Re: any one have problem with bladder?

[Guest guest]

Hi Lauri, I'm also 44 and with an older sister who has arthritis and

fibromyalgia. I have RA, and had some symptoms of fibromyalgia in the past,

but years later they went away, and the symptoms of RA appeared, then I was

diagnosed with it. My other sister has a different autoimmune disease

relating to the thyroid. So I do believe it is both contagious (to those in

close contact), and that there is a genetic component also that predisposes

to it. Dr. Nicolson has some comments on the contagiousness of

mycoplasma-related illnesses in relation to his work with Gulf War Syndrome,

have you seen his site? www.immed.org I believe some of the symptoms on the

questionnaire, the one you fill out to send in if you have bloodwork done at

his lab, relate to the bladder. That is somewhere on his site also.

I had problems with my bladder (urgency, frequency, stress

incontinence--ladies, imagine what this was like when I was *also* in the

later stages of my 3 pregnancies, LOL, I was a mess), all my life, but they

were at the worst when the other symptoms I had were most like CFS or

fibromyalgia. They did improve with treatment on tetracyclines, and for the

most part haven't bothered me lately (except for currently which I am going

to ask about below). I ran across a webcast on IC just a couple of days ago,

and my symptoms sound like they could alternatively be early IC symptoms,

but I've never been tested for that. Also, a lot of people on the

fibromyalgia newsgroup have talked about having an irritable bladder. I

firmly believe it is all related. Some of the reactive arthritides are

initiated by bladder pathogens. I wish I could be more specific right now,

but am not in good form at the moment, so please search the archives at

www.egroup.com for terms like " bladder " and " reactive " , and you will find

some good discussions. I hope to get to know you better, soon, as I think

we will have a lot in common, but please excuse me right now because I am

having a lot of problems, and want to take this opportunity to ask the group

about them. I think their responses may help us both, so I'm piggy-backing

on your question here.

I have lots of other things to say to you, but before I forget, you know

about mycoplasma avium, right--the pigeons made me think of that. And I

think they use Biaxin successfully for that with AIDS patients. I would

either get tested for the mycoplasma or get on the antibiotics if I were in

your shoes. And PS I also have a son who had m. pneumoniae pneumonia last

year as a post-flu complication. A lot ofother health issues he has that

we've been struggling with got better for awhile right after he was treated

with Zithromax for that, that are now creeping back in--one of which is some

bladder issues. But I digress. I can see that my fingers are going to get

a workout typing e-mails to you if you are ready and eager to exchange ideas

with me as I am with you. : ) Warning, I do ramble on but usually not as

badly as right now, you will understand why if you read on....

Group, I need some help figuring out what's going on. I've been in a fix

for a couple of weeks, the aftermath of some ongoing dental problems I'm

working on. I'm waiting right now to have a tooth surgically extracted and

it is taking a couple of weeks, as there are only two oral surgeons in my

area, and only one of these takes my government dental insurance. So I've

been taking oral clindy for awhile now, off and on since the work on

re-crowning this tooth began last summer, and lots of pain medication

(variously tylenol3, vicodin, and percodan) while I wait, so that I can

function ( ha!--debatable description of what I'm doing ) on my jobs and

with my family. For the last several days, I've had symptoms of bladder

infection also, urgency, burning, cloudy urine, and an odd but not

necessarily " infectious " odor. Any clues as to how to tell what this is

from?--infection--yeast or bacterial?--medication side effects?--or even the

hard-to-pin-down herxheimer reaction? Any tips or suggestions?

I'm going to try herbal remedy, I think, with something I posted about

during our last discussion on bladder problems, manzanita. I would really

appreciate some other suggestions though. I'm too sleep-deprived,

brain-fogged, dazed and depressed from pain and pain medications, and just

generally exhausted to look up more info myself, so I would really

appreciate it if you could share ideas or a quick review on this now. I'm

getting the tooth out on this coming Wednesday and will probably be off the

current medications after that, but cannot stop them or cut them back right

now, as I'm afraid this dental problem is barely under control. As is the

rest of me, LOL. Grateful thanks in advance, and thanks as always for

putting up with my ramblings, and for being such a good source of knowledge

and comfort. Liz G.

[Guest guest]

Liz,

Sorry you're having so much tooth trouble! Hope it's over soon. Re:

bladder, get a urine test. You don't want to get an infection going in your

system, and then have your arthritis kick up. I don't think yeast would do

that re: cloudiness, and most yeast has a yeasty odor. I think you need to

have your doctor culture it, and then get your antibiotics straightened out

re: teeth and bladder. I know you know all this, but I figured I'd tell you

to do it, in case you're as sick of doctors as I am!

Re: Interstitial Cystitis, I'm an expert on it! I have had bladder problems

for years and doctors believe I have it, but the best one wanted to distend

my bladder under general anesthesia to look for characterisitic pinprick

marks but I passed that up. I have urgency, frequency, and used to have

pressure. I think it is much better since the antibiotics, but it certainly

isn't normal. I believe there is a connection, since I developed bladder

problems, contact lens intolerance, and stiff hands all at once, years

before the Ra. My fingers would be stiff upon awakening until I opened

them, so I actually did have an RA test then (negative, of course). But IC

is an autoimmune disease as well....sooooo. I suspect the bladder, eyes,

and arthritis came together even tho I dont' have infectious arthritis

according to the establishment.

Also, for any of you with bladder issues. Give up all coffee and decaf

coffee as well. The acid in decaf is deadly, and if you give it up you'll

see a tremendous decrease, I hope, in urgency and frequency. Also acidic

food and unbuffered vitamin C are bad also. I take Ester C, which is

buffered and is supposed to be less irritating. Hope this helps.

Take Care.

G.

Re: rheumatic any one have problem with bladder?

> Hi Lauri, I'm also 44 and with an older sister who has arthritis and

> fibromyalgia. I have RA, and had some symptoms of fibromyalgia in the

past,

> but years later they went away, and the symptoms of RA appeared, then I

was

> diagnosed with it. My other sister has a different autoimmune disease

> relating to the thyroid. So I do believe it is both contagious (to those

in

> close contact), and that there is a genetic component also that

predisposes

> to it. Dr. Nicolson has some comments on the contagiousness of

> mycoplasma-related illnesses in relation to his work with Gulf War

Syndrome,

> have you seen his site? www.immed.org I believe some of the symptoms on

the

> questionnaire, the one you fill out to send in if you have bloodwork done

at

> his lab, relate to the bladder. That is somewhere on his site also.

>

> I had problems with my bladder (urgency, frequency, stress

> incontinence--ladies, imagine what this was like when I was *also* in the

> later stages of my 3 pregnancies, LOL, I was a mess), all my life, but

they

> were at the worst when the other symptoms I had were most like CFS or

> fibromyalgia. They did improve with treatment on tetracyclines, and for

the

> most part haven't bothered me lately (except for currently which I am

going

> to ask about below). I ran across a webcast on IC just a couple of days

ago,

> and my symptoms sound like they could alternatively be early IC symptoms,

> but I've never been tested for that. Also, a lot of people on the

> fibromyalgia newsgroup have talked about having an irritable bladder. I

> firmly believe it is all related. Some of the reactive arthritides are

> initiated by bladder pathogens. I wish I could be more specific right

now,

> but am not in good form at the moment, so please search the archives at

> www.egroup.com for terms like " bladder " and " reactive " , and you will find

> some good discussions. I hope to get to know you better, soon, as I think

> we will have a lot in common, but please excuse me right now because I am

> having a lot of problems, and want to take this opportunity to ask the

group

> about them. I think their responses may help us both, so I'm

piggy-backing

> on your question here.

> I have lots of other things to say to you, but before I forget, you know

> about mycoplasma avium, right--the pigeons made me think of that. And I

> think they use Biaxin successfully for that with AIDS patients. I would

> either get tested for the mycoplasma or get on the antibiotics if I were

in

> your shoes. And PS I also have a son who had m. pneumoniae pneumonia

last

> year as a post-flu complication. A lot ofother health issues he has that

> we've been struggling with got better for awhile right after he was

treated

> with Zithromax for that, that are now creeping back in--one of which is

some

> bladder issues. But I digress. I can see that my fingers are going to

get

> a workout typing e-mails to you if you are ready and eager to exchange

ideas

> with me as I am with you. : ) Warning, I do ramble on but usually not

as

> badly as right now, you will understand why if you read on....

>

> Group, I need some help figuring out what's going on. I've been in a fix

> for a couple of weeks, the aftermath of some ongoing dental problems I'm

> working on. I'm waiting right now to have a tooth surgically extracted

and

> it is taking a couple of weeks, as there are only two oral surgeons in my

> area, and only one of these takes my government dental insurance. So I've

> been taking oral clindy for awhile now, off and on since the work on

> re-crowning this tooth began last summer, and lots of pain medication

> (variously tylenol3, vicodin, and percodan) while I wait, so that I can

> function ( ha!--debatable description of what I'm doing ) on my jobs and

> with my family. For the last several days, I've had symptoms of bladder

> infection also, urgency, burning, cloudy urine, and an odd but not

> necessarily " infectious " odor. Any clues as to how to tell what this is

> from?--infection--yeast or bacterial?--medication side effects?--or even

the

> hard-to-pin-down herxheimer reaction? Any tips or suggestions?

> I'm going to try herbal remedy, I think, with something I posted about

> during our last discussion on bladder problems, manzanita. I would really

> appreciate some other suggestions though. I'm too sleep-deprived,

> brain-fogged, dazed and depressed from pain and pain medications, and just

> generally exhausted to look up more info myself, so I would really

> appreciate it if you could share ideas or a quick review on this now. I'm

> getting the tooth out on this coming Wednesday and will probably be off

the

> current medications after that, but cannot stop them or cut them back

right

> now, as I'm afraid this dental problem is barely under control. As is the

> rest of me, LOL. Grateful thanks in advance, and thanks as always for

> putting up with my ramblings, and for being such a good source of

knowledge

> and comfort. Liz G.

>

>

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