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  • 6 months later...

It was neither Dr. Hahn or Dr. Cappello. I prefer not to list his

name publicly. If you still want his name, email me directly.

I hope you get your insurance in order and everything works out for

the best. I know a bunch of people have gone to the Dr. Kim Freed

informed you about at Nemours in Orlando. I tried to make an

appointment with him before I flew to Iowa and they told me I'd have

to wait over a month--not appealing in our particular case.

Incidentally, Dr. Ponseti was very disappointed when I told him that.

Best of luck and please keep us posted.

Lorna

> > I just wanted to thank everyone that answered my latest

questions

> > about seeing Dr. Ponseti. I am checking into my new insurance

and

> if

> > it will go through I think I've convinced my husband to make

the

> > trip. The doctor in Tampa hasn't responded yet, if I get time

I

> will

> > try to call her tomorrow but will be a busy day. gets

his

> > DBB in the morning and my 2 yr old Katrina is running high temp

> > tonight so I need to get her into pediatrician. Somehow I

still

> have

> > to get to work, have to get month end reports turned in.

Thanks

> > again and for the future questions I'm sure to be asking about

the

> > DBB.

> > Karyn Marty Katrina and 6/11/02 R CF

>

>

>

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It was neither Dr. Hahn or Dr. Cappello. I prefer not to list his

name publicly. If you still want his name, email me directly.

I hope you get your insurance in order and everything works out for

the best. I know a bunch of people have gone to the Dr. Kim Freed

informed you about at Nemours in Orlando. I tried to make an

appointment with him before I flew to Iowa and they told me I'd have

to wait over a month--not appealing in our particular case.

Incidentally, Dr. Ponseti was very disappointed when I told him that.

Best of luck and please keep us posted.

Lorna

> > I just wanted to thank everyone that answered my latest

questions

> > about seeing Dr. Ponseti. I am checking into my new insurance

and

> if

> > it will go through I think I've convinced my husband to make

the

> > trip. The doctor in Tampa hasn't responded yet, if I get time

I

> will

> > try to call her tomorrow but will be a busy day. gets

his

> > DBB in the morning and my 2 yr old Katrina is running high temp

> > tonight so I need to get her into pediatrician. Somehow I

still

> have

> > to get to work, have to get month end reports turned in.

Thanks

> > again and for the future questions I'm sure to be asking about

the

> > DBB.

> > Karyn Marty Katrina and 6/11/02 R CF

>

>

>

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It was neither Dr. Hahn or Dr. Cappello. I prefer not to list his

name publicly. If you still want his name, email me directly.

I hope you get your insurance in order and everything works out for

the best. I know a bunch of people have gone to the Dr. Kim Freed

informed you about at Nemours in Orlando. I tried to make an

appointment with him before I flew to Iowa and they told me I'd have

to wait over a month--not appealing in our particular case.

Incidentally, Dr. Ponseti was very disappointed when I told him that.

Best of luck and please keep us posted.

Lorna

> > I just wanted to thank everyone that answered my latest

questions

> > about seeing Dr. Ponseti. I am checking into my new insurance

and

> if

> > it will go through I think I've convinced my husband to make

the

> > trip. The doctor in Tampa hasn't responded yet, if I get time

I

> will

> > try to call her tomorrow but will be a busy day. gets

his

> > DBB in the morning and my 2 yr old Katrina is running high temp

> > tonight so I need to get her into pediatrician. Somehow I

still

> have

> > to get to work, have to get month end reports turned in.

Thanks

> > again and for the future questions I'm sure to be asking about

the

> > DBB.

> > Karyn Marty Katrina and 6/11/02 R CF

>

>

>

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I do not know your private email address to do privately, but you can email me

at kcarp222@... Thanks for your help!!

Karyn

Re: Thanks

It was neither Dr. Hahn or Dr. Cappello. I prefer not to list his

name publicly. If you still want his name, email me directly.

I hope you get your insurance in order and everything works out for

the best. I know a bunch of people have gone to the Dr. Kim Freed

informed you about at Nemours in Orlando. I tried to make an

appointment with him before I flew to Iowa and they told me I'd have

to wait over a month--not appealing in our particular case.

Incidentally, Dr. Ponseti was very disappointed when I told him that.

Best of luck and please keep us posted.

Lorna

> > I just wanted to thank everyone that answered my latest

questions

> > about seeing Dr. Ponseti. I am checking into my new insurance

and

> if

> > it will go through I think I've convinced my husband to make

the

> > trip. The doctor in Tampa hasn't responded yet, if I get time

I

> will

> > try to call her tomorrow but will be a busy day. gets

his

> > DBB in the morning and my 2 yr old Katrina is running high temp

> > tonight so I need to get her into pediatrician. Somehow I

still

> have

> > to get to work, have to get month end reports turned in.

Thanks

> > again and for the future questions I'm sure to be asking about

the

> > DBB.

> > Karyn Marty Katrina and 6/11/02 R CF

>

>

>

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  • 1 year later...
Guest guest

Joyce,

The information is most welcome. I am trying to digest it all. I

don't know if Mom will agree to more chemo, because the oncologist

has not mentioned that it would be necessary. He should have told

her, I think.

Insurance of any kind, govt. or private, does not want to pay for

much. Medicare certainly pays very little of the amount charged.

It is good to know that is tolerating chemo well. How long

must he continue it?

Sharon

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Guest guest

Sharon,

He did not say how long but I imagine as long as he can tolerate

it. The Oncologist actually told him if he wanted he could try the

Avastin all by itself if he wanted. We already knew it is more

effective if it is used in conjunction with chemo. I don't know how

long he will tolerate it but hope long enough to do some good.

We talked with Dr. Fuss after his radiation yesterday and I wanted

to know exactly what he was doing this time. He said he is

radiating the same right lung that has the tumor from hell. The

IMRT has that tumor under control but another one surfaced right

next to it. He said has 2 tumors, one in each lung and each

one is right next to the airway. For this reason he does not feel

comfortable treating both at one time. He wants us back in 4 weeks

for another PET and CT and then if everything looks OK he will do

the left lung. There are a couple of Radiologist doing both at the

same time but he does not feel comfortable doing so.

I did ask him for Barry if there was anyone in Canada doing this

procedue and he said that Princess Margaret Hospital in Toronto is

doing the IMRT and SR. He mention a couple of others but I did not

get a chance to write them down. I am just throwing this into this

message for our Canada members.

Best Wishes

Joyce

> Joyce,

>

> The information is most welcome. I am trying to digest it all. I

> don't know if Mom will agree to more chemo, because the oncologist

> has not mentioned that it would be necessary. He should have told

> her, I think.

>

> Insurance of any kind, govt. or private, does not want to pay for

> much. Medicare certainly pays very little of the amount charged.

>

> It is good to know that is tolerating chemo well. How long

> must he continue it?

>

> Sharon

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  • 5 months later...

In a message dated 11/25/2004 1:24:53 PM Central Standard Time,

hatfield@... writes:

Were there EMS'ers on 6th Street??????? No way!!!

That said, I always go to the conferences to learn, and learn I did this

year. All of the folks involved from DSHS did a fantastic job, and as

Bernie said, just sign me up for next year now, no need in waiting.

'Tater Salad' Hatfield EMT-P

Nah.. the Tater Salad on Sixth street. Say it isnt so... That would just

destroy my image of such a good Jew Boy.

Tom LeNeveu

Learning Paramedic

EMStock2004 was a RESOUNDING SUCCESS... Come See us Next year.

_www.emstock.com_ (http://www.emstock.com/)

_www.temsf.org_ (http://www.temsf.org/)

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In a message dated 11/25/2004 1:24:53 PM Central Standard Time,

hatfield@... writes:

Were there EMS'ers on 6th Street??????? No way!!!

That said, I always go to the conferences to learn, and learn I did this

year. All of the folks involved from DSHS did a fantastic job, and as

Bernie said, just sign me up for next year now, no need in waiting.

'Tater Salad' Hatfield EMT-P

Nah.. the Tater Salad on Sixth street. Say it isnt so... That would just

destroy my image of such a good Jew Boy.

Tom LeNeveu

Learning Paramedic

EMStock2004 was a RESOUNDING SUCCESS... Come See us Next year.

_www.emstock.com_ (http://www.emstock.com/)

_www.temsf.org_ (http://www.temsf.org/)

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In a message dated 11/25/2004 1:24:53 PM Central Standard Time,

hatfield@... writes:

Were there EMS'ers on 6th Street??????? No way!!!

That said, I always go to the conferences to learn, and learn I did this

year. All of the folks involved from DSHS did a fantastic job, and as

Bernie said, just sign me up for next year now, no need in waiting.

'Tater Salad' Hatfield EMT-P

Nah.. the Tater Salad on Sixth street. Say it isnt so... That would just

destroy my image of such a good Jew Boy.

Tom LeNeveu

Learning Paramedic

EMStock2004 was a RESOUNDING SUCCESS... Come See us Next year.

_www.emstock.com_ (http://www.emstock.com/)

_www.temsf.org_ (http://www.temsf.org/)

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that's true about " what happens in austin stays in austin. "

i was told that some of my partners in crime and very

notorious supervisors whose names will remain hidden, were

at coyote ugly. that's a lot of good examples that

supervisors are setting when they take " belly shots " (i

think that's what they are called)

________________________________________

THIS EMAIL DOES NOT REFLECT THE VIEWS

OF GOLDSTAR EMS

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that's true about " what happens in austin stays in austin. "

i was told that some of my partners in crime and very

notorious supervisors whose names will remain hidden, were

at coyote ugly. that's a lot of good examples that

supervisors are setting when they take " belly shots " (i

think that's what they are called)

________________________________________

THIS EMAIL DOES NOT REFLECT THE VIEWS

OF GOLDSTAR EMS

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