Guest guest Posted April 8, 2001 Report Share Posted April 8, 2001 Maxime, Lamar here, Some types of CMT are life threatening. The most common life threatening symptom that some develop is phrenic nerve involvement which is being found to be more common than once thought. The ones with it develop respiratory problems and potential respiratory failure. Some of the more rare types can cause death at an early age. The more common types are not considered to be life threatening. ----- Original Message ----- From: Maxime Rousseau Sent: Sunday, April 08, 2001 12:16 AM Subject: Re: [] New Member Hi there!!! Life threatening??? First time I hear this one... Where did you heard this info?? The only life threat that I see is from losing balance and falling a 10 floor building or making yourself bleed to death from a minor cut that you don't feel :-) but you just have to take precaution, like anybody in real life! Has any of you here heard of a direct life threat caused by CMT? I'm curious!! Maxime p.s: welcome to the group!! >From: " DeShea Young " <dpy827@...> >Reply- > >Subject: [] New Member >Date: Sat, 07 Apr 2001 21:58:39 -0400 > >Hi, my name is Dee. I am 25 and found out I had CMT when I was about 9 >years >old. I inherited it from my fathers side of the family ( my parents >divorced when I was around 6 mos. old). They act like it doesn't exist and >never offered any information to my mom. Later (when I'm about 20) I find >out that several of my distant relatives out of town also have it. I grew >up mostly trying to hide my CMT from everyone because I hate being >different >from the " normal " people. My hands were the first thing to be affected >with >me. This was hard for me during H.S. because others are so judgemental ( >and >it was obvious when I couldn't point or clap like everyone else). My legs >and feet started after high school. And the worst thing to me is my >balance- it is horrible! I've coped with the rest but this is really >bothersome. I have a 22 mo. old son and have been married now for 5 years. >My husband is wonderful about my CMT. We are currently thinking about >another child but are concerned about the CMT being passed on. I grew up >being told by Dr.'s that CMT only affected the extremities and wasn't too >concerned about having a child. I figured I managed O.K., and was happy to >have been given life. I didn't think it could be any worse than what mine >was. Now, I have heard from the internet that other parts of your body can >be affected, and possibly be life threatening. If any one has info. on >this >I would greatly appreciate it! >Thanks, >Dee >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2001 Report Share Posted April 8, 2001 Welcome Dee..............me and my wife just found out that she was pregnent ( a month ago ), we was thinking the same thing.(being passed on to the baby)....but we said .....we will take the chance......I am having a good life ( not that hurt yet ) and so will my kids........they just have to do something different ;-) Dennis ----- Original Message ----- From: " DeShea Young " <dpy827@...> < > Sent: Sunday, April 08, 2001 3:58 AM Subject: [] New Member > Hi, my name is Dee. I am 25 and found out I had CMT when I was about 9 years > old. I inherited it from my fathers side of the family ( my parents > divorced when I was around 6 mos. old). They act like it doesn't exist and > never offered any information to my mom. Later (when I'm about 20) I find > out that several of my distant relatives out of town also have it. I grew > up mostly trying to hide my CMT from everyone because I hate being different > from the " normal " people. My hands were the first thing to be affected with > me. This was hard for me during H.S. because others are so judgemental and > it was obvious when I couldn't point or clap like everyone else). My legs > and feet started after high school. And the worst thing to me is my > balance- it is horrible! I've coped with the rest but this is really > bothersome. I have a 22 mo. old son and have been married now for 5 years. > My husband is wonderful about my CMT. We are currently thinking about > another child but are concerned about the CMT being passed on. I grew up > being told by Dr.'s that CMT only affected the extremities and wasn't too > concerned about having a child. I figured I managed O.K., and was happy to > have been given life. I didn't think it could be any worse than what mine > was. Now, I have heard from the internet that other parts of your body can > be affected, and possibly be life threatening. If any one has info. on this > I would greatly appreciate it! > Thanks, > Dee > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 -----Original Message----- From: man0310@... <man0310@...> < > Date: Friday, April 27, 2001 6:46 PM Subject: [] New member >>>>>>>Hi Tina welcome! What kind of problems are you having with your eyes? What symptoms of CMT do you experience? Weekends are sometimes a bit slow on the list. I'm sure you will get lots of welcomes and others who have problems with their eyes, have you checked our archives yet? Put eyes in the search area and I'm sure you'll find some posts about that subject, ~>Becky M. Hello, my name is Tina White. I have been having problems with my eyes. I like to know if anyone else has this problem. Please let me know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 In a message dated 4/27/2001 7:53:22 PM Central Daylight Time, rmax@... writes: > . I have been having problems > with my eyes. I like to know if anyone else has this problem. Please let me > know. > Hi Tina, glad to have you aboard. What kind of trouble do you have? I have found that my eyes don't work as well towards the end of the day as they do in the morning. I wear contacts----one for distance in my right eye and reading in the left. Several years ago an opthamologist told me that this is fairly " normal " for CMT patients. He was the first doctor to ever tell me that. Turns out that he had relatives and other patients with CMT. Small world. C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 Hi Tina, Welcome. What sort of problems are you having with your eyes? As Becky stated, it might be helpful if you go to the archives and type in eyes. I personally do not have any eye problems related to CMT; I do wear glasses though. Again, welcome and hopefully you will find some info to help you. ----- Original Message ----- From: <man0310@...> < > Sent: Friday, April 27, 2001 6:48 PM Subject: [] New member > Hello, my name is Tina White. I have been having problems > with my eyes. I like to know if anyone else has this problem. Please let me know. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 Hi Tina, When I am feeling particularly bad with CMT I find my eyes are affect in respect to my ability to focus properly on things even when I am wearing my glasses which I require for distance. P > Hello, my name is Tina White. I have been having problems > with my eyes. I like to know if anyone else has this problem. Please let me know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2001 Report Share Posted April 28, 2001 Hello Tina, Owen here, Welcome to the list. I'm relatively new here but this is a good group. We share our problems and triumphs. What we have experienced and what we are experiencing. What we have learned and what we are learning. What sort of problem are you having with your eyes? Happy Trails Owen man0310@... wrote: > Hello, my name is Tina White. I have been having problems > with my eyes. I like to know if anyone else has this problem. Please > let me know. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2001 Report Share Posted June 23, 2001 > Hi All! > > I am new to the group and I am excited to proceed with the program. > I have tried everything under the sun and only felt my best doing a > one week soup fast (AKA Aspen Wellness) then followed with small > meals (vegetarian). So when I saw the scientific frontiers program I > thought I found it. I was futhered assured after reading B.Sears Soy > Zone. that this is a good program to follow... > > I will probably ask many questions at first so please bear with me. > > I Look forward to discussing your progess & ideas with you all. > Joe > Colorado > > PS RE: coffee thread, caffine doesnt shorten life span, but I heard > it causes the body to lose much of it Vit's & min's taken in that > day... > Joe :-) Welcome Joe. Is your last name Colorado or are you from Colorado? (which is completely off-topic of course; but luckily this is not the main list). Anyway, where did you hear that drinking coffee causes the body to lose much of its V's and M's? Although we're not the sticklers of the main group for the detailed sources of info, we need SOME hard evidence before we throw in the towel on coffee. If true, think of all the people who replied to my coffee post who are upset at the thought of cutting back (and there are probably a lot more " lurker " coffee drinkers out there). Seriously, coffee has been debated on both lists now and no one has come up with anything as serious as that, so where have you heard/read it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 > Welcome Joe. Is your last name Colorado or are you from Colorado? which is completely off-topic of course; but luckily this is not The main list). Anyway, where did you hear that drinking coffee causes the body to lose much of its V's and M's? Although we're not the sticklers of the main group for the detailed sources of info, we need SOME hard evidence before we throw in the towel on coffee. If true, think of all the people who replied to my coffee post who are upset at the thought of cutting back (and there are probably a lot more " lurker " coffee drinkers out there). > Seriously, coffee has been debated on both lists now and no one has come up with anything as serious as that, so where have you heard/read it? Hi First, that was in Colorado, not my last name. - However that would be a pretty sweet name. :-) Second, with regard to the coffee issue, I think you actually had listed it in an earlier post that I spotted today. The issue is the caffine, and that it leaches calcium from the body. I unfortunately do not remeber the source, so I appologize for not backing up my data. Finally, I myself love coffee!!! But I made the switch to decafe. What I discovered is what I truly liked in the morning was a hot beverage not the caffine lift. I figured that anything that gives you a lift in the morning, artificially, can't be good for you. So by not drinking it, I've got nothing to lose. In fact I love green Tea(extremly low caffine) and other caffine-free teas as well. By the way here is a little test for all you cafinated coffee drinkers out there. Try a coffee fast for 5 straight days. This means no caffine what so ever. No sodas, no coffee, no chocalate etc. By day 2 of the fast you'll wish you were dead (as well as many of you friends & loved ones). When this has past you will feel totally different by day three or four. You'll notice that your energy level throughout the day will be level, your head will feel clear. Then as an additional experiment, go and have a nice strong cup of coffee after about a week and notice how you feel during and after. I almost can guaranty that you'll go back to a caffine-free life style. Joe in CO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 Hi Joe, I don't drink much coffee, but I love my green tea too...problem is it (green tea) has as much caffienne as regular tea (40 mg per serving) so don't think you are getting extreamely low caffine with green tea. (Check the label). Sorry to bear bad news, Thanks, Todd R. BarberChairman, Reef Ball FoundationCEO, Reef Ball Development Group, Ltd.6916 22nd Street WestBradenton, FL 34207941-752-0169 (Office)941-752-0338 (Direct Line)941-752-1033 Fax941-720-7549 Cellreefball@...http://www.artificialreefs.orghttp://www.reefball.comhttp://www.reefball.org ----- Original Message ----- From: Joe Sent: Monday, June 25, 2001 12:04 PM Subject: [ ] Re: New Member > Welcome Joe.Is your last name Colorado or are you from Colorado? which is completely off-topic of course; but luckily this is not The main list). Anyway, where did you hear that drinking coffee causes the body to lose much of its V's and M's? Although we're not the sticklers of the main group for the detailed sources of info, we need SOME hard evidence before we throw in the towel on coffee. If true, think of all the people who replied to my coffee post who are upset at the thought of cutting back (and there are probably a lot more "lurker" coffee drinkers out there).> Seriously, coffee has been debated on both lists now and no one has come up with anything as serious as that, so where have you heard/read it?HiFirst, that was in Colorado, not my last name. - However that would be a pretty sweet name. :-)Second, with regard to the coffee issue, I think you actually had listed it in an earlier post that I spotted today. The issue is the caffine, and that it leaches calcium from the body. I unfortunately do not remeber the source, so I appologize for not backing up my data.Finally, I myself love coffee!!! But I made the switch to decafe. What I discovered is what I truly liked in the morning was a hot beverage not the caffine lift. I figured that anything that gives you a lift in the morning, artificially, can't be good for you.So by not drinking it, I've got nothing to lose. In fact I love green Tea(extremly low caffine) and other caffine-free teas as well.By the way here is a little test for all you cafinated coffee drinkers out there. Try a coffee fast for 5 straight days. This means no caffine what so ever. No sodas, no coffee, no chocalate etc. By day 2 of the fast you'll wish you were dead (as well as many of you friends & loved ones). When this has past you will feel totally different by day three or four. You'll notice that your energy level throughout the day will be level, your head will feel clear.Then as an additional experiment, go and have a nice strong cup of coffee after about a week and notice how you feel during and after. I almost can guaranty that you'll go back to a caffine-free life style.Joe in CO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2001 Report Share Posted July 23, 2001 -----Original Message----- From: jimnas2000@... <jimnas2000@...> < > Date: Monday, July 23, 2001 11:11 AM Subject: [] new member not bad but feelin' it >>>>>>Did I miss something here? This is in regards to? Guess I'm just nosey, want to know what's not bad and your feeling what? LOL, ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2001 Report Share Posted December 27, 2001 Do you have a guesstimate of how many calories you average per day? ----- Original Message ----- From: Adler Sent: Thursday, December 27, 2001 1:52 PM Subject: [ ] new member I sent this to the other list and then realized this might be the better place for my note: Hi everyone, I have been familiar with this diet for many years but have never pursued it partially because it is not dramatically different than my typical habits..I am 34, 5' 7.5 " and weigh under 140..My diet (in calories and quality although I eat less frequent meals of higher calorie foods typically) tends towards the same foods in the CRON diet but with less strict discipline...But I realize my diet is not restrictive enough to generate the CRON benefits..Since I am already thin (fat is well under 10% i imagine although I don't know exactly), should I do something differently beginning the diet? If I were to attempt to lose a lot from here I would be pretty thin...Can you all point me in some direction to get started or do I need special direction given that I am already fairly thin? Thanks in advance..Expect to hear more from me... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 HI PJ, Thank you so much for writing! Welcome to our group....we are always glad to hear from anyone who has concerns about their implants, and your concerns are very valid ones. I can't imagine going through the horror of cancer, only to have to then deal with the nightmare of breast implants. I am so sorry. I wanted to ask you, after your most recent mammogram why was it recommended that your saline implants come out? And you also mentioned that this was your third set of salines--what happened with the first two? Gosh, after all you have gone through with silicone gel and all the salines, I can completely understand your desire to be done with these stupid things! I know this is a difficult situation to be in, and I understand your feeling sorry for yourself. No one should have to go through this, but we care and we are here for you. Please let us know how we can help you! Do you have a plastic surgeon you are confident in who can remove your implants for good and not give you a hard time about it? After all, it IS COMPLETELY your choice. Hugs, Patty ----- Original Message ----- From: ronpatgordi4 Sent: Wednesday, September 11, 2002 7:22 AM Subject: NEW MEMBER Hi,I am new at this. I didn't think I would ever figure out how to get onto this site.I just went to ANOTHER surgeon 2 weeks ago. After a mamogram, I wastold my saline implants need to come out.This is the third set of saline implants after the rupture of silicone ones. It took me 3 years to find a Dr. who would take the ruptured ones out!!The Dr. that put them out said nothing was wrong, it was all in my head!! (Now it is all in my body!)I had a double masectomy in 1986. Naturally, I was told I need never to worry again about my breasts. Now I am at the point of making the decision of no more implants or do I do it again? That is what the Dr. wants to know. To me it is a no brainer, they are coming out for good!! I just have to decide when. I really don't know why I am writing, I just feel sorry for myself I guess!!Thanks for listening!! PJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 I am glad you finally found us. I know this group can be a pain sometimes. I am on my way to take a nap cause I home with a cold right now but I wanted to say hi to you and to welcome you to the group. we have all been faced with the tough decisions to remove implants, yours sounds like it is even tougher than some of us with the fact that you had cancer too. I do know women like you that have had mastectomies and also implants and had them removed and went on to heal and lead normal lives, I believe we have some members on this site that have been through this as well. I hope that you will stay here and let us help you and support you. You can get better without implants, with more implants, it can be tough, and maybe even impossible, it is your choice and if you don't have a good enough surgeon you might want to consider traveling, I would highly recommend that you talk to an expert like Dr Feng about the options you may have. As a cancer patient I know that you have more things to consider. Try to check out her website. She has some photos up on the site of women with mastectomies and reconstruction that would be worth looking at and looking into. I can also say that she is a great PS and very experienced. It cannot hurt to call and talk to them about what they might be able to do for reconstruction without implants. anyhow her site is www.drfeng.com. I am happy to tell you anything else that you might want to know about her or any other questions that I can answer. Take care and keep on posting. Hugs ----- Original Message ----- From: " ronpatgordi4 " <ronpat@...> < > Sent: Wednesday, September 11, 2002 8:22 AM Subject: NEW MEMBER > Hi, > I am new at this. I didn't think I would ever figure out how to get > onto this site. > I just went to ANOTHER surgeon 2 weeks ago. After a mamogram, I was > told my saline implants need to come out. > This is the third set of saline implants after the rupture of > silicone ones. It took me 3 years to find a Dr. who would take the > ruptured ones out!! > The Dr. that put them out said nothing was wrong, it was all in my > head!! (Now it is all in my body!) > I had a double masectomy in 1986. Naturally, I was told I need never > to worry again about my breasts. Now I am at the point of making the > decision of no more implants or do I do it again? That is what the > Dr. wants to know. To me it is a no brainer, they are coming out for > good!! I just have to decide when. > I really don't know why I am writing, I just feel sorry for myself I > guess!! > Thanks for listening!! PJ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 Hi everyone, > As I receive since several days the messages of LDN, I'd like to introduce > myself : > Willy, (from Belgium), 62 years;. PD (Parkinson Desease) since about six > years (medical diagnose), but presumable two years longer. Going worse the > last year. > I am member of several websites of PD in Europe and in contact with IPA > (international police association) members (who have PD) all over the world. > I'd like to contact anyone who has also PD > w i l l y > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Liz, I do some shopping at Whole Foods. If there’s one nearby, they have quite a few gluten free foods. Otherwise, I order my food from the web. www.glutenfreedelights.com -- delivers fresh made baked goods to your home, but they have to be kept frozen www.authenticfoods.com – has the flours you need as well as other foods that are shelf stable www.glutenfreepantry.com – has mixes, flours, pasta, etc. Also has quick meals to microwave. Those 3 websites are the best resources I’ve found for gluten free products that I can’t get locally. Kathy -----Original Message----- From: Liz [mailto:lizard79ca@...] Sent: Thursday, August 05, 2004 9:51 AM Subject: [ ] New Member Hello all, My sister was diagnosed with Celiac last week and my mom and I are having a hard time finding places to shop at for her food. She is 21 years old but she also has Downs Snydrome. We are trying to keep as much food as she likes included in her new diet but have found that it is hard. We live in San Leandro and aren't too sure where to shop and what products are good. So far, we shop at Trader Joe's and a place in Livermore we have found called Van's Health Foods. Does anyone know where else we can shop. We need help!! Thanks, Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Persian, Essiac both internal and external.. plus castor oil packs SuziPersian <persian13@...> wrote: HiI was chatting on the phone today to a member of our animal rights group and shecannot come to our next event as she is having an op for a small breastcancer tumour removal. I told her about this group and have added her so expectto hear from her soon. I was trying to discourage her from Tamoxifen (sp?) which the docs might tryto put her on and also radiation, so please, let's help her with somenatural healing!regardsPersian-- "We have enslaved the rest of the animal creationand have treated our distant cousins in fur and feather so badly that,beyond doubt, if they were able to formulate a religion, they woulddepict the devil in human form" - Ralph Inge"The human body has no more need for cows' milk than it does for dogs' milk, horses' milk or giraffes' milk." ~ Klapper, M.D.Only when the last tree has diedand the last river has been poisonedand the last fish has been caughtwill we realise we cannot eat money. - Cree Indian saying Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 I believe there is a relationship with this.due to the sinus passages. How is your diet, eat, drink, do you smoke/drink, take any meds, any other problems? Do you take any herbs at all? vitamins? SuziDonna Chagnon <donnachagnon@...> wrote: I’m a new member. I’ve been reading all of your email with great interest (wow – this group has a lot of mail!) I have been having an issue with my eyes for about 4 years now and my phyisican and I can’t seem to nail down the problem. I’m hoping that someone here might be able to offer some ideas or new avenues for us to research. What happens is that I will suddenly have a hematoma on my eye ball. It gets red . . . some of you may have seen a person in a bad accident or someone who had been in a fight and it looks as though they have blood on their eye. We thought we had nailed the culprit down to high blood pressure but the last time it happened (3 weeks ago) my BP was 122/76. It happened again two days ago. I always seem to have nasal mucus a few days before the hematoma happens and there is always blood in the mucus. Any ideas or thoughts from anyone here? BT, I am going to try the 3 day juice fast in a couple of weeks. I took the suggestion to check with people on freecycle and a person had one. - Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 If they haven't, have the doc scope both nasal passages to make sure there are no growths. A cat scan may be in order as well. I would hate to give advice before I knew for sure what you were dealing with. Janet ----- Original Message ----- From: Donna Chagnon health Sent: Friday, March 04, 2005 4:06 AM Subject: new member I’m a new member. I’ve been reading all of your email with great interest (wow – this group has a lot of mail!) I have been having an issue with my eyes for about 4 years now and my phyisican and I can’t seem to nail down the problem. I’m hoping that someone here might be able to offer some ideas or new avenues for us to research. What happens is that I will suddenly have a hematoma on my eye ball. It gets red . . . some of you may have seen a person in a bad accident or someone who had been in a fight and it looks as though they have blood on their eye. We thought we had nailed the culprit down to high blood pressure but the last time it happened (3 weeks ago) my BP was 122/76. It happened again two days ago. I always seem to have nasal mucus a few days before the hematoma happens and there is always blood in the mucus. Any ideas or thoughts from anyone here? BT, I am going to try the 3 day juice fast in a couple of weeks. I took the suggestion to check with people on freecycle and a person had one. - Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 I kind of agree with Janet's thoughts. The eye sits around and over so many of the sinus caveties; if there were a hole in one of them, this could be affecting your eye. A good example is the tear duct, it leads down into your throat just like the nasal passage and sinuses, yet it sits there right in front of your eye. I dont love exrays and such, but it might be worth having them scoped like she said or an ultra sound. Sylvia > If they haven't, have the doc scope both nasal passages to make sure there are no growths. A cat scan may be in order as well. I would hate to give advice before I knew for sure what you were dealing with. > > Janet > ----- Original Message ----- > From: Donna Chagnon > health > Sent: Friday, March 04, 2005 4:06 AM > Subject: new member > > > I'm a new member. I've been reading all of your email with great interest (wow - this group has a lot of mail!) > > > > I have been having an issue with my eyes for about 4 years now and my phyisican and I can't seem to nail down the problem. I'm hoping that someone here might be able to offer some ideas or new avenues for us to research. > > > > What happens is that I will suddenly have a hematoma on my eye ball. It gets red . . . some of you may have seen a person in a bad accident or someone who had been in a fight and it looks as though they have blood on their eye. We thought we had nailed the culprit down to high blood pressure but the last time it happened (3 weeks ago) my BP was 122/76. It happened again two days ago. I always seem to have nasal mucus a few days before the hematoma happens and there is always blood in the mucus. Any ideas or thoughts from anyone here? > > > > BT, I am going to try the 3 day juice fast in a couple of weeks. I took the suggestion to check with people on freecycle and a person had one. > > > > - Donna > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 I saw my physician today - well, actually the ARNP for follow up re my " red eye " issue. We checked my blood pressure which was well within range. I suggested to her the possibility that the red eye could be related to a sinus problem. You could see the wheels turning in her brain before she said, " that's certainly a possibility. " I spoke of the netipot . . . she didn't have a clue as to what I was referring to. She suggested a saline solution/nasal spray for me which I will try - at least until I get get my own netipot. BTW, she also suggested things like sudafed, flonase, etc. I immediately nixed the idea of sudafed. Anything like that makes me sleepy and any cold medications such as Nyquil, Robitusin, etc. cause me to have violent nightmares - though no one seems to know why. Anyway, I wanted to thank those who offered advice and those who showed concern. I certainly appreciate it! I've been reading with great interest all of the posts. I do need to change my diet to get healthier. About 3 years ago I was diagnosed with Type-II Diabetes and I did really well for a while watching my carb intake. Then I found out the hard way what refined sugar does to my body (and mind) so I nixed all refined sugar from my diet and started to shop (and eat) from the perimeter of the store (produce, meats [mostly chicken & turkey] and dairy). I ended up losing almost 40 pounds! Woohooo! When my mother passed away in April 2004 my eating plan went out the window. I'm a stress eater and so since my mother's death I have put back on 20 pounds. I really am not one who enjoys making meals at the end of the day and I rarely have time to. By the time I get home from my day job and finish up some night jobs (and errands) it is usually 8 o'clock or so by the time I get home. I'm thinking that perhaps a raw food diet may be the thing for me - especially given my lifestyle. I would love to learn more about it. Of course, convincing my fiance not to have meat & potatoes on his plate may be my next huge battle. :-) Donna > > If they haven't, have the doc scope both nasal passages to make > sure there are no growths. A cat scan may be in order as well. I > would hate to give advice before I knew for sure what you were > dealing with. > > > > Janet > > ----- Original Message ----- > > From: Donna Chagnon > > health > > Sent: Friday, March 04, 2005 4:06 AM > > Subject: new member > > > > > > I'm a new member. I've been reading all of your email with > great interest (wow - this group has a lot of mail!) > > > > > > > > I have been having an issue with my eyes for about 4 years now > and my phyisican and I can't seem to nail down the problem. I'm > hoping that someone here might be able to offer some ideas or new > avenues for us to research. > > > > > > > > What happens is that I will suddenly have a hematoma on my eye > ball. It gets red . . . some of you may have seen a person in a bad > accident or someone who had been in a fight and it looks as though > they have blood on their eye. We thought we had nailed the culprit > down to high blood pressure but the last time it happened (3 weeks > ago) my BP was 122/76. It happened again two days ago. I always > seem to have nasal mucus a few days before the hematoma happens and > there is always blood in the mucus. Any ideas or thoughts from > anyone here? > > > > > > > > BT, I am going to try the 3 day juice fast in a couple of > weeks. I took the suggestion to check with people on freecycle and > a person had one. > > > > > > > > - Donna > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 I saw my physician today - well, actually the ARNP for follow up re my " red eye " issue. We checked my blood pressure which was well within range. I suggested to her the possibility that the red eye could be related to a sinus problem. You could see the wheels turning in her brain before she said, " that's certainly a possibility. " I spoke of the netipot . . . she didn't have a clue as to what I was referring to. She suggested a saline solution/nasal spray for me which I will try - at least until I get get my own netipot. BTW, she also suggested things like sudafed, flonase, etc. I immediately nixed the idea of sudafed. Anything like that makes me sleepy and any cold medications such as Nyquil, Robitusin, etc. cause me to have violent nightmares - though no one seems to know why. Anyway, I wanted to thank those who offered advice and those who showed concern. I certainly appreciate it! I've been reading with great interest all of the posts. I do need to change my diet to get healthier. About 3 years ago I was diagnosed with Type-II Diabetes and I did really well for a while watching my carb intake. Then I found out the hard way what refined sugar does to my body (and mind) so I nixed all refined sugar from my diet and started to shop (and eat) from the perimeter of the store (produce, meats [mostly chicken & turkey] and dairy). I ended up losing almost 40 pounds! Woohooo! When my mother passed away in April 2004 my eating plan went out the window. I'm a stress eater and so since my mother's death I have put back on 20 pounds. I really am not one who enjoys making meals at the end of the day and I rarely have time to. By the time I get home from my day job and finish up some night jobs (and errands) it is usually 8 o'clock or so by the time I get home. I'm thinking that perhaps a raw food diet may be the thing for me - especially given my lifestyle. I would love to learn more about it. Of course, convincing my fiance not to have meat & potatoes on his plate may be my next huge battle. :-) Donna > > If they haven't, have the doc scope both nasal passages to make > sure there are no growths. A cat scan may be in order as well. I > would hate to give advice before I knew for sure what you were > dealing with. > > > > Janet > > ----- Original Message ----- > > From: Donna Chagnon > > health > > Sent: Friday, March 04, 2005 4:06 AM > > Subject: new member > > > > > > I'm a new member. I've been reading all of your email with > great interest (wow - this group has a lot of mail!) > > > > > > > > I have been having an issue with my eyes for about 4 years now > and my phyisican and I can't seem to nail down the problem. I'm > hoping that someone here might be able to offer some ideas or new > avenues for us to research. > > > > > > > > What happens is that I will suddenly have a hematoma on my eye > ball. It gets red . . . some of you may have seen a person in a bad > accident or someone who had been in a fight and it looks as though > they have blood on their eye. We thought we had nailed the culprit > down to high blood pressure but the last time it happened (3 weeks > ago) my BP was 122/76. It happened again two days ago. I always > seem to have nasal mucus a few days before the hematoma happens and > there is always blood in the mucus. Any ideas or thoughts from > anyone here? > > > > > > > > BT, I am going to try the 3 day juice fast in a couple of > weeks. I took the suggestion to check with people on freecycle and > a person had one. > > > > > > > > - Donna > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Super tonic is under Dr. and Schulze, complete tonic is under I think organic supplements or natural herbal remedies... it has tumeric added. Check the drug store chains... or maybe a "whole foods" grocery store, etc. SuziDonna <donnachagnon@...> wrote: Hi Suzi! Thank you! I found the "Complete Nutrition" page but haven't yet found the Super tonic. I'm still looking.We don't have Walgreens in this area. I'm not sure what would be close to that type of store. Pharmacy but I don't recall ever seeing a netipot - then again I wasn't looking. Perhaps one of the two local NFS will have one. DonnaPlease note: message attached Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 <snip> > I really am not one who enjoys making meals at the end > of the day and I rarely have time to. > By the time I get home from my day job and finish up > some night jobs (and errands) it is usually 8 o'clock or > so by the time I get home. > I'm thinking that perhaps a raw food diet may be the > thing for me - especially given my lifestyle. I would > love to learn more about it. > Of course, convincing my fiance not to have meat & > potatoes on his plate may be my next huge battle. :-) If raw foods works for you, go for it. Your fiance might not notice there not being lots of meat & potatoes on his plate if what is on his plate is tasty and smells and looks good. My husband doesn't care what he is fed as long as he doesn't have to prepare it himself. " Shovel factor " is an issue for some people. They don't want to work that much to fill their stomach. They just want to shovel it in. Chewing raw foods enough to properly digest them and not produce too much gas or discomfort might be a problem. If its still winter where you live, you might try some crock pot cooking. Put everything in the slow cooker in the morning before leaving for work. Herbs like astragalus and burdock root work very well in a slow cooked soup or stew. Don't season the meal until just before eating it however. Things that are slow cooked don't need as much salt et cetera to taste good. If its all vegetable with no meat, just before you serve it a tiny bit of oil like olive oil or flax seed oil might make it satisfactory to someone who expects meat at every meal. A couple extra shiitaki mushrooms and who notices there isn't meat in the brew? Its tasty and there's something in there that chews a bit like meat. That's close enough for some people. In small steps, the spouse hasn't a clew what's going on until they step out of line some place and realizes how much better they've come to feel not eating junk food at home. On cold days, crock pots can make a house smell like home. That's a good part of the battle. Penel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2005 Report Share Posted March 29, 2005 Hi, Everyone....I am an RN in NYS, recently diagnosed w/ RA. I've had OA for quite some time and had L 4-5 removed a few years ago with great success. I've been in a lot of pain lately. My first appt w/ a Rheum is 4/12. At this point I want it treated aggressively. I'm willing to take Enbrel and Sulfasalazine, but not prednisone or MTX. Any thoughts or comments on any of these meds would be appreciated. I'm 41 now and raising my 8 year-old completely on my own...I would like to keep working for a long time...as long as possible. Smiles to all, Jeannie. Quote Link to comment Share on other sites More sharing options...
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