Re: Stem cell research and a question

Sent: Saturday, April 09, 2005 5:00 PM

Subject: Stem cell research and a question

I just recently heard about the woman who was cured of her RA by using her siblings stem cells. Has anyone else heard of this and have you heard anything more about it? This is exciting news and I want to find out how to sign up, know what I mean?

kins

April 11, 2005

Thank you (gentle smiles).

I'd love to see where you've been reading - would you share?

kins

-------Original Message-------

From: Harold Van Tuyl

Date: 04/10/05 13:23:04

Subject: Re: Stem cell research and a question

I haven't really tried to study this but from the little I have read I think it is still experimental, expensive and dangerous both to the donor and the recipient. That's just an impression I have from casual reading. God bless.

----- Original Message -----

From: kins, learning to love my 40's

Sent: Saturday, April 09, 2005 5:00 PM

Subject: Stem cell research and a question

http://www.indiandoctors.com/disease_focus/arthritis.htm

I just recently heard about the woman who was cured of her RA by using her siblings stem cells. Has anyone else heard of this and have you heard anything more about it? This is exciting news and I want to find out how to sign up, know what I mean?

kins

April 11, 2005

I have just done casual reading to come to my conclusions but since you asked I looked on the web.

"Stem cells are the early versions of mature, specialized blood cells. Investigators are reporting that transplantation of donated hemopoietic stem cells, which mature into various blood cells, has induced remission in a few children with severe juvenile rheumatoid arthritis. The procedure can be dangerous and more studies are needed to determine risks and benefits for RA patients."

I didn't look extensively but I think I also saw that there was danger to the donor. I could be mistaken. God bless.

----- Original Message -----

From: kins, learning to love my 40's

Sent: Sunday, April 10, 2005 5:01 PM

Subject: Re: Stem cell research and a question

Thank you (gentle smiles).

I'd love to see where you've been reading - would you share?

kins

-------Original Message-------

From: Harold Van Tuyl

Date: 04/10/05 13:23:04

Subject: Re: Stem cell research and a question

I haven't really tried to study this but from the little I have read I think it is still experimental, expensive and dangerous both to the donor and the recipient. That's just an impression I have from casual reading. God bless.

----- Original Message -----

From: kins, learning to love my 40's

Sent: Saturday, April 09, 2005 5:00 PM

Subject: Stem cell research and a question

I just recently heard about the woman who was cured of her RA by using her siblings stem cells. Has anyone else heard of this and have you heard anything more about it? This is exciting news and I want to find out how to sign up, know what I mean?

kins

April 11, 2005

There is a specialist in Vancouver (British Columbia) that my husband met with (unrelated business) who spoke to him about this treatment that he was doing where he cleansed the patients blood...or something to that effect. He was telling my husband that he had amazing results. I of course contacted him but he suggested that since I was doing so well with the program I was doing at this time I was probably better off just to remain with what I was doing as this was fairly new and considered "last resort" at this time........I wonder if this is one what he was talking about.

Dorey

----- Original Message -----

From: Harold Van Tuyl

http://www.indiandoctors.com/disease_focus/arthritis.htm

Sent: Sunday, April 10, 2005 10:00 PM

Subject: Re: Stem cell research and a question

I have just done casual reading to come to my conclusions but since you asked I looked on the web.

"Stem cells are the early versions of mature, specialized blood cells. Investigators are reporting that transplantation of donated hemopoietic stem cells, which mature into various blood cells, has induced remission in a few children with severe juvenile rheumatoid arthritis. The procedure can be dangerous and more studies are needed to determine risks and benefits for RA patients."

I didn't look extensively but I think I also saw that there was danger to the donor. I could be mistaken. God bless.

----- Original Message -----

From: kins, learning to love my 40's

Sent: Sunday, April 10, 2005 5:01 PM

Subject: Re: Stem cell research and a question

Thank you (gentle smiles).

I'd love to see where you've been reading - would you share?

kins

-------Original Message-------

From: Harold Van Tuyl

Date: 04/10/05 13:23:04

Subject: Re: Stem cell research and a question

I haven't really tried to study this but from the little I have read I think it is still experimental, expensive and dangerous both to the donor and the recipient. That's just an impression I have from casual reading. God bless.

----- Original Message -----

From: kins, learning to love my 40's

Sent: Saturday, April 09, 2005 5:00 PM

Subject: Stem cell research and a question

I just recently heard about the woman who was cured of her RA by using her siblings stem cells. Has anyone else heard of this and have you heard anything more about it? This is exciting news and I want to find out how to sign up, know what I mean?

kins

April 11, 2005

I dont know if there's more than one hospital doing this study, but I definitely want to learn more about it. The only thing that concerns me is that they used a siblings stem cells. If it has to be a sibling, I have 3 older sisters, but they're MUCH older than I am and I sure wouldn't ask them to do anything that would hurt them just so that I could get well, you know?

kins

-------Original Message-------

From: Dorey

Date: 04/11/05 00:32:37

Subject: Re: Stem cell research and a question

There is a specialist in Vancouver (British Columbia) that my husband met with (unrelated business) who spoke to him about this treatment that he was doing where he cleansed the patients blood...or something to that effect. He was telling my husband that he had amazing results. I of course contacted him but he suggested that since I was doing so well with the program I was doing at this time I was probably better off just to remain with what I was doing as this was fairly new and considered "last resort" at this time........I wonder if this is one what he was talking about.

Dorey

----- Original Message -----

From: Harold Van Tuyl

http://www.indiandoctors.com/disease_focus/arthritis.htm

Sent: Sunday, April 10, 2005 10:00 PM

Subject: Re: Stem cell research and a question

I have just done casual reading to come to my conclusions but since you asked I looked on the web.

"Stem cells are the early versions of mature, specialized blood cells. Investigators are reporting that transplantation of donated hemopoietic stem cells, which mature into various blood cells, has induced remission in a few children with severe juvenile rheumatoid arthritis. The procedure can be dangerous and more studies are needed to determine risks and benefits for RA patients."

I didn't look extensively but I think I also saw that there was danger to the donor. I could be mistaken. God bless.

----- Original Message -----

From: kins, learning to love my 40's

Sent: Sunday, April 10, 2005 5:01 PM

Subject: Re: Stem cell research and a question

Thank you (gentle smiles).

I'd love to see where you've been reading - would you share?

kins

-------Original Message-------

From: Harold Van Tuyl

Date: 04/10/05 13:23:04

Subject: Re: Stem cell research and a question

I haven't really tried to study this but from the little I have read I think it is still experimental, expensive and dangerous both to the donor and the recipient. That's just an impression I have from casual reading. God bless.

----- Original Message -----

From: kins, learning to love my 40's

Sent: Saturday, April 09, 2005 5:00 PM

Subject: Stem cell research and a question

I just recently heard about the woman who was cured of her RA by using her siblings stem cells. Has anyone else heard of this and have you heard anything more about it? This is exciting news and I want to find out how to sign up, know what I mean?

kins

April 11, 2005

Thank you - very much (smiles).

-------Original Message-------

From: Harold Van Tuyl

Date: 04/11/05 00:00:58

http://www.indiandoctors.com/disease_focus/arthritis.htm

Subject: Re: Stem cell research and a question

I have just done casual reading to come to my conclusions but since you asked I looked on the web.

"Stem cells are the early versions of mature, specialized blood cells. Investigators are reporting that transplantation of donated hemopoietic stem cells, which mature into various blood cells, has induced remission in a few children with severe juvenile rheumatoid arthritis. The procedure can be dangerous and more studies are needed to determine risks and benefits for RA patients."

I didn't look extensively but I think I also saw that there was danger to the donor. I could be mistaken. God bless.

----- Original Message -----

From: kins, learning to love my 40's

Sent: Sunday, April 10, 2005 5:01 PM

Subject: Re: Stem cell research and a question

Thank you (gentle smiles).

I'd love to see where you've been reading - would you share?

kins

-------Original Message-------

From: Harold Van Tuyl

Date: 04/10/05 13:23:04

Subject: Re: Stem cell research and a question

I haven't really tried to study this but from the little I have read I think it is still experimental, expensive and dangerous both to the donor and the recipient. That's just an impression I have from casual reading. God bless.

----- Original Message -----

From: kins, learning to love my 40's

Sent: Saturday, April 09, 2005 5:00 PM

Subject: Stem cell research and a question

I just recently heard about the woman who was cured of her RA by using her siblings stem cells. Has anyone else heard of this and have you heard anything more about it? This is exciting news and I want to find out how to sign up, know what I mean?

kins

April 11, 2005

I think is referring to the Prosorba column that has had limited success and some failures.

----- Original Message -----

From: Dorey

Sent: Sunday, April 10, 2005 10:32 PM

Subject: Re: Stem cell research and a question

There is a specialist in Vancouver (British Columbia) that my husband met with (unrelated business) who spoke to him about this treatment that he was doing where he cleansed the patients blood...or something to that effect. He was telling my husband that he had amazing results. I of course contacted him but he suggested that since I was doing so well with the program I was doing at this time I was probably better off just to remain with what I was doing as this was fairly new and considered "last resort" at this time........I wonder if this is one what he was talking about.

Dorey

----- Original Message -----

From: Harold Van Tuyl

http://www.indiandoctors.com/disease_focus/arthritis.htm

Sent: Sunday, April 10, 2005 10:00 PM

Subject: Re: Stem cell research and a question

I have just done casual reading to come to my conclusions but since you asked I looked on the web.

"Stem cells are the early versions of mature, specialized blood cells. Investigators are reporting that transplantation of donated hemopoietic stem cells, which mature into various blood cells, has induced remission in a few children with severe juvenile rheumatoid arthritis. The procedure can be dangerous and more studies are needed to determine risks and benefits for RA patients."

I didn't look extensively but I think I also saw that there was danger to the donor. I could be mistaken. God bless.

----- Original Message -----

From: kins, learning to love my 40's

Sent: Sunday, April 10, 2005 5:01 PM

Subject: Re: Stem cell research and a question

Thank you (gentle smiles).

I'd love to see where you've been reading - would you share?

kins

-------Original Message-------

From: Harold Van Tuyl

Date: 04/10/05 13:23:04

Subject: Re: Stem cell research and a question

I haven't really tried to study this but from the little I have read I think it is still experimental, expensive and dangerous both to the donor and the recipient. That's just an impression I have from casual reading. God bless.

----- Original Message -----

From: kins, learning to love my 40's

Sent: Saturday, April 09, 2005 5:00 PM

Subject: Stem cell research and a question

I just recently heard about the woman who was cured of her RA by using her siblings stem cells. Has anyone else heard of this and have you heard anything more about it? This is exciting news and I want to find out how to sign up, know what I mean?

kins

April 11, 2005

Yes, that sounds right........but this doctor claimed he had huge success......hmmmmmmmm

----- Original Message -----

From: Harold Van Tuyl

Sent: Monday, April 11, 2005 10:23 AM

Subject: Re: Stem cell research and a question

I think is referring to the Prosorba column that has had limited success and some failures.

----- Original Message -----

From: Dorey

Sent: Sunday, April 10, 2005 10:32 PM

Subject: Re: Stem cell research and a question

There is a specialist in Vancouver (British Columbia) that my husband met with (unrelated business) who spoke to him about this treatment that he was doing where he cleansed the patients blood...or something to that effect. He was telling my husband that he had amazing results. I of course contacted him but he suggested that since I was doing so well with the program I was doing at this time I was probably better off just to remain with what I was doing as this was fairly new and considered "last resort" at this time........I wonder if this is one what he was talking about.

Dorey

----- Original Message -----

From: Harold Van Tuyl

http://www.indiandoctors.com/disease_focus/arthritis.htm

Sent: Sunday, April 10, 2005 10:00 PM

Subject: Re: Stem cell research and a question

I have just done casual reading to come to my conclusions but since you asked I looked on the web.

"Stem cells are the early versions of mature, specialized blood cells. Investigators are reporting that transplantation of donated hemopoietic stem cells, which mature into various blood cells, has induced remission in a few children with severe juvenile rheumatoid arthritis. The procedure can be dangerous and more studies are needed to determine risks and benefits for RA patients."

I didn't look extensively but I think I also saw that there was danger to the donor. I could be mistaken. God bless.

----- Original Message -----

From: kins, learning to love my 40's

Sent: Sunday, April 10, 2005 5:01 PM

Subject: Re: Stem cell research and a question

Thank you (gentle smiles).

I'd love to see where you've been reading - would you share?

kins

-------Original Message-------

From: Harold Van Tuyl

Date: 04/10/05 13:23:04

Subject: Re: Stem cell research and a question

I haven't really tried to study this but from the little I have read I think it is still experimental, expensive and dangerous both to the donor and the recipient. That's just an impression I have from casual reading. God bless.

----- Original Message -----

From: kins, learning to love my 40's

Sent: Saturday, April 09, 2005 5:00 PM

Subject: Stem cell research and a question

I just recently heard about the woman who was cured of her RA by using her siblings stem cells. Has anyone else heard of this and have you heard anything more about it? This is exciting news and I want to find out how to sign up, know what I mean?

kins

July 11, 2006

-You guys are referring to a different treatment and NOT Prosroba.

Prosorba was approved by the FDA in the late 90's and the

only " donor " is yourself. This has nothing to do with stem stells.

Again, this is being confused with something else.

The Prosorba column removes approximately 1 gram of immunoglobulin G

(IgG) and IgG circulating immune complexes (antigen/antibody

complexes). Immune Complexes, in a disease state such as Rheumatoid

Arthritis, are small and not easily recognized by the body's normal

phagocytic removal process and therefore allows their deposition in

tissues causing chronic inflammation and release of autoantibody.

Protein A has an affinity for selectively removing these small immune

complexes that remain bound in the column. There is also some

thought that there is a modulation of some of these immune complexes

in the column to larger sizes that are sent back to the patient

during treatment. These larger immune complexes are more easily

recognized by one's immune system and are destroyed in the normal way.

Protein A is covalently (immobilized) bound to the silica (sand)

matrix in the column and does not go to the patient. If there is any

leeching of protein A is thought to be in nanograms.

The Prosorba column is a non-immunosuppressive non-drug therapy.

The most common side effects to Prosorba therapy are generally flu-

like symptoms that are transient, manageable and may occur 12 -24

hours post treatment. Joint pain/swelling may also occur, usually

after 2 or 3 treatments and is manageable by increasing one's pain

medication. It is thought that when a patient does experience an

exacerbation of joint pain/swelling that he/she may be responding to

the treatment. This is of course different for each patient. The

joint pain/swelling usually subsides as the patient gets further on

in their treatment regimen.

My mom is doing really well on it and it isn't much differnt of a

treatment than when she had Remicade except this isn't a drug.

-- In Rheumatoid Arthritis , Dorey <ddorey@...>

wrote:

>

> Yes, that sounds right........but this doctor claimed he had huge

success......hmmmmmmmm

>

> ----- Original Message -----

> From: Harold Van Tuyl

> Sent: Monday, April 11, 2005 10:23 AM

> Subject: Re: Stem cell research and a

question

>

> I think is referring to the Prosorba column that has had

limited success and some failures.

> ----- Original Message -----

> From: Dorey

> www.LivingWithRheumatoidARthritis.com

> Sent: Sunday, April 10, 2005 10:32 PM

> Subject: Re: Stem cell research and a

question

>

> There is a specialist in Vancouver (British Columbia) that my

husband met with (unrelated business) who spoke to him about this

treatment that he was doing where he cleansed the patients blood...or

something to that effect. He was telling my husband that he had

amazing results. I of course contacted him but he suggested that

since I was doing so well with the program I was doing at this time I

was probably better off just to remain with what I was doing as this

was fairly new and considered " last resort " at this time........I

wonder if this is one what he was talking about.

>

> Dorey

> ----- Original Message -----

> From: Harold Van Tuyl

> http://www.indiandoctors.com/disease_focus/arthritis.htm

> Sent: Sunday, April 10, 2005 10:00 PM

> Subject: Re: Stem cell research and a

question

>

> I have just done casual reading to come to my conclusions but

since you asked I looked on the web.

> " Stem cells are the early versions of mature, specialized

blood cells. Investigators are reporting that transplantation of

donated hemopoietic stem cells, which mature into various blood

cells, has induced remission in a few children with severe juvenile

rheumatoid arthritis. The procedure can be dangerous and more studies

are needed to determine risks and benefits for RA patients. "

>

> I didn't look extensively but I think I also saw that there

was danger to the donor. I could be mistaken. God bless.

> ----- Original Message -----

> From: kins, learning to love my 40's

> Sent: Sunday, April 10, 2005 5:01 PM

> Subject: Re: Stem cell research and

a question

>

> Thank you (gentle smiles).

>

> I'd love to see where you've been reading - would you

share?

>

> kins

>

> -------Original Message-------

>

> From: Harold Van Tuyl

> Date: 04/10/05 13:23:04

> Subject: Re: Stem cell

research and a question

>

> I haven't really tried to study this but from the

little I have read I think it is still experimental, expensive and

dangerous both to the donor and the recipient. That's just an

impression I have from casual reading. God bless.

> ----- Original Message -----

> From: kins, learning to love my 40's