Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 Thanks I'll check it out. I was sure they did have aids that only amplified high frequencies. How do I get someone who will order them though they still want to call him boarderline, but 30 dB is not boarderline for a child Yes it is mild but not boarderline, 20 dB would be boarderline which he is in the lower frequencies and 26 in the other ear. Geez!!! I will check out that book too, it sounds good. -- Re: Approved for CCRS Just wanted to let you know , that my son Ian wears digital aids for high frequency loss ONLY.. they can program the digital aids to amplify only what your son needs. ALSO, on the school issue... get the book " NO CHILD LEFT BEHIND " , that comes from a Mom of a child with Angelman's Syndrome who had to fight for her son's rights to get a public funded education. -- Thanks, Tillery Birmingham, AL Ian (3-1/2 yrs HI Moderate/Severe - Aids) Emma (7 yrs Hearing) on 1/6/04 1:11 PM, Joe & at enriquez16@... wrote: > Can anyone tell me if this is true? > I was under the impression that they had aids that only amplify the high > frequencies, and you don't have to have a low frequency loss to wear them. > I think she is thinking standard aids and not specifically high frequency > ones. I don't know, and most on here aren't dealing with a low dB loss like > we are. She also said they start aiding usually at 30 dB, but not in this > case, but I questioned her on this about how kids show adverse effects > educationally with a 16 dB loss, and she was like yes but they don't aid > them. Well maybe they don't but many people do, and I am a little anoyd > that they don't. All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 Thanks I'll check it out. I was sure they did have aids that only amplified high frequencies. How do I get someone who will order them though they still want to call him boarderline, but 30 dB is not boarderline for a child Yes it is mild but not boarderline, 20 dB would be boarderline which he is in the lower frequencies and 26 in the other ear. Geez!!! I will check out that book too, it sounds good. -- Re: Approved for CCRS Just wanted to let you know , that my son Ian wears digital aids for high frequency loss ONLY.. they can program the digital aids to amplify only what your son needs. ALSO, on the school issue... get the book " NO CHILD LEFT BEHIND " , that comes from a Mom of a child with Angelman's Syndrome who had to fight for her son's rights to get a public funded education. -- Thanks, Tillery Birmingham, AL Ian (3-1/2 yrs HI Moderate/Severe - Aids) Emma (7 yrs Hearing) on 1/6/04 1:11 PM, Joe & at enriquez16@... wrote: > Can anyone tell me if this is true? > I was under the impression that they had aids that only amplify the high > frequencies, and you don't have to have a low frequency loss to wear them. > I think she is thinking standard aids and not specifically high frequency > ones. I don't know, and most on here aren't dealing with a low dB loss like > we are. She also said they start aiding usually at 30 dB, but not in this > case, but I questioned her on this about how kids show adverse effects > educationally with a 16 dB loss, and she was like yes but they don't aid > them. Well maybe they don't but many people do, and I am a little anoyd > that they don't. All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 Thanks I'll check it out. I was sure they did have aids that only amplified high frequencies. How do I get someone who will order them though they still want to call him boarderline, but 30 dB is not boarderline for a child Yes it is mild but not boarderline, 20 dB would be boarderline which he is in the lower frequencies and 26 in the other ear. Geez!!! I will check out that book too, it sounds good. -- Re: Approved for CCRS Just wanted to let you know , that my son Ian wears digital aids for high frequency loss ONLY.. they can program the digital aids to amplify only what your son needs. ALSO, on the school issue... get the book " NO CHILD LEFT BEHIND " , that comes from a Mom of a child with Angelman's Syndrome who had to fight for her son's rights to get a public funded education. -- Thanks, Tillery Birmingham, AL Ian (3-1/2 yrs HI Moderate/Severe - Aids) Emma (7 yrs Hearing) on 1/6/04 1:11 PM, Joe & at enriquez16@... wrote: > Can anyone tell me if this is true? > I was under the impression that they had aids that only amplify the high > frequencies, and you don't have to have a low frequency loss to wear them. > I think she is thinking standard aids and not specifically high frequency > ones. I don't know, and most on here aren't dealing with a low dB loss like > we are. She also said they start aiding usually at 30 dB, but not in this > case, but I questioned her on this about how kids show adverse effects > educationally with a 16 dB loss, and she was like yes but they don't aid > them. Well maybe they don't but many people do, and I am a little anoyd > that they don't. All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 Where do you find these audi's. Everyone I have ever seen is not only unwilling to amplify but they are reluctant to say there is even a problem even though there is. What is up with this, I get so frustrated, like they are purposfully pulling the vail over their eyes. Probably they just don't understand. -- Re: Approved for CCRS That's an idea... Ian was thought to have CAPD by his speech therapist in the beginning & his AIDB (AL Institute for Deaf & Blind) Speech Therapist told me that digital hearing aids would help this condition, as well as help him if it was just a hearing loss we were facing. So either way digital aids are the way to go. -- Thanks, Tillery Birmingham, AL Ian (3-1/2 yrs HI Moderate/Severe - Aids) Emma (7 yrs Hearing) on 1/6/04 1:19 PM, E. Mapa at maryemapa@... wrote: > Have your doctors looked into having auditory neuropathy? > Or CAPD? > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 Where do you find these audi's. Everyone I have ever seen is not only unwilling to amplify but they are reluctant to say there is even a problem even though there is. What is up with this, I get so frustrated, like they are purposfully pulling the vail over their eyes. Probably they just don't understand. -- Re: Approved for CCRS That's an idea... Ian was thought to have CAPD by his speech therapist in the beginning & his AIDB (AL Institute for Deaf & Blind) Speech Therapist told me that digital hearing aids would help this condition, as well as help him if it was just a hearing loss we were facing. So either way digital aids are the way to go. -- Thanks, Tillery Birmingham, AL Ian (3-1/2 yrs HI Moderate/Severe - Aids) Emma (7 yrs Hearing) on 1/6/04 1:19 PM, E. Mapa at maryemapa@... wrote: > Have your doctors looked into having auditory neuropathy? > Or CAPD? > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 Where do you find these audi's. Everyone I have ever seen is not only unwilling to amplify but they are reluctant to say there is even a problem even though there is. What is up with this, I get so frustrated, like they are purposfully pulling the vail over their eyes. Probably they just don't understand. -- Re: Approved for CCRS That's an idea... Ian was thought to have CAPD by his speech therapist in the beginning & his AIDB (AL Institute for Deaf & Blind) Speech Therapist told me that digital hearing aids would help this condition, as well as help him if it was just a hearing loss we were facing. So either way digital aids are the way to go. -- Thanks, Tillery Birmingham, AL Ian (3-1/2 yrs HI Moderate/Severe - Aids) Emma (7 yrs Hearing) on 1/6/04 1:19 PM, E. Mapa at maryemapa@... wrote: > Have your doctors looked into having auditory neuropathy? > Or CAPD? > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 I would call the University of Arizona. > >Where do you find these audi's. Everyone I have ever seen is not only >unwilling to amplify but they are reluctant to say there is even a problem >even though there is. What is up with this, I get so frustrated, like they >are purposfully pulling _________________________________________________________________ Tired of slow downloads? Compare online deals from your local high-speed providers now. https://broadband.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 I've been there they insist that 30 dB isn't that bad and that's that, they won't even consider aiding him and even insisted he didn't need an FM system that we should just use one of those amplifiers. Those things have really poor sound quality and pick up a lot of background noise which we actually want to minimize which would be the point of the FM system. They blow off the fact that one of his OAE's are missing and insist that he is learning impaired and that is why he has so many language issues. The doctor there even went as far as to say his global developmental delay was the cause for his speech delay. I ask why then does he could out at a 6 month level for speech and language and before his surgery he was rating around 24-30 months for all other areas? If one is causing the other the speech and language delay is causing the global delay. He does puzzles, he matches colors, and we couldn't teach him this stuff he has no language, he just picked up on it, does that sound like a child who is learning disabled? Anyway I don't want to go back to the U of A. Re: Approved for CCRS I would call the University of Arizona. > >Where do you find these audi's. Everyone I have ever seen is not only >unwilling to amplify but they are reluctant to say there is even a problem >even though there is. What is up with this, I get so frustrated, like they >are purposfully pulling _________________________________________________________________ Tired of slow downloads? Compare online deals from your local high-speed providers now. https://broadband.msn.com All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 a, I have AN and am 23 yrs old. I have digital aids and have been wearing them almost 3 yrs now. The aids pick up whatever is the loudest in the situation that I am in. If I am on the phone and my child starts talking to me I will not be able to hear what the person was telling me on the phone. So, in some cases it just amplifies the noise and some cases it helps. It is very difficult for me to describe what I hear since I have nothing else to compare it to. Cammy I was told that putting aids on a child with AN only amplifies the distortion and is not recommended for AN kids. a Sign up for Internet Service under $10 dollars a month, at http://isp.BlueLight.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 , I apologize if I asked this before because I am brain dead right now due to lack of sleep with some issues here with the kids. Did Dr. Berlin or Hood at LSU look at those ABR's? You can have AN and have a " normal " audiogram. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Only one of them. I sent an e-mail to Dr. Hood recently (a few weeks ago) asking if she would take a look at our most recent ones with more severely delayed latencies and a 30 dB loss in high frequencies and she never responded. Dr. Berlin is the one who checked them out last time but he said he was retiring and so I didn't bother to send them to him. Does he still have the same e-mail address? I would really like him to look at the new ABR to get his opinion. Re: Approved for CCRS , I apologize if I asked this before because I am brain dead right now due to lack of sleep with some issues here with the kids. Did Dr. Berlin or Hood at LSU look at those ABR's? You can have AN and have a " normal " audiogram. Elaine All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Yes Dr Berlin still has the same email address through LSU. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Thanks I will send it to him. I would trust him over anyone on whether or not his latencies are delayed. Re: Approved for CCRS Yes Dr Berlin still has the same email address through LSU. Elaine All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 , I just wanted to tell you to keep up with all your persistent, hard work with these doctors/audiologist/etc. You do know your son the best. I will keep you and your son in my prayers, as well as your finding a doctor with the knowledge to help you with these struggles. I went through some frustrating times, felt that there was something wrong with my 2 month old baby, and 2 1/2 years later, someone finally listened, and sure enough she was diagnosed with severe hearing impairment. And we even have HI in our family and no one would listen! Argh! Things ran smoothly for about 2 years, when she had a seizure, they discovered a mass on her brain, her hearing dropped another 20 dbs, and she lost most of the vision in her left eye, and the doctors all just think it is coincidental. Makes me want to go to medical school and actually be a caring doctor that Listens to her patients! Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 I actually am planning on that same thing. I am waiting on my DD form 214 so I can use my mongumery GI bill on school. At first I am just going to take the basic courses and then when those are done maybe in a couple years when is in school full time I will go to the University and get a docterate in audiology. Re: Approved for CCRS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 I'm just a bit confused. What is AN? een Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 It's a type of sensorineural hearing loss called Auditory Neuropathy. It is when a patient has severely delayed or missing latencies, usually present OAE's and absent reflexes, (usually). Re: Re: Approved for CCRS I'm just a bit confused. What is AN? een Quote Link to comment Share on other sites More sharing options...
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