Re: Just diagnosed & overwhelmed

[Guest guest]

The hypothyroid and low iodine diet is essential in order to have the

full benefit from a radioiodine ablation. The recurrence is always

possible but the fact remains that most thyroid cancer patients have

only one occurence. Your doctor, like most doctors, has not given you

the full picture. Stay with us, ask lots of questions and you will

learn all you need to know.

Gail

dx: 1968, TT, pap. & foll. well differentiated

w/hurthle cell, RAI, rad.neck dissection,lung surgery,

hashimoto, tg antibody 575, iodine resistant,existing

thyca nodules in lungs. Last surgery 1972

> Now as I search the

> web I see so much about what could be to come... the hypothroid, the

> low iodine diets, the reocurance, and yet have not heard anything

> about this from my Dr....am I only seeing worst case scenerios, or is

> this what is to come???

[Guest guest]

The hypothyroid and low iodine diet is essential in order to have the

full benefit from a radioiodine ablation. The recurrence is always

possible but the fact remains that most thyroid cancer patients have

only one occurence. Your doctor, like most doctors, has not given you

the full picture. Stay with us, ask lots of questions and you will

learn all you need to know.

Gail

dx: 1968, TT, pap. & foll. well differentiated

w/hurthle cell, RAI, rad.neck dissection,lung surgery,

hashimoto, tg antibody 575, iodine resistant,existing

thyca nodules in lungs. Last surgery 1972

> Now as I search the

> web I see so much about what could be to come... the hypothroid, the

> low iodine diets, the reocurance, and yet have not heard anything

> about this from my Dr....am I only seeing worst case scenerios, or is

> this what is to come???

[Guest guest]

The hypothyroid and low iodine diet is essential in order to have the

full benefit from a radioiodine ablation. The recurrence is always

possible but the fact remains that most thyroid cancer patients have

only one occurence. Your doctor, like most doctors, has not given you

the full picture. Stay with us, ask lots of questions and you will

learn all you need to know.

Gail

dx: 1968, TT, pap. & foll. well differentiated

w/hurthle cell, RAI, rad.neck dissection,lung surgery,

hashimoto, tg antibody 575, iodine resistant,existing

thyca nodules in lungs. Last surgery 1972

> Now as I search the

> web I see so much about what could be to come... the hypothroid, the

> low iodine diets, the reocurance, and yet have not heard anything

> about this from my Dr....am I only seeing worst case scenerios, or is

> this what is to come???

[Guest guest]

Now as I search the

> web I see so much about what could be to come... the hypothroid,

the

> low iodine diets, the reocurance, and yet have not heard anything

> about this from my Dr....am I only seeing worst case scenerios, or

is

> this what is to come???

Going Hypothyroid is just part of the treatment, its unpleasant but

not unbearable, and TEMPORARY.. its just the way that our bodies have

to be set up to get the best benefit from RAI. The Low Iodine Diet

falls in the same category, a two week cooking challenge, but

temporary, and something that helps make RAI and scanning way more

effective.. after all , if you're going to have to eat something

radioactive, wouldn't it be to a person's advantage to take every

precaution (LID, being really hypo) to have it do its work well the

first time???

For the most part.. you will see more worst case scenarios here than

in the general population of thyroid cancer surviviors.. the folks

who stay on this list represent a small percentage of those with

thyroid cancer.. and are often those who have had issues or concerns.

Most folks have a thyroidectomy, have some mop up RAI and go on their

merry way and die of something else. Some of us have had a harder

road, and some of us are just helpful... Don't let what you read

here scare you into thinking you'll have a recurrence someday. Ask

lots of questions, get through your thyroidectomy, do your follow up

treatment, and ASK US LOTS OF QUESTIONS..

good luck

barb

tt 8/99 RAI 4/00 Clean Scans 12/00, 5/02

[Guest guest]

Just diagnosed & overwhelmed

> I have just been told I have thyroid cancer...follicular w/papillary

> or something like that...I am to have a complete Thyroidectomy on

> Jan.

> 27th...scheduleing was a problem....I will have a neck ct scan on the

> 13th...I have had a nodule for 11 years, when it was first discovered

> I had a scan but nothing but blood tests every year since then, until

> now, in which a needle biopsy confirmed cancer... Now as I search the

> web I see so much about what could be to come... the hypothroid, the

> low iodine diets, the reocurance, and yet have not heard anything

> about this from my Dr....am I only seeing worst case scenerios, or is

> this what is to come???

>

[Guest guest]

Just diagnosed & overwhelmed

> I have just been told I have thyroid cancer...follicular w/papillary

> or something like that...I am to have a complete Thyroidectomy on

> Jan.

> 27th...scheduleing was a problem....I will have a neck ct scan on the

> 13th...I have had a nodule for 11 years, when it was first discovered

> I had a scan but nothing but blood tests every year since then, until

> now, in which a needle biopsy confirmed cancer... Now as I search the

> web I see so much about what could be to come... the hypothroid, the

> low iodine diets, the reocurance, and yet have not heard anything

> about this from my Dr....am I only seeing worst case scenerios, or is

> this what is to come???

>

[Guest guest]

Just diagnosed & overwhelmed

> I have just been told I have thyroid cancer...follicular w/papillary

> or something like that...I am to have a complete Thyroidectomy on

> Jan.

> 27th...scheduleing was a problem....I will have a neck ct scan on the

> 13th...I have had a nodule for 11 years, when it was first discovered

> I had a scan but nothing but blood tests every year since then, until

> now, in which a needle biopsy confirmed cancer... Now as I search the

> web I see so much about what could be to come... the hypothroid, the

> low iodine diets, the reocurance, and yet have not heard anything

> about this from my Dr....am I only seeing worst case scenerios, or is

> this what is to come???

>

[Guest guest]

I have had a nodule for 11 years, when it was first discovered

> I had a scan but nothing but blood tests every year since then,

until

> now, in which a needle biopsy confirmed cancer... Now as I search

the

> web I see so much about what could be to come...

Hi & Welcome to the group!

This is the best place to get information, especially when you are

first diagnosed.

My situation is similar to yours. My nodule first appeared in 1993.

I had a scan and biopsy. The biopsy came back benign. It was

biopsied again in 1999 and came back inconclusive and suspicious.

The surgery confirmed Follicular/Papillary Carcinoma. I went

hypothyroid, did the low iodine diet and had 100 mci RAI. A year

later I scanned again with a clean scan. This is a slow growing

cancer, but it is still cancer.

I found that taking one step at time helped. Everytime I had a

question through the whole thing I would alway get 3 - 5 responses or

more.

Like everyone else has advised you, follow up with the doc as to the

reason of the CT scan because you do not want to have Iodine Contrast

mess up the RAI treatment later.

Hang in There! You are with a great group of people that can answer

your questions.

Gail Schuler

Redwood City, CA.

TT 8/31/99

Dx Follicular Variant of Papillary Carcinoma 9/9/99

100 MCI RAI 11/04/99

Clean Scan with Thyrogen 10/13/00

[Guest guest]

:

I had a CT scan (July 2001) with iodine contrast prior to my first RAI ablation

(October 2001) and I believe that it negatively affected the outcome of that

first RAI. The CT scan was requested by the surgeon who did my first surgery

(bioposy) who, of course, could not have predicted that I would eventually (2

months later) need a TT. My second CT scan (performed after the second surgery)

was done without iodine contrast. I understand that iodine contrast is used

with a CT to give the doctors a sharper picture of what is being viewed, but

that the CT can be just as effective without the iodine contrast. The only

difference is that the picture is not as sharp without iodine contrast. Speak

to your doctor about this issue before you have the CT and ask him/her if it can

be done without the iodine contrast.

Jim

Just diagnosed & overwhelmed

> I have just been told I have thyroid cancer...follicular w/papillary

> or something like that...I am to have a complete Thyroidectomy on

> Jan.

> 27th...scheduleing was a problem....I will have a neck ct scan on the

> 13th...I have had a nodule for 11 years, when it was first discovered

> I had a scan but nothing but blood tests every year since then, until

> now, in which a needle biopsy confirmed cancer... Now as I search the

> web I see so much about what could be to come... the hypothroid, the

> low iodine diets, the reocurance, and yet have not heard anything

> about this from my Dr....am I only seeing worst case scenerios, or is

> this what is to come???

>