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Steph,

I have had the surgery recently with Dr. Oro, only two weeks ago!

I want to say that I am much better for doing it. They are so great

there,

and my surgery was a great success by Drs. Oro and Mueller.

They have a great facility and team.

If you have had headaches all the time for years, it will probably help.

I was a bit skeptical back and forth trying to decide on having the

decompression surgery or try life without it because of the risks.

But, I did it after a few years of procrastinating and now am so glad.

However, you need to take into account that I am very new to the

zipperhead gang, and so, I have not been recovered long enough to

know all the ups and downs yet. But, this is what I do know.

My balance was an issue for me and I got that back too.

The recovery is tough, but it should help if ACM is truly the problem you

are

having that is causing the symptoms.

I have very long, great thick brown hair too.

They put it in two braids and only shaved down the middle of the

back about two inches wide, so that it does cover up the scar

now that it is healing. I do not know how Dr. Meneze does it.

I have not even had to cut any.

I was in the hospital 4 days.

The first and second in ICU, then down to the regular floor,

another day and then discharged. I went to the nearby hotel that

was arranged for me by church members to get to stay near

my dr. in Missouri. I live in Ala. I got to stay there 5 more days and

that made me feel very confident to go home without any

complications and partially healed. I flew there on Angelflight. But,

decided to drive

home in two legs, 4 hour drives at a time, staying over in KY.

I was able to take a shower and wash my hair on the 10th day after

the staples were taken out.

I took baths for the lower half for the time before that.

I am a mother of two girls, but married.

You will need some help for about 4 weeks.

I am doing so well, I am doing too much.

So, get someone to help you not do that.

You would even like them to live with you if you can swing it.

The hardest part is not picking up the stuff that you

have to carry around with you for the visit to and from the

hospital.

You will need someone to carry things for you.

Do not pick stuff up.

I am a bit sore, because I came home yesterday, and am

trying to unpack on my own. I got so sore, I had to

take the medication for pain again today, and was not taking

it any longer for about 3 days, except Advil. And, it makes me

a bit sleepy and slower, so I am forced to lay down.

Much better than leather restraints. he he

I learned my lesson and began to lay back down this afternoon.

I know everyone tells you this. But, I feel so much better, I am

just excited to get to walk around and see things in my own

home without squinting and hitting the floor a couple times a day.

If you are prescribed a stool softener, do take it even after

you get home. I stopped it and that is a problem if the stool is

a strain on you.

The only other meds. I am taking regular is the muscle relaxant they

prescribed me, and that is flexeril. Also, I resumed my other med.

Klonopin that was the only one I was on before the surgery.

I do take a lot of vitamins and minerals, herbs too.

And, that helps I know. I am taking a lot to boost my immunity.

There are about 10 of those. But, I did have to be off all supplements,

and herbs two weeks before the surgery. You cannot take them

for that time, or they will cause problems with your bleeding I was told.

You do not want to strain, by yelling, singing

blowing up balloons, etc. stuff like that, until after about 6 weeks.

You won't want to anyway.

But, you must breath deep often and cough (one or two) and turn while

lying down to

prevent pneumonia. Also, it is good to keep doing the little

breathing exercises at home too, until you get up and about.

I was very scared too the weeks before the surgery.

So, I do not pretend to ease you too much on this, but I will

say it was not as bad as I thought. I have had spinal fusion and

a C-section and also kidney stones and surgery with that.

This surgery for the decompression was not as bad as those for me.

But, it has its pro's and con's as well.

I am having trouble getting the pain under control at times.

That is of the skull only, and the bones and stuff in the neck.

But, I do NOT have a headache. Yeah!!!

The other surgeries took me even many more weeks to not feel

too much pain.

So, again, I am rushing.

I am having some trouble with my memory of events weeks before the

surgery in which I am repeating a lot of stuff to people that I talked to

then and in the hospital as well. They are telling me I already told them

that. So, there is a memory issue. But, I can say that I have a much less

foggy head now. And, there may be a breach in that time of memory for me

I guess. But, I know I am sharp now.

One of the worst things is trying to

get comfortable while lying down. You need to get a good

pillow before you go and bring it. I wish I had known that, or remembered

it discussed here at wacma.

If you wallow all over your head the first day while you are

on the pain pump you will not know it, because you are out of it.

And, it will cause you to be much more sore. I did this, and did not

realize it.

So, I am praying for you, and I hope you do well.

Write any time for any other need.

I will answer when I can.

I am posting this to you and the group, because it is good advise I feel

for others pending surgery,

Getting well slowly,

in Ala.

On Wed, 13 Mar 2002 11:44:37 EST sillychic4u@... writes:

> Hello everyone, My name is and I am from Iowa. I am kinda

> new to

> the group myself. I have a few questions for some of you that have

> had the

> surgery. My Decomp. date is the 25th of this month. I have Dr.

> Meneze at

> the U of I. Can some of yuo tell me what I am to expect as far as:

> I have

> long beautiful hair, How much is going to be cut (shaved) off?

> About how

> long will I be in the hospital? When will I be able to take a

> normal

> shower(wash my hair)?.....I am a single mother,29, of 4 kids. I

> want to be

> able to take care of my kids without getting so mad because I hurt

> all the

> time. I am scared of the surgery but I am also looking forward to

> feeling

> better. If anyone can help with these questions that would be

> great. Thank

> you Steph

________________________________________________________________

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Guest guest

Steph,

I have had the surgery recently with Dr. Oro, only two weeks ago!

I want to say that I am much better for doing it. They are so great

there,

and my surgery was a great success by Drs. Oro and Mueller.

They have a great facility and team.

If you have had headaches all the time for years, it will probably help.

I was a bit skeptical back and forth trying to decide on having the

decompression surgery or try life without it because of the risks.

But, I did it after a few years of procrastinating and now am so glad.

However, you need to take into account that I am very new to the

zipperhead gang, and so, I have not been recovered long enough to

know all the ups and downs yet. But, this is what I do know.

My balance was an issue for me and I got that back too.

The recovery is tough, but it should help if ACM is truly the problem you

are

having that is causing the symptoms.

I have very long, great thick brown hair too.

They put it in two braids and only shaved down the middle of the

back about two inches wide, so that it does cover up the scar

now that it is healing. I do not know how Dr. Meneze does it.

I have not even had to cut any.

I was in the hospital 4 days.

The first and second in ICU, then down to the regular floor,

another day and then discharged. I went to the nearby hotel that

was arranged for me by church members to get to stay near

my dr. in Missouri. I live in Ala. I got to stay there 5 more days and

that made me feel very confident to go home without any

complications and partially healed. I flew there on Angelflight. But,

decided to drive

home in two legs, 4 hour drives at a time, staying over in KY.

I was able to take a shower and wash my hair on the 10th day after

the staples were taken out.

I took baths for the lower half for the time before that.

I am a mother of two girls, but married.

You will need some help for about 4 weeks.

I am doing so well, I am doing too much.

So, get someone to help you not do that.

You would even like them to live with you if you can swing it.

The hardest part is not picking up the stuff that you

have to carry around with you for the visit to and from the

hospital.

You will need someone to carry things for you.

Do not pick stuff up.

I am a bit sore, because I came home yesterday, and am

trying to unpack on my own. I got so sore, I had to

take the medication for pain again today, and was not taking

it any longer for about 3 days, except Advil. And, it makes me

a bit sleepy and slower, so I am forced to lay down.

Much better than leather restraints. he he

I learned my lesson and began to lay back down this afternoon.

I know everyone tells you this. But, I feel so much better, I am

just excited to get to walk around and see things in my own

home without squinting and hitting the floor a couple times a day.

If you are prescribed a stool softener, do take it even after

you get home. I stopped it and that is a problem if the stool is

a strain on you.

The only other meds. I am taking regular is the muscle relaxant they

prescribed me, and that is flexeril. Also, I resumed my other med.

Klonopin that was the only one I was on before the surgery.

I do take a lot of vitamins and minerals, herbs too.

And, that helps I know. I am taking a lot to boost my immunity.

There are about 10 of those. But, I did have to be off all supplements,

and herbs two weeks before the surgery. You cannot take them

for that time, or they will cause problems with your bleeding I was told.

You do not want to strain, by yelling, singing

blowing up balloons, etc. stuff like that, until after about 6 weeks.

You won't want to anyway.

But, you must breath deep often and cough (one or two) and turn while

lying down to

prevent pneumonia. Also, it is good to keep doing the little

breathing exercises at home too, until you get up and about.

I was very scared too the weeks before the surgery.

So, I do not pretend to ease you too much on this, but I will

say it was not as bad as I thought. I have had spinal fusion and

a C-section and also kidney stones and surgery with that.

This surgery for the decompression was not as bad as those for me.

But, it has its pro's and con's as well.

I am having trouble getting the pain under control at times.

That is of the skull only, and the bones and stuff in the neck.

But, I do NOT have a headache. Yeah!!!

The other surgeries took me even many more weeks to not feel

too much pain.

So, again, I am rushing.

I am having some trouble with my memory of events weeks before the

surgery in which I am repeating a lot of stuff to people that I talked to

then and in the hospital as well. They are telling me I already told them

that. So, there is a memory issue. But, I can say that I have a much less

foggy head now. And, there may be a breach in that time of memory for me

I guess. But, I know I am sharp now.

One of the worst things is trying to

get comfortable while lying down. You need to get a good

pillow before you go and bring it. I wish I had known that, or remembered

it discussed here at wacma.

If you wallow all over your head the first day while you are

on the pain pump you will not know it, because you are out of it.

And, it will cause you to be much more sore. I did this, and did not

realize it.

So, I am praying for you, and I hope you do well.

Write any time for any other need.

I will answer when I can.

I am posting this to you and the group, because it is good advise I feel

for others pending surgery,

Getting well slowly,

in Ala.

On Wed, 13 Mar 2002 11:44:37 EST sillychic4u@... writes:

> Hello everyone, My name is and I am from Iowa. I am kinda

> new to

> the group myself. I have a few questions for some of you that have

> had the

> surgery. My Decomp. date is the 25th of this month. I have Dr.

> Meneze at

> the U of I. Can some of yuo tell me what I am to expect as far as:

> I have

> long beautiful hair, How much is going to be cut (shaved) off?

> About how

> long will I be in the hospital? When will I be able to take a

> normal

> shower(wash my hair)?.....I am a single mother,29, of 4 kids. I

> want to be

> able to take care of my kids without getting so mad because I hurt

> all the

> time. I am scared of the surgery but I am also looking forward to

> feeling

> better. If anyone can help with these questions that would be

> great. Thank

> you Steph

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

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Guest guest

Steph,

I have had the surgery recently with Dr. Oro, only two weeks ago!

I want to say that I am much better for doing it. They are so great

there,

and my surgery was a great success by Drs. Oro and Mueller.

They have a great facility and team.

If you have had headaches all the time for years, it will probably help.

I was a bit skeptical back and forth trying to decide on having the

decompression surgery or try life without it because of the risks.

But, I did it after a few years of procrastinating and now am so glad.

However, you need to take into account that I am very new to the

zipperhead gang, and so, I have not been recovered long enough to

know all the ups and downs yet. But, this is what I do know.

My balance was an issue for me and I got that back too.

The recovery is tough, but it should help if ACM is truly the problem you

are

having that is causing the symptoms.

I have very long, great thick brown hair too.

They put it in two braids and only shaved down the middle of the

back about two inches wide, so that it does cover up the scar

now that it is healing. I do not know how Dr. Meneze does it.

I have not even had to cut any.

I was in the hospital 4 days.

The first and second in ICU, then down to the regular floor,

another day and then discharged. I went to the nearby hotel that

was arranged for me by church members to get to stay near

my dr. in Missouri. I live in Ala. I got to stay there 5 more days and

that made me feel very confident to go home without any

complications and partially healed. I flew there on Angelflight. But,

decided to drive

home in two legs, 4 hour drives at a time, staying over in KY.

I was able to take a shower and wash my hair on the 10th day after

the staples were taken out.

I took baths for the lower half for the time before that.

I am a mother of two girls, but married.

You will need some help for about 4 weeks.

I am doing so well, I am doing too much.

So, get someone to help you not do that.

You would even like them to live with you if you can swing it.

The hardest part is not picking up the stuff that you

have to carry around with you for the visit to and from the

hospital.

You will need someone to carry things for you.

Do not pick stuff up.

I am a bit sore, because I came home yesterday, and am

trying to unpack on my own. I got so sore, I had to

take the medication for pain again today, and was not taking

it any longer for about 3 days, except Advil. And, it makes me

a bit sleepy and slower, so I am forced to lay down.

Much better than leather restraints. he he

I learned my lesson and began to lay back down this afternoon.

I know everyone tells you this. But, I feel so much better, I am

just excited to get to walk around and see things in my own

home without squinting and hitting the floor a couple times a day.

If you are prescribed a stool softener, do take it even after

you get home. I stopped it and that is a problem if the stool is

a strain on you.

The only other meds. I am taking regular is the muscle relaxant they

prescribed me, and that is flexeril. Also, I resumed my other med.

Klonopin that was the only one I was on before the surgery.

I do take a lot of vitamins and minerals, herbs too.

And, that helps I know. I am taking a lot to boost my immunity.

There are about 10 of those. But, I did have to be off all supplements,

and herbs two weeks before the surgery. You cannot take them

for that time, or they will cause problems with your bleeding I was told.

You do not want to strain, by yelling, singing

blowing up balloons, etc. stuff like that, until after about 6 weeks.

You won't want to anyway.

But, you must breath deep often and cough (one or two) and turn while

lying down to

prevent pneumonia. Also, it is good to keep doing the little

breathing exercises at home too, until you get up and about.

I was very scared too the weeks before the surgery.

So, I do not pretend to ease you too much on this, but I will

say it was not as bad as I thought. I have had spinal fusion and

a C-section and also kidney stones and surgery with that.

This surgery for the decompression was not as bad as those for me.

But, it has its pro's and con's as well.

I am having trouble getting the pain under control at times.

That is of the skull only, and the bones and stuff in the neck.

But, I do NOT have a headache. Yeah!!!

The other surgeries took me even many more weeks to not feel

too much pain.

So, again, I am rushing.

I am having some trouble with my memory of events weeks before the

surgery in which I am repeating a lot of stuff to people that I talked to

then and in the hospital as well. They are telling me I already told them

that. So, there is a memory issue. But, I can say that I have a much less

foggy head now. And, there may be a breach in that time of memory for me

I guess. But, I know I am sharp now.

One of the worst things is trying to

get comfortable while lying down. You need to get a good

pillow before you go and bring it. I wish I had known that, or remembered

it discussed here at wacma.

If you wallow all over your head the first day while you are

on the pain pump you will not know it, because you are out of it.

And, it will cause you to be much more sore. I did this, and did not

realize it.

So, I am praying for you, and I hope you do well.

Write any time for any other need.

I will answer when I can.

I am posting this to you and the group, because it is good advise I feel

for others pending surgery,

Getting well slowly,

in Ala.

On Wed, 13 Mar 2002 11:44:37 EST sillychic4u@... writes:

> Hello everyone, My name is and I am from Iowa. I am kinda

> new to

> the group myself. I have a few questions for some of you that have

> had the

> surgery. My Decomp. date is the 25th of this month. I have Dr.

> Meneze at

> the U of I. Can some of yuo tell me what I am to expect as far as:

> I have

> long beautiful hair, How much is going to be cut (shaved) off?

> About how

> long will I be in the hospital? When will I be able to take a

> normal

> shower(wash my hair)?.....I am a single mother,29, of 4 kids. I

> want to be

> able to take care of my kids without getting so mad because I hurt

> all the

> time. I am scared of the surgery but I am also looking forward to

> feeling

> better. If anyone can help with these questions that would be

> great. Thank

> you Steph

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

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  • 9 months later...

Hi Karin, thanks for you note! It's so nice to meet you and

everyone! Everyone already has been a huge support to me, and they

don't even realize it yet! To make a long story short, I knew

had ASD when he was 17 months old. Everyone thought I was crazy, and

basically just told me to shut the hell up and eat some more

lithium. Finally, they all one by one noticed. The only thing I can

say about being a special ed teacher? All those years of teaching

never prepared me to be a mother of a special needs child. It's

totally different. The only thing good about it is I've had 2 years

of behavioral training in college, and I don't put up with any

bullshit from . He's a really good kid. We're pretty scrict on

him (we expect alot), and you know? he gives us all he's got. he's

made so much progress, and i know it's because of all the early

intervention. but like i was saying, he gives us 100% and that's all

i expect from any child. i use alot of slang, can't write worth a

crap, so you all please forgive all the grammatical errors. oh, and

thanks for letting me talk.

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  • 4 months later...
Guest guest

HELLO MARTY AND WELCOME TO THE GROUP . YOU WILL FIND THAT EVERYONE

IN THIS SUPPORT GROUP ARE WONDERFUL. ARE YOU PLANNING ON DR. LEVIN

FOR YOUR TR ?? HE'S HAD NOTHING BUT RAVE REVIEWS FROM WHAT I CAN

HEAR. I HAD MY PHONE CONSULT AND HE WAS A PLEASURE TO SPEAK WITH.

HOPE YOU GET LOT'S OF INFO HERE.

> Hello, My name is Marty, and I'm new to your group (or any group

for

> that matter). I'm from CA. I had my TL in 94 and we have regretted

it

> ever sence and hoping for a TR in July or so. I have a dh and 3

ds

> who are all so special. I'm a stay at home mom and home school

> although as you can probably tell spelling is not my strong

subject.

> We are hoping one day to be blessed with more little blessings.

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Guest guest

HELLO MARTY AND WELCOME TO THE GROUP . YOU WILL FIND THAT EVERYONE

IN THIS SUPPORT GROUP ARE WONDERFUL. ARE YOU PLANNING ON DR. LEVIN

FOR YOUR TR ?? HE'S HAD NOTHING BUT RAVE REVIEWS FROM WHAT I CAN

HEAR. I HAD MY PHONE CONSULT AND HE WAS A PLEASURE TO SPEAK WITH.

HOPE YOU GET LOT'S OF INFO HERE.

> Hello, My name is Marty, and I'm new to your group (or any group

for

> that matter). I'm from CA. I had my TL in 94 and we have regretted

it

> ever sence and hoping for a TR in July or so. I have a dh and 3

ds

> who are all so special. I'm a stay at home mom and home school

> although as you can probably tell spelling is not my strong

subject.

> We are hoping one day to be blessed with more little blessings.

Link to comment
Share on other sites

Guest guest

HELLO MARTY AND WELCOME TO THE GROUP . YOU WILL FIND THAT EVERYONE

IN THIS SUPPORT GROUP ARE WONDERFUL. ARE YOU PLANNING ON DR. LEVIN

FOR YOUR TR ?? HE'S HAD NOTHING BUT RAVE REVIEWS FROM WHAT I CAN

HEAR. I HAD MY PHONE CONSULT AND HE WAS A PLEASURE TO SPEAK WITH.

HOPE YOU GET LOT'S OF INFO HERE.

> Hello, My name is Marty, and I'm new to your group (or any group

for

> that matter). I'm from CA. I had my TL in 94 and we have regretted

it

> ever sence and hoping for a TR in July or so. I have a dh and 3

ds

> who are all so special. I'm a stay at home mom and home school

> although as you can probably tell spelling is not my strong

subject.

> We are hoping one day to be blessed with more little blessings.

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Share on other sites

Guest guest

Welcome Marty! I had my TL done in 1994 also and we regretted it very quickly

also. I had my TR last April and this past February 28th I gave birth to a baby

boy who keeps me very busy these days.

:)

Hello

Hello, My name is Marty, and I'm new to your group (or any group for

that matter). I'm from CA. I had my TL in 94 and we have regretted it

ever sence and hoping for a TR in July or so. I have a dh and 3 ds

who are all so special. I'm a stay at home mom and home school

although as you can probably tell spelling is not my strong subject.

We are hoping one day to be blessed with more little blessings.

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Share on other sites

Guest guest

Welcome Marty! I had my TL done in 1994 also and we regretted it very quickly

also. I had my TR last April and this past February 28th I gave birth to a baby

boy who keeps me very busy these days.

:)

Hello

Hello, My name is Marty, and I'm new to your group (or any group for

that matter). I'm from CA. I had my TL in 94 and we have regretted it

ever sence and hoping for a TR in July or so. I have a dh and 3 ds

who are all so special. I'm a stay at home mom and home school

although as you can probably tell spelling is not my strong subject.

We are hoping one day to be blessed with more little blessings.

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Share on other sites

Guest guest

Welcome Marty! I had my TL done in 1994 also and we regretted it very quickly

also. I had my TR last April and this past February 28th I gave birth to a baby

boy who keeps me very busy these days.

:)

Hello

Hello, My name is Marty, and I'm new to your group (or any group for

that matter). I'm from CA. I had my TL in 94 and we have regretted it

ever sence and hoping for a TR in July or so. I have a dh and 3 ds

who are all so special. I'm a stay at home mom and home school

although as you can probably tell spelling is not my strong subject.

We are hoping one day to be blessed with more little blessings.

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Guest guest

Amy, could you please not type in all Caps, it is a little hard to read. Thank

you.

:)

Re: Hello

HELLO MARTY AND WELCOME TO THE GROUP . YOU WILL FIND THAT EVERYONE

IN THIS SUPPORT GROUP ARE WONDERFUL. ARE YOU PLANNING ON DR. LEVIN

FOR YOUR TR ?? HE'S HAD NOTHING BUT RAVE REVIEWS FROM WHAT I CAN

HEAR. I HAD MY PHONE CONSULT AND HE WAS A PLEASURE TO SPEAK WITH.

HOPE YOU GET LOT'S OF INFO HERE.

> Hello, My name is Marty, and I'm new to your group (or any group

for

> that matter). I'm from CA. I had my TL in 94 and we have regretted

it

> ever sence and hoping for a TR in July or so. I have a dh and 3

ds

> who are all so special. I'm a stay at home mom and home school

> although as you can probably tell spelling is not my strong

subject.

> We are hoping one day to be blessed with more little blessings.

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Share on other sites

Guest guest

Amy, could you please not type in all Caps, it is a little hard to read. Thank

you.

:)

Re: Hello

HELLO MARTY AND WELCOME TO THE GROUP . YOU WILL FIND THAT EVERYONE

IN THIS SUPPORT GROUP ARE WONDERFUL. ARE YOU PLANNING ON DR. LEVIN

FOR YOUR TR ?? HE'S HAD NOTHING BUT RAVE REVIEWS FROM WHAT I CAN

HEAR. I HAD MY PHONE CONSULT AND HE WAS A PLEASURE TO SPEAK WITH.

HOPE YOU GET LOT'S OF INFO HERE.

> Hello, My name is Marty, and I'm new to your group (or any group

for

> that matter). I'm from CA. I had my TL in 94 and we have regretted

it

> ever sence and hoping for a TR in July or so. I have a dh and 3

ds

> who are all so special. I'm a stay at home mom and home school

> although as you can probably tell spelling is not my strong

subject.

> We are hoping one day to be blessed with more little blessings.

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Share on other sites

Guest guest

Hello Marty, and Welcome!

You have come to the right place! I am a homeschooling mom too!

If you thinking on using Dr. Levin, and are looking for a TR buddy to save

some $$, I think was looking for someone to go with her in July.

Glad to have you here!

........Shauna

TL - 08/88 - rings

TR - 05/03 - Dr. Levin

Tube Lengths - 6.5cm and 7cm

ttc and having fun!!

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Guest guest

Hello Marty, and Welcome!

You have come to the right place! I am a homeschooling mom too!

If you thinking on using Dr. Levin, and are looking for a TR buddy to save

some $$, I think was looking for someone to go with her in July.

Glad to have you here!

........Shauna

TL - 08/88 - rings

TR - 05/03 - Dr. Levin

Tube Lengths - 6.5cm and 7cm

ttc and having fun!!

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Guest guest

Hello Marty, and Welcome!

You have come to the right place! I am a homeschooling mom too!

If you thinking on using Dr. Levin, and are looking for a TR buddy to save

some $$, I think was looking for someone to go with her in July.

Glad to have you here!

........Shauna

TL - 08/88 - rings

TR - 05/03 - Dr. Levin

Tube Lengths - 6.5cm and 7cm

ttc and having fun!!

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  • 1 year later...
Guest guest

Welcome Christy

I am also new to this group, but let me assure you that the people here will

help you in anyway possible.

I am so sorry to here about your daughter but I know that you will learn all

you need to know to protect her from this horrible disease.

God Bless you and your family

Carol

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Guest guest

Welcome Christy

I am also new to this group, but let me assure you that the people here will

help you in anyway possible.

I am so sorry to here about your daughter but I know that you will learn all

you need to know to protect her from this horrible disease.

God Bless you and your family

Carol

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Guest guest

Welcome to the group Christy, I'm glad to hear that your daughter is doing

fine--Thank God--THANK GOD.

DEBBIE

--- AppaloosaCrossing

wrote:

> Hello everyone,

> My name is Christy.

> We almost lost our 6 yr old daughter to ketoacidosis

> this week. All is ok

> now of course.

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Guest guest

Welcome to the group Christy, I'm glad to hear that your daughter is doing

fine--Thank God--THANK GOD.

DEBBIE

--- AppaloosaCrossing

wrote:

> Hello everyone,

> My name is Christy.

> We almost lost our 6 yr old daughter to ketoacidosis

> this week. All is ok

> now of course.

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Guest guest

Welcome to the group Christy, I'm glad to hear that your daughter is doing

fine--Thank God--THANK GOD.

DEBBIE

--- AppaloosaCrossing

wrote:

> Hello everyone,

> My name is Christy.

> We almost lost our 6 yr old daughter to ketoacidosis

> this week. All is ok

> now of course.

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Guest guest

Hi Christy,

Did your Doctor explain the cause of your daughter's condition? Is

she a Type I? Is she hypoglycemic (to little blood sugar)? Was it

diet related?

Of course the thing with young children is to get them to eat things

that they don't particularly like... I'm sure you'll become a master

of disguise and adept in hiding foods within foods :)

good luck

> Hello everyone,

> My name is Christy.

> We almost lost our 6 yr old daughter to ketoacidosis this week.

All is ok

> now of course. Excellent care team in the Ped ICU. Life is still a

bit

> hectic as we try to figure out what to do and how. never thought

much about

> what we eat before.....now I am reading box labels.

> It is so much to absorb and learn and teach - we have 3 other

children who

> are (far as we know) non-diabetic.

> I think our DD is handling this 100% better than we are! LOL

>

> Well anyway thank you for letting me join, and if anyone has any

tips or

> tricks in the food department for a newby I could use them :)

> thank you

> Christy

>

>

>

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Guest guest

Hi Christy,

Did your Doctor explain the cause of your daughter's condition? Is

she a Type I? Is she hypoglycemic (to little blood sugar)? Was it

diet related?

Of course the thing with young children is to get them to eat things

that they don't particularly like... I'm sure you'll become a master

of disguise and adept in hiding foods within foods :)

good luck

> Hello everyone,

> My name is Christy.

> We almost lost our 6 yr old daughter to ketoacidosis this week.

All is ok

> now of course. Excellent care team in the Ped ICU. Life is still a

bit

> hectic as we try to figure out what to do and how. never thought

much about

> what we eat before.....now I am reading box labels.

> It is so much to absorb and learn and teach - we have 3 other

children who

> are (far as we know) non-diabetic.

> I think our DD is handling this 100% better than we are! LOL

>

> Well anyway thank you for letting me join, and if anyone has any

tips or

> tricks in the food department for a newby I could use them :)

> thank you

> Christy

>

>

>

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Guest guest

Hi Christy,

Did your Doctor explain the cause of your daughter's condition? Is

she a Type I? Is she hypoglycemic (to little blood sugar)? Was it

diet related?

Of course the thing with young children is to get them to eat things

that they don't particularly like... I'm sure you'll become a master

of disguise and adept in hiding foods within foods :)

good luck

> Hello everyone,

> My name is Christy.

> We almost lost our 6 yr old daughter to ketoacidosis this week.

All is ok

> now of course. Excellent care team in the Ped ICU. Life is still a

bit

> hectic as we try to figure out what to do and how. never thought

much about

> what we eat before.....now I am reading box labels.

> It is so much to absorb and learn and teach - we have 3 other

children who

> are (far as we know) non-diabetic.

> I think our DD is handling this 100% better than we are! LOL

>

> Well anyway thank you for letting me join, and if anyone has any

tips or

> tricks in the food department for a newby I could use them :)

> thank you

> Christy

>

>

>

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Guest guest

Welcome! I would suggest two books: DIABETES FOR DUMMIES and DR.

BERNSTEIN'S DIABETES SOLUTION. There is a book called THE DIABETIC

CHILD, but I don't know anything about it so cannot recommend or

discommend it.

hello

Hello everyone,

My name is Christy.

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Guest guest

Welcome! I would suggest two books: DIABETES FOR DUMMIES and DR.

BERNSTEIN'S DIABETES SOLUTION. There is a book called THE DIABETIC

CHILD, but I don't know anything about it so cannot recommend or

discommend it.

hello

Hello everyone,

My name is Christy.

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