Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 > I've only been on ww a couple of weeks. What does NSV stand for? > The others I've figured out. Thanks, > Sue, UT Non Scale Victory......something we brag about besides losses......like clothes fitting better, a compliment from someone, doing well at a buffet etc. Something that has to do with our weightloss that has nothing to do with the numbers on the scale. Moe 234/212 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 > I've only been on ww a couple of weeks. What does NSV stand for? > The others I've figured out. Thanks, > Sue, UT Non Scale Victory......something we brag about besides losses......like clothes fitting better, a compliment from someone, doing well at a buffet etc. Something that has to do with our weightloss that has nothing to do with the numbers on the scale. Moe 234/212 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 Non-Scale Victory Sue wrote: > I've only been on ww a couple of weeks. What does NSV stand for? > The others I've figured out. Thanks, > Sue, UT > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 Non-Scale Victory Sue wrote: > I've only been on ww a couple of weeks. What does NSV stand for? > The others I've figured out. Thanks, > Sue, UT > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 Non-Scale Victory Sue wrote: > I've only been on ww a couple of weeks. What does NSV stand for? > The others I've figured out. Thanks, > Sue, UT > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 Well, let's hope it's nothing serious. There are other kidney disease besides IgAN that produce blood and protein in the urine. If it is IgAN, and you say they might not be able to do a biopsy, it's important to note that many people go for years and years with IgAN without ever having a biopsy done. I myself didn't have a biopsy until 16 years after the symptoms first appeared. They often won't do a biopsy until the symptoms are more significant anyway. Good luck. Pierre P.S. We don't have any doctors here. It's a place for patients to support each other. question > I have a question I have jkidney problims let me take you through the > story. I have hemochromotosis Ie I cant metablize iron. Well we had been > noticing blood in the uran and was just watching it. well last year I > had a live biopsey becuse the liver is one area hit hard by high iron. > so I have a liver biopsey every two years well when they did it ct > guided they noticed on the right kidney three spots and on the left two > spots. and so the liver gastro doc sent me to a kidney doc he said the > spots dont fit what his thinking was iga but with ht eblood nd proteen > in the uran and the kidney function he was postive that it was iga he > got me in for a kidney biopsey and that didnt show iga so he said he is > realy up in the area he said all the sighns and symptoms show iga but > the biopsey doesnt show that. then we have these spots. are they cycts a > tummer he doesnt know he dont want to biopsey them becuse with > hemochromostis your risk for orgain cancer is real high and if they are > a tummmer and they go and poke a hole in it it would follow the path of > the needle and spread . any body have any ideas also today I went for a > ct scan of the kidneys becuse of the spots to see if they have changed > well I was seting in the tech room were they shoot from and look at > afterwords frinds with th etech. he notcied the uritors are huge which > they wernt. so he shoot some plain film x rays to see if they can see > any thing with those. I will here from the kidney doc on monday any body > have ideas. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 Well, let's hope it's nothing serious. There are other kidney disease besides IgAN that produce blood and protein in the urine. If it is IgAN, and you say they might not be able to do a biopsy, it's important to note that many people go for years and years with IgAN without ever having a biopsy done. I myself didn't have a biopsy until 16 years after the symptoms first appeared. They often won't do a biopsy until the symptoms are more significant anyway. Good luck. Pierre P.S. We don't have any doctors here. It's a place for patients to support each other. question > I have a question I have jkidney problims let me take you through the > story. I have hemochromotosis Ie I cant metablize iron. Well we had been > noticing blood in the uran and was just watching it. well last year I > had a live biopsey becuse the liver is one area hit hard by high iron. > so I have a liver biopsey every two years well when they did it ct > guided they noticed on the right kidney three spots and on the left two > spots. and so the liver gastro doc sent me to a kidney doc he said the > spots dont fit what his thinking was iga but with ht eblood nd proteen > in the uran and the kidney function he was postive that it was iga he > got me in for a kidney biopsey and that didnt show iga so he said he is > realy up in the area he said all the sighns and symptoms show iga but > the biopsey doesnt show that. then we have these spots. are they cycts a > tummer he doesnt know he dont want to biopsey them becuse with > hemochromostis your risk for orgain cancer is real high and if they are > a tummmer and they go and poke a hole in it it would follow the path of > the needle and spread . any body have any ideas also today I went for a > ct scan of the kidneys becuse of the spots to see if they have changed > well I was seting in the tech room were they shoot from and look at > afterwords frinds with th etech. he notcied the uritors are huge which > they wernt. so he shoot some plain film x rays to see if they can see > any thing with those. I will here from the kidney doc on monday any body > have ideas. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 Well, let's hope it's nothing serious. There are other kidney disease besides IgAN that produce blood and protein in the urine. If it is IgAN, and you say they might not be able to do a biopsy, it's important to note that many people go for years and years with IgAN without ever having a biopsy done. I myself didn't have a biopsy until 16 years after the symptoms first appeared. They often won't do a biopsy until the symptoms are more significant anyway. Good luck. Pierre P.S. We don't have any doctors here. It's a place for patients to support each other. question > I have a question I have jkidney problims let me take you through the > story. I have hemochromotosis Ie I cant metablize iron. Well we had been > noticing blood in the uran and was just watching it. well last year I > had a live biopsey becuse the liver is one area hit hard by high iron. > so I have a liver biopsey every two years well when they did it ct > guided they noticed on the right kidney three spots and on the left two > spots. and so the liver gastro doc sent me to a kidney doc he said the > spots dont fit what his thinking was iga but with ht eblood nd proteen > in the uran and the kidney function he was postive that it was iga he > got me in for a kidney biopsey and that didnt show iga so he said he is > realy up in the area he said all the sighns and symptoms show iga but > the biopsey doesnt show that. then we have these spots. are they cycts a > tummer he doesnt know he dont want to biopsey them becuse with > hemochromostis your risk for orgain cancer is real high and if they are > a tummmer and they go and poke a hole in it it would follow the path of > the needle and spread . any body have any ideas also today I went for a > ct scan of the kidneys becuse of the spots to see if they have changed > well I was seting in the tech room were they shoot from and look at > afterwords frinds with th etech. he notcied the uritors are huge which > they wernt. so he shoot some plain film x rays to see if they can see > any thing with those. I will here from the kidney doc on monday any body > have ideas. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Darlene: I am with on this, sounds like your writing my song. ren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 herceptin is giving through iv drip i think it works like those others carolDarlene and Kate wrote: If you're her2 +, is the norm to be on herceptin? I've heard of this and know what it does, but how is it taken? And does herceptin work like the oral drugs like Femara, Arimidex or is it used along with these drugs?Thanks for any inputDarlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 herceptin is giving through iv drip i think it works like those others carolDarlene and Kate wrote: If you're her2 +, is the norm to be on herceptin? I've heard of this and know what it does, but how is it taken? And does herceptin work like the oral drugs like Femara, Arimidex or is it used along with these drugs?Thanks for any inputDarlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 herceptin is giving through iv drip i think it works like those others carolDarlene and Kate wrote: If you're her2 +, is the norm to be on herceptin? I've heard of this and know what it does, but how is it taken? And does herceptin work like the oral drugs like Femara, Arimidex or is it used along with these drugs?Thanks for any inputDarlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Carol Yes, that is the norm protocol for Her2 patients. I have been on Herceptin since Sept of 02. I get a treatment ( through IV at home ) every 3 weeks. I go to my oncologist every 9 wks. I feel no different with the Herceptin except maybe, and that is not always, a little tired the next day. But it is hard to tell because I am always doing something. You do not get nauseus, sick, pain etc. Angel Hugs Judy Re: Question herceptin is giving through iv drip i think it works like those others carolDarlene and Kate wrote: If you're her2 +, is the norm to be on herceptin? I've heard of this and know what it does, but how is it taken? And does herceptin work like the oral drugs like Femara, Arimidex or is it used along with these drugs?Thanks for any inputDarlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Carol Yes, that is the norm protocol for Her2 patients. I have been on Herceptin since Sept of 02. I get a treatment ( through IV at home ) every 3 weeks. I go to my oncologist every 9 wks. I feel no different with the Herceptin except maybe, and that is not always, a little tired the next day. But it is hard to tell because I am always doing something. You do not get nauseus, sick, pain etc. Angel Hugs Judy Re: Question herceptin is giving through iv drip i think it works like those others carolDarlene and Kate wrote: If you're her2 +, is the norm to be on herceptin? I've heard of this and know what it does, but how is it taken? And does herceptin work like the oral drugs like Femara, Arimidex or is it used along with these drugs?Thanks for any inputDarlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Carol Yes, that is the norm protocol for Her2 patients. I have been on Herceptin since Sept of 02. I get a treatment ( through IV at home ) every 3 weeks. I go to my oncologist every 9 wks. I feel no different with the Herceptin except maybe, and that is not always, a little tired the next day. But it is hard to tell because I am always doing something. You do not get nauseus, sick, pain etc. Angel Hugs Judy Re: Question herceptin is giving through iv drip i think it works like those others carolDarlene and Kate wrote: If you're her2 +, is the norm to be on herceptin? I've heard of this and know what it does, but how is it taken? And does herceptin work like the oral drugs like Femara, Arimidex or is it used along with these drugs?Thanks for any inputDarlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 So, either a person is on herceptin or Femara or Arimidex or another type of drug? I'm on Arimidex. Why would someone be on herceptin instead of the Femara, arimidex ect? I see my oco every 3 months being on the Arimidex. So I guess my question is: Her2 patients can be on the other drugs instead of the herceptin? What does the herceptin do that the other drugs don't do? Any one know? thanks everyone Darlene -- In breastcancer2 , HeyJude615@a... wrote: > Carol > > Yes, that is the norm protocol for Her2 patients. I have been on Herceptin since Sept of 02. I get a treatment ( through IV at home ) every 3 weeks. I go to my oncologist every 9 wks. I feel no different with the Herceptin except maybe, and that is not always, a little tired the next day. But it is hard to tell because I am always doing something. You do not get nauseus, sick, pain etc. > > Angel Hugs > Judy > > Re: Question > > > herceptin is giving through iv drip i think it works like those others > carol > > Darlene and Kate <andwemet03@y...> wrote: > If you're her2 +, is the norm to be on herceptin? I've heard of this > and know what it does, but how is it taken? And does herceptin work > like the oral drugs like Femara, Arimidex or is it used along with > these drugs? > Thanks for any input > Darlene > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 So, either a person is on herceptin or Femara or Arimidex or another type of drug? I'm on Arimidex. Why would someone be on herceptin instead of the Femara, arimidex ect? I see my oco every 3 months being on the Arimidex. So I guess my question is: Her2 patients can be on the other drugs instead of the herceptin? What does the herceptin do that the other drugs don't do? Any one know? thanks everyone Darlene -- In breastcancer2 , HeyJude615@a... wrote: > Carol > > Yes, that is the norm protocol for Her2 patients. I have been on Herceptin since Sept of 02. I get a treatment ( through IV at home ) every 3 weeks. I go to my oncologist every 9 wks. I feel no different with the Herceptin except maybe, and that is not always, a little tired the next day. But it is hard to tell because I am always doing something. You do not get nauseus, sick, pain etc. > > Angel Hugs > Judy > > Re: Question > > > herceptin is giving through iv drip i think it works like those others > carol > > Darlene and Kate <andwemet03@y...> wrote: > If you're her2 +, is the norm to be on herceptin? I've heard of this > and know what it does, but how is it taken? And does herceptin work > like the oral drugs like Femara, Arimidex or is it used along with > these drugs? > Thanks for any input > Darlene > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Darlene The hereceptin if for HER2 only. The other drugs I believe are for estrogen positive DX's. I never had a option of any other drug but the Hereptin. Are you estrogen positive? angel Hugs Judy Re: Question > > > herceptin is giving through iv drip i think it works like those others > carol > > Darlene and Kate <andwemet03@y...> wrote: > If you're her2 +, is the norm to be on herceptin? I've heard of this > and know what it does, but how is it taken? And does herceptin work > like the oral drugs like Femara, Arimidex or is it used along with > these drugs? > Thanks for any input > Darlene > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 thanks so very much; I've heard of her before. Actually I saw her on Oprah some time ago, I think the topic at that time was about meno. I was looking back at some of the info I got from the onco doc. regarding my options and stuff. Mine was invasive ductal stage II. Estrogen + 15%, Her2 +2. It's hard to think and remember back then. From what I have at my finger tips: 15% estogen Her2 +2 my KI 67 was elevated CA 125 ekevated as well Anyway......I forgot where I was going with this :-) imagine that??? Hope your day is a good one........it sure is hot out there!!!!! Darlene In breastcancer2 , " nancee32000 " <pineriverl@a...> wrote: > -Darlene, I just checked my " Dr. Loves " BREAST BOOK, it looks > like Herceptin is used on those who over express the Her2-nu gene and > have Metastatic Disease. I love this book. It answers so many > questions. You can also go to her web site for information. > Hugs Nancee-- In breastcancer2 , " Darlene and Kate " > <andwemet03@y...> wrote: > > So, either a person is on herceptin or Femara or Arimidex or > another > > type of drug? I'm on Arimidex. Why would someone be on herceptin > > instead of the Femara, arimidex ect? I see my oco every 3 months > > being on the Arimidex. So I guess my question is: Her2 patients > can > > be on the other drugs instead of the herceptin? What does the > > herceptin do that the other drugs don't do? Any one know? > > thanks everyone > > Darlene > > > > > > > > > > -- In breastcancer2 , HeyJude615@a... wrote: > > > Carol > > > > > > Yes, that is the norm protocol for Her2 patients. I have been on > > Herceptin since Sept of 02. I get a treatment ( through IV at > home ) > > every 3 weeks. I go to my oncologist every 9 wks. I feel no > different > > with the Herceptin except maybe, and that is not always, a little > > tired the next day. But it is hard to tell because I am always > doing > > something. You do not get nauseus, sick, pain etc. > > > > > > Angel Hugs > > > Judy > > > > > > Re: Question > > > > > > > > > herceptin is giving through iv drip i think it works like those > > others > > > carol > > > > > > Darlene and Kate <andwemet03@y...> wrote: > > > If you're her2 +, is the norm to be on herceptin? I've heard of > > this > > > and know what it does, but how is it taken? And does herceptin > work > > > like the oral drugs like Femara, Arimidex or is it used along > with > > > these drugs? > > > Thanks for any input > > > Darlene > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 yes herceptin is for her2 only and yes the other drugs are for estrogen positive cancer. one is for menopausal and the other is for post menopausal. carolHeyJude615@... wrote: Darlene The hereceptin if for HER2 only. The other drugs I believe are for estrogen positive DX's. I never had a option of any other drug but the Hereptin. Are you estrogen positive? angel Hugs Judy Re: Question > > > herceptin is giving through iv drip i think it works like those others > carol > > Darlene and Kate <andwemet03@y...> wrote: > If you're her2 +, is the norm to be on herceptin? I've heard of this > and know what it does, but how is it taken? And does herceptin work > like the oral drugs like Femara, Arimidex or is it used along with > these drugs? > Thanks for any input > Darlene > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Wow, Darlene. Didn't have chemo (one of the " lucky " ones); but, I sure can relate to the sweating and aches and pains. I was put on Tamoxifin (sp) and thanks to a support group just like this on old prodigy; I took myself off it after 8 mos. Don't know how old you are; or how far you are past your treatments, but, at 63, it was like going through the change all over again; but, worse. Then, all the info came out about it. My older sister by 2 yrs. just finished her radiation treatments earlier this year; they put her on a new drug; she quit her's already; as they were causing her so much pain and distress. She said and I agree, at our age, we have enough aches and pains; we don't need meds to cause more. It's always good to be able to " vent " at some place like this, who understands what you are going through. Hang in there; and hope tomorrow is better for ya. (((((((((((Big hugs, Darlene)))))))))) No expert here, just know how you feel. Bets > Has anyone had any long term pain through all this? Muscle and joint > pain for instance? How about sweating? I now sweat like crazy!!!! The > water just pours off my face like a faucet. > Some one said: life is not the same since chemo. How true is that. > One of the hardest things to do is adjust to a new life. I'm trying > but not doing so good, the road is long. I too thought that once I got > through all the tx, life would be back to normal. (My PT therapist > keeps telling me: normal is a setting on the washing machine :-)) > I've been doing PT for about 10 months now. > My pain dr. now says she thinks I have fibromyalgia.......Oh, is that > what it is? Doesn't matter what they call it.......it's pain. The > muscle and joiint pain with the taxol wasn't this bad. I'm doing > better with pain management though. > Chemo brain isn't fun either, at least not in public :-) > I forgot what I was originally going to write and ended up > babling.........thanks for listening........and thanks for all your > support. > Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 If you are her positive, the herceptin blocks the cell marker that tells any breast cancer cells in your body to reproduce. If you are ER positive you would also take an estrogen blocking drug like arimidex or tamoxifen since your cancer feeds off of estrogen. I am not ER or PR positive so those blockers do not have any use in my treatment. Before herceptin the prognosis was much worse for women with HER positive cancers. It's a good thing we have it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 Sorry, I was so long in my last message. Anyhooo, can anyone tell me about Taxol? I'm having the A/C and will finish in August, then the lumpectomy, including taking a couple of lymph nodes. If they are positive, I'll be taking the 4 doses of Taxol. What are they like? Just trying to prepare myself. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 HI Gail I had taxol. For me it was very strong, but mine was mixed with Carpoplatin which is very strong. It kicked my butt. I had terrible pain in my joins the second and third day after the chemo then I was fine. But I survivied it and hope to spend many more days on this earth! Good luck, and keep up teh fight! Angel Hugs Judy JUDY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 Gail: I had taxol and I had a lot of bone pain. It was over before you know it. Stay tough. ren Quote Link to comment Share on other sites More sharing options...
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