Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 My child has terrible rage at 4 and 5 with Aspergers. I bit the bullet and went to an ND {Natural Doctor} Board certified! He told me up front this is not an easy or quick process. We did diet change, supplements and then cheleation OSR. In that order. This was over a period of a year. The rage and irrational behavior still comes out a couple times a month, but daily and hourly NO MORE. We still have a long way to go. Healing the bidy and mind is a process. It took us about 6 months to learn how to shop for foods and change the eating habits. Then the supplements "YUK". We grind ours up in rice milk ice cream and chocolate rice milk, freeze it then feed it to him in the evenings. Good luck Always Call Christie Gravatt We are not human beings having a spiritual experience, we are spiritual beings having a human experience! Subject: Newbie/VERY SICK CHILDTo: mb12 valtrex Date: Thursday, January 27, 2011, 10:39 PM MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 My child has terrible rage at 4 and 5 with Aspergers. I bit the bullet and went to an ND {Natural Doctor} Board certified! He told me up front this is not an easy or quick process. We did diet change, supplements and then cheleation OSR. In that order. This was over a period of a year. The rage and irrational behavior still comes out a couple times a month, but daily and hourly NO MORE. We still have a long way to go. Healing the bidy and mind is a process. It took us about 6 months to learn how to shop for foods and change the eating habits. Then the supplements "YUK". We grind ours up in rice milk ice cream and chocolate rice milk, freeze it then feed it to him in the evenings. Good luck Always Call Christie Gravatt We are not human beings having a spiritual experience, we are spiritual beings having a human experience! Subject: Newbie/VERY SICK CHILDTo: mb12 valtrex Date: Thursday, January 27, 2011, 10:39 PM MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 My child has terrible rage at 4 and 5 with Aspergers. I bit the bullet and went to an ND {Natural Doctor} Board certified! He told me up front this is not an easy or quick process. We did diet change, supplements and then cheleation OSR. In that order. This was over a period of a year. The rage and irrational behavior still comes out a couple times a month, but daily and hourly NO MORE. We still have a long way to go. Healing the bidy and mind is a process. It took us about 6 months to learn how to shop for foods and change the eating habits. Then the supplements "YUK". We grind ours up in rice milk ice cream and chocolate rice milk, freeze it then feed it to him in the evenings. Good luck Always Call Christie Gravatt We are not human beings having a spiritual experience, we are spiritual beings having a human experience! Subject: Newbie/VERY SICK CHILDTo: mb12 valtrex Date: Thursday, January 27, 2011, 10:39 PM MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Hi Wilma. I am not much help with this,but I wanted to tell you your not alone.Most of my sons things are broke in some way.When he comes to his senses for periods(when he is not taking any meds or naturals) he is sad that he has broken so much.He is angry with all doctors now and can see they are the ones prescribing.He is 11 and has been to doctors constantly through out his whole life. Throughout his life he has been sick but doctors couldn't pinpoint what to do.Finally 3 years ago he got the Lyme,diagnoses.I thought here we go he can finally get well.But no he has been sick on all the meds..I tried all different kinds of Lyme docs. The docs keep thinking its "die off" of the infections.Well I have never heard of die off lasting for2-3 yearsSo .I stopped it all.I was on board of the autism Lyme yahoo group,and it had led me to this yahoo group.Now I have tried Valtrex and have had some positives(the first time in his life).So that idea led me to Dr.Usmans office.That was a waste.Now as of 2 weeks ago my son goes to Dr. NIDS.My thought are,that there is something up with his immune system so he reacts abnormal to things. My son is now reacting to the first med prescribed from Dr..He says stay on them.So we will see.Only time will tell us. So far my son should be in a crazy house for children. Please keep in touch or call (785)842-1725 MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Hi Wilma. I am not much help with this,but I wanted to tell you your not alone.Most of my sons things are broke in some way.When he comes to his senses for periods(when he is not taking any meds or naturals) he is sad that he has broken so much.He is angry with all doctors now and can see they are the ones prescribing.He is 11 and has been to doctors constantly through out his whole life. Throughout his life he has been sick but doctors couldn't pinpoint what to do.Finally 3 years ago he got the Lyme,diagnoses.I thought here we go he can finally get well.But no he has been sick on all the meds..I tried all different kinds of Lyme docs. The docs keep thinking its "die off" of the infections.Well I have never heard of die off lasting for2-3 yearsSo .I stopped it all.I was on board of the autism Lyme yahoo group,and it had led me to this yahoo group.Now I have tried Valtrex and have had some positives(the first time in his life).So that idea led me to Dr.Usmans office.That was a waste.Now as of 2 weeks ago my son goes to Dr. NIDS.My thought are,that there is something up with his immune system so he reacts abnormal to things. My son is now reacting to the first med prescribed from Dr..He says stay on them.So we will see.Only time will tell us. So far my son should be in a crazy house for children. Please keep in touch or call (785)842-1725 MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Hi Wilma. I am not much help with this,but I wanted to tell you your not alone.Most of my sons things are broke in some way.When he comes to his senses for periods(when he is not taking any meds or naturals) he is sad that he has broken so much.He is angry with all doctors now and can see they are the ones prescribing.He is 11 and has been to doctors constantly through out his whole life. Throughout his life he has been sick but doctors couldn't pinpoint what to do.Finally 3 years ago he got the Lyme,diagnoses.I thought here we go he can finally get well.But no he has been sick on all the meds..I tried all different kinds of Lyme docs. The docs keep thinking its "die off" of the infections.Well I have never heard of die off lasting for2-3 yearsSo .I stopped it all.I was on board of the autism Lyme yahoo group,and it had led me to this yahoo group.Now I have tried Valtrex and have had some positives(the first time in his life).So that idea led me to Dr.Usmans office.That was a waste.Now as of 2 weeks ago my son goes to Dr. NIDS.My thought are,that there is something up with his immune system so he reacts abnormal to things. My son is now reacting to the first med prescribed from Dr..He says stay on them.So we will see.Only time will tell us. So far my son should be in a crazy house for children. Please keep in touch or call (785)842-1725 MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 You should seriously consider working with MP. Here is a link to his office. http://lwtinternational.com/ I had been to several places for treatment for my aspie daughter when I found him as well, and everyone who ever helped her....it was just temporary. This man literally saved my daughter's life (sorry for the drama), but it is true, she was suicidal; had symptoms of everything you can imagine. My next option for her was institutionalization b/c I didn't know what else to do. She's been working with him approx two years now and is living on her own, working and going to school.....and the best part, she is HAPPY He is a very knowledgeable man and has worked with a lot of well known autism doctors, although he is not a doctor himself. He really knows his stuff, and really listens to you as a mom. I cannot say enough about his compassion. He works with something called a Zyto which he sends to you in the mail, you hook up to your computer and at the time of your appt he calls you. From his end he sends a signal through his end of the computer to yours and it sends it through the Zyto hand cradle and that is what reads what's going on in your daughter. I know this part sounds sort of off the wall, and there hasn't been a discussion about Zyto on this group in quite some time, but I LOVE that Zyto. It is amazing, it can read everything...everything, from brain activity to Lyme to stomache issues. MP was able to tell me when my daugher had a headache....I'm not kidding. The amazing thing about working with him is he will run a scan, find out what your daughter's biggest stressors are, then plug in recommended supplements...there is just no guess work, and I just loved that part of his treatment. If you would like to know more, please email me, but another thing you could do is just call and talk to someone there at their office. It's a family owned business and everyone there is wonderful To: mb12 valtrex Sent: Thu, January 27, 2011 11:39:04 PMSubject: Newbie/VERY SICK CHILD MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 You should seriously consider working with MP. Here is a link to his office. http://lwtinternational.com/ I had been to several places for treatment for my aspie daughter when I found him as well, and everyone who ever helped her....it was just temporary. This man literally saved my daughter's life (sorry for the drama), but it is true, she was suicidal; had symptoms of everything you can imagine. My next option for her was institutionalization b/c I didn't know what else to do. She's been working with him approx two years now and is living on her own, working and going to school.....and the best part, she is HAPPY He is a very knowledgeable man and has worked with a lot of well known autism doctors, although he is not a doctor himself. He really knows his stuff, and really listens to you as a mom. I cannot say enough about his compassion. He works with something called a Zyto which he sends to you in the mail, you hook up to your computer and at the time of your appt he calls you. From his end he sends a signal through his end of the computer to yours and it sends it through the Zyto hand cradle and that is what reads what's going on in your daughter. I know this part sounds sort of off the wall, and there hasn't been a discussion about Zyto on this group in quite some time, but I LOVE that Zyto. It is amazing, it can read everything...everything, from brain activity to Lyme to stomache issues. MP was able to tell me when my daugher had a headache....I'm not kidding. The amazing thing about working with him is he will run a scan, find out what your daughter's biggest stressors are, then plug in recommended supplements...there is just no guess work, and I just loved that part of his treatment. If you would like to know more, please email me, but another thing you could do is just call and talk to someone there at their office. It's a family owned business and everyone there is wonderful To: mb12 valtrex Sent: Thu, January 27, 2011 11:39:04 PMSubject: Newbie/VERY SICK CHILD MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol. SUsan Subject: Re: Newbie/VERY SICK CHILDTo: mb12 valtrex Date: Friday, January 28, 2011, 10:29 AM Hi Wilma. I am not much help with this,but I wanted to tell you your not alone.Most of my sons things are broke in some way.When he comes to his senses for periods(when he is not taking any meds or naturals) he is sad that he has broken so much.He is angry with all doctors now and can see they are the ones prescribing.He is 11 and has been to doctors constantly through out his whole life. Throughout his life he has been sick but doctors couldn't pinpoint what to do.Finally 3 years ago he got the Lyme,diagnoses.I thought here we go he can finally get well.But no he has been sick on all the meds..I tried all different kinds of Lyme docs. The docs keep thinking its "die off" of the infections.Well I have never heard of die off lasting for2-3 yearsSo .I stopped it all.I was on board of the autism Lyme yahoo group,and it had led me to this yahoo group.Now I have tried Valtrex and have had some positives(the first time in his life).So that idea led me to Dr.Usmans office.That was a waste.Now as of 2 weeks ago my son goes to Dr. NIDS.My thought are,that there is something up with his immune system so he reacts abnormal to things. My son is now reacting to the first med prescribed from Dr..He says stay on them.So we will see.Only time will tell us. So far my son should be in a crazy house for children. Please keep in touch or call (785)842-1725 MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol. SUsan Subject: Re: Newbie/VERY SICK CHILDTo: mb12 valtrex Date: Friday, January 28, 2011, 10:29 AM Hi Wilma. I am not much help with this,but I wanted to tell you your not alone.Most of my sons things are broke in some way.When he comes to his senses for periods(when he is not taking any meds or naturals) he is sad that he has broken so much.He is angry with all doctors now and can see they are the ones prescribing.He is 11 and has been to doctors constantly through out his whole life. Throughout his life he has been sick but doctors couldn't pinpoint what to do.Finally 3 years ago he got the Lyme,diagnoses.I thought here we go he can finally get well.But no he has been sick on all the meds..I tried all different kinds of Lyme docs. The docs keep thinking its "die off" of the infections.Well I have never heard of die off lasting for2-3 yearsSo .I stopped it all.I was on board of the autism Lyme yahoo group,and it had led me to this yahoo group.Now I have tried Valtrex and have had some positives(the first time in his life).So that idea led me to Dr.Usmans office.That was a waste.Now as of 2 weeks ago my son goes to Dr. NIDS.My thought are,that there is something up with his immune system so he reacts abnormal to things. My son is now reacting to the first med prescribed from Dr..He says stay on them.So we will see.Only time will tell us. So far my son should be in a crazy house for children. Please keep in touch or call (785)842-1725 MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using? Caryn > > MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme " band 41 " as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using? Caryn > > MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme " band 41 " as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 My sister worked with a woman who went through this with her teenage son for years. She was finally able to find a doctor who could help. we are on the east coast. If you would like, I can leave your e-mail address with my sister to pass along to this woman. I will ask her to contact you. -Tammy To: mb12 valtrex Sent: Thu, January 27, 2011 11:39:04 PMSubject: Newbie/VERY SICK CHILD MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 My sister worked with a woman who went through this with her teenage son for years. She was finally able to find a doctor who could help. we are on the east coast. If you would like, I can leave your e-mail address with my sister to pass along to this woman. I will ask her to contact you. -Tammy To: mb12 valtrex Sent: Thu, January 27, 2011 11:39:04 PMSubject: Newbie/VERY SICK CHILD MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 I'd send this post below. He'll be able to loo 360 at the whole child. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 I'd send this post below. He'll be able to loo 360 at the whole child. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 I'd send this post below. He'll be able to loo 360 at the whole child. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 what does MP stand for? You should seriously consider working with MP. Here is a link to his office. http://lwtinternational.com/ I had been to several places for treatment for my aspie daughter when I found him as well, and everyone who ever helped her....it was just temporary. This man literally saved my daughter's life (sorry for the drama), but it is true, she was suicidal; had symptoms of everything you can imagine. My next option for her was institutionalization b/c I didn't know what else to do. She's been working with him approx two years now and is living on her own, working and going to school.....and the best part, she is HAPPY He is a very knowledgeable man and has worked with a lot of well known autism doctors, although he is not a doctor himself. He really knows his stuff, and really listens to you as a mom. I cannot say enough about his compassion. He works with something called a Zyto which he sends to you in the mail, you hook up to your computer and at the time of your appt he calls you. From his end he sends a signal through his end of the computer to yours and it sends it through the Zyto hand cradle and that is what reads what's going on in your daughter. I know this part sounds sort of off the wall, and there hasn't been a discussion about Zyto on this group in quite some time, but I LOVE that Zyto. It is amazing, it can read everything...everything, from brain activity to Lyme to stomache issues. MP was able to tell me when my daugher had a headache....I'm not kidding. The amazing thing about working with him is he will run a scan, find out what your daughter's biggest stressors are, then plug in recommended supplements...there is just no guess work, and I just loved that part of his treatment. If you would like to know more, please email me, but another thing you could do is just call and talk to someone there at their office. It's a family owned business and everyone there is wonderful To: mb12 valtrex Sent: Thu, January 27, 2011 11:39:04 PMSubject: Newbie/VERY SICK CHILD MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 he had my child on azith, nystatin and charcoal and she got worse an worse on this stuff. had to take her off after a month. she was a mess. Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol. SUsan Subject: Re: Newbie/VERY SICK CHILDTo: mb12 valtrex Date: Friday, January 28, 2011, 10:29 AM Hi Wilma. I am not much help with this,but I wanted to tell you your not alone.Most of my sons things are broke in some way.When he comes to his senses for periods(when he is not taking any meds or naturals) he is sad that he has broken so much.He is angry with all doctors now and can see they are the ones prescribing.He is 11 and has been to doctors constantly through out his whole life. Throughout his life he has been sick but doctors couldn't pinpoint what to do.Finally 3 years ago he got the Lyme,diagnoses.I thought here we go he can finally get well.But no he has been sick on all the meds..I tried all different kinds of Lyme docs. The docs keep thinking its "die off" of the infections.Well I have never heard of die off lasting for2-3 yearsSo .I stopped it all.I was on board of the autism Lyme yahoo group,and it had led me to this yahoo group.Now I have tried Valtrex and have had some positives(the first time in his life).So that idea led me to Dr.Usmans office.That was a waste.Now as of 2 weeks ago my son goes to Dr. NIDS.My thought are,that there is something up with his immune system so he reacts abnormal to things. My son is now reacting to the first med prescribed from Dr..He says stay on them.So we will see.Only time will tell us. So far my son should be in a crazy house for children. Please keep in touch or call (785)842-1725 MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 we just got off of azith. nystatin and charcoal and she was bouncing off of the walls and super impulsive. we had to stop after a month becuase she was too out of control on it. doctor said stop it. Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using? Caryn > > MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using? Caryn > > MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 what post.? I'd send this post below. He'll be able to loo 360 at the whole child. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Please please give me the go ahead to leave your email address with my sister's friend...I think she might be able to put you in the right direction. Your daughter's story sounds very much like her son's. (All the rage, all the drugs that did not work). Towards the end, it had gotten so bad that she had to send him to live with his dad when he was 16 or so. He was so big and so strong, she could no longer physically control him. Finally she found a doctor who could help him and he's doing great! He's still got some issues left over from all the years of destructive rx's and such....but he's doing awesome! It can't hurt to talk to her.... To: mb12 valtrex Sent: Fri, January 28, 2011 3:47:47 PMSubject: Re: Re: Newbie/VERY SICK CHILD we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?Caryn>> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Please please give me the go ahead to leave your email address with my sister's friend...I think she might be able to put you in the right direction. Your daughter's story sounds very much like her son's. (All the rage, all the drugs that did not work). Towards the end, it had gotten so bad that she had to send him to live with his dad when he was 16 or so. He was so big and so strong, she could no longer physically control him. Finally she found a doctor who could help him and he's doing great! He's still got some issues left over from all the years of destructive rx's and such....but he's doing awesome! It can't hurt to talk to her.... To: mb12 valtrex Sent: Fri, January 28, 2011 3:47:47 PMSubject: Re: Re: Newbie/VERY SICK CHILD we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?Caryn>> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Please please give me the go ahead to leave your email address with my sister's friend...I think she might be able to put you in the right direction. Your daughter's story sounds very much like her son's. (All the rage, all the drugs that did not work). Towards the end, it had gotten so bad that she had to send him to live with his dad when he was 16 or so. He was so big and so strong, she could no longer physically control him. Finally she found a doctor who could help him and he's doing great! He's still got some issues left over from all the years of destructive rx's and such....but he's doing awesome! It can't hurt to talk to her.... To: mb12 valtrex Sent: Fri, January 28, 2011 3:47:47 PMSubject: Re: Re: Newbie/VERY SICK CHILD we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?Caryn>> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks> Quote Link to comment Share on other sites More sharing options...
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