Guest guest Posted October 6, 2000 Report Share Posted October 6, 2000 Oh me, oh my, Dear Esther, Compared to what you've been through and continue to endure, my stuff is just a mere hang-nail. Hope you have a great and enjoyable weekend. Regards, Sylvia > I went to see the hand specialists regarding my right > wrist..........remember I was injured on the job...... > anyway it doesn't seem to be healing as well as he thought it should be. He > wants me to have > a bone scan and another x-ray to rule out a small fracture because of OA. > For a couple of years > now this doctor has been wanting to do a wrist fusion on my right hand. We > had been putting > it off. Don't really know why, because I already had my left wrist done and > that one is great! > > Anyway, I suggested that when they remove my left knee replacement, that > they do the > wrist fusion at the same time to advoid yet another surgery. (I had my left > wrist done the same > time that I had a shoulder fusion done)..........might as well have all the > surgical pain at once LOL > Also, I have to be awake when they insert the breathing tube for > surgery........because of my > neck fusion........and the last couple of surgeries that process took almost > as long as the surgery.. > May be hard getting both surgeons in on the the same day. I go see the > ortho who is going > to remove my knee tomorrow. And I go back to the hand specialists on Wed. > Tuesday I will > have the bone scan. He feels that the wrist is probably even worse now from > the RA then it > was a couple of years ago. > > Tomorrow I am spending the weekend with the director & his wife and family > of Handi-Camp. > They live outside Philadelphia. I go every year in October (Mom & Dad's > wedding anniversary) > to their home for a weekend. Sandy had learned how to cath. me at camp and > is willing to > still take me. > > Wishing you all a " happy weekend! " > > ~ Esther ~ > > ''To get out of a difficulty, one > usually must go through it.'' > > " Never look down on anybody > unless you are helping them up. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2000 Report Share Posted October 7, 2000 Sorry to hear about your wrist, Esther. Hope Handi Camp can make you forget your troubles this weekend! ----- Original Message ----- From: " Esther & Carol " <cheerios@...> < egroups> Sent: Thursday, October 05, 2000 11:09 PM Subject: [ ] My Update > I went to see the hand specialists regarding my right > wrist..........remember I was injured on the job...... > anyway it doesn't seem to be healing as well as he thought it should be. He > wants me to have > a bone scan and another x-ray to rule out a small fracture because of OA. > For a couple of years > now this doctor has been wanting to do a wrist fusion on my right hand. We > had been putting > it off. Don't really know why, because I already had my left wrist done and > that one is great! > > Anyway, I suggested that when they remove my left knee replacement, that > they do the > wrist fusion at the same time to advoid yet another surgery. (I had my left > wrist done the same > time that I had a shoulder fusion done)..........might as well have all the > surgical pain at once LOL > Also, I have to be awake when they insert the breathing tube for > surgery........because of my > neck fusion........and the last couple of surgeries that process took almost > as long as the surgery.. > May be hard getting both surgeons in on the the same day. I go see the > ortho who is going > to remove my knee tomorrow. And I go back to the hand specialists on Wed. > Tuesday I will > have the bone scan. He feels that the wrist is probably even worse now from > the RA then it > was a couple of years ago. > > Tomorrow I am spending the weekend with the director & his wife and family > of Handi-Camp. > They live outside Philadelphia. I go every year in October (Mom & Dad's > wedding anniversary) > to their home for a weekend. Sandy had learned how to cath. me at camp and > is willing to > still take me. > > Wishing you all a " happy weekend! " > > ~ Esther ~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2000 Report Share Posted October 11, 2000 Yes, Sylvia I had a great weekend. Rode the subway.......never did that before.......... in Phila.......went to ChinaTown and the Gallery Mall. I always enjoy being with Sandy, and their two children . ~Esther~ ''To get out of a difficulty, one usually must go through it.'' " Never look down on anybody unless you are helping them up. " ----- Original Message ----- From: <booper51@...> < egroups> Sent: Friday, October 06, 2000 4:15 AM Subject: [ ] Re: My Update > Oh me, oh my, Dear Esther, > Compared to what you've been through and continue to endure, my stuff > is just a mere hang-nail. > Hope you have a great and enjoyable weekend. > Regards, > Sylvia > > > > I went to see the hand specialists regarding my right > > wrist..........remember I was injured on the job...... > > anyway it doesn't seem to be healing as well as he thought it > should be. He > > wants me to have > > a bone scan and another x-ray to rule out a small fracture because > of OA. > > For a couple of years > > now this doctor has been wanting to do a wrist fusion on my right > hand. We > > had been putting > > it off. Don't really know why, because I already had my left wrist > done and > > that one is great! > > > > Anyway, I suggested that when they remove my left knee replacement, > that > > they do the > > wrist fusion at the same time to advoid yet another surgery. (I > had my left > > wrist done the same > > time that I had a shoulder fusion done)..........might as well have > all the > > surgical pain at once LOL > > Also, I have to be awake when they insert the breathing tube for > > surgery........because of my > > neck fusion........and the last couple of surgeries that process > took almost > > as long as the surgery.. > > May be hard getting both surgeons in on the the same day. I go see > the > > ortho who is going > > to remove my knee tomorrow. And I go back to the hand > specialists on Wed. > > Tuesday I will > > have the bone scan. He feels that the wrist is probably even worse > now from > > the RA then it > > was a couple of years ago. > > > > Tomorrow I am spending the weekend with the director & his wife and > family > > of Handi-Camp. > > They live outside Philadelphia. I go every year in October (Mom & > Dad's > > wedding anniversary) > > to their home for a weekend. Sandy had learned how to cath. me at > camp and > > is willing to > > still take me. > > > > Wishing you all a " happy weekend! " > > > > ~ Esther ~ > > > > ''To get out of a difficulty, one > > usually must go through it.'' > > > > " Never look down on anybody > > unless you are helping them up. " > > > > Our websites: http://rheumatoid.arthritis.freehosting.net/ > http://www.rasupport.webprovider.com/ > Change subscription options: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2000 Report Share Posted October 12, 2000 Esther, So glad to hear you had such a great time. Now, for the dirt! What did you buy at the Gallery Mall. Don't hold anything back. Anything good? Regards, Sylvia > Yes, Sylvia I had a great weekend. Rode the subway.......never did > that before.......... in Phila.......went to ChinaTown and the Gallery Mall. > I always enjoy being with Sandy, and their two children . > > ~Esther~ > > ''To get out of a difficulty, one > usually must go through it.'' > > " Never look down on anybody > unless you are helping them up. " > > > > > > > ----- Original Message ----- > From: <booper51@a...> > < egroups> > Sent: Friday, October 06, 2000 4:15 AM > Subject: [ ] Re: My Update > > > > Oh me, oh my, Dear Esther, > > Compared to what you've been through and continue to endure, my stuff > > is just a mere hang-nail. > > Hope you have a great and enjoyable weekend. > > Regards, > > Sylvia > > > > --- In egroups, " Esther & Carol " <cheerios@n...> wrote: > > > I went to see the hand specialists regarding my right > > > wrist..........remember I was injured on the job...... > > > anyway it doesn't seem to be healing as well as he thought it > > should be. He > > > wants me to have > > > a bone scan and another x-ray to rule out a small fracture because > > of OA. > > > For a couple of years > > > now this doctor has been wanting to do a wrist fusion on my right > > hand. We > > > had been putting > > > it off. Don't really know why, because I already had my left wrist > > done and > > > that one is great! > > > > > > Anyway, I suggested that when they remove my left knee replacement, > > that > > > they do the > > > wrist fusion at the same time to advoid yet another surgery. (I > > had my left > > > wrist done the same > > > time that I had a shoulder fusion done)..........might as well have > > all the > > > surgical pain at once LOL > > > Also, I have to be awake when they insert the breathing tube for > > > surgery........because of my > > > neck fusion........and the last couple of surgeries that process > > took almost > > > as long as the surgery.. > > > May be hard getting both surgeons in on the the same day. I go see > > the > > > ortho who is going > > > to remove my knee tomorrow. And I go back to the hand > > specialists on Wed. > > > Tuesday I will > > > have the bone scan. He feels that the wrist is probably even worse > > now from > > > the RA then it > > > was a couple of years ago. > > > > > > Tomorrow I am spending the weekend with the director & his wife and > > family > > > of Handi-Camp. > > > They live outside Philadelphia. I go every year in October (Mom & > > Dad's > > > wedding anniversary) > > > to their home for a weekend. Sandy had learned how to cath. me at > > camp and > > > is willing to > > > still take me. > > > > > > Wishing you all a " happy weekend! " > > > > > > ~ Esther ~ > > > > > > ''To get out of a difficulty, one > > > usually must go through it.'' > > > > > > " Never look down on anybody > > > unless you are helping them up. " > > > > > > > > Our websites: http://rheumatoid.arthritis.freehosting.net/ > > http://www.rasupport.webprovider.com/ > > Change subscription options: RA- SUPPORT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 So glad to hear from you, Tess! Try not to worry. I know the waiting is hard, but let's hope the results are nothing bad at all. No more financial transactions or driving for you or I'll call your doctor, naughty girl! Recovery hugs, [ ] my update > Hi sweet people...I am coming out of the fog, though still really tired. > They were wonderful at the hospital and everything went well. My best > friend and Em were there, and my folks popped over, too. Another friend > came by to pray with me, and you all were there in my heart. My youngest > daughter & her fiance came over last night...my oldest daughter & > grandkids are coming tonight. > > They had no trouble at all starting the IV - just one poke!!! They also > gave me IV antibiotics...something that starts with a 'D'. My blood > sugars were great. > I remember getting on the operating table...my GYN saying she was there > and itroducing me to a young woman doctor joining her clinic. I > remember the anestesiologist telling me I would get real sleepy...the > next thing was being in recovery. > > The endometrium is extremely thick as they expected. They found 5 large > polyps - 2 as big as small oranges. My GYN showed me photos...they were > really interesting. Em says they found fibroids, too, but my foggy mind > doesn't remember that. My GYN showed me a photo of an area on the > uterus that is " inflamed " and sort of rough looking - not like the > smooth pearly-pinkness the rest of it was. She is concerned about this > area. They did a number of biopsies, and said the results will be in 3 > - 5 days. My GYN said she'll call when she gets them - I see her on > Monday as well. > > I am concerned about the biopsies...but also wondering if the infamed > area could be psoriasis...I've had it in my vagina, so ? Mostly I feel > peaceful, and I know I am in God's hands. I thought of you all often > while I was waiting...those thoughts gave > me much comfort ((((((RA Family))))). > > I had very little bleeding and cramping after the first day. It does > feels like someone threw a bowling ball at my uterus. More than > anything I feel 'beaten up' and very tired. > > Now I know why they make you sign those " do not drive or make legal > decisions for at least 24 hours post op " thingies. For some screwball > reason I decided to balance my checking account first thing yesterday > morning! The automated-teller thingy on the phone was like hearing > Chinese, and I got it jumbled in my noggin that I had made some > dastardly mistake with my account. So I tell Em we have to go to the > credit union - and I am not supposed to drive - but I was so worried. I > got there and guess what? Everything was absolutely fine...I still > don't 'get it', but I am less goofy now so I know it's ok. Thank the > Lord for His grace that I didn't hurt us or anyone else driving in that > mindset. > > Thank you all for your love & prayers. You all mean so much to me. I > know I am not 100% clear-headed, but I do have a feeling the biopsy is > going to be somewhat not ok. I also feel I'm going to be fine and get > healthier day by day. > > I'm not sure when this loopiness will completely wear off - I'm on very > little pain medication. Guess I must be patient. > > Time for a nap. > > I love you all... > > Tess > > PS ~ The day before surgery I went to 's Craft Store and got the > things to make a beautiful lavender, white and green heart-shaped wreath > for our door. I've wanted to do this for so long. I am grateful that > angels made this possible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Tess, Welcome back! I'm glad you are doing well. I wish you a speedy recovery. Betsy [ ] my update Hi sweet people...I am coming out of the fog, though still really tired. They were wonderful at the hospital and everything went well. My best friend and Em were there, and my folks popped over, too. Another friend came by to pray with me, and you all were there in my heart. My youngest daughter & her fiance came over last night...my oldest daughter & grandkids are coming tonight. They had no trouble at all starting the IV - just one poke!!! They also gave me IV antibiotics...something that starts with a 'D'. My blood sugars were great. I remember getting on the operating table...my GYN saying she was there and itroducing me to a young woman doctor joining her clinic. I remember the anestesiologist telling me I would get real sleepy...the next thing was being in recovery. The endometrium is extremely thick as they expected. They found 5 large polyps - 2 as big as small oranges. My GYN showed me photos...they were really interesting. Em says they found fibroids, too, but my foggy mind doesn't remember that. My GYN showed me a photo of an area on the uterus that is " inflamed " and sort of rough looking - not like the smooth pearly-pinkness the rest of it was. She is concerned about this area. They did a number of biopsies, and said the results will be in 3 - 5 days. My GYN said she'll call when she gets them - I see her on Monday as well. I am concerned about the biopsies...but also wondering if the infamed area could be psoriasis...I've had it in my vagina, so ? Mostly I feel peaceful, and I know I am in God's hands. I thought of you all often while I was waiting...those thoughts gave me much comfort ((((((RA Family))))). I had very little bleeding and cramping after the first day. It does feels like someone threw a bowling ball at my uterus. More than anything I feel 'beaten up' and very tired. Now I know why they make you sign those " do not drive or make legal decisions for at least 24 hours post op " thingies. For some screwball reason I decided to balance my checking account first thing yesterday morning! The automated-teller thingy on the phone was like hearing Chinese, and I got it jumbled in my noggin that I had made some dastardly mistake with my account. So I tell Em we have to go to the credit union - and I am not supposed to drive - but I was so worried. I got there and guess what? Everything was absolutely fine...I still don't 'get it', but I am less goofy now so I know it's ok. Thank the Lord for His grace that I didn't hurt us or anyone else driving in that mindset. Thank you all for your love & prayers. You all mean so much to me. I know I am not 100% clear-headed, but I do have a feeling the biopsy is going to be somewhat not ok. I also feel I'm going to be fine and get healthier day by day. I'm not sure when this loopiness will completely wear off - I'm on very little pain medication. Guess I must be patient. Time for a nap. I love you all... Tess PS ~ The day before surgery I went to 's Craft Store and got the things to make a beautiful lavender, white and green heart-shaped wreath for our door. I've wanted to do this for so long. I am grateful that angels made this possible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Welcome back Tess! Get some rest, hope your biopsy comes back clear. And no more banking until your head clears! lol! > Hi sweet people...I am coming out of the fog, though still really tired. > They were wonderful at the hospital and everything went well. My best > friend and Em were there, and my folks popped over, too. Another friend > came by to pray with me, and you all were there in my heart. My youngest > daughter & her fiance came over last night...my oldest daughter & > grandkids are coming tonight. > > They had no trouble at all starting the IV - just one poke!!! They also > gave me IV antibiotics...something that starts with a 'D'. My blood > sugars were great. > I remember getting on the operating table...my GYN saying she was there > and itroducing me to a young woman doctor joining her clinic. I > remember the anestesiologist telling me I would get real sleepy...the > next thing was being in recovery. > > The endometrium is extremely thick as they expected. They found 5 large > polyps - 2 as big as small oranges. My GYN showed me photos...they were > really interesting. Em says they found fibroids, too, but my foggy mind > doesn't remember that. My GYN showed me a photo of an area on the > uterus that is " inflamed " and sort of rough looking - not like the > smooth pearly-pinkness the rest of it was. She is concerned about this > area. They did a number of biopsies, and said the results will be in 3 > - 5 days. My GYN said she'll call when she gets them - I see her on > Monday as well. > > I am concerned about the biopsies...but also wondering if the infamed > area could be psoriasis...I've had it in my vagina, so ? Mostly I feel > peaceful, and I know I am in God's hands. I thought of you all often > while I was waiting...those thoughts gave > me much comfort ((((((RA Family))))). > > I had very little bleeding and cramping after the first day. It does > feels like someone threw a bowling ball at my uterus. More than > anything I feel 'beaten up' and very tired. > > Now I know why they make you sign those " do not drive or make legal > decisions for at least 24 hours post op " thingies. For some screwball > reason I decided to balance my checking account first thing yesterday > morning! The automated-teller thingy on the phone was like hearing > Chinese, and I got it jumbled in my noggin that I had made some > dastardly mistake with my account. So I tell Em we have to go to the > credit union - and I am not supposed to drive - but I was so worried. I > got there and guess what? Everything was absolutely fine...I still > don't 'get it', but I am less goofy now so I know it's ok. Thank the > Lord for His grace that I didn't hurt us or anyone else driving in that > mindset. > > Thank you all for your love & prayers. You all mean so much to me. I > know I am not 100% clear-headed, but I do have a feeling the biopsy is > going to be somewhat not ok. I also feel I'm going to be fine and get > healthier day by day. > > I'm not sure when this loopiness will completely wear off - I'm on very > little pain medication. Guess I must be patient. > > Time for a nap. > > I love you all... > > Tess > > PS ~ The day before surgery I went to 's Craft Store and got the > things to make a beautiful lavender, white and green heart-shaped wreath > for our door. I've wanted to do this for so long. I am grateful that > angels made this possible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Tess, I¹m so glad that you¹re feeling better and that everything went well. I will be praying that your biopsies are negative. Take it easy and get lots of rest. Sending healing hugs your way. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 Hi Tess, You just keep on resting and trusting, ok? No matter what turns up, things ARE ok! I remember last year when I had my lumpectomy, I was supposed to go home the same day, but I couldn't remember how to walk! Ron said there was no way he could get me upstairs to our bedroom, so they kept me all night. I still had to have help getting to the bathroom the next morning, but the sent me home. On the way home we stopped at our favorite coffee shop, and met a couple there we knew. The next day at church, said " what a racy conversation we had! " I didn't even remember BEING at 's, let alone what we talked about! It was about 3 days before my brain unscrambled. Well, at least I hope it has unscrambled... Anyway, may the angels continue holding your hands and all your other sweet parts, and may the " peace of God which passeth all understanding " be yours now and always, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 hang in there tess!! i wish you were closer. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Tess, I am so sorry that you are going through so much but am glad there is nothing sinister as you put it going on. You need to take care of yourself and get stronger. I am sending you as much strength as I can muster right now. Please take care of yourself my dear friend. Love, Alan > Dearest Family...both my Pcp and rheumy believe I am still very weak > from the pneumonia, viruses and flares. They both want to see me every > month and do bunches of labs until it is clear I have " turned the > corner " . They don't believe there is anything more 'sinister' going on. > My rheumy is with me 100% - no Remicade. He said the Prosorba Column > does impact the immune system because it alters your...something > globulin? Sorry...I just didn't catch it. They both told me to STOP > worrying about so many naps and being so tired. As I have stuck to my > exercise regimine, they are not at all surprised I am exhausted. They > both want to help me focus on healing from these stubborn illnesses, and > to help me get stronger and prepare for the hysterectomy in August. > > The 'vampire' got my blood first poke - that made me happy. But though > I am grateful I am not more seriously ill, I am very weary. > > Love.... > > Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Hi Tess, I'm sorry you're still feeling so weak, but I'm glad there is nothing more serious going on. We need you! Love and bunches of ((((((((((((hugs)))))))))))), Carol [ ] my update Dearest Family...both my Pcp and rheumy believe I am still very weak from the pneumonia, viruses and flares. They both want to see me every month and do bunches of labs until it is clear I have " turned the corner " . They don't believe there is anything more 'sinister' going on. My rheumy is with me 100% - no Remicade. He said the Prosorba Column does impact the immune system because it alters your...something globulin? Sorry...I just didn't catch it. They both told me to STOP worrying about so many naps and being so tired. As I have stuck to my exercise regimine, they are not at all surprised I am exhausted. They both want to help me focus on healing from these stubborn illnesses, and to help me get stronger and prepare for the hysterectomy in August. The 'vampire' got my blood first poke - that made me happy. But though I am grateful I am not more seriously ill, I am very weary. Love.... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2003 Report Share Posted May 8, 2003 Sorry that you still don't really have any satisfying answers and that you are worn out, Tess. What sorts of tests are going to be done? What are your doctors going to do to help your flare? Did your rheumatologist object to trying the Prosorba Column? Why? Just curious. It will affect your immune system, but not in the same way the biologics do. It filters out immunoglobulin G and circulating immune complexes from your blood. In very general terms, it removes antibodies from your blood. From the manufacturer: " Device Description: The PROSORBA® Column employs approximately 200 mg of protein A covalently bound to an inert silica matrix that is contained within a 300 ml polycarbonate housing. Each Column contains 123 ± 2 grams of this matrix. Protein A is a component of certain strains of the Staphylococcus bacterium and it binds immunoglobulin G (IgG) and IgG bound to an antigen, i.e., circulating immune complex. " http://www.freseniushc.com/product/package.htm (lots of info at the site) Try not to get discouraged! [ ] my update > Dearest Family...both my Pcp and rheumy believe I am still very weak > from the pneumonia, viruses and flares. They both want to see me every > month and do bunches of labs until it is clear I have " turned the > corner " . They don't believe there is anything more 'sinister' going on. > My rheumy is with me 100% - no Remicade. He said the Prosorba Column > does impact the immune system because it alters your...something > globulin? Sorry...I just didn't catch it. They both told me to STOP > worrying about so many naps and being so tired. As I have stuck to my > exercise regimine, they are not at all surprised I am exhausted. They > both want to help me focus on healing from these stubborn illnesses, and > to help me get stronger and prepare for the hysterectomy in August. > > The 'vampire' got my blood first poke - that made me happy. But though > I am grateful I am not more seriously ill, I am very weary. > > Love.... > > Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 , That is SO great!! I am so happy for you!! Your account at the one year mark sure does offer much needed hope to a bunch of people looking for a light at the end of the tunnel. LDN is the the only thing so far (for me) to offer any real hope. Please keep us posted, and enjoy your trip! Marcie (PPMS) In a message dated 5/20/2004 7:36:03 PM Central Standard Time, BD@... writes: Hello, all- You probably don't recognize my name since I am more of a lurker than a writer. Just wanted to give you all an update on myself, since I am coming up on my 1 year anniversary on LDN. I really wanted to wait a year to see if it would really help me. This time last year I could barely walk. My legs were stiff and my feet were in constant pain. Now all I have is numbness but I feel that is slowly subsiding too. I take LDN, calcium aep and colloidal silver. I am doing great now. I am actually taking a very overdue vacation with my husband and 2 kids (ages 2 and 5) down to Virginia this Saturday for a week. This time last year I would never even think of doing that. I have had MS for 4 1/2 years now and never touched one of those CRABS. Anyway I just wanted to share my progess in case it would help anyone. Hope you are all doing well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2005 Report Share Posted April 25, 2005 I haven't posted in a while. I switched to a new RA in March and love him. He is so nice and understanding. He put me on Plaquinal (?). He said if it worked, it would take 3-6 months, so somewhere inbetween May and Sept. I will hopefully feel some relief. this past weekend I had a Hot Stone Massage. That gave me tremendous relief! My hands still don't hurt today and I had the massage on Saturday. I'm going to try and get one every couple of months, since I felt so good after. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Rogene, Absolutely read up on Tamoxifen, I totally rejected taking it as it only helps 5-7% of women and it is so toxic to the body. Lynda At 07:45 PM 3/8/2006, you wrote: >I wonder how many of those women who had reoccurance or who had >cancer cells that weren't apparent yet had made positive changes to >their lifestyle and diet though? > >I know women who have had breast cancer, went the lumpectomy route >with radiation and tamoxifen, and are happy with their victory over >cancer, but deep down inside I wonder what they've changed >systemically, you know what I mean? I mean, the conditions that >produced the cancer in the first place have never been addressed! >No change in diet, no change in lifestyle, no positive move in the >direction of detoxification and whole body cleansing. So, the >conditions for cancer remain ripe.... > >That has to come into play somewhere, I would think. > >It would be nice to see some statistics on women who had cancerous >tumors removed, and then a totally altered lifestyle that reduced >the chances for recurrence of cancer based on becoming more >alkaline, increasing vegetable consumption while reducing toxic >exposures, etc. Is there such a study anywhere? > >Rogene, you've got a lifestyle that already fights cancer well. I >would think you have a great chance at keeping it at bay. I support >you in any choice you will make, because this sure looks like a hard >one. I will pray for your peace in it all! >Patty > > > > > > > > Thanks Patty and Lynda, > > > > I spent the day talking to radiologists today . . . I > > still have a set of appointments to go, unless I opt > > for no treatment, or a six-week course. > > > > NO CHEMO! . . . NO WAY! . . . > > > > Statistics show that, with whole breast radiation, and > > follow up medication, the chances of reoccurance is > > less than 1%. . . Reoccurance without radiation or > > medication is about 40%. It could be years before > > reoccurance is obvious. Studies of breasts removed via > > radical masectomies showed that as many as 70% of > > women had cancer cells that weren't apparent yet - > > even in women with small tumors. > > > > I'm torn between counting on NCD to protect me and > > going for the safest odds. I had hoped it would have > > knocked out the cancer cells. However, the study that > > put 78% of Stage IV cancer patients into remission was > > done over a one-year period. I know I'll continue NCD > > regardless. > > > > I really can't say what I'm going to do yet! I'm sure > > that I'll feel better when I make a decision than I do > > right now while trying to figure out what I'll do > > next. > > > > Hugs, > > > > Rogene > > > > > > > > >Opinions expressed are NOT meant to take the place of advice given >by licensed health care professionals. Consult your physician or >licensed health care professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians >mislead you. Find out what the facts are, and make your own >decisions about how to live a happy life and how to work for a >better world. " - Linus ing, two-time Nobel Prize Winner (1954, >Chemistry; 1963, Peace) > >See our photos website! Enter " implants " for access at this link: ><http://.shutterfly.com/action/>http://.shutterfly.co\ m/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 January 1990. 16 years this last January. By far, I do not think that breast cancer is a death sentence, and mine was not caught as early as some, because they missed it on exam and on the mammogram. That is why I had to do chemo. Had they caught it 8 months earlier when I was asking them about this particular lump and they dismissed it, I would have been a lot better off. I feet humble and grateful that I have been given all this time to help others and fight the wrongs of the breast implant debacle. I do feel victorious in that I am a statistic that shows that breast cancer is not a death sentence and that you can fight and win, also that I worked so hard and believed I could win. Positive thinking and support that was also very positive is very helpful. I go to my Oncologist once a year, to my OB/Gyn once a year, and to my GP for my thyroid meds, etc., but avoid them as much as possible besides that. I go to a Chiropractor, a Massage Therapist, and think I will start Acupuncture very soon. And I go to the gym three times a week to exercise. I do think that by age 50, at least, we should do mammograms, but we need to look at them very carefully and have our doctors scrutinize them more carefully. A baseline mammogram can be helpful later when they look at mammograms when one is older. I would never advise women against mammograms, just be sure that your doctor is being very careful in looking at them. Lynda At 09:33 AM 3/9/2006, you wrote: >Lynda, >How long ago was your breast cancer diagnosis? > >I know you fought long and hard to get where you are now. Do you >ever think about cancer recurrence? (I know that sounds like a >stupid question, because I am sure you do.) I guess what I am >getting at is how do you cope with the odds that are seemingly >against you? Do you feel victorious? I hope you do. Positive >thinking is a weapon against cancer as much as anything else. > >You are probably a great example of one who has fought with an >altered ilfestyle and won...that is why I asked, how long? > >Do you go in for regular checkups? I am 46 and have never had a >mammogram, and honestly, I can't see getting one anytime soon. I >will probably be stubborn about it, just because I am so stubborn >when it comes to medicine. I would appreciate your advice about >that. > >I am so proud of you for being such a survivor, and winning not only >against cancer, but against the ignorance of so many in medicine! > > >Patty > > > > > > > > > > Thanks Patty and Lynda, > > > > > > > > I spent the day talking to radiologists today . . . I > > > > still have a set of appointments to go, unless I opt > > > > for no treatment, or a six-week course. > > > > > > > > NO CHEMO! . . . NO WAY! . . . > > > > > > > > Statistics show that, with whole breast radiation, and > > > > follow up medication, the chances of reoccurance is > > > > less than 1%. . . Reoccurance without radiation or > > > > medication is about 40%. It could be years before > > > > reoccurance is obvious. Studies of breasts removed via > > > > radical masectomies showed that as many as 70% of > > > > women had cancer cells that weren't apparent yet - > > > > even in women with small tumors. > > > > > > > > I'm torn between counting on NCD to protect me and > > > > going for the safest odds. I had hoped it would have > > > > knocked out the cancer cells. However, the study that > > > > put 78% of Stage IV cancer patients into remission was > > > > done over a one-year period. I know I'll continue NCD > > > > regardless. > > > > > > > > I really can't say what I'm going to do yet! I'm sure > > > > that I'll feel better when I make a decision than I do > > > > right now while trying to figure out what I'll do > > > > next. > > > > > > > > Hugs, > > > > > > > > Rogene > > > > > > > > > > > > > > > > > > > > > > > > >Opinions expressed are NOT meant to take the place of advice >given > > >by licensed health care professionals. Consult your physician or > > >licensed health care professional before commencing any medical >treatment. > > > > > > " Do not let either the medical authorities or the politicians > > >mislead you. Find out what the facts are, and make your own > > >decisions about how to live a happy life and how to work for a > > >better world. " - Linus ing, two-time Nobel Prize Winner >(1954, > > >Chemistry; 1963, Peace) > > > > > >See our photos website! Enter " implants " for access at this link: > > > ><<http://.shutterfly.com/action/>http://. > shutterfly.com/action/>http://.sh >utterfly.com/action/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Lynda, How long ago was your breast cancer diagnosis? I know you fought long and hard to get where you are now. Do you ever think about cancer recurrence? (I know that sounds like a stupid question, because I am sure you do.) I guess what I am getting at is how do you cope with the odds that are seemingly against you? Do you feel victorious? I hope you do. Positive thinking is a weapon against cancer as much as anything else. You are probably a great example of one who has fought with an altered ilfestyle and won...that is why I asked, how long? Do you go in for regular checkups? I am 46 and have never had a mammogram, and honestly, I can't see getting one anytime soon. I will probably be stubborn about it, just because I am so stubborn when it comes to medicine. I would appreciate your advice about that. I am so proud of you for being such a survivor, and winning not only against cancer, but against the ignorance of so many in medicine! Patty > > > > > > Thanks Patty and Lynda, > > > > > > I spent the day talking to radiologists today . . . I > > > still have a set of appointments to go, unless I opt > > > for no treatment, or a six-week course. > > > > > > NO CHEMO! . . . NO WAY! . . . > > > > > > Statistics show that, with whole breast radiation, and > > > follow up medication, the chances of reoccurance is > > > less than 1%. . . Reoccurance without radiation or > > > medication is about 40%. It could be years before > > > reoccurance is obvious. Studies of breasts removed via > > > radical masectomies showed that as many as 70% of > > > women had cancer cells that weren't apparent yet - > > > even in women with small tumors. > > > > > > I'm torn between counting on NCD to protect me and > > > going for the safest odds. I had hoped it would have > > > knocked out the cancer cells. However, the study that > > > put 78% of Stage IV cancer patients into remission was > > > done over a one-year period. I know I'll continue NCD > > > regardless. > > > > > > I really can't say what I'm going to do yet! I'm sure > > > that I'll feel better when I make a decision than I do > > > right now while trying to figure out what I'll do > > > next. > > > > > > Hugs, > > > > > > Rogene > > > > > > > > > > > > > > > > >Opinions expressed are NOT meant to take the place of advice given > >by licensed health care professionals. Consult your physician or > >licensed health care professional before commencing any medical treatment. > > > > " Do not let either the medical authorities or the politicians > >mislead you. Find out what the facts are, and make your own > >decisions about how to live a happy life and how to work for a > >better world. " - Linus ing, two-time Nobel Prize Winner (1954, > >Chemistry; 1963, Peace) > > > >See our photos website! Enter " implants " for access at this link: > ><http://.shutterfly.com/action/>http://.sh utterfly.com/action/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Thank you Lea, it is an old story, I don't think much about a lot of that, particularly since I went through a very painful divorce at the same time. Time is a great healer, if we let it be. Thanks, Lynda At 11:26 AM 3/9/2006, you wrote: >Oh Lynda, I am so sorry that you have had to go through all this pain. You >are a survivor and a very brave lady. Please continue to do whatever you are >doing because it is working. My darling grandmother had breast cancer and >she lived until she was 84 years old. She, like me lived her life with just >one breast. > >I have to have mammograms every 6 months because I have some problems in my >right breast. My doctor is against me having so many mammograms, he would >rather do a breast exam himself. He feels that the radiation could hurt me! > >Stay well dear friend...love always...........Lea >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~```` > > Re: Re: My update > > > > January 1990. 16 years this last January. By far, I do not think > > that breast cancer is a death sentence, and mine was not caught as > > early as some, because they missed it on exam and on the > > mammogram. That is why I had to do chemo. Had they caught it 8 > > months earlier when I was asking them about this particular lump and > > they dismissed it, I would have been a lot better off. I feet humble > > and grateful that I have been given all this time to help others and > > fight the wrongs of the breast implant debacle. I do feel victorious > > in that I am a statistic that shows that breast cancer is not a death > > sentence and that you can fight and win, also that I worked so hard > > and believed I could win. Positive thinking and support that was > > also very positive is very helpful. > > > > I go to my Oncologist once a year, to my OB/Gyn once a year, and to > > my GP for my thyroid meds, etc., but avoid them as much as possible > > besides that. I go to a Chiropractor, a Massage Therapist, and think > > I will start Acupuncture very soon. And I go to the gym three times > > a week to exercise. > > > > I do think that by age 50, at least, we should do mammograms, but we > > need to look at them very carefully and have our doctors scrutinize > > them more carefully. A baseline mammogram can be helpful later when > > they look at mammograms when one is older. I would never advise women > > against mammograms, just be sure that your doctor is being very > > careful in looking at them. > > > > Lynda > > > > At 09:33 AM 3/9/2006, you wrote: > >>Lynda, > >>How long ago was your breast cancer diagnosis? > >> > >>I know you fought long and hard to get where you are now. Do you > >>ever think about cancer recurrence? (I know that sounds like a > >>stupid question, because I am sure you do.) I guess what I am > >>getting at is how do you cope with the odds that are seemingly > >>against you? Do you feel victorious? I hope you do. Positive > >>thinking is a weapon against cancer as much as anything else. > >> > >>You are probably a great example of one who has fought with an > >>altered ilfestyle and won...that is why I asked, how long? > >> > >>Do you go in for regular checkups? I am 46 and have never had a > >>mammogram, and honestly, I can't see getting one anytime soon. I > >>will probably be stubborn about it, just because I am so stubborn > >>when it comes to medicine. I would appreciate your advice about > >>that. > >> > >>I am so proud of you for being such a survivor, and winning not only > >>against cancer, but against the ignorance of so many in medicine! > >> > >> > >>Patty > >> > >> > >> > > > > >> > > > Thanks Patty and Lynda, > >> > > > > >> > > > I spent the day talking to radiologists today . . . I > >> > > > still have a set of appointments to go, unless I opt > >> > > > for no treatment, or a six-week course. > >> > > > > >> > > > NO CHEMO! . . . NO WAY! . . . > >> > > > > >> > > > Statistics show that, with whole breast radiation, and > >> > > > follow up medication, the chances of reoccurance is > >> > > > less than 1%. . . Reoccurance without radiation or > >> > > > medication is about 40%. It could be years before > >> > > > reoccurance is obvious. Studies of breasts removed via > >> > > > radical masectomies showed that as many as 70% of > >> > > > women had cancer cells that weren't apparent yet - > >> > > > even in women with small tumors. > >> > > > > >> > > > I'm torn between counting on NCD to protect me and > >> > > > going for the safest odds. I had hoped it would have > >> > > > knocked out the cancer cells. However, the study that > >> > > > put 78% of Stage IV cancer patients into remission was > >> > > > done over a one-year period. I know I'll continue NCD > >> > > > regardless. > >> > > > > >> > > > I really can't say what I'm going to do yet! I'm sure > >> > > > that I'll feel better when I make a decision than I do > >> > > > right now while trying to figure out what I'll do > >> > > > next. > >> > > > > >> > > > Hugs, > >> > > > > >> > > > Rogene > >> > > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > >Opinions expressed are NOT meant to take the place of advice > >>given > >> > >by licensed health care professionals. Consult your physician or > >> > >licensed health care professional before commencing any medical > >>treatment. > >> > > > >> > > " Do not let either the medical authorities or the politicians > >> > >mislead you. Find out what the facts are, and make your own > >> > >decisions about how to live a happy life and how to work for a > >> > >better world. " - Linus ing, two-time Nobel Prize Winner > >>(1954, > >> > >Chemistry; 1963, Peace) > >> > > > >> > >See our photos website! Enter " implants " for access at this link: > >> > > >> ><<<http://.shutterfly.com/action/>http://salinesupp > ort.shutterfly.com/action/>http://. > >> shutterfly.com/action/><http://.sh>http://.sh > >>utterfly.com/action/ > >> > > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Thanks Lynda . .. I've already rejected Tamoxifen. Too many side effects! . . . The newer drugs are SUPPOSED to have fewer side effects. I have to do more investigating. Before the implant experience, I would have believed anything they told me. Now, I question everything! I wish I could trust again! Love, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Rogene I don't envy you having to make the decision as to how to proceed. But I do believe you are right that God will impress upon you which way to go. When you said that you had hoped that the NCD would have knocked out all your cancer cells, I was wondering how you knew that it didn't. Did they take a biopsy after you had been on the NCD and it still showed cancer cells? I am a little confused on that. What do you think about RM-10 that Jordan Rubin talks about. He shows some statistics with its use and different diseases in one of his books. I can't remember if cancer was one of them. I know he feels it helped his grandma recover from cancer. I am praying for God's guidance for you. Hugs, Kathy > > Thanks Patty and Lynda, > > I spent the day talking to radiologists today . . . I > still have a set of appointments to go, unless I opt > for no treatment, or a six-week course. > > NO CHEMO! . . . NO WAY! . . . > > Statistics show that, with whole breast radiation, and > follow up medication, the chances of reoccurance is > less than 1%. . . Reoccurance without radiation or > medication is about 40%. It could be years before > reoccurance is obvious. Studies of breasts removed via > radical masectomies showed that as many as 70% of > women had cancer cells that weren't apparent yet - > even in women with small tumors. > > I'm torn between counting on NCD to protect me and > going for the safest odds. I had hoped it would have > knocked out the cancer cells. However, the study that > put 78% of Stage IV cancer patients into remission was > done over a one-year period. I know I'll continue NCD > regardless. > > I really can't say what I'm going to do yet! I'm sure > that I'll feel better when I make a decision than I do > right now while trying to figure out what I'll do > next. > > Hugs, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Kathy, The post op pathology report showed there were cancer cells there. . . However, if there is such a things as a good breast cancer, this is it. Still in the duct. Pre-Stage I. - clear margins and clean lymph node. It would probably be easier to decide what to do if it was a more aggressive cancer. . . I don't understand " one size fits all " cancer treatments. I'm trusting that when the time is right, I'll know what to do. Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
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