Guest guest Posted June 6, 2003 Report Share Posted June 6, 2003 , Well again, nice to meet you. :-) It sounds like you have the right idea. Changing habits and lifestyle is key! Then you don't just lose weight but it stays off! We'll be here for you. Gena :-) > Hi! Thanks to several of you for the nice welcome I look forward > to the group support. I'm going to need it! lol > Well, like I said, I'm . I'm 31 and live in WV with my dh and > our 9 month old little boy. I am trying to lose weight using the WW > points program. This seems to be the one for me. I know that I need > to take the weight off slowly and CHANGE my habits in order to keep > it off, so that's the road I'm taking. I have QUITE a bit of weight > to lose so it's going to be a long road...but I've decided that I > need to change some habits, get some new improved ones and be patient > and not look at the big picture...take it in steps. > Glad to be a part of the group! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 , Welcome! I was a newbie myself 6 weeks ago! First of all, I was wondering what tests you had for your dr to give the dx of BU? BU & SU are often confused, especially if you only had an hsg. (I ask because SU is more often associated with early miscarriages). I had an hsg & u/s & my RE couldn't confirm whether I had BU, SU, or UU. With hsg, you only get the inside view of the uterus, and the outside view is what confirms it - if you have a dip in the top of the uterus from the outside, it's a BU - you can see two completely separate sides. If the top is flat, then it's SU, & you have a whole uterus & it's only the fibrous band of tissue on the inside that separates one side from the other, but it can be removed. A lap/hyst is absolutely the best way to get a correct dx. Is that the surgery your dr was referring to? I had a lap/hyst on Mar 12. My RE resected a very large septum & basically tripled the size of my uterus! I was back to work in 4 days & pain killers kept the pain to a minimum. My RE labeled my surgery as being for " pelvic pain " - there's a more technical word for it, but I don't know how to spell it! The release I signed mentioned things like removing any adhesions, polyps, etc. that he might find. He did find a small amount of endo on my ovaries & removed that, along with doing the resection. My insurance is covering my surgery. If you have any other questions I could help with, please don't hesitate to ask. I'd also encourage you to research the archives - other women have asked similar questions as you, and there are so many helpful women on this board who have helped & continue to help us figure things out! Sandy, 31 SU, resected 3-12-04 ttc #1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 , Welcome! I was a newbie myself 6 weeks ago! First of all, I was wondering what tests you had for your dr to give the dx of BU? BU & SU are often confused, especially if you only had an hsg. (I ask because SU is more often associated with early miscarriages). I had an hsg & u/s & my RE couldn't confirm whether I had BU, SU, or UU. With hsg, you only get the inside view of the uterus, and the outside view is what confirms it - if you have a dip in the top of the uterus from the outside, it's a BU - you can see two completely separate sides. If the top is flat, then it's SU, & you have a whole uterus & it's only the fibrous band of tissue on the inside that separates one side from the other, but it can be removed. A lap/hyst is absolutely the best way to get a correct dx. Is that the surgery your dr was referring to? I had a lap/hyst on Mar 12. My RE resected a very large septum & basically tripled the size of my uterus! I was back to work in 4 days & pain killers kept the pain to a minimum. My RE labeled my surgery as being for " pelvic pain " - there's a more technical word for it, but I don't know how to spell it! The release I signed mentioned things like removing any adhesions, polyps, etc. that he might find. He did find a small amount of endo on my ovaries & removed that, along with doing the resection. My insurance is covering my surgery. If you have any other questions I could help with, please don't hesitate to ask. I'd also encourage you to research the archives - other women have asked similar questions as you, and there are so many helpful women on this board who have helped & continue to help us figure things out! Sandy, 31 SU, resected 3-12-04 ttc #1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 , Welcome! I was a newbie myself 6 weeks ago! First of all, I was wondering what tests you had for your dr to give the dx of BU? BU & SU are often confused, especially if you only had an hsg. (I ask because SU is more often associated with early miscarriages). I had an hsg & u/s & my RE couldn't confirm whether I had BU, SU, or UU. With hsg, you only get the inside view of the uterus, and the outside view is what confirms it - if you have a dip in the top of the uterus from the outside, it's a BU - you can see two completely separate sides. If the top is flat, then it's SU, & you have a whole uterus & it's only the fibrous band of tissue on the inside that separates one side from the other, but it can be removed. A lap/hyst is absolutely the best way to get a correct dx. Is that the surgery your dr was referring to? I had a lap/hyst on Mar 12. My RE resected a very large septum & basically tripled the size of my uterus! I was back to work in 4 days & pain killers kept the pain to a minimum. My RE labeled my surgery as being for " pelvic pain " - there's a more technical word for it, but I don't know how to spell it! The release I signed mentioned things like removing any adhesions, polyps, etc. that he might find. He did find a small amount of endo on my ovaries & removed that, along with doing the resection. My insurance is covering my surgery. If you have any other questions I could help with, please don't hesitate to ask. I'd also encourage you to research the archives - other women have asked similar questions as you, and there are so many helpful women on this board who have helped & continue to help us figure things out! Sandy, 31 SU, resected 3-12-04 ttc #1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 >>>>> I had an hsg & u/s & my RE couldn't confirm whether I > had BU, SU, or UU. Hi Sandi, I'm butting in on your and 's email. Hope you don't mind. *g* I've never heard the differences between diagnosing the anomaly the way you explained above. It got me thinking. I've been diagnosed with uu from a HSG alone. It did not show up on either an abdominal or transvaginal sonogram. I'm seeing a specialist at the end of the month and I imagine he'll send me for a MRI. But I've already been diagnosed. Does anyone know if there's a possiblity it's wrong? The HSG report says " unicornuate uterus and markedly narrow uterus " , so they sound pretty definite. Appreciate any feedback! Jen 34, UU, ttc #1, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 >>>>> I had an hsg & u/s & my RE couldn't confirm whether I > had BU, SU, or UU. Hi Sandi, I'm butting in on your and 's email. Hope you don't mind. *g* I've never heard the differences between diagnosing the anomaly the way you explained above. It got me thinking. I've been diagnosed with uu from a HSG alone. It did not show up on either an abdominal or transvaginal sonogram. I'm seeing a specialist at the end of the month and I imagine he'll send me for a MRI. But I've already been diagnosed. Does anyone know if there's a possiblity it's wrong? The HSG report says " unicornuate uterus and markedly narrow uterus " , so they sound pretty definite. Appreciate any feedback! Jen 34, UU, ttc #1, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 >>>>> I had an hsg & u/s & my RE couldn't confirm whether I > had BU, SU, or UU. Hi Sandi, I'm butting in on your and 's email. Hope you don't mind. *g* I've never heard the differences between diagnosing the anomaly the way you explained above. It got me thinking. I've been diagnosed with uu from a HSG alone. It did not show up on either an abdominal or transvaginal sonogram. I'm seeing a specialist at the end of the month and I imagine he'll send me for a MRI. But I've already been diagnosed. Does anyone know if there's a possiblity it's wrong? The HSG report says " unicornuate uterus and markedly narrow uterus " , so they sound pretty definite. Appreciate any feedback! Jen 34, UU, ttc #1, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Does anyone know if there's a possiblity it's wrong? The HSG report says " unicornuate uterus and markedly narrow uterus " , so they sound pretty definite. Jen, Yes! There's a possibility it's wrong. I had an HSG over two years ago. I've had four doctors look at my films and say, " Yup, that's a classic DES t-shaped uterus. " In my records, you can read the words " t-shaped with diminished capacity " twenty times. But on April 1st, I met with one of the best doctors in my area who believes that they didn't pull down on my uterus during the HSG and so it appears t-shaped when it really is not. He's doing a hysteroscopy when I get AF. Needless to say, I'm in shock. I've thought one thing for over two years and it could be wrong. I've worried about pre-term labor, the need for a cerclage, and IUGR. I've worried about having a third miscarriage for anatomical reasons. I've worried for perhaps no reason at all. This could change everything. I would not rely on the results of an HSG. That is, of course, just my opinion. -Kathy D., 29 t-shaped??? 2 m/c waiting for AF _________________________________________________________________ Persistent heartburn? Check out Digestive Health & Wellness for information and advice. http://gerd.msn.com/default.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Does anyone know if there's a possiblity it's wrong? The HSG report says " unicornuate uterus and markedly narrow uterus " , so they sound pretty definite. Jen, Yes! There's a possibility it's wrong. I had an HSG over two years ago. I've had four doctors look at my films and say, " Yup, that's a classic DES t-shaped uterus. " In my records, you can read the words " t-shaped with diminished capacity " twenty times. But on April 1st, I met with one of the best doctors in my area who believes that they didn't pull down on my uterus during the HSG and so it appears t-shaped when it really is not. He's doing a hysteroscopy when I get AF. Needless to say, I'm in shock. I've thought one thing for over two years and it could be wrong. I've worried about pre-term labor, the need for a cerclage, and IUGR. I've worried about having a third miscarriage for anatomical reasons. I've worried for perhaps no reason at all. This could change everything. I would not rely on the results of an HSG. That is, of course, just my opinion. -Kathy D., 29 t-shaped??? 2 m/c waiting for AF _________________________________________________________________ Persistent heartburn? Check out Digestive Health & Wellness for information and advice. http://gerd.msn.com/default.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Does anyone know if there's a possiblity it's wrong? The HSG report says " unicornuate uterus and markedly narrow uterus " , so they sound pretty definite. Jen, Yes! There's a possibility it's wrong. I had an HSG over two years ago. I've had four doctors look at my films and say, " Yup, that's a classic DES t-shaped uterus. " In my records, you can read the words " t-shaped with diminished capacity " twenty times. But on April 1st, I met with one of the best doctors in my area who believes that they didn't pull down on my uterus during the HSG and so it appears t-shaped when it really is not. He's doing a hysteroscopy when I get AF. Needless to say, I'm in shock. I've thought one thing for over two years and it could be wrong. I've worried about pre-term labor, the need for a cerclage, and IUGR. I've worried about having a third miscarriage for anatomical reasons. I've worried for perhaps no reason at all. This could change everything. I would not rely on the results of an HSG. That is, of course, just my opinion. -Kathy D., 29 t-shaped??? 2 m/c waiting for AF _________________________________________________________________ Persistent heartburn? Check out Digestive Health & Wellness for information and advice. http://gerd.msn.com/default.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Dear Kathy & Sandy, Thank you so much for your replies!!! It gives me a little hope (although amazing since my doctor was SOOOOO DEFINITE I was/am uu!!), but now I'm worried about the HSG. What are the chances I have to go through that again? Please tell me there are different, better tests? I know my experience is not the norm, but I was in horrendous pain (and I have a high tolerance) which was blamed on me being uu. I ended up with a fever of over 101 within a few hours and am currently cd22 with no period or LH surge yet (had it done on cd9). I'm still experiencing twinges of pain/discomfort believe it or not. The thought of going through that again....*sigh* They'd have to knock me out I think. Thanks again for the feedback. You ladies are amazing! Jen 34, uu, ttc #1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Dear Kathy & Sandy, Thank you so much for your replies!!! It gives me a little hope (although amazing since my doctor was SOOOOO DEFINITE I was/am uu!!), but now I'm worried about the HSG. What are the chances I have to go through that again? Please tell me there are different, better tests? I know my experience is not the norm, but I was in horrendous pain (and I have a high tolerance) which was blamed on me being uu. I ended up with a fever of over 101 within a few hours and am currently cd22 with no period or LH surge yet (had it done on cd9). I'm still experiencing twinges of pain/discomfort believe it or not. The thought of going through that again....*sigh* They'd have to knock me out I think. Thanks again for the feedback. You ladies are amazing! Jen 34, uu, ttc #1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 --- You wrote: I am new to the listen up list serve. I can't believe it took me four years to find this website. I have a five year old son with hearing loss. He is in Kindergarten and uses total communication. He was diagnosed at 14 months with mild-moderate hearing loss. His hearing loss remained stable until about 18 months ago when his loss rapidly sloped more and more. He now has a mild loss in low tones (500 DB) and drops to severe profound. He no longer benefits from aids in the high frequencies. I found this website while looking at additional options for my son, with the hopes that the hybrid CI becomes available for children soon. I am now checking out the AVR Impact that transposes or compresses sound. I look forward to getting to know everyone. --- end of quote --- Hi Theresa - welcome to Listen-up! Your son's loss sounds somewhat like my older son's (although Tom's hasn't been progressive). I've heard good things about the AVR impact hearing aids - Tom wears Supero 312 (I think that's the #) by Phonak and does well with them. With any hearing aid - and you probably know this - you can " test drive " them for a month or so. Glad you're here! Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 --- You wrote: I am new to the listen up list serve. I can't believe it took me four years to find this website. I have a five year old son with hearing loss. He is in Kindergarten and uses total communication. He was diagnosed at 14 months with mild-moderate hearing loss. His hearing loss remained stable until about 18 months ago when his loss rapidly sloped more and more. He now has a mild loss in low tones (500 DB) and drops to severe profound. He no longer benefits from aids in the high frequencies. I found this website while looking at additional options for my son, with the hopes that the hybrid CI becomes available for children soon. I am now checking out the AVR Impact that transposes or compresses sound. I look forward to getting to know everyone. --- end of quote --- Hi Theresa - welcome to Listen-up! Your son's loss sounds somewhat like my older son's (although Tom's hasn't been progressive). I've heard good things about the AVR impact hearing aids - Tom wears Supero 312 (I think that's the #) by Phonak and does well with them. With any hearing aid - and you probably know this - you can " test drive " them for a month or so. Glad you're here! Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 --- You wrote: I am new to the listen up list serve. I can't believe it took me four years to find this website. I have a five year old son with hearing loss. He is in Kindergarten and uses total communication. He was diagnosed at 14 months with mild-moderate hearing loss. His hearing loss remained stable until about 18 months ago when his loss rapidly sloped more and more. He now has a mild loss in low tones (500 DB) and drops to severe profound. He no longer benefits from aids in the high frequencies. I found this website while looking at additional options for my son, with the hopes that the hybrid CI becomes available for children soon. I am now checking out the AVR Impact that transposes or compresses sound. I look forward to getting to know everyone. --- end of quote --- Hi Theresa - welcome to Listen-up! Your son's loss sounds somewhat like my older son's (although Tom's hasn't been progressive). I've heard good things about the AVR impact hearing aids - Tom wears Supero 312 (I think that's the #) by Phonak and does well with them. With any hearing aid - and you probably know this - you can " test drive " them for a month or so. Glad you're here! Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Welcome to the list. I am Jill, mother of two. My 14-year-old-son is HOH. He has a bilateral conductive loss which is degenerative. We discovered his loss very very late -- he was 7. He is aided in both ears, he is mainstreamed and a freshman in high school. This list is a great place with many ust about any communication modality discussed. Ask just about any question and someone can give you some infomration. SO, don't be shy. There are old parents (guess I'm one) and new parents, all here to share their experiences. Welcome! Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Welcome to the list. I am Jill, mother of two. My 14-year-old-son is HOH. He has a bilateral conductive loss which is degenerative. We discovered his loss very very late -- he was 7. He is aided in both ears, he is mainstreamed and a freshman in high school. This list is a great place with many ust about any communication modality discussed. Ask just about any question and someone can give you some infomration. SO, don't be shy. There are old parents (guess I'm one) and new parents, all here to share their experiences. Welcome! Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Theresa, Welcome to listen-up. It has helped me over and over. The parents and kids have such varied backgrounds. Are there any oral programs in your area? What do you mean hybrid CI? Mom to 12, 7 (n24 4/00) and 4 ----- Original Message ----- I found this website while looking at additional options for my son, with the hopes that the hybrid CI becomes available for children soon. I am now checking out the AVR Impact that transposes or compresses sound. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Theresa, Welcome to listen-up. It has helped me over and over. The parents and kids have such varied backgrounds. Are there any oral programs in your area? What do you mean hybrid CI? Mom to 12, 7 (n24 4/00) and 4 ----- Original Message ----- I found this website while looking at additional options for my son, with the hopes that the hybrid CI becomes available for children soon. I am now checking out the AVR Impact that transposes or compresses sound. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Well, honestly, needs what works best for her. Some parents have seen benefit from a sound feild system, but our experience was a disaster. Also, with a middle school child who is changing classes, they would have to set up and maintain soundfield systems in each room. I would recommend the personal one like our son has. Ian has had a personal FM system since the beginning of 6th grade. It consists of little receivers ( " boots " ) that clip onto his aids and the microphone is worn by the teacher. The boots are powered by the hearing aid batteries, so those now last only a week. The micorphone has a rechargable battery and it is plugged in every evening to recharge. The style of micropohone that they have is about the size of a small candy bar and is worn on a cord around the teacher's neck. The teacher's voice is sent directly into Ian's ears. This allowed him to look down as he took notes instead of trying to keep an eye on the teacher's face for cues and writing at the same time. Note taking is very hard for a D/HOH kid and the FMs were a godsend. My son did not do at well with a soundfield system. It did nothing but make the entire classroom louder. One teacher talked louder and louder as if to talk over herself. The kids in the room felt free to be louder as well. Chairs were shoved around, papers were shuffled while people were talking, because the hearing kids could hear even with the additoinal noise. For our son it was a horror story. The amplified teacher's voice only added to the ambient room noise and it was not isolated from the classroom noise, just added to it. There was no benefit to him. In fact, I believe it made things much much worse for him. The only time there was any benefit at all was when they passed the microphone around as they read aloud. At that point everyone was expected to be very quiet and listen. Now, when kids read aloud, they pass the microphone around as well. Same benefit, but everything else is better with the personal system. Ian carries the microphone from class to class. He hands it to the teacher as he walks in and gets it as he walks out. He drops it off in the guidance office on his way out to the bus, and the school's 504 officer plugs it in for recharging. In the same office there is also a computer for his use. He uploads the notes he has taken on his Alphasmart (a study laptop like PDA device) so that they can be printed out or used in Microsoft Word. Hope this helps, Jill PS: For those who heard about the smart boards: They're re-installing those smart boards one by one. He now has them in English and Math. Hopefully next year will start more smoothly. In a message dated 11/3/2004 7:02:56 PM Eastern Standard Time, beccamont@... writes: Thank you! I have wondered about personal FM systems vs. the soundfield system. will soon be in middle school going from class to class and will need a system that will go with her. What do you recommend? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Well, honestly, needs what works best for her. Some parents have seen benefit from a sound feild system, but our experience was a disaster. Also, with a middle school child who is changing classes, they would have to set up and maintain soundfield systems in each room. I would recommend the personal one like our son has. Ian has had a personal FM system since the beginning of 6th grade. It consists of little receivers ( " boots " ) that clip onto his aids and the microphone is worn by the teacher. The boots are powered by the hearing aid batteries, so those now last only a week. The micorphone has a rechargable battery and it is plugged in every evening to recharge. The style of micropohone that they have is about the size of a small candy bar and is worn on a cord around the teacher's neck. The teacher's voice is sent directly into Ian's ears. This allowed him to look down as he took notes instead of trying to keep an eye on the teacher's face for cues and writing at the same time. Note taking is very hard for a D/HOH kid and the FMs were a godsend. My son did not do at well with a soundfield system. It did nothing but make the entire classroom louder. One teacher talked louder and louder as if to talk over herself. The kids in the room felt free to be louder as well. Chairs were shoved around, papers were shuffled while people were talking, because the hearing kids could hear even with the additoinal noise. For our son it was a horror story. The amplified teacher's voice only added to the ambient room noise and it was not isolated from the classroom noise, just added to it. There was no benefit to him. In fact, I believe it made things much much worse for him. The only time there was any benefit at all was when they passed the microphone around as they read aloud. At that point everyone was expected to be very quiet and listen. Now, when kids read aloud, they pass the microphone around as well. Same benefit, but everything else is better with the personal system. Ian carries the microphone from class to class. He hands it to the teacher as he walks in and gets it as he walks out. He drops it off in the guidance office on his way out to the bus, and the school's 504 officer plugs it in for recharging. In the same office there is also a computer for his use. He uploads the notes he has taken on his Alphasmart (a study laptop like PDA device) so that they can be printed out or used in Microsoft Word. Hope this helps, Jill PS: For those who heard about the smart boards: They're re-installing those smart boards one by one. He now has them in English and Math. Hopefully next year will start more smoothly. In a message dated 11/3/2004 7:02:56 PM Eastern Standard Time, beccamont@... writes: Thank you! I have wondered about personal FM systems vs. the soundfield system. will soon be in middle school going from class to class and will need a system that will go with her. What do you recommend? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Theresa, My son Caleb also has a sloping loss - worse in the high frequencies. The Hybrid CI sounds interesting. When Caleb was diagnosed, we were told that he was not a candidate for CI because he had " so much " hearing. Now at five, he still struggles with discriminating between those consonants that all sound the same (to him). Thanks for sharing. , , 7, hearing Caleb, 5, bilateral SNHL , aided Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Theresa, My son Caleb also has a sloping loss - worse in the high frequencies. The Hybrid CI sounds interesting. When Caleb was diagnosed, we were told that he was not a candidate for CI because he had " so much " hearing. Now at five, he still struggles with discriminating between those consonants that all sound the same (to him). Thanks for sharing. , , 7, hearing Caleb, 5, bilateral SNHL , aided Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 , It is interesting what you write about Caleb not being an implant candidate with " too much " hearing. We were also told in 1998 that was not an implant candidate because he got " some " benefit from hearing aids, meaning he could hear a little with them. But as time went on, the CI candidacy criteria changed, and unbeknownst to us, he became a candidate probably at least two years before he got his implant not because his hearing dropped (it didn't) but because the criteria changed. (Actually, he probably was a candidate all along had we only pushed for it. Also, his hearing was tested in an unconventional way that may have underestimated his high frequency loss.) My only regret is we didn't get one for him sooner. Now today, kids with a lot more hearing than ever had, including some with sloping losses are getting implants. If Caleb is really struggling to listen, it might be worth checking back with your implant center from time to time on what they think of him as a candidate and also to get the latest scoop on the availablity of the hybrid CI and who it's intended for. Lydia , almost 8, implant 1/01 at age 4 and Colin, almost 11, hearing > My son Caleb also has a sloping loss - worse in the high frequencies. > The Hybrid CI sounds interesting. > When Caleb was diagnosed, we were told that he was not a candidate for > CI because he had " so much " hearing. > Now at five, he still struggles with discriminating between those > consonants that all sound the same (to him). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 , It is interesting what you write about Caleb not being an implant candidate with " too much " hearing. We were also told in 1998 that was not an implant candidate because he got " some " benefit from hearing aids, meaning he could hear a little with them. But as time went on, the CI candidacy criteria changed, and unbeknownst to us, he became a candidate probably at least two years before he got his implant not because his hearing dropped (it didn't) but because the criteria changed. (Actually, he probably was a candidate all along had we only pushed for it. Also, his hearing was tested in an unconventional way that may have underestimated his high frequency loss.) My only regret is we didn't get one for him sooner. Now today, kids with a lot more hearing than ever had, including some with sloping losses are getting implants. If Caleb is really struggling to listen, it might be worth checking back with your implant center from time to time on what they think of him as a candidate and also to get the latest scoop on the availablity of the hybrid CI and who it's intended for. Lydia , almost 8, implant 1/01 at age 4 and Colin, almost 11, hearing > My son Caleb also has a sloping loss - worse in the high frequencies. > The Hybrid CI sounds interesting. > When Caleb was diagnosed, we were told that he was not a candidate for > CI because he had " so much " hearing. > Now at five, he still struggles with discriminating between those > consonants that all sound the same (to him). Quote Link to comment Share on other sites More sharing options...
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