I woke one morning with such achy arm muscles and my adventure with myositis began! My rheumy also felt the DM was caused by the statin. My CPK was at 3600. I stopped the statin about a week before all hell broke loose, and from August to November, my CPK dropped to 777 on its own. That's why she felt it was related to statins and I would return to normal. However, in November, I was started on 60mg of Prednisone and the CPKs continued to drop until April...I was down to 10 mg of Prednisone and 7.5 of Methotrexate, 400mg of Plaquenil and a wonderful CPK of 36!!! Then the spring sun came out. In one month my CPK jumped to 1922. My rheumy changed her tune. Firmed up my diagnosis (she was playing with the idea I had MCTD/UCTD). Now, I have dermatomyositis for sure. The Lipitor was the trigger. It's good to have an EMG. If you hear noise when the needles are stuck into your muscles, that's a bad sign...at rest, the muscles should be quiet. A biopsy is great...it's important that the lab knows how to prepare it, tho...my doc used the Armed Forces Pathology Institue and they have an excellent reputation. You might want to push to have an MRI done prior to the muscle biopsy so a " good " place is targetted to extract the tissue sample. Mine was taken from the upper left thigh (no MRI) and it showed myositis. The sample takes about 1 month to get back. I'm feeling good on Methotrexate, even tho I'm not wild about the drug. I hate Prednisone, can't convince my rheumy to try the antibiotic protocol, but I keep trying! Plaquenil is a mild immune suppressant drug, a member of the quinine family. Others here will share what they're on. Welcome to our group...you are going to get lots of information and support here! Honest...I don't know what I'd do without all the friends I've made here...they've become my family. It's hard on us, cause our friends at home have a hard time comprehending this disease... Lynn --- wrote: > Hi all, > > My name is and I have been tentatively dx > with pm. I live in the > Bay Area of CA. I just saw a rheumotologist for the > first time yesterday. > He says that I may have pm, but is not really sure. > He wants me to see a > neurologist and have an EMG test done, then possibly > a muscle biopsy. He > says it could also be ibm or some kind of dystrophy. > Evidently I don't have > a classic case of pm in that my muscles do not feel > weak in themselves, just > painful. (just! LOL) And the muscles involved are > mainly in my forearms and > upper arms, but also involve the wrist and shoulder > area. > My cpk has gone from 495 to 356 in the past > several months, which is good > news, but since I don't know what was normal for me, > I don't know how just > how good. > I was taking Lipitor and Tricor (both statins) > for several years, and > also Mirapex, for a separate neurological condition. > All three of which are > known to cause muscle problems. The combination of > the three may have even > been worse. Somehow I was under the impression that > if muscle pain > occurred, and the medication was stopped, the muscle > pain would also stop. > It hasn't, even though the medication was stopped > over 2 months ago. > Depending on the test results, the rheumotologist > thinks that a medication > called Methotrexate might help. Or pred. I have > taken pred before and was > not real happy with the side effects, and that was > just in the short term. > Is anyone here taking, or have taken, > Methotrexate? What other meds are > used to treat pm or ibm? > > Thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 ...I'm Annette and I have DM. I have a dear friend who's husband was on Lipitor for years and he developed severe muscle pain in his arms and legs. He went on prednisone and was feeling a little better, but he's still having trouble with his pain. One can't but suspect that some myositis-like symptoms are caused by statins, I think. Annette Re: newbie Hi ! My name is Lynn and I have DM. I took Lipitor for 3 years, then last august, I woke one morning with such achy arm muscles and my adventure with myositis began! My rheumy also felt the DM was caused by the statin. My CPK was at 3600. I stopped the statin about a week before all hell broke loose, and from August to November, my CPK dropped to 777 on its own. That's why she felt it was related to statins and I would return to normal. However, in November, I was started on 60mg of Prednisone and the CPKs continued to drop until April...I was down to 10 mg of Prednisone and 7.5 of Methotrexate, 400mg of Plaquenil and a wonderful CPK of 36!!! Then the spring sun came out. In one month my CPK jumped to 1922. My rheumy changed her tune. Firmed up my diagnosis (she was playing with the idea I had MCTD/UCTD). Now, I have dermatomyositis for sure. The Lipitor was the trigger. It's good to have an EMG. If you hear noise when the needles are stuck into your muscles, that's a bad sign...at rest, the muscles should be quiet. A biopsy is great...it's important that the lab knows how to prepare it, tho...my doc used the Armed Forces Pathology Institue and they have an excellent reputation. You might want to push to have an MRI done prior to the muscle biopsy so a " good " place is targetted to extract the tissue sample. Mine was taken from the upper left thigh (no MRI) and it showed myositis. The sample takes about 1 month to get back. I'm feeling good on Methotrexate, even tho I'm not wild about the drug. I hate Prednisone, can't convince my rheumy to try the antibiotic protocol, but I keep trying! Plaquenil is a mild immune suppressant drug, a member of the quinine family. Others here will share what they're on. Welcome to our group...you are going to get lots of information and support here! Honest...I don't know what I'd do without all the friends I've made here...they've become my family. It's hard on us, cause our friends at home have a hard time comprehending this disease... Lynn --- wrote: > Hi all, > > My name is and I have been tentatively dx > with pm. I live in the > Bay Area of CA. I just saw a rheumotologist for the > first time yesterday. > He says that I may have pm, but is not really sure. > He wants me to see a > neurologist and have an EMG test done, then possibly > a muscle biopsy. He > says it could also be ibm or some kind of dystrophy. > Evidently I don't have > a classic case of pm in that my muscles do not feel > weak in themselves, just > painful. (just! LOL) And the muscles involved are > mainly in my forearms and > upper arms, but also involve the wrist and shoulder > area. > My cpk has gone from 495 to 356 in the past > several months, which is good > news, but since I don't know what was normal for me, > I don't know how just > how good. > I was taking Lipitor and Tricor (both statins) > for several years, and > also Mirapex, for a separate neurological condition. > All three of which are > known to cause muscle problems. The combination of > the three may have even > been worse. Somehow I was under the impression that > if muscle pain > occurred, and the medication was stopped, the muscle > pain would also stop. > It hasn't, even though the medication was stopped > over 2 months ago. > Depending on the test results, the rheumotologist > thinks that a medication > called Methotrexate might help. Or pred. I have > taken pred before and was > not real happy with the side effects, and that was > just in the short term. > Is anyone here taking, or have taken, > Methotrexate? What other meds are > used to treat pm or ibm? > > Thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 ...I'm Annette and I have DM. I have a dear friend who's husband was on Lipitor for years and he developed severe muscle pain in his arms and legs. He went on prednisone and was feeling a little better, but he's still having trouble with his pain. One can't but suspect that some myositis-like symptoms are caused by statins, I think. Annette Re: newbie Hi ! My name is Lynn and I have DM. I took Lipitor for 3 years, then last august, I woke one morning with such achy arm muscles and my adventure with myositis began! My rheumy also felt the DM was caused by the statin. My CPK was at 3600. I stopped the statin about a week before all hell broke loose, and from August to November, my CPK dropped to 777 on its own. That's why she felt it was related to statins and I would return to normal. However, in November, I was started on 60mg of Prednisone and the CPKs continued to drop until April...I was down to 10 mg of Prednisone and 7.5 of Methotrexate, 400mg of Plaquenil and a wonderful CPK of 36!!! Then the spring sun came out. In one month my CPK jumped to 1922. My rheumy changed her tune. Firmed up my diagnosis (she was playing with the idea I had MCTD/UCTD). Now, I have dermatomyositis for sure. The Lipitor was the trigger. It's good to have an EMG. If you hear noise when the needles are stuck into your muscles, that's a bad sign...at rest, the muscles should be quiet. A biopsy is great...it's important that the lab knows how to prepare it, tho...my doc used the Armed Forces Pathology Institue and they have an excellent reputation. You might want to push to have an MRI done prior to the muscle biopsy so a " good " place is targetted to extract the tissue sample. Mine was taken from the upper left thigh (no MRI) and it showed myositis. The sample takes about 1 month to get back. I'm feeling good on Methotrexate, even tho I'm not wild about the drug. I hate Prednisone, can't convince my rheumy to try the antibiotic protocol, but I keep trying! Plaquenil is a mild immune suppressant drug, a member of the quinine family. Others here will share what they're on. Welcome to our group...you are going to get lots of information and support here! Honest...I don't know what I'd do without all the friends I've made here...they've become my family. It's hard on us, cause our friends at home have a hard time comprehending this disease... Lynn --- wrote: > Hi all, > > My name is and I have been tentatively dx > with pm. I live in the > Bay Area of CA. I just saw a rheumotologist for the > first time yesterday. > He says that I may have pm, but is not really sure. > He wants me to see a > neurologist and have an EMG test done, then possibly > a muscle biopsy. He > says it could also be ibm or some kind of dystrophy. > Evidently I don't have > a classic case of pm in that my muscles do not feel > weak in themselves, just > painful. (just! LOL) And the muscles involved are > mainly in my forearms and > upper arms, but also involve the wrist and shoulder > area. > My cpk has gone from 495 to 356 in the past > several months, which is good > news, but since I don't know what was normal for me, > I don't know how just > how good. > I was taking Lipitor and Tricor (both statins) > for several years, and > also Mirapex, for a separate neurological condition. > All three of which are > known to cause muscle problems. The combination of > the three may have even > been worse. Somehow I was under the impression that > if muscle pain > occurred, and the medication was stopped, the muscle > pain would also stop. > It hasn't, even though the medication was stopped > over 2 months ago. > Depending on the test results, the rheumotologist > thinks that a medication > called Methotrexate might help. Or pred. I have > taken pred before and was > not real happy with the side effects, and that was > just in the short term. > Is anyone here taking, or have taken, > Methotrexate? What other meds are > used to treat pm or ibm? > > Thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 > Hi , I just moved from Palo Alto to Utah. I also have PM. I'm going on my third year and not much has changed. This is a great site with input from those who have the disease, so you get first hand information. The main thing is not to become discouraged. Bo Hi all, > > My name is and I have been tentatively dx with pm. I live in the > Bay Area of CA. I just saw a rheumotologist for the first time yesterday. > He says that I may have pm, but is not really sure. He wants me to see a > neurologist and have an EMG test done, then possibly a muscle biopsy. He > says it could also be ibm or some kind of dystrophy. Evidently I don't have > a classic case of pm in that my muscles do not feel weak in themselves, just > painful. (just! LOL) And the muscles involved are mainly in my forearms and > upper arms, but also involve the wrist and shoulder area. > My cpk has gone from 495 to 356 in the past several months, which is good > news, but since I don't know what was normal for me, I don't know how just > how good. > I was taking Lipitor and Tricor (both statins) for several years, and > also Mirapex, for a separate neurological condition. All three of which are > known to cause muscle problems. The combination of the three may have even > been worse. Somehow I was under the impression that if muscle pain > occurred, and the medication was stopped, the muscle pain would also stop. > It hasn't, even though the medication was stopped over 2 months ago. > Depending on the test results, the rheumotologist thinks that a medication > called Methotrexate might help. Or pred. I have taken pred before and was > not real happy with the side effects, and that was just in the short term. > Is anyone here taking, or have taken, Methotrexate? What other meds are > used to treat pm or ibm? > > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 > Hi , I just moved from Palo Alto to Utah. I also have PM. I'm going on my third year and not much has changed. This is a great site with input from those who have the disease, so you get first hand information. The main thing is not to become discouraged. Bo Hi all, > > My name is and I have been tentatively dx with pm. I live in the > Bay Area of CA. I just saw a rheumotologist for the first time yesterday. > He says that I may have pm, but is not really sure. He wants me to see a > neurologist and have an EMG test done, then possibly a muscle biopsy. He > says it could also be ibm or some kind of dystrophy. Evidently I don't have > a classic case of pm in that my muscles do not feel weak in themselves, just > painful. (just! LOL) And the muscles involved are mainly in my forearms and > upper arms, but also involve the wrist and shoulder area. > My cpk has gone from 495 to 356 in the past several months, which is good > news, but since I don't know what was normal for me, I don't know how just > how good. > I was taking Lipitor and Tricor (both statins) for several years, and > also Mirapex, for a separate neurological condition. All three of which are > known to cause muscle problems. The combination of the three may have even > been worse. Somehow I was under the impression that if muscle pain > occurred, and the medication was stopped, the muscle pain would also stop. > It hasn't, even though the medication was stopped over 2 months ago. > Depending on the test results, the rheumotologist thinks that a medication > called Methotrexate might help. Or pred. I have taken pred before and was > not real happy with the side effects, and that was just in the short term. > Is anyone here taking, or have taken, Methotrexate? What other meds are > used to treat pm or ibm? > > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 Hi , and WELCOME! I'm Kiti in West texasKiti--- _______________________________________________ No banners. No pop-ups. No kidding. Introducing My Way - http://www.myway.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 Welcome ! This group is great. Jinx Newbie Hi! I'm and I just joined this group. Look forward to " meeting " everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 Welcome ! This group is great. Jinx Newbie Hi! I'm and I just joined this group. Look forward to " meeting " everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 Welcome ! This group is great. Jinx Newbie Hi! I'm and I just joined this group. Look forward to " meeting " everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Hi , and welcome to the most awesome, supportive and motivational group on the web-lol. So tell us about yourself!!!! I'm Meaghan, SAHM of three....12, 6, 2 1/2. I started this journey at 189 and am down to 134. Trying desperately to loose the last 8 pounds through good food choices, watching portions, exercise and WATER!!!!!!! Great to have you here, Meaghan > Hi! I'm and I just joined this group. Look forward > to " meeting " everyone! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Hi , and welcome to the most awesome, supportive and motivational group on the web-lol. So tell us about yourself!!!! I'm Meaghan, SAHM of three....12, 6, 2 1/2. I started this journey at 189 and am down to 134. Trying desperately to loose the last 8 pounds through good food choices, watching portions, exercise and WATER!!!!!!! Great to have you here, Meaghan > Hi! I'm and I just joined this group. Look forward > to " meeting " everyone! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Hi Welcome to WLB!!!!! This is a great group for motivation inspiration and friendship. I'm sure you will enjoy it as much as we do.` Tell us a little about yourself and your goals so we can get to know you better. I'm Sue H. 54, married for 35yrs,2 grown kids no longer at home. I started my weightloss journey at 175, got down to my goal of 130 and regained some of it back. I am currently 155 and struggling to get back on track. I will do it, just have to get my old determination back again, lol. Jump right in and join the fun. Hugs Sue H. > Hi! I'm and I just joined this group. Look forward > to " meeting " everyone! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 > Welcome , I'm Gena, 38, married almost 20 yrs, have 2 girls 19 and 13 and live in Alaska. can you tell us a bit about yourself? Gena > Hi! I'm and I just joined this group. Look forward > to " meeting " everyone! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 In a message dated 6/3/03 4:42:08 PM Eastern Daylight Time, cmilam@... writes: > I know that I need > to take the weight off slowly and CHANGE my habits in order to keep > it off, so that's the road I'm taking. , You've got the right idea there. I think it's the ONLY way to do this after so many failed attempts at " diets " !! Lots of luck to you and hope you're really enjoying your little guy... Sue R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 In a message dated 6/3/03 4:42:08 PM Eastern Daylight Time, cmilam@... writes: > I know that I need > to take the weight off slowly and CHANGE my habits in order to keep > it off, so that's the road I'm taking. , You've got the right idea there. I think it's the ONLY way to do this after so many failed attempts at " diets " !! Lots of luck to you and hope you're really enjoying your little guy... Sue R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Hi! Thanks to several of you for the nice welcome I look forward to the group support. I'm going to need it! lol Well, like I said, I'm . I'm 31 and live in WV with my dh and our 9 month old little boy. I am trying to lose weight using the WW points program. This seems to be the one for me. I know that I need to take the weight off slowly and CHANGE my habits in order to keep it off, so that's the road I'm taking. I have QUITE a bit of weight to lose so it's going to be a long road...but I've decided that I need to change some habits, get some new improved ones and be patient and not look at the big picture...take it in steps. Glad to be a part of the group! > > > Welcome , > I'm Gena, 38, married almost 20 yrs, have 2 girls 19 and 13 and live in > Alaska. can you tell us a bit about yourself? > > Gena > > > Hi! I'm and I just joined this group. Look forward > > to " meeting " everyone! > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Hi! Thanks to several of you for the nice welcome I look forward to the group support. I'm going to need it! lol Well, like I said, I'm . I'm 31 and live in WV with my dh and our 9 month old little boy. I am trying to lose weight using the WW points program. This seems to be the one for me. I know that I need to take the weight off slowly and CHANGE my habits in order to keep it off, so that's the road I'm taking. I have QUITE a bit of weight to lose so it's going to be a long road...but I've decided that I need to change some habits, get some new improved ones and be patient and not look at the big picture...take it in steps. Glad to be a part of the group! > > > Welcome , > I'm Gena, 38, married almost 20 yrs, have 2 girls 19 and 13 and live in > Alaska. can you tell us a bit about yourself? > > Gena > > > Hi! I'm and I just joined this group. Look forward > > to " meeting " everyone! > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2003 Report Share Posted June 6, 2003 , Well again, nice to meet you. :-) It sounds like you have the right idea. Changing habits and lifestyle is key! Then you don't just lose weight but it stays off! We'll be here for you. Gena :-) > Hi! Thanks to several of you for the nice welcome I look forward > to the group support. I'm going to need it! lol > Well, like I said, I'm . I'm 31 and live in WV with my dh and > our 9 month old little boy. I am trying to lose weight using the WW > points program. This seems to be the one for me. I know that I need > to take the weight off slowly and CHANGE my habits in order to keep > it off, so that's the road I'm taking. I have QUITE a bit of weight > to lose so it's going to be a long road...but I've decided that I > need to change some habits, get some new improved ones and be patient > and not look at the big picture...take it in steps. > Glad to be a part of the group! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2003 Report Share Posted June 6, 2003 , Well again, nice to meet you. :-) It sounds like you have the right idea. Changing habits and lifestyle is key! Then you don't just lose weight but it stays off! We'll be here for you. Gena :-) > Hi! Thanks to several of you for the nice welcome I look forward > to the group support. I'm going to need it! lol > Well, like I said, I'm . I'm 31 and live in WV with my dh and > our 9 month old little boy. I am trying to lose weight using the WW > points program. This seems to be the one for me. I know that I need > to take the weight off slowly and CHANGE my habits in order to keep > it off, so that's the road I'm taking. I have QUITE a bit of weight > to lose so it's going to be a long road...but I've decided that I > need to change some habits, get some new improved ones and be patient > and not look at the big picture...take it in steps. > Glad to be a part of the group! > Quote Link to comment Share on other sites More sharing options...
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