Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Yasko recommends elephant doses of B12. But if the child is COMT++ (considered an overmethylator like mine) she prefers hydroxy B12, along with adensol, and cyano B12 to MB12. Patches, oral drops, oral pills, and shots is what she recommends daily. > > > > HI all: > > My daughter is non verbal. Any suggestions for supplements that you all have > > used that increased vocalization and communication? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Yasko recommends elephant doses of B12. But if the child is COMT++ (considered an overmethylator like mine) she prefers hydroxy B12, along with adensol, and cyano B12 to MB12. Patches, oral drops, oral pills, and shots is what she recommends daily. > > > > HI all: > > My daughter is non verbal. Any suggestions for supplements that you all have > > used that increased vocalization and communication? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Have you done a 24 hour EEG? > > HI all: > My daughter is non verbal. Any suggestions for supplements that you all have > used that increased vocalization and communication? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Have you done a 24 hour EEG? > > HI all: > My daughter is non verbal. Any suggestions for supplements that you all have > used that increased vocalization and communication? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Have you done a 24 hour EEG? > > HI all: > My daughter is non verbal. Any suggestions for supplements that you all have > used that increased vocalization and communication? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Yes, find a good ND [Natural doctor] Dan dr. and contact Corby at Autism Solution Center in Cordova Tn. She helps families worldwide. Her brain/body needs healing. This works! McCarthy generation Rescue site has good info. Click on the link that says Autism Yesterday. Watch the video. You will need support and have to be a warrior for your child. Start with all natural diet slowly. Grapes, orange slices, veges raw if possible, bananas, apples & almond butter, fish fish fish and fish oils.Anything that comes from the ground and as raw as you can, and local farmers markets usually have the best. Rice or coconut milk, organic juices and clean water. Start with diet. It;s a must. Get the bread and everything out of the house. Get her tested and start bio meds Heal the body heal the mind. We were down to 1 or 2 words, sentences were gone. I now have a chatterbox:}. Took a lot of crap from many, researched all night sometimes, read everything I could get my hands on. 1 1/2 years later my child is totally different. Cheleation worked for us. If anyone is thinking about cheleation, talk to your DAN dr. Extra vitamins are needed and it caused nightly bedwetting. You have a window of time to hurdle thru this, BUT IT DOES WORK. Let me know if I can help Always Call Christie Gravatt We are not human beings having a spiritual experience, we are spiritual beings having a human experience! Subject: Re: speechTo: mb12 valtrex Date: Thursday, January 27, 2011, 6:34 PM HI all:My daughter is non verbal. Any suggestions for supplements that you all have used that increased vocalization and communication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Yes, find a good ND [Natural doctor] Dan dr. and contact Corby at Autism Solution Center in Cordova Tn. She helps families worldwide. Her brain/body needs healing. This works! McCarthy generation Rescue site has good info. Click on the link that says Autism Yesterday. Watch the video. You will need support and have to be a warrior for your child. Start with all natural diet slowly. Grapes, orange slices, veges raw if possible, bananas, apples & almond butter, fish fish fish and fish oils.Anything that comes from the ground and as raw as you can, and local farmers markets usually have the best. Rice or coconut milk, organic juices and clean water. Start with diet. It;s a must. Get the bread and everything out of the house. Get her tested and start bio meds Heal the body heal the mind. We were down to 1 or 2 words, sentences were gone. I now have a chatterbox:}. Took a lot of crap from many, researched all night sometimes, read everything I could get my hands on. 1 1/2 years later my child is totally different. Cheleation worked for us. If anyone is thinking about cheleation, talk to your DAN dr. Extra vitamins are needed and it caused nightly bedwetting. You have a window of time to hurdle thru this, BUT IT DOES WORK. Let me know if I can help Always Call Christie Gravatt We are not human beings having a spiritual experience, we are spiritual beings having a human experience! Subject: Re: speechTo: mb12 valtrex Date: Thursday, January 27, 2011, 6:34 PM HI all:My daughter is non verbal. Any suggestions for supplements that you all have used that increased vocalization and communication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Yes, find a good ND [Natural doctor] Dan dr. and contact Corby at Autism Solution Center in Cordova Tn. She helps families worldwide. Her brain/body needs healing. This works! McCarthy generation Rescue site has good info. Click on the link that says Autism Yesterday. Watch the video. You will need support and have to be a warrior for your child. Start with all natural diet slowly. Grapes, orange slices, veges raw if possible, bananas, apples & almond butter, fish fish fish and fish oils.Anything that comes from the ground and as raw as you can, and local farmers markets usually have the best. Rice or coconut milk, organic juices and clean water. Start with diet. It;s a must. Get the bread and everything out of the house. Get her tested and start bio meds Heal the body heal the mind. We were down to 1 or 2 words, sentences were gone. I now have a chatterbox:}. Took a lot of crap from many, researched all night sometimes, read everything I could get my hands on. 1 1/2 years later my child is totally different. Cheleation worked for us. If anyone is thinking about cheleation, talk to your DAN dr. Extra vitamins are needed and it caused nightly bedwetting. You have a window of time to hurdle thru this, BUT IT DOES WORK. Let me know if I can help Always Call Christie Gravatt We are not human beings having a spiritual experience, we are spiritual beings having a human experience! Subject: Re: speechTo: mb12 valtrex Date: Thursday, January 27, 2011, 6:34 PM HI all:My daughter is non verbal. Any suggestions for supplements that you all have used that increased vocalization and communication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Lemon came back on Tom's IgG and IgE - which sucks because juiced lemonade was an easy and palatable way to add in high doses of vitamin c powder. Figures. I wonder if lime or grapefruit would do the same. I think I'm going to invest in that book for allergies you suggested. I think it'll be interesting to go through all the food he tested high for and see how many share a commonality with anecdotes.From: laurargoddin To: mb12 valtrex Sent: Thu, January 27, 2011 9:00:30 PMSubject: Re: speech With Rob, he too - his serum b12 levels came back normal -- yet, he had EVERY sign of B12 def. I argued with his DAN, and she agreed (unwillingly) to do the nasal (which I think Rob does the best on)...and HOLY COW what a difference. It was night and day. She agreed too -- within a month -- it was like his processing speed went from 0 to 60. It was very obvious. Now, he just got tested again (she did a serum B12) that came back severely def. - he's been gluten/casien/wheat/dairy free for over a year, he gets shots daily, and still showing def...I am like WTH! Although. After reading your posts, I might not be giving the shot correctly. My sister (other one, not the one with Crohns) is a nurse, and she has been administering the shot (because he's in FL) and she said that I might have been going overboard. Whoops! So, we are going to revisit it again...but, I think the explanation was - essentially - and in not so many words -- wheat/milk products create this sticky mucus that covers up the villi in the small intestine (where vitamins are taken up) - once you remove this sticky mucus crap, the villi are no longer 'matted' down, and can do their job. The sticky mucus creates this environment where after a period of time, they (the villi) shrivel up and die, (not good)...so getting nutrition is difficult because this avenue has been severely injured. Since nutrition is how the body functions, and this avenue is impaired, then regardless of how much you eat, or how much 'healthy' things you eat, you might not be maximizing the potential for nutrition. In the Ann Louise Gittleman book "Fat Flush", she touts drinking a glass of warm water with the juice of a 1/2 of a lemon each morning upon rising. This helps clear out the mucus. I am pretty sure that Cliff Sheats "Lean Bodies" also says the same thing, and I know that Max Gerson was into no dairy or grains or meat -- for that very reason. Mucus. So I keep reading it over and over...so lemon is good for mucus. I always put it in my juicer drinks. Also good for the liver. Can't go wrong with that. laura > > > > > > HI all: > > > My daughter is non verbal. Any suggestions for supplements that you all have > > > > used that increased vocalization and communication? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Lemon came back on Tom's IgG and IgE - which sucks because juiced lemonade was an easy and palatable way to add in high doses of vitamin c powder. Figures. I wonder if lime or grapefruit would do the same. I think I'm going to invest in that book for allergies you suggested. I think it'll be interesting to go through all the food he tested high for and see how many share a commonality with anecdotes.From: laurargoddin To: mb12 valtrex Sent: Thu, January 27, 2011 9:00:30 PMSubject: Re: speech With Rob, he too - his serum b12 levels came back normal -- yet, he had EVERY sign of B12 def. I argued with his DAN, and she agreed (unwillingly) to do the nasal (which I think Rob does the best on)...and HOLY COW what a difference. It was night and day. She agreed too -- within a month -- it was like his processing speed went from 0 to 60. It was very obvious. Now, he just got tested again (she did a serum B12) that came back severely def. - he's been gluten/casien/wheat/dairy free for over a year, he gets shots daily, and still showing def...I am like WTH! Although. After reading your posts, I might not be giving the shot correctly. My sister (other one, not the one with Crohns) is a nurse, and she has been administering the shot (because he's in FL) and she said that I might have been going overboard. Whoops! So, we are going to revisit it again...but, I think the explanation was - essentially - and in not so many words -- wheat/milk products create this sticky mucus that covers up the villi in the small intestine (where vitamins are taken up) - once you remove this sticky mucus crap, the villi are no longer 'matted' down, and can do their job. The sticky mucus creates this environment where after a period of time, they (the villi) shrivel up and die, (not good)...so getting nutrition is difficult because this avenue has been severely injured. Since nutrition is how the body functions, and this avenue is impaired, then regardless of how much you eat, or how much 'healthy' things you eat, you might not be maximizing the potential for nutrition. In the Ann Louise Gittleman book "Fat Flush", she touts drinking a glass of warm water with the juice of a 1/2 of a lemon each morning upon rising. This helps clear out the mucus. I am pretty sure that Cliff Sheats "Lean Bodies" also says the same thing, and I know that Max Gerson was into no dairy or grains or meat -- for that very reason. Mucus. So I keep reading it over and over...so lemon is good for mucus. I always put it in my juicer drinks. Also good for the liver. Can't go wrong with that. laura > > > > > > HI all: > > > My daughter is non verbal. Any suggestions for supplements that you all have > > > > used that increased vocalization and communication? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Lemon came back on Tom's IgG and IgE - which sucks because juiced lemonade was an easy and palatable way to add in high doses of vitamin c powder. Figures. I wonder if lime or grapefruit would do the same. I think I'm going to invest in that book for allergies you suggested. I think it'll be interesting to go through all the food he tested high for and see how many share a commonality with anecdotes.From: laurargoddin To: mb12 valtrex Sent: Thu, January 27, 2011 9:00:30 PMSubject: Re: speech With Rob, he too - his serum b12 levels came back normal -- yet, he had EVERY sign of B12 def. I argued with his DAN, and she agreed (unwillingly) to do the nasal (which I think Rob does the best on)...and HOLY COW what a difference. It was night and day. She agreed too -- within a month -- it was like his processing speed went from 0 to 60. It was very obvious. Now, he just got tested again (she did a serum B12) that came back severely def. - he's been gluten/casien/wheat/dairy free for over a year, he gets shots daily, and still showing def...I am like WTH! Although. After reading your posts, I might not be giving the shot correctly. My sister (other one, not the one with Crohns) is a nurse, and she has been administering the shot (because he's in FL) and she said that I might have been going overboard. Whoops! So, we are going to revisit it again...but, I think the explanation was - essentially - and in not so many words -- wheat/milk products create this sticky mucus that covers up the villi in the small intestine (where vitamins are taken up) - once you remove this sticky mucus crap, the villi are no longer 'matted' down, and can do their job. The sticky mucus creates this environment where after a period of time, they (the villi) shrivel up and die, (not good)...so getting nutrition is difficult because this avenue has been severely injured. Since nutrition is how the body functions, and this avenue is impaired, then regardless of how much you eat, or how much 'healthy' things you eat, you might not be maximizing the potential for nutrition. In the Ann Louise Gittleman book "Fat Flush", she touts drinking a glass of warm water with the juice of a 1/2 of a lemon each morning upon rising. This helps clear out the mucus. I am pretty sure that Cliff Sheats "Lean Bodies" also says the same thing, and I know that Max Gerson was into no dairy or grains or meat -- for that very reason. Mucus. So I keep reading it over and over...so lemon is good for mucus. I always put it in my juicer drinks. Also good for the liver. Can't go wrong with that. laura > > > > > > HI all: > > > My daughter is non verbal. Any suggestions for supplements that you all have > > > > used that increased vocalization and communication? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Tammy, Lemon (or Citrus) is deficiency in B5 and Calcium. What else has he got on there... laura > > > > > > > > HI all: > > > > My daughter is non verbal. Any suggestions for supplements that you all > >have > > > > > > > > used that increased vocalization and communication? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Tammy, Lemon (or Citrus) is deficiency in B5 and Calcium. What else has he got on there... laura > > > > > > > > HI all: > > > > My daughter is non verbal. Any suggestions for supplements that you all > >have > > > > > > > > used that increased vocalization and communication? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 lol...I love you....grapes, cheddar cheese, mustard, cow milk, egg yolk, egg white, gluten, beef, strawberry, oregano, and asperillus niger, and penicillium notatumTo: mb12 valtrex Sent: Thu, January 27, 2011 10:02:11 PMSubject: Re: speech Tammy, Lemon (or Citrus) is deficiency in B5 and Calcium. What else has he got on there... laura > > > > > > > > HI all: > > > > My daughter is non verbal. Any suggestions for supplements that you all > >have > > > > > > > > used that increased vocalization and communication? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 lol...I love you....grapes, cheddar cheese, mustard, cow milk, egg yolk, egg white, gluten, beef, strawberry, oregano, and asperillus niger, and penicillium notatumTo: mb12 valtrex Sent: Thu, January 27, 2011 10:02:11 PMSubject: Re: speech Tammy, Lemon (or Citrus) is deficiency in B5 and Calcium. What else has he got on there... laura > > > > > > > > HI all: > > > > My daughter is non verbal. Any suggestions for supplements that you all > >have > > > > > > > > used that increased vocalization and communication? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 lol...I love you....grapes, cheddar cheese, mustard, cow milk, egg yolk, egg white, gluten, beef, strawberry, oregano, and asperillus niger, and penicillium notatumTo: mb12 valtrex Sent: Thu, January 27, 2011 10:02:11 PMSubject: Re: speech Tammy, Lemon (or Citrus) is deficiency in B5 and Calcium. What else has he got on there... laura > > > > > > > > HI all: > > > > My daughter is non verbal. Any suggestions for supplements that you all > >have > > > > > > > > used that increased vocalization and communication? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 DMG< LDN< EFAS, b12, and folic acid From: l h Sent: Thursday, January 27, 2011 7:34 PM To: mb12 valtrex Subject: Re: speech HI all:My daughter is non verbal. Any suggestions for supplements that you all have used that increased vocalization and communication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 DMG< LDN< EFAS, b12, and folic acid From: l h Sent: Thursday, January 27, 2011 7:34 PM To: mb12 valtrex Subject: Re: speech HI all:My daughter is non verbal. Any suggestions for supplements that you all have used that increased vocalization and communication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 ThanksCheryl! Did you ever see an increase in stimming or agitated behavior? We actually did try it very briefly with a therapist who was not as well-trained in it as she should have been. My daughter seemed to have better articulation after the first cd, but the second one caused stimming and she was very irritable. She turned three right around that time so Early Intervention ended and we had to wait months to start out patient OT, so we never went back to it. I want to try it again - I was just curious to know if there are any negative side effects. Did you do it twice a day every day? - Kirk- To: mb12 valtrex From: cheryl.biomed.mom@...Date: Thu, 27 Jan 2011 17:59:24 -0800Subject: Re: speech If your therapist will do it, I would do it in a heartbeat. It was awesome for us. You can do it yourself if you need to, there are many home programs (we used www.vitallinks.net through both the SD and early intervention). It *does* help with the brain/body connection. The most areas I found it helped - self-regulation and expressive/receptive language. If you decide to do it and have questions, I'm happy to help. I know a lot of people that were helped in the sensory department (my son wasn't so sensory so we didn't see much there because there wasn't enough to see). I can't say if it did or didn't help with potty training - we started it well before getting there so I don't know. We started it at about 2.5 and potty trained him at 3.5. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ Cheryl, Can you tell me more about the therapeutic listening? My PDD daughter has poor articulation (she speaks in sentences - just very hard to understand). Also, she is 3 1/2 and absolutely refusing to potty train. I have been told by her OT that therapeutic listening can help with the brain/body connection, which in turn helps with potty training, sensory issues, sleeping issues, etc (she has all of these). If you wouldn't mind sharing your thoughts/experiences with this, I would appreciate it. Thanks! - Kirk- To: mb12 valtrex From: cheryl.biomed.mom@...Date: Thu, 27 Jan 2011 17:14:14 -0800Subject: Re: speech In my house, these are what helped speech (or at least what I noticed was helping speech - other things may have contributed but this is what I attribute it to): Speech therapy/child development therapy DMG - first thing we did when we first started biomed. On that year's father's day, my son fell, cried, and said, "I want momma!" DH and I both cried, DH didn't care that he was asking for mommy on father's day . He gained a lot of words but didn't really pick up on the sentences. AIT (we used Therapeutic Listening) - A huge jump in comprehension and self-regulation. Antivirals - Wow, is all I can say. He went from simply having words to having sentences. Lots of them. Antifungals - another big jump in language when we added antifungals a month after starting antivirals. LDN - really helped with pragmatic language. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ HI all:My daughter is non verbal. Any suggestions for supplements that you all have used that increased vocalization and communication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 ThanksCheryl! Did you ever see an increase in stimming or agitated behavior? We actually did try it very briefly with a therapist who was not as well-trained in it as she should have been. My daughter seemed to have better articulation after the first cd, but the second one caused stimming and she was very irritable. She turned three right around that time so Early Intervention ended and we had to wait months to start out patient OT, so we never went back to it. I want to try it again - I was just curious to know if there are any negative side effects. Did you do it twice a day every day? - Kirk- To: mb12 valtrex From: cheryl.biomed.mom@...Date: Thu, 27 Jan 2011 17:59:24 -0800Subject: Re: speech If your therapist will do it, I would do it in a heartbeat. It was awesome for us. You can do it yourself if you need to, there are many home programs (we used www.vitallinks.net through both the SD and early intervention). It *does* help with the brain/body connection. The most areas I found it helped - self-regulation and expressive/receptive language. If you decide to do it and have questions, I'm happy to help. I know a lot of people that were helped in the sensory department (my son wasn't so sensory so we didn't see much there because there wasn't enough to see). I can't say if it did or didn't help with potty training - we started it well before getting there so I don't know. We started it at about 2.5 and potty trained him at 3.5. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ Cheryl, Can you tell me more about the therapeutic listening? My PDD daughter has poor articulation (she speaks in sentences - just very hard to understand). Also, she is 3 1/2 and absolutely refusing to potty train. I have been told by her OT that therapeutic listening can help with the brain/body connection, which in turn helps with potty training, sensory issues, sleeping issues, etc (she has all of these). If you wouldn't mind sharing your thoughts/experiences with this, I would appreciate it. Thanks! - Kirk- To: mb12 valtrex From: cheryl.biomed.mom@...Date: Thu, 27 Jan 2011 17:14:14 -0800Subject: Re: speech In my house, these are what helped speech (or at least what I noticed was helping speech - other things may have contributed but this is what I attribute it to): Speech therapy/child development therapy DMG - first thing we did when we first started biomed. On that year's father's day, my son fell, cried, and said, "I want momma!" DH and I both cried, DH didn't care that he was asking for mommy on father's day . He gained a lot of words but didn't really pick up on the sentences. AIT (we used Therapeutic Listening) - A huge jump in comprehension and self-regulation. Antivirals - Wow, is all I can say. He went from simply having words to having sentences. Lots of them. Antifungals - another big jump in language when we added antifungals a month after starting antivirals. LDN - really helped with pragmatic language. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ HI all:My daughter is non verbal. Any suggestions for supplements that you all have used that increased vocalization and communication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Yes we did. Here's what we found:He needed the only classical ones first, no words. The songs with words totally made him nuts. The entire staff was blaming the OT for making him crazy. :)So we couldn't go in the order the program recommends. Once we had a few of the classical cd's under our belt, we went back to the ones with words and he was fine. You have to play with it a bit - it's just like supplements, what works for one isn't going to work for the other so you need to work around it by watching your child and changing the treatment plan. We had to not start where the program wants you to start and it worked phenomenally.We did 20 minutes, 2x a day, every day. But we started with about 10 to get him used to the headphones and I loaded it up on an iPod so it wouldn't be big and bulky (and the added benefit is that I now have the cd's and can do it myself whenever I need to). Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~ ThanksCheryl! Did you ever see an increase in stimming or agitated behavior? We actually did try it very briefly with a therapist who was not as well-trained in it as she should have been. My daughter seemed to have better articulation after the first cd, but the second one caused stimming and she was very irritable. She turned three right around that time so Early Intervention ended and we had to wait months to start out patient OT, so we never went back to it. I want to try it again - I was just curious to know if there are any negative side effects. Did you do it twice a day every day? - Kirk- To: mb12 valtrex From: cheryl.biomed.mom@...Date: Thu, 27 Jan 2011 17:59:24 -0800Subject: Re: speech If your therapist will do it, I would do it in a heartbeat. It was awesome for us. You can do it yourself if you need to, there are many home programs (we used www.vitallinks.net through both the SD and early intervention). It *does* help with the brain/body connection. The most areas I found it helped - self-regulation and expressive/receptive language. If you decide to do it and have questions, I'm happy to help. I know a lot of people that were helped in the sensory department (my son wasn't so sensory so we didn't see much there because there wasn't enough to see). I can't say if it did or didn't help with potty training - we started it well before getting there so I don't know. We started it at about 2.5 and potty trained him at 3.5. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ Cheryl, Can you tell me more about the therapeutic listening? My PDD daughter has poor articulation (she speaks in sentences - just very hard to understand). Also, she is 3 1/2 and absolutely refusing to potty train. I have been told by her OT that therapeutic listening can help with the brain/body connection, which in turn helps with potty training, sensory issues, sleeping issues, etc (she has all of these). If you wouldn't mind sharing your thoughts/experiences with this, I would appreciate it. Thanks! - Kirk- To: mb12 valtrex From: cheryl.biomed.mom@...Date: Thu, 27 Jan 2011 17:14:14 -0800Subject: Re: speech In my house, these are what helped speech (or at least what I noticed was helping speech - other things may have contributed but this is what I attribute it to): Speech therapy/child development therapy DMG - first thing we did when we first started biomed. On that year's father's day, my son fell, cried, and said, "I want momma!" DH and I both cried, DH didn't care that he was asking for mommy on father's day . He gained a lot of words but didn't really pick up on the sentences. AIT (we used Therapeutic Listening) - A huge jump in comprehension and self-regulation. Antivirals - Wow, is all I can say. He went from simply having words to having sentences. Lots of them. Antifungals - another big jump in language when we added antifungals a month after starting antivirals. LDN - really helped with pragmatic language. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ HI all:My daughter is non verbal. Any suggestions for supplements that you all have used that increased vocalization and communication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Yes we did. Here's what we found:He needed the only classical ones first, no words. The songs with words totally made him nuts. The entire staff was blaming the OT for making him crazy. :)So we couldn't go in the order the program recommends. Once we had a few of the classical cd's under our belt, we went back to the ones with words and he was fine. You have to play with it a bit - it's just like supplements, what works for one isn't going to work for the other so you need to work around it by watching your child and changing the treatment plan. We had to not start where the program wants you to start and it worked phenomenally.We did 20 minutes, 2x a day, every day. But we started with about 10 to get him used to the headphones and I loaded it up on an iPod so it wouldn't be big and bulky (and the added benefit is that I now have the cd's and can do it myself whenever I need to). Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~ ThanksCheryl! Did you ever see an increase in stimming or agitated behavior? We actually did try it very briefly with a therapist who was not as well-trained in it as she should have been. My daughter seemed to have better articulation after the first cd, but the second one caused stimming and she was very irritable. She turned three right around that time so Early Intervention ended and we had to wait months to start out patient OT, so we never went back to it. I want to try it again - I was just curious to know if there are any negative side effects. Did you do it twice a day every day? - Kirk- To: mb12 valtrex From: cheryl.biomed.mom@...Date: Thu, 27 Jan 2011 17:59:24 -0800Subject: Re: speech If your therapist will do it, I would do it in a heartbeat. It was awesome for us. You can do it yourself if you need to, there are many home programs (we used www.vitallinks.net through both the SD and early intervention). It *does* help with the brain/body connection. The most areas I found it helped - self-regulation and expressive/receptive language. If you decide to do it and have questions, I'm happy to help. I know a lot of people that were helped in the sensory department (my son wasn't so sensory so we didn't see much there because there wasn't enough to see). I can't say if it did or didn't help with potty training - we started it well before getting there so I don't know. We started it at about 2.5 and potty trained him at 3.5. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ Cheryl, Can you tell me more about the therapeutic listening? My PDD daughter has poor articulation (she speaks in sentences - just very hard to understand). Also, she is 3 1/2 and absolutely refusing to potty train. I have been told by her OT that therapeutic listening can help with the brain/body connection, which in turn helps with potty training, sensory issues, sleeping issues, etc (she has all of these). If you wouldn't mind sharing your thoughts/experiences with this, I would appreciate it. Thanks! - Kirk- To: mb12 valtrex From: cheryl.biomed.mom@...Date: Thu, 27 Jan 2011 17:14:14 -0800Subject: Re: speech In my house, these are what helped speech (or at least what I noticed was helping speech - other things may have contributed but this is what I attribute it to): Speech therapy/child development therapy DMG - first thing we did when we first started biomed. On that year's father's day, my son fell, cried, and said, "I want momma!" DH and I both cried, DH didn't care that he was asking for mommy on father's day . He gained a lot of words but didn't really pick up on the sentences. AIT (we used Therapeutic Listening) - A huge jump in comprehension and self-regulation. Antivirals - Wow, is all I can say. He went from simply having words to having sentences. Lots of them. Antifungals - another big jump in language when we added antifungals a month after starting antivirals. LDN - really helped with pragmatic language. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ HI all:My daughter is non verbal. Any suggestions for supplements that you all have used that increased vocalization and communication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Yes we did. Here's what we found:He needed the only classical ones first, no words. The songs with words totally made him nuts. The entire staff was blaming the OT for making him crazy. :)So we couldn't go in the order the program recommends. Once we had a few of the classical cd's under our belt, we went back to the ones with words and he was fine. You have to play with it a bit - it's just like supplements, what works for one isn't going to work for the other so you need to work around it by watching your child and changing the treatment plan. We had to not start where the program wants you to start and it worked phenomenally.We did 20 minutes, 2x a day, every day. But we started with about 10 to get him used to the headphones and I loaded it up on an iPod so it wouldn't be big and bulky (and the added benefit is that I now have the cd's and can do it myself whenever I need to). Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~ ThanksCheryl! Did you ever see an increase in stimming or agitated behavior? We actually did try it very briefly with a therapist who was not as well-trained in it as she should have been. My daughter seemed to have better articulation after the first cd, but the second one caused stimming and she was very irritable. She turned three right around that time so Early Intervention ended and we had to wait months to start out patient OT, so we never went back to it. I want to try it again - I was just curious to know if there are any negative side effects. Did you do it twice a day every day? - Kirk- To: mb12 valtrex From: cheryl.biomed.mom@...Date: Thu, 27 Jan 2011 17:59:24 -0800Subject: Re: speech If your therapist will do it, I would do it in a heartbeat. It was awesome for us. You can do it yourself if you need to, there are many home programs (we used www.vitallinks.net through both the SD and early intervention). It *does* help with the brain/body connection. The most areas I found it helped - self-regulation and expressive/receptive language. If you decide to do it and have questions, I'm happy to help. I know a lot of people that were helped in the sensory department (my son wasn't so sensory so we didn't see much there because there wasn't enough to see). I can't say if it did or didn't help with potty training - we started it well before getting there so I don't know. We started it at about 2.5 and potty trained him at 3.5. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ Cheryl, Can you tell me more about the therapeutic listening? My PDD daughter has poor articulation (she speaks in sentences - just very hard to understand). Also, she is 3 1/2 and absolutely refusing to potty train. I have been told by her OT that therapeutic listening can help with the brain/body connection, which in turn helps with potty training, sensory issues, sleeping issues, etc (she has all of these). If you wouldn't mind sharing your thoughts/experiences with this, I would appreciate it. Thanks! - Kirk- To: mb12 valtrex From: cheryl.biomed.mom@...Date: Thu, 27 Jan 2011 17:14:14 -0800Subject: Re: speech In my house, these are what helped speech (or at least what I noticed was helping speech - other things may have contributed but this is what I attribute it to): Speech therapy/child development therapy DMG - first thing we did when we first started biomed. On that year's father's day, my son fell, cried, and said, "I want momma!" DH and I both cried, DH didn't care that he was asking for mommy on father's day . He gained a lot of words but didn't really pick up on the sentences. AIT (we used Therapeutic Listening) - A huge jump in comprehension and self-regulation. Antivirals - Wow, is all I can say. He went from simply having words to having sentences. Lots of them. Antifungals - another big jump in language when we added antifungals a month after starting antivirals. LDN - really helped with pragmatic language. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ HI all:My daughter is non verbal. Any suggestions for supplements that you all have used that increased vocalization and communication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 That's funny - the same thing happened with us. The first cd was classical and she did great. The second one had words and she freaked. Good to know that you can play around with it a bit. I was told you had to go in order. Thanks for the info! - Kirk- To: mb12 valtrex From: cheryl.biomed.mom@...Date: Fri, 28 Jan 2011 13:26:10 -0800Subject: Re: speech Yes we did. Here's what we found: He needed the only classical ones first, no words. The songs with words totally made him nuts. The entire staff was blaming the OT for making him crazy. So we couldn't go in the order the program recommends. Once we had a few of the classical cd's under our belt, we went back to the ones with words and he was fine. You have to play with it a bit - it's just like supplements, what works for one isn't going to work for the other so you need to work around it by watching your child and changing the treatment plan. We had to not start where the program wants you to start and it worked phenomenally. We did 20 minutes, 2x a day, every day. But we started with about 10 to get him used to the headphones and I loaded it up on an iPod so it wouldn't be big and bulky (and the added benefit is that I now have the cd's and can do it myself whenever I need to). Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ ThanksCheryl! Did you ever see an increase in stimming or agitated behavior? We actually did try it very briefly with a therapist who was not as well-trained in it as she should have been. My daughter seemed to have better articulation after the first cd, but the second one caused stimming and she was very irritable. She turned three right around that time so Early Intervention ended and we had to wait months to start out patient OT, so we never went back to it. I want to try it again - I was just curious to know if there are any negative side effects. Did you do it twice a day every day? - Kirk- To: mb12 valtrex From: cheryl.biomed.mom@...Date: Thu, 27 Jan 2011 17:59:24 -0800Subject: Re: speech If your therapist will do it, I would do it in a heartbeat. It was awesome for us. You can do it yourself if you need to, there are many home programs (we used www.vitallinks.net through both the SD and early intervention). It *does* help with the brain/body connection. The most areas I found it helped - self-regulation and expressive/receptive language. If you decide to do it and have questions, I'm happy to help. I know a lot of people that were helped in the sensory department (my son wasn't so sensory so we didn't see much there because there wasn't enough to see). I can't say if it did or didn't help with potty training - we started it well before getting there so I don't know. We started it at about 2.5 and potty trained him at 3.5. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ Cheryl, Can you tell me more about the therapeutic listening? My PDD daughter has poor articulation (she speaks in sentences - just very hard to understand). Also, she is 3 1/2 and absolutely refusing to potty train. I have been told by her OT that therapeutic listening can help with the brain/body connection, which in turn helps with potty training, sensory issues, sleeping issues, etc (she has all of these). If you wouldn't mind sharing your thoughts/experiences with this, I would appreciate it. Thanks! - Kirk- To: mb12 valtrex From: cheryl.biomed.mom@...Date: Thu, 27 Jan 2011 17:14:14 -0800Subject: Re: speech In my house, these are what helped speech (or at least what I noticed was helping speech - other things may have contributed but this is what I attribute it to): Speech therapy/child development therapy DMG - first thing we did when we first started biomed. On that year's father's day, my son fell, cried, and said, "I want momma!" DH and I both cried, DH didn't care that he was asking for mommy on father's day . He gained a lot of words but didn't really pick up on the sentences. AIT (we used Therapeutic Listening) - A huge jump in comprehension and self-regulation. Antivirals - Wow, is all I can say. He went from simply having words to having sentences. Lots of them. Antifungals - another big jump in language when we added antifungals a month after starting antivirals. LDN - really helped with pragmatic language. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ HI all:My daughter is non verbal. Any suggestions for supplements that you all have used that increased vocalization and communication? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 So sorry, I keep meaning to respond to this as I think it would help, and then I get side tracked (my adhd is kicking in, just went and took some mag and b12..) Okay... According to 'the book'...(It goes vitamin, then mineral, then amino acid, and then the herbs that are *supposed to help* -- keep in mind that gave her son the Pau' D'Arco, and he got a rash. -- so I would probably try the vitamins and minerals first...I will also try to include a juicing strategy for these.. HA! grapes, strawberries means a deficiency in: B6 and B12, Manganese, Arginine, Proline. Fruit/veg for juicing: concord grapes (purple ones), Cantaloupe, cabbage, carrots, endive, watercress, parsley Cheddar cheese means a deficiency in: Vitamin D, Potassium, Aspartic Acid, Asparagine. Fruit/veg for juicing: carrots, dandelion leaves (great for the liver, although hi ox) beet tops (hi ox) blueberries, cabbage, endive, parsley, spinach, pineapple, grapes, celery. For wheat/gluten: EFA's (Linoleic) (*I personally would use borage oil for that one), Magnesium (I use Naturally calm, LOVE IT!) Histidine, Black walnut, kelp, and spirulina. Juicing strategy: (magnesium)limes, plums, dandelion leaves, apples, grapes, savoy cabbage, pears and peaches. For Beef/Eggs (whites and yolks) - Biotin, Carnitine, and Sulfur, for amino acids (methionine, cystein, taurine, glutathione, threonine, carnitine) and herbs are: sarsaparilla, eyebright, fenugreek, dandelion, burdock, fennel seeds. Juicing strategy: (not really one...hmmm) BUT..dessicated liver is perfect! It comes in pill form!! It doesn't have anything for: mustard, oregano, asperillus niger, and penicillium natatum... ....so, I would make a juice that contained... lime, pears, cabbage, dandelion leaves (bitter-good for liver though), grapes (concord)(tart, good for B12), parsley and endive. To make it taste better, I would add, apples (golden del), kale, ginger, and fennel. I am going to have to try that. I don't have limes, only lemon, and I need concord grapes, but not sure I can find those in organic. ugh. laura > > > > > > > > > > HI all: > > > > > My daughter is non verbal. Any suggestions for supplements that you all > > >have > > > > > > > > > > > used that increased vocalization and communication? > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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