Guest guest Posted April 18, 2005 Report Share Posted April 18, 2005 ,it is vitally important that you find a good Rheumatologist. Everybody is different and the meds effect each of us differently.I stared on Remicade and a shot of MTX once a week.The Remicad every 4-6 weeks. I tried Placquinel but it made my head fuzzy. but it helps others. I took Arava,didn't likie it. I am now, well after this infection subsides,on Enbrel 2x a week and Mtx 1 x a week. Side effects vary. You can look up all the info on these meds.There are alot of sites I use generally edrugs .com Like anything there are its good points and bad. But you need to treat aggressively.Don't put this off. The longer you go the worse it CAN get.There is no cure,but the DMARDS ..all the above meds, slow the effects down for a while..hopefully.......Skye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2007 Report Share Posted July 19, 2007 why did they say a year? Ellen <ellfttx_29@...> wrote: I do not have health insurance and have been going through the medical assistance program. They told me the other day that I would have to wait at least a year to see a specialist for treatment. Does anybody know of any alternatives for me? I live in Austin Texas. --------------------------------- Ready for the edge of your seat? Check out tonight's top picks on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2007 Report Share Posted July 19, 2007 I do not have health insurance and have been going through the medical > assistance program. They told me the other day that I would have to > wait at least a year to see a specialist for treatment. Does anybody > know of any alternatives for me? I live in Austin Texas. >TO Ellen; Maybe you can file for temporary disability from social security . You can probably apply for medicare or medicade. > > > > > > --------------------------------- > Ready for the edge of your seat? Check out tonight's top picks on TV. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2007 Report Share Posted July 20, 2007 Thank you for your responses and emails. Yes I have been very sick, chronic fatique, itching and it is painful. I don't remember the last time I had a normal bowel movement. I was diagosed in April. I was thinking about relocating to Arkansas and had a place to live and some very good job prospects lined up. I have friends who live right outside of Fayetteville. I decided to get some blood work done to test for Hep C with other tests like Chloesterol and Blood Sugar, just to know how I am doing. My viral load at that time was 3.4 M. Since then I applied for the medical assistance and got more tests done about 3 weeks ago. My viral load had decreased to 1.0 M. My cholesteraol and blood sugar counts are very normal. I am so tired all the time I cannot hold a full time job and some days I just can't bring myself to get out of bed. I walk my dogs every morning and it just about wears me out. We walk less than 2 miles and it takes about 45 minutes. This is very stange for me and I knew something was terribly wrong. I am have trouble finding out my genome type from the clinic and they just seem so lost and as much as I tell them the importance of this information they just block every attempt to get copies of my blood work. I have a remote chance of getting treament through the Liver Assoc of Texas. I went to the clinic yesterday and tried to get them to send them my records and they said they did not have time. I am furious with these people!!! I plan to go back out there today and hound them to send these records to the doctor in Houston who is doing a trial for the Liver Assoc of Texas. This has been very infuriating. I appreciate this group and all of your comments, perhaps there is hope. Ellen --------------------------------- oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2007 Report Share Posted July 21, 2007 Ellen, You have a right to the labs and any other medical information about you. Go in there and raise you know what. Bug them until they give you this information if it takes all day. They cannot deny copies of your medical records. It is against the law. Threaten them with a lawyer, even though you don't have the money. This usually gets them everytime. Stick to your guns girl. I know about the fatigue and the itching it is horrible. Try some SARNA lotion for the itching. It works great. Keep at them and don't let them bully you. They will if you let them. God Bless, Tricia Ellen King <ellfttx_29@...> wrote: Thank you for your responses and emails. Yes I have been very sick, chronic fatique, itching and it is painful. I don't remember the last time I had a normal bowel movement. I was diagosed in April. I was thinking about relocating to Arkansas and had a place to live and some very good job prospects lined up. I have friends who live right outside of Fayetteville. I decided to get some blood work done to test for Hep C with other tests like Chloesterol and Blood Sugar, just to know how I am doing. My viral load at that time was 3.4 M. Since then I applied for the medical assistance and got more tests done about 3 weeks ago. My viral load had decreased to 1.0 M. My cholesteraol and blood sugar counts are very normal. I am so tired all the time I cannot hold a full time job and some days I just can't bring myself to get out of bed. I walk my dogs every morning and it just about wears me out. We walk less than 2 miles and it takes about 45 minutes. This is very stange for me and I knew something was terribly wrong. I am have trouble finding out my genome type from the clinic and they just seem so lost and as much as I tell them the importance of this information they just block every attempt to get copies of my blood work. I have a remote chance of getting treament through the Liver Assoc of Texas. I went to the clinic yesterday and tried to get them to send them my records and they said they did not have time. I am furious with these people!!! I plan to go back out there today and hound them to send these records to the doctor in Houston who is doing a trial for the Liver Assoc of Texas. This has been very infuriating. I appreciate this group and all of your comments, perhaps there is hope. Ellen --------------------------------- oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 I do not have health > insurance and have been going through the medical > > assistance program. They told me the other day that I would have > to > > wait at least a year to see a specialist for treatment. Does > anybody stage 4 cirrhosis, I have applied for Disability and medicade and was turned down. The > > only help I can get is county clinic, that sees me once a month and checks my weight and my blood presure. But its worth a try to apply maybe Texas cares more for people than Ga does. If you are going to take the pegus/copeus Roche can help with the medicine for little no cost to you, if you can get a doctor to write the RX and > > do your blood test. I wish you all the luck Sharon W > > > > > > --------------------------------- > > Ready for the edge of your seat? Check out tonight's top picks on > TV. > > > > [Non-text portions of ths message have been removed] > > > Quote Link to comment Share on other sites More sharing options...
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