Guest guest Posted November 1, 2003 Report Share Posted November 1, 2003 Hi, , I have MS and take 4.5 MG. Naltrexone every night at 9 PM or 10 PM. My reactions are about opposite. I take it and it prevents extreme fatigue that I get without it. It has not stopped my numbness yet, in fact it feels slightly worse sometimes. Perhaps I need to reduce the dosage to 3 MG. B. ----- Original Message ----- From: jduplooy1 low dose naltrexone Sent: Saturday, November 01, 2003 10:04 AM Subject: [low dose naltrexone] extreme fatigue HiMy name is . I have M.S. and started useing LDN 3mg 9 days ago. Since the first dose, after only minutes I started feeling very sleepy. The next morning I was extremely tired and this has been the routine for the past few days.Just before I started with it my hands started going numb and tingleing, two days ago though the right hand was without the symptoms. I did'nt take the naltrexone last night and this morning arose early with alot of enengy, but both my hands have alot of tingeling and numbness. So I know it is helping me in some way, I just can't understand the extreme fatigue. The last couple of days I could just sleep the whole day.Has anyone had the same experience? I'm wondering if I should take more or less of the LDN.I'll appreciate any input.Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2003 Report Share Posted November 2, 2003 this should explain why you're having a increase in symptoms in the early months of LDN. Don't get discouraged. Dr. Lawrence who has MS & is using LDN himself explains why the increase in MS symptoms after starting LDN, see inside for details. -- http://www.voy.com/156761/386.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 It sounds to me like you are flaring. You should see your specialist as soon as possible. and sleep as much as you need to. It is an awful feeling. maybe it is time to review your medications? take care Suzie --- In Rheumatoid Arthritis , " tinoka3 " <tinoka3@y...> wrote: > Evening all... > I have a question to post for everyone. I am really fatigued lately > to the point where I could sleep all day and not move. My arms and > legs feel like I ran a marathon...like my whole body has nothing left > to give. Has anyone else experienced this? Is there something I'm > missing nutrition wise or what? > > ~chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 A lot of people with RA also have extreme fatigue. Chronic Fatigue Syndrome is another autoimmune disease and having one makes it more likely we will have another. I'm not sure if the fatigue is actually related to RA or if it is a separate disease. Anyway they often go together. God bless. ----- Original Message ----- From: tinoka3 Rheumatoid Arthritis Sent: Wednesday, May 04, 2005 8:36 PM Subject: Extreme fatigue Evening all...I have a question to post for everyone. I am really fatigued lately to the point where I could sleep all day and not move. My arms and legs feel like I ran a marathon...like my whole body has nothing left to give. Has anyone else experienced this? Is there something I'm missing nutrition wise or what? ~chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 I had the same problem. When our bodies are suffering pain there is huge stress to the body. I think this is what causes the fatigue, as well you might be anemic. When I was on the medications I rested (won't say slept because sleeping was difficult for me) at least 18 hours per day. The rest of the time I dragged myself around without any energy. As I went on a nutritional program my sleeping pattern changed dramatically........first off because the added nutrition reduced the pain so much that I could sleep at night, but as well my energy level went up, so you might look at a very good, balanced nutritional product but also, ensure you are supplying your body with enough water, exercise (pool athletics if your pain is too intense) and proper breathing. Many people don't understand the importance of taking deep, steady breaths, but this is very important. You need to oxygenate your entire body, this gives you energy. (breath 5 seconds in through the nose, relax, then out 5 seconds through your slightly opened mouth) Try this technique 1 to 3 times per day for about 10 minutes, you might notice a notable difference in your energy and surprisingly also in your brain function (memory) Just a note, the first few times you try this you may find yourself yawning, that's ok, just continue on anyway, it takes time for your body to adapt to new things. Good luck to you and I hope you can figure out your fatigue problem. Dorey www.LivingWithRheumatoidArthritis.com ----- Original Message ----- From: " tinoka3 " <tinoka3@...> <Rheumatoid Arthritis > Sent: Wednesday, May 04, 2005 8:36 PM Subject: Extreme fatigue > Evening all... > I have a question to post for everyone. I am really fatigued lately > to the point where I could sleep all day and not move. My arms and > legs feel like I ran a marathon...like my whole body has nothing left > to give. Has anyone else experienced this? Is there something I'm > missing nutrition wise or what? > > ~chris > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 I find that extreme fatigue alone often signals a flare for me. I don't seem to have any more pain than normal, but there are times when I can sleep for four hours in the morning and the afternoon. Often I have not changed meds or food or anything else about my routine. I find that it is often difficult to relate events, weather, food or stress to flares. They don't seem to follow any particular problem, or if they do, it's often delayed by anywhere from a couple of days to a couple of weeks. So it's really all guesswork on my part. But I did up my prednisone from 5 to 10mg and that seemed to get me out of that flare within a couple of days. When I told my doctor (after a couple of weeks) he suggested that the next time, I should do the dose pack instead of just bumping up. gloria -----Original Message----- From: Dorey <ddorey@...> Rheumatoid Arthritis Sent: Wed, 04 May 2005 23:02:04 -0700 Subject: Re: Extreme fatigue I had the same problem. When our bodies are suffering pain there is huge stress to the body. I think this is what causes the fatigue, as well you might be anemic. When I was on the medications I rested (won't say slept because sleeping was difficult for me) at least 18 hours per day. The rest of the time I dragged myself around without any energy. As I went on a nutritional program my sleeping pattern changed dramatically........first off because the added nutrition reduced the pain so much that I could sleep at night, but as well my energy level went up, so you might look at a very good, balanced nutritional product but also, ensure you are supplying your body with enough water, exercise (pool athletics if your pain is too intense) and proper breathing. Many people don't understand the importance of taking deep, steady breaths, but this is very important. You need to oxygenate your entire body, this gives you energy. (breath 5 seconds in through the nose, relax, then out 5 seconds through your slightly opened mouth) Try this technique 1 to 3 times per day for about 10 minutes, you might notice a notable difference in your energy and surprisingly also in your brain function (memory) Just a note, the first few times you try this you may find yourself yawning, that's ok, just continue on anyway, it takes time for your body to adapt to new things. Good luck to you and I hope you can figure out your fatigue problem. Dorey www.LivingWithRheumatoidArthritis.com ----- Original Message ----- From: " tinoka3 " <tinoka3@...> <Rheumatoid Arthritis > Sent: Wednesday, May 04, 2005 8:36 PM Subject: Extreme fatigue > Evening all... > I have a question to post for everyone. I am really fatigued lately > to the point where I could sleep all day and not move. My arms and > legs feel like I ran a marathon...like my whole body has nothing left > to give. Has anyone else experienced this? Is there something I'm > missing nutrition wise or what? > > ~chris > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2005 Report Share Posted May 5, 2005 I would suggest that you look at your diet when these things happen. I'd guess you are probably eating more of some things that your body doesn't respond well to than normal if you can't see any other reason. An example of this, all I have to do is eat the foods my kids like for a few days and watch as my health deteriorates. I would monitor that just for interest if I was you and see if you can't find some trigger........My best best is wheat products, sugar or dairy. But that's based on my experience, for you it might be different. In a seminar I was at this weekend one of the speakers called Fibromialgia " sugar disease " because it's almost always the cause of the incredible pain people suffer from fibro yet doctors seldom tell us that sugar is a killer to health and I bet 1 in 10 Fibro patients don't get told to cut out all sugar. So I always recommend people keep a diary of what they eat, completely honest because it's only for their own personal gain, then keep notes on how you feel and monitor how different foods seem to effect your overall well being. Dorey www.LivingWithRheumatoidArthritis.com ----- Original Message ----- From: <gloriarex@...> <Rheumatoid Arthritis > Sent: Wednesday, May 04, 2005 11:31 PM Subject: Re: Extreme fatigue > > I find that extreme fatigue alone often signals a flare for me. I don't > seem to have any more pain than normal, but there are times when I can > sleep for four hours in the morning and the afternoon. Often I have not > changed meds or food or anything else about my routine. I find that it > is often difficult to relate events, weather, food or stress to flares. > They don't seem to follow any particular problem, or if they do, it's > often delayed by anywhere from a couple of days to a couple of weeks. > So it's really all guesswork on my part. But I did up my prednisone > from 5 to 10mg and that seemed to get me out of that flare within a > couple of days. When I told my doctor (after a couple of weeks) he > suggested that the next time, I should do the dose pack instead of just > bumping up. > > gloria > > > -----Original Message----- > From: Dorey <ddorey@...> > Rheumatoid Arthritis > Sent: Wed, 04 May 2005 23:02:04 -0700 > Subject: Re: Extreme fatigue > > I had the same problem. When our bodies are suffering pain > there is > huge stress to the body. I think this is what causes the fatigue, as > well > you might be anemic. When I was on the medications I rested (won't say > slept because sleeping was difficult for me) at least 18 hours per day. > The > rest of the time I dragged myself around without any energy. > > As I went on a nutritional program my sleeping pattern changed > dramatically........first off because the added nutrition reduced the > pain > so much that I could sleep at night, but as well my energy level went > up, so > you might look at a very good, balanced nutritional product but also, > ensure > you are supplying your body with enough water, exercise (pool athletics > if > your pain is too intense) and proper breathing. Many people don't > understand the importance of taking deep, steady breaths, but this is > very > important. You need to oxygenate your entire body, this gives you > energy. > (breath 5 seconds in through the nose, relax, then out 5 seconds > through > your slightly opened mouth) Try this technique 1 to 3 times per day > for > about 10 minutes, you might notice a notable difference in your energy > and > surprisingly also in your brain function (memory) Just a note, the > first > few times you try this you may find yourself yawning, that's ok, just > continue on anyway, it takes time for your body to adapt to new things. > > Good luck to you and I hope you can figure out your fatigue problem. > > Dorey > www.LivingWithRheumatoidArthritis.com > ----- Original Message ----- > From: " tinoka3 " <tinoka3@...> > <Rheumatoid Arthritis > > Sent: Wednesday, May 04, 2005 8:36 PM > Subject: Extreme fatigue > > >> Evening all... >> I have a question to post for everyone. I am really fatigued lately >> to the point where I could sleep all day and not move. My arms and >> legs feel like I ran a marathon...like my whole body has nothing left >> to give. Has anyone else experienced this? Is there something I'm >> missing nutrition wise or what? >> >> ~chris >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 , In answer to your food mystery for my fatigue. I do have confirmed allergies to wheat, yeast, and 40,000 other allergies to various things like mold, dust, trees, animals, etc. I did South Beach for awhile and that was the best I felt. Of course, you stay away from sugars, dairy, and refined things in the first phase. So that goes along with the sugar and dairy as a trigger. And since I couldn't eat pasta or the bad starches...I wasn't eating wheat. I work in a candy warehouse. It's a family business and I have been snitching candy lately. I crave the stuff. I just wonder if that's not turning into a bigger problem for me. ~chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 Harold, I know I'm likely to have another auto-immune thing happen to me, not that I want one. My mother and my older brother both have sarcoidosis. My mom is developed alot of the signs of RA now so I made her an appt. this month to see my rheumatologist. Also on my father's side of the family, my grandmother died from lupus. I'm going to read up on CFS and see how it compares to me. THen I can discuss it with my doctor. Chris P/s Thanks for everyones helpful suggestions. This is great. Not many people understand RA. Most think it's like any other form of arthritis. They give you blank stares when you tell them its an auto- immune disease and not from overusing or abusing your body. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 I think we should just tell people RA is from too much sex, with multiple partners. Wouldn't that be a hoot, people would probably believe that more than they believe facts so at least you'd be left laughing, and oh what great stories that would go around. Dorey ----- Original Message ----- From: " " <tinoka3@...> <Rheumatoid Arthritis > Sent: Thursday, May 05, 2005 9:46 PM Subject: Re: Extreme fatigue > Harold, > I know I'm likely to have another auto-immune thing happen to me, not > that I want one. My mother and my older brother both have > sarcoidosis. My mom is developed alot of the signs of RA now so I > made her an appt. this month to see my rheumatologist. Also on my > father's side of the family, my grandmother died from lupus. I'm > going to read up on CFS and see how it compares to me. THen I can > discuss it with my doctor. > > Chris > > P/s Thanks for everyones helpful suggestions. This is great. Not > many people understand RA. Most think it's like any other form of > arthritis. They give you blank stares when you tell them its an auto- > immune disease and not from overusing or abusing your body. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 And right now other than snitching a few candies are you eating any of the others things that you know trigger your allergies. I know a woman who is affected so badly by wheat products that she lost about 50 lbs and looked like death was approaching before it was finally discovered that she had a gluten intollerance. Since then, she's cut out all gluten and the most amazing transformation has happened.....She looks great and feels great. It took about 4 years to get the diagnosis. She was told, in that time that she had many auto immune disorders that have all slipped away since the change in diet........so please do consider what some foods can do to our health, and remember each of us is different but one thing holds true for all of us, if our digestive system isn't working well we can't expect to maintain any level of wellness. Dorey www.LivingWithRheumatoidArthritis.com ----- Original Message ----- From: " " <tinoka3@...> <Rheumatoid Arthritis > Sent: Thursday, May 05, 2005 9:40 PM Subject: Re: Extreme fatigue > , In answer to your food mystery for my fatigue. I do have > confirmed allergies to wheat, yeast, and 40,000 other allergies to > various things like mold, dust, trees, animals, etc. > > I did South Beach for awhile and that was the best I felt. Of course, > you stay away from sugars, dairy, and refined things in the first > phase. So that goes along with the sugar and dairy as a trigger. And > since I couldn't eat pasta or the bad starches...I wasn't eating > wheat. > > I work in a candy warehouse. It's a family business and I have been > snitching candy lately. I crave the stuff. I just wonder if that's > not turning into a bigger problem for me. > > ~chris > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 's comment about arthritis being caused by sex reminded me of this joke: A drunk man flops down on a subway seat next to a priest. The man's tie is stained, his face is smeared with red lipstick, and a half empty bottle of gin is sticking out of his coat pocket. He opens a newspaper and begins reading. After a few minutes the guy turns to the priest and asks, " Say, Father, what causes arthritis? " The disgusted priest answers: " Loose living, wicked women, too much alcohol, and contempt for your fellow man. " " I'll be damned! " the drunk mutters, returning to his paper. The priest, thinking about what he said, nudges the man and apologizes: " I'm very sorry; I didn't mean to be so harsh. How bad is your arthritis? " " Oh, I don't have it, " replies the man; " It says here that the Pope does. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 Yeast is used to leaven products. Most products at hannaford in the natural foods aisle have no gluten yeast etc in them. Furthermore, If you just eat properly, and add supplements like soy to your diet, watch the salt and caffiene which are triggers to inflammation and eat mostly vegan diet, you should be fine. I make multi grain muffins with soy milk and flour, but use oat bran and regular bran too. I use raisins and honey to help. You can make breads without yeast. Organic foods regardless of ingredients should for the most part be safe. If you havent been to an allergist, you should, to see what specific items cause you stress. Yours, Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 ...LOL! I think I will tell people its from too much sex. That ought to get em going. Give all these people something to talk about and make a few jaws drop. It would be a hoot! ~chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2005 Report Share Posted May 14, 2005 -I haven't been staying away from yeast or wheat. It seems to be everywhere, sometimes in foods you wouldn't expect. 's chicken noodle has yeast in it. I was noshing on some saltines last week and they have yeast in it. I should be more vigilant and start reading those darn labels and stay away from the stuff. Regular vitamins even have yeast in them. I get mine from a health food store so they are yeast, wheat, and gluten free. ~chris -- In Rheumatoid Arthritis , Dorey <ddorey@s...> wrote: > And right now other than snitching a few candies are you eating any of the > others things that you know trigger your allergies. > > I know a woman who is affected so badly by wheat products that she lost > about 50 lbs and looked like death was approaching before it was finally > discovered that she had a gluten intollerance. Since then, she's cut out > all gluten and the most amazing transformation has happened.....She looks > great and feels great. It took about 4 years to get the diagnosis. She was > told, in that time that she had many auto immune disorders that have all > slipped away since the change in diet........so please do consider what some > foods can do to our health, and remember each of us is different but one > thing holds true for all of us, if our digestive system isn't working well > we can't expect to maintain any level of wellness. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2006 Report Share Posted April 2, 2006 , Going back down to 3 might not be a bad idea. Are you sleeping at night? .... helpful support groups for people with MS LDN_Users low dose naltrexone mscured TheChronicIllnessCafe On Apr 1, 2006, at 9:25 PM, wensu baki wrote: > Hi all, > > I have been taking 3.5 mg a day for the past 4 > weeks. However, My stamina and alertness is getting > worse everyday regardless of what I may do or take > (DLph, provigil, cayanne pepper). > I need advise. I am going to not take anything > tonight and see if I am just as tired tomorrow. > I was wondering if I should go back down to 3mg. > Any suggestions would be appriciated. > > 2 > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2006 Report Share Posted April 2, 2006 yea I sleep pretty goood during the night. I just can't seem to get energy at all. I am so dragged out..I didn't take any at all last night. I am feeling that I will stop for another few days then start at 3 again. --- Vaccaro <jaynbeth@...> wrote: > , > > Going back down to 3 might not be a bad idea. Are > you sleeping at > night? > > > ... ____________________________________________ > > Quote Link to comment Share on other sites More sharing options...
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