Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 yes Yellow , That was one of the suggestions for the lenght of time I've been fighten this dieases and the out come only is to get worse as we all know at this point ! john ((Zoom <zoom@...> wrote: , I wish I had something to tell you to help. I don’t know about that surgery your doc talked about (sanding the bone) but do you mean he wants to get you on disability? Love and peace Yellow -----Original Message-----From: john no_way [mailto:kentuckycowboy1@...] Sent: Monday, April 11, 2005 5:15 PMRheumatoid Arthritis Subject: Re: Anemia of Chronic Disease and ?????? Thanks Yellow , glad to see everyone so active today LOL at least our mind is somewhere else so that alone tells us it plays a little part in our manageing this crap , but not wanting to argue anything sweeties , hehe ! but just saw you have O/A allso well glad its not bottering you badly mine has just taken my walking and working abilties from me it is unbearable after a few min.s went to see my family Dr this morning he set my up with another surgion to see if he will replace my knee , see him the 20 th ???? my dr sugest me concider letting him DISABLE ME to see how i get this week and think about it and let him know monday if its not any better I guess It has come to the point I was dreading so badly the only real thing that made me think I was still ok he didnt want me to go back on the predisone said I'ld been fighting this a long time and only I knew when to make the dession ? Truth being It needed to be soone r body wise but i'm not ready mind set , family, money ,meds , being at home ? just dont know ? Yellow , Harold , kin , , Maggie , nina , everyone , anyone any ideas how to patch this up or if anything will help a while longer the right knee is grade 4 O/A or bone on bone with R/A allso the left knee is a 2 , my brace I called again about today isnt it funny when you call they have allways just faxed something else in or something may know something next day ? AS for Lupus or something eles going on I just cannt point a finger to it except something to do with my job I took a differant job that was extermly stressful to me and was in alot of chemicals and exhaust smoke both gas and dieasel ? well best wishes to all , later john__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 ----- Original Message ----- From: john no_way > That was one of the suggestions for the lenght of time I've been fighten this dieases and the out come only is to get worse as we all know at this point ! Wouldn't it be better to just replace the whole knee?? Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 , maybe it would be a chance for you to learn to do something else you’d like to do that would be easier on your body… you could go back to work. What you do now is pretty physically challenging. Probably, even working on your own schedule would be easier on you. A friend of mine has been on disability since college and is now considering getting off. It’s not the end of the line, don’t worry, !!! That surgery your doc suggested scares me, cause there is no going back, but it might ease the pain of walking some. I don’t know why they just don’t let you do the replacements since you’re grade 4! If they ever come through with your braces, that will probably help a lot. ((((((((((()))))))))) Whatever you decide, it’s gonna be ok. Your options are always open. Love and peace to you and your family, . Yellow -----Original Message----- From: john no_way [mailto:kentuckycowboy1@...] Sent: Monday, April 11, 2005 7:00 PM To: Rheumatoid Arthritis Subject: Chronic Disease and ?????? Yellow and All yes Yellow , That was one of the suggestions for the lenght of time I've been fighten this dieases and the out come only is to get worse as we all know at this point ! john (( Zoom <zoom@...> wrote: , I wish I had something to tell you to help. I don’t know about that surgery your doc talked about (sanding the bone) but do you mean he wants to get you on disability? Love and peace Yellow -----Original Message----- From: john no_way [mailto:kentuckycowboy1@...] Sent: Monday, April 11, 2005 5:15 PM To: Rheumatoid Arthritis Subject: Re: Anemia of Chronic Disease and ?????? Thanks Yellow , glad to see everyone so active today LOL at least our mind is somewhere else so that alone tells us it plays a little part in our manageing this crap , but not wanting to argue anything sweeties , hehe ! but just saw you have O/A allso well glad its not bottering you badly mine has just taken my walking and working abilties from me it is unbearable after a few min.s went to see my family Dr this morning he set my up with another surgion to see if he will replace my knee , see him the 20 th ???? my dr sugest me concider letting him DISABLE ME to see how i get this week and think about it and let him know monday if its not any better I guess It has come to the point I was dreading so badly the only real thing that made me think I was still ok he didnt want me to go back on the pre disone said I'ld been fighting this a long time and only I knew when to make the dession ? Truth being It needed to be soone r body wise but i'm not ready mind set , family, money ,meds , being at home ? just dont know ? Yellow , Harold , kin , , Maggie , nina , everyone , anyone any ideas how to patch this up or if anything will help a while longer the right knee is grade 4 O/A or bone on bone with R/A allso the left knee is a 2 , my brace I called again about today isnt it funny when you call they have allways just faxed something else in or something may know something next day ? AS for Lupus or something eles going on I just cannt point a finger to it except something to do with my job I took a differant job that was extermly stressful to me and was in alot of chemicals and exhaust smoke both gas and dieasel ? well best wishes to all , later john __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Thanks Yellow , yes I'm at a loss for thoughts and being able to think at the time , I have never not worked and know I wouldn't be able to handle that and cannt stand this so caught in the middle but I just gotta think I guess ? it's a lonely place to be ! wonder how or if we can get our meds from state medicaid or something I wouldnt expect to get remicaid from them any way . thanks again john Zoom <zoom@...> wrote: , maybe it would be a chance for you to learn to do something else you’d like to do that would be easier on your body… you could go back to work. What you do now is pretty physically challenging. Probably, even working on your own schedule would be easier on you. A friend of mine has been on disability since college and is now considering getting off. It’s not the end of the line, don’t worry, !!! That surgery your doc suggested scares me, cause there is no going back, but it might ease the pain of walking some. I don’t know why they just don’t let you do the replacements since you’re grade 4! If they ever come through with your braces, that will probably help a lot. ((((((((((()))))))))) Whatever you decide, it’s gonna be ok. Your options are always open. Love and peace to you and your family, . Yellow -----Original Message-----From: john no_way [mailto:kentuckycowboy1@...] Sent: Monday, April 11, 2005 7:00 PMRheumatoid Arthritis Subject: Chronic Disease and ?????? Yellow and All yes Yellow , That was one of the suggestions for the lenght of time I've been fighten this dieases and the out come only is to get worse as we all know at this point ! john ((Zoom <zoom@...> wrote: , I wish I had something to tell you to help. I don’t know about that surgery your doc talked about (sanding the bone) but do you mean he wants to get you on disability? Love and peace Yellow -----Original Message-----From: john no_way [mailto:kentuckycowboy1@...] Sent: Monday, April 11, 2005 5:15 PMRheumatoid Arthritis Subject: Re: Anemia of Chronic Disease and ?????? Thanks Yellow , glad to see everyone so active today LOL at least our mind is somewhere else so that alone tells us it plays a little part in our manageing this crap , but not wanting to argue anything sweeties , hehe ! but just saw you have O/A allso well glad its not bottering you badly mine has just taken my walking and working abilties from me it is unbearable after a few min.s went to see my family Dr this morning he set my up with another surgion to see if he will replace my knee , see him the 20 th ???? my dr sugest me concider letting him DISABLE ME to see how i get this week and think about it and let him know monday if its not any better I guess It has come to the point I was dreading so badly the only real thing that made me think I was still ok he didnt want me to go back on the pre disone said I'ld been fighting this a long time and only I knew when to make the dession ? Truth being It needed to be soone r body wise but i'm not ready mind set , family, money ,meds , being at home ? just dont know ? Yellow , Harold , kin , , Maggie , nina , everyone , anyone any ideas how to patch this up or if anything will help a while longer the right knee is grade 4 O/A or bone on bone with R/A allso the left knee is a 2 , my brace I called again about today isnt it funny when you call they have allways just faxed something else in or something may know something next day ? AS for Lupus or something eles going on I just cannt point a finger to it except something to do with my job I took a differant job that was extermly stressful to me and was in alot of chemicals and exhaust smoke both gas and dieasel ? well best wishes to all , later john __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 ----- Original Message ----- From: john no_way > hi nina , that would be my thoughts but they are picking and chooseing ) maybe my insurance is not the best most people here thinks its crap grrrr ! ( now that would by my honest oppiion nina ) If they turn you down for the surgery you and your doc decide on, you doc can help you file an appeal. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 yes nina , but its the surgion that refused me not the insurance they cut fees to the bone and dont allow alot . later johnNina <ncampbell@...> wrote: ----- Original Message ----- From: john no_way > hi nina , that would be my thoughts but they are picking and chooseing ) maybe my insurance is not the best most people here thinks its crap grrrr ! ( now that would by my honest oppiion nina ) If they turn you down for the surgery you and your doc decide on, you doc can help you file an appeal. Nina __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 ----- Original Message ----- From: john no_way > Thanks Yellow , yes I'm at a loss for thoughts and being able to think at the time , I have never not worked and know I wouldn't be able to handle that and cannt stand this so caught in the middle but I just gotta think I guess ? it's a lonely place to be ! wonder how or if we can get our meds from state medicaid or something I wouldnt expect to get remicaid from them any way . Depending on your income, you might be able to get them free from the drug manufacturer. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 thanks Nina, Is it the drug company you contact Nina about this ?? Nina <ncampbell@...> wrote: ----- Original Message ----- From: john no_way > Thanks Yellow , yes I'm at a loss for thoughts and being able to think at the time , I have never not worked and know I wouldn't be able to handle that and cannt stand this so caught in the middle but I just gotta think I guess ? it's a lonely place to be ! wonder how or if we can get our meds from state medicaid or something I wouldnt expect to get remicaid from them any way . Depending on your income, you might be able to get them free from the drug manufacturer. Nina __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 ----- Original Message ----- From: john no_way > thanks Nina, Is it the drug company you contact Nina about this ?? Try this one. It should get to just about all manufacturers. HelpingPatients.orghttps://www.helpingpatients.org/Intro.php Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 ----- Original Message ----- From: john no_way > thanks Nina, Is it the drug company you contact Nina about this ?? The ones I qualified for, I downloaded the application, filled it out, and took it to the doctor's office. That way all they had to do was write the prescription, put their DEA number on it, sign it and send it in. The nurse really appreciated that because it saved her so much work. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 ----- Original Message ----- From: john no_way > yes nina , but its the surgion that refused me not the insurance they cut fees to the bone and dont allow alot . Can you use a different surgeon? Nina Quote Link to comment Share on other sites More sharing options...
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