Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 , It is interesting what you write about Caleb not being an implant candidate with " too much " hearing. We were also told in 1998 that was not an implant candidate because he got " some " benefit from hearing aids, meaning he could hear a little with them. But as time went on, the CI candidacy criteria changed, and unbeknownst to us, he became a candidate probably at least two years before he got his implant not because his hearing dropped (it didn't) but because the criteria changed. (Actually, he probably was a candidate all along had we only pushed for it. Also, his hearing was tested in an unconventional way that may have underestimated his high frequency loss.) My only regret is we didn't get one for him sooner. Now today, kids with a lot more hearing than ever had, including some with sloping losses are getting implants. If Caleb is really struggling to listen, it might be worth checking back with your implant center from time to time on what they think of him as a candidate and also to get the latest scoop on the availablity of the hybrid CI and who it's intended for. Lydia , almost 8, implant 1/01 at age 4 and Colin, almost 11, hearing > My son Caleb also has a sloping loss - worse in the high frequencies. > The Hybrid CI sounds interesting. > When Caleb was diagnosed, we were told that he was not a candidate for > CI because he had " so much " hearing. > Now at five, he still struggles with discriminating between those > consonants that all sound the same (to him). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Vinny has been the same way " not deaf enough " . We were beginning to look into an exception when we found out about the new CI. After today...that might not even be necessary!! Vinny tried the new AVR ImPacts today and heard sounds he hasn't been able to hear for a long time! The sounds sound different to me and he will need to learn to discriminate them, but he could hear them. The really cool thing is it comes with an FM system built in so I can use it in the car and at crowded outtings where it has always been difficult for him. The mic can be used at school during the day. Theresa Emery wrote: Theresa, My son Caleb also has a sloping loss - worse in the high frequencies. The Hybrid CI sounds interesting. When Caleb was diagnosed, we were told that he was not a candidate for CI because he had " so much " hearing. Now at five, he still struggles with discriminating between those consonants that all sound the same (to him). Thanks for sharing. , , 7, hearing Caleb, 5, bilateral SNHL , aided All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Vinny has been the same way " not deaf enough " . We were beginning to look into an exception when we found out about the new CI. After today...that might not even be necessary!! Vinny tried the new AVR ImPacts today and heard sounds he hasn't been able to hear for a long time! The sounds sound different to me and he will need to learn to discriminate them, but he could hear them. The really cool thing is it comes with an FM system built in so I can use it in the car and at crowded outtings where it has always been difficult for him. The mic can be used at school during the day. Theresa Emery wrote: Theresa, My son Caleb also has a sloping loss - worse in the high frequencies. The Hybrid CI sounds interesting. When Caleb was diagnosed, we were told that he was not a candidate for CI because he had " so much " hearing. Now at five, he still struggles with discriminating between those consonants that all sound the same (to him). Thanks for sharing. , , 7, hearing Caleb, 5, bilateral SNHL , aided All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Vinny has been the same way " not deaf enough " . We were beginning to look into an exception when we found out about the new CI. After today...that might not even be necessary!! Vinny tried the new AVR ImPacts today and heard sounds he hasn't been able to hear for a long time! The sounds sound different to me and he will need to learn to discriminate them, but he could hear them. The really cool thing is it comes with an FM system built in so I can use it in the car and at crowded outtings where it has always been difficult for him. The mic can be used at school during the day. Theresa Emery wrote: Theresa, My son Caleb also has a sloping loss - worse in the high frequencies. The Hybrid CI sounds interesting. When Caleb was diagnosed, we were told that he was not a candidate for CI because he had " so much " hearing. Now at five, he still struggles with discriminating between those consonants that all sound the same (to him). Thanks for sharing. , , 7, hearing Caleb, 5, bilateral SNHL , aided All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Sorry to ask this (I´m from Argentina and my english but not as good to understand every technical term), can you (or someone in the group) to explain to me in a very basic way: What is the " new " CI? Wich is the difference with the " old " CI? (that is probably the one that are using here) I want to understand this because my son is candidate but as he also has Down Syndrome i have big doubts about when and how is the best moment to do. All the references are related to kids without others disabilities. Thanks a lot -----Mensaje original----- De: theresa giacin Enviado el: viernes, 05 de noviembre de 2004 21:29 Para: Listen-Up Asunto: Re: newbie Vinny has been the same way " not deaf enough " . We were beginning to look into an exception when we found out about the new CI. After today...that might not even be necessary!! Vinny tried the new AVR ImPacts today and heard sounds he hasn't been able to hear for a long time! The sounds sound different to me and he will need to learn to discriminate them, but he could hear them. The really cool thing is it comes with an FM system built in so I can use it in the car and at crowded outtings where it has always been difficult for him. The mic can be used at school during the day. Theresa Emery wrote: Theresa, My son Caleb also has a sloping loss - worse in the high frequencies. The Hybrid CI sounds interesting. When Caleb was diagnosed, we were told that he was not a candidate for CI because he had " so much " hearing. Now at five, he still struggles with discriminating between those consonants that all sound the same (to him). Thanks for sharing. , , 7, hearing Caleb, 5, bilateral SNHL , aided All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Sorry to ask this (I´m from Argentina and my english but not as good to understand every technical term), can you (or someone in the group) to explain to me in a very basic way: What is the " new " CI? Wich is the difference with the " old " CI? (that is probably the one that are using here) I want to understand this because my son is candidate but as he also has Down Syndrome i have big doubts about when and how is the best moment to do. All the references are related to kids without others disabilities. Thanks a lot -----Mensaje original----- De: theresa giacin Enviado el: viernes, 05 de noviembre de 2004 21:29 Para: Listen-Up Asunto: Re: newbie Vinny has been the same way " not deaf enough " . We were beginning to look into an exception when we found out about the new CI. After today...that might not even be necessary!! Vinny tried the new AVR ImPacts today and heard sounds he hasn't been able to hear for a long time! The sounds sound different to me and he will need to learn to discriminate them, but he could hear them. The really cool thing is it comes with an FM system built in so I can use it in the car and at crowded outtings where it has always been difficult for him. The mic can be used at school during the day. Theresa Emery wrote: Theresa, My son Caleb also has a sloping loss - worse in the high frequencies. The Hybrid CI sounds interesting. When Caleb was diagnosed, we were told that he was not a candidate for CI because he had " so much " hearing. Now at five, he still struggles with discriminating between those consonants that all sound the same (to him). Thanks for sharing. , , 7, hearing Caleb, 5, bilateral SNHL , aided All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Sorry to ask this (I´m from Argentina and my english but not as good to understand every technical term), can you (or someone in the group) to explain to me in a very basic way: What is the " new " CI? Wich is the difference with the " old " CI? (that is probably the one that are using here) I want to understand this because my son is candidate but as he also has Down Syndrome i have big doubts about when and how is the best moment to do. All the references are related to kids without others disabilities. Thanks a lot -----Mensaje original----- De: theresa giacin Enviado el: viernes, 05 de noviembre de 2004 21:29 Para: Listen-Up Asunto: Re: newbie Vinny has been the same way " not deaf enough " . We were beginning to look into an exception when we found out about the new CI. After today...that might not even be necessary!! Vinny tried the new AVR ImPacts today and heard sounds he hasn't been able to hear for a long time! The sounds sound different to me and he will need to learn to discriminate them, but he could hear them. The really cool thing is it comes with an FM system built in so I can use it in the car and at crowded outtings where it has always been difficult for him. The mic can be used at school during the day. Theresa Emery wrote: Theresa, My son Caleb also has a sloping loss - worse in the high frequencies. The Hybrid CI sounds interesting. When Caleb was diagnosed, we were told that he was not a candidate for CI because he had " so much " hearing. Now at five, he still struggles with discriminating between those consonants that all sound the same (to him). Thanks for sharing. , , 7, hearing Caleb, 5, bilateral SNHL , aided All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 theresa giacin wrote: > Vinny has been the same way " not deaf enough " . We were beginning to > look into an exception when we found out about the new CI. After > today...that might not even be necessary!! > > Vinny tried the new AVR ImPacts today and heard sounds he hasn't been > able to hear for a long time! The sounds sound different to me and he > will need to learn to discriminate them, but he could hear them. The > really cool thing is it comes with an FM system built in so I can use > it in the car and at crowded outtings where it has always been > difficult for him. The mic can be used at school during the day. > Hmm, sounds interesting. Who makes the AVR ImPacts? Do you know how I can find out more about them? Thanks for sharing. God bless. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 theresa giacin wrote: > Vinny has been the same way " not deaf enough " . We were beginning to > look into an exception when we found out about the new CI. After > today...that might not even be necessary!! > > Vinny tried the new AVR ImPacts today and heard sounds he hasn't been > able to hear for a long time! The sounds sound different to me and he > will need to learn to discriminate them, but he could hear them. The > really cool thing is it comes with an FM system built in so I can use > it in the car and at crowded outtings where it has always been > difficult for him. The mic can be used at school during the day. > Hmm, sounds interesting. Who makes the AVR ImPacts? Do you know how I can find out more about them? Thanks for sharing. God bless. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 theresa giacin wrote: > Vinny has been the same way " not deaf enough " . We were beginning to > look into an exception when we found out about the new CI. After > today...that might not even be necessary!! > > Vinny tried the new AVR ImPacts today and heard sounds he hasn't been > able to hear for a long time! The sounds sound different to me and he > will need to learn to discriminate them, but he could hear them. The > really cool thing is it comes with an FM system built in so I can use > it in the car and at crowded outtings where it has always been > difficult for him. The mic can be used at school during the day. > Hmm, sounds interesting. Who makes the AVR ImPacts? Do you know how I can find out more about them? Thanks for sharing. God bless. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 > > Now today, kids with a lot more hearing than ever had, > including some with sloping losses are getting implants. If Caleb > is really struggling to listen, it might be worth checking back with > your implant center from time to time on what they think of him as a > candidate and also to get the latest scoop on the availablity of the > hybrid CI and who it's intended for. Lydia, Thanks for writing and for your support. What you are saying is exactly what my AVT has told us. Caleb has had new digital aids for not quite 3 months, and he has shown a lot of improvement since then. (He was under aided for a while). We've been advised to give him some time using the new aids and applying the therapy techniques. (He has never had AV therapy until now). If he does not continue to improve as he has been, or if he doesn't reach the goals we've set by next year or so, we will look into it again, especially keeping in mind the possible hybrid option. My AVT said that it is likely, with the way that technology is advancing so fast, that Caleb will have more and more options open to him, including possible implants, in the next five years. She assured me that, being an oral child who is continuously working on listening and relating to sound, and with support and therapy, he will probably have no trouble adjusting to any one of the new technology options that might come alone. I'm just glad that we are living at a time when we have choices. And thanks to everyone on this list for their continuous support and input :-) . , 7, hearing Caleb, 5, SNHL, aided Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 > > Now today, kids with a lot more hearing than ever had, > including some with sloping losses are getting implants. If Caleb > is really struggling to listen, it might be worth checking back with > your implant center from time to time on what they think of him as a > candidate and also to get the latest scoop on the availablity of the > hybrid CI and who it's intended for. Lydia, Thanks for writing and for your support. What you are saying is exactly what my AVT has told us. Caleb has had new digital aids for not quite 3 months, and he has shown a lot of improvement since then. (He was under aided for a while). We've been advised to give him some time using the new aids and applying the therapy techniques. (He has never had AV therapy until now). If he does not continue to improve as he has been, or if he doesn't reach the goals we've set by next year or so, we will look into it again, especially keeping in mind the possible hybrid option. My AVT said that it is likely, with the way that technology is advancing so fast, that Caleb will have more and more options open to him, including possible implants, in the next five years. She assured me that, being an oral child who is continuously working on listening and relating to sound, and with support and therapy, he will probably have no trouble adjusting to any one of the new technology options that might come alone. I'm just glad that we are living at a time when we have choices. And thanks to everyone on this list for their continuous support and input :-) . , 7, hearing Caleb, 5, SNHL, aided Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 > > Now today, kids with a lot more hearing than ever had, > including some with sloping losses are getting implants. If Caleb > is really struggling to listen, it might be worth checking back with > your implant center from time to time on what they think of him as a > candidate and also to get the latest scoop on the availablity of the > hybrid CI and who it's intended for. Lydia, Thanks for writing and for your support. What you are saying is exactly what my AVT has told us. Caleb has had new digital aids for not quite 3 months, and he has shown a lot of improvement since then. (He was under aided for a while). We've been advised to give him some time using the new aids and applying the therapy techniques. (He has never had AV therapy until now). If he does not continue to improve as he has been, or if he doesn't reach the goals we've set by next year or so, we will look into it again, especially keeping in mind the possible hybrid option. My AVT said that it is likely, with the way that technology is advancing so fast, that Caleb will have more and more options open to him, including possible implants, in the next five years. She assured me that, being an oral child who is continuously working on listening and relating to sound, and with support and therapy, he will probably have no trouble adjusting to any one of the new technology options that might come alone. I'm just glad that we are living at a time when we have choices. And thanks to everyone on this list for their continuous support and input :-) . , 7, hearing Caleb, 5, SNHL, aided Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 , Do you know about the Moog curriculum school in Buenos Aires, Colegio Las Lomas Oral? I noticed that it is not on the oral deaf ed map. It seems that kids with additional issues/disabilities can use cochlear implants effectively. Of course they still have the challenge of the other issues but they can " hear " with their CI. The only exception to this that I can think of this early in the morning is if they have a problem with the actual auditory nerve path way or their brain (I even hesitate to say this because how do you know until they get a chance to develop their brain). I've heard that there are people who can't use their CI but after our experiences I can't help wonder if most weren't because the CI wasn't mapped appropriately. Please don't worry about asking questions, we all have needed help and our questions answered. Even with English as my first language, I struggled in the beginning just because of the new technical and medical terms. Mom to 12, 7 (n24 4/00) and 4 ----- Original Message ----- (I´m from Argentina and my english I want to understand this because my son is candidate but as he also has Down Syndrome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 , Do you know about the Moog curriculum school in Buenos Aires, Colegio Las Lomas Oral? I noticed that it is not on the oral deaf ed map. It seems that kids with additional issues/disabilities can use cochlear implants effectively. Of course they still have the challenge of the other issues but they can " hear " with their CI. The only exception to this that I can think of this early in the morning is if they have a problem with the actual auditory nerve path way or their brain (I even hesitate to say this because how do you know until they get a chance to develop their brain). I've heard that there are people who can't use their CI but after our experiences I can't help wonder if most weren't because the CI wasn't mapped appropriately. Please don't worry about asking questions, we all have needed help and our questions answered. Even with English as my first language, I struggled in the beginning just because of the new technical and medical terms. Mom to 12, 7 (n24 4/00) and 4 ----- Original Message ----- (I´m from Argentina and my english I want to understand this because my son is candidate but as he also has Down Syndrome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 , Do you know about the Moog curriculum school in Buenos Aires, Colegio Las Lomas Oral? I noticed that it is not on the oral deaf ed map. It seems that kids with additional issues/disabilities can use cochlear implants effectively. Of course they still have the challenge of the other issues but they can " hear " with their CI. The only exception to this that I can think of this early in the morning is if they have a problem with the actual auditory nerve path way or their brain (I even hesitate to say this because how do you know until they get a chance to develop their brain). I've heard that there are people who can't use their CI but after our experiences I can't help wonder if most weren't because the CI wasn't mapped appropriately. Please don't worry about asking questions, we all have needed help and our questions answered. Even with English as my first language, I struggled in the beginning just because of the new technical and medical terms. Mom to 12, 7 (n24 4/00) and 4 ----- Original Message ----- (I´m from Argentina and my english I want to understand this because my son is candidate but as he also has Down Syndrome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 they are made by logicom. If you search AVR impact you can pull up some sites about it on the web. I am pretty sure there is info at the listen up website about them because I found this listserve when looking for info about them. Theresa Emery wrote: theresa giacin wrote: > Vinny has been the same way " not deaf enough " . We were beginning to > look into an exception when we found out about the new CI. After > today...that might not even be necessary!! > > Vinny tried the new AVR ImPacts today and heard sounds he hasn't been > able to hear for a long time! The sounds sound different to me and he > will need to learn to discriminate them, but he could hear them. The > really cool thing is it comes with an FM system built in so I can use > it in the car and at crowded outtings where it has always been > difficult for him. The mic can be used at school during the day. > Hmm, sounds interesting. Who makes the AVR ImPacts? Do you know how I can find out more about them? Thanks for sharing. God bless. All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Thanks again, Theresa. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 > ... My AVT said that it is likely, with the way that technology is > advancing so fast, that Caleb will have more and more options open to > him, including possible implants, in the next five years. She assured me > that, being an oral child who is continuously working on listening and > relating to sound, and with support and therapy, he will probably have > no trouble adjusting to any one of the new technology options that might > come alone. > I'm just glad that we are living at a time when we have choices. And , Me too -- I am just so thankful for today's technology. Kids like yours who can hold out for future technologies are in a good situation. From my own experience, the one reason _not_ to wait is if you ever begin to become concerned about speech and voice quality. Today's implants already have the potential to give kids hearing-sounding voices, but that potential does diminish with age. My son got his implant when he was 4 years old after wearing hearing aids for 3 years, but not being able to hear well enough to learn to speak at all. Now, 4 years post-implant, his speech is highly intelligible. I might even score it a 10 on a scale of to 1 to 10 for his age. But, to me, his voice quality is not quite hearing- sounding yet (perhaps an 8-8.5). When I compare him to a girl I know who got her implant at exactly the same time (exact same technology), but at the age of 18 months, her speech and voice quality have already been hearing-sounding for at least a year. Now many people, including 's classroom teacher, audiologist, and teacher of the deaf, will insist his voice sounds natural, but to me there is a slight chirpiness and slight strain to it. also speaks a little more deliberately than his hearing friends. Based on past progress, I expect these qualities to be gone in another year or two. Our implant surgeon told us an interesting thing. He said that people's brains can actually lose the ability to discriminate similar sounds if they have not heard the distinctions before. The example he gave was of native speakers of a language that has an L sound but no R sound. I think it was Chinese that he was talking about, and for the sake of argument I will call it Chinese. He said that a Chinese person has difficulty pronouncing an R in their non- native language not because they can't articulate it but because the actually do not hear the difference between the L and R sounds! They sound the same to them! This was amazing to me -- I had thought it was just a matter of articulation and habit. Lydia Mom Colin, almost 11, hearing and (almost 8) deaf due to connexin-26 mutations Nucleus 24 Contour implant 1/01 at age 4 Digital super power aids from age 13 months to age 4 Total Communication to age 4, auditory-oral thereafter. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 --- You wrote: I was just reading about this the other day on a parenting website about development - It said, all babies are born with the ability to learn any language. However, the Japanese don't use the R sound in their language, so even though a Japanese baby can distinguish the R sound at birth, after about 6 months old, they are no longer able to distinguish it. How on earth they prove this I have no idea, but it sounds like what your specialist was talking about. --- end of quote --- I work at Dartmouth College and some of that research is headed up by -Ann Petitto who is also the chair of the Education Dept. She's an interesting person - she and many of her staff are fluent in sign language. Here's the link to all the research in the Education Dept: http://www.dartmouth.edu/~educ/Research.html At the bottom are other links to her research in particular. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 (you wrote)... Our implant surgeon told us an interesting thing. He said that people's brains can actually lose the ability to discriminate similar sounds if they have not heard the distinctions before. Hi Lydia, I was just reading about this the other day on a parenting website about development - It said, all babies are born with the ability to learn any language. However, the Japanese don't use the R sound in their language, so even though a Japanese baby can distinguish the R sound at birth, after about 6 months old, they are no longer able to distinguish it. How on earth they prove this I have no idea, but it sounds like what your specialist was talking about. Kind regards, Kerryn (Melbourne, Australia (, 3.11 but only for 6 more days!, mod; 1, hearing) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 (you wrote)... Our implant surgeon told us an interesting thing. He said that people's brains can actually lose the ability to discriminate similar sounds if they have not heard the distinctions before. Hi Lydia, I was just reading about this the other day on a parenting website about development - It said, all babies are born with the ability to learn any language. However, the Japanese don't use the R sound in their language, so even though a Japanese baby can distinguish the R sound at birth, after about 6 months old, they are no longer able to distinguish it. How on earth they prove this I have no idea, but it sounds like what your specialist was talking about. Kind regards, Kerryn (Melbourne, Australia (, 3.11 but only for 6 more days!, mod; 1, hearing) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Michele, Welcome back! Paola > Hi, I'm a former member of this group, fallen of the SBD wagon but > ready to really do it this time! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Michele, Welcome back! Paola > Hi, I'm a former member of this group, fallen of the SBD wagon but > ready to really do it this time! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Thank you, Paola! So far, Day 1 is going pretty well. :-) Michele -----Original Message-----From: South-Beach-Diet-Getting-It-Right [mailto:South-Beach-Diet-Getting-It-Right ]On Behalf Of PaolaSent: Wednesday, May 04, 2005 12:50 PMTo: South-Beach-Diet-Getting-It-Right Subject: Re: NewbieMichele,Welcome back!Paola Quote Link to comment Share on other sites More sharing options...
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