Guest guest Posted May 23, 2001 Report Share Posted May 23, 2001 , Have you thought of taking your husband with you to your doctor and have the doctor explain about your pain and limitations? I think that we all at one time or another feel like we just can't cope any longer but we do. Are you getting anything to help wit pain. You are also depressed and should talk to your doctor about this. Maybe he can give you a medication that would help. I used to wonder how people were able to clean, etc., but after we found a pain medication that help a lot, I find that most days I can do things around the house. You have to listen to your body and when things get really bad stop. There are times when we feel like we have run into a brick wall. The fatigue, the pain, IBS. I go to bed and get rest and do what I can when I can. As my husband tells me " I really don't have to do anything " . \ I am so sorry that your family ignores you. You need them as a support system. Someone who understands. We are here anytime you need to talk. Any member of this group will be supportive and helpful. Feel free to talk as you have done in your post to really talk about what is in your mind and heart. I have granddaughters that I would like to do more with but they understand and know that I will do what I can when I can. They were confirmed on Sunday and I felt well enough to go. My granddaughters were so happy that I was there and I would be with them when they were confirmed. Please take care, Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2001 Report Share Posted May 23, 2001 , Have you thought of taking your husband with you to your doctor and have the doctor explain about your pain and limitations? I think that we all at one time or another feel like we just can't cope any longer but we do. Are you getting anything to help wit pain. You are also depressed and should talk to your doctor about this. Maybe he can give you a medication that would help. I used to wonder how people were able to clean, etc., but after we found a pain medication that help a lot, I find that most days I can do things around the house. You have to listen to your body and when things get really bad stop. There are times when we feel like we have run into a brick wall. The fatigue, the pain, IBS. I go to bed and get rest and do what I can when I can. As my husband tells me " I really don't have to do anything " . \ I am so sorry that your family ignores you. You need them as a support system. Someone who understands. We are here anytime you need to talk. Any member of this group will be supportive and helpful. Feel free to talk as you have done in your post to really talk about what is in your mind and heart. I have granddaughters that I would like to do more with but they understand and know that I will do what I can when I can. They were confirmed on Sunday and I felt well enough to go. My granddaughters were so happy that I was there and I would be with them when they were confirmed. Please take care, Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2001 Report Share Posted May 23, 2001 In a message dated 5/23/01 3:28:49 AM Eastern Daylight Time, jspraker@... writes: > This isolation is the worst. Being alone and in pain and unable to > do the little everyday things is almost unbearable. > > . I cried when I read your post. I am so sorry that you feel alone. Has your husband ever read anything about fibro. Would he read some of the posts here? It makes me mad when a husband won't try to understand. We are all here for you and don;t forget that. We may not be family, but we all do care, very much. Even though my husband and family understand I feel alone a lot. I can't do all the things they do. So, with fibro does come sadness. Have you ever talked to a Doctor about how you feel, like wishing you could comitte suicide. A anti-depressant may be very helpful right now for you. Please consider telling your Doctor how you feel. You were kind enough to share your story with us, please share it with your doctor. God Bless, and PLEASE be kind to yourself. Kathy D. Diagnosed in 98 Live in Western Massachusetts Married for almost 19yrs, to a sweetheart Mother to 16 and 14 My Rottie dog Shelby Spooky the cat Hobbies: Boating, Learning this computer Arts & Crafts, and a passionate reader Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2001 Report Share Posted May 23, 2001 , I'm sorry you are having such a bad time right now. Hopefully, your kids will head home for visits once the newness of being on their own wears off. I hope you have gotten a lawyer for disability. I'm sending hugs your way. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2001 Report Share Posted May 23, 2001 , I'm sorry you are having such a bad time right now. Hopefully, your kids will head home for visits once the newness of being on their own wears off. I hope you have gotten a lawyer for disability. I'm sending hugs your way. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Hello Joanne I've received your E.Mail so it must be owrking alright. I'm from the UK. Hope you receive other E.Mails soon as its good to hear from others. All the best Lorraine UK --- joannepd49us@... wrote: <HR> <html><body> <tt> I changed my e-mail to my work address as I have more time here than I <BR> do at home, but I'm not getting any mail. & nbsp; Is there a problem with <BR> Yahoo?<BR> <BR> Joanne<BR> <BR> </tt> <br> <tt> SEND POST TO: fibromyalgia-cfs <BR> TO UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe <BR> <BR> List owner: Bierman fibromyalgia-cfs-owner <BR> <BR> <BR> </tt> <br> <br> <tt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Hello Joanne I've received your E.Mail so it must be owrking alright. I'm from the UK. Hope you receive other E.Mails soon as its good to hear from others. All the best Lorraine UK --- joannepd49us@... wrote: <HR> <html><body> <tt> I changed my e-mail to my work address as I have more time here than I <BR> do at home, but I'm not getting any mail. & nbsp; Is there a problem with <BR> Yahoo?<BR> <BR> Joanne<BR> <BR> </tt> <br> <tt> SEND POST TO: fibromyalgia-cfs <BR> TO UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe <BR> <BR> List owner: Bierman fibromyalgia-cfs-owner <BR> <BR> <BR> </tt> <br> <br> <tt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2002 Report Share Posted February 18, 2002 Hi Laurel, I'm glad to see you are in the group now! The archives will really help a lot, search by topics, it makes things much easier. The monthly hormone replacement meds are not expensive...actually I get my thyroid hormone replacement meds and my ptu at a pharmacy where my insurance is not on file...believe it or not they are half the cost than if I got them filled where they send them through insurance. The insurance company tells the drug stores 'how much' they are allowed to charge us, even when that cost is higher than what the pills are costing without insurance. Supplement wise, I take only the ca/mg with a vitamine D and my vitamin E with B-6, B-12 and folic acid. I am considering starting to add the zinc, copper, selenium to my regimen, but I do it slowly, one at a time and keep it level for 3 months before adding more. TTYL Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2002 Report Share Posted February 18, 2002 Hi Laurel, I'm glad to see you are in the group now! The archives will really help a lot, search by topics, it makes things much easier. The monthly hormone replacement meds are not expensive...actually I get my thyroid hormone replacement meds and my ptu at a pharmacy where my insurance is not on file...believe it or not they are half the cost than if I got them filled where they send them through insurance. The insurance company tells the drug stores 'how much' they are allowed to charge us, even when that cost is higher than what the pills are costing without insurance. Supplement wise, I take only the ca/mg with a vitamine D and my vitamin E with B-6, B-12 and folic acid. I am considering starting to add the zinc, copper, selenium to my regimen, but I do it slowly, one at a time and keep it level for 3 months before adding more. TTYL Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2002 Report Share Posted February 18, 2002 Hi Laurel, I'm glad to see you are in the group now! The archives will really help a lot, search by topics, it makes things much easier. The monthly hormone replacement meds are not expensive...actually I get my thyroid hormone replacement meds and my ptu at a pharmacy where my insurance is not on file...believe it or not they are half the cost than if I got them filled where they send them through insurance. The insurance company tells the drug stores 'how much' they are allowed to charge us, even when that cost is higher than what the pills are costing without insurance. Supplement wise, I take only the ca/mg with a vitamine D and my vitamin E with B-6, B-12 and folic acid. I am considering starting to add the zinc, copper, selenium to my regimen, but I do it slowly, one at a time and keep it level for 3 months before adding more. TTYL Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2002 Report Share Posted February 18, 2002 Hi Laurel Thank you for introducing yourself. I for one am new to the list and new to GD. It is not in my family so I am very very new to GD. It is helping to sit and read everyones stories as being the only one in my family and circle of friends makes information and experience hard to find. I was at the doctors mercy until joining this list. In just a few days I know so much more. I hope everything works out for you. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2002 Report Share Posted February 18, 2002 Hi Laurel Thank you for introducing yourself. I for one am new to the list and new to GD. It is not in my family so I am very very new to GD. It is helping to sit and read everyones stories as being the only one in my family and circle of friends makes information and experience hard to find. I was at the doctors mercy until joining this list. In just a few days I know so much more. I hope everything works out for you. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2002 Report Share Posted February 18, 2002 Hi Laurel Thank you for introducing yourself. I for one am new to the list and new to GD. It is not in my family so I am very very new to GD. It is helping to sit and read everyones stories as being the only one in my family and circle of friends makes information and experience hard to find. I was at the doctors mercy until joining this list. In just a few days I know so much more. I hope everything works out for you. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2002 Report Share Posted February 18, 2002 Dear Jody, Thanks. I'm afraid that I want all this to resolve far more quickly than it has. I'm already using MSM, Ca/Mg, and, recently Evening Primrose with the cytomel. Trouble is that if I use cytomel qd. I'm feeling hypo and if bid I start getting the cardiac symptoms back. Of course with the docs its " see me in April and we will discuss it. " Found out today that the back/muscle pain is due to a degenerating spine. According to my chiropractor (who has been the one bright spot in all this) I have the spine of someone considerably older than me. Maybe a little extra vitamin E would be helpful. Antioxidant could help? Laurel Re: Hi Hi Laurel, I'm glad to see you are in the group now! The archives will really help a lot, search by topics, it makes things much easier. The monthly hormone replacement meds are not expensive...actually I get my thyroid hormone replacement meds and my ptu at a pharmacy where my insurance is not on file...believe it or not they are half the cost than if I got them filled where they send them through insurance. The insurance company tells the drug stores 'how much' they are allowed to charge us, even when that cost is higher than what the pills are costing without insurance. Supplement wise, I take only the ca/mg with a vitamine D and my vitamin E with B-6, B-12 and folic acid. I am considering starting to add the zinc, copper, selenium to my regimen, but I do it slowly, one at a time and keep it level for 3 months before adding more. TTYL Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list does not have the endorsement of the listowner. I have no input as to what ads are attached to emails. --------------------------------------------------------------------------------\ ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2002 Report Share Posted February 18, 2002 Dear Jody, Thanks. I'm afraid that I want all this to resolve far more quickly than it has. I'm already using MSM, Ca/Mg, and, recently Evening Primrose with the cytomel. Trouble is that if I use cytomel qd. I'm feeling hypo and if bid I start getting the cardiac symptoms back. Of course with the docs its " see me in April and we will discuss it. " Found out today that the back/muscle pain is due to a degenerating spine. According to my chiropractor (who has been the one bright spot in all this) I have the spine of someone considerably older than me. Maybe a little extra vitamin E would be helpful. Antioxidant could help? Laurel Re: Hi Hi Laurel, I'm glad to see you are in the group now! The archives will really help a lot, search by topics, it makes things much easier. The monthly hormone replacement meds are not expensive...actually I get my thyroid hormone replacement meds and my ptu at a pharmacy where my insurance is not on file...believe it or not they are half the cost than if I got them filled where they send them through insurance. The insurance company tells the drug stores 'how much' they are allowed to charge us, even when that cost is higher than what the pills are costing without insurance. Supplement wise, I take only the ca/mg with a vitamine D and my vitamin E with B-6, B-12 and folic acid. I am considering starting to add the zinc, copper, selenium to my regimen, but I do it slowly, one at a time and keep it level for 3 months before adding more. TTYL Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list does not have the endorsement of the listowner. I have no input as to what ads are attached to emails. --------------------------------------------------------------------------------\ ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2002 Report Share Posted February 18, 2002 Dear Jody, Thanks. I'm afraid that I want all this to resolve far more quickly than it has. I'm already using MSM, Ca/Mg, and, recently Evening Primrose with the cytomel. Trouble is that if I use cytomel qd. I'm feeling hypo and if bid I start getting the cardiac symptoms back. Of course with the docs its " see me in April and we will discuss it. " Found out today that the back/muscle pain is due to a degenerating spine. According to my chiropractor (who has been the one bright spot in all this) I have the spine of someone considerably older than me. Maybe a little extra vitamin E would be helpful. Antioxidant could help? Laurel Re: Hi Hi Laurel, I'm glad to see you are in the group now! The archives will really help a lot, search by topics, it makes things much easier. The monthly hormone replacement meds are not expensive...actually I get my thyroid hormone replacement meds and my ptu at a pharmacy where my insurance is not on file...believe it or not they are half the cost than if I got them filled where they send them through insurance. The insurance company tells the drug stores 'how much' they are allowed to charge us, even when that cost is higher than what the pills are costing without insurance. Supplement wise, I take only the ca/mg with a vitamine D and my vitamin E with B-6, B-12 and folic acid. I am considering starting to add the zinc, copper, selenium to my regimen, but I do it slowly, one at a time and keep it level for 3 months before adding more. TTYL Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list does not have the endorsement of the listowner. I have no input as to what ads are attached to emails. --------------------------------------------------------------------------------\ ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Hi Laurel, Glad you found the group. You might want to check what your state's laws for the use of radioactive material were at the times you had RAI. You could call one of the hospital radiology departments and ask if they require a signed consent. I'm thinking they were required nationally before 98 but laws could vary with states I guess. Let us know what you find out, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Hi Laurel, Glad you found the group. You might want to check what your state's laws for the use of radioactive material were at the times you had RAI. You could call one of the hospital radiology departments and ask if they require a signed consent. I'm thinking they were required nationally before 98 but laws could vary with states I guess. Let us know what you find out, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Elaine, I know that there are signed release forms but I'm not sure of the content. I must have been pretty hyper when I signed them because I generally read and remember just about everything. To my memory the cautions were against contact with other people. That is all I remember. If there were mentions of other options being discussed, that discussion did not include any of the known risks of radiation nor did it mention the eye, heart, and other associated problems. As I mentioned I was not warned of any possible complications and even my FP was fooled by the situation so that he beleived I was having a heart attack. My EKG showed possible ischemic changes. I'm not sure that after two years of daily (and sometimes hours long )PVC's as well as the history of atrial fib, there is not some myocardial damage. My GO, while it is slightly improved, continues to be a problem more than a year into when I noticed it (and I'm sure it was there months before). But I will try to find out the State Code on RAI. New York regulates just about everything possible so there must be a form somewhere. I don't think I'd have too much trouble getting it from the hospital and/or the facility that did the second radiation. I finally spoke to an attorney. He is not very encouraging. It seems that it is difficult if not impossible to obtain copies of the records of the endo at the time this was done. I guess my denial is over and I'm into an anger phase. I really don't want to see this happen to anyone else if I can help it. I'm sure there are times when this proceedure is appropriate but part of making a decision is to be informed. I guess that's my focus and that focus is my way of coping. Somebody please tell me that this gets better. I finally have my shot at my Masters' and I don't want to lose it! And, Elaine, and everybody, thanks for the information and all your help. All these suppliments finally pay off right? I'd do anything to get back to my workouts. And school. And my job. Oh Yeah. For Elaine, Terri Gerlach Rietzke Skaff sends her regards. Laurel Re: Hi Hi Laurel, Glad you found the group. You might want to check what your state's laws for the use of radioactive material were at the times you had RAI. You could call one of the hospital radiology departments and ask if they require a signed consent. I'm thinking they were required nationally before 98 but laws could vary with states I guess. Let us know what you find out, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Elaine, I know that there are signed release forms but I'm not sure of the content. I must have been pretty hyper when I signed them because I generally read and remember just about everything. To my memory the cautions were against contact with other people. That is all I remember. If there were mentions of other options being discussed, that discussion did not include any of the known risks of radiation nor did it mention the eye, heart, and other associated problems. As I mentioned I was not warned of any possible complications and even my FP was fooled by the situation so that he beleived I was having a heart attack. My EKG showed possible ischemic changes. I'm not sure that after two years of daily (and sometimes hours long )PVC's as well as the history of atrial fib, there is not some myocardial damage. My GO, while it is slightly improved, continues to be a problem more than a year into when I noticed it (and I'm sure it was there months before). But I will try to find out the State Code on RAI. New York regulates just about everything possible so there must be a form somewhere. I don't think I'd have too much trouble getting it from the hospital and/or the facility that did the second radiation. I finally spoke to an attorney. He is not very encouraging. It seems that it is difficult if not impossible to obtain copies of the records of the endo at the time this was done. I guess my denial is over and I'm into an anger phase. I really don't want to see this happen to anyone else if I can help it. I'm sure there are times when this proceedure is appropriate but part of making a decision is to be informed. I guess that's my focus and that focus is my way of coping. Somebody please tell me that this gets better. I finally have my shot at my Masters' and I don't want to lose it! And, Elaine, and everybody, thanks for the information and all your help. All these suppliments finally pay off right? I'd do anything to get back to my workouts. And school. And my job. Oh Yeah. For Elaine, Terri Gerlach Rietzke Skaff sends her regards. Laurel Re: Hi Hi Laurel, Glad you found the group. You might want to check what your state's laws for the use of radioactive material were at the times you had RAI. You could call one of the hospital radiology departments and ask if they require a signed consent. I'm thinking they were required nationally before 98 but laws could vary with states I guess. Let us know what you find out, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 Elaine, I know that there are signed release forms but I'm not sure of the content. I must have been pretty hyper when I signed them because I generally read and remember just about everything. To my memory the cautions were against contact with other people. That is all I remember. If there were mentions of other options being discussed, that discussion did not include any of the known risks of radiation nor did it mention the eye, heart, and other associated problems. As I mentioned I was not warned of any possible complications and even my FP was fooled by the situation so that he beleived I was having a heart attack. My EKG showed possible ischemic changes. I'm not sure that after two years of daily (and sometimes hours long )PVC's as well as the history of atrial fib, there is not some myocardial damage. My GO, while it is slightly improved, continues to be a problem more than a year into when I noticed it (and I'm sure it was there months before). But I will try to find out the State Code on RAI. New York regulates just about everything possible so there must be a form somewhere. I don't think I'd have too much trouble getting it from the hospital and/or the facility that did the second radiation. I finally spoke to an attorney. He is not very encouraging. It seems that it is difficult if not impossible to obtain copies of the records of the endo at the time this was done. I guess my denial is over and I'm into an anger phase. I really don't want to see this happen to anyone else if I can help it. I'm sure there are times when this proceedure is appropriate but part of making a decision is to be informed. I guess that's my focus and that focus is my way of coping. Somebody please tell me that this gets better. I finally have my shot at my Masters' and I don't want to lose it! And, Elaine, and everybody, thanks for the information and all your help. All these suppliments finally pay off right? I'd do anything to get back to my workouts. And school. And my job. Oh Yeah. For Elaine, Terri Gerlach Rietzke Skaff sends her regards. Laurel Re: Hi Hi Laurel, Glad you found the group. You might want to check what your state's laws for the use of radioactive material were at the times you had RAI. You could call one of the hospital radiology departments and ask if they require a signed consent. I'm thinking they were required nationally before 98 but laws could vary with states I guess. Let us know what you find out, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Hi Laurel- Don't give up on your Master's! Even if you don't feel well you can do it. Although it was hard (I had very long hours in the DNA lab) it can be done even if you aren't doing well following RAI. I got my Master's in Biology in '98. I was slower than most but I found the key was to keep plugging away no matter what. There were times when I was very very dispirited though. Despite the bad times, it's very important to keep your goal in mind and not get too caught up in the moment. Anyhow, feel free to write me privately at jutek@... if you want to talk about it. Take care, > Elaine, > > I know that there are signed release forms but I'm not sure of the content. I must have been pretty hyper when I signed them because I generally read and remember just about everything. To my memory the cautions were against contact with other people. That is all I remember. If there were mentions of other options being discussed, that discussion did not include any of the known risks of radiation nor did it mention the eye, heart, and other associated problems. > > As I mentioned I was not warned of any possible complications and even my FP was fooled by the situation so that he beleived I was having a heart attack. My EKG showed possible ischemic changes. I'm not sure that after two years of daily (and sometimes hours long )PVC's as well as the history of atrial fib, there is not some myocardial damage. My GO, while it is slightly improved, continues to be a problem more than a year into when I noticed it (and I'm sure it was there months before). > > But I will try to find out the State Code on RAI. New York regulates just about everything possible so there must be a form somewhere. I don't think I'd have too much trouble getting it from the hospital and/or the facility that did the second radiation. > > I finally spoke to an attorney. He is not very encouraging. It seems that it is difficult if not impossible to obtain copies of the records of the endo at the time this was done. I guess my denial is over and I'm into an anger phase. I really don't want to see this happen to anyone else if I can help it. I'm sure there are times when this proceedure is appropriate but part of making a decision is to be informed. I guess that's my focus and that focus is my way of coping. > > Somebody please tell me that this gets better. I finally have my shot at my Masters' and I don't want to lose it! > > And, Elaine, and everybody, thanks for the information and all your help. All these suppliments finally pay off right? I'd do anything to get back to my workouts. And school. And my job. > > Oh Yeah. For Elaine, Terri Gerlach Rietzke Skaff sends her regards. > Laurel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Hi Laurel- Don't give up on your Master's! Even if you don't feel well you can do it. Although it was hard (I had very long hours in the DNA lab) it can be done even if you aren't doing well following RAI. I got my Master's in Biology in '98. I was slower than most but I found the key was to keep plugging away no matter what. There were times when I was very very dispirited though. Despite the bad times, it's very important to keep your goal in mind and not get too caught up in the moment. Anyhow, feel free to write me privately at jutek@... if you want to talk about it. Take care, > Elaine, > > I know that there are signed release forms but I'm not sure of the content. I must have been pretty hyper when I signed them because I generally read and remember just about everything. To my memory the cautions were against contact with other people. That is all I remember. If there were mentions of other options being discussed, that discussion did not include any of the known risks of radiation nor did it mention the eye, heart, and other associated problems. > > As I mentioned I was not warned of any possible complications and even my FP was fooled by the situation so that he beleived I was having a heart attack. My EKG showed possible ischemic changes. I'm not sure that after two years of daily (and sometimes hours long )PVC's as well as the history of atrial fib, there is not some myocardial damage. My GO, while it is slightly improved, continues to be a problem more than a year into when I noticed it (and I'm sure it was there months before). > > But I will try to find out the State Code on RAI. New York regulates just about everything possible so there must be a form somewhere. I don't think I'd have too much trouble getting it from the hospital and/or the facility that did the second radiation. > > I finally spoke to an attorney. He is not very encouraging. It seems that it is difficult if not impossible to obtain copies of the records of the endo at the time this was done. I guess my denial is over and I'm into an anger phase. I really don't want to see this happen to anyone else if I can help it. I'm sure there are times when this proceedure is appropriate but part of making a decision is to be informed. I guess that's my focus and that focus is my way of coping. > > Somebody please tell me that this gets better. I finally have my shot at my Masters' and I don't want to lose it! > > And, Elaine, and everybody, thanks for the information and all your help. All these suppliments finally pay off right? I'd do anything to get back to my workouts. And school. And my job. > > Oh Yeah. For Elaine, Terri Gerlach Rietzke Skaff sends her regards. > Laurel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Hi Laurel- Don't give up on your Master's! Even if you don't feel well you can do it. Although it was hard (I had very long hours in the DNA lab) it can be done even if you aren't doing well following RAI. I got my Master's in Biology in '98. I was slower than most but I found the key was to keep plugging away no matter what. There were times when I was very very dispirited though. Despite the bad times, it's very important to keep your goal in mind and not get too caught up in the moment. Anyhow, feel free to write me privately at jutek@... if you want to talk about it. Take care, > Elaine, > > I know that there are signed release forms but I'm not sure of the content. I must have been pretty hyper when I signed them because I generally read and remember just about everything. To my memory the cautions were against contact with other people. That is all I remember. If there were mentions of other options being discussed, that discussion did not include any of the known risks of radiation nor did it mention the eye, heart, and other associated problems. > > As I mentioned I was not warned of any possible complications and even my FP was fooled by the situation so that he beleived I was having a heart attack. My EKG showed possible ischemic changes. I'm not sure that after two years of daily (and sometimes hours long )PVC's as well as the history of atrial fib, there is not some myocardial damage. My GO, while it is slightly improved, continues to be a problem more than a year into when I noticed it (and I'm sure it was there months before). > > But I will try to find out the State Code on RAI. New York regulates just about everything possible so there must be a form somewhere. I don't think I'd have too much trouble getting it from the hospital and/or the facility that did the second radiation. > > I finally spoke to an attorney. He is not very encouraging. It seems that it is difficult if not impossible to obtain copies of the records of the endo at the time this was done. I guess my denial is over and I'm into an anger phase. I really don't want to see this happen to anyone else if I can help it. I'm sure there are times when this proceedure is appropriate but part of making a decision is to be informed. I guess that's my focus and that focus is my way of coping. > > Somebody please tell me that this gets better. I finally have my shot at my Masters' and I don't want to lose it! > > And, Elaine, and everybody, thanks for the information and all your help. All these suppliments finally pay off right? I'd do anything to get back to my workouts. And school. And my job. > > Oh Yeah. For Elaine, Terri Gerlach Rietzke Skaff sends her regards. > Laurel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 , Sorry to hear you are having problems being sick. I am sure this will pass. Regarding your midwife, can you go back to her when things with you and the pregnancy have settled? It's important to be comfortable with the person that will help bring your baby into this world. Maybe once you arent as sick as you are now, and things are on a more even keel, then you can go back to your midwife. Your doctor is just being careful, which is a good thing. I hope things get better for you soon. Take care! Marcy Wallis edd 12/08/02 Baby Boy!!! Mom to a beautiful 8 yr old daughter (PRE WLS) hi Just thought I'd send everyone a little note to say Hi! I hope you are all doing well. I was at my doctors office for three hours yesterday. I got dehydrated and had to sit with an IV. I am thrilled to be pregnant (Mike and I heard the heartbeat today) but I have been so sick, I am pretty sure it should be called all day sickness. I even wake up at 2, 4 and 5 am to throw up! I am only 8 weeks and I hope this doesn't go on a whole lot longer. I have lost 4 more pounds in 3 weeks My dr. says it is ok, but they are putting me in a high rish group so I have to give up my midwife ( I love her) and I don't really like the dr. Stamm Quote Link to comment Share on other sites More sharing options...
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