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Re: Sjorgens

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HI LISA

I HAVE ALSO BEEN TOLD I HAVE IT NUEROPATHY FORM WHICH IS RARE - WHAT SYMPTON

DO YOU HAVE - I HAVE NO FEELINGS IN MOST OF MY RIGHT LIMBS AND MY LEFT IS

ALMOST AS BAD, MY MOUTH AND RIGHT EYE ARE UNCOMFORTABLE BUT LIVEABLE, I ALSO

HAVE AIH, I AM ON 60MG PREDISOLONE EVERY SECOND DAY AND 12MG AZIOTHAPRANE

PLUS CALCICHEWS TO HELP MY BONES, I AM 34 AND HAVE 2 CHILDREN AND LIVE IN

SCOTLAND.

THANKS

CATHY

[ ] sjorgens

> Hello all!I have a quick ? I'm really very dumb about all this since

> I've been dx'd since 99. I've learned more since i joined the group.

> just less than a month!!! my ? is, can anyone give me more info on

> sjorgens. I was told that i have it. and that's all i was told.

> PLEASE HELP!!

>

> Thanks,

>

> B.

>

>

>

>

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  • 2 years later...
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----- Original Message -----

From:

> I was also dx'd with Sjorgens Syndrome. I found out actually from my dentist as when I went in for a checkup he found cavities below my gumline. You couldn't even see them and they didn't hurt. He said I had bad dry mouth.

I lost all my teeth when I was 37 and still the dentist did not even think about Sjogren's. You would think they would teach about it in dental school! I wasn't diagnosed until 9 years later.

Nina

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