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Re: Elevated Vitamin B12 levels in Plasma

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may also mean you are getting high doses of them, my plasma was just high in it as well last week but I chew b fresh gum all the time and think that is why

From: Kay

Sent: Saturday, February 05, 2011 10:49 PM

To: NIDS ; MB12 Valtrex

Subject: Elevated Vitamin B12 levels in Plasma

Has anyone have very elevated Vitamin B12 levels in plasma that actually went down with any intervention?

There seems to be very little literature on this - I have read somewhere that it might be the oxidized form of B12 hence unusable hence the high reading but not sure if that is true.

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may also mean you are getting high doses of them, my plasma was just high in it as well last week but I chew b fresh gum all the time and think that is why

From: Kay

Sent: Saturday, February 05, 2011 10:49 PM

To: NIDS ; MB12 Valtrex

Subject: Elevated Vitamin B12 levels in Plasma

Has anyone have very elevated Vitamin B12 levels in plasma that actually went down with any intervention?

There seems to be very little literature on this - I have read somewhere that it might be the oxidized form of B12 hence unusable hence the high reading but not sure if that is true.

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Share on other sites

Dr. McCandless touches on this on one paper I read by her. And she suspects the same. The 12 is there, but the body isn't able to uptake and utilize it correctly. Kinda like a diabetic and sugar. The sugar's there but the body doesn't know how to use it so it just sits there. It sounds like a reasonable explaination but who knows with these kids? Anything's possible.

To: NIDS ; MB12 Valtrex <mb12 valtrex >Sent: Sat, February 5, 2011 10:49:02 PMSubject: Elevated Vitamin B12 levels in Plasma

Has anyone have very elevated Vitamin B12 levels in plasma that actually went down with any intervention?

There seems to be very little literature on this - I have read somewhere that it might be the oxidized form of B12 hence unusable hence the high reading but not sure if that is true.

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I'd like to know more about this as well. My daughter's B12 levels were WAY higher than normal range, and this was before she was on any supps which makes no sense.

- Kirk-

To: mb12 valtrex From: t.lynn28@...Date: Sun, 6 Feb 2011 04:53:38 -0800Subject: Re: Elevated Vitamin B12 levels in Plasma

Dr. McCandless touches on this on one paper I read by her. And she suspects the same. The 12 is there, but the body isn't able to uptake and utilize it correctly. Kinda like a diabetic and sugar. The sugar's there but the body doesn't know how to use it so it just sits there. It sounds like a reasonable explaination but who knows with these kids? Anything's possible.

To: NIDS ; MB12 Valtrex <mb12 valtrex >Sent: Sat, February 5, 2011 10:49:02 PMSubject: Elevated Vitamin B12 levels in Plasma

Has anyone have very elevated Vitamin B12 levels in plasma that actually went down with any intervention?

There seems to be very little literature on this - I have read somewhere that it might be the oxidized form of B12 hence unusable hence the high reading but not sure if that is true.

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Share on other sites

I keep meaning to reply to this post...

YES! When Rob's DAN and I got into it over the B12 nasal spray-- her response

(and it was quite fair) that Rob had 'normal' in the high range of B12 serum

levels - the nasal spray wasn't necessary.

I argued (and brought documentation) that Rob expressed EVERY sign of a B12

Deficiency. That although the serum levels may be high, it didn't explain why

it seemed like a coincidence that he had EVERY symptom. She reluctantly said

" we can try it " (which is all I wanted to hear anyway -- and as she explained --

you can't overdose, it's water soluble, and goes out with your urine) -- We got

HUGE gains from it.

Now, during that time, I also (thank GOD I took copious notes!) got him a

bio-available multi-vitamin, was doing an 'iodine' patch test weekly (and

measuring the the time for the patch to disappear), the diet (along with the IGg

foods removed)...this was Oct 2009. During one of my visits in Oct 2010, I told

Rob's Dr. that he 'burns' up and thru the B12, that what he's getting isn't

enough. And I gave her times I noticed along with his symptoms. We decided to

try shots.

I gave shots, nasal spray and revitapops and sublinguals to keep the symptoms

away. She did another blood test and he was WAYYY low. (like off the charts

way low.) -- he was getting most of the same things as when we started.

She wants to run a bunch of other tests as a result. (A shillings test and

another test.)

SO short answer yes. Just because the blood serum levels are high, doesn't mean

that you don't have a deficiency going on. This is usually due to not enough of

other resources like B6, Folic Acid, choline, vitamin C, B-complex, inositol,

potassium, sodium and calcium. OR a error in metabolism, like a mutation.

The book - Could it Be B12, An Epidemic of a Misdiagnosis -- really helps in

understanding all of this. (on a layman level) ...

I hope this helps - laura :)

>

> Has anyone have very elevated Vitamin B12 levels in plasma that actually went

> down with any intervention?

> There seems to be very little literature on this - I have read somewhere that

it

> might be the oxidized form of B12 hence unusable hence the high reading but

not

> sure if that is true.

>

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Share on other sites

I keep meaning to reply to this post...

YES! When Rob's DAN and I got into it over the B12 nasal spray-- her response

(and it was quite fair) that Rob had 'normal' in the high range of B12 serum

levels - the nasal spray wasn't necessary.

I argued (and brought documentation) that Rob expressed EVERY sign of a B12

Deficiency. That although the serum levels may be high, it didn't explain why

it seemed like a coincidence that he had EVERY symptom. She reluctantly said

" we can try it " (which is all I wanted to hear anyway -- and as she explained --

you can't overdose, it's water soluble, and goes out with your urine) -- We got

HUGE gains from it.

Now, during that time, I also (thank GOD I took copious notes!) got him a

bio-available multi-vitamin, was doing an 'iodine' patch test weekly (and

measuring the the time for the patch to disappear), the diet (along with the IGg

foods removed)...this was Oct 2009. During one of my visits in Oct 2010, I told

Rob's Dr. that he 'burns' up and thru the B12, that what he's getting isn't

enough. And I gave her times I noticed along with his symptoms. We decided to

try shots.

I gave shots, nasal spray and revitapops and sublinguals to keep the symptoms

away. She did another blood test and he was WAYYY low. (like off the charts

way low.) -- he was getting most of the same things as when we started.

She wants to run a bunch of other tests as a result. (A shillings test and

another test.)

SO short answer yes. Just because the blood serum levels are high, doesn't mean

that you don't have a deficiency going on. This is usually due to not enough of

other resources like B6, Folic Acid, choline, vitamin C, B-complex, inositol,

potassium, sodium and calcium. OR a error in metabolism, like a mutation.

The book - Could it Be B12, An Epidemic of a Misdiagnosis -- really helps in

understanding all of this. (on a layman level) ...

I hope this helps - laura :)

>

> Has anyone have very elevated Vitamin B12 levels in plasma that actually went

> down with any intervention?

> There seems to be very little literature on this - I have read somewhere that

it

> might be the oxidized form of B12 hence unusable hence the high reading but

not

> sure if that is true.

>

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Share on other sites

My son's b12 is sky high too. Like mine, and I was supping 5000 mcg a day for myself, none for him. Sigh.

 

I'd like to know more about this as well. My daughter's B12 levels were WAY higher than normal range, and this was before she was on any supps which makes no sense.

- Kirk- 

To: mb12 valtrex From: t.lynn28@...Date: Sun, 6 Feb 2011 04:53:38 -0800

Subject: Re: Elevated Vitamin B12 levels in Plasma

 

Dr. McCandless touches on this on one paper I read by her.  And she suspects the same.  The 12 is there, but the body isn't able to uptake and utilize it correctly.  Kinda like a diabetic and sugar.  The sugar's there but the body doesn't know how to use it so it just sits there.  It sounds like a reasonable explaination but who knows with these kids?  Anything's possible.

 

 

To: NIDS ; MB12 Valtrex <mb12 valtrex >

Sent: Sat, February 5, 2011 10:49:02 PMSubject: Elevated Vitamin B12 levels in Plasma 

Has anyone have very elevated Vitamin B12 levels in plasma that actually went down with any intervention?

There seems to be very little literature on this - I have read somewhere that it might be the oxidized form of B12 hence unusable hence the high reading but not sure if that is true.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Share on other sites

My son's b12 is sky high too. Like mine, and I was supping 5000 mcg a day for myself, none for him. Sigh.

 

I'd like to know more about this as well. My daughter's B12 levels were WAY higher than normal range, and this was before she was on any supps which makes no sense.

- Kirk- 

To: mb12 valtrex From: t.lynn28@...Date: Sun, 6 Feb 2011 04:53:38 -0800

Subject: Re: Elevated Vitamin B12 levels in Plasma

 

Dr. McCandless touches on this on one paper I read by her.  And she suspects the same.  The 12 is there, but the body isn't able to uptake and utilize it correctly.  Kinda like a diabetic and sugar.  The sugar's there but the body doesn't know how to use it so it just sits there.  It sounds like a reasonable explaination but who knows with these kids?  Anything's possible.

 

 

To: NIDS ; MB12 Valtrex <mb12 valtrex >

Sent: Sat, February 5, 2011 10:49:02 PMSubject: Elevated Vitamin B12 levels in Plasma 

Has anyone have very elevated Vitamin B12 levels in plasma that actually went down with any intervention?

There seems to be very little literature on this - I have read somewhere that it might be the oxidized form of B12 hence unusable hence the high reading but not sure if that is true.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

Link to comment
Share on other sites

My son's b12 is sky high too. Like mine, and I was supping 5000 mcg a day for myself, none for him. Sigh.

 

I'd like to know more about this as well. My daughter's B12 levels were WAY higher than normal range, and this was before she was on any supps which makes no sense.

- Kirk- 

To: mb12 valtrex From: t.lynn28@...Date: Sun, 6 Feb 2011 04:53:38 -0800

Subject: Re: Elevated Vitamin B12 levels in Plasma

 

Dr. McCandless touches on this on one paper I read by her.  And she suspects the same.  The 12 is there, but the body isn't able to uptake and utilize it correctly.  Kinda like a diabetic and sugar.  The sugar's there but the body doesn't know how to use it so it just sits there.  It sounds like a reasonable explaination but who knows with these kids?  Anything's possible.

 

 

To: NIDS ; MB12 Valtrex <mb12 valtrex >

Sent: Sat, February 5, 2011 10:49:02 PMSubject: Elevated Vitamin B12 levels in Plasma 

Has anyone have very elevated Vitamin B12 levels in plasma that actually went down with any intervention?

There seems to be very little literature on this - I have read somewhere that it might be the oxidized form of B12 hence unusable hence the high reading but not sure if that is true.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

Link to comment
Share on other sites

Thanks - that does help.What were some of the classical symptoms of B12 deficiency that you saw? And did you ever test for Homocysteine & Urine Methylmalonic acid ( in Urine OAT) - were they off as well suggesting B12 deficiency? I understand they are also markers of B12 deficiency.To: mb12 valtrex Sent: Sun, February 6, 2011 7:22:07 AMSubject: Re: Elevated Vitamin B12 levels in Plasma

I keep meaning to reply to this post...

YES! When Rob's DAN and I got into it over the B12 nasal spray-- her response (and it was quite fair) that Rob had 'normal' in the high range of B12 serum levels - the nasal spray wasn't necessary.

I argued (and brought documentation) that Rob expressed EVERY sign of a B12 Deficiency. That although the serum levels may be high, it didn't explain why it seemed like a coincidence that he had EVERY symptom. She reluctantly said "we can try it" (which is all I wanted to hear anyway -- and as she explained -- you can't overdose, it's water soluble, and goes out with your urine) -- We got HUGE gains from it.

Now, during that time, I also (thank GOD I took copious notes!) got him a bio-available multi-vitamin, was doing an 'iodine' patch test weekly (and measuring the the time for the patch to disappear), the diet (along with the IGg foods removed)...this was Oct 2009. During one of my visits in Oct 2010, I told Rob's Dr. that he 'burns' up and thru the B12, that what he's getting isn't enough. And I gave her times I noticed along with his symptoms. We decided to try shots.

I gave shots, nasal spray and revitapops and sublinguals to keep the symptoms away. She did another blood test and he was WAYYY low. (like off the charts way low.) -- he was getting most of the same things as when we started.

She wants to run a bunch of other tests as a result. (A shillings test and another test.)

SO short answer yes. Just because the blood serum levels are high, doesn't mean that you don't have a deficiency going on. This is usually due to not enough of other resources like B6, Folic Acid, choline, vitamin C, B-complex, inositol, potassium, sodium and calcium. OR a error in metabolism, like a mutation.

The book - Could it Be B12, An Epidemic of a Misdiagnosis -- really helps in understanding all of this. (on a layman level) ...

I hope this helps - laura :)

>

> Has anyone have very elevated Vitamin B12 levels in plasma that actually went

> down with any intervention?

> There seems to be very little literature on this - I have read somewhere that it

> might be the oxidized form of B12 hence unusable hence the high reading but not

> sure if that is true.

>

Link to comment
Share on other sites

Thanks - that does help.What were some of the classical symptoms of B12 deficiency that you saw? And did you ever test for Homocysteine & Urine Methylmalonic acid ( in Urine OAT) - were they off as well suggesting B12 deficiency? I understand they are also markers of B12 deficiency.To: mb12 valtrex Sent: Sun, February 6, 2011 7:22:07 AMSubject: Re: Elevated Vitamin B12 levels in Plasma

I keep meaning to reply to this post...

YES! When Rob's DAN and I got into it over the B12 nasal spray-- her response (and it was quite fair) that Rob had 'normal' in the high range of B12 serum levels - the nasal spray wasn't necessary.

I argued (and brought documentation) that Rob expressed EVERY sign of a B12 Deficiency. That although the serum levels may be high, it didn't explain why it seemed like a coincidence that he had EVERY symptom. She reluctantly said "we can try it" (which is all I wanted to hear anyway -- and as she explained -- you can't overdose, it's water soluble, and goes out with your urine) -- We got HUGE gains from it.

Now, during that time, I also (thank GOD I took copious notes!) got him a bio-available multi-vitamin, was doing an 'iodine' patch test weekly (and measuring the the time for the patch to disappear), the diet (along with the IGg foods removed)...this was Oct 2009. During one of my visits in Oct 2010, I told Rob's Dr. that he 'burns' up and thru the B12, that what he's getting isn't enough. And I gave her times I noticed along with his symptoms. We decided to try shots.

I gave shots, nasal spray and revitapops and sublinguals to keep the symptoms away. She did another blood test and he was WAYYY low. (like off the charts way low.) -- he was getting most of the same things as when we started.

She wants to run a bunch of other tests as a result. (A shillings test and another test.)

SO short answer yes. Just because the blood serum levels are high, doesn't mean that you don't have a deficiency going on. This is usually due to not enough of other resources like B6, Folic Acid, choline, vitamin C, B-complex, inositol, potassium, sodium and calcium. OR a error in metabolism, like a mutation.

The book - Could it Be B12, An Epidemic of a Misdiagnosis -- really helps in understanding all of this. (on a layman level) ...

I hope this helps - laura :)

>

> Has anyone have very elevated Vitamin B12 levels in plasma that actually went

> down with any intervention?

> There seems to be very little literature on this - I have read somewhere that it

> might be the oxidized form of B12 hence unusable hence the high reading but not

> sure if that is true.

>

Link to comment
Share on other sites

Thanks - that does help.What were some of the classical symptoms of B12 deficiency that you saw? And did you ever test for Homocysteine & Urine Methylmalonic acid ( in Urine OAT) - were they off as well suggesting B12 deficiency? I understand they are also markers of B12 deficiency.To: mb12 valtrex Sent: Sun, February 6, 2011 7:22:07 AMSubject: Re: Elevated Vitamin B12 levels in Plasma

I keep meaning to reply to this post...

YES! When Rob's DAN and I got into it over the B12 nasal spray-- her response (and it was quite fair) that Rob had 'normal' in the high range of B12 serum levels - the nasal spray wasn't necessary.

I argued (and brought documentation) that Rob expressed EVERY sign of a B12 Deficiency. That although the serum levels may be high, it didn't explain why it seemed like a coincidence that he had EVERY symptom. She reluctantly said "we can try it" (which is all I wanted to hear anyway -- and as she explained -- you can't overdose, it's water soluble, and goes out with your urine) -- We got HUGE gains from it.

Now, during that time, I also (thank GOD I took copious notes!) got him a bio-available multi-vitamin, was doing an 'iodine' patch test weekly (and measuring the the time for the patch to disappear), the diet (along with the IGg foods removed)...this was Oct 2009. During one of my visits in Oct 2010, I told Rob's Dr. that he 'burns' up and thru the B12, that what he's getting isn't enough. And I gave her times I noticed along with his symptoms. We decided to try shots.

I gave shots, nasal spray and revitapops and sublinguals to keep the symptoms away. She did another blood test and he was WAYYY low. (like off the charts way low.) -- he was getting most of the same things as when we started.

She wants to run a bunch of other tests as a result. (A shillings test and another test.)

SO short answer yes. Just because the blood serum levels are high, doesn't mean that you don't have a deficiency going on. This is usually due to not enough of other resources like B6, Folic Acid, choline, vitamin C, B-complex, inositol, potassium, sodium and calcium. OR a error in metabolism, like a mutation.

The book - Could it Be B12, An Epidemic of a Misdiagnosis -- really helps in understanding all of this. (on a layman level) ...

I hope this helps - laura :)

>

> Has anyone have very elevated Vitamin B12 levels in plasma that actually went

> down with any intervention?

> There seems to be very little literature on this - I have read somewhere that it

> might be the oxidized form of B12 hence unusable hence the high reading but not

> sure if that is true.

>

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Share on other sites

Those are the tests mentioned in the B12 book; I believe the ones has done. Not sure if she ran them on Rob but I think she ran them for her dad.

 

Thanks - that does help.

What were some of the classical symptoms of B12 deficiency that you saw? And did you ever test for Homocysteine & Urine Methylmalonic acid ( in Urine OAT) - were they off as well suggesting B12 deficiency? I understand they are also markers of B12 deficiency.

To: mb12 valtrex

Sent: Sun, February 6, 2011 7:22:07 AMSubject: Re: Elevated Vitamin B12 levels in Plasma

 

I keep meaning to reply to this post...

YES! When Rob's DAN and I got into it over the B12 nasal spray-- her response (and it was quite fair) that Rob had 'normal' in the high range of B12 serum levels - the nasal spray wasn't necessary.

I argued (and brought documentation) that Rob expressed EVERY sign of a B12 Deficiency. That although the serum levels may be high, it didn't explain why it seemed like a coincidence that he had EVERY symptom. She reluctantly said " we can try it " (which is all I wanted to hear anyway -- and as she explained -- you can't overdose, it's water soluble, and goes out with your urine) -- We got HUGE gains from it.

Now, during that time, I also (thank GOD I took copious notes!) got him a bio-available multi-vitamin, was doing an 'iodine' patch test weekly (and measuring the the time for the patch to disappear), the diet (along with the IGg foods removed)...this was Oct 2009. During one of my visits in Oct 2010, I told Rob's Dr. that he 'burns' up and thru the B12, that what he's getting isn't enough. And I gave her times I noticed along with his symptoms. We decided to try shots.

I gave shots, nasal spray and revitapops and sublinguals to keep the symptoms away. She did another blood test and he was WAYYY low. (like off the charts way low.) -- he was getting most of the same things as when we started.

She wants to run a bunch of other tests as a result. (A shillings test and another test.)

SO short answer yes. Just because the blood serum levels are high, doesn't mean that you don't have a deficiency going on. This is usually due to not enough of other resources like B6, Folic Acid, choline, vitamin C, B-complex, inositol, potassium, sodium and calcium. OR a error in metabolism, like a mutation.

The book - Could it Be B12, An Epidemic of a Misdiagnosis -- really helps in understanding all of this. (on a layman level) ...

I hope this helps - laura :)

>

> Has anyone have very elevated Vitamin B12 levels in plasma that actually went

> down with any intervention?

> There seems to be very little literature on this - I have read somewhere that it

> might be the oxidized form of B12 hence unusable hence the high reading but not

> sure if that is true.

>

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

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Share on other sites

Kay (and Toni too!)

No, I haven't run all of them for Rob yet. He was already in " travel " mode by

the time his DAN and I got to talk about running those tests. Rob has been with

my sister in FL for a series of things she does with him (eye sight and dental

work) -- he is there until March 1.

Some of the symptoms that Rob showed were: tremors, body weakness, loss of

position sense (he had zero spatial ability with his own body, and would run

into things, hard), diminished sense of touch or sensation. (he would hurt

himself, and it didn't seem to bother him at all!) Tingling in arms and legs (he

would get pins and needles to the point of irritation), muscle spasms, vision

changes (loss of), tired but couldn't sleep, spacey (you would ask him to get

you something, and literally within 2 seconds, he was clueless as to what you

wanted.) his eyes would roll (hard to explain..), irrational thoughts and

paranoia, not to mention is abundant gastro issues, and bone deformities.

But Toni is correct - I had them run for my father. He had a stroke and keeps

getting strokes (4th since Sept.) -- and they ran a serum B12 test, but it

didn't explain all the def. symptoms. (I purchased the book for my sister in

law -who is a nurse-, she confirmed these symptoms.) They ran an HCY test which

was elevated -- and rather than give him a shot, they wanted to put him on heart

medications - I was like " GAH! " - I faxed copies of the pages of the book over

to his Dr's office to discuss it, and she just went ahead and ordered shots for

him. (along with folic acid and B6) - They will run another test in a month or

so.

I hope this helps.

:) laura

> > >

> > > Has anyone have very elevated Vitamin B12 levels in plasma that actually

> > went

> > > down with any intervention?

> > > There seems to be very little literature on this - I have read somewhere

> > that it

> > > might be the oxidized form of B12 hence unusable hence the high reading

> > but not

> > > sure if that is true.

> > >

> >

> >

> >

> >

>

>

>

> --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

Link to comment
Share on other sites

Kay (and Toni too!)

No, I haven't run all of them for Rob yet. He was already in " travel " mode by

the time his DAN and I got to talk about running those tests. Rob has been with

my sister in FL for a series of things she does with him (eye sight and dental

work) -- he is there until March 1.

Some of the symptoms that Rob showed were: tremors, body weakness, loss of

position sense (he had zero spatial ability with his own body, and would run

into things, hard), diminished sense of touch or sensation. (he would hurt

himself, and it didn't seem to bother him at all!) Tingling in arms and legs (he

would get pins and needles to the point of irritation), muscle spasms, vision

changes (loss of), tired but couldn't sleep, spacey (you would ask him to get

you something, and literally within 2 seconds, he was clueless as to what you

wanted.) his eyes would roll (hard to explain..), irrational thoughts and

paranoia, not to mention is abundant gastro issues, and bone deformities.

But Toni is correct - I had them run for my father. He had a stroke and keeps

getting strokes (4th since Sept.) -- and they ran a serum B12 test, but it

didn't explain all the def. symptoms. (I purchased the book for my sister in

law -who is a nurse-, she confirmed these symptoms.) They ran an HCY test which

was elevated -- and rather than give him a shot, they wanted to put him on heart

medications - I was like " GAH! " - I faxed copies of the pages of the book over

to his Dr's office to discuss it, and she just went ahead and ordered shots for

him. (along with folic acid and B6) - They will run another test in a month or

so.

I hope this helps.

:) laura

> > >

> > > Has anyone have very elevated Vitamin B12 levels in plasma that actually

> > went

> > > down with any intervention?

> > > There seems to be very little literature on this - I have read somewhere

> > that it

> > > might be the oxidized form of B12 hence unusable hence the high reading

> > but not

> > > sure if that is true.

> > >

> >

> >

> >

> >

>

>

>

> --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

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