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Stasia,

I wouldn't worry about the 3D Scan. It is pretty common for the specialist to

order this to rule out cranio. My neuro assured me that he felt it was plagio

and was ordering the 3D just as an extra precaution. I can understand feeling

worried though - a natural reaction for a mommy or daddy.

I will be hoping that your band comes in on the 26th! Good luck with the scan

- you guys will do great!!

Marci (Mom to )

Oklahoma

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  • 3 weeks later...
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Stasia,

I will add your dad to my prayer list! I can't imagine how stressful this

must be for him and for your family. I will send prayers for recovery and

peace.

It is good to hear that is doing so well and that he is adapting

well despite the heat. You guys will be done before you know it!!!

Keep us posted!!

Marci (Mom to )

Oklahoma

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  • 4 years later...
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Hi, I joined this group a few years ago when I got a blood test

saying I had a very high rheumatoid factor. Being naive to what that

meant I started doing research on R.A.

I'm 24 years old, my mom was diagnosed with lupus at 25 (right after

she had me). I was officially diagnosed with Fybromyalgia about 2

years ago if memory serves (which it usually doesnt j.k.)

Now I am seeing a very well known and highly recognzied

rheumatologist in my area (he has been treating my mom for 20 +

years). I have only had one visit with him thus far. WHile he was

doing the routine checks, my neck would crack when moved, my knees

would pop when bent etc. etc. He just said that I should not sound

like this at 24.

He kept asking me if I get dry mouth. I basically told him that

generally speaking I'm always thirsty. My younger sibling is the same

way. So I wouldnt think that dry mouth is something that would alarm

me or even be somethign I noticed on a daily basis.

He told me he thinks I have some form of R.A. that is not very

progressive (knock on wood). but we have not gotten the blood test

results back (go this tuesday the 10th). Now mind you, this is the

THIRD rheumatologist I've seen. The first two said I had

fybromyalgia. THis one said there is no way I have that.

I even had X-rays taken back in October 2004 and they said no signs

of rheumatoid artritis, though the areas they x-ray'd hurt like hell.

Sometimes my pain is centralized to one side of my body then

progressies from top to bottom or vice versa. Usually its in my

forearm, neck is really bad and shoulder area. my wrists and elbows

can get bad in cool weather especially.

I'm sorry to ramble... But I just wanted to get your educated input

on this whole thing. How many dr.s did you all see until you were

finally correctly diagnosed? Is that normal for doctors not to

diagnose right away? My rheumatoid factor seems to go up every year.

If I do have R.A., would that mean it is getting worse?

I will be sure to check back in after my results tuesday..

Thank you all and God Bless...

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