Re: I am New to this board

[Guest guest]

Hi Donna!

You sure are right about that!! The weather really gets to me, more than anything. I've turned into one of those people that can forecast rain (grins).

Love - kins

-------Original Message-------

From: Donna

Date: 04/11/05 16:29:07

Rheumatoid Arthritis

Subject: I am New to this board

Hi Everyone,My Name is Donna, I am 55 and have had RA for 15 years. I am on prednisone, Plaqunil, celebrex, arava, and MTX..Thinking about starting Remicade. my Insurance will cover that one.I just wanted to say Hi and that I sure know what it is like to have RA. and its not fun!!Donna

[Guest guest]

Hello,

Donna. Welcome!

-----Original Message-----

From: Donna

[mailto:Durns1@...]

Sent: Thursday, April 07, 2005

7:06 PM

Rheumatoid Arthritis

Subject: I

am New to this board

Hi Everyone,

My Name is Donna, I am 55 and have had RA for 15

years. I am on

prednisone, Plaqunil, celebrex, arava, and

MTX..Thinking about

starting Remicade. my Insurance will cover that

one.

I just wanted to say Hi and that I sure know what

it is like to have

RA. and its not fun!!

Donna

[Guest guest]

----- Original Message -----

From: Donna > Hi Everyone,My Name is Donna, I am 55 and have had RA for 15 years. I am on prednisone, Plaqunil, celebrex, arava, and MTX..

Welcome! I also take prednisone and plaquenil. I'm about to give up on the plaquenil though because after two months, it's still causing severe stomach problems. I haven't noticed any improvement in fatigue, though I think it may be helping with inflammation.

Nina

[Guest guest]

Nina,

I had nausea and stomach problems with plaquenil for almost a year, but once that wore off, it didn't come back. I also had every other side-effect except the eye problems -- that horrible rash, and I can't even remember the rest. I've been on it about 12 years now, with no side effects at all after the initial ones wore off, but it took several years to get through them.

----- Original Message ----- From: Nina

Rheumatoid Arthritis

Sent: Monday, April 11, 2005 9:56 PM

Subject: Re: I am New to this board

----- Original Message -----

From: Donna > Hi Everyone,My Name is Donna, I am 55 and have had RA for 15 years. I am on prednisone, Plaqunil, celebrex, arava, and MTX..

Welcome! I also take prednisone and plaquenil. I'm about to give up on the plaquenil though because after two months, it's still causing severe stomach problems. I haven't noticed any improvement in fatigue, though I think it may be helping with inflammation.

Nina

[Guest guest]

----- Original Message -----

From: Hasenstab

> I had nausea and stomach problems with plaquenil for almost a year, but once that wore off, it didn't come back. I also had every other side-effect except the eye problems -- that horrible rash, and I can't even remember the rest. I've been on it about 12 years now, with no side effects at all after the initial ones wore off, but it took several years to get through them.

I haven't had nausea or rash, but such horrid diarrhea that I can hardly ever leave my house.

Nina

[Guest guest]

YES! How could I have forgotten? But it goes away eventually.

----- Original Message ----- From: Nina

Rheumatoid Arthritis

Sent: Monday, April 11, 2005 10:07 PM

Subject: Re: I am New to this board

----- Original Message -----

From: Hasenstab

> I had nausea and stomach problems with plaquenil for almost a year, but once that wore off, it didn't come back. I also had every other side-effect except the eye problems -- that horrible rash, and I can't even remember the rest. I've been on it about 12 years now, with no side effects at all after the initial ones wore off, but it took several years to get through them.

I haven't had nausea or rash, but such horrid diarrhea that I can hardly ever leave my house.

Nina

[Guest guest]

----- Original Message -----

From: Hasenstab

> YES! How could I have forgotten? But it goes away eventually.

I started taking it about two months ago. Do you remember how long it took before it went away? I've seriously thought of giving it up because of this side effect.

Nina

[Guest guest]

Months. I controlled it some by what and when I ate. I have IBS and don't take any meds, so I'm used to that and it wasn't much of a problem. It might wear off sooner with you, though, if you don't have any underlying problem anyway. My motivation was that plaquenil is one of the safest dmaards and I didn't want to have to go to mtx right away.

----- Original Message ----- From: Nina

Rheumatoid Arthritis

Sent: Monday, April 11, 2005 11:52 PM

Subject: Re: I am New to this board

----- Original Message -----

From: Hasenstab

> YES! How could I have forgotten? But it goes away eventually.

I started taking it about two months ago. Do you remember how long it took before it went away? I've seriously thought of giving it up because of this side effect.

Nina

[Guest guest]

----- Original Message -----

From: Hasenstab

> Months. I controlled it some by what and when I ate. I have IBS and don't take any meds, so I'm used to that and it wasn't much of a problem. It might wear off sooner with you, though, if you don't have any underlying problem anyway. My motivation was that plaquenil is one of the safest dmaards and I didn't want to have to go to mtx right away.

I have IBS, too. This is so much fun! I skipped my dose this morning and will tonight so I can make it to town tomorrow.

Nina

[Guest guest]

Hello Donna. I got RA at age 74 and am now 77. I didn't get much help from Arava alone or Methotrexate alone but then we added Remicade to the Methotrexate. I didn't get much help at 3 mg/kg but when we went up slowly to 6 mg/kg I started to feel much better and was even able to get off Prednisone. I hope the Remicade works well for you also. God bless.

----- Original Message -----

From: Donna

Rheumatoid Arthritis

Sent: Thursday, April 07, 2005 4:05 PM

Subject: I am New to this board

Hi Everyone,My Name is Donna, I am 55 and have had RA for 15 years. I am on prednisone, Plaqunil, celebrex, arava, and MTX..Thinking about starting Remicade. my Insurance will cover that one.I just wanted to say Hi and that I sure know what it is like to have RA. and its not fun!!Donna

[Guest guest]

Thanks Harold I also hope it works.. I need to get off prednisone, I hate the way it makes me look you know what i mean i am sure. I actually have Palandromic RA. it effects my soft tissues more then my bones right now. its kind of rare wondering if u or anyone have ever heard of it.

Donna

Harold Van Tuyl <hvantuyl@...> wrote:

Hello Donna. I got RA at age 74 and am now 77. I didn't get much help from Arava alone or Methotrexate alone but then we added Remicade to the Methotrexate. I didn't get much help at 3 mg/kg but when we went up slowly to 6 mg/kg I started to feel much better and was even able to get off Prednisone. I hope the Remicade works well for you also. God bless.

----- Original Message -----

From: Donna

Rheumatoid Arthritis

Sent: Thursday, April 07, 2005 4:05 PM

Subject: I am New to this board

Hi Everyone,My Name is Donna, I am 55 and have had RA for 15 years. I am on prednisone, Plaqunil, celebrex, arava, and MTX..Thinking about starting Remicade. my Insurance will cover that one.I just wanted to say Hi and that I sure know what it is like to have RA. and its not fun!!Donna

Donna

[Guest guest]

me too nina, I had to go off plaquenil for a few years now seem to be doing good.. its been about 10 years for me. Hasenstab <saludo@...> wrote:

Nina,

I had nausea and stomach problems with plaquenil for almost a year, but once that wore off, it didn't come back. I also had every other side-effect except the eye problems -- that horrible rash, and I can't even remember the rest. I've been on it about 12 years now, with no side effects at all after the initial ones wore off, but it took several years to get through them.

----- Original Message ----- From: Nina

Rheumatoid Arthritis

Sent: Monday, April 11, 2005 9:56 PM

Subject: Re: I am New to this board

----- Original Message -----

From: Donna > Hi Everyone,My Name is Donna, I am 55 and have had RA for 15 years. I am on prednisone, Plaqunil, celebrex, arava, and MTX..

Welcome! I also take prednisone and plaquenil. I'm about to give up on the plaquenil though because after two months, it's still causing severe stomach problems. I haven't noticed any improvement in fatigue, though I think it may be helping with inflammation.

Nina

Donna

[Guest guest]

I don't remember hearing that Palindromic Arthritis affects the soft tissue but it does move from joint to joint. If your soft tissues are involved it might be fibromyalgia instead of arthritis. It is also a autoimmune disease that often affects people with RA or similar diseases. Some doctors are reluctant to diagnose fibromyalgia becasue I don't think there are any lab tests to confirm it and some people use it as an excuse to go on medical disability. That makes it difficult for people who actually have it. You might want to ask your doctor(s) about this. God bless.

----- Original Message -----

From: Donna silva

Rheumatoid Arthritis

Sent: Wednesday, April 13, 2005 7:34 AM

Subject: Re: I am New to this board

Thanks Harold I also hope it works.. I need to get off prednisone, I hate the way it makes me look you know what i mean i am sure. I actually have Palandromic RA. it effects my soft tissues more then my bones right now. its kind of rare wondering if u or anyone have ever heard of it.

Donna

Harold Van Tuyl <hvantuyl@...> wrote:

Hello Donna. I got RA at age 74 and am now 77. I didn't get much help from Arava alone or Methotrexate alone but then we added Remicade to the Methotrexate. I didn't get much help at 3 mg/kg but when we went up slowly to 6 mg/kg I started to feel much better and was even able to get off Prednisone. I hope the Remicade works well for you also. God bless.

----- Original Message -----

From: Donna

Rheumatoid Arthritis

Sent: Thursday, April 07, 2005 4:05 PM

Subject: I am New to this board

Hi Everyone,My Name is Donna, I am 55 and have had RA for 15 years. I am on prednisone, Plaqunil, celebrex, arava, and MTX..Thinking about starting Remicade. my Insurance will cover that one.I just wanted to say Hi and that I sure know what it is like to have RA. and its not fun!!Donna

Donna

[Guest guest]

Thats right it moves from joint to joint and yep it does effect the soft tissues. My Rhuemy said its a part of RA..so i guess i am a lucky one to have both. my sed rates are high and everything. most people have never heard of Palindromic Arth so its nice to know someone that does.

DonnaHarold Van Tuyl <hvantuyl@...> wrote:

I don't remember hearing that Palindromic Arthritis affects the soft tissue but it does move from joint to joint. If your soft tissues are involved it might be fibromyalgia instead of arthritis. It is also a autoimmune disease that often affects people with RA or similar diseases. Some doctors are reluctant to diagnose fibromyalgia becasue I don't think there are any lab tests to confirm it and some people use it as an excuse to go on medical disability. That makes it difficult for people who actually have it. You might want to ask your doctor(s) about this. God bless.

----- Original Message -----

From: Donna silva

Rheumatoid Arthritis

Sent: Wednesday, April 13, 2005 7:34 AM

Subject: Re: I am New to this board

Thanks Harold I also hope it works.. I need to get off prednisone, I hate the way it makes me look you know what i mean i am sure. I actually have Palandromic RA. it effects my soft tissues more then my bones right now. its kind of rare wondering if u or anyone have ever heard of it.

Donna

Harold Van Tuyl <hvantuyl@...> wrote:

Hello Donna. I got RA at age 74 and am now 77. I didn't get much help from Arava alone or Methotrexate alone but then we added Remicade to the Methotrexate. I didn't get much help at 3 mg/kg but when we went up slowly to 6 mg/kg I started to feel much better and was even able to get off Prednisone. I hope the Remicade works well for you also. God bless.

----- Original Message -----

From: Donna

Rheumatoid Arthritis

Sent: Thursday, April 07, 2005 4:05 PM

Subject: I am New to this board

Hi Everyone,My Name is Donna, I am 55 and have had RA for 15 years. I am on prednisone, Plaqunil, celebrex, arava, and MTX..Thinking about starting Remicade. my Insurance will cover that one.I just wanted to say Hi and that I sure know what it is like to have RA. and its not fun!!Donna

Donna

Donna