Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 is she in gluten free diet?I read gluten intolerance gives distorted vision. Mimoza we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using? Caryn > > MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme " band 41 " as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 is she in gluten free diet?I read gluten intolerance gives distorted vision. Mimoza we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using? Caryn > > MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme " band 41 " as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 I suggest you look into Homeopathy. This book should give you some good info to help you understand how it works and some examples of success stories: http://www.amazon.com/Drug-Free-Approach-Asperger-Syndrome-Autism/dp/0964065460. If your daughter is that sensitive to meds, then this is probably a good option for her. Hope this helps! Barbara > > > > MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme " band 41 " as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Please send me his website. I have an aspie son. Houseladyms@... Thank you Always Call Christie Gravatt We are not human beings having a spiritual experience, we are spiritual beings having a human experience! You should seriously consider working with MP. Here is a link to his office. http://lwtinternational.com/ I had been to several places for treatment for my aspie daughter when I found him as well, and everyone who ever helped her....it was just temporary. This man literally saved my daughter's life (sorry for the drama), but it is true, she was suicidal; had symptoms of everything you can imagine. My next option for her was institutionalization b/c I didn't know what else to do. She's been working with him approx two years now and is living on her own, working and going to school.....and the best part, she is HAPPY He is a very knowledgeable man and has worked with a lot of well known autism doctors, although he is not a doctor himself. He really knows his stuff, and really listens to you as a mom. I cannot say enough about his compassion. He works with something called a Zyto which he sends to you in the mail, you hook up to your computer and at the time of your appt he calls you. From his end he sends a signal through his end of the computer to yours and it sends it through the Zyto hand cradle and that is what reads what's going on in your daughter. I know this part sounds sort of off the wall, and there hasn't been a discussion about Zyto on this group in quite some time, but I LOVE that Zyto. It is amazing, it can read everything...everything, from brain activity to Lyme to stomache issues. MP was able to tell me when my daugher had a headache....I'm not kidding. The amazing thing about working with him is he will run a scan, find out what your daughter's biggest stressors are, then plug in recommended supplements...there is just no guess work, and I just loved that part of his treatment. If you would like to know more, please email me, but another thing you could do is just call and talk to someone there at their office. It's a family owned business and everyone there is wonderful To: mb12 valtrex Sent: Thu, January 27, 2011 11:39:04 PMSubject: Newbie/VERY SICK CHILD MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Please send me his website. I have an aspie son. Houseladyms@... Thank you Always Call Christie Gravatt We are not human beings having a spiritual experience, we are spiritual beings having a human experience! You should seriously consider working with MP. Here is a link to his office. http://lwtinternational.com/ I had been to several places for treatment for my aspie daughter when I found him as well, and everyone who ever helped her....it was just temporary. This man literally saved my daughter's life (sorry for the drama), but it is true, she was suicidal; had symptoms of everything you can imagine. My next option for her was institutionalization b/c I didn't know what else to do. She's been working with him approx two years now and is living on her own, working and going to school.....and the best part, she is HAPPY He is a very knowledgeable man and has worked with a lot of well known autism doctors, although he is not a doctor himself. He really knows his stuff, and really listens to you as a mom. I cannot say enough about his compassion. He works with something called a Zyto which he sends to you in the mail, you hook up to your computer and at the time of your appt he calls you. From his end he sends a signal through his end of the computer to yours and it sends it through the Zyto hand cradle and that is what reads what's going on in your daughter. I know this part sounds sort of off the wall, and there hasn't been a discussion about Zyto on this group in quite some time, but I LOVE that Zyto. It is amazing, it can read everything...everything, from brain activity to Lyme to stomache issues. MP was able to tell me when my daugher had a headache....I'm not kidding. The amazing thing about working with him is he will run a scan, find out what your daughter's biggest stressors are, then plug in recommended supplements...there is just no guess work, and I just loved that part of his treatment. If you would like to know more, please email me, but another thing you could do is just call and talk to someone there at their office. It's a family owned business and everyone there is wonderful To: mb12 valtrex Sent: Thu, January 27, 2011 11:39:04 PMSubject: Newbie/VERY SICK CHILD MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Please send me his website. I have an aspie son. Houseladyms@... Thank you Always Call Christie Gravatt We are not human beings having a spiritual experience, we are spiritual beings having a human experience! You should seriously consider working with MP. Here is a link to his office. http://lwtinternational.com/ I had been to several places for treatment for my aspie daughter when I found him as well, and everyone who ever helped her....it was just temporary. This man literally saved my daughter's life (sorry for the drama), but it is true, she was suicidal; had symptoms of everything you can imagine. My next option for her was institutionalization b/c I didn't know what else to do. She's been working with him approx two years now and is living on her own, working and going to school.....and the best part, she is HAPPY He is a very knowledgeable man and has worked with a lot of well known autism doctors, although he is not a doctor himself. He really knows his stuff, and really listens to you as a mom. I cannot say enough about his compassion. He works with something called a Zyto which he sends to you in the mail, you hook up to your computer and at the time of your appt he calls you. From his end he sends a signal through his end of the computer to yours and it sends it through the Zyto hand cradle and that is what reads what's going on in your daughter. I know this part sounds sort of off the wall, and there hasn't been a discussion about Zyto on this group in quite some time, but I LOVE that Zyto. It is amazing, it can read everything...everything, from brain activity to Lyme to stomache issues. MP was able to tell me when my daugher had a headache....I'm not kidding. The amazing thing about working with him is he will run a scan, find out what your daughter's biggest stressors are, then plug in recommended supplements...there is just no guess work, and I just loved that part of his treatment. If you would like to know more, please email me, but another thing you could do is just call and talk to someone there at their office. It's a family owned business and everyone there is wonderful To: mb12 valtrex Sent: Thu, January 27, 2011 11:39:04 PMSubject: Newbie/VERY SICK CHILD MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 My children went crazy with food dyes and additives and some foods. THere is something in donuts that makes 2 of my children absolutely horrible. My daughter would go into terrible rages if her blood sugar gets low. Just some ideas. Pat Paolini Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 My children went crazy with food dyes and additives and some foods. THere is something in donuts that makes 2 of my children absolutely horrible. My daughter would go into terrible rages if her blood sugar gets low. Just some ideas. Pat Paolini Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 My children went crazy with food dyes and additives and some foods. THere is something in donuts that makes 2 of my children absolutely horrible. My daughter would go into terrible rages if her blood sugar gets low. Just some ideas. Pat Paolini Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 we went gluten free for a long time and there was no improvement. the doctor just called and said he sees high clostridia on urine test. i am not getting my hopes up though. i have been down this path too many times. is she in gluten free diet?I read gluten intolerance gives distorted vision. Mimoza we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using? Caryn > > MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 we went gluten free for a long time and there was no improvement. the doctor just called and said he sees high clostridia on urine test. i am not getting my hopes up though. i have been down this path too many times. is she in gluten free diet?I read gluten intolerance gives distorted vision. Mimoza we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using? Caryn > > MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 doctor said urine test came back and there is high clostridia. could this be why band 41 was out of whack? I suggest you look into Homeopathy. This book should give you some good info to help you understand how it works and some examples of success stories: http://www.amazon.com/Drug-Free-Approach-Asperger-Syndrome-Autism/dp/0964065460. If your daughter is that sensitive to meds, then this is probably a good option for her. Hope this helps! Barbara > > > > MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 doctor said urine test came back and there is high clostridia. could this be why band 41 was out of whack? I suggest you look into Homeopathy. This book should give you some good info to help you understand how it works and some examples of success stories: http://www.amazon.com/Drug-Free-Approach-Asperger-Syndrome-Autism/dp/0964065460. If your daughter is that sensitive to meds, then this is probably a good option for her. Hope this helps! Barbara > > > > MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 So so sorry -- such bad typing on the iPhone. " I will second the post below, 's post will be able to look at the whole child, 360. " You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full. > > > > > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol. > > >  > > > SUsan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 So so sorry -- such bad typing on the iPhone. " I will second the post below, 's post will be able to look at the whole child, 360. " You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full. > > > > > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol. > > >  > > > SUsan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Agree with and . I've spoken to many docs over the past 8 yrs and is the most impressive and thorough I've met. To: mb12 valtrex Sent: Fri, January 28, 2011 7:48:41 PMSubject: Re: Newbie/VERY SICK CHILD So so sorry -- such bad typing on the iPhone. "I will second the post below, 's post will be able to look at the whole child, 360." You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full. > > > > > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol. > > >  > > > SUsan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Agree with and . I've spoken to many docs over the past 8 yrs and is the most impressive and thorough I've met. To: mb12 valtrex Sent: Fri, January 28, 2011 7:48:41 PMSubject: Re: Newbie/VERY SICK CHILD So so sorry -- such bad typing on the iPhone. "I will second the post below, 's post will be able to look at the whole child, 360." You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full. > > > > > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol. > > >  > > > SUsan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 Agree with and . I've spoken to many docs over the past 8 yrs and is the most impressive and thorough I've met. To: mb12 valtrex Sent: Fri, January 28, 2011 7:48:41 PMSubject: Re: Newbie/VERY SICK CHILD So so sorry -- such bad typing on the iPhone. "I will second the post below, 's post will be able to look at the whole child, 360." You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full. > > > > > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol. > > >  > > > SUsan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 I think the easy part ,is finding the infections in these kids and treating with antibiotics or naturals with the best doctors in the world.But to find out why they can't take meds. or naturals.And meds make them worse even after die off periods is the hard part.Is the immune system overactive and meds cause something to go haywire? I don't know. Any thoughts? Thanks Tammy F. yeah. he sounds great so far. Agree with and . I've spoken to many docs over the past 8 yrs and is the most impressive and thorough I've met. From: erinsullivan65 To: mb12 valtrex Sent: Fri, January 28, 2011 7:48:41 PM Subject: Re: Newbie/VERY SICK CHILD So so sorry -- such bad typing on the iPhone. "I will second the post below, 's post will be able to look at the whole child, 360." You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full. > > > > > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol. > > >  > > > SUsan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 I think the easy part ,is finding the infections in these kids and treating with antibiotics or naturals with the best doctors in the world.But to find out why they can't take meds. or naturals.And meds make them worse even after die off periods is the hard part.Is the immune system overactive and meds cause something to go haywire? I don't know. Any thoughts? Thanks Tammy F. yeah. he sounds great so far. Agree with and . I've spoken to many docs over the past 8 yrs and is the most impressive and thorough I've met. From: erinsullivan65 To: mb12 valtrex Sent: Fri, January 28, 2011 7:48:41 PM Subject: Re: Newbie/VERY SICK CHILD So so sorry -- such bad typing on the iPhone. "I will second the post below, 's post will be able to look at the whole child, 360." You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full. > > > > > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol. > > >  > > > SUsan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 yeah. he sounds great so far. Agree with and . I've spoken to many docs over the past 8 yrs and is the most impressive and thorough I've met. To: mb12 valtrex Sent: Fri, January 28, 2011 7:48:41 PMSubject: Re: Newbie/VERY SICK CHILD So so sorry -- such bad typing on the iPhone. "I will second the post below, 's post will be able to look at the whole child, 360." You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full. > > > > > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol. > > >  > > > SUsan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 yeah. he sounds great so far. Agree with and . I've spoken to many docs over the past 8 yrs and is the most impressive and thorough I've met. To: mb12 valtrex Sent: Fri, January 28, 2011 7:48:41 PMSubject: Re: Newbie/VERY SICK CHILD So so sorry -- such bad typing on the iPhone. "I will second the post below, 's post will be able to look at the whole child, 360." You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full. > > > > > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol. > > >  > > > SUsan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 clostrida causes a lot of crazy behavoir, so treating can be life altering!!! From: Wilma Jenks Sent: Friday, January 28, 2011 7:40 PM To: mb12 valtrex Subject: Re: Re: Newbie/VERY SICK CHILD we went gluten free for a long time and there was no improvement. the doctor just called and said he sees high clostridia on urine test. i am not getting my hopes up though. i have been down this path too many times. is she in gluten free diet?I read gluten intolerance gives distorted vision. Mimoza we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?Caryn>> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 clostrida causes a lot of crazy behavoir, so treating can be life altering!!! From: Wilma Jenks Sent: Friday, January 28, 2011 7:40 PM To: mb12 valtrex Subject: Re: Re: Newbie/VERY SICK CHILD we went gluten free for a long time and there was no improvement. the doctor just called and said he sees high clostridia on urine test. i am not getting my hopes up though. i have been down this path too many times. is she in gluten free diet?I read gluten intolerance gives distorted vision. Mimoza we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?Caryn>> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 clostrida causes a lot of crazy behavoir, so treating can be life altering!!! From: Wilma Jenks Sent: Friday, January 28, 2011 7:40 PM To: mb12 valtrex Subject: Re: Re: Newbie/VERY SICK CHILD we went gluten free for a long time and there was no improvement. the doctor just called and said he sees high clostridia on urine test. i am not getting my hopes up though. i have been down this path too many times. is she in gluten free diet?I read gluten intolerance gives distorted vision. Mimoza we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?Caryn>> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks> Quote Link to comment Share on other sites More sharing options...
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