Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 on your statment: " Peds and other doctors know about meds, but don't know much about other alternatives unless the particular individual decided to study it on his own. " .... couldn't disagree with you more... ( It is unfortunate to say, but doctors pretty well only know what the pharmaceuticals tell them about the meds...there are plenty of doctors in my family...and let me tell you, they'll all tell you that doctors are taught very little about pharmacology...they have to rely on the pharmaceuticals to " inform them " .... so, how " unbiased " do you really think that " information " is? It is unfortunate, but that is how " medicine " is done today. Probably wasn't always that way, but, it sure is today....and if you think otherwise...you are only deceiving yourself. I remember when I'd go visit my dad in emergency to have lunch with him in between patients...and there were always salespeople from the pharmaceuticals wanting his time. He got so disgusted by it, he really limited them and prefered to read on his own. He specialized in anesthesiology and family medicine, and was a medical examiner too...so, he actually knew a little more about drugs and their impact on the body than probably most doctors out there simply because of his training as a medical examiner and all he had to read for that. big stink going on right now over the whole issue of doctors " writing papers " or " authoring " papers that are really written by pharmaceuticals and prominent doctors just " tag their name " to them. I'd be surprised if most doctors took more than one class in pharmacology...if even that much. If you want to know about medicine, you're actually probably better off asking your local pharmacist. They have a much better grasp of the real issues behind a lot of this. Jeanne A. Brohart jornmatt wrote: > Hi Mandy and welcome! > We have a great board here, but that is easier because there is so > much success going around. > > >>I've started a sort of gf/cf diet (weaning off )..she is off whole > > milk and Im trying to find a gf bread she likes. > Good luck with that! lol. I only found about 3 GF things we liked at > all. > > >>But someone recently advised me to not bother starting > > this type of diet unless I get her (blood/urine?) tested 1st to see > > if she has *levels* that will benefit from a dietary change? > > I have a very hard time justifying the expense of the tests because > the results don't really tell you if the diet would be helpful or > not. The best way to tell is just to try it for a little bit and see > if there is improvement. > > >>I am only just starting to read about stuff like chelation, > enzymes, phenol reactions, yeast problems,secretin, probiotics etc > etc etc. and Im finding it rather overwhelming and confusing. > > That's alright, that is what groups like this are for. > > >>> may also be ADHD and the ped. has mentioned *possible meds* down > the track to *help her concentration* so time will tell. > > I would put meds at the last thing to try. Even though we take meds > and are dearly helped by it, you may be able to avoid it by doing > other things first. Enzymes have allowed us to use much less meds. So > you don't have to write it off, just put it on the back burner for > now. Peds and other doctors know about meds, but don't know much > about other alternatives unless the particular individual decided to > study it on his own. > > >>Is it wise to continue with the diet? Is it OK to start > > some enzymes and what are the best to start with and what results > do I look for(as I live in Australia we may have differing brand- > names so I'd need to know the generic name of the specific enzyme to > look for in a product) > > My suggestion is, if you have started the diet and it is going well, > then just keep doing that. Then start enzymes with the same diet. > Then you can re-introduce foods if you like. If you have not started > a restrictive diet, then I would suggest starting enzymes first and > then seeing if you need to remove any additional foods. Enzymes are > not really equivalent to a restrictive diet. They are not really an > even substitute. They do far, far more than just match the effects of > food elimination. This is why people who have been on restrictive > diets for a long time see astounding improvements when they introduce > enzymes. > > We have used Peptizyde and Zyme Prime from www.houstonni.com for 10 > months with great results. I have tried about 9 other brands too and > none have been as effective or as cheap. My two boys were evaluated > as " recovered " last July after we started enzymes. They are still > doing great....in a very " typical " sort of way. > > There are two important points to enzymes. > 1. timing - make sure that the enzymes are in contact with the food > in the stomach. If you swallow the veggie capsules, then allow 20-30 > minutes for the capsule to dissolve. Gel caps and just mixing the > enzyme powder with food or drink can be taken at the beginning of the > meal. > 2. Match the right enzyme with the right food - proteases for > protein, lipases for fats, etc. I will send you a few files on which > enzymes work on which foods. > > Dana has an excellent web site. Post if you have any more questions. > . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 > " Peds and other doctors know about meds, but don't know much > about other alternatives unless the particular individual decided to > study it on his own. " .... > > couldn't disagree with you more... ( I guess I meant that they knew of medications more...but you really shined alot more light on it. I really wouldn't have guessed most docs knew THAT little about meds. Gee! I thought that is what they spent all that time in med school learning about! I was in a group about women considering their career choices once with a woman who was a pharmaceutical rep. She hated it and was looking for a change. She expressed it like this " You go every day trying to push this stuff. The doctors are sick and tired of seeing you come and you know it. You are sick and tired of waiting for someone in their office to give you a few minutes so you can leave some samples and literature. " Obviously she was in the right place looking for a different job. But I always thought the doctors had some sense about how to interpret the literature they left. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 As a Pharmacist, I can tell you most Doctors know very, very little about drugs. Most Doctors have their favorites and that is what they prescribe. A good Doctor will acknowledge he/she doesn't know everything and will look it up. The drug reps come to see us also. I can tell when they know and understand something or when they are regurgitating a script. When a particular rep has been in the area we can tell because we blow through the drug that week. You have to understand a lot of drugs are interchangable for all practical purposes. Doctors do use the PDR but when I was in pharmacy school we were not allowed to use it. It is a book of package inserts. I have never worked in a pharmacy that has a PDR. In reality there are so many drugs on the market no person can know all of them. The vast majority of people think their doctor knows it all. Kathy > > > > " Peds and other doctors know about meds, but don't know much > > > about other alternatives unless the particular individual decided to > > > > > study it on his own. " .... > > > > > > couldn't disagree with you more... ( > > > > I guess I meant that they knew of medications more...but you really > > shined alot more light on it. I really wouldn't have guessed most > > docs knew THAT little about meds. Gee! I thought that is what they > > spent all that time in med school learning about! > > > > I was in a group about women considering their career choices once > > with a woman who was a pharmaceutical rep. She hated it and was > > looking for a change. She expressed it like this " You go every day > > trying to push this stuff. The doctors are sick and tired of seeing > > you come and you know it. You are sick and tired of waiting for > > someone in their office to give you a few minutes so you can leave > > some samples and literature. " Obviously she was in the right place > > looking for a different job. > > > > But I always thought the doctors had some sense about how to > > interpret the literature they left. > > > > . > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 As we all know way too well, all Autistics are different. But, with my daughter, concerta and adderall, definately made her more violent. We are trying Risperdall now. I think it works but she gets used to it too fast and we have to increase her dose. Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 There are Chat rooms in Mirc, on Starlink-IRC.net (which I don't go to due to the political nature <they don't like me... I'm too abrasive with school districts...lol> or the best one is #autstichat on IRC.ZeroLimit.net both with ports 6667-7000. IRC is a good place to look for some good support if you stay out of the weird servers for weird people !!!!!!!!!! I haven't been to the chat on Autism..... I didn't know it existed. someone please email me at peaceforkids2002@... and let me know where exactly it is. Thanks, E. Sr. Lil Mikey's Daddy U.S. Civil Rights Lobbyist Dir. The Office of Advocacy for Autistic Children (808)745-7841 >From: " dianeque " <dianeque@...> >Reply-Autism_in_Girls >Autism_in_Girls >Subject: meds... >Date: Mon, 30 Sep 2002 01:41:23 -0000 > >my dd is on dexadrine for attention/hyper issues which works quite >well, but I was wondering if any of your dd's are on concerta or >adderall and your opinions on them. We may be getting them in Canada >soon. Does anyone ever go into the chatroom? >Diane > ********************************************* The Office Of Advocacy for Autistic Children ********************************************* E. , Reg. Civil Rights Lobbyist Calif., D.C. , Nv., Az., Wa., N.Y., Pa., Il Lil Mikey's Daddy ============================ " We Speak for those who can not, we will fight relentlessly for the Civil Rights of all Children....disabled or not .. Globally " ============================ Contact Mike for free online advocacy here at this email address or call if you need immediate assistance at 808-845-7841 in Honolulu at my home office... You can also contact me through Kieth Peck, Attorney At Law, where I will be operating from during legislative sessions here in hawaii at 808-537-4003 For informal help you can also call , our Chicago area rep at 217-586-7504, for free phone advocacy. In person professional advocacy available on a case by case basis. " Peace to the Children " ----------------------- _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 We tried one dose one day of Adderall and my 5 yr. old dd had a violent reaction.They want us to try Focalen instead. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 Hi all... I am on voltaren and I know one of the side effects of this med is loss of appetitie. Does anyone else have a loss of appetite with their medications? I am now drinking Ensure to help supplement my meals. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 Hi a, I had an extreme loss of appetite the first time I took Arava. I had started with the loading dose of 100 mg/ day for 3 days. I lost my appetite and lost weight extremely quickly, and ended up going off the Arava after 4 months. I'm back on Arava, but haven't had that same experience this time around. It's unfortunate, because this time I have 20 lbs of prednisone weight that I need to get rid of ........... I know that it's not a laughing matter when you're in the middle of it though - I do feel for you because I remember being very tired and weak from not being able to eat. Beth > Hi all... > > I am on voltaren and I know one of the side effects of this med is loss of > appetitie. Does anyone else have a loss of appetite with their medications? > I am now drinking Ensure to help supplement my meals. > > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 I took Arava a few months ago and did not notice that my appetite was less but the weight just vanished. My Dr did a very gradual start but before I knew it I was 10 lbs lighter. I also take Voltaren and have for 5 years or more but with Losec or nexium to protect the stomach I have been OK. Trouble is I read it has a 2 action as well. They doubled the size of the warning label on it this weekend - It says " Take With Food " in much larger letters than before. Annette > > Hi all... > > > > I am on voltaren and I know one of the side effects of this med is > loss of > > appetitie. Does anyone else have a loss of appetite with their > medications? > > a Quote Link to comment Share on other sites More sharing options...
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