Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 Sherrie ! I am right there with you on this ! It is not usually as cold as the last few days here in Virginia, and I have been miserable. I haven't yet wrapped even ONE Christmas present, and I usually have everything done just after Thanksgiving so that I can enjoy the holiday. The only thing I have found that helps me a little in the cold is to sleep really warmly. This doesn't mean that I have the heat way up because then my sinuses are dry and I'm miserable. I have been going to bed with 2 warm fleecy nightees, and 2 pairs of socks. I found that it is important not to get stiff during the night in order not to be terribly stiff in the morning. I hope this strategy helps you a little ! Best wishes, Jane > > does any one have any ideas on how to help with the cold weather i > went to the doctors today he gave me a shot for my arthirits said it > would help with some of the pain i am haveing i just hope it works > as the temp is going to get own to 8 tonigth and stay there for a > few says anything can help sherrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 Jane's so right about sleeping warmly - I use an electric blanket and keep the heat at 67. I have problems with my sinuses too and use this little ain ionizer/humidifier in the evenings. Can you imagine if we had lived before the invention of all these great little gadgets? Jill > > > > does any one have any ideas on how to help with the cold weather i > > went to the doctors today he gave me a shot for my arthirits said > it > > would help with some of the pain i am haveing i just hope it works > > as the temp is going to get own to 8 tonigth and stay there for a > > few says anything can help sherrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 Hi Sherrie, Best advice I can give you is to invest in some thermal gloves, hat and scarf , the normal type don't keep me warm enough. Thinsulate is the brand I have and they are great. I keep a rug on the sofa too just to curl up with while watcbing tv...I like to be cosy lol. hugs, Lynne "What lies behind us and what lies before us are tiny matters, Compared to what lies within us." '' If we lived as wolves do, the planet would be a lot cleaner place! '' -------Original Message------- From: scorn720 Date: 12/22/04 21:21:08 Rheumatoid Arthritis Subject: cold weather does any one have any ideas on how to help with the cold weather i went to the doctors today he gave me a shot for my arthirits said it would help with some of the pain i am haveing i just hope it works as the temp is going to get own to 8 tonigth and stay there for a few says anything can help sherrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 I have one of the sunbeam electric lap throws, too. It is a miniature electric blanket, just the right size for snuggling under to watch tv or read. I use it all winter long (under it right now...laptop, wireless network, recliner, electric lapthrow...heaven. Sharon > > does any one have any ideas on how to help with the cold weather i > went to the doctors today he gave me a shot for my arthirits said it > would help with some of the pain i am haveing i just hope it works > as the temp is going to get own to 8 tonigth and stay there for a > few says anything can help sherrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2007 Report Share Posted September 21, 2007 Hi all, I seem to be having some trouble adjusting to the recent cold weather we have been experiencing here in Michigan. Whenever it gets chilly, I get severe pain in my arms and legs. So far nothing has helped much with the pain. I have been taking a combination of Motrin 800 mg and Tylenol extra strength 500 mg each and I take two of those. But they dont seem to help much. My left arm hurts the worst, I can hardly move it, it hurts so bad. I don't have problems like this when it's warm except that I get twice as tired when it's hot. I want to know if this is a CMT thing or not. Is this a common thing? Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2007 Report Share Posted September 21, 2007 Jane, Go back in the posts this week to my response to about 'cold and heat' and weather changes and changes in the barometric pressure. Yes, cold weather can affect us all, just like hot weather can; perhaps those with joint problems also 'feel' more of this. Or because our 'sensory nerves' pick up on these changes quickly. A couple of ideas: Talk to your doc about prescription Naprosyn. Second, in cold, stay warm; here in California (yes we do get cold weather) both Pacific Gas and Electric and Southern California Gas Company offer extra heat to those who need it due to medical conditions, so you might want to look into calling your heat utilities and asking about something like this.(I think it is something like 'medical baseline allowance' here) 's CosySoles for the feet are a great idea, the hand mitts too. You might also want to try a heated mattress pad like the one I mentioned to . At my neighborhood pharmacy I also found " Magic Bags " - pretty designs with rice inside, heat in the microwave for 2 minutes and place on an area - I put this on my neck especially after a very long day, it soothes muscles and nerves at the same time and is very comforting. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2007 Report Share Posted September 21, 2007 Thanks Gretchen thats some good advice I'll check into it. But how can I check into those Cozysoles? They sound great. But do they make them in child sizes? Because my feet are small like a child's shoe size 2-3. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 Hi Jane, This sounds typical for the cold weather. If taking Motrin and Tylenol isn't helping, try gettting more Vitamin C in your system, orange juice, vitamin C tablets and/or Emergen-C packets you mix with water. Also, lots of warm soup to keep the body warm. Heat pads on the arm might help also. I'm been under the weather, but hope to get better. The Dr. put me on insulin a few weeks back and my body isn't taking to it too well along with all the prescription meds he gave me, so I'm taking it one day at a time. Hope everybody is doing well. Debbie from MO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 Hello Jane, You can check out CosySoles slippers at www.cosysoles.com We do make a child's size X-Small that I think would fit. I don't think this size is available on the website but if you send an email to info@cosysoles they can help you. Hope this helps. Warm wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2009 Report Share Posted August 30, 2009 Hi, I live in MA near Boston.  The winters are very difficult here.  Th snow makes wheel chair difficult, and my hands and feet are always cold.  If I could, I would stay in California!  Lois     Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Hi Lois, Anywhere south of Statesville, NC is good CMT country (except the mountains.) If you can afford it Az and Fl are great CMT states as they cater to the uh. . . aged and Infirm. But really most places in the south get little snow and usually at least get into the high 40s during the day, summer is another matter. Ideally the snowbird thing is probably best for CMT. Ed From: Lois Gallo <loisgallo@...> Subject: Re: cold weather Date: Sunday, August 30, 2009, 1:57 PM  Hi, I live in MA near Boston.  The winters are very difficult here.  Th snow makes wheel chair difficult, and my hands and feet are always cold.  If I could, I would stay in California!  Lois     Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 in my opinion AZ is both a wonderful place and a terrible place for CMT'ers.winters are beautiful and comfortable outside.Summer in AZ is way too hot here.3 minutes outside in the heat my arms and legs want to stop working properly.I stay inside mostly and am holding my breath for winter. Geoff in PHX AZ Re: cold weather Date: Sunday, August 30, 2009, 1:57 PM Hi, I live in MA near Boston. The winters are very difficult here. Th snow makes wheel chair difficult, and my hands and feet are always cold. If I could, I would stay in California! Lois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 I live in England and have found that my CMT gets alot worse when the weather is cold. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2009 Report Share Posted December 19, 2009 The cold weather in Port Elgin, Ontario (Canada) really causes severe pain in my fingers & Toes. My younger brother who lives in Halifax, Nova Scotia (Canada) also finds the cold weather causes him a lot more pain in his feet and hands in the winter months. It is minus 6 degrees celius this AM. That's about 22 degrees F. Regards........... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2009 Report Share Posted December 19, 2009 It is funny, I have been reading all these cold weather posts. My son CMT 2 is really bothered by heat and really feels hotter than it is. But now that it is cold out he doesn't seem to mind the cold as much. Just seems like he runs hot. I think he actually feels better when it is cooler out. Not sure how the extreme cold will effect him though. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2010 Report Share Posted August 7, 2010 In my introduction a few days ago, I somehow neglected to mention the biggest " Aha! " moment after I learned I had CMT a couple of years ago. Seems that many CMT sufferers have an aversion to cold. Imagine that! I KNEW there was a reason I didn't like going outside at night. Another mystery solved. Since infancy, I have detested cold. Growing up in Santa Barbara, California, where the average annual temperature is something like a consistent 75 degrees, you'd think that I'd be happy. Uh, uh. It is WAY too cold here--particularly at night, when in the dead of winter it can sometimes get down to a bone-chilling 45 degrees. To put this in perspective, there are some nights when I actually have to wear a sweater when I'm out on my motorcycle. My hands then get numb to the point that I can barely use them--even when wearing gloves. Where is global warming now that we need it? Ask me why I never go swimming in the ocean. Nope--I'm not afraid of sharks. The ocean is FREEZING, and there's no way in the world I'm going to set foot in it. My idea of a good time is Phoenix in July. I really, REALLY don't like the cold. My friends and family all thought I was just being a wuss--until I educated them about the effects of cold weather on CMT patients. I also understand that heat similarly affects some CMT patients the way cold affects me. You really can't win for losing, can you? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 I hate the cold weather as well. In a message dated 8/7/2010 9:02:04 A.M. Pacific Daylight Time, malamutesaloon@... writes: In my introduction a few days ago, I somehow neglected to mention the biggest " Aha! " moment after I learned I had CMT a couple of years ago. Seems that many CMT sufferers have an aversion to cold. Imagine that! I KNEW there was a reason I didn't like going outside at night. Another mystery solved. Since infancy, I have detested cold. Growing up in Santa Barbara, California, where the average annual temperature is something like a consistent 75 degrees, you'd think that I'd be happy. Uh, uh. It is WAY too cold here--particularly at night, when in the dead of winter it can sometimes get down to a bone-chilling 45 degrees. To put this in perspective, there are some nights when I actually have to wear a sweater when I'm out on my motorcycle. My hands then get numb to the point that I can barely use them--even when wearing gloves. Where is global warming now that we need it? Ask me why I never go swimming in the ocean. Nope--I'm not afraid of sharks. The ocean is FREEZING, and there's no way in the world I'm going to set foot in it. My idea of a good time is Phoenix in July. I really, REALLY don't like the cold. My friends and family all thought I was just being a wuss--until I educated them about the effects of cold weather on CMT patients. I also understand that heat similarly affects some CMT patients the way cold affects me. You really can't win for losing, can you? [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
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