Sandy

[Guest guest]

Good luck at your appointment with the neurologist, Sandy. I've been reading

your exchange with about your temples and your scalp. I know I've seen

references to cranial neuropathy as a problem in lupus, but I don't really

know what symptoms it produces. Your neurologist should be able to shed some

light on what could be going on.

Hope you've been feeling good.

----- Original Message -----

From: " O'Malley " <wildcards@...>

< egroups>

Sent: Thursday, April 06, 2000 5:15 PM

Subject: Re: [ ] ~ Temporal Arteritis (TA)

>

> Hi ,

> I most certainly will let you know if I find out anything tomorrow with

the

> neurologist, if this is anything he would deal with. This happens to me

on

> a daily basis - not every minute, but throughout the day that sensation

will

> come on. Mine does not itch - it is more of a very tender sensation

where

> I don't even like to touch that area and once in a while the hairs moving

> or a comb on my scalp is painful. Sure strange and irritating!

> Hugs,

> Sandy

[Guest guest]

I've read your posts, Sandy, but I can't answer everything you asked right

now (I'm leaving soon). I'm glad your physician is taking an interest in

your case. That's a big plus.

Why is he so concerned about the joint involvement? It's very common in

lupus and often the presenting symptom. I'm not saying it's not

uncomfortable for you, it's just that it's hardly unusual in lupus. What is

he looking for? Or does he just want to see it with his own eyes? Just

curious.

I'm sure the neurologist doesn't want to say too much until he gets the test

results so that you won't worry about things that may not even be there. I

am concerned about your eye, too. What did your eye exam in January reveal

(sorry if you already said this and I forgot)? When do you go back for the

latest results?

Thanks for your encouragement about the divorce. I'm glad things went calmly

for you. I think our lawyers are surprised that we are so civilized, too.

Thanks.

I'll write more later about cranial neuropathy and what I found about

temporal arteritis.

Hope you are feeling well today.

----- Original Message -----

From: " O'Malley " <wildcards@...>

< egroups>

Sent: Sunday, April 09, 2000 10:59 AM

Subject: Re: [ ] - RF/lupus & RA - Sandy

>

> Hi ,

> Thanks for your thoughts here regarding my elevated RF. My rheumatologist

> said that he hoped I wasn't *developing* RA in *addition* to the lupus and

> sjorgens. He did make the same statement that you did that the RF can be

> elevated in lupus and other diseases. I do not have enough clinical signs

> for RA, just that my RF is elevated and I have joint swelling and redness

in

> a few joints, which he hasn't seen. However, the next time the joints

swell

> and are inflamed he wants to see me immediately. I feel he is staying on

> top of things for me. In the meantime I am on voltaren for the pain and

> swelling. I sent out a separate post regarding the neurologist

appointment.

>

> Hugs,

> Sandy

[Guest guest]

You are welcome! I am so happy the Remicade is working for you and wish you

continued success with it! I also just want to say that I admire your

attitude throughout all that you have been through. I hope that I can claim

for myself, toward my own illness, the enthusiasm and acceptance you have

come to claim toward your's - and I do think acceptance is the key - I am

not there yet, but am working on it :-)

Good Luck tomorrow and lots of {{{{{{{{Hugs}}}}}}}}}

Sandy

>Thank You Sandy,

>Hugs,

>

>> and other aspiring writers,

>> Thought this might interest you!

>> Hugs,

>> Sandy

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>

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>Our chat room: www.delphi.com/RheumatoidArth1/start

>

[Guest guest]

Thank you Sandy,

(btw, this is an old email that I didn't get out ASAP, but want to answer all

the ones I need to answer. Today is my catch up day.)

I think you have accepted a lot of your illness already. You are here with

everyone and doing what you can to help yourself. That is a big step all by

itself. I think, IMO, that the ones in denial don't go to the doc, don't get

treatment, etc. But we, the whole group here, is researching and helping one

another and cheering each other on. If you didn't accept your Lupus (AI

disease) at least partly, you probably wouldn't be here. Or be going to the

doc. Your being here shows that you care about your disease and making

yourself as well as possible. Keep it up! I am in your corner all the way.

Love,

In a message dated 4/19/00 7:00:02 PM Pacific Daylight Time,

wildcards@... writes:

> You are welcome! I am so happy the Remicade is working for you and wish you

> continued success with it! I also just want to say that I admire your

> attitude throughout all that you have been through. I hope that I can

claim

> for myself, toward my own illness, the enthusiasm and acceptance you have

> come to claim toward your's - and I do think acceptance is the key - I am

> not there yet, but am working on it :-)

> Good Luck tomorrow and lots of {{{{{{{{Hugs}}}}}}}}}

> Sandy

[Guest guest]

Glad you liked them, and I hope your sister has a good chuckle or two. I

have to confess that they made me laugh a little too hard.

Hope you are feeling good, Sandy.

----- Original Message -----

From: " O'Malley " <wildcards@...>

< egroups>

Sent: Monday, May 22, 2000 5:59 PM

Subject: Re: [ ]/Woman's Revenge - OT - Slightly Crude Humor

> Really like these !! Am forwarding them on to my sis - she will love

> them!

> Hugs,

> Sandy

>

>

> >Woman's Revenge

[Guest guest]

Great to hear from you, Sandy! It's been so long that I was starting to

think that you weren't coming back. What a relief that you are posting

again. You sound good. How are you doing?

----- Original Message -----

From: " Sandy & Ron " <wildcards@...>

< egroups>

Sent: Friday, September 08, 2000 8:52 PM

Subject: Re: [ ] Where did it all begin?

> Hi everyone! Long time, no post! Alot of good discussions going on here

> lately! Welcome to all the newbies!

>

> In looking back in my baby book, my mother had many entries of strep and

> tonsilitis in a short period of time right around the age of 15 -18

months.

> At about the age of 6 I remember getting real sick and ended up in the

> hospital for about a week - I had a very high fever was all my mother ever

> said. As a teen I was always getting sick with every little thing.

Started

> experiencing seizures then too - was put on antiseizure meds. and from

that

> point on began a downhill spiral of oddball things going haywire in my

body.

> Many tests and doctors from my teen years forward always pointed fingers

and

> asking if I ever had rheumatic fever as a child (my mother always denied

it

> or said she didn't know). I suspect I did. Three years ago I went

through

> the death of my father and the breakup of my marriage (and subsequent

> divorce) both at the same time. I also experienced many more symptoms at

> that point and have since been diagnosed with SLE and Sjogren's. SO, I

> think my early childhood illnesses definitely contributed to my diseases

as

> well as the 2 big stressors that happened in my life. I don't think they

> necessarily caused them, as I think my genetic makeup was there, just that

> they triggered them.

> Hugs & Love,

> Sandy

> ~~ " Even if you're on the right track, you'll get run over if you just sit

> there. " - Will ~~

>

> <<Out of curiosity, how many people on the list can trace the beginnings

of

> their health problems after an infection? Flu? Surgical procedure?

a>>

[Guest guest]

Hey, Sandy!

Very nice that you've been lurking and could jump back in now. So sorry to

hear that you haven't been doing so well. I was hoping that you were just

very busy, not busy being sick.

Have you ever seen a nephrologist? Not to make you anxious, but your

symptoms certainly sound kidney related.

Glad to hear that your fatigue improved at that your spirits are good.

That's coming through in your posts. You sound positive and energetic.

I don't have much to report. The divorce is dragging, but things are calm.

In July Alan came over and asked me to reconcile. That was pretty stressful

because I do not want to. On the other hand, I did not want to hurt him any

more and didn't want to immediately say, " NO WAY! " I didn't give him any

false hope either though. I've told him since then that I don't want to get

back together. I think he took it pretty well, and our relationship is

cordial now. I'm feeling guilty, but I probably always will to some degree.

My health is OK, nothing dramatic to say about it except for a terrible

episode of oral and nasal ulcers in late April and the beginning of May.

Nobody ever really figured that one out, but it's adding to the lupus or

lupus overlap syndrome suspicions.

Hope your checkup goes well next week. Be sure to let us know what is going

on.

----- Original Message -----

From: " Sandy & Ron " <wildcards@...>

< egroups>

Sent: Friday, September 08, 2000 11:21 PM

Subject: Re: [ ]

> Hi !

> Thanks for the welcome back! It is so good to be back here! I have been

> here all along, just not posting, mainly because I was not doing too good

> this summer. I had to cancel out on the July 4th function that Rainey Sue

> and some of us had arranged, which didn't work out anyway.

>

> I had quite a bit of chest pain that was getting much too frequent and

> scary, so I took myself in to my regular doctor. He put me on ToprolXL

> 50mg, which is helping out quite a bit. He thinks my mitral valve

prolapse

> with all the vegatations on it, are possibly the cause of the pains. I go

> back on a check up next Thursday to go over the chest pains, my thyroid

> (yearly thing), and the swelling I have been having - don't like this one

> either - I have overall swelling/weight gain, especially from the thighs

> down - it feels like alot of fluid retention, yet I am peeing alot, even

up

> during the night several times. I drink alot of water so, I know it isn't

> from not drinking enough. Maybe I am drinking too much??? So, I am

hoping

> for some answers at my visit. I am also getting my referrals to my rheumy

> again, as my rheumy wants to check my kidneys again.

>

> I went through a real long period of exhaustive fatigue, which seems to

have

> lifted and surprisingly I feel really good mentally and more energetic in

> spite of what is going on. Anyway, really good to be back among you all

> again!

>

> How goes it with you? Your divorce coming along okay? How are you

feeling

> these days? I don't see much about how you are doing in that aspect.

> Hugs & Love,

> Sandy

[Guest guest]

Hello Sandy...

I'm so sorry that you had to put your kitty to sleep. I also have

cats..one is about 13, the others 5 and 4. I would hate losing any

of them. I also have a poodle that is 16 yrs old. He has arthritis

just like his mom.

It's very traumatic to lose your pet. We love them so much and

there are so many of us who have dealt with it or are going to

eventually. It's so hard to let them go. But I know your kitty is

at the Rainbows Bridge with the other pets.

We are not only here for support about your r/a but also support

emotionally. Talk about her if you want, share your story about

kitty. Getting help emotionally is just as important as getting meds

for our r/a.

Stress and a traumatic events can cause a flare. I know that the

drs were trying to decide if my r/a manifested itself because r/a

runs on my mom's side of the family or if it was helped along

because my mom passed when I was 32. Tough call...because that is

when I first noticed things not quite right.

Hang in there...cry cry cry and get it out.

I have a friend who's dogs have passed and she went to

www.rainbowsbridge.com and started a little memorial where you can

pick out the headstone for your kitty/doggy and leave flowers, give

them toys, etc. It just depends on what you'd like to do. I don't

think I would do that, but people deal with loss differently.

Talk if you need to..

Hugs..a Ohio

[Guest guest]

Yes, Sandy, do give us another chance. Everybody might have been

extremely busy at the time and thought that somebody else would respond

to you. I belong to so many groups that I usually have time just to

read all my email but little time to respond to it. I'm sorry you

didn't feel welcome.

Sue

On Saturday, March 4, 2006, at 05:01 PM, June Dixon wrote:

> Sandy, I am so sorry that you felt ignored by the group. It was not

> intentional or personal. I can't say with any certainty what happened

> but please accept my apology and give us another chance.

>

[Guest guest]

Thanks Sue...sure glad someone said to give you guys another

chance...it does seem like a very friendly group. =)

Sandy

>

> > Sandy, I am so sorry that you felt ignored by the group. It was

not

> > intentional or personal. I can't say with any certainty what

happened

> > but please accept my apology and give us another chance.

> >

>

[Guest guest]

Sandy~ thanx for sharing. How long did you have your saline implants in. Are your symptoms improving. Sandy Verticelli <dusty.com@...> wrote: , This is the most scariest road I have ever traveled on I just thank God every day that I awaken to a new day If any man does not like my one deformed boob or my appearance To bad.... I am my own American Idle now... a rare gem Did I cope well with the aftermath Trust me I had my moments My knees are very swolle thats where the crawly feeling was I cannot bend down to get into a bathtub I still have trouble dressing myself I do not want my son to ever see mom in a state of depression over a set of boobs Looking in the mirror is not easy these days My son calls me fatty instead of mom My son wants that new $600 playstation 3 hmmm...let me ponder that thought awhile When we were kids life was simple Mr Potatoe Head .... you wanted my list of symptoms so here they are: My Symptoms Before implants 118 lbs After Implants 178 lbs All of my tests came up negative I never did get a platinum test Should I get one, is it a blood test or what ?? Could Not play ball with my 6 year old son Could Not make meals only tv dinners Could Not bend my legs at full range Could Not Turn My Neck At All I was in agony day and night Rash that comes and goes Crawly feeling in my joints Could not brush my hair Could not dress myself Immune System Down Head Felt Like A Brick

Memory not so good Shallow Breathing Barely could walk Bowel syndrome Fibromialga Major Fatigue Weight Gain Panic Attacks Numbness Night Sweats Muscle Pain Joint Pain Very Weak