Re: Nina & info from manufacturers

[Guest guest]

Nina,

Good idea about the manufacturer. I've also recently

been a bit afraid that one morning I will wake up with

a nosebleed. Not looking forward to that day. Your

Drs and mine must be talking, because mine also said I

wouldn't die from it and it seemed like " more of a

nuisance " than anything and I thought, well, YEAH, if

I'm getting one almost every darn day!

Rie

Message: 17

Date: Wed, 27 Apr 2005 20:31:08 -0500

From: " Nina " <ncampbell@...>

Subject: Re: Re: & TNF backward?

----- Original Message -----

From: " Rie " <ravencache@...>

> what scares me is all the unknowns about enbrel.

And

the fact that I have been getting what I thought were

nosebleeds but now I " m thinking are my sinuses

bleeding after I give myself the shots.

I have the same problem with prednisone. My doctor

assures me I will

never

bleed to death from a nosebleed. :-) He does check

periodically to

make

sure I'm not becoming anemic (I might be bleeding

somewhere else). I

wake

up with nosebleeds often.

> My rheumy also mentioned to me what you mention:

that

if the meds are stopped, most patients have the

symptoms return within 5-8 years.

In the past when I had a question about a specific

drug, I've gotten

good

responses when I emailed or phoned the manufacturer.

Nina

__________________________________________________

[Guest guest]

----- Original Message -----

From: Rie

> Nina,Good idea about the manufacturer. I've also recentlybeen a bit afraid that one morning I will wake up witha nosebleed. Not looking forward to that day. YourDrs and mine must be talking, because mine also said Iwouldn't die from it and it seemed like "more of anuisance" than anything and I thought, well, YEAH, ifI'm getting one almost every darn day!

I wish I could remember the name of the test they ran to make sure I wasn't losing blood elsewhere. Something like hematocrit.

Nina