Confused about latest DNA stool test results

[Guest guest]

Lynette, I sent you a PM---

That is awesome about Dr. Woeller, what a fantastic service---

>

> >We use Dr. Woeller and he has prescribed MB12 shots, Diflucan, LDN, Armour,

ordered tests we want run, you name it. No taking the Rx to another doctor. We

have never " seen " him except through our Skype consults. (we do have to pay for

those out of pocket, but I don't care, because he's worth it) He is fantastic

and I definitely recommend him.

> >HTH,

> >Amy

> >

> >

[Guest guest]

yes PANDAS strep testing IS titers as with PANDAS titers are high and over reacting and attacking the brain, heart and lungs causing inflamation and nuro phycosis. the antibodies think or are reacting to real or non real threats of strep and therefore sky rocket

From: G

Sent: Tuesday, February 15, 2011 12:52 PM

To: mb12 valtrex

Subject: Re: Confused about latest DNA stool test results

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

yes PANDAS strep testing IS titers as with PANDAS titers are high and over reacting and attacking the brain, heart and lungs causing inflamation and nuro phycosis. the antibodies think or are reacting to real or non real threats of strep and therefore sky rocket

From: G

Sent: Tuesday, February 15, 2011 12:52 PM

To: mb12 valtrex

Subject: Re: Confused about latest DNA stool test results

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

to me those all say visual stimming....vit A in our house took care of it

From: Ayse Yilmaz

Sent: Tuesday, February 15, 2011 5:01 PM

To: mb12 valtrex

Subject: Re: Re: Confused about latest DNA stool test results

Cherly,

My son started waiting for the toilet tank to be filled completely after flushing. He also wants to close every single door in the house. He started turning the lights on even when it is sunny outside. I know it screams PANDAS but I do not want to run a test which does not really mean much. Is it a good idea to just go ahead and treat for strep infection. Or should I wait for these symptoms to pass. They come and go all the time. Obsessions change shapes. One day it is lights,one day toilet,one day something else. Any ideas? Thanks

Ayse

already gave you the list for viral titers. A starter test for PANDAS is ASO titers and AntiDnase titers. Titers are antibodies, not specific to viruses or bacteria only but rather to a specific *thing*. Their called titers no matter what you are testing.

Keep in mind that coming up negative on any of these doesn't always mean much.

Cheryl

~http://www.gryffins-tail.blogspot.com~

~@Gryffins_Tail~

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

to me those all say visual stimming....vit A in our house took care of it

From: Ayse Yilmaz

Sent: Tuesday, February 15, 2011 5:01 PM

To: mb12 valtrex

Subject: Re: Re: Confused about latest DNA stool test results

Cherly,

My son started waiting for the toilet tank to be filled completely after flushing. He also wants to close every single door in the house. He started turning the lights on even when it is sunny outside. I know it screams PANDAS but I do not want to run a test which does not really mean much. Is it a good idea to just go ahead and treat for strep infection. Or should I wait for these symptoms to pass. They come and go all the time. Obsessions change shapes. One day it is lights,one day toilet,one day something else. Any ideas? Thanks

Ayse

already gave you the list for viral titers. A starter test for PANDAS is ASO titers and AntiDnase titers. Titers are antibodies, not specific to viruses or bacteria only but rather to a specific *thing*. Their called titers no matter what you are testing.

Keep in mind that coming up negative on any of these doesn't always mean much.

Cheryl

~http://www.gryffins-tail.blogspot.com~

~@Gryffins_Tail~

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

to me those all say visual stimming....vit A in our house took care of it

From: Ayse Yilmaz

Sent: Tuesday, February 15, 2011 5:01 PM

To: mb12 valtrex

Subject: Re: Re: Confused about latest DNA stool test results

Cherly,

My son started waiting for the toilet tank to be filled completely after flushing. He also wants to close every single door in the house. He started turning the lights on even when it is sunny outside. I know it screams PANDAS but I do not want to run a test which does not really mean much. Is it a good idea to just go ahead and treat for strep infection. Or should I wait for these symptoms to pass. They come and go all the time. Obsessions change shapes. One day it is lights,one day toilet,one day something else. Any ideas? Thanks

Ayse

already gave you the list for viral titers. A starter test for PANDAS is ASO titers and AntiDnase titers. Titers are antibodies, not specific to viruses or bacteria only but rather to a specific *thing*. Their called titers no matter what you are testing.

Keep in mind that coming up negative on any of these doesn't always mean much.

Cheryl

~http://www.gryffins-tail.blogspot.com~

~@Gryffins_Tail~

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

We used Dr. Woeller's website service for a year too. It was instrumental in

our direction for healing, but he IS a doctor and DOES rely on prescriptions for

a lot, so we ended up doing a lot of our own research and veering away from his

forum a bit. He was helpful with chock full of information which was at my

fingertips at any given time, but he didn't have knowledge of the safer biofilm

protocol or the safer chelation protocol (in my opinion). We've seen

significant healing going our route, so I feel good with our choices.

Don't get me wrong, I am not suggesting Dr. Woeller wasn't useful or that you

shouldn't consider him, but if you are into natural treatments and going with

safer options, keep your eye on other forums for key alternative treatment

options.

> >

> > >We use Dr. Woeller and he has prescribed MB12 shots, Diflucan, LDN,

Armour, ordered tests we want run, you name it. No taking the Rx to another

doctor. We have never " seen " him except through our Skype consults. (we do have

to pay for those out of pocket, but I don't care, because he's worth it) He is

fantastic and I definitely recommend him.

> > >HTH,

> > >Amy

> > >

> > >

>

[Guest guest]

We used Dr. Woeller's website service for a year too. It was instrumental in

our direction for healing, but he IS a doctor and DOES rely on prescriptions for

a lot, so we ended up doing a lot of our own research and veering away from his

forum a bit. He was helpful with chock full of information which was at my

fingertips at any given time, but he didn't have knowledge of the safer biofilm

protocol or the safer chelation protocol (in my opinion). We've seen

significant healing going our route, so I feel good with our choices.

Don't get me wrong, I am not suggesting Dr. Woeller wasn't useful or that you

shouldn't consider him, but if you are into natural treatments and going with

safer options, keep your eye on other forums for key alternative treatment

options.

> >

> > >We use Dr. Woeller and he has prescribed MB12 shots, Diflucan, LDN,

Armour, ordered tests we want run, you name it. No taking the Rx to another

doctor. We have never " seen " him except through our Skype consults. (we do have

to pay for those out of pocket, but I don't care, because he's worth it) He is

fantastic and I definitely recommend him.

> > >HTH,

> > >Amy

> > >

> > >

>

[Guest guest]

How much vit A takes care of these problems?

 

to me those all say visual stimming....vit A in our house took care of it

 

From: Ayse Yilmaz

Sent: Tuesday, February 15, 2011 5:01 PM

To: mb12 valtrex

Subject: Re: Re: Confused about latest DNA stool test results

 

Cherly,

My son started waiting for the toilet tank to be filled completely after flushing. He also wants to close every single door in the house. He started turning the lights on even when it is sunny outside. I know it screams PANDAS but I do not want to run a test which does not really mean much. Is it a good idea to just go ahead and treat for strep infection. Or should I wait for these symptoms to pass. They come and go all the time. Obsessions change shapes. One day it is lights,one day toilet,one day something else. Any ideas? Thanks 

Ayse

 

already gave you the list for viral titers.  A starter test for PANDAS is ASO titers and AntiDnase titers.  Titers are antibodies, not specific to viruses or bacteria only but rather to a specific *thing*.  Their called titers no matter what you are testing.

Keep in mind that coming up negative on any of these doesn't always mean much.

Cheryl 

~http://www.gryffins-tail.blogspot.com~

~@Gryffins_Tail~

 

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and " write " books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

How much vit A takes care of these problems?

 

to me those all say visual stimming....vit A in our house took care of it

 

From: Ayse Yilmaz

Sent: Tuesday, February 15, 2011 5:01 PM

To: mb12 valtrex

Subject: Re: Re: Confused about latest DNA stool test results

 

Cherly,

My son started waiting for the toilet tank to be filled completely after flushing. He also wants to close every single door in the house. He started turning the lights on even when it is sunny outside. I know it screams PANDAS but I do not want to run a test which does not really mean much. Is it a good idea to just go ahead and treat for strep infection. Or should I wait for these symptoms to pass. They come and go all the time. Obsessions change shapes. One day it is lights,one day toilet,one day something else. Any ideas? Thanks 

Ayse

 

already gave you the list for viral titers.  A starter test for PANDAS is ASO titers and AntiDnase titers.  Titers are antibodies, not specific to viruses or bacteria only but rather to a specific *thing*.  Their called titers no matter what you are testing.

Keep in mind that coming up negative on any of these doesn't always mean much.

Cheryl 

~http://www.gryffins-tail.blogspot.com~

~@Gryffins_Tail~

 

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and " write " books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

How much vit A takes care of these problems?

 

to me those all say visual stimming....vit A in our house took care of it

 

From: Ayse Yilmaz

Sent: Tuesday, February 15, 2011 5:01 PM

To: mb12 valtrex

Subject: Re: Re: Confused about latest DNA stool test results

 

Cherly,

My son started waiting for the toilet tank to be filled completely after flushing. He also wants to close every single door in the house. He started turning the lights on even when it is sunny outside. I know it screams PANDAS but I do not want to run a test which does not really mean much. Is it a good idea to just go ahead and treat for strep infection. Or should I wait for these symptoms to pass. They come and go all the time. Obsessions change shapes. One day it is lights,one day toilet,one day something else. Any ideas? Thanks 

Ayse

 

already gave you the list for viral titers.  A starter test for PANDAS is ASO titers and AntiDnase titers.  Titers are antibodies, not specific to viruses or bacteria only but rather to a specific *thing*.  Their called titers no matter what you are testing.

Keep in mind that coming up negative on any of these doesn't always mean much.

Cheryl 

~http://www.gryffins-tail.blogspot.com~

~@Gryffins_Tail~

 

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and " write " books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

Thank you I live in Turkey. I do not have a chance to get even a good DAN doctor. I do almost everything on my own. My son is and has been doing really good. He understands everything, he plays with us, he does good with his ABA therapy. I just can not solve these 3 things.  OCD, self stimulatory behavior ( we have only one and it is shaking a piece of rope), and last and the most important part of my frustration is him not talking. Is taking antibiotic the only way to treat strep? Luckly I have a chance to do titers in my country, but I do not know if it is worth it? He really freaks out from needles..Thanks for your help

Ayse

 

Yes, you do need to treat for strep and see how he responds. Where do you live? There are very few knowledgeable PANDAS docs.

 

 

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more

recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it.

> > > > This is what we are still noticing with him: he is getting sick more

frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and " write " books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.

> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go

off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!

> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid

swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.

> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

Thank you I live in Turkey. I do not have a chance to get even a good DAN doctor. I do almost everything on my own. My son is and has been doing really good. He understands everything, he plays with us, he does good with his ABA therapy. I just can not solve these 3 things.  OCD, self stimulatory behavior ( we have only one and it is shaking a piece of rope), and last and the most important part of my frustration is him not talking. Is taking antibiotic the only way to treat strep? Luckly I have a chance to do titers in my country, but I do not know if it is worth it? He really freaks out from needles..Thanks for your help

Ayse

 

Yes, you do need to treat for strep and see how he responds. Where do you live? There are very few knowledgeable PANDAS docs.

 

 

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more

recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it.

> > > > This is what we are still noticing with him: he is getting sick more

frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and " write " books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.

> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go

off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!

> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid

swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.

> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

Thank you I live in Turkey. I do not have a chance to get even a good DAN doctor. I do almost everything on my own. My son is and has been doing really good. He understands everything, he plays with us, he does good with his ABA therapy. I just can not solve these 3 things.  OCD, self stimulatory behavior ( we have only one and it is shaking a piece of rope), and last and the most important part of my frustration is him not talking. Is taking antibiotic the only way to treat strep? Luckly I have a chance to do titers in my country, but I do not know if it is worth it? He really freaks out from needles..Thanks for your help

Ayse

 

Yes, you do need to treat for strep and see how he responds. Where do you live? There are very few knowledgeable PANDAS docs.

 

 

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more

recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it.

> > > > This is what we are still noticing with him: he is getting sick more

frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and " write " books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.

> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go

off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!

> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid

swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.

> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

Cherly,He does not have OCD all the time. He used to have it couple times in the past and they disappeared. This time my entire family had a really bad infection. My hyperactive son wanted to lay down all day having a low grade fever. Than the next day, I do not know how to describe this but he has an egg-like bump on his throat. Doctor told me that he has TONSILIT meaning his lymph nodes were swollen I guess and put us on augmentin. His infection got better and energy came back. However, it made him so aggressive, unhappy and he was also itching all day. So I freaked out and stopping it actually right now. I know it is no good to stop the treatment like this but I do not have guts to continue at this point. He still is waiting for the toilet tank though:)) Now with all you guys help, I need to decide whether I should switch the antibiotic to azithro or should I just stop treatment here and wait for what happens? Thank you for responding.

Ayse 

 

Well, the test is usually covered by insurance and you can do it through a local lab so it shouldn't cost a ton of money.  And if you have titers, you'll at least know something.  If you don't have titers, then you know as much as you knew before and you'll need to go by symptoms.  I would probably do it.

But waiting for a toilet tank to be filled before flushing is a good thing.    I'm kidding, I know what you mean.  OCD always screams PANDAS to me.  

Cheryl ~http://www.gryffins-tail.blogspot.com~

~@Gryffins_Tail~

 

Cherly,My son started waiting for the toilet tank to be filled completely after flushing. He also wants to close every single door in the house. He started turning the lights on even when it is sunny outside. I know it screams PANDAS but I do not want to run a test which does not really mean much. Is it a good idea to just go ahead and treat for strep infection. Or should I wait for these symptoms to pass. They come and go all the time. Obsessions change shapes. One day it is lights,one day toilet,one day something else. Any ideas? Thanks 

Ayse

 

already gave you the list for viral titers.  A starter test for PANDAS is ASO titers and AntiDnase titers.  Titers are antibodies, not specific to viruses or bacteria only but rather to a specific *thing*.  Their called titers no matter what you are testing.

Keep in mind that coming up negative on any of these doesn't always mean much.

Cheryl ~http://www.gryffins-tail.blogspot.com~

~@Gryffins_Tail~

 

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?

>

> > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently.

> >

> > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it.

> >

> > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and " write " books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.

> >

> > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!

> >

> > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.

> >

> > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.

> >

> >

> >

> >

>

[Guest guest]

For a current infection penicillin/amoxicillin would work the best. For PANDAS which is an autoimmune reaction from strep then azithromycin or augmentin work best. We prefer azithro.

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more

recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more

frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go

off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid

swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

For a current infection penicillin/amoxicillin would work the best. For PANDAS which is an autoimmune reaction from strep then azithromycin or augmentin work best. We prefer azithro.

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more

recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more

frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go

off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid

swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

For a current infection penicillin/amoxicillin would work the best. For PANDAS which is an autoimmune reaction from strep then azithromycin or augmentin work best. We prefer azithro.

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more

recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more

frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go

off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid

swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

To learn more about PANDAS/Strep go to www.pandasnetwork.org To treat PANDAS a trial of antibiotic (azithromycin or augmentin) are tried first; if little or no progress then a steroid burst w/ the steroid prednisone is tried; if more imrovement is still needed then IVIG is used. My son responded a bit to both the antibiotic and steroids but he still has many symptoms of PANDAS so he will be starting IVIG next week. I would not bother w/ the titers specifically for PANDAS since 50% of the kids do not show high titers but have PANDAS.

You should consider running a whole immune panel to check IGG levels and NK cell levels. I would also check titers for MMR, EBV, CMV, HHV6, HHV1, HHV2, ASO, DNASE.

You can try an over the counter anti viral/ anti bacterial like Olive Leaf Extract....make sure it has a high Oleuropein extract count (I think 20-22% is the highest to be found)

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. > > > > So you would

think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty

fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some

sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head

(he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

To learn more about PANDAS/Strep go to www.pandasnetwork.org To treat PANDAS a trial of antibiotic (azithromycin or augmentin) are tried first; if little or no progress then a steroid burst w/ the steroid prednisone is tried; if more imrovement is still needed then IVIG is used. My son responded a bit to both the antibiotic and steroids but he still has many symptoms of PANDAS so he will be starting IVIG next week. I would not bother w/ the titers specifically for PANDAS since 50% of the kids do not show high titers but have PANDAS.

You should consider running a whole immune panel to check IGG levels and NK cell levels. I would also check titers for MMR, EBV, CMV, HHV6, HHV1, HHV2, ASO, DNASE.

You can try an over the counter anti viral/ anti bacterial like Olive Leaf Extract....make sure it has a high Oleuropein extract count (I think 20-22% is the highest to be found)

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. > > > > So you would

think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty

fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some

sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head

(he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

To learn more about PANDAS/Strep go to www.pandasnetwork.org To treat PANDAS a trial of antibiotic (azithromycin or augmentin) are tried first; if little or no progress then a steroid burst w/ the steroid prednisone is tried; if more imrovement is still needed then IVIG is used. My son responded a bit to both the antibiotic and steroids but he still has many symptoms of PANDAS so he will be starting IVIG next week. I would not bother w/ the titers specifically for PANDAS since 50% of the kids do not show high titers but have PANDAS.

You should consider running a whole immune panel to check IGG levels and NK cell levels. I would also check titers for MMR, EBV, CMV, HHV6, HHV1, HHV2, ASO, DNASE.

You can try an over the counter anti viral/ anti bacterial like Olive Leaf Extract....make sure it has a high Oleuropein extract count (I think 20-22% is the highest to be found)

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. > > > > So you would

think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty

fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some

sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head

(he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>

[Guest guest]

Dear ,

ý have checked with lab who is askd if MMR, EBV,CMV is igg or igm ?

Thanks ,

sema

To: mb12 valtrex From: susan_fund@...Date: Tue, 22 Feb 2011 16:11:25 -0800Subject: Re: Re: Confused about latest DNA stool test results

To learn more about PANDAS/Strep go to www.pandasnetwork.org To treat PANDAS a trial of antibiotic (azithromycin or augmentin) are tried first; if little or no progress then a steroid burst w/ the steroid prednisone is tried; if more imrovement is still needed then IVIG is used. My son responded a bit to both the antibiotic and steroids but he still has many symptoms of PANDAS so he will be starting IVIG next week. I would not bother w/ the titers specifically for PANDAS since 50% of the kids do not show high titers but have PANDAS.

You should consider running a whole immune panel to check IGG levels and NK cell levels. I would also check titers for MMR, EBV, CMV, HHV6, HHV1, HHV2, ASO, DNASE.

You can try an over the counter anti viral/ anti bacterial like Olive Leaf Extract....make sure it has a high Oleuropein extract count (I think 20-22% is the highest to be found)

What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it?> > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.> > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!> > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.> > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.> > > > > > > >>