Re: Re: oxalates

[Guest guest]

Alberta!!!!!!!!!!!!!!!!!!

Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the happy dance for you, mama!!

I want to say thank you because 15 minutes ago I was feeling so frustrated and discouraged that I was ready to throw in the towel and drive my son to pizza hut. Hearing this put me right back in check.

Way to go Maia!!!!

-Tammy

To: mb12 valtrex Sent: Sun, February 20, 2011 7:29:20 PMSubject: Re: Re: oxalates

I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I used that as an opportunity to start her on SCD and reduce oxalates. Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all the interventions we've done. I've stopped almost all of her supplements right now except liquid MB12 and CLO. We are also doing some cell food and chlorophyll on the advice of our DAN.We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out (I had no idea prior to starting this that she even had an oxalate issue -- she just had chronic loose stools and I couldn't figure out why). Here are the new things I'm seeing in Week 8 that weren't there before:1. Verbal imitation -- this is the

holy grail I've been chasing for a whole year. She is imitating certain words in poetry on kids shows she's seeing on TV. She imitates words I make. Prompted is still a bit iffy but when her ABA therapist asked her to sit the other day, Maia pulled out the chair and said "sit". She is imitating all kinds of words and sounds that people around her are making. She is trying to sing songs. She went from completely mute a year ago to imitation. She had some quasi word approximations 2 months ago, but now it is turning into focus on what someone is saying and verbal imitation. Lots and lots of chattering all day long. My chatty little Princess Maia! She is attempting new words like saying "music", "store".2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble wand now. She was not able to do this even two weeks ago. This is a skill she has just

acquired. 3. Her stools are consistently formed now. She had an infraction a few days ago and ate some potato chips and got into some chocolate. Not pretty and she had diarrhea for two days but once those things left the system, everything was good again.4. SO focussed in her ABA sessions. She did an entire 3 hour session with only one 15 minute break in her last ABA session. 5. Can sit through circle time at preschool very consistently now. She can sit through 35 minutes at a time now without getting up and getting distracted. She participates in circle time.6. She had an awkward wave before where when she was prompted to wave "bye" to someone, the palm of her hand would be facing herself. She has just learned to correct that in Week 7 of reduced oxalate/SCD.This is SO exciting for us. I never imagined that her apraxia could lift like that. I wish I

would've spent that last year doing SCD and low oxalates. I'm so motivated to do this right now and I'm going to be so fastidious about it. I'm so amazed at the really nice things I've been seeing in only 8 weeks on this new diet. Really, really nice!I just picked up her DMG in liquid form right now to make sure it's SCD. But I've also heard that many people with oxalate issues have problems with DMG. But I was seeing her do some nice things in DMG before. I'm going to re-introduce it again slowly and see what happens.