Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Hi Martha, Here in Oz we use the fingerspelled letter 'C' (which is the only letter that is the same in both ASL and AUSLAN!!) tapped twice on upper arm to represent strength and courage... Sharon from West Oz >I have a feeling that I've posted this question previously but stay with me >(getting up at 2:30 is not a great adventure for the brain). > Do we have a sign, other than fingerspelling, for CHARGE? People are >talking on the list about our kids knowing that CHARGE is the reason for >x,y, z, but for the kids who cannot hear/speak orally, how do we express >this? I need something other than mere spelling. If there's nothing yet as >accepted usage, we really need to come up with something ASAP. >Thanks. Martha > > >CHARGE SYNDROME LISTSERV PHOTO PAGE: >http://www.imagestation.com/album/?id=2117043995 > >Membership of this email support group does not constitute >membership in the CHARGE Syndrome Foundation; for information about >the CHARGE Syndrome >Foundation or to become a member (and get the newsletter), >please contact marion@... or visit >the web site at http://www.chargesyndrome.org > >8th International >CHARGE Syndrome Conference, July, 2007. Information will be >available at www.chargesyndrome.org or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Sharon, I like it - I'm going to adopt it! Maybe it'll catch on here in Canada... -- Weir kawfolks@... http://ca.geocities.com/weirfamilyrogers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Sharon, I like it - I'm going to adopt it! Maybe it'll catch on here in Canada... -- Weir kawfolks@... http://ca.geocities.com/weirfamilyrogers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Thanks, Sharon. I truly like the sign! Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Thanks, Sharon. I truly like the sign! Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Martha and all, I hate to put a glitch in yet another topic but one of the things that came from our board meeting in California was the discussion of the great need for a sign for CHARGE Syndrome. I have been told that to be given a " sign name " it must be done either by someone who is deaf or by other specific rules. We are going to be getting in touch with Galudette to find out the exact protocol. If we are going to be using it nationally it has to be a nationally accepted sign. Sounds silly but its true. This then led to sure parents/professional can think of sign's for CHARGE that we all feel comfortable with and would find delightful but would it be what individuals who actually have CHARGE will feel comfortable with. To much is done for/to/about them without their input. Due to that we are planning to get the adults who have CHARGE to work together to be in charge of that. hahaha. Sorry for the pun but I just had to! Anyway, I hope all of you are understanding and can all wait on this. Please let us go through the Adult Committee with only the adults who have CHARGE Syndrome to be the ones to work together to come up with a sign for CHARGE Syndrome. It is them and it is their lives. Let's let them do it INDEPENDANTLY! Gosh I am in a humorous mood here! Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Martha and all, I hate to put a glitch in yet another topic but one of the things that came from our board meeting in California was the discussion of the great need for a sign for CHARGE Syndrome. I have been told that to be given a " sign name " it must be done either by someone who is deaf or by other specific rules. We are going to be getting in touch with Galudette to find out the exact protocol. If we are going to be using it nationally it has to be a nationally accepted sign. Sounds silly but its true. This then led to sure parents/professional can think of sign's for CHARGE that we all feel comfortable with and would find delightful but would it be what individuals who actually have CHARGE will feel comfortable with. To much is done for/to/about them without their input. Due to that we are planning to get the adults who have CHARGE to work together to be in charge of that. hahaha. Sorry for the pun but I just had to! Anyway, I hope all of you are understanding and can all wait on this. Please let us go through the Adult Committee with only the adults who have CHARGE Syndrome to be the ones to work together to come up with a sign for CHARGE Syndrome. It is them and it is their lives. Let's let them do it INDEPENDANTLY! Gosh I am in a humorous mood here! Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Bonnie, I think this is an excellent idea. Just let it be done fairly soon! By the way, I truly apologize for not having responded to your post. As I said on list a few moments ago when writing to Simon, at times is now up at 2:30 in the morning, and that's proving to be really tough on me. I feel downright ancient. But I haven't forgotten you and have much to share. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Bonnie, I think this is an excellent idea. Just let it be done fairly soon! By the way, I truly apologize for not having responded to your post. As I said on list a few moments ago when writing to Simon, at times is now up at 2:30 in the morning, and that's proving to be really tough on me. I feel downright ancient. But I haven't forgotten you and have much to share. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Bonnie, I think this is an excellent idea. Just let it be done fairly soon! By the way, I truly apologize for not having responded to your post. As I said on list a few moments ago when writing to Simon, at times is now up at 2:30 in the morning, and that's proving to be really tough on me. I feel downright ancient. But I haven't forgotten you and have much to share. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 I was going to suggest a sign but i dont know if it all ready means something. lol. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 i was thinking well wats the sign for colibomas heart and the r and g and ears we cvould combine all those together to make charge > > I was going to suggest a sign but i dont know if it all ready means > something. lol. > > > Chantelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 i was thinking well wats the sign for colibomas heart and the r and g and ears we cvould combine all those together to make charge > > I was going to suggest a sign but i dont know if it all ready means > something. lol. > > > Chantelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 i will say the one i thought, chip or anyone elce fluent in sign, please tell me im not signing anything rude, lol well its make a c with your right hand and touch an open left hand twice. Its been a while since ive signed. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 i will say the one i thought, chip or anyone elce fluent in sign, please tell me im not signing anything rude, lol well its make a c with your right hand and touch an open left hand twice. Its been a while since ive signed. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 i will say the one i thought, chip or anyone elce fluent in sign, please tell me im not signing anything rude, lol well its make a c with your right hand and touch an open left hand twice. Its been a while since ive signed. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Bonnie, we use a sign similar to Usher's showing both eye and ear on the side of the face. Instead of a " U " by the eye to and " S " by the chin, I fingerspell it and show a " C " to and " S " . This is funny, because someone a long time ago showed this to me, someone who was deaf, here in NJ and I always thought it was the sign, and I have seen others use it. In any case, people in different parts of the country use different signs. For example a sign used in NY isn't used for NJ. Do you want me to forward this to my teacher (I am in an Interpreting program now for 4 years), she is very known at Galudette, also, the principal of 's school was some big wig at Galudette. I wasn't aware that you could establish a nationally known sign. You can't patent a sign, so what stops it from changing, you know like the telephone game? When this is done, how do you distribute it amongst the deaf community? How would I be able to find out other nationally used signs? Are these signs used for specific purposes like at national events? I am just very curious, since I have been studying this for a long time. Is there a book out there on national signs for the US? I know for world events they use Juno, a world sign language but not many people know it. Debbie Matasker Re: CHARGE sign??? Martha and all, I hate to put a glitch in yet another topic but one of the things that came from our board meeting in California was the discussion of the great need for a sign for CHARGE Syndrome. I have been told that to be given a " sign name " it must be done either by someone who is deaf or by other specific rules. We are going to be getting in touch with Galudette to find out the exact protocol. If we are going to be using it nationally it has to be a nationally accepted sign. Sounds silly but its true. This then led to sure parents/professional can think of sign's for CHARGE that we all feel comfortable with and would find delightful but would it be what individuals who actually have CHARGE will feel comfortable with. To much is done for/to/about them without their input. Due to that we are planning to get the adults who have CHARGE to work together to be in charge of that. hahaha. Sorry for the pun but I just had to! Anyway, I hope all of you are understanding and can all wait on this. Please let us go through the Adult Committee with only the adults who have CHARGE Syndrome to be the ones to work together to come up with a sign for CHARGE Syndrome. It is them and it is their lives. Let's let them do it INDEPENDANTLY! Gosh I am in a humorous mood here! Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Bonnie, we use a sign similar to Usher's showing both eye and ear on the side of the face. Instead of a " U " by the eye to and " S " by the chin, I fingerspell it and show a " C " to and " S " . This is funny, because someone a long time ago showed this to me, someone who was deaf, here in NJ and I always thought it was the sign, and I have seen others use it. In any case, people in different parts of the country use different signs. For example a sign used in NY isn't used for NJ. Do you want me to forward this to my teacher (I am in an Interpreting program now for 4 years), she is very known at Galudette, also, the principal of 's school was some big wig at Galudette. I wasn't aware that you could establish a nationally known sign. You can't patent a sign, so what stops it from changing, you know like the telephone game? When this is done, how do you distribute it amongst the deaf community? How would I be able to find out other nationally used signs? Are these signs used for specific purposes like at national events? I am just very curious, since I have been studying this for a long time. Is there a book out there on national signs for the US? I know for world events they use Juno, a world sign language but not many people know it. Debbie Matasker Re: CHARGE sign??? Martha and all, I hate to put a glitch in yet another topic but one of the things that came from our board meeting in California was the discussion of the great need for a sign for CHARGE Syndrome. I have been told that to be given a " sign name " it must be done either by someone who is deaf or by other specific rules. We are going to be getting in touch with Galudette to find out the exact protocol. If we are going to be using it nationally it has to be a nationally accepted sign. Sounds silly but its true. This then led to sure parents/professional can think of sign's for CHARGE that we all feel comfortable with and would find delightful but would it be what individuals who actually have CHARGE will feel comfortable with. To much is done for/to/about them without their input. Due to that we are planning to get the adults who have CHARGE to work together to be in charge of that. hahaha. Sorry for the pun but I just had to! Anyway, I hope all of you are understanding and can all wait on this. Please let us go through the Adult Committee with only the adults who have CHARGE Syndrome to be the ones to work together to come up with a sign for CHARGE Syndrome. It is them and it is their lives. Let's let them do it INDEPENDANTLY! Gosh I am in a humorous mood here! Bonnie, Mom to a 23, Patty CHARGE 21, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 hmmmmmmmmmmm i dont even know auslan > > Bonnie, we use a sign similar to Usher's showing both eye and ear on the > side of the face. Instead of a " U " by the eye to and " S " by the chin, I > fingerspell it and show a " C " to and " S " . This is funny, because someone > a > long time ago showed this to me, someone who was deaf, here in NJ and I > always thought it was the sign, and I have seen others use it. In any > case, > people in different parts of the country use different signs. For example > a > sign used in NY isn't used for NJ. Do you want me to forward this to my > teacher (I am in an Interpreting program now for 4 years), she is very > known > at Galudette, also, the principal of 's school was some big wig at > Galudette. > > I wasn't aware that you could establish a nationally known sign. You > can't > patent a sign, so what stops it from changing, you know like the telephone > game? When this is done, how do you distribute it amongst the deaf > community? How would I be able to find out other nationally used signs? > Are these signs used for specific purposes like at national events? I am > just very curious, since I have been studying this for a long time. Is > there a book out there on national signs for the US? I know for world > events they use Juno, a world sign language but not many people know it. > > Debbie Matasker > > > > Re: CHARGE sign??? > > Martha and all, > > I hate to put a glitch in yet another topic but one of the things that > came > from our board meeting in California was the discussion of the great need > for a > sign for CHARGE Syndrome. > > I have been told that to be given a " sign name " it must be done either by > someone who is deaf or by other specific rules. We are going to be > getting > in > touch with Galudette to find out the exact protocol. If we are going to > be > using it nationally it has to be a nationally accepted sign. Sounds silly > but its > true. > > This then led to sure parents/professional can think of sign's for CHARGE > that we all feel comfortable with and would find delightful but would it > be > what > individuals who actually have CHARGE will feel comfortable with. To much > is > > done for/to/about them without their input. Due to that we are planning > to > get > the adults who have CHARGE to work together to be in charge of that. > hahaha. > > Sorry for the pun but I just had to! > > Anyway, I hope all of you are understanding and can all wait on this. > Please > let us go through the Adult Committee with only the adults who have CHARGE > Syndrome to be the ones to work together to come up with a sign for CHARGE > Syndrome. It is them and it is their lives. Let's let them do it > INDEPENDANTLY! > > Gosh I am in a humorous mood here! > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 hmmmmmmmmmmm i dont even know auslan > > Bonnie, we use a sign similar to Usher's showing both eye and ear on the > side of the face. Instead of a " U " by the eye to and " S " by the chin, I > fingerspell it and show a " C " to and " S " . This is funny, because someone > a > long time ago showed this to me, someone who was deaf, here in NJ and I > always thought it was the sign, and I have seen others use it. In any > case, > people in different parts of the country use different signs. For example > a > sign used in NY isn't used for NJ. Do you want me to forward this to my > teacher (I am in an Interpreting program now for 4 years), she is very > known > at Galudette, also, the principal of 's school was some big wig at > Galudette. > > I wasn't aware that you could establish a nationally known sign. You > can't > patent a sign, so what stops it from changing, you know like the telephone > game? When this is done, how do you distribute it amongst the deaf > community? How would I be able to find out other nationally used signs? > Are these signs used for specific purposes like at national events? I am > just very curious, since I have been studying this for a long time. Is > there a book out there on national signs for the US? I know for world > events they use Juno, a world sign language but not many people know it. > > Debbie Matasker > > > > Re: CHARGE sign??? > > Martha and all, > > I hate to put a glitch in yet another topic but one of the things that > came > from our board meeting in California was the discussion of the great need > for a > sign for CHARGE Syndrome. > > I have been told that to be given a " sign name " it must be done either by > someone who is deaf or by other specific rules. We are going to be > getting > in > touch with Galudette to find out the exact protocol. If we are going to > be > using it nationally it has to be a nationally accepted sign. Sounds silly > but its > true. > > This then led to sure parents/professional can think of sign's for CHARGE > that we all feel comfortable with and would find delightful but would it > be > what > individuals who actually have CHARGE will feel comfortable with. To much > is > > done for/to/about them without their input. Due to that we are planning > to > get > the adults who have CHARGE to work together to be in charge of that. > hahaha. > > Sorry for the pun but I just had to! > > Anyway, I hope all of you are understanding and can all wait on this. > Please > let us go through the Adult Committee with only the adults who have CHARGE > Syndrome to be the ones to work together to come up with a sign for CHARGE > Syndrome. It is them and it is their lives. Let's let them do it > INDEPENDANTLY! > > Gosh I am in a humorous mood here! > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Chantelle, it is not a rude sign. pam > ---------- > From: CHARGE on behalf of Chantelle McLaren > Reply To: CHARGE > Sent: Friday, April 14, 2006 7:01 AM > To: CHARGE > Subject: Re: CHARGE sign??? > > i will say the one i thought, chip or anyone elce fluent in sign, please > tell me im not signing anything rude, lol > > > well its make a c with your right hand and touch an open left hand twice. > > Its been a while since ive signed. > > Chantelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Chantelle, it is not a rude sign. pam > ---------- > From: CHARGE on behalf of Chantelle McLaren > Reply To: CHARGE > Sent: Friday, April 14, 2006 7:01 AM > To: CHARGE > Subject: Re: CHARGE sign??? > > i will say the one i thought, chip or anyone elce fluent in sign, please > tell me im not signing anything rude, lol > > > well its make a c with your right hand and touch an open left hand twice. > > Its been a while since ive signed. > > Chantelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Hmmmm, now this discussion has got me going. A few months ago, Simon and I discussed that we should really contact the British Deaf Association to check out whether there was a sign for CHARGE or how they would propose establishing one but of course other things got in the way. Thank you Bonnie for this idea and now I think I will push this forward and suggest they consult with adults with CHARGE or at the very least, with Sense who have set up various young people's projects (or something like that). I know a sign exists for usher here too but I suspect most people on the BDA bigwigs list have probably never even heard of CHARGE. Hmmmm, because I have nothing else to do right now (yeah right! CI switch on round the corner, daughter 1 starting to be taught to read, daughter 2 starting school in Sept, work, ..........), time to take on one more thing. Any other UK parents care to join in? Flo > > Martha and all, > > I hate to put a glitch in yet another topic but one of the things that > came > from our board meeting in California was the discussion of the great need > for a > sign for CHARGE Syndrome. > > I have been told that to be given a " sign name " it must be done either by > someone who is deaf or by other specific rules. We are going to be > getting in > touch with Galudette to find out the exact protocol. If we are going to > be > using it nationally it has to be a nationally accepted sign. Sounds silly > but its > true. > > This then led to sure parents/professional can think of sign's for CHARGE > that we all feel comfortable with and would find delightful but would it > be what > individuals who actually have CHARGE will feel comfortable with. To much > is > done for/to/about them without their input. Due to that we are planning > to get > the adults who have CHARGE to work together to be in charge of that. > hahaha. > Sorry for the pun but I just had to! > > Anyway, I hope all of you are understanding and can all wait on > this. Please > let us go through the Adult Committee with only the adults who have CHARGE > Syndrome to be the ones to work together to come up with a sign for CHARGE > Syndrome. It is them and it is their lives. Let's let them do it > INDEPENDANTLY! > > Gosh I am in a humorous mood here! > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Hmmmm, now this discussion has got me going. A few months ago, Simon and I discussed that we should really contact the British Deaf Association to check out whether there was a sign for CHARGE or how they would propose establishing one but of course other things got in the way. Thank you Bonnie for this idea and now I think I will push this forward and suggest they consult with adults with CHARGE or at the very least, with Sense who have set up various young people's projects (or something like that). I know a sign exists for usher here too but I suspect most people on the BDA bigwigs list have probably never even heard of CHARGE. Hmmmm, because I have nothing else to do right now (yeah right! CI switch on round the corner, daughter 1 starting to be taught to read, daughter 2 starting school in Sept, work, ..........), time to take on one more thing. Any other UK parents care to join in? Flo > > Martha and all, > > I hate to put a glitch in yet another topic but one of the things that > came > from our board meeting in California was the discussion of the great need > for a > sign for CHARGE Syndrome. > > I have been told that to be given a " sign name " it must be done either by > someone who is deaf or by other specific rules. We are going to be > getting in > touch with Galudette to find out the exact protocol. If we are going to > be > using it nationally it has to be a nationally accepted sign. Sounds silly > but its > true. > > This then led to sure parents/professional can think of sign's for CHARGE > that we all feel comfortable with and would find delightful but would it > be what > individuals who actually have CHARGE will feel comfortable with. To much > is > done for/to/about them without their input. Due to that we are planning > to get > the adults who have CHARGE to work together to be in charge of that. > hahaha. > Sorry for the pun but I just had to! > > Anyway, I hope all of you are understanding and can all wait on > this. Please > let us go through the Adult Committee with only the adults who have CHARGE > Syndrome to be the ones to work together to come up with a sign for CHARGE > Syndrome. It is them and it is their lives. Let's let them do it > INDEPENDANTLY! > > Gosh I am in a humorous mood here! > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 Hmmmm, now this discussion has got me going. A few months ago, Simon and I discussed that we should really contact the British Deaf Association to check out whether there was a sign for CHARGE or how they would propose establishing one but of course other things got in the way. Thank you Bonnie for this idea and now I think I will push this forward and suggest they consult with adults with CHARGE or at the very least, with Sense who have set up various young people's projects (or something like that). I know a sign exists for usher here too but I suspect most people on the BDA bigwigs list have probably never even heard of CHARGE. Hmmmm, because I have nothing else to do right now (yeah right! CI switch on round the corner, daughter 1 starting to be taught to read, daughter 2 starting school in Sept, work, ..........), time to take on one more thing. Any other UK parents care to join in? Flo > > Martha and all, > > I hate to put a glitch in yet another topic but one of the things that > came > from our board meeting in California was the discussion of the great need > for a > sign for CHARGE Syndrome. > > I have been told that to be given a " sign name " it must be done either by > someone who is deaf or by other specific rules. We are going to be > getting in > touch with Galudette to find out the exact protocol. If we are going to > be > using it nationally it has to be a nationally accepted sign. Sounds silly > but its > true. > > This then led to sure parents/professional can think of sign's for CHARGE > that we all feel comfortable with and would find delightful but would it > be what > individuals who actually have CHARGE will feel comfortable with. To much > is > done for/to/about them without their input. Due to that we are planning > to get > the adults who have CHARGE to work together to be in charge of that. > hahaha. > Sorry for the pun but I just had to! > > Anyway, I hope all of you are understanding and can all wait on > this. Please > let us go through the Adult Committee with only the adults who have CHARGE > Syndrome to be the ones to work together to come up with a sign for CHARGE > Syndrome. It is them and it is their lives. Let's let them do it > INDEPENDANTLY! > > Gosh I am in a humorous mood here! > > > Bonnie, Mom to a 23, Patty CHARGE 21, and wife to > > > Quote Link to comment Share on other sites More sharing options...
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