Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Tammy, I've put immediately below a list of the comments made by parents of what changed for kids in the first year of our project when they were switching from a previous diet to a diet lower in oxalates. Probably ALL of these kids had already been g/f cf or SCD and these were changes that only happened after they reduced oxalates. We were shocked at the global improvements...in so many areas. Now, after five more years studying the literature for hints for WHY these changes occurred, the science that explains the change is becoming more and more clear. Also, new research on how the gut regulates fluid, pH, microbial defense, and glutathione coordinated to a transporter that moves oxalate across cell membranes makes sense of the improvements people saw in gut function. Similar mechanisms govern secretion in the kidneys, lungs, pancreas, salivary glands and elsewhere. Hopes this helps, Areas of reported change in our autism oxalate project Digestive: Improved gut function: digestion Loss of chronic diarrhea Loss of chronic constipation First normal stools in lifetime despite previous medical treatment Loss of ravenous hunger Needed increase in appetite Loss of food allergies or sensitivities Eating foods previously avoided Improved pancreatic function Losing tendency to stomach ache or migraine Loss of distended belly Loss of dysbiosis and yeast problems Ability to get off all GI medications because of healing Big changes with introduction of VSL #3, an oxalate-degrading probiotic Improved tolerance for sulfur foods or supplements Improvements in reflux or esophagitis Lost need for enzymes; or they started working differently Big changes in toleration for lots of different supplements Urinary: Loss of excessive urination Loss of urinary frequency Obtaining nighttime continency Obtaining daytime continency Loss of vulvar or penis pain & inflammation Movement: Improved energy (mitochondrial?) Vastly improved gross motor skills Improved handwriting Improved fine motor skills Beginning to enjoy sporting activities with friends and siblings Cognitive: Increased imitation skills Better counting Better and more spontaneous coloring Better sight word retention Less rigidity Better expressive language; losing apraxia Better receptive language Asking more questions: who, what, where Improved cognition: more complex thought Speaking in much longer sentences Understanding cause and effect Increases in imaginary play Sociability Developing negotiating skills Playfulness: enjoying life; jokes Calming of temperament Other areas: Loss of photosensitivity Loss of self-abusive behavior New ability to tell parent locations of pain Rashes and bumps disappearing Sleeping through the night Loss of chronic leg and foot aches (growing pains) Improvement in iron stores and anemia Better phenol tolerance incl: no-phenol product started working Loss of salt craving Catch-up growth Normalization of 's temperature syndrome Normalization of iodine levels Loss of tic of swallowing air constantly Loss of autistic gait Improvement in acne in teenager > > So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know. > I hate to cut out stuff like carrots and spinach because there's so much benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him. > > what signs should I be watching for? > > -Tammy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Tammy, I've put immediately below a list of the comments made by parents of what changed for kids in the first year of our project when they were switching from a previous diet to a diet lower in oxalates. Probably ALL of these kids had already been g/f cf or SCD and these were changes that only happened after they reduced oxalates. We were shocked at the global improvements...in so many areas. Now, after five more years studying the literature for hints for WHY these changes occurred, the science that explains the change is becoming more and more clear. Also, new research on how the gut regulates fluid, pH, microbial defense, and glutathione coordinated to a transporter that moves oxalate across cell membranes makes sense of the improvements people saw in gut function. Similar mechanisms govern secretion in the kidneys, lungs, pancreas, salivary glands and elsewhere. Hopes this helps, Areas of reported change in our autism oxalate project Digestive: Improved gut function: digestion Loss of chronic diarrhea Loss of chronic constipation First normal stools in lifetime despite previous medical treatment Loss of ravenous hunger Needed increase in appetite Loss of food allergies or sensitivities Eating foods previously avoided Improved pancreatic function Losing tendency to stomach ache or migraine Loss of distended belly Loss of dysbiosis and yeast problems Ability to get off all GI medications because of healing Big changes with introduction of VSL #3, an oxalate-degrading probiotic Improved tolerance for sulfur foods or supplements Improvements in reflux or esophagitis Lost need for enzymes; or they started working differently Big changes in toleration for lots of different supplements Urinary: Loss of excessive urination Loss of urinary frequency Obtaining nighttime continency Obtaining daytime continency Loss of vulvar or penis pain & inflammation Movement: Improved energy (mitochondrial?) Vastly improved gross motor skills Improved handwriting Improved fine motor skills Beginning to enjoy sporting activities with friends and siblings Cognitive: Increased imitation skills Better counting Better and more spontaneous coloring Better sight word retention Less rigidity Better expressive language; losing apraxia Better receptive language Asking more questions: who, what, where Improved cognition: more complex thought Speaking in much longer sentences Understanding cause and effect Increases in imaginary play Sociability Developing negotiating skills Playfulness: enjoying life; jokes Calming of temperament Other areas: Loss of photosensitivity Loss of self-abusive behavior New ability to tell parent locations of pain Rashes and bumps disappearing Sleeping through the night Loss of chronic leg and foot aches (growing pains) Improvement in iron stores and anemia Better phenol tolerance incl: no-phenol product started working Loss of salt craving Catch-up growth Normalization of 's temperature syndrome Normalization of iodine levels Loss of tic of swallowing air constantly Loss of autistic gait Improvement in acne in teenager > > So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know. > I hate to cut out stuff like carrots and spinach because there's so much benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him. > > what signs should I be watching for? > > -Tammy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Tammy, I've put immediately below a list of the comments made by parents of what changed for kids in the first year of our project when they were switching from a previous diet to a diet lower in oxalates. Probably ALL of these kids had already been g/f cf or SCD and these were changes that only happened after they reduced oxalates. We were shocked at the global improvements...in so many areas. Now, after five more years studying the literature for hints for WHY these changes occurred, the science that explains the change is becoming more and more clear. Also, new research on how the gut regulates fluid, pH, microbial defense, and glutathione coordinated to a transporter that moves oxalate across cell membranes makes sense of the improvements people saw in gut function. Similar mechanisms govern secretion in the kidneys, lungs, pancreas, salivary glands and elsewhere. Hopes this helps, Areas of reported change in our autism oxalate project Digestive: Improved gut function: digestion Loss of chronic diarrhea Loss of chronic constipation First normal stools in lifetime despite previous medical treatment Loss of ravenous hunger Needed increase in appetite Loss of food allergies or sensitivities Eating foods previously avoided Improved pancreatic function Losing tendency to stomach ache or migraine Loss of distended belly Loss of dysbiosis and yeast problems Ability to get off all GI medications because of healing Big changes with introduction of VSL #3, an oxalate-degrading probiotic Improved tolerance for sulfur foods or supplements Improvements in reflux or esophagitis Lost need for enzymes; or they started working differently Big changes in toleration for lots of different supplements Urinary: Loss of excessive urination Loss of urinary frequency Obtaining nighttime continency Obtaining daytime continency Loss of vulvar or penis pain & inflammation Movement: Improved energy (mitochondrial?) Vastly improved gross motor skills Improved handwriting Improved fine motor skills Beginning to enjoy sporting activities with friends and siblings Cognitive: Increased imitation skills Better counting Better and more spontaneous coloring Better sight word retention Less rigidity Better expressive language; losing apraxia Better receptive language Asking more questions: who, what, where Improved cognition: more complex thought Speaking in much longer sentences Understanding cause and effect Increases in imaginary play Sociability Developing negotiating skills Playfulness: enjoying life; jokes Calming of temperament Other areas: Loss of photosensitivity Loss of self-abusive behavior New ability to tell parent locations of pain Rashes and bumps disappearing Sleeping through the night Loss of chronic leg and foot aches (growing pains) Improvement in iron stores and anemia Better phenol tolerance incl: no-phenol product started working Loss of salt craving Catch-up growth Normalization of 's temperature syndrome Normalization of iodine levels Loss of tic of swallowing air constantly Loss of autistic gait Improvement in acne in teenager > > So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know. > I hate to cut out stuff like carrots and spinach because there's so much benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him. > > what signs should I be watching for? > > -Tammy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I used that as an opportunity to start her on SCD and reduce oxalates. Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all the interventions we've done. I've stopped almost all of her supplements right now except liquid MB12 and CLO. We are also doing some cell food and chlorophyll on the advice of our DAN. We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out (I had no idea prior to starting this that she even had an oxalate issue -- she just had chronic loose stools and I couldn't figure out why). Here are the new things I'm seeing in Week 8 that weren't there before:1. Verbal imitation -- this is the holy grail I've been chasing for a whole year. She is imitating certain words in poetry on kids shows she's seeing on TV. She imitates words I make. Prompted is still a bit iffy but when her ABA therapist asked her to sit the other day, Maia pulled out the chair and said " sit " . She is imitating all kinds of words and sounds that people around her are making. She is trying to sing songs. She went from completely mute a year ago to imitation. She had some quasi word approximations 2 months ago, but now it is turning into focus on what someone is saying and verbal imitation. Lots and lots of chattering all day long. My chatty little Princess Maia! She is attempting new words like saying " music " , " store " . 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble wand now. She was not able to do this even two weeks ago. This is a skill she has just acquired. 3. Her stools are consistently formed now. She had an infraction a few days ago and ate some potato chips and got into some chocolate. Not pretty and she had diarrhea for two days but once those things left the system, everything was good again. 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only one 15 minute break in her last ABA session. 5. Can sit through circle time at preschool very consistently now. She can sit through 35 minutes at a time now without getting up and getting distracted. She participates in circle time. 6. She had an awkward wave before where when she was prompted to wave " bye " to someone, the palm of her hand would be facing herself. She has just learned to correct that in Week 7 of reduced oxalate/SCD. This is SO exciting for us. I never imagined that her apraxia could lift like that. I wish I would've spent that last year doing SCD and low oxalates. I'm so motivated to do this right now and I'm going to be so fastidious about it. I'm so amazed at the really nice things I've been seeing in only 8 weeks on this new diet. Really, really nice! I just picked up her DMG in liquid form right now to make sure it's SCD. But I've also heard that many people with oxalate issues have problems with DMG. But I was seeing her do some nice things in DMG before. I'm going to re-introduce it again slowly and see what happens. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I used that as an opportunity to start her on SCD and reduce oxalates. Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all the interventions we've done. I've stopped almost all of her supplements right now except liquid MB12 and CLO. We are also doing some cell food and chlorophyll on the advice of our DAN. We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out (I had no idea prior to starting this that she even had an oxalate issue -- she just had chronic loose stools and I couldn't figure out why). Here are the new things I'm seeing in Week 8 that weren't there before:1. Verbal imitation -- this is the holy grail I've been chasing for a whole year. She is imitating certain words in poetry on kids shows she's seeing on TV. She imitates words I make. Prompted is still a bit iffy but when her ABA therapist asked her to sit the other day, Maia pulled out the chair and said " sit " . She is imitating all kinds of words and sounds that people around her are making. She is trying to sing songs. She went from completely mute a year ago to imitation. She had some quasi word approximations 2 months ago, but now it is turning into focus on what someone is saying and verbal imitation. Lots and lots of chattering all day long. My chatty little Princess Maia! She is attempting new words like saying " music " , " store " . 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble wand now. She was not able to do this even two weeks ago. This is a skill she has just acquired. 3. Her stools are consistently formed now. She had an infraction a few days ago and ate some potato chips and got into some chocolate. Not pretty and she had diarrhea for two days but once those things left the system, everything was good again. 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only one 15 minute break in her last ABA session. 5. Can sit through circle time at preschool very consistently now. She can sit through 35 minutes at a time now without getting up and getting distracted. She participates in circle time. 6. She had an awkward wave before where when she was prompted to wave " bye " to someone, the palm of her hand would be facing herself. She has just learned to correct that in Week 7 of reduced oxalate/SCD. This is SO exciting for us. I never imagined that her apraxia could lift like that. I wish I would've spent that last year doing SCD and low oxalates. I'm so motivated to do this right now and I'm going to be so fastidious about it. I'm so amazed at the really nice things I've been seeing in only 8 weeks on this new diet. Really, really nice! I just picked up her DMG in liquid form right now to make sure it's SCD. But I've also heard that many people with oxalate issues have problems with DMG. But I was seeing her do some nice things in DMG before. I'm going to re-introduce it again slowly and see what happens. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I used that as an opportunity to start her on SCD and reduce oxalates. Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all the interventions we've done. I've stopped almost all of her supplements right now except liquid MB12 and CLO. We are also doing some cell food and chlorophyll on the advice of our DAN. We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out (I had no idea prior to starting this that she even had an oxalate issue -- she just had chronic loose stools and I couldn't figure out why). Here are the new things I'm seeing in Week 8 that weren't there before:1. Verbal imitation -- this is the holy grail I've been chasing for a whole year. She is imitating certain words in poetry on kids shows she's seeing on TV. She imitates words I make. Prompted is still a bit iffy but when her ABA therapist asked her to sit the other day, Maia pulled out the chair and said " sit " . She is imitating all kinds of words and sounds that people around her are making. She is trying to sing songs. She went from completely mute a year ago to imitation. She had some quasi word approximations 2 months ago, but now it is turning into focus on what someone is saying and verbal imitation. Lots and lots of chattering all day long. My chatty little Princess Maia! She is attempting new words like saying " music " , " store " . 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble wand now. She was not able to do this even two weeks ago. This is a skill she has just acquired. 3. Her stools are consistently formed now. She had an infraction a few days ago and ate some potato chips and got into some chocolate. Not pretty and she had diarrhea for two days but once those things left the system, everything was good again. 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only one 15 minute break in her last ABA session. 5. Can sit through circle time at preschool very consistently now. She can sit through 35 minutes at a time now without getting up and getting distracted. She participates in circle time. 6. She had an awkward wave before where when she was prompted to wave " bye " to someone, the palm of her hand would be facing herself. She has just learned to correct that in Week 7 of reduced oxalate/SCD. This is SO exciting for us. I never imagined that her apraxia could lift like that. I wish I would've spent that last year doing SCD and low oxalates. I'm so motivated to do this right now and I'm going to be so fastidious about it. I'm so amazed at the really nice things I've been seeing in only 8 weeks on this new diet. Really, really nice! I just picked up her DMG in liquid form right now to make sure it's SCD. But I've also heard that many people with oxalate issues have problems with DMG. But I was seeing her do some nice things in DMG before. I'm going to re-introduce it again slowly and see what happens. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 wow. I saw my nt on this list way more than my pdd. But we've done everything together and that's the way it'll stay. All for one : ) And I think the little guy really needs it. I'll prob keep the pb or do half and half with the sun butter because it's pricey. Giving the calcium helps? Thanks so much Toni and - you guys are awesome : ) -Tammy To: mb12 valtrex Sent: Sun, February 20, 2011 4:38:01 PMSubject: Re: oxalates Tammy,I've put immediately below a list of the comments made by parents of what changed for kids in the first year of our project when they were switching from a previous diet to a diet lower in oxalates. Probably ALL of these kids had already been g/f cf or SCD and these were changes that only happened after they reduced oxalates.We were shocked at the global improvements...in so many areas.Now, after five more years studying the literature for hints for WHY these changes occurred, the science that explains the change is becoming more and more clear. Also, new research on how the gut regulates fluid, pH, microbial defense, and glutathione coordinated to a transporter that moves oxalate across cell membranes makes sense of the improvements people saw in gut function. Similar mechanisms govern secretion in the kidneys, lungs, pancreas, salivary glands and elsewhere.Hopes this helps,Areas of reported change in our autism oxalate projectDigestive:Improved gut function: digestionLoss of chronic diarrheaLoss of chronic constipationFirst normal stools in lifetime despite previous medical treatmentLoss of ravenous hungerNeeded increase in appetiteLoss of food allergies or sensitivitiesEating foods previously avoidedImproved pancreatic functionLosing tendency to stomach ache or migraineLoss of distended bellyLoss of dysbiosis and yeast problemsAbility to get off all GI medications because of healingBig changes with introduction of VSL #3, an oxalate-degrading probioticImproved tolerance for sulfur foods or supplementsImprovements in reflux or esophagitisLost need for enzymes; or they started working differentlyBig changes in toleration for lots of different supplementsUrinary:Loss of excessive urinationLoss of urinary frequencyObtaining nighttime continencyObtaining daytime continencyLoss of vulvar or penis pain & inflammationMovement:Improved energy (mitochondrial?)Vastly improved gross motor skillsImproved handwritingImproved fine motor skillsBeginning to enjoy sporting activities with friends and siblingsCognitive:Increased imitation skillsBetter countingBetter and more spontaneous coloringBetter sight word retentionLess rigidityBetter expressive language; losing apraxiaBetter receptive languageAsking more questions: who, what, whereImproved cognition: more complex thoughtSpeaking in much longer sentencesUnderstanding cause and effectIncreases in imaginary playSociabilityDeveloping negotiating skillsPlayfulness: enjoying life; jokesCalming of temperamentOther areas:Loss of photosensitivityLoss of self-abusive behaviorNew ability to tell parent locations of painRashes and bumps disappearingSleeping through the nightLoss of chronic leg and foot aches (growing pains)Improvement in iron stores and anemiaBetter phenol tolerance incl: no-phenol product started workingLoss of salt cravingCatch-up growthNormalization of 's temperature syndromeNormalization of iodine levelsLoss of tic of swallowing air constantlyLoss of autistic gaitImprovement in acne in teenager>> So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know.> I hate to cut out stuff like carrots and spinach because there's so much benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him.> > what signs should I be watching for?> > -Tammy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 wow. I saw my nt on this list way more than my pdd. But we've done everything together and that's the way it'll stay. All for one : ) And I think the little guy really needs it. I'll prob keep the pb or do half and half with the sun butter because it's pricey. Giving the calcium helps? Thanks so much Toni and - you guys are awesome : ) -Tammy To: mb12 valtrex Sent: Sun, February 20, 2011 4:38:01 PMSubject: Re: oxalates Tammy,I've put immediately below a list of the comments made by parents of what changed for kids in the first year of our project when they were switching from a previous diet to a diet lower in oxalates. Probably ALL of these kids had already been g/f cf or SCD and these were changes that only happened after they reduced oxalates.We were shocked at the global improvements...in so many areas.Now, after five more years studying the literature for hints for WHY these changes occurred, the science that explains the change is becoming more and more clear. Also, new research on how the gut regulates fluid, pH, microbial defense, and glutathione coordinated to a transporter that moves oxalate across cell membranes makes sense of the improvements people saw in gut function. Similar mechanisms govern secretion in the kidneys, lungs, pancreas, salivary glands and elsewhere.Hopes this helps,Areas of reported change in our autism oxalate projectDigestive:Improved gut function: digestionLoss of chronic diarrheaLoss of chronic constipationFirst normal stools in lifetime despite previous medical treatmentLoss of ravenous hungerNeeded increase in appetiteLoss of food allergies or sensitivitiesEating foods previously avoidedImproved pancreatic functionLosing tendency to stomach ache or migraineLoss of distended bellyLoss of dysbiosis and yeast problemsAbility to get off all GI medications because of healingBig changes with introduction of VSL #3, an oxalate-degrading probioticImproved tolerance for sulfur foods or supplementsImprovements in reflux or esophagitisLost need for enzymes; or they started working differentlyBig changes in toleration for lots of different supplementsUrinary:Loss of excessive urinationLoss of urinary frequencyObtaining nighttime continencyObtaining daytime continencyLoss of vulvar or penis pain & inflammationMovement:Improved energy (mitochondrial?)Vastly improved gross motor skillsImproved handwritingImproved fine motor skillsBeginning to enjoy sporting activities with friends and siblingsCognitive:Increased imitation skillsBetter countingBetter and more spontaneous coloringBetter sight word retentionLess rigidityBetter expressive language; losing apraxiaBetter receptive languageAsking more questions: who, what, whereImproved cognition: more complex thoughtSpeaking in much longer sentencesUnderstanding cause and effectIncreases in imaginary playSociabilityDeveloping negotiating skillsPlayfulness: enjoying life; jokesCalming of temperamentOther areas:Loss of photosensitivityLoss of self-abusive behaviorNew ability to tell parent locations of painRashes and bumps disappearingSleeping through the nightLoss of chronic leg and foot aches (growing pains)Improvement in iron stores and anemiaBetter phenol tolerance incl: no-phenol product started workingLoss of salt cravingCatch-up growthNormalization of 's temperature syndromeNormalization of iodine levelsLoss of tic of swallowing air constantlyLoss of autistic gaitImprovement in acne in teenager>> So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know.> I hate to cut out stuff like carrots and spinach because there's so much benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him.> > what signs should I be watching for?> > -Tammy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 wow. I saw my nt on this list way more than my pdd. But we've done everything together and that's the way it'll stay. All for one : ) And I think the little guy really needs it. I'll prob keep the pb or do half and half with the sun butter because it's pricey. Giving the calcium helps? Thanks so much Toni and - you guys are awesome : ) -Tammy To: mb12 valtrex Sent: Sun, February 20, 2011 4:38:01 PMSubject: Re: oxalates Tammy,I've put immediately below a list of the comments made by parents of what changed for kids in the first year of our project when they were switching from a previous diet to a diet lower in oxalates. Probably ALL of these kids had already been g/f cf or SCD and these were changes that only happened after they reduced oxalates.We were shocked at the global improvements...in so many areas.Now, after five more years studying the literature for hints for WHY these changes occurred, the science that explains the change is becoming more and more clear. Also, new research on how the gut regulates fluid, pH, microbial defense, and glutathione coordinated to a transporter that moves oxalate across cell membranes makes sense of the improvements people saw in gut function. Similar mechanisms govern secretion in the kidneys, lungs, pancreas, salivary glands and elsewhere.Hopes this helps,Areas of reported change in our autism oxalate projectDigestive:Improved gut function: digestionLoss of chronic diarrheaLoss of chronic constipationFirst normal stools in lifetime despite previous medical treatmentLoss of ravenous hungerNeeded increase in appetiteLoss of food allergies or sensitivitiesEating foods previously avoidedImproved pancreatic functionLosing tendency to stomach ache or migraineLoss of distended bellyLoss of dysbiosis and yeast problemsAbility to get off all GI medications because of healingBig changes with introduction of VSL #3, an oxalate-degrading probioticImproved tolerance for sulfur foods or supplementsImprovements in reflux or esophagitisLost need for enzymes; or they started working differentlyBig changes in toleration for lots of different supplementsUrinary:Loss of excessive urinationLoss of urinary frequencyObtaining nighttime continencyObtaining daytime continencyLoss of vulvar or penis pain & inflammationMovement:Improved energy (mitochondrial?)Vastly improved gross motor skillsImproved handwritingImproved fine motor skillsBeginning to enjoy sporting activities with friends and siblingsCognitive:Increased imitation skillsBetter countingBetter and more spontaneous coloringBetter sight word retentionLess rigidityBetter expressive language; losing apraxiaBetter receptive languageAsking more questions: who, what, whereImproved cognition: more complex thoughtSpeaking in much longer sentencesUnderstanding cause and effectIncreases in imaginary playSociabilityDeveloping negotiating skillsPlayfulness: enjoying life; jokesCalming of temperamentOther areas:Loss of photosensitivityLoss of self-abusive behaviorNew ability to tell parent locations of painRashes and bumps disappearingSleeping through the nightLoss of chronic leg and foot aches (growing pains)Improvement in iron stores and anemiaBetter phenol tolerance incl: no-phenol product started workingLoss of salt cravingCatch-up growthNormalization of 's temperature syndromeNormalization of iodine levelsLoss of tic of swallowing air constantlyLoss of autistic gaitImprovement in acne in teenager>> So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know.> I hate to cut out stuff like carrots and spinach because there's so much benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him.> > what signs should I be watching for?> > -Tammy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Try to give calcium citrate 20 mins before ingesting. Citrate form is supposed to bond to oxalate without out forming crystals. Therefore you may get cloudy urine but hopefully will not be painful. I was using regular chewable calciums for myself and getting urinary " pressure " when getting rid of what I assume was oxalate bound calcium urine... once I learned the citrate form did not crystalize, I stopped using the chewables and use only the actualy citrate form. wow. I saw my nt on this list way more than my pdd. But we've done everything together and that's the way it'll stay. All for one : ) And I think the little guy really needs it. I'll prob keep the pb or do half and half with the sun butter because it's pricey. Giving the calcium helps? Thanks so much Toni and - you guys are awesome : ) -Tammy To: mb12 valtrex Sent: Sun, February 20, 2011 4:38:01 PMSubject: Re: oxalates Tammy,I've put immediately below a list of the comments made by parents of what changed for kids in the first year of our project when they were switching from a previous diet to a diet lower in oxalates. Probably ALL of these kids had already been g/f cf or SCD and these were changes that only happened after they reduced oxalates. We were shocked at the global improvements...in so many areas.Now, after five more years studying the literature for hints for WHY these changes occurred, the science that explains the change is becoming more and more clear. Also, new research on how the gut regulates fluid, pH, microbial defense, and glutathione coordinated to a transporter that moves oxalate across cell membranes makes sense of the improvements people saw in gut function. Similar mechanisms govern secretion in the kidneys, lungs, pancreas, salivary glands and elsewhere. Hopes this helps,Areas of reported change in our autism oxalate projectDigestive:Improved gut function: digestionLoss of chronic diarrheaLoss of chronic constipationFirst normal stools in lifetime despite previous medical treatment Loss of ravenous hungerNeeded increase in appetiteLoss of food allergies or sensitivitiesEating foods previously avoidedImproved pancreatic functionLosing tendency to stomach ache or migraineLoss of distended belly Loss of dysbiosis and yeast problemsAbility to get off all GI medications because of healingBig changes with introduction of VSL #3, an oxalate-degrading probioticImproved tolerance for sulfur foods or supplements Improvements in reflux or esophagitisLost need for enzymes; or they started working differentlyBig changes in toleration for lots of different supplementsUrinary:Loss of excessive urinationLoss of urinary frequency Obtaining nighttime continencyObtaining daytime continencyLoss of vulvar or penis pain & inflammationMovement:Improved energy (mitochondrial?)Vastly improved gross motor skillsImproved handwriting Improved fine motor skillsBeginning to enjoy sporting activities with friends and siblingsCognitive:Increased imitation skillsBetter countingBetter and more spontaneous coloringBetter sight word retention Less rigidityBetter expressive language; losing apraxiaBetter receptive languageAsking more questions: who, what, whereImproved cognition: more complex thoughtSpeaking in much longer sentencesUnderstanding cause and effect Increases in imaginary playSociabilityDeveloping negotiating skillsPlayfulness: enjoying life; jokesCalming of temperamentOther areas:Loss of photosensitivityLoss of self-abusive behavior New ability to tell parent locations of painRashes and bumps disappearingSleeping through the nightLoss of chronic leg and foot aches (growing pains)Improvement in iron stores and anemiaBetter phenol tolerance incl: no-phenol product started working Loss of salt cravingCatch-up growthNormalization of 's temperature syndromeNormalization of iodine levelsLoss of tic of swallowing air constantlyLoss of autistic gaitImprovement in acne in teenager >> So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know.> I hate to cut out stuff like carrots and spinach because there's so much benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him.> > what signs should I be watching for?> > -Tammy> -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Try to give calcium citrate 20 mins before ingesting. Citrate form is supposed to bond to oxalate without out forming crystals. Therefore you may get cloudy urine but hopefully will not be painful. I was using regular chewable calciums for myself and getting urinary " pressure " when getting rid of what I assume was oxalate bound calcium urine... once I learned the citrate form did not crystalize, I stopped using the chewables and use only the actualy citrate form. wow. I saw my nt on this list way more than my pdd. But we've done everything together and that's the way it'll stay. All for one : ) And I think the little guy really needs it. I'll prob keep the pb or do half and half with the sun butter because it's pricey. Giving the calcium helps? Thanks so much Toni and - you guys are awesome : ) -Tammy To: mb12 valtrex Sent: Sun, February 20, 2011 4:38:01 PMSubject: Re: oxalates Tammy,I've put immediately below a list of the comments made by parents of what changed for kids in the first year of our project when they were switching from a previous diet to a diet lower in oxalates. Probably ALL of these kids had already been g/f cf or SCD and these were changes that only happened after they reduced oxalates. We were shocked at the global improvements...in so many areas.Now, after five more years studying the literature for hints for WHY these changes occurred, the science that explains the change is becoming more and more clear. Also, new research on how the gut regulates fluid, pH, microbial defense, and glutathione coordinated to a transporter that moves oxalate across cell membranes makes sense of the improvements people saw in gut function. Similar mechanisms govern secretion in the kidneys, lungs, pancreas, salivary glands and elsewhere. Hopes this helps,Areas of reported change in our autism oxalate projectDigestive:Improved gut function: digestionLoss of chronic diarrheaLoss of chronic constipationFirst normal stools in lifetime despite previous medical treatment Loss of ravenous hungerNeeded increase in appetiteLoss of food allergies or sensitivitiesEating foods previously avoidedImproved pancreatic functionLosing tendency to stomach ache or migraineLoss of distended belly Loss of dysbiosis and yeast problemsAbility to get off all GI medications because of healingBig changes with introduction of VSL #3, an oxalate-degrading probioticImproved tolerance for sulfur foods or supplements Improvements in reflux or esophagitisLost need for enzymes; or they started working differentlyBig changes in toleration for lots of different supplementsUrinary:Loss of excessive urinationLoss of urinary frequency Obtaining nighttime continencyObtaining daytime continencyLoss of vulvar or penis pain & inflammationMovement:Improved energy (mitochondrial?)Vastly improved gross motor skillsImproved handwriting Improved fine motor skillsBeginning to enjoy sporting activities with friends and siblingsCognitive:Increased imitation skillsBetter countingBetter and more spontaneous coloringBetter sight word retention Less rigidityBetter expressive language; losing apraxiaBetter receptive languageAsking more questions: who, what, whereImproved cognition: more complex thoughtSpeaking in much longer sentencesUnderstanding cause and effect Increases in imaginary playSociabilityDeveloping negotiating skillsPlayfulness: enjoying life; jokesCalming of temperamentOther areas:Loss of photosensitivityLoss of self-abusive behavior New ability to tell parent locations of painRashes and bumps disappearingSleeping through the nightLoss of chronic leg and foot aches (growing pains)Improvement in iron stores and anemiaBetter phenol tolerance incl: no-phenol product started working Loss of salt cravingCatch-up growthNormalization of 's temperature syndromeNormalization of iodine levelsLoss of tic of swallowing air constantlyLoss of autistic gaitImprovement in acne in teenager >> So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know.> I hate to cut out stuff like carrots and spinach because there's so much benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him.> > what signs should I be watching for?> > -Tammy> -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 It was the last diet I tried with our two sons and little did I know it would actually effect my younger (two year old) son more than the one (5 year old) who has confirmed high oxalates! I wish I did this two years ago with my older son is all I have to say. A lot of symptoms mirror yeast overgrowth when you are dumping. I would recommend checking out the Trying Low Oxalates group for more information. About not wanting to remove the foods that you think are so healthy, if they are hurting someone, they aren't healthy. There are alternatives out there for everything. Feel free to to check out my blog to see our journey through biomed. This link will bring you to the page on my blog that has my entries categorized by topic, scroll down and you will find my entries on the LOD... http://grayson-youarewhatyoueat.blogspot.com/p/my-blog-at-your-fingertips.html > > So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know. > I hate to cut out stuff like carrots and spinach because there's so much benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him. > > what signs should I be watching for? > > -Tammy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 B6 is very good to combat oxalate specially from vitamin cSent from my Verizon Wireless BlackBerrySender: mb12 valtrex Date: Mon, 21 Feb 2011 01:53:34 -0000To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: oxalates It was the last diet I tried with our two sons and little did I know it would actually effect my younger (two year old) son more than the one (5 year old) who has confirmed high oxalates! I wish I did this two years ago with my older son is all I have to say. A lot of symptoms mirror yeast overgrowth when you are dumping. I would recommend checking out the Trying Low Oxalates group for more information.About not wanting to remove the foods that you think are so healthy, if they are hurting someone, they aren't healthy. There are alternatives out there for everything. Feel free to to check out my blog to see our journey through biomed. This link will bring you to the page on my blog that has my entries categorized by topic, scroll down and you will find my entries on the LOD...http://grayson-youarewhatyoueat.blogspot.com/p/my-blog-at-your-fingertips.html--- In mb12 valtrex , T Lynn wrote:>> So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know.> I hate to cut out stuff like carrots and spinach because there's so much benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him.> > what signs should I be watching for?> > -Tammy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 B6 is very good to combat oxalate specially from vitamin cSent from my Verizon Wireless BlackBerrySender: mb12 valtrex Date: Mon, 21 Feb 2011 01:53:34 -0000To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: oxalates It was the last diet I tried with our two sons and little did I know it would actually effect my younger (two year old) son more than the one (5 year old) who has confirmed high oxalates! I wish I did this two years ago with my older son is all I have to say. A lot of symptoms mirror yeast overgrowth when you are dumping. I would recommend checking out the Trying Low Oxalates group for more information.About not wanting to remove the foods that you think are so healthy, if they are hurting someone, they aren't healthy. There are alternatives out there for everything. Feel free to to check out my blog to see our journey through biomed. This link will bring you to the page on my blog that has my entries categorized by topic, scroll down and you will find my entries on the LOD...http://grayson-youarewhatyoueat.blogspot.com/p/my-blog-at-your-fingertips.html--- In mb12 valtrex , T Lynn wrote:>> So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know.> I hate to cut out stuff like carrots and spinach because there's so much benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him.> > what signs should I be watching for?> > -Tammy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 ROCK ON ALBERTA!! This is awesome news - I love when people post gains and updates!! It's so encouraging - it's working!! yeah!! happy happy joy joy!! Let me hear ya say oh - OH! Now Somebody, anybody, everybody scream YEAHHHHHHHH!!!! laura > > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days > after Christmas Day, when Maia was sick and had the flu and didn't eat for 2 > days -- I used that as an opportunity to start her on SCD and reduce > oxalates. > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with > all the interventions we've done. I've stopped almost all of her > supplements right now except liquid MB12 and CLO. We are also doing some > cell food and chlorophyll on the advice of our DAN. > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came > out (I had no idea prior to starting this that she even had an oxalate issue > -- she just had chronic loose stools and I couldn't figure out why). > > Here are the new things I'm seeing in Week 8 that weren't there before: > 1. Verbal imitation -- this is the holy grail I've been chasing for a whole > year. She is imitating certain words in poetry on kids shows she's seeing > on TV. She imitates words I make. Prompted is still a bit iffy but when > her ABA therapist asked her to sit the other day, Maia pulled out the chair > and said " sit " . She is imitating all kinds of words and sounds that people > around her are making. She is trying to sing songs. She went from > completely mute a year ago to imitation. She had some quasi word > approximations 2 months ago, but now it is turning into focus on what > someone is saying and verbal imitation. Lots and lots of chattering all day > long. My chatty little Princess Maia! She is attempting new words like > saying " music " , " store " . > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a > bubble wand now. She was not able to do this even two weeks ago. This is a > skill she has just acquired. > > 3. Her stools are consistently formed now. She had an infraction a few days > ago and ate some potato chips and got into some chocolate. Not pretty and > she had diarrhea for two days but once those things left the system, > everything was good again. > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session with > only one 15 minute break in her last ABA session. > > 5. Can sit through circle time at preschool very consistently now. She can > sit through 35 minutes at a time now without getting up and getting > distracted. She participates in circle time. > > 6. She had an awkward wave before where when she was prompted to wave " bye " > to someone, the palm of her hand would be facing herself. She has just > learned to correct that in Week 7 of reduced oxalate/SCD. > > > This is SO exciting for us. I never imagined that her apraxia could lift > like that. I wish I would've spent that last year doing SCD and low > oxalates. I'm so motivated to do this right now and I'm going to be so > fastidious about it. I'm so amazed at the really nice things I've been > seeing in only 8 weeks on this new diet. Really, really nice! > > I just picked up her DMG in liquid form right now to make sure it's SCD. > But I've also heard that many people with oxalate issues have problems with > DMG. But I was seeing her do some nice things in DMG before. I'm going to > re-introduce it again slowly and see what happens. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 ROCK ON ALBERTA!! This is awesome news - I love when people post gains and updates!! It's so encouraging - it's working!! yeah!! happy happy joy joy!! Let me hear ya say oh - OH! Now Somebody, anybody, everybody scream YEAHHHHHHHH!!!! laura > > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days > after Christmas Day, when Maia was sick and had the flu and didn't eat for 2 > days -- I used that as an opportunity to start her on SCD and reduce > oxalates. > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with > all the interventions we've done. I've stopped almost all of her > supplements right now except liquid MB12 and CLO. We are also doing some > cell food and chlorophyll on the advice of our DAN. > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came > out (I had no idea prior to starting this that she even had an oxalate issue > -- she just had chronic loose stools and I couldn't figure out why). > > Here are the new things I'm seeing in Week 8 that weren't there before: > 1. Verbal imitation -- this is the holy grail I've been chasing for a whole > year. She is imitating certain words in poetry on kids shows she's seeing > on TV. She imitates words I make. Prompted is still a bit iffy but when > her ABA therapist asked her to sit the other day, Maia pulled out the chair > and said " sit " . She is imitating all kinds of words and sounds that people > around her are making. She is trying to sing songs. She went from > completely mute a year ago to imitation. She had some quasi word > approximations 2 months ago, but now it is turning into focus on what > someone is saying and verbal imitation. Lots and lots of chattering all day > long. My chatty little Princess Maia! She is attempting new words like > saying " music " , " store " . > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a > bubble wand now. She was not able to do this even two weeks ago. This is a > skill she has just acquired. > > 3. Her stools are consistently formed now. She had an infraction a few days > ago and ate some potato chips and got into some chocolate. Not pretty and > she had diarrhea for two days but once those things left the system, > everything was good again. > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session with > only one 15 minute break in her last ABA session. > > 5. Can sit through circle time at preschool very consistently now. She can > sit through 35 minutes at a time now without getting up and getting > distracted. She participates in circle time. > > 6. She had an awkward wave before where when she was prompted to wave " bye " > to someone, the palm of her hand would be facing herself. She has just > learned to correct that in Week 7 of reduced oxalate/SCD. > > > This is SO exciting for us. I never imagined that her apraxia could lift > like that. I wish I would've spent that last year doing SCD and low > oxalates. I'm so motivated to do this right now and I'm going to be so > fastidious about it. I'm so amazed at the really nice things I've been > seeing in only 8 weeks on this new diet. Really, really nice! > > I just picked up her DMG in liquid form right now to make sure it's SCD. > But I've also heard that many people with oxalate issues have problems with > DMG. But I was seeing her do some nice things in DMG before. I'm going to > re-introduce it again slowly and see what happens. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 @Alberta! Awesome! So THAT'S what Oxalate dumping looks like? I saw crystals in my sons stool a couple days ago!! Sweet! I am doing a modified SCD where I am allowing one starch a day....(kind of a weaning process b/c he has been a carb addict even though GFCF!!) What are the biggest Oxalate foods that I should keep in check?? HELP!! Also we are on day 11 Valtrex/Diflucan and he had BRIGHT red cheecks tonight and 2 rashy spots on either side of his mouth!! Yay for a sign that something's going ON!! > > Alberta!!!!!!!!!!!!!!!!!! > Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the happy dance > for you, mama!! > > I want to say thank you because 15 minutes ago I was feeling so frustrated and > discouraged that I was ready to throw in the towel and drive my son to pizza > hut. Hearing this put me right back in check. > > Way to go Maia!!!! > > -Tammy > > > > ________________________________ > > To: mb12 valtrex > Sent: Sun, February 20, 2011 7:29:20 PM > Subject: Re: Re: oxalates > >  > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after > Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I > used that as an opportunity to start her on SCD and reduce oxalates. > > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all > the interventions we've done. I've stopped almost all of her supplements right > now except liquid MB12 and CLO. We are also doing some cell food and > chlorophyll on the advice of our DAN. > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out > (I had no idea prior to starting this that she even had an oxalate issue -- she > just had chronic loose stools and I couldn't figure out why). > > > Here are the new things I'm seeing in Week 8 that weren't there before: > 1. Verbal imitation -- this is the holy grail I've been chasing for a whole > year. She is imitating certain words in poetry on kids shows she's seeing on > TV. She imitates words I make. Prompted is still a bit iffy but when her ABA > therapist asked her to sit the other day, Maia pulled out the chair and said > " sit " . She is imitating all kinds of words and sounds that people around her > are making. She is trying to sing songs. She went from completely mute a year > ago to imitation. She had some quasi word approximations 2 months ago, but now > it is turning into focus on what someone is saying and verbal imitation. Lots > and lots of chattering all day long. My chatty little Princess Maia! She is > attempting new words like saying " music " , " store " . > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble > wand now. She was not able to do this even two weeks ago. This is a skill she > has just acquired. > > > 3. Her stools are consistently formed now. She had an infraction a few days ago > and ate some potato chips and got into some chocolate. Not pretty and she had > diarrhea for two days but once those things left the system, everything was good > again. > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only > one 15 minute break in her last ABA session. > > > 5. Can sit through circle time at preschool very consistently now. She can sit > through 35 minutes at a time now without getting up and getting distracted. She > participates in circle time. > > 6. She had an awkward wave before where when she was prompted to wave " bye " to > someone, the palm of her hand would be facing herself. She has just learned to > correct that in Week 7 of reduced oxalate/SCD. > > > This is SO exciting for us. I never imagined that her apraxia could lift like > that. I wish I would've spent that last year doing SCD and low oxalates. I'm > so motivated to do this right now and I'm going to be so fastidious about it. > I'm so amazed at the really nice things I've been seeing in only 8 weeks on this > new diet. Really, really nice! > > I just picked up her DMG in liquid form right now to make sure it's SCD. But > I've also heard that many people with oxalate issues have problems with DMG. > But I was seeing her do some nice things in DMG before. I'm going to > re-introduce it again slowly and see what happens. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 @Alberta! Awesome! So THAT'S what Oxalate dumping looks like? I saw crystals in my sons stool a couple days ago!! Sweet! I am doing a modified SCD where I am allowing one starch a day....(kind of a weaning process b/c he has been a carb addict even though GFCF!!) What are the biggest Oxalate foods that I should keep in check?? HELP!! Also we are on day 11 Valtrex/Diflucan and he had BRIGHT red cheecks tonight and 2 rashy spots on either side of his mouth!! Yay for a sign that something's going ON!! > > Alberta!!!!!!!!!!!!!!!!!! > Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the happy dance > for you, mama!! > > I want to say thank you because 15 minutes ago I was feeling so frustrated and > discouraged that I was ready to throw in the towel and drive my son to pizza > hut. Hearing this put me right back in check. > > Way to go Maia!!!! > > -Tammy > > > > ________________________________ > > To: mb12 valtrex > Sent: Sun, February 20, 2011 7:29:20 PM > Subject: Re: Re: oxalates > >  > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after > Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I > used that as an opportunity to start her on SCD and reduce oxalates. > > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all > the interventions we've done. I've stopped almost all of her supplements right > now except liquid MB12 and CLO. We are also doing some cell food and > chlorophyll on the advice of our DAN. > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out > (I had no idea prior to starting this that she even had an oxalate issue -- she > just had chronic loose stools and I couldn't figure out why). > > > Here are the new things I'm seeing in Week 8 that weren't there before: > 1. Verbal imitation -- this is the holy grail I've been chasing for a whole > year. She is imitating certain words in poetry on kids shows she's seeing on > TV. She imitates words I make. Prompted is still a bit iffy but when her ABA > therapist asked her to sit the other day, Maia pulled out the chair and said > " sit " . She is imitating all kinds of words and sounds that people around her > are making. She is trying to sing songs. She went from completely mute a year > ago to imitation. She had some quasi word approximations 2 months ago, but now > it is turning into focus on what someone is saying and verbal imitation. Lots > and lots of chattering all day long. My chatty little Princess Maia! She is > attempting new words like saying " music " , " store " . > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble > wand now. She was not able to do this even two weeks ago. This is a skill she > has just acquired. > > > 3. Her stools are consistently formed now. She had an infraction a few days ago > and ate some potato chips and got into some chocolate. Not pretty and she had > diarrhea for two days but once those things left the system, everything was good > again. > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only > one 15 minute break in her last ABA session. > > > 5. Can sit through circle time at preschool very consistently now. She can sit > through 35 minutes at a time now without getting up and getting distracted. She > participates in circle time. > > 6. She had an awkward wave before where when she was prompted to wave " bye " to > someone, the palm of her hand would be facing herself. She has just learned to > correct that in Week 7 of reduced oxalate/SCD. > > > This is SO exciting for us. I never imagined that her apraxia could lift like > that. I wish I would've spent that last year doing SCD and low oxalates. I'm > so motivated to do this right now and I'm going to be so fastidious about it. > I'm so amazed at the really nice things I've been seeing in only 8 weeks on this > new diet. Really, really nice! > > I just picked up her DMG in liquid form right now to make sure it's SCD. But > I've also heard that many people with oxalate issues have problems with DMG. > But I was seeing her do some nice things in DMG before. I'm going to > re-introduce it again slowly and see what happens. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Nut butters, some beans, spinach, rhubarb, chocolate.Only LOW ox bean is black eyed peas, and they are SCD illegal. @Alberta! Awesome! So THAT'S what Oxalate dumping looks like? I saw crystals in my sons stool a couple days ago!! Sweet! I am doing a modified SCD where I am allowing one starch a day....(kind of a weaning process b/c he has been a carb addict even though GFCF!!) What are the biggest Oxalate foods that I should keep in check?? HELP!! Also we are on day 11 Valtrex/Diflucan and he had BRIGHT red cheecks tonight and 2 rashy spots on either side of his mouth!! Yay for a sign that something's going ON!! > > Alberta!!!!!!!!!!!!!!!!!! > Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the happy dance > for you, mama!! > > I want to say thank you because 15 minutes ago I was feeling so frustrated and > discouraged that I was ready to throw in the towel and drive my son to pizza > hut. Hearing this put me right back in check. > > Way to go Maia!!!! > > -Tammy > > > > ________________________________ > > To: mb12 valtrex > Sent: Sun, February 20, 2011 7:29:20 PM > Subject: Re: Re: oxalates > >  > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after > Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I > used that as an opportunity to start her on SCD and reduce oxalates. > > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all > the interventions we've done. I've stopped almost all of her supplements right > now except liquid MB12 and CLO. We are also doing some cell food and > chlorophyll on the advice of our DAN. > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out > (I had no idea prior to starting this that she even had an oxalate issue -- she > just had chronic loose stools and I couldn't figure out why). > > > Here are the new things I'm seeing in Week 8 that weren't there before: > 1. Verbal imitation -- this is the holy grail I've been chasing for a whole > year. She is imitating certain words in poetry on kids shows she's seeing on > TV. She imitates words I make. Prompted is still a bit iffy but when her ABA > therapist asked her to sit the other day, Maia pulled out the chair and said > " sit " . She is imitating all kinds of words and sounds that people around her > are making. She is trying to sing songs. She went from completely mute a year > ago to imitation. She had some quasi word approximations 2 months ago, but now > it is turning into focus on what someone is saying and verbal imitation. Lots > and lots of chattering all day long. My chatty little Princess Maia! She is > attempting new words like saying " music " , " store " . > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble > wand now. She was not able to do this even two weeks ago. This is a skill she > has just acquired. > > > 3. Her stools are consistently formed now. She had an infraction a few days ago > and ate some potato chips and got into some chocolate. Not pretty and she had > diarrhea for two days but once those things left the system, everything was good > again. > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only > one 15 minute break in her last ABA session. > > > 5. Can sit through circle time at preschool very consistently now. She can sit > through 35 minutes at a time now without getting up and getting distracted. She > participates in circle time. > > 6. She had an awkward wave before where when she was prompted to wave " bye " to > someone, the palm of her hand would be facing herself. She has just learned to > correct that in Week 7 of reduced oxalate/SCD. > > > This is SO exciting for us. I never imagined that her apraxia could lift like > that. I wish I would've spent that last year doing SCD and low oxalates. I'm > so motivated to do this right now and I'm going to be so fastidious about it. > I'm so amazed at the really nice things I've been seeing in only 8 weeks on this > new diet. Really, really nice! > > I just picked up her DMG in liquid form right now to make sure it's SCD. But > I've also heard that many people with oxalate issues have problems with DMG. > But I was seeing her do some nice things in DMG before. I'm going to > re-introduce it again slowly and see what happens. > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Nut butters, some beans, spinach, rhubarb, chocolate.Only LOW ox bean is black eyed peas, and they are SCD illegal. @Alberta! Awesome! So THAT'S what Oxalate dumping looks like? I saw crystals in my sons stool a couple days ago!! Sweet! I am doing a modified SCD where I am allowing one starch a day....(kind of a weaning process b/c he has been a carb addict even though GFCF!!) What are the biggest Oxalate foods that I should keep in check?? HELP!! Also we are on day 11 Valtrex/Diflucan and he had BRIGHT red cheecks tonight and 2 rashy spots on either side of his mouth!! Yay for a sign that something's going ON!! > > Alberta!!!!!!!!!!!!!!!!!! > Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the happy dance > for you, mama!! > > I want to say thank you because 15 minutes ago I was feeling so frustrated and > discouraged that I was ready to throw in the towel and drive my son to pizza > hut. Hearing this put me right back in check. > > Way to go Maia!!!! > > -Tammy > > > > ________________________________ > > To: mb12 valtrex > Sent: Sun, February 20, 2011 7:29:20 PM > Subject: Re: Re: oxalates > >  > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after > Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I > used that as an opportunity to start her on SCD and reduce oxalates. > > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all > the interventions we've done. I've stopped almost all of her supplements right > now except liquid MB12 and CLO. We are also doing some cell food and > chlorophyll on the advice of our DAN. > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out > (I had no idea prior to starting this that she even had an oxalate issue -- she > just had chronic loose stools and I couldn't figure out why). > > > Here are the new things I'm seeing in Week 8 that weren't there before: > 1. Verbal imitation -- this is the holy grail I've been chasing for a whole > year. She is imitating certain words in poetry on kids shows she's seeing on > TV. She imitates words I make. Prompted is still a bit iffy but when her ABA > therapist asked her to sit the other day, Maia pulled out the chair and said > " sit " . She is imitating all kinds of words and sounds that people around her > are making. She is trying to sing songs. She went from completely mute a year > ago to imitation. She had some quasi word approximations 2 months ago, but now > it is turning into focus on what someone is saying and verbal imitation. Lots > and lots of chattering all day long. My chatty little Princess Maia! She is > attempting new words like saying " music " , " store " . > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble > wand now. She was not able to do this even two weeks ago. This is a skill she > has just acquired. > > > 3. Her stools are consistently formed now. She had an infraction a few days ago > and ate some potato chips and got into some chocolate. Not pretty and she had > diarrhea for two days but once those things left the system, everything was good > again. > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only > one 15 minute break in her last ABA session. > > > 5. Can sit through circle time at preschool very consistently now. She can sit > through 35 minutes at a time now without getting up and getting distracted. She > participates in circle time. > > 6. She had an awkward wave before where when she was prompted to wave " bye " to > someone, the palm of her hand would be facing herself. She has just learned to > correct that in Week 7 of reduced oxalate/SCD. > > > This is SO exciting for us. I never imagined that her apraxia could lift like > that. I wish I would've spent that last year doing SCD and low oxalates. I'm > so motivated to do this right now and I'm going to be so fastidious about it. > I'm so amazed at the really nice things I've been seeing in only 8 weeks on this > new diet. Really, really nice! > > I just picked up her DMG in liquid form right now to make sure it's SCD. But > I've also heard that many people with oxalate issues have problems with DMG. > But I was seeing her do some nice things in DMG before. I'm going to > re-introduce it again slowly and see what happens. > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Nut butters, some beans, spinach, rhubarb, chocolate.Only LOW ox bean is black eyed peas, and they are SCD illegal. @Alberta! Awesome! So THAT'S what Oxalate dumping looks like? I saw crystals in my sons stool a couple days ago!! Sweet! I am doing a modified SCD where I am allowing one starch a day....(kind of a weaning process b/c he has been a carb addict even though GFCF!!) What are the biggest Oxalate foods that I should keep in check?? HELP!! Also we are on day 11 Valtrex/Diflucan and he had BRIGHT red cheecks tonight and 2 rashy spots on either side of his mouth!! Yay for a sign that something's going ON!! > > Alberta!!!!!!!!!!!!!!!!!! > Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the happy dance > for you, mama!! > > I want to say thank you because 15 minutes ago I was feeling so frustrated and > discouraged that I was ready to throw in the towel and drive my son to pizza > hut. Hearing this put me right back in check. > > Way to go Maia!!!! > > -Tammy > > > > ________________________________ > > To: mb12 valtrex > Sent: Sun, February 20, 2011 7:29:20 PM > Subject: Re: Re: oxalates > >  > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after > Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I > used that as an opportunity to start her on SCD and reduce oxalates. > > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all > the interventions we've done. I've stopped almost all of her supplements right > now except liquid MB12 and CLO. We are also doing some cell food and > chlorophyll on the advice of our DAN. > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out > (I had no idea prior to starting this that she even had an oxalate issue -- she > just had chronic loose stools and I couldn't figure out why). > > > Here are the new things I'm seeing in Week 8 that weren't there before: > 1. Verbal imitation -- this is the holy grail I've been chasing for a whole > year. She is imitating certain words in poetry on kids shows she's seeing on > TV. She imitates words I make. Prompted is still a bit iffy but when her ABA > therapist asked her to sit the other day, Maia pulled out the chair and said > " sit " . She is imitating all kinds of words and sounds that people around her > are making. She is trying to sing songs. She went from completely mute a year > ago to imitation. She had some quasi word approximations 2 months ago, but now > it is turning into focus on what someone is saying and verbal imitation. Lots > and lots of chattering all day long. My chatty little Princess Maia! She is > attempting new words like saying " music " , " store " . > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble > wand now. She was not able to do this even two weeks ago. This is a skill she > has just acquired. > > > 3. Her stools are consistently formed now. She had an infraction a few days ago > and ate some potato chips and got into some chocolate. Not pretty and she had > diarrhea for two days but once those things left the system, everything was good > again. > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only > one 15 minute break in her last ABA session. > > > 5. Can sit through circle time at preschool very consistently now. She can sit > through 35 minutes at a time now without getting up and getting distracted. She > participates in circle time. > > 6. She had an awkward wave before where when she was prompted to wave " bye " to > someone, the palm of her hand would be facing herself. She has just learned to > correct that in Week 7 of reduced oxalate/SCD. > > > This is SO exciting for us. I never imagined that her apraxia could lift like > that. I wish I would've spent that last year doing SCD and low oxalates. I'm > so motivated to do this right now and I'm going to be so fastidious about it. > I'm so amazed at the really nice things I've been seeing in only 8 weeks on this > new diet. Really, really nice! > > I just picked up her DMG in liquid form right now to make sure it's SCD. But > I've also heard that many people with oxalate issues have problems with DMG. > But I was seeing her do some nice things in DMG before. I'm going to > re-introduce it again slowly and see what happens. > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 I couldn't believe the stuff that was coming out. All kinds of the weirdest crystals -- some were actually quite big -- about the size of a coarse grain of salt. And some pieces even had black specs stuck onto them. I couldn't crush some of these crystals with my fingers -- these were very compacted pieces. The other pieces that were brownish-reddish I could easily smoosh in my fingers and they disintegrated into the very very fine crystals when smooshed. I'm still reeling at how they came out. Most of the " free " ones that were in her urine were very very tiny -- they looked like grit that would come off very fine sandpaper. I described it in detail to the Trying Low Oxalates group. It was SO weird that it took me a while to wrap my brain around it. There were a few days where the urine in her potty was really cloudy. I shone a flashlight to it to see if I could see the bigger oxalate pieces and I almost fell over when I saw that the cloudiness in her urine was actually saturation of the very fine oxalate crystals. There were literally millions of the really fine crystals in her pee and it was so fine that I was just seeing it as cloudy pee but when I shone a flashlight to it, the tiny crystals reflected the light from the flashlight and I could see the little crystals floating around!!!! When I read about the relationship between dumping and B6, I started to wonder if that was why she had trouble with B-complexes and didn't do so well when even I tried to supplement B6 alone before. The time when I supplemented B6, she was still in diapers and I start to wonder if what I was seeing wasn't a " bad " reaction to B6 (because I saw an increase in loose stools) -- I wonder if it was an ox dump. I definitely wouldn't have been able to see these crystals in a diaper at the time. Raw nectarine is still giving her diarrhea. She can do raw pears if they're very ripe but peaches and nectarines are still a no-go when they're raw. Apples, still not happening if she eats a whole apple (raw or cooked) but she can have some small amounts of apple sauce when I cook the apples and puree them. She definitely can't do grape juice or avocados. We can't do eggs. We can't do chicken but turkey is ok. I just kind of have our own customized version of SCD with foods that she will tolerate. I'm still trying to figure out my son. I just added milk back into his diet and he's doing much better with milk than without. He LOVES his potatoes and I wonder if potatoes are an issue for him because he freaks out about them so much. When I got home from work yesterday, my husband told me that Ethan was crying at some point in the day. Maia went up to him and gave him a kiss on the cheek to try to calm him. Sympathy or empathy? This is definitely new behavior that didn't exist before low-ox/SCD. I swear, new things keep happening every day on this diet. Low ox/SCD totally rocks! @Alberta! Awesome! So THAT'S what Oxalate dumping looks like? I saw crystals in my sons stool a couple days ago!! Sweet! I am doing a modified SCD where I am allowing one starch a day....(kind of a weaning process b/c he has been a carb addict even though GFCF!!) What are the biggest Oxalate foods that I should keep in check?? HELP!! Also we are on day 11 Valtrex/Diflucan and he had BRIGHT red cheecks tonight and 2 rashy spots on either side of his mouth!! Yay for a sign that something's going ON!! > > Alberta!!!!!!!!!!!!!!!!!! > Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the happy dance > for you, mama!! > > I want to say thank you because 15 minutes ago I was feeling so frustrated and > discouraged that I was ready to throw in the towel and drive my son to pizza > hut. Hearing this put me right back in check. > > Way to go Maia!!!! > > -Tammy > > > > ________________________________ > > To: mb12 valtrex > Sent: Sun, February 20, 2011 7:29:20 PM > Subject: Re: Re: oxalates > >  > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after > Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I > used that as an opportunity to start her on SCD and reduce oxalates. > > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all > the interventions we've done. I've stopped almost all of her supplements right > now except liquid MB12 and CLO. We are also doing some cell food and > chlorophyll on the advice of our DAN. > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out > (I had no idea prior to starting this that she even had an oxalate issue -- she > just had chronic loose stools and I couldn't figure out why). > > > Here are the new things I'm seeing in Week 8 that weren't there before: > 1. Verbal imitation -- this is the holy grail I've been chasing for a whole > year. She is imitating certain words in poetry on kids shows she's seeing on > TV. She imitates words I make. Prompted is still a bit iffy but when her ABA > therapist asked her to sit the other day, Maia pulled out the chair and said > " sit " . She is imitating all kinds of words and sounds that people around her > are making. She is trying to sing songs. She went from completely mute a year > ago to imitation. She had some quasi word approximations 2 months ago, but now > it is turning into focus on what someone is saying and verbal imitation. Lots > and lots of chattering all day long. My chatty little Princess Maia! She is > attempting new words like saying " music " , " store " . > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble > wand now. She was not able to do this even two weeks ago. This is a skill she > has just acquired. > > > 3. Her stools are consistently formed now. She had an infraction a few days ago > and ate some potato chips and got into some chocolate. Not pretty and she had > diarrhea for two days but once those things left the system, everything was good > again. > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only > one 15 minute break in her last ABA session. > > > 5. Can sit through circle time at preschool very consistently now. She can sit > through 35 minutes at a time now without getting up and getting distracted. She > participates in circle time. > > 6. She had an awkward wave before where when she was prompted to wave " bye " to > someone, the palm of her hand would be facing herself. She has just learned to > correct that in Week 7 of reduced oxalate/SCD. > > > This is SO exciting for us. I never imagined that her apraxia could lift like > that. I wish I would've spent that last year doing SCD and low oxalates. I'm > so motivated to do this right now and I'm going to be so fastidious about it. > I'm so amazed at the really nice things I've been seeing in only 8 weeks on this > new diet. Really, really nice! > > I just picked up her DMG in liquid form right now to make sure it's SCD. But > I've also heard that many people with oxalate issues have problems with DMG. > But I was seeing her do some nice things in DMG before. I'm going to > re-introduce it again slowly and see what happens. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 I couldn't believe the stuff that was coming out. All kinds of the weirdest crystals -- some were actually quite big -- about the size of a coarse grain of salt. And some pieces even had black specs stuck onto them. I couldn't crush some of these crystals with my fingers -- these were very compacted pieces. The other pieces that were brownish-reddish I could easily smoosh in my fingers and they disintegrated into the very very fine crystals when smooshed. I'm still reeling at how they came out. Most of the " free " ones that were in her urine were very very tiny -- they looked like grit that would come off very fine sandpaper. I described it in detail to the Trying Low Oxalates group. It was SO weird that it took me a while to wrap my brain around it. There were a few days where the urine in her potty was really cloudy. I shone a flashlight to it to see if I could see the bigger oxalate pieces and I almost fell over when I saw that the cloudiness in her urine was actually saturation of the very fine oxalate crystals. There were literally millions of the really fine crystals in her pee and it was so fine that I was just seeing it as cloudy pee but when I shone a flashlight to it, the tiny crystals reflected the light from the flashlight and I could see the little crystals floating around!!!! When I read about the relationship between dumping and B6, I started to wonder if that was why she had trouble with B-complexes and didn't do so well when even I tried to supplement B6 alone before. The time when I supplemented B6, she was still in diapers and I start to wonder if what I was seeing wasn't a " bad " reaction to B6 (because I saw an increase in loose stools) -- I wonder if it was an ox dump. I definitely wouldn't have been able to see these crystals in a diaper at the time. Raw nectarine is still giving her diarrhea. She can do raw pears if they're very ripe but peaches and nectarines are still a no-go when they're raw. Apples, still not happening if she eats a whole apple (raw or cooked) but she can have some small amounts of apple sauce when I cook the apples and puree them. She definitely can't do grape juice or avocados. We can't do eggs. We can't do chicken but turkey is ok. I just kind of have our own customized version of SCD with foods that she will tolerate. I'm still trying to figure out my son. I just added milk back into his diet and he's doing much better with milk than without. He LOVES his potatoes and I wonder if potatoes are an issue for him because he freaks out about them so much. When I got home from work yesterday, my husband told me that Ethan was crying at some point in the day. Maia went up to him and gave him a kiss on the cheek to try to calm him. Sympathy or empathy? This is definitely new behavior that didn't exist before low-ox/SCD. I swear, new things keep happening every day on this diet. Low ox/SCD totally rocks! @Alberta! Awesome! So THAT'S what Oxalate dumping looks like? I saw crystals in my sons stool a couple days ago!! Sweet! I am doing a modified SCD where I am allowing one starch a day....(kind of a weaning process b/c he has been a carb addict even though GFCF!!) What are the biggest Oxalate foods that I should keep in check?? HELP!! Also we are on day 11 Valtrex/Diflucan and he had BRIGHT red cheecks tonight and 2 rashy spots on either side of his mouth!! Yay for a sign that something's going ON!! > > Alberta!!!!!!!!!!!!!!!!!! > Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the happy dance > for you, mama!! > > I want to say thank you because 15 minutes ago I was feeling so frustrated and > discouraged that I was ready to throw in the towel and drive my son to pizza > hut. Hearing this put me right back in check. > > Way to go Maia!!!! > > -Tammy > > > > ________________________________ > > To: mb12 valtrex > Sent: Sun, February 20, 2011 7:29:20 PM > Subject: Re: Re: oxalates > >  > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after > Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I > used that as an opportunity to start her on SCD and reduce oxalates. > > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all > the interventions we've done. I've stopped almost all of her supplements right > now except liquid MB12 and CLO. We are also doing some cell food and > chlorophyll on the advice of our DAN. > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out > (I had no idea prior to starting this that she even had an oxalate issue -- she > just had chronic loose stools and I couldn't figure out why). > > > Here are the new things I'm seeing in Week 8 that weren't there before: > 1. Verbal imitation -- this is the holy grail I've been chasing for a whole > year. She is imitating certain words in poetry on kids shows she's seeing on > TV. She imitates words I make. Prompted is still a bit iffy but when her ABA > therapist asked her to sit the other day, Maia pulled out the chair and said > " sit " . She is imitating all kinds of words and sounds that people around her > are making. She is trying to sing songs. She went from completely mute a year > ago to imitation. She had some quasi word approximations 2 months ago, but now > it is turning into focus on what someone is saying and verbal imitation. Lots > and lots of chattering all day long. My chatty little Princess Maia! She is > attempting new words like saying " music " , " store " . > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble > wand now. She was not able to do this even two weeks ago. This is a skill she > has just acquired. > > > 3. Her stools are consistently formed now. She had an infraction a few days ago > and ate some potato chips and got into some chocolate. Not pretty and she had > diarrhea for two days but once those things left the system, everything was good > again. > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only > one 15 minute break in her last ABA session. > > > 5. Can sit through circle time at preschool very consistently now. She can sit > through 35 minutes at a time now without getting up and getting distracted. She > participates in circle time. > > 6. She had an awkward wave before where when she was prompted to wave " bye " to > someone, the palm of her hand would be facing herself. She has just learned to > correct that in Week 7 of reduced oxalate/SCD. > > > This is SO exciting for us. I never imagined that her apraxia could lift like > that. I wish I would've spent that last year doing SCD and low oxalates. I'm > so motivated to do this right now and I'm going to be so fastidious about it. > I'm so amazed at the really nice things I've been seeing in only 8 weeks on this > new diet. Really, really nice! > > I just picked up her DMG in liquid form right now to make sure it's SCD. But > I've also heard that many people with oxalate issues have problems with DMG. > But I was seeing her do some nice things in DMG before. I'm going to > re-introduce it again slowly and see what happens. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 I couldn't believe the stuff that was coming out. All kinds of the weirdest crystals -- some were actually quite big -- about the size of a coarse grain of salt. And some pieces even had black specs stuck onto them. I couldn't crush some of these crystals with my fingers -- these were very compacted pieces. The other pieces that were brownish-reddish I could easily smoosh in my fingers and they disintegrated into the very very fine crystals when smooshed. I'm still reeling at how they came out. Most of the " free " ones that were in her urine were very very tiny -- they looked like grit that would come off very fine sandpaper. I described it in detail to the Trying Low Oxalates group. It was SO weird that it took me a while to wrap my brain around it. There were a few days where the urine in her potty was really cloudy. I shone a flashlight to it to see if I could see the bigger oxalate pieces and I almost fell over when I saw that the cloudiness in her urine was actually saturation of the very fine oxalate crystals. There were literally millions of the really fine crystals in her pee and it was so fine that I was just seeing it as cloudy pee but when I shone a flashlight to it, the tiny crystals reflected the light from the flashlight and I could see the little crystals floating around!!!! When I read about the relationship between dumping and B6, I started to wonder if that was why she had trouble with B-complexes and didn't do so well when even I tried to supplement B6 alone before. The time when I supplemented B6, she was still in diapers and I start to wonder if what I was seeing wasn't a " bad " reaction to B6 (because I saw an increase in loose stools) -- I wonder if it was an ox dump. I definitely wouldn't have been able to see these crystals in a diaper at the time. Raw nectarine is still giving her diarrhea. She can do raw pears if they're very ripe but peaches and nectarines are still a no-go when they're raw. Apples, still not happening if she eats a whole apple (raw or cooked) but she can have some small amounts of apple sauce when I cook the apples and puree them. She definitely can't do grape juice or avocados. We can't do eggs. We can't do chicken but turkey is ok. I just kind of have our own customized version of SCD with foods that she will tolerate. I'm still trying to figure out my son. I just added milk back into his diet and he's doing much better with milk than without. He LOVES his potatoes and I wonder if potatoes are an issue for him because he freaks out about them so much. When I got home from work yesterday, my husband told me that Ethan was crying at some point in the day. Maia went up to him and gave him a kiss on the cheek to try to calm him. Sympathy or empathy? This is definitely new behavior that didn't exist before low-ox/SCD. I swear, new things keep happening every day on this diet. Low ox/SCD totally rocks! @Alberta! Awesome! So THAT'S what Oxalate dumping looks like? I saw crystals in my sons stool a couple days ago!! Sweet! I am doing a modified SCD where I am allowing one starch a day....(kind of a weaning process b/c he has been a carb addict even though GFCF!!) What are the biggest Oxalate foods that I should keep in check?? HELP!! Also we are on day 11 Valtrex/Diflucan and he had BRIGHT red cheecks tonight and 2 rashy spots on either side of his mouth!! Yay for a sign that something's going ON!! > > Alberta!!!!!!!!!!!!!!!!!! > Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the happy dance > for you, mama!! > > I want to say thank you because 15 minutes ago I was feeling so frustrated and > discouraged that I was ready to throw in the towel and drive my son to pizza > hut. Hearing this put me right back in check. > > Way to go Maia!!!! > > -Tammy > > > > ________________________________ > > To: mb12 valtrex > Sent: Sun, February 20, 2011 7:29:20 PM > Subject: Re: Re: oxalates > >  > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after > Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I > used that as an opportunity to start her on SCD and reduce oxalates. > > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all > the interventions we've done. I've stopped almost all of her supplements right > now except liquid MB12 and CLO. We are also doing some cell food and > chlorophyll on the advice of our DAN. > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out > (I had no idea prior to starting this that she even had an oxalate issue -- she > just had chronic loose stools and I couldn't figure out why). > > > Here are the new things I'm seeing in Week 8 that weren't there before: > 1. Verbal imitation -- this is the holy grail I've been chasing for a whole > year. She is imitating certain words in poetry on kids shows she's seeing on > TV. She imitates words I make. Prompted is still a bit iffy but when her ABA > therapist asked her to sit the other day, Maia pulled out the chair and said > " sit " . She is imitating all kinds of words and sounds that people around her > are making. She is trying to sing songs. She went from completely mute a year > ago to imitation. She had some quasi word approximations 2 months ago, but now > it is turning into focus on what someone is saying and verbal imitation. Lots > and lots of chattering all day long. My chatty little Princess Maia! She is > attempting new words like saying " music " , " store " . > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble > wand now. She was not able to do this even two weeks ago. This is a skill she > has just acquired. > > > 3. Her stools are consistently formed now. She had an infraction a few days ago > and ate some potato chips and got into some chocolate. Not pretty and she had > diarrhea for two days but once those things left the system, everything was good > again. > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only > one 15 minute break in her last ABA session. > > > 5. Can sit through circle time at preschool very consistently now. She can sit > through 35 minutes at a time now without getting up and getting distracted. She > participates in circle time. > > 6. She had an awkward wave before where when she was prompted to wave " bye " to > someone, the palm of her hand would be facing herself. She has just learned to > correct that in Week 7 of reduced oxalate/SCD. > > > This is SO exciting for us. I never imagined that her apraxia could lift like > that. I wish I would've spent that last year doing SCD and low oxalates. I'm > so motivated to do this right now and I'm going to be so fastidious about it. > I'm so amazed at the really nice things I've been seeing in only 8 weeks on this > new diet. Really, really nice! > > I just picked up her DMG in liquid form right now to make sure it's SCD. But > I've also heard that many people with oxalate issues have problems with DMG. > But I was seeing her do some nice things in DMG before. I'm going to > re-introduce it again slowly and see what happens. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 I wanted to add to this that there is NO doubt the LOD has pretty much turned my kid's life around. He's a huge diet responder in the first place, but we were fortunate enough to be led to the LOD FIRST, and wow. I wish you could see my kid. When I first started reading about it, I was pretty much in despair because I thought there was just NO way I could get him off his chocolate almond milk (makes me cringe to think about it),do GFCFSFCF, Feingold, everything-free, but just a few months later we were rockin' and rollin' and it's just second nature now. Soon as I see one ingredient I go " Nope. " The ladies over on TLO group are much better cooks than I, but they share like crazy and are amazing like the ones here. We gotta get rid of his parasite infection, deal with thyroid issues, but other than that LOD is all we do. He's had two pretty big regressions in the past year, both times when we tried Nystatin, big shocker, just made that connection a few days ago. Everytime I try one of the " wonder drugs " it backfires, so we just decided hey, lets just keep doing what works. AND LOD WORKS! You'll be happy you tried it, Amy > > > > So how do you know when you should avoid high oxalates? > > > > I strongly suspect I should avoid it with my younger guy. But the older, I > > don't know. > > I hate to cut out stuff like carrots and spinach because there's so much > >benefit > > > > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > > > > to mix in supps but as a source of protein because beef came back elevated so I > > > > try to watch it. I hate to take these things away if oxolates are not an issue > > > for him. > > > > what signs should I be watching for? > > > > -Tammy > > > Quote Link to comment Share on other sites More sharing options...
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