Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Hi Karima I think you're making a smart choice to go ahead with the surgery. Your surgeon has probably seen a number of cases where the radiation didn't make much difference in the size of the tumor. The oncologist will get over it. I think it's important to have chemo after the surgery though - even if the margins and the lymph nodes are clear, the chemo can clean up any stray cells that can't be detected with the methods available today. Take care! P Barbara Gari wrote: Hi Joyce Xeloda is the chemo the doc gave me a prescription for. I went to see the surgeon again today and have decided to go ahead with the surgery. We have set a date for July 27th which is 4 weeks; he wants me to have a cardiac workup just to make sure I won't have a problem during the operation. He doesn't know me so...I guess this is an okay thing. Tomorrow both the oncologist and chemotherapist have asked me to come in .. I think they want to plead their case; I am also seeing my regular physician so as to get the plan firmed up in my head. Afterall, he recommended all of them. I am so sorry for what your husband is going through. I guess we can second guess ourselves forever. In any event the plan is set. And I will definitely be corresponding on the list. Thanks again, Karima -- Re: diagnosed May 27th. I'm glad I found you > ... > > Karima, > I agree with about the radiation. My husband had a 2cm tumor > in the rectum. He had 6 weeks of chemo 24hrs a day 7days a week via > pump. He also had at the same time radiation to shrink the tumor. > We were never given the option of a ultrasound to see if it had > invaded the wall. They told us at the time the only way to tell was > to remove the tumor. > They removed 24 lymph nodes and all were negative. We wanted follow > up chemo and they said he was cured. Wrong, it came back exactly one > year later. His tumor did penetrate the wall but did not go all the > way thru. The radiation did some really bad damage and did not > shrink the tumor a lot. He developed a fistula that bonded the > bladder to the wall of the colon and caused permanent damage. If he > were given the chance again he said he would go for the surgery and > not wasted any more time. He still has problems with his bladder > control and constantly has to monitor for infections. He was > actually passing gas thru the penis. At the time we thought we were > doing the right thing because it was even written in the medical > magazines that this was the way to go. Hindsite is 20 20 and we > just have to deal with our mistakes and go on. > I agree with others, I just wish we had found this message group and > I think we would have made wiser desicions. If they are 100% sure > that your has not penetrated the wall I would jump at the surgery > option first. > Best Wishes, > Joyce > > I believe we can beat this cancer, the thing is to get a consensus > > amongst doctors. > > > > > > Karima. > > > > > > > > P > > Caregiver to husband, Dale, who is 73 and undergoing chemotherapy > for Stage IV rectal cancer diagnosed in 2002 > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Karima, could not have said it any better. It sounds like you are making a wise choice to me. I would even try to get the surgeon to speed up the surgery, time is precious. As far as the Xeloda, I think you will do just fine with it. Let us know if we can give you any more advise and please keep us informed as to your progress. Best Wishes and Good Luck, Joyce- -- In colon_cancer_support , Perkins <antivon@y...> wrote: > Hi Karima > I think you're making a smart choice to go ahead with the surgery. Your surgeon has probably seen a number of cases where the radiation didn't make much difference in the size of the tumor. The oncologist will get over it. I think it's important to have chemo after the surgery though - even if the margins and the lymph nodes are clear, the chemo can clean up any stray cells that can't be detected with the methods available today. Take care! > P > > > Barbara Gari <Karima@w...> wrote: > Hi Joyce > Xeloda is the chemo the doc gave me a prescription for. > > I went to see the surgeon again today and have decided to go ahead with > the surgery. We have set a date for July 27th which is 4 weeks; he wants me > to have a cardiac workup just to make sure I won't have a problem during the > operation. He doesn't know me so...I guess this is an okay thing. > > Tomorrow both the oncologist and chemotherapist have asked me to come in .. > I think they want to plead their case; I am also seeing my regular physician > so as to get the plan firmed up in my head. Afterall, he recommended all of > them. > > I am so sorry for what your husband is going through. > > I guess we can second guess ourselves forever. > > In any event the plan is set. And I will definitely be corresponding on the > list. > > Thanks again, > Karima > > -- Re: diagnosed May 27th. I'm glad I > found you > > ... > > > > Karima, > > I agree with about the radiation. My husband had a 2cm > tumor > > in the rectum. He had 6 weeks of chemo 24hrs a day 7days a week > via > > pump. He also had at the same time radiation to shrink the > tumor. > > We were never given the option of a ultrasound to see if it had > > invaded the wall. They told us at the time the only way to tell > was > > to remove the tumor. > > They removed 24 lymph nodes and all were negative. We wanted > follow > > up chemo and they said he was cured. Wrong, it came back exactly > one > > year later. His tumor did penetrate the wall but did not go all > the > > way thru. The radiation did some really bad damage and did not > > shrink the tumor a lot. He developed a fistula that bonded the > > bladder to the wall of the colon and caused permanent damage. If > he > > were given the chance again he said he would go for the surgery > and > > not wasted any more time. He still has problems with his bladder > > control and constantly has to monitor for infections. He was > > actually passing gas thru the penis. At the time we thought we > were > > doing the right thing because it was even written in the medical > > magazines that this was the way to go. Hindsite is 20 20 and we > > just have to deal with our mistakes and go on. > > I agree with others, I just wish we had found this message group > and > > I think we would have made wiser desicions. If they are 100% sure > > that your has not penetrated the wall I would jump at the surgery > > option first. > > Best Wishes, > > Joyce > > > I believe we can beat this cancer, the thing is to get a > consensus > > > amongst doctors. > > > > > > > > > Karima. > > > > > > > > > > > > P > > > Caregiver to husband, Dale, who is 73 and undergoing > chemotherapy > > for Stage IV rectal cancer diagnosed in 2002 > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Karima, could not have said it any better. It sounds like you are making a wise choice to me. I would even try to get the surgeon to speed up the surgery, time is precious. As far as the Xeloda, I think you will do just fine with it. Let us know if we can give you any more advise and please keep us informed as to your progress. Best Wishes and Good Luck, Joyce- -- In colon_cancer_support , Perkins <antivon@y...> wrote: > Hi Karima > I think you're making a smart choice to go ahead with the surgery. Your surgeon has probably seen a number of cases where the radiation didn't make much difference in the size of the tumor. The oncologist will get over it. I think it's important to have chemo after the surgery though - even if the margins and the lymph nodes are clear, the chemo can clean up any stray cells that can't be detected with the methods available today. Take care! > P > > > Barbara Gari <Karima@w...> wrote: > Hi Joyce > Xeloda is the chemo the doc gave me a prescription for. > > I went to see the surgeon again today and have decided to go ahead with > the surgery. We have set a date for July 27th which is 4 weeks; he wants me > to have a cardiac workup just to make sure I won't have a problem during the > operation. He doesn't know me so...I guess this is an okay thing. > > Tomorrow both the oncologist and chemotherapist have asked me to come in .. > I think they want to plead their case; I am also seeing my regular physician > so as to get the plan firmed up in my head. Afterall, he recommended all of > them. > > I am so sorry for what your husband is going through. > > I guess we can second guess ourselves forever. > > In any event the plan is set. And I will definitely be corresponding on the > list. > > Thanks again, > Karima > > -- Re: diagnosed May 27th. I'm glad I > found you > > ... > > > > Karima, > > I agree with about the radiation. My husband had a 2cm > tumor > > in the rectum. He had 6 weeks of chemo 24hrs a day 7days a week > via > > pump. He also had at the same time radiation to shrink the > tumor. > > We were never given the option of a ultrasound to see if it had > > invaded the wall. They told us at the time the only way to tell > was > > to remove the tumor. > > They removed 24 lymph nodes and all were negative. We wanted > follow > > up chemo and they said he was cured. Wrong, it came back exactly > one > > year later. His tumor did penetrate the wall but did not go all > the > > way thru. The radiation did some really bad damage and did not > > shrink the tumor a lot. He developed a fistula that bonded the > > bladder to the wall of the colon and caused permanent damage. If > he > > were given the chance again he said he would go for the surgery > and > > not wasted any more time. He still has problems with his bladder > > control and constantly has to monitor for infections. He was > > actually passing gas thru the penis. At the time we thought we > were > > doing the right thing because it was even written in the medical > > magazines that this was the way to go. Hindsite is 20 20 and we > > just have to deal with our mistakes and go on. > > I agree with others, I just wish we had found this message group > and > > I think we would have made wiser desicions. If they are 100% sure > > that your has not penetrated the wall I would jump at the surgery > > option first. > > Best Wishes, > > Joyce > > > I believe we can beat this cancer, the thing is to get a > consensus > > > amongst doctors. > > > > > > > > > Karima. > > > > > > > > > > > > P > > > Caregiver to husband, Dale, who is 73 and undergoing > chemotherapy > > for Stage IV rectal cancer diagnosed in 2002 > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Karima, could not have said it any better. It sounds like you are making a wise choice to me. I would even try to get the surgeon to speed up the surgery, time is precious. As far as the Xeloda, I think you will do just fine with it. Let us know if we can give you any more advise and please keep us informed as to your progress. Best Wishes and Good Luck, Joyce- -- In colon_cancer_support , Perkins <antivon@y...> wrote: > Hi Karima > I think you're making a smart choice to go ahead with the surgery. Your surgeon has probably seen a number of cases where the radiation didn't make much difference in the size of the tumor. The oncologist will get over it. I think it's important to have chemo after the surgery though - even if the margins and the lymph nodes are clear, the chemo can clean up any stray cells that can't be detected with the methods available today. Take care! > P > > > Barbara Gari <Karima@w...> wrote: > Hi Joyce > Xeloda is the chemo the doc gave me a prescription for. > > I went to see the surgeon again today and have decided to go ahead with > the surgery. We have set a date for July 27th which is 4 weeks; he wants me > to have a cardiac workup just to make sure I won't have a problem during the > operation. He doesn't know me so...I guess this is an okay thing. > > Tomorrow both the oncologist and chemotherapist have asked me to come in .. > I think they want to plead their case; I am also seeing my regular physician > so as to get the plan firmed up in my head. Afterall, he recommended all of > them. > > I am so sorry for what your husband is going through. > > I guess we can second guess ourselves forever. > > In any event the plan is set. And I will definitely be corresponding on the > list. > > Thanks again, > Karima > > -- Re: diagnosed May 27th. I'm glad I > found you > > ... > > > > Karima, > > I agree with about the radiation. My husband had a 2cm > tumor > > in the rectum. He had 6 weeks of chemo 24hrs a day 7days a week > via > > pump. He also had at the same time radiation to shrink the > tumor. > > We were never given the option of a ultrasound to see if it had > > invaded the wall. They told us at the time the only way to tell > was > > to remove the tumor. > > They removed 24 lymph nodes and all were negative. We wanted > follow > > up chemo and they said he was cured. Wrong, it came back exactly > one > > year later. His tumor did penetrate the wall but did not go all > the > > way thru. The radiation did some really bad damage and did not > > shrink the tumor a lot. He developed a fistula that bonded the > > bladder to the wall of the colon and caused permanent damage. If > he > > were given the chance again he said he would go for the surgery > and > > not wasted any more time. He still has problems with his bladder > > control and constantly has to monitor for infections. He was > > actually passing gas thru the penis. At the time we thought we > were > > doing the right thing because it was even written in the medical > > magazines that this was the way to go. Hindsite is 20 20 and we > > just have to deal with our mistakes and go on. > > I agree with others, I just wish we had found this message group > and > > I think we would have made wiser desicions. If they are 100% sure > > that your has not penetrated the wall I would jump at the surgery > > option first. > > Best Wishes, > > Joyce > > > I believe we can beat this cancer, the thing is to get a > consensus > > > amongst doctors. > > > > > > > > > Karima. > > > > > > > > > > > > P > > > Caregiver to husband, Dale, who is 73 and undergoing > chemotherapy > > for Stage IV rectal cancer diagnosed in 2002 > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Hi Joyce Xeloda is the chemo the doc gave me a prescription for. I went to see the surgeon again today and have decided to go ahead with the surgery. We have set a date for July 27th which is 4 weeks; he wants me to have a cardiac workup just to make sure I won't have a problem during the operation. He doesn't know me so...I guess this is an okay thing. Tomorrow both the oncologist and chemotherapist have asked me to come in .. I think they want to plead their case; I am also seeing my regular physician so as to get the plan firmed up in my head. Afterall, he recommended all of them. I am so sorry for what your husband is going through. I guess we can second guess ourselves forever. In any event the plan is set. And I will definitely be corresponding on the list. Thanks again, Karima -- Re: diagnosed May 27th. I'm glad I found you > ... > > Karima, > I agree with about the radiation. My husband had a 2cm tumor > in the rectum. He had 6 weeks of chemo 24hrs a day 7days a week via > pump. He also had at the same time radiation to shrink the tumor. > We were never given the option of a ultrasound to see if it had > invaded the wall. They told us at the time the only way to tell was > to remove the tumor. > They removed 24 lymph nodes and all were negative. We wanted follow > up chemo and they said he was cured. Wrong, it came back exactly one > year later. His tumor did penetrate the wall but did not go all the > way thru. The radiation did some really bad damage and did not > shrink the tumor a lot. He developed a fistula that bonded the > bladder to the wall of the colon and caused permanent damage. If he > were given the chance again he said he would go for the surgery and > not wasted any more time. He still has problems with his bladder > control and constantly has to monitor for infections. He was > actually passing gas thru the penis. At the time we thought we were > doing the right thing because it was even written in the medical > magazines that this was the way to go. Hindsite is 20 20 and we > just have to deal with our mistakes and go on. > I agree with others, I just wish we had found this message group and > I think we would have made wiser desicions. If they are 100% sure > that your has not penetrated the wall I would jump at the surgery > option first. > Best Wishes, > Joyce > > I believe we can beat this cancer, the thing is to get a consensus > > amongst doctors. > > > > > > Karima. > > > > > > > > P > > Caregiver to husband, Dale, who is 73 and undergoing chemotherapy > for Stage IV rectal cancer diagnosed in 2002 > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Karima-I had to have radiation therapy because I had a mid rectal tumor that had broken through the wall and was starting to attach to adjacent tissue. Shrinkage did allow them to remove my primary tumor. As others have said, in cases where the tumor is less advanced, the answers may be less clear cut. That is where an experienced colorectal surgeon and sometimes second opinions can be helpful in making decisions. It sounds like you have found someone who comes highly regarded, and that is a big plus. I would encourage your oncologist to talk to the surgeon so that your oncologist can discuss his concerns directly with the surgeon and see if they can get on the same page. Radiation prior to surgery does make the surgeon's job a bit more difficult as it slows the rate of healing of surgical wounds. It is very common for surgeons to make a temporary ileostomy to bypass the site of surgery (especially after radiation) to allow the surgical site to heal fully and reduce the risk of breakdown of the surgical site. Most of the time, even if the surgeon is pretty certain they will be able to spare the anal sphincter, they have an ostomy nurse discuss colostomies with you as well, and mark a spot to place a colostomy, so that, if they find, when they actually are at surgery that that a creation of a colostomy would be necessary in order to be able to remove the tumor more completely they can place it at a position that will make care easiest. As mentioned, sometimes recovery of sphincter tone can take a while or may never be completely regained. I would talk with the surgeon carefully about how much difficulty you may have post operatively and in the future with sphincter tone. I had much more advanced disease, (Stage 4) and chose to keep my ileostomy, because I did not want to have to deal with the long rehabilitation, frequent bowel movements that would have made my ability to travel and enjoy life more difficult. I have had my ileostomy for almost 2 yrs and find it little trouble to care for. I can sympathize with your living situation. I am single and I lived by myself 500 miles from my two sisters during the first year of my diagnosis and during my 2 surgeries. My sister flew out to stay with me during my two surgeries and for a week after. In the interim, my friends and coworkers were wonderful. While, I actually made it through the routine trips for radiation, chemotherapy most other appointments and procedures most of the time completely on my own, their encouragement and the knowledge that they were available at any time should I need them gave me a great deal of peace of mind. There are plenty of people in the same situation as you and I. You may want to discuss your living situation with either a social worker or one of the oncology nurses to find out what resourses may be available for you. There are groups in some areas for instance that will provide transportation to or from appointments if you are unable to drive, etc. Despite their very generous offers, my friends were pretty busy with their own families and work however, and I know that helping out if a person is ill for a long time can be an awefully big job. I therefore talked with my oncologist's nurses about my situation so that I could make contingency plans. I checked into services that could provide part time assistance at home if it would become necessary. I tried to plan how I could deal with things if I could not manage to climb stairs in my townhouse for a while, etc. None of this became necessary. I did hire a cleaning service to clean my house. That was a big help. Pets are great for lifting one's spirits. I have a cat who is great company, but no dogs. One of my friends however would frequently show up at my door while I was recuperating, with her silly dog that always is wanting to go for a walk. I know I got up and out and exercising much more than I would have otherwise, speeding my recovery. If your dogs require a lot of physical energy to care for, you might want to ask if any staff at your regular vets would be interested in helping out pet sitting or just taking them out for an extra long walk if you are unable, and they are going a little crazy for more exercise. Having backup plans like this in place early on, even if they ultimately prove unneeded, gives additional peace of mind and allow you to spend your energy on beating this thing, which it sounds like you have a good chance of doing. Best wishes for a smooth treatment and recovery. Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Dear , Yes, once the surgery is completed and additional biopsies take of the surrounding tissue, there still may be radiation and there definitely will be chemo therapy. Thanks for your support. This list helped me clear the fuzz out of my brain Thanks to all. Karima -- Re: diagnosed May 27th. I'm glad I found you > ... > > Karima, > I agree with about the radiation. My husband had a 2cm tumor > in the rectum. He had 6 weeks of chemo 24hrs a day 7days a week via > pump. He also had at the same time radiation to shrink the tumor. > We were never given the option of a ultrasound to see if it had > invaded the wall. They told us at the time the only way to tell was > to remove the tumor. > They removed 24 lymph nodes and all were negative. We wanted follow > up chemo and they said he was cured. Wrong, it came back exactly one > year later. His tumor did penetrate the wall but did not go all the > way thru. The radiation did some really bad damage and did not > shrink the tumor a lot. He developed a fistula that bonded the > bladder to the wall of the colon and caused permanent damage. If he > were given the chance again he said he would go for the surgery and > not wasted any more time. He still has problems with his bladder > control and constantly has to monitor for infections. He was > actually passing gas thru the penis. At the time we thought we were > doing the right thing because it was even written in the medical > magazines that this was the way to go. Hindsite is 20 20 and we > just have to deal with our mistakes and go on. > I agree with others, I just wish we had found this message group and > I think we would have made wiser desicions. If they are 100% sure > that your has not penetrated the wall I would jump at the surgery > option first. > Best Wishes, > Joyce > > I believe we can beat this cancer, the thing is to get a consensus > > amongst doctors. > > > > > > Karima. > > > > > > > > P > > Caregiver to husband, Dale, who is 73 and undergoing chemotherapy > for Stage IV rectal cancer diagnosed in 2002 > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Yes, I am going to ask my primary physician today if he can get his surgeon to forego this stress/cardio stuff. We shall see. I guess I only have so much control. If it was up to me I would go today. Karima -- Re: diagnosed May 27th. I'm glad I > found you > > ... > > > > Karima, > > I agree with about the radiation. My husband had a 2cm > tumor > > in the rectum. He had 6 weeks of chemo 24hrs a day 7days a week > via > > pump. He also had at the same time radiation to shrink the > tumor. > > We were never given the option of a ultrasound to see if it had > > invaded the wall. They told us at the time the only way to tell > was > > to remove the tumor. > > They removed 24 lymph nodes and all were negative. We wanted > follow > > up chemo and they said he was cured. Wrong, it came back exactly > one > > year later. His tumor did penetrate the wall but did not go all > the > > way thru. The radiation did some really bad damage and did not > > shrink the tumor a lot. He developed a fistula that bonded the > > bladder to the wall of the colon and caused permanent damage. If > he > > were given the chance again he said he would go for the surgery > and > > not wasted any more time. He still has problems with his bladder > > control and constantly has to monitor for infections. He was > > actually passing gas thru the penis. At the time we thought we > were > > doing the right thing because it was even written in the medical > > magazines that this was the way to go. Hindsite is 20 20 and we > > just have to deal with our mistakes and go on. > > I agree with others, I just wish we had found this message group > and > > I think we would have made wiser desicions. If they are 100% sure > > that your has not penetrated the wall I would jump at the surgery > > option first. > > Best Wishes, > > Joyce > > > I believe we can beat this cancer, the thing is to get a > consensus > > > amongst doctors. > > > > > > > > > Karima. > > > > > > > > > > > > P > > > Caregiver to husband, Dale, who is 73 and undergoing > chemotherapy > > for Stage IV rectal cancer diagnosed in 2002 > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Dear Rene, Yes this is the same Dr. Moskowicz. He is the second surgeon. Both my primary care physician and the first surgeon I went to sent me to him. I would like to call you before I go out today. I am jumping in the shower now and have an appointment in less than 45 minutes. I am feeling alarm...did I misread something? Karima Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Hi Karima, I know it is a pain but I wouldn't forgo the cardio workup. My dad had a pacemaker for 15+ years and the liver surgeon wanted a workup before he would do a resection. He came through the surgery fine. One year later he had to have another colon resection and they skimped on the workup. He ended up dying of complications from ARDS. I think there were many factors that caused that but in hindsight I wish they had done a more thorough workup prior to the surgery - one that also contained a chest x-ray. Kathy L. Re: diagnosed May 27th. I'm glad I > found you > > ... > > > > Karima, > > I agree with about the radiation. My husband had a 2cm > tumor > > in the rectum. He had 6 weeks of chemo 24hrs a day 7days a week > via > > pump. He also had at the same time radiation to shrink the > tumor. > > We were never given the option of a ultrasound to see if it had > > invaded the wall. They told us at the time the only way to tell > was > > to remove the tumor. > > They removed 24 lymph nodes and all were negative. We wanted > follow > > up chemo and they said he was cured. Wrong, it came back exactly > one > > year later. His tumor did penetrate the wall but did not go all > the > > way thru. The radiation did some really bad damage and did not > > shrink the tumor a lot. He developed a fistula that bonded the > > bladder to the wall of the colon and caused permanent damage. If > he > > were given the chance again he said he would go for the surgery > and > > not wasted any more time. He still has problems with his bladder > > control and constantly has to monitor for infections. He was > > actually passing gas thru the penis. At the time we thought we > were > > doing the right thing because it was even written in the medical > > magazines that this was the way to go. Hindsite is 20 20 and we > > just have to deal with our mistakes and go on. > > I agree with others, I just wish we had found this message group > and > > I think we would have made wiser desicions. If they are 100% sure > > that your has not penetrated the wall I would jump at the surgery > > option first. > > Best Wishes, > > Joyce > > > I believe we can beat this cancer, the thing is to get a > consensus > > > amongst doctors. > > > > > > > > > Karima. > > > > > > > > > > > > P > > > Caregiver to husband, Dale, who is 73 and undergoing > chemotherapy > > for Stage IV rectal cancer diagnosed in 2002 > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Hi Karima, I know it is a pain but I wouldn't forgo the cardio workup. My dad had a pacemaker for 15+ years and the liver surgeon wanted a workup before he would do a resection. He came through the surgery fine. One year later he had to have another colon resection and they skimped on the workup. He ended up dying of complications from ARDS. I think there were many factors that caused that but in hindsight I wish they had done a more thorough workup prior to the surgery - one that also contained a chest x-ray. Kathy L. Re: diagnosed May 27th. I'm glad I > found you > > ... > > > > Karima, > > I agree with about the radiation. My husband had a 2cm > tumor > > in the rectum. He had 6 weeks of chemo 24hrs a day 7days a week > via > > pump. He also had at the same time radiation to shrink the > tumor. > > We were never given the option of a ultrasound to see if it had > > invaded the wall. They told us at the time the only way to tell > was > > to remove the tumor. > > They removed 24 lymph nodes and all were negative. We wanted > follow > > up chemo and they said he was cured. Wrong, it came back exactly > one > > year later. His tumor did penetrate the wall but did not go all > the > > way thru. The radiation did some really bad damage and did not > > shrink the tumor a lot. He developed a fistula that bonded the > > bladder to the wall of the colon and caused permanent damage. If > he > > were given the chance again he said he would go for the surgery > and > > not wasted any more time. He still has problems with his bladder > > control and constantly has to monitor for infections. He was > > actually passing gas thru the penis. At the time we thought we > were > > doing the right thing because it was even written in the medical > > magazines that this was the way to go. Hindsite is 20 20 and we > > just have to deal with our mistakes and go on. > > I agree with others, I just wish we had found this message group > and > > I think we would have made wiser desicions. If they are 100% sure > > that your has not penetrated the wall I would jump at the surgery > > option first. > > Best Wishes, > > Joyce > > > I believe we can beat this cancer, the thing is to get a > consensus > > > amongst doctors. > > > > > > > > > Karima. > > > > > > > > > > > > P > > > Caregiver to husband, Dale, who is 73 and undergoing > chemotherapy > > for Stage IV rectal cancer diagnosed in 2002 > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Hi Karima, I know it is a pain but I wouldn't forgo the cardio workup. My dad had a pacemaker for 15+ years and the liver surgeon wanted a workup before he would do a resection. He came through the surgery fine. One year later he had to have another colon resection and they skimped on the workup. He ended up dying of complications from ARDS. I think there were many factors that caused that but in hindsight I wish they had done a more thorough workup prior to the surgery - one that also contained a chest x-ray. Kathy L. Re: diagnosed May 27th. I'm glad I > found you > > ... > > > > Karima, > > I agree with about the radiation. My husband had a 2cm > tumor > > in the rectum. He had 6 weeks of chemo 24hrs a day 7days a week > via > > pump. He also had at the same time radiation to shrink the > tumor. > > We were never given the option of a ultrasound to see if it had > > invaded the wall. They told us at the time the only way to tell > was > > to remove the tumor. > > They removed 24 lymph nodes and all were negative. We wanted > follow > > up chemo and they said he was cured. Wrong, it came back exactly > one > > year later. His tumor did penetrate the wall but did not go all > the > > way thru. The radiation did some really bad damage and did not > > shrink the tumor a lot. He developed a fistula that bonded the > > bladder to the wall of the colon and caused permanent damage. If > he > > were given the chance again he said he would go for the surgery > and > > not wasted any more time. He still has problems with his bladder > > control and constantly has to monitor for infections. He was > > actually passing gas thru the penis. At the time we thought we > were > > doing the right thing because it was even written in the medical > > magazines that this was the way to go. Hindsite is 20 20 and we > > just have to deal with our mistakes and go on. > > I agree with others, I just wish we had found this message group > and > > I think we would have made wiser desicions. If they are 100% sure > > that your has not penetrated the wall I would jump at the surgery > > option first. > > Best Wishes, > > Joyce > > > I believe we can beat this cancer, the thing is to get a > consensus > > > amongst doctors. > > > > > > > > > Karima. > > > > > > > > > > > > P > > > Caregiver to husband, Dale, who is 73 and undergoing > chemotherapy > > for Stage IV rectal cancer diagnosed in 2002 > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 Karima, I am so sorry that I have not been able to get in a read my e-mail. This was the week for Glen my husband to have chemo, it's a long week for both of us. Please send me you phone number and a good time to call to rdrake@direcway com I will make every effort to check my e-mail regular for the next few days. Rene -- Re: Re: diagnosed May 27th. I'm glad I found you ... Dear Rene, Yes this is the same Dr. Moskowicz. He is the second surgeon. Both my primary care physician and the first surgeon I went to sent me to him. I would like to call you before I go out today. I am jumping in the shower now and have an appointment in less than 45 minutes. I am feeling alarm...did I misread something? Karima Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 Karima, I am so sorry that I have not been able to get in a read my e-mail. This was the week for Glen my husband to have chemo, it's a long week for both of us. Please send me you phone number and a good time to call to rdrake@direcway com I will make every effort to check my e-mail regular for the next few days. Rene -- Re: Re: diagnosed May 27th. I'm glad I found you ... Dear Rene, Yes this is the same Dr. Moskowicz. He is the second surgeon. Both my primary care physician and the first surgeon I went to sent me to him. I would like to call you before I go out today. I am jumping in the shower now and have an appointment in less than 45 minutes. I am feeling alarm...did I misread something? Karima Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 Karima, I am so sorry that I have not been able to get in a read my e-mail. This was the week for Glen my husband to have chemo, it's a long week for both of us. Please send me you phone number and a good time to call to rdrake@direcway com I will make every effort to check my e-mail regular for the next few days. Rene -- Re: Re: diagnosed May 27th. I'm glad I found you ... Dear Rene, Yes this is the same Dr. Moskowicz. He is the second surgeon. Both my primary care physician and the first surgeon I went to sent me to him. I would like to call you before I go out today. I am jumping in the shower now and have an appointment in less than 45 minutes. I am feeling alarm...did I misread something? Karima Quote Link to comment Share on other sites More sharing options...
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