Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 Hi - Welcome to the group! My son was born March 22, 2002 with a left club foot that is corrected now (4 casts and tenonomy). He did have a tenonomy at 6 weeks old. It took 12 minutes and that includes putting a cast on after the heel cord nick. My son was actually put under for the procedure, but many doctors do the procedure right in their office like Dr.Ponseti. Are you seeing a certified Dr. Ponseti doctor? My son did fine and was in no pain at all (or didn't act like he had any pain) after the procedure. He just slept a lot that day due to the anestecia (sp???). Hope this helps! and (left club foot) > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: New to this group >Date: Wed, 11 Sep 2002 23:07:08 -0000 > >After doing some research on the internet, we came across this >group. Our daughter was born with bilateral clubfeet on July 20, >2002. We have been to the orthopedic doctor several times since >using the casting method. Tomorrow we go in to remove her casts and >the doctor had indicated last time that she made need to have her >tendons released. We are naturally concerned over any type of >surgery on our 2 month year old daughter. Does anyone have any input >on how this procedure is performed? > _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 Hi - Welcome to the group! My son was born March 22, 2002 with a left club foot that is corrected now (4 casts and tenonomy). He did have a tenonomy at 6 weeks old. It took 12 minutes and that includes putting a cast on after the heel cord nick. My son was actually put under for the procedure, but many doctors do the procedure right in their office like Dr.Ponseti. Are you seeing a certified Dr. Ponseti doctor? My son did fine and was in no pain at all (or didn't act like he had any pain) after the procedure. He just slept a lot that day due to the anestecia (sp???). Hope this helps! and (left club foot) > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: New to this group >Date: Wed, 11 Sep 2002 23:07:08 -0000 > >After doing some research on the internet, we came across this >group. Our daughter was born with bilateral clubfeet on July 20, >2002. We have been to the orthopedic doctor several times since >using the casting method. Tomorrow we go in to remove her casts and >the doctor had indicated last time that she made need to have her >tendons released. We are naturally concerned over any type of >surgery on our 2 month year old daughter. Does anyone have any input >on how this procedure is performed? > _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 Welcome to our group! There are a few different types of tenotomies that doctors can perform. Some include actually opening up the skin and doing a " z-lengthening " on the tendon, then stitching it back shut. The Ponseti method prescribes a more simple procedure that involves plunging the scalpel into the tendon and nicking it. The procedure does not involve any stitches, and can be done with just local anesthetic (though doctors new to the procedure often use general anesthesia to keep the baby still). Is your doctor using the Ponseti method? Could you tell us who your doctor is and where they're located? A majority of the children who are treated with the Ponseti method do need the tenotomy, and for most, it's not a problem at all. Usually most parents just use baby Tylenol or baby Motrin before and after the procedure. There is a minimal risk of infection. In an infant the tendon regenerates itself (as an adult, one's tendon will *not* do this). You could ask your doctor the details about the procedure ahead of time so that you're comfortable with making the decision. If you have any more questions or concerns, please feel free to ask, we're here to help! We've also got lots of photos and reference papers etc. in the Files and Photos links on the site for your viewing pleasure! Regards, & (3-16-00) left clubfoot, switched to Ponseti method at 4 mo. old http://ponseticlubfoot.freeservers.com/ > After doing some research on the internet, we came across this > group. Our daughter was born with bilateral clubfeet on July 20, > 2002. We have been to the orthopedic doctor several times since > using the casting method. Tomorrow we go in to remove her casts and > the doctor had indicated last time that she made need to have her > tendons released. We are naturally concerned over any type of > surgery on our 2 month year old daughter. Does anyone have any input > on how this procedure is performed? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 Resurfacing seems to be a MUCH better option - save as much bone as you can, less dislocations, longer expectancy for your age-group etc etc etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 Resurfacing seems to be a MUCH better option - save as much bone as you can, less dislocations, longer expectancy for your age-group etc etc etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 > > this " resurfacing " seems to be one of those options > > i would appreciate any input comparing all different proceedures > > is this proceedure less painful than others, what is the advantage > over a total hip replacement > > hope that this is not too childish of questions for you all, but i am > starting at ground zero as we used to say in the army > > any response is appreciated Hi Rich - welcome to the " club " ! I'm an active (once again!) 49 yr old with a resurfed L hip as of may of this year. I feel the biggest advantage of resurfacing is that they don't remove any bone - there's a ton of physiological reasons that this is better, but I won't overwhelm you with details at this point. Another advantage is the size of the femur component - larger is better! Less likely to dislocate, particularly for younger, active folks like us! I suppose the surgery for either procedure are about the same as far as pain and rehab goes - the scar for a resurf is larger since no bone is removed and the surgeon needs room to work. As major surgery goes, this seems to present less pain overall? And recovery seems to go easier when you are in fairly good shape before the surgery - don't put it off for too long! The biggest difficulty that we resurfers face is getting your insurance to pay for a device that is currently undergoing FDA trials. And as recent postings imply - insurance that in the past paid for the procedure, may now decide not to. The general concensus is to let your surgeon's office handle that for you. Activejoints.com has a list of the surgeons who are providing resurfacing in the US - be prepared to travel - not only for the surgery, but for mandatory followups (it's the price we pay for being part of the trials) Many folks on this website have traveled to Europe to get their hips fixed - England and Belgium have some truly fine surgeons. The resurfacing over there is commonly called a BHR - Birmingham Hip Resurfacing; and it's been available for over a decade? You have much research to do yet, but I feel that this is the best thing I've ever done for myself. It gave me back my life as it was " before pain " ! Best wishes, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 > > this " resurfacing " seems to be one of those options > > i would appreciate any input comparing all different proceedures > > is this proceedure less painful than others, what is the advantage > over a total hip replacement > > hope that this is not too childish of questions for you all, but i am > starting at ground zero as we used to say in the army > > any response is appreciated Hi Rich - welcome to the " club " ! I'm an active (once again!) 49 yr old with a resurfed L hip as of may of this year. I feel the biggest advantage of resurfacing is that they don't remove any bone - there's a ton of physiological reasons that this is better, but I won't overwhelm you with details at this point. Another advantage is the size of the femur component - larger is better! Less likely to dislocate, particularly for younger, active folks like us! I suppose the surgery for either procedure are about the same as far as pain and rehab goes - the scar for a resurf is larger since no bone is removed and the surgeon needs room to work. As major surgery goes, this seems to present less pain overall? And recovery seems to go easier when you are in fairly good shape before the surgery - don't put it off for too long! The biggest difficulty that we resurfers face is getting your insurance to pay for a device that is currently undergoing FDA trials. And as recent postings imply - insurance that in the past paid for the procedure, may now decide not to. The general concensus is to let your surgeon's office handle that for you. Activejoints.com has a list of the surgeons who are providing resurfacing in the US - be prepared to travel - not only for the surgery, but for mandatory followups (it's the price we pay for being part of the trials) Many folks on this website have traveled to Europe to get their hips fixed - England and Belgium have some truly fine surgeons. The resurfacing over there is commonly called a BHR - Birmingham Hip Resurfacing; and it's been available for over a decade? You have much research to do yet, but I feel that this is the best thing I've ever done for myself. It gave me back my life as it was " before pain " ! Best wishes, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 > > this " resurfacing " seems to be one of those options > > i would appreciate any input comparing all different proceedures > > is this proceedure less painful than others, what is the advantage > over a total hip replacement > > hope that this is not too childish of questions for you all, but i am > starting at ground zero as we used to say in the army > > any response is appreciated Hi Rich - welcome to the " club " ! I'm an active (once again!) 49 yr old with a resurfed L hip as of may of this year. I feel the biggest advantage of resurfacing is that they don't remove any bone - there's a ton of physiological reasons that this is better, but I won't overwhelm you with details at this point. Another advantage is the size of the femur component - larger is better! Less likely to dislocate, particularly for younger, active folks like us! I suppose the surgery for either procedure are about the same as far as pain and rehab goes - the scar for a resurf is larger since no bone is removed and the surgeon needs room to work. As major surgery goes, this seems to present less pain overall? And recovery seems to go easier when you are in fairly good shape before the surgery - don't put it off for too long! The biggest difficulty that we resurfers face is getting your insurance to pay for a device that is currently undergoing FDA trials. And as recent postings imply - insurance that in the past paid for the procedure, may now decide not to. The general concensus is to let your surgeon's office handle that for you. Activejoints.com has a list of the surgeons who are providing resurfacing in the US - be prepared to travel - not only for the surgery, but for mandatory followups (it's the price we pay for being part of the trials) Many folks on this website have traveled to Europe to get their hips fixed - England and Belgium have some truly fine surgeons. The resurfacing over there is commonly called a BHR - Birmingham Hip Resurfacing; and it's been available for over a decade? You have much research to do yet, but I feel that this is the best thing I've ever done for myself. It gave me back my life as it was " before pain " ! Best wishes, Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Hi Just to elaborate on the points made by Debs, the major problem for folks of your age requiring hip surgery was that THR op's would frequently require revision within, say 7 years. The revision is a more involved op than the original THR and can normally only be done twice. 46 + 7 + 7 = 60, then what? possibly a wheelchair. These figures are a generalisation. Thankfully, many THR's last much, much longer, even in active patients. (Some don't last as long, either). Some people manage to get more than two revisions out of one hip. Improved materials will, hopefully, mean that the average life of most THRs will improve. Unfortunately, you can't get over the fact that with a resurf. the thigh bone is still " loaded " correctly, which maintains bone density and strength, whereas with the THR it isn't. The losses of stress round the long stem of the THR femoral part cause porosity and weakness just where you need the bone to be strong. Although the current generation of metal-metal resufacing op's have only been going just over a decade, the number of problems have been so small and the logic behind the procedure is so neat, most of us resurfacees strongly believe that our ops will last for decades. And, if they do need revising, at worst you end up with your FIRST THR, perhaps 20 or 30 years delayed. There are hardly any restrictions on a resurfacees' activities after recovery, members of this group are:- running, (extreme)-cycling, horse-riding, surfing, practicing all kinds of martial arts, playing tennis, golf etc etc Visit 's website (Activejoints.com), if you haven't already. A good animated illustration of both THR(m-m) and Resurfacing operations can be found at: " www. grossortho. com/education. html " , (leaving out the spaces) Good luck with your research Terry > i am a 46 year old male > > a friend of my wife's told me that there are some alternatives to > getting a total hip replacement > > this " resurfacing " seems to be one of those options Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Hi Just to elaborate on the points made by Debs, the major problem for folks of your age requiring hip surgery was that THR op's would frequently require revision within, say 7 years. The revision is a more involved op than the original THR and can normally only be done twice. 46 + 7 + 7 = 60, then what? possibly a wheelchair. These figures are a generalisation. Thankfully, many THR's last much, much longer, even in active patients. (Some don't last as long, either). Some people manage to get more than two revisions out of one hip. Improved materials will, hopefully, mean that the average life of most THRs will improve. Unfortunately, you can't get over the fact that with a resurf. the thigh bone is still " loaded " correctly, which maintains bone density and strength, whereas with the THR it isn't. The losses of stress round the long stem of the THR femoral part cause porosity and weakness just where you need the bone to be strong. Although the current generation of metal-metal resufacing op's have only been going just over a decade, the number of problems have been so small and the logic behind the procedure is so neat, most of us resurfacees strongly believe that our ops will last for decades. And, if they do need revising, at worst you end up with your FIRST THR, perhaps 20 or 30 years delayed. There are hardly any restrictions on a resurfacees' activities after recovery, members of this group are:- running, (extreme)-cycling, horse-riding, surfing, practicing all kinds of martial arts, playing tennis, golf etc etc Visit 's website (Activejoints.com), if you haven't already. A good animated illustration of both THR(m-m) and Resurfacing operations can be found at: " www. grossortho. com/education. html " , (leaving out the spaces) Good luck with your research Terry > i am a 46 year old male > > a friend of my wife's told me that there are some alternatives to > getting a total hip replacement > > this " resurfacing " seems to be one of those options Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2002 Report Share Posted September 21, 2002 Hi Just to elaborate on the points made by Debs, the major problem for folks of your age requiring hip surgery was that THR op's would frequently require revision within, say 7 years. The revision is a more involved op than the original THR and can normally only be done twice. 46 + 7 + 7 = 60, then what? possibly a wheelchair. These figures are a generalisation. Thankfully, many THR's last much, much longer, even in active patients. (Some don't last as long, either). Some people manage to get more than two revisions out of one hip. Improved materials will, hopefully, mean that the average life of most THRs will improve. Unfortunately, you can't get over the fact that with a resurf. the thigh bone is still " loaded " correctly, which maintains bone density and strength, whereas with the THR it isn't. The losses of stress round the long stem of the THR femoral part cause porosity and weakness just where you need the bone to be strong. Although the current generation of metal-metal resufacing op's have only been going just over a decade, the number of problems have been so small and the logic behind the procedure is so neat, most of us resurfacees strongly believe that our ops will last for decades. And, if they do need revising, at worst you end up with your FIRST THR, perhaps 20 or 30 years delayed. There are hardly any restrictions on a resurfacees' activities after recovery, members of this group are:- running, (extreme)-cycling, horse-riding, surfing, practicing all kinds of martial arts, playing tennis, golf etc etc Visit 's website (Activejoints.com), if you haven't already. A good animated illustration of both THR(m-m) and Resurfacing operations can be found at: " www. grossortho. com/education. html " , (leaving out the spaces) Good luck with your research Terry > i am a 46 year old male > > a friend of my wife's told me that there are some alternatives to > getting a total hip replacement > > this " resurfacing " seems to be one of those options Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 > > > I suppose the surgery for either procedure are about the same as far > as pain and rehab goes - the scar for a resurf is larger since no > bone is removed and the surgeon needs room to work. > > Best wishes, Deb To Deb and Rich, There is no need for a large scar if you go to Dr. Gross in SC. I had bilat resurfacing last January and both scars are about 5 inches long at the most. The size of the head is 48mm and the acetabular cup is 54 mm. I'm happy as a clam... Trudy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 > > > I suppose the surgery for either procedure are about the same as far > as pain and rehab goes - the scar for a resurf is larger since no > bone is removed and the surgeon needs room to work. > > Best wishes, Deb To Deb and Rich, There is no need for a large scar if you go to Dr. Gross in SC. I had bilat resurfacing last January and both scars are about 5 inches long at the most. The size of the head is 48mm and the acetabular cup is 54 mm. I'm happy as a clam... Trudy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 > > > I suppose the surgery for either procedure are about the same as far > as pain and rehab goes - the scar for a resurf is larger since no > bone is removed and the surgeon needs room to work. > > Best wishes, Deb To Deb and Rich, There is no need for a large scar if you go to Dr. Gross in SC. I had bilat resurfacing last January and both scars are about 5 inches long at the most. The size of the head is 48mm and the acetabular cup is 54 mm. I'm happy as a clam... Trudy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 Trudy, It is important to know and explain more about your scar (if only for informational purposes) to the new folks. I think we are all happy with resurf surgeons for our final result, large or small scar. I had a large 12 inch incision but my surgeon (DeSmet) did not cut muscles and thus I was able to walk without crutches at 7 1/2 weeks with bilateral! I would rather have the larger scar and a faster recovery than cut muscles. My scar has healed beautifully after 10 weeks and is hardly noticeable in the upper thigh area. The gluteal area is much more prominent and will take longer to blend in. Saeed Bilateral resurfs July 2, 2002 , Ghent, Belgium, now stroking tennis and golf balls at 10+ weeks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 Trudy, It is important to know and explain more about your scar (if only for informational purposes) to the new folks. I think we are all happy with resurf surgeons for our final result, large or small scar. I had a large 12 inch incision but my surgeon (DeSmet) did not cut muscles and thus I was able to walk without crutches at 7 1/2 weeks with bilateral! I would rather have the larger scar and a faster recovery than cut muscles. My scar has healed beautifully after 10 weeks and is hardly noticeable in the upper thigh area. The gluteal area is much more prominent and will take longer to blend in. Saeed Bilateral resurfs July 2, 2002 , Ghent, Belgium, now stroking tennis and golf balls at 10+ weeks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 Trudy, It is important to know and explain more about your scar (if only for informational purposes) to the new folks. I think we are all happy with resurf surgeons for our final result, large or small scar. I had a large 12 inch incision but my surgeon (DeSmet) did not cut muscles and thus I was able to walk without crutches at 7 1/2 weeks with bilateral! I would rather have the larger scar and a faster recovery than cut muscles. My scar has healed beautifully after 10 weeks and is hardly noticeable in the upper thigh area. The gluteal area is much more prominent and will take longer to blend in. Saeed Bilateral resurfs July 2, 2002 , Ghent, Belgium, now stroking tennis and golf balls at 10+ weeks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 > Trudy, > It is important to know and explain more about your scar (if only for > informational purposes) to the new folks. I think we are all happy with > resurf surgeons for our final result, large or small scar. > I had a large 12 inch incision but my surgeon (DeSmet) did not cut muscles > and thus I was able to walk without crutches at 7 1/2 weeks with bilateral! > I would rather have the larger scar and a faster recovery than cut muscles. > My scar has healed beautifully after 10 weeks and is hardly noticeable in the > upper thigh area. The gluteal area is much more prominent and will take > longer to blend in. > > Saeed > Bilateral resurfs July 2, 2002 , Ghent, Belgium, now stroking tennis and golf > balls at 10+ weeks! Saeed, I can only tell you what you already know about my scar. I can also add that out recoveries sound about the same. I was doing 17 minute miles, walking, at 7 1/2 weeks. I clocked myself walking a 1/2 mile bridge which started out with a fairly good incline, leveled off then went to an easier descent on the other side. I also used nothing ie crutches, cane etc. at that time. The first time I did it I carried my cane just in case I got tired and needed it. Didn't happen. I remember this well because it was such a beautiful day and though I live in the south there was a constant breeze over the river I was walking across. Sure beats the treadmill. I am also bilateral. Trudy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 > > Trudy, > > It is important to know and explain more about your scar (if only > for > > informational purposes) to the new folks. I think we are all happy > with > > resurf surgeons for our final result, large or small scar. > > I had a large 12 inch incision but my surgeon (DeSmet) did not cut > muscles > > and thus I was able to walk without crutches at 7 1/2 weeks with > bilateral! > > I would rather have the larger scar and a faster recovery than cut > muscles. > > My scar has healed beautifully after 10 weeks and is hardly > noticeable in the > > upper thigh area. The gluteal area is much more prominent and will > take > > longer to blend in. > > > > Saeed > > Bilateral resurfs July 2, 2002 , Ghent, Belgium, now stroking > tennis and golf > > balls at 10+ weeks! > > > Saeed, > I can only tell you what you already know about my scar. I can also > add that out recoveries sound about the same. I was doing 17 minute > miles, walking, at 7 1/2 weeks. I clocked myself walking a 1/2 mile > bridge which started out with a fairly good incline, leveled off then > went to an easier descent on the other side. I also used nothing ie > crutches, cane etc. at that time. The first time I did it I carried > my cane just in case I got tired and needed it. Didn't happen. I > remember this well because it was such a beautiful day and though I > live in the south there was a constant breeze over the river I was > walking across. Sure beats the treadmill. I am also bilateral. > Trudy Personally, you two: I find you both amazing!!! Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 Welcome, - I've been figuring this whole BPD thing out for several months now, and if it helps any, I've found that I am having to reassess a LOT of things I automatically took for granted - things I'd been taught about myself my whole life. Since my mom (or, " not-a-mom " - Nada) gave me a very warped, twisted self-image, I was operating with " bad data " all this time. I've had to re-think my own self-image and my place in the world, and that means I'm questioning a lot of other stuff as well. It's taking some time - a lot of it is just seeking reality checks here and there. But it is WONDERFUL to be able to set aside all that negative script about yourself and start telling yourself that you ARE worthy of self-care, mental health, and good habits,and that you don't exist just to meet the needs of other people. It is making a whole world of difference. Of course, it's also causing conflict sometimes - I've found that I'm less willing to take put-downs and bad attitude from my husband and son, or from strangers who are cranky at the grocery store, etc. I'm less willing to stand by while somebody cuts the line in front of me. I'm not confrontational, but I assert myself more these days. It may be a temporary phenomenon, but I'm a lot happier about myself, and I have a lot more hope for my future. Maybe it's not grounded in reality (the everyday problems are still there!) but the days sure are more pleasant. Give yourself some time as you read and understand more about this. It's going to make work for you, but a lot of us here are working on it together. The reality checks are very valuable - every day, somebody writes in with a " is it just me, or... " question - and there are friendly people here who will support you in this process. > > > > Hi all: > > > > I am new to this group, was referred by somebody who thought this > > might be a good place for me to post. My mother was a borderline - > > she passed away a year and a half ago. I am trying to find some > > understanding of my mother. The biggest problem I have is with my > > self esteem due to the messages she gave me; " you're fat, stupid and > > nobody could love you. " While I can understand her disorder > > intellectually, I have a hard time coming to terms with how somebody > > else could love me if my own mother didn't. > > > > It seems I could find some peace in dealing with this even though my > > mother is gone. I find it interferes with my relationships in life. > > If anyone out there can offer some insight, I would appreciate it. > > > > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.