Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 In no way are you being a whiner. How can you find ways to manage your seizures if you don't get absolutely obscessed with them-in detail? When you realized your breathing had changed, did you try any conscious slow deep breathing to bring it back to normal? This is a very effective stratagy for stopping a seizure and learning to control them. It's really good that your wife could recognize what was going on also. Can you and she work out a plan on what to do that will help you come around if she is with you when you have a seizure? Dr. Reiter's book (Epilepsy: A New Approach) has a whole chapter on this. If your wife did something like talk you through a breathing exercise, or held onto your arm, this may help stop the seizure by her interrupting it. Even one night of disturbed sleep can alter your brain wave patterns, possibly lowering your seizure threshold. On days like this one, you may want to have some stratagies in place to cope-like no sugar or caffeine or alchol. Lots of little breaks for yourself where possible to just sit quietly and practice being calm. Are you tracking what you did on the night you have the seizures? What did you eat for dinner? Did you have any snacks with foods that might lower your seizure threshold? Did you watch a lot of television? Were you drinking caffeine or alcohol? Were you eating or drinking anything with artificial sweeteners? Were you angry or really bored? Try changing your usual routines. For example, if you eat a nightly snack, junk food, try switching that to a cucumber, a natural anti-inflamatory or no food at all after dinner. Experiment with things you do that you think might affect your seizures and change them. Maybe take a walk after dinner if it is not your usual habit. Especially if you are having seizures at night, when your wife is there it may help if you both did some role playing, practicing ways to stop the seizure, and how to regoup when it passes. That is how you can begin to change your " seizure " behavior. Review what usually happens then re-write your " script " for what to do to interrupt the seizure. Sometimes just yelling to yourself, or having your wife call out and talk to you, hold your arm, can also stop a seizure in progress. Role playing can help you change how you and your body reacts when a seizure starts, consciously making yourself slow down your breathing and heart rate instead of it speeding up. It is good for your circulation and nervous system. Always look for patterns, what do you remember, or what does your wife see over and over again with the seizures? Have you tried taking calcium and magnesium supplements just before you go to sleep? The drugs can be somewhat like alcohol, they calm down your nervous system, but at what price? There are lots of things you can do to raise your seizure threshold. It takes time and persistence, but it is safer than drugs with their side effects. It may help to cop a kind of distant attitude, just keep analyzing your situation like it wasn't personal. What happens when you have a seizure, how did you respond, and how can you do things differently next time? It took me well over a year to remember to slow down my own breathing to stop a seizure after I learned how. It is so hard not to get discouraged when there are no easy answers. Maybe there is something to do, just a walk around the house or some streaching, with your wife to keep watch, so you can get calm before going back to sleep. Just keep trying and trusting in your own ability to keep finding ways to raise your seizure threshold. Zoe > Well as the post reads Another Day.What a Day too. Well last night I had a seizure,not gran mal but a seizure. I was awakened by my wife and together we talked through it. Hand movements and breathing are the physical appearance plus the blank look. I mean if u saw me u would know something was wrong.Anyway afterwards I wanted to go to sleep but my wife didn't want me to go to sleep for fear of me having a gran mal.Okay so today I went to work feeling pretty good or at least feeling calm about my current situation. But all day I kept having little auras but no seizure and like I said I was really calm about it today no real fear or anxiety. But I don't know if I am getting better or worst. I swear. I hope I don't sound like a broken record or a whiner but really.I don't know if I am getting better.It seems as though the seizures can only truley attack when I am sleep now.It was not always like that but also it was not as frequent like this for a while in the beginning it was more frequent and more during the day. But then my days became more and more normal in the last year and now although at night just as frequent. I am watching for things such as stress and diet but I dont know, I cant live 100% natural and holistic although I give it a hell of a try. I mean if I could only locate some reason for these episodes. Without the meds I feel like I have some grounding or some control over my life.But I have never taken them so what can I compare them to. Will my life get better with them or is it better without them.Are there any good experiences with them?Can I take them for a year then stop?Man o Man on my knees I search for an answer. > Darrell > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Well Lady Zoe your words as always have given me inspiration.I mean that and yes breathing deep is my number one effective battle against oncoming seizures. And funny thing is that my wife and I have over the years gotten a role thing going on and we both know or at least assume the affects of what is happening and what may happen as a result of the oncoming change in brainwaves.And also I have been trying to track what it is that is going wrong or what it is that I am doing wrong but heck I get so frustrated when I think I am doing everything necessary but still have seizures. Just a test I guess huh. Well the last couple of days have been sooo interesting, Having little auras but breathing them away and just continuing with my day. Or even better with whatever I am doing without the major drama that comes along with this world of Difference.Funny thing is I work with computers and I am working along side people in my company trying to figure solutions and still dealing with the auras and not focusing on possibly having a seizure but not having one and believing that they are not strong enough to over take me and change my life. They(the seizures )can not win because I am living right and that I am stronger then they. And if they do win this time then it's on like hot butter popcorn the next. LOL That's kinda funny huih LOL But to say the least the amount of inner strength it takes is something else and I know that I am not the only Fighter here in this group. from parents to sufferers to practioners to conquerers we all know the what it is to be a fighter. WHEW SLOW ME DOWN SOMEONE LOL. okay anyway I am sitting here doing my zapping and drinking my Lobelia tea and chilling. Chilling for all the older ones here means taking it easy. well everyone I have a date with my wife to watch a movie so everyone I wish you a safe time ahead and remember sometimes it gets worst before it gets better. A Chinese healer told me that once. I hope I can remember this feeling. Cya Darrell [ ] Re: another day > In no way are you being a whiner. How can you find ways to manage > your seizures if you don't get absolutely obscessed with them-in > detail? When you realized your breathing had changed, did you try any > conscious slow deep breathing to bring it back to normal? This is a > very effective stratagy for stopping a seizure and learning to > control them. > It's really good that your wife could recognize what was going on > also. Can you and she work out a plan on what to do that will help > you come around if she is with you when you have a seizure? Dr. > Reiter's book (Epilepsy: A New Approach) has a whole chapter on this. > If your wife did something like talk you through a breathing > exercise, or held onto your arm, this may help stop the seizure by > her interrupting it. > Even one night of disturbed sleep can alter your brain wave > patterns, possibly lowering your seizure threshold. On days like this > one, you may want to have some stratagies in place to cope-like no > sugar or caffeine or alchol. Lots of little breaks for yourself where > possible to just sit quietly and practice being calm. > Are you tracking what you did on the night you have the seizures? > What did you eat for dinner? Did you have any snacks with foods that > might lower your seizure threshold? Did you watch a lot of television? > Were you drinking caffeine or alcohol? Were you eating or drinking > anything with artificial sweeteners? Were you angry or really bored? > Try changing your usual routines. For example, if you eat a > nightly snack, junk food, try switching that to a cucumber, a natural > anti-inflamatory or no food at all after dinner. Experiment with > things you do that you think might affect your seizures and change > them. Maybe take a walk after dinner if it is not your usual > habit. > Especially if you are having seizures at night, when your wife is > there it may help if you both did some role playing, practicing ways > to stop the seizure, and how to regoup when it passes. That is how > you can begin to change your " seizure " behavior. Review what usually > happens then re-write your " script " for what to do to interrupt the > seizure. Sometimes just yelling to yourself, or having your wife call > out and talk to you, hold your arm, can also stop a seizure in > progress. > Role playing can help you change how you and your body reacts > when a seizure starts, consciously making yourself slow down your > breathing and heart rate instead of it speeding up. > It is good for your circulation and nervous system. Always look > for patterns, what do you remember, or what does your wife see over > and over again with the seizures? Have you tried taking calcium and > magnesium supplements just before you go to sleep? > The drugs can be somewhat like alcohol, they calm down your > nervous system, but at what price? There are lots of things you can > do to raise your seizure threshold. It takes time and persistence, > but it is safer than drugs with their side effects. > It may help to cop a kind of distant attitude, just keep analyzing > your situation like it wasn't personal. What happens when you have a > seizure, how did you respond, and how can you do things differently > next time? It took me well over a year to remember to slow down my > own breathing to stop a seizure after I learned how. It is so hard > not to get discouraged when there are no easy answers. Maybe there is > something to do, just a walk around the house or some streaching, > with your wife to keep watch, so you can get calm before going back > to sleep. Just keep trying and trusting in your own ability to keep > finding ways to raise your seizure threshold. > Zoe > > > > Well as the post reads Another Day.What a Day too. Well last night > I had a seizure,not gran mal but a seizure. I was awakened by my wife > and together we talked through it. Hand movements and breathing are > the physical appearance plus the blank look. I mean if u saw me u > would know something was wrong.Anyway afterwards I wanted to go to > sleep but my wife didn't want me to go to sleep for fear of me having > a gran mal.Okay so today I went to work feeling pretty good or at > least feeling calm about my current situation. But all day I kept > having little auras but no seizure and like I said I was really calm > about it today no real fear or anxiety. But I don't know if I am > getting better or worst. I swear. I hope I don't sound like a broken > record or a whiner but really.I don't know if I am getting better.It > seems as though the seizures can only truley attack when I am sleep > now.It was not always like that but also it was not as frequent like > this for a while in the beginning it was more frequent and more > during the day. But then my days became more and more normal in the > last year and now although at night just as frequent. I am watching > for things such as stress and diet but I dont know, I cant live 100% > natural and holistic although I give it a hell of a try. I mean if I > could only locate some reason for these episodes. Without the meds I > feel like I have some grounding or some control over my life.But I > have never taken them so what can I compare them to. Will my life get > better with them or is it better without them.Are there any good > experiences with them?Can I take them for a year then stop?Man o Man > on my knees I search for an answer. > > Darrell > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Hope you all enjoy the movie! Zoe > > > Well as the post reads Another Day.What a Day too. Well last night > > I had a seizure,not gran mal but a seizure. I was awakened by my wife > > and together we talked through it. Hand movements and breathing are > > the physical appearance plus the blank look. I mean if u saw me u > > would know something was wrong.Anyway afterwards I wanted to go to > > sleep but my wife didn't want me to go to sleep for fear of me having > > a gran mal.Okay so today I went to work feeling pretty good or at > > least feeling calm about my current situation. But all day I kept > > having little auras but no seizure and like I said I was really calm > > about it today no real fear or anxiety. But I don't know if I am > > getting better or worst. I swear. I hope I don't sound like a broken > > record or a whiner but really.I don't know if I am getting better.It > > seems as though the seizures can only truley attack when I am sleep > > now.It was not always like that but also it was not as frequent like > > this for a while in the beginning it was more frequent and more > > during the day. But then my days became more and more normal in the > > last year and now although at night just as frequent. I am watching > > for things such as stress and diet but I dont know, I cant live 100% > > natural and holistic although I give it a hell of a try. I mean if I > > could only locate some reason for these episodes. Without the meds I > > feel like I have some grounding or some control over my life.But I > > have never taken them so what can I compare them to. Will my life get > > better with them or is it better without them.Are there any good > > experiences with them?Can I take them for a year then stop?Man o Man > > on my knees I search for an answer. > > > Darrell > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2003 Report Share Posted June 6, 2003 Hi Zoe, This is Darrell's wife Robin and I just wanted to thank you for your words of wisdom. As Darrell and I try to fight this thing I often wonder if we can stop it. I do believe in my heart they can stop. It does feel so much better to speak w/someone who understands. Darrell has not read your eml yet but it sounds so hopeful and inspiring that I want to thank you for the response. Peacefully, Robin [ ] Re: another day > In no way are you being a whiner. How can you find ways to manage > your seizures if you don't get absolutely obscessed with them-in > detail? When you realized your breathing had changed, did you try any > conscious slow deep breathing to bring it back to normal? This is a > very effective stratagy for stopping a seizure and learning to > control them. > It's really good that your wife could recognize what was going on > also. Can you and she work out a plan on what to do that will help > you come around if she is with you when you have a seizure? Dr. > Reiter's book (Epilepsy: A New Approach) has a whole chapter on this. > If your wife did something like talk you through a breathing > exercise, or held onto your arm, this may help stop the seizure by > her interrupting it. > Even one night of disturbed sleep can alter your brain wave > patterns, possibly lowering your seizure threshold. On days like this > one, you may want to have some stratagies in place to cope-like no > sugar or caffeine or alchol. Lots of little breaks for yourself where > possible to just sit quietly and practice being calm. > Are you tracking what you did on the night you have the seizures? > What did you eat for dinner? Did you have any snacks with foods that > might lower your seizure threshold? Did you watch a lot of television? > Were you drinking caffeine or alcohol? Were you eating or drinking > anything with artificial sweeteners? Were you angry or really bored? > Try changing your usual routines. For example, if you eat a > nightly snack, junk food, try switching that to a cucumber, a natural > anti-inflamatory or no food at all after dinner. Experiment with > things you do that you think might affect your seizures and change > them. Maybe take a walk after dinner if it is not your usual > habit. > Especially if you are having seizures at night, when your wife is > there it may help if you both did some role playing, practicing ways > to stop the seizure, and how to regoup when it passes. That is how > you can begin to change your " seizure " behavior. Review what usually > happens then re-write your " script " for what to do to interrupt the > seizure. Sometimes just yelling to yourself, or having your wife call > out and talk to you, hold your arm, can also stop a seizure in > progress. > Role playing can help you change how you and your body reacts > when a seizure starts, consciously making yourself slow down your > breathing and heart rate instead of it speeding up. > It is good for your circulation and nervous system. Always look > for patterns, what do you remember, or what does your wife see over > and over again with the seizures? Have you tried taking calcium and > magnesium supplements just before you go to sleep? > The drugs can be somewhat like alcohol, they calm down your > nervous system, but at what price? There are lots of things you can > do to raise your seizure threshold. It takes time and persistence, > but it is safer than drugs with their side effects. > It may help to cop a kind of distant attitude, just keep analyzing > your situation like it wasn't personal. What happens when you have a > seizure, how did you respond, and how can you do things differently > next time? It took me well over a year to remember to slow down my > own breathing to stop a seizure after I learned how. It is so hard > not to get discouraged when there are no easy answers. Maybe there is > something to do, just a walk around the house or some streaching, > with your wife to keep watch, so you can get calm before going back > to sleep. Just keep trying and trusting in your own ability to keep > finding ways to raise your seizure threshold. > Zoe > > > > Well as the post reads Another Day.What a Day too. Well last night > I had a seizure,not gran mal but a seizure. I was awakened by my wife > and together we talked through it. Hand movements and breathing are > the physical appearance plus the blank look. I mean if u saw me u > would know something was wrong.Anyway afterwards I wanted to go to > sleep but my wife didn't want me to go to sleep for fear of me having > a gran mal.Okay so today I went to work feeling pretty good or at > least feeling calm about my current situation. But all day I kept > having little auras but no seizure and like I said I was really calm > about it today no real fear or anxiety. But I don't know if I am > getting better or worst. I swear. I hope I don't sound like a broken > record or a whiner but really.I don't know if I am getting better.It > seems as though the seizures can only truley attack when I am sleep > now.It was not always like that but also it was not as frequent like > this for a while in the beginning it was more frequent and more > during the day. But then my days became more and more normal in the > last year and now although at night just as frequent. I am watching > for things such as stress and diet but I dont know, I cant live 100% > natural and holistic although I give it a hell of a try. I mean if I > could only locate some reason for these episodes. Without the meds I > feel like I have some grounding or some control over my life.But I > have never taken them so what can I compare them to. Will my life get > better with them or is it better without them.Are there any good > experiences with them?Can I take them for a year then stop?Man o Man > on my knees I search for an answer. > > Darrell > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2003 Report Share Posted June 6, 2003 Hi Robin, There is no certain " cure " for seizures, since there is no one particular cause for having them. It seems more realistic to think in terms of raising the seizure threshold. For whatever reasons, those of us who develop seizures have a lower seizure threshold than the rest of the population. By pegging away at all the things we discover that can set them off, we keep learning ways to reduce the chances of having a seizure and sometimes stopping them altogether. It is frustrating because the seizures are so sudden and they can rob us of our confidence. There are so few books out there, we are all charting new territory here, why it's so good to have this group. Zoe > > > Well as the post reads Another Day.What a Day too. Well last night > > I had a seizure,not gran mal but a seizure. I was awakened by my wife > > and together we talked through it. Hand movements and breathing are > > the physical appearance plus the blank look. I mean if u saw me u > > would know something was wrong.Anyway afterwards I wanted to go to > > sleep but my wife didn't want me to go to sleep for fear of me having > > a gran mal.Okay so today I went to work feeling pretty good or at > > least feeling calm about my current situation. But all day I kept > > having little auras but no seizure and like I said I was really calm > > about it today no real fear or anxiety. But I don't know if I am > > getting better or worst. I swear. I hope I don't sound like a broken > > record or a whiner but really.I don't know if I am getting better.It > > seems as though the seizures can only truley attack when I am sleep > > now.It was not always like that but also it was not as frequent like > > this for a while in the beginning it was more frequent and more > > during the day. But then my days became more and more normal in the > > last year and now although at night just as frequent. I am watching > > for things such as stress and diet but I dont know, I cant live 100% > > natural and holistic although I give it a hell of a try. I mean if I > > could only locate some reason for these episodes. Without the meds I > > feel like I have some grounding or some control over my life.But I > > have never taken them so what can I compare them to. Will my life get > > better with them or is it better without them.Are there any good > > experiences with them?Can I take them for a year then stop?Man o Man > > on my knees I search for an answer. > > > Darrell > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2004 Report Share Posted June 5, 2004 Hi Althea, Sorry about your pain today, I will keep you in my prayers, I hope this stormy weather goes away soon, hugs T --- In , " blueroses11 " <bluerose11@e...> wrote: > I woke up out of my drug induced sleep and am groggy and bent over. > The body is aching horribly in the middle back and I feel as though > I am somewhere else. > > I fed the cats and let the dogs out. I need to brush my teeth but > decided to check my email as hubby and his buddy are passed out in > the livingroom and one of them is in my chair...grrrrr > > I hate this morning after feeling of whooshiness. Good work isn't > that. I won't be alert for another couple hours but I wanted to get > some rest last night so I took my sleeping pill. > > Shirley, I am really interested in what your doctor says about your > enbrel shots - I can't get a remicade infusion if I go in there with > a cold. > > Rick - about 3 years ago now - when I was on prednisone - I was > trying to sandwich a quilt on the floor...all of a sudden I couldn't > breathe. I had a horrific time. I went to the doctor and they sent > me to a heart specilist. He did the stress tests on my heart and > said it was strong but that my lungs were horrible. I then was sent > to a pulmonologist...he sent me to the hospital for the breathing > tests and I failed...but I dont have astma - although they at first > tried to say it was. It wasn't - if your weather station puts up > the grass count/pollen count/mold count watch how you are feeling > when each is high. > > For me when the mold is high...I can't do anything. It takes away > my ability to breathe - there is nothing that can done about it > except to realise it and know what the problem is and also to know > it is seasonal and will go away. > > I don't know if this is your problem but the doctor I went to was > very knoweledgable ...he didn't want me labeled asmatic unless I was > because that in itself causes problems when you go to the hospital - > he searched and found that it was the mold that caused my > problems...I use a saline nose drop during those times. > They help a lot. > > Reference: handicap stickers - My Mom got a letter from her doctor > which she took to the motorvehicle department and received hers - > piece of cake > > My back is starting to scream at me - I need to buy a very > comfortable computer chair - would be nice. > > God bless, > Altea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2004 Report Share Posted June 5, 2004 My pulmonologist had given me the breathing tests as well and I failed miserably, but After he got me on the high dose of prednisone (40mg daily at the time) he gave me the tests again and of course, I passed it easily. He said the difference indicated asthma. I told him there was only a difference because it was medicated vs non medicated, not a natural unprompted difference. Mold was one of the 50 or 60 things they tested me for to see if I had allergies. When they put all those pricks on my back and I had to wait for 20 minutes.well most of us can't just lay for any period of time without going to sleep unless we are in pain. When the nurse came back in the room, she had to wake me up to see if any of the pricks were itching. None were and none were swollen or red or anything. She couldn't believe it. The Dr. even said most everybody is allergic to something, even if it a slight allergy to mold or dust mites. But I wasn't, that's why they did the test a second time on my arm. They said it was much more sensitive to the allergens on the arm and that should show something. Same results, NO ALLERGIES whatsoever. So the lung problems I'm having aren't Asthma and aren't allergy related. But regardless of the side effects of the prednisone which is messing me up pretty bad, I'm still grateful that I'm breathing!!!! Because without it, side effects or not, I'm NOT breathing. Rick www.whosyomama.com [ ] Another Day I woke up out of my drug induced sleep and am groggy and bent over. The body is aching horribly in the middle back and I feel as though I am somewhere else. I fed the cats and let the dogs out. I need to brush my teeth but decided to check my email as hubby and his buddy are passed out in the livingroom and one of them is in my chair...grrrrr I hate this morning after feeling of whooshiness. Good work isn't that. I won't be alert for another couple hours but I wanted to get some rest last night so I took my sleeping pill. Shirley, I am really interested in what your doctor says about your enbrel shots - I can't get a remicade infusion if I go in there with a cold. Rick - about 3 years ago now - when I was on prednisone - I was trying to sandwich a quilt on the floor...all of a sudden I couldn't breathe. I had a horrific time. I went to the doctor and they sent me to a heart specilist. He did the stress tests on my heart and said it was strong but that my lungs were horrible. I then was sent to a pulmonologist...he sent me to the hospital for the breathing tests and I failed...but I dont have astma - although they at first tried to say it was. It wasn't - if your weather station puts up the grass count/pollen count/mold count watch how you are feeling when each is high. For me when the mold is high...I can't do anything. It takes away my ability to breathe - there is nothing that can done about it except to realise it and know what the problem is and also to know it is seasonal and will go away. I don't know if this is your problem but the doctor I went to was very knoweledgable ...he didn't want me labeled asmatic unless I was because that in itself causes problems when you go to the hospital - he searched and found that it was the mold that caused my problems...I use a saline nose drop during those times. They help a lot. Reference: handicap stickers - My Mom got a letter from her doctor which she took to the motorvehicle department and received hers - piece of cake My back is starting to scream at me - I need to buy a very comfortable computer chair - would be nice. God bless, Altea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 nea, you always say warm gentle hugs, that makes me think of something.... you know when you meet somebody new, you should shake hands.... well some people squeeze really hard and it hurts so bad! yikes... i hate that... my husband would take my hand when we are walking some where and i would have to say ouch real fast because sometimes just holding my hand hurts me...( well, just wanted to throw my 2 cents in, ha ha ha rae [ ] Another Day G'Day everyone. I have to tell you , I feel real good this morning..Doesn't happen that often so this is news!I got up early and watched the sun rise..Ohh so beautiful.I was watching as it started to get bright coming up over the Rincon Mtns here in Tucson.The site..spectacular,and I thanked God for allowing me to see another day. Had to share that.We get so caught up in not feelin good that sometimes we miss the most important things..things we take for granted everyday.Cindi,you do have alot of real good tips.I do my best at keeping my life simple and my home is full of love.I am single but my sister my niece who is 23 and my bro we all live together,a great arrangement.The love and laughter in this home never fades.Thanks again to all of you who have taken the time to personally write to me I appreciated it. BTW Tawny if you get a chance IM me today..Tawny and I go way back..Today I am going to see a Neurologist to check to see if I have vasculitis or major nerve prob.Either way..not good,but you roll with the punches and it don'thurt so bad. I sincerly hope you have as good of a day as you possibly can..Warm gentle hugs for all............Nea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 nea, you always say warm gentle hugs, that makes me think of something.... you know when you meet somebody new, you should shake hands.... well some people squeeze really hard and it hurts so bad! yikes... i hate that... my husband would take my hand when we are walking some where and i would have to say ouch real fast because sometimes just holding my hand hurts me...( well, just wanted to throw my 2 cents in, ha ha ha rae [ ] Another Day G'Day everyone. I have to tell you , I feel real good this morning..Doesn't happen that often so this is news!I got up early and watched the sun rise..Ohh so beautiful.I was watching as it started to get bright coming up over the Rincon Mtns here in Tucson.The site..spectacular,and I thanked God for allowing me to see another day. Had to share that.We get so caught up in not feelin good that sometimes we miss the most important things..things we take for granted everyday.Cindi,you do have alot of real good tips.I do my best at keeping my life simple and my home is full of love.I am single but my sister my niece who is 23 and my bro we all live together,a great arrangement.The love and laughter in this home never fades.Thanks again to all of you who have taken the time to personally write to me I appreciated it. BTW Tawny if you get a chance IM me today..Tawny and I go way back..Today I am going to see a Neurologist to check to see if I have vasculitis or major nerve prob.Either way..not good,but you roll with the punches and it don'thurt so bad. I sincerly hope you have as good of a day as you possibly can..Warm gentle hugs for all............Nea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 NEA, I AM SO GLAD THAT YOU HAD SUCH A SIGNIFICANT MORNING. I AM ALSO VERY HAPPY TO HEAR ABOUT YOUR LIVING ARRANGEMENTS AND THAT EVERYONE LOVES IT! ANYTIME I CAN HELP OR YOU JUST WANT TO TALK, I AM HERE ALOT. ALSO REMEBER THAT SUNRISE THE NEXT TIME THINGS HURT ALOT, SIMPLE THINGS DO MEAN MORE THAN SOME OF THE MOST INTRICATELY DESIGNED ORCHESTRATIONS ! GOOD LUCK AT YOUR NEURO APPT. BEST WISHES, SMILE! CINDI gonzo_skye <gonzo_skye@...> wrote: G'Day everyone. I have to tell you , I feel real good this morning..Doesn't happen that often so this is news!I got up early and watched the sun rise..Ohh so beautiful.I was watching as it started to get bright coming up over the Rincon Mtns here in Tucson.The site..spectacular,and I thanked God for allowing me to see another day. Had to share that.We get so caught up in not feelin good that sometimes we miss the most important things..things we take for granted everyday.Cindi,you do have alot of real good tips.I do my best at keeping my life simple and my home is full of love.I am single but my sister my niece who is 23 and my bro we all live together,a great arrangement.The love and laughter in this home never fades.Thanks again to all of you who have taken the time to personally write to me I appreciated it. BTW Tawny if you get a chance IM me today..Tawny and I go way back..Today I am going to see a Neurologist to check to see if I have vasculitis or major nerve prob.Either way..not good,but you roll with the punches and it don'thurt so bad. I sincerly hope you have as good of a day as you possibly can..Warm gentle hugs for all............Nea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 NEA, I AM SO GLAD THAT YOU HAD SUCH A SIGNIFICANT MORNING. I AM ALSO VERY HAPPY TO HEAR ABOUT YOUR LIVING ARRANGEMENTS AND THAT EVERYONE LOVES IT! ANYTIME I CAN HELP OR YOU JUST WANT TO TALK, I AM HERE ALOT. ALSO REMEBER THAT SUNRISE THE NEXT TIME THINGS HURT ALOT, SIMPLE THINGS DO MEAN MORE THAN SOME OF THE MOST INTRICATELY DESIGNED ORCHESTRATIONS ! GOOD LUCK AT YOUR NEURO APPT. BEST WISHES, SMILE! CINDI gonzo_skye <gonzo_skye@...> wrote: G'Day everyone. I have to tell you , I feel real good this morning..Doesn't happen that often so this is news!I got up early and watched the sun rise..Ohh so beautiful.I was watching as it started to get bright coming up over the Rincon Mtns here in Tucson.The site..spectacular,and I thanked God for allowing me to see another day. Had to share that.We get so caught up in not feelin good that sometimes we miss the most important things..things we take for granted everyday.Cindi,you do have alot of real good tips.I do my best at keeping my life simple and my home is full of love.I am single but my sister my niece who is 23 and my bro we all live together,a great arrangement.The love and laughter in this home never fades.Thanks again to all of you who have taken the time to personally write to me I appreciated it. BTW Tawny if you get a chance IM me today..Tawny and I go way back..Today I am going to see a Neurologist to check to see if I have vasculitis or major nerve prob.Either way..not good,but you roll with the punches and it don'thurt so bad. I sincerly hope you have as good of a day as you possibly can..Warm gentle hugs for all............Nea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Hey Nea! That is so good to hear that you had a good morning, awesome! You are right, there are so many beautfiul things in this World, and it's a joy to be able to see them. How did the visit go today, have been thinking about you? Catch you on the IM, T --- In , " gonzo_skye " <gonzo_skye@y...> wrote: > > > G'Day everyone. I have to tell you , I feel real good this > morning..Doesn't happen that often so this is news!I got up early > and watched the sun rise..Ohh so beautiful.I was watching as it > started to get bright coming up over the Rincon Mtns here in > Tucson.The site..spectacular,and I thanked God for allowing me to > see another day. Had to share that.We get so caught up in not feelin > good that sometimes we miss the most important things..things we > take for granted everyday.Cindi,you do have alot of real good tips.I > do my best at keeping my life simple and my home is full of love.I > am single but my sister my niece who is 23 and my bro we all live > together,a great arrangement.The love and laughter in this home > never fades.Thanks again to all of you who have taken the time to > personally write to me I appreciated it. BTW Tawny if you get a > chance IM me today..Tawny and I go way back..Today I am going to > see a Neurologist to check to see if I have vasculitis or major > nerve prob.Either way..not good,but you roll with the punches and it > don'thurt so bad. I sincerly hope you have as good of a day as you > possibly can..Warm gentle hugs for all............Nea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Hey Nea! That is so good to hear that you had a good morning, awesome! You are right, there are so many beautfiul things in this World, and it's a joy to be able to see them. How did the visit go today, have been thinking about you? Catch you on the IM, T > > > G'Day everyone. I have to tell you , I feel real good this > morning..Doesn't happen that often so this is news!I got up early > and watched the sun rise..Ohh so beautiful.I was watching as it > started to get bright coming up over the Rincon Mtns here in > Tucson.The site..spectacular,and I thanked God for allowing me to > see another day. Had to share that.We get so caught up in not feelin > good that sometimes we miss the most important things..things we > take for granted everyday.Cindi,you do have alot of real good tips.I > do my best at keeping my life simple and my home is full of love.I > am single but my sister my niece who is 23 and my bro we all live > together,a great arrangement.The love and laughter in this home > never fades.Thanks again to all of you who have taken the time to > personally write to me I appreciated it. BTW Tawny if you get a > chance IM me today..Tawny and I go way back..Today I am going to > see a Neurologist to check to see if I have vasculitis or major > nerve prob.Either way..not good,but you roll with the punches and it > don'thurt so bad. I sincerly hope you have as good of a day as you > possibly can..Warm gentle hugs for all............Nea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 Greeting all, I read back through all the old post looking for something, not quite sure what. When I find it I will let everyone know. I am however inspired by this new gang I chat with. Some of you have lost your childhood, some have taken unplanned detours from nowhere, some have even lived through the dark ages of RA. But each and every single one of you keeps on living, keeps on going. Even if it is from the bed to the bathroom and then realize that the tub looks better than returning to the bedroom. I have recently been looking into alternative medicine. My psych told me that my anger was becoming to brazen. Somhow my response where getting a touch aggresive on the verbal side. (I'm sorry, but I can't make a fist anymore and mandatory barfights are still very popular in Montana.) So I ran into Qigong. Interesting. If anyone knows more I would love to get your perspective or if you happen to be interested; follow through with your intuition. I really don't understand a lot with RA, or even why I try. But I enjoy reading and chatting with you guys. At least here you understand why nothing really matters. I am starting to sound weird, so I am going to end this adventure and chat at a later time. red Quote Link to comment Share on other sites More sharing options...
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