Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Some children have numerous growth spurts while wearing their helmet and therefore outgrow them before the treatment is over. I think it depends on how young your child is when you start the treatment, how severe the plagio is and how many significant growth spurts your child has. As far as the facial assymetry, I'm not sure how to respond to that because we actually have a serious problem with facial assymetry. Are you close by your orthotist? That would make it easier to take your baby in whenever you felt uncomfortable about the fit. If your orthotist is experienced I would think that it would not adversely affect the facial symmetry. I hope this helps and hang in there! Marci (Mom to ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 In a message dated 1/30/01 12:03:13 PM Pacific Standard Time, pewpew@... writes: symmetrical to begin with? Will I be making matters worse if the helmet is not fitting properly? Also why do some children need 2-3 helmets? Is there just flatness in the back? Often those with facial asymmetry have more flattening and widening on the sides or tort. The younger the child, the faster they grow. If they don't get the results they need in that time period, a second is needed. Tammy & 12/8/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 In a message dated 4/28/2003 4:56:50 AM Central Daylight Time, khawakaqaiser@... writes: > What does it mean by cold pressed olive oil. Usually > in superstores only extra virgin oil is available. cold pressed is usually listed on the label somewhere. It means the olives are pressed and the oil extracted without using heat. Heat can destroy nutrients. So the best olive is the 'first cold pressing " , it's the first time the olives are squished and the richest, most nutrient oil is extracted. Super stores carry it, you just have to look for it on the label........it usually says, " first cold pressing " or something like that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 In a message dated 4/28/2003 12:29:49 PM Central Daylight Time, walkswoman@... writes: > Carapelli if you have it there. jan > yes that is the one i use.......you can buy it at kroger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> The function of cold pressed extra virgin olive oil is to lubricate duct and gb. The use of apple juice/grapefruit juice is perhaps to soften stones. The use of lemon juice with olive oil is perhaps to push out stones. Is my understanding correct. Which juice is more useful in softening the stones apple juice or lemon juice The freshly squeezed apple juice is better or pure apple juice in the bottles marketed by some companies. Which one is more better. What does it mean by cold pressed olive oil. Usually in superstores only extra virgin oil is available. >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Wrong, the oil doesn't lubricate the bile ducts bile does that job. This is something of a misconception, the belief that the oil is going into the liver as an oil. What is happening is there is a demand for bile being made by the over abundance of oil in the intestines and that is what causes the liver and gallbladder to contract to try to deliver the needed amount of bile to deal with that amount of fat. One other misconception is that the Epsom Salts that is taken to evacuate the gut is enlarging the bile ducts. This is not what it does. It simply makes the tissues more elastic to be enable to expand out. This is why bathing in Epsom Salts makes the skin feel so much softer. The juices have only the purpose of flavoring the concoction of the drink but still have nutritional value as well as a surfactant factor of mixing better with the fat. Thinned oil is much easier to get down than the thicker out of the bottle oil. The reason for fresh apple juice is the enzymes and the malic acid. The maltic acid is the main thing helping in the softening of the bile stones and is destroyed in the pasteurizing process. http://www.curezone.com/cleanse/liver/liver_flush_protocol_ortophospho.asp You will find a cornucopia of information on the various grades of olive oils by searching the net. Here are a few examples; http://www.sciabica.com/GradesofOil.html http://olive.oil-in.gr/ http://www.elikioliveoil.com/gradofoloil.html Dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Dale So, which helps in pushing the stones out of gb, olive oil or lemon juice. >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Bile! because of the effort the liver puts out to provide the needed bile to breakdown the fat of the olive oil. Olive oil doesn't push anything out, nor does the lemon juice. Dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Dale You said the bile pushes out the stones. So, how this system works, can you clarify a little bit more. The bile breaks the fat of olive oil so then how the stones are pushed out and what is the role of lemon juice or grapefruit juice. Regards >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> Let's see if I can get the point across again regarding just what the oil is doing, and the roll the juices play. Some how I'm beginning to wonder whether you really read the information provided or just like asking questions over and over again. Bile is sought in greater quantity for breaking down fats when oils are consumed. Bile stones will then move forward from a back area of the liver towards the larger common ducts and be pushed along by the bile and contractions of the liver, much the same as having diarrhea will do in the intestinal tract from the liver clearing out some toxin quickly. This is much like washing off the driveway using a spray of water to move the dirt forward. The liver is seeking to provide the needed amounts of bile by pushing out as much as it can in a very short period of time. Therefore so does the gallbladder since it is the reserve for concentrated bile to breakdown fats and of which has 7 to 10 times the emulsifying capacity of one ounce of bile directly from the liver. The juices are used help to make the olive oil more palatable. Lemons and grapefruit will mix fairly well with olive oil and help in making it thinner to be enabled to swallow it easier. Dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 I personally find drinking the olive oil by itself easier. I hate the sour taste of lemon and olive oil together. Do you think I can do a flush drinking only olive oil? Has anyone done it? Zora --- In gallstones , " Dale " <Da_@e...> wrote: > The juices are used help to make the olive oil more palatable. Lemons and grapefruit will mix fairly well with olive oil and help in making it thinner to be enabled to swallow it easier. > > Dale > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 Hi Jo! Hello to all! I am new to group. This is my first posting. I have been plagued with spasms it seem forever! They do seem to be getting a little better since I have been on LDN for 2 1/2 wks. I use 3 mg. I also take homeopathy Mag Phos for spasms. It also seems to help. My severe jerking & twitching appears to have minimized. I don't know what Doc will do after 1 mo on LDN.He said he may adjust dosage to 4.5 mg. We will see. I have been using the transdermal patch " Prokarin " for 1 yr. It seemed to help w/fatigue,walking, & other areas of the body that need help. I am not sure if I am going to stay on it or not. I am very interested in LDN. I am so excited the Doc & my friend told me about LDN. I would like to know if anyone else has used the histamine patch of other histamine regiment, there is another web site for histamine in combination with LDN. I haven't looked at web site yet. The pharmacist where I got LDN sent it to me: www.goodshape.net Another concept for this MS stuff! It is always good to know our options are. The more info the better! Good luck to you & others. Let's all hang in there together. Make someone happy share a smile. Warmest regards Cyd -----Original Message----- From: jcjo2004 [mailto:jcummins@...] Sent: Sunday, May 25, 2003 12:12 PM low dose naltrexone Subject: [low dose naltrexone] QUESTIONS MY NAME IS JO. I AM NEW TO THIS GROUP SO THIS IS MY FIRST MESSAGE. I WAS DIAGNOSED WITH RRMS IN 1972. THEN IN 1997 WITH SPMS. I USE A WALKER AND WHEELCHAIR. I BEGAN LDN 4.5 MG ABOUT 3 WEEKS AGO BUT SWITHCED TO 3MG LAST WEEK LAST NIGHT I EXPERIENCED SEVERE LEG SPASMS WHICH I'VE NEVER EXPERIENCED BEFORE. (I DID FORGET TO TAKE MY LDN LAST NIGHT) MY QUESTIONS-----1. DOES ANYONE ELSE HAVE SPMS? 2. HAVE ANY OF YOU TRIED BETA SERON? AND IF SO WHAT WERE THE RESULTS? 3. ARE THE LEG SPASMS FROM THE LDN OR COULD MISSING ONE NIGHT CAUSE THEM? 4. HOW LONG HAVE YOU ALL BEEN ON LDN AND WHAT ARE THE RESULTS? 5. HAVE YOU TRIED ANYTHING ELSE THAT WAS SUCCESSFUL? I LOOK FORWARD TO HEARING FROM YOU. I'M NOT ONLY PHYSICALLY CHALLENGED BUT ALSO " TECHNOLOGICALLY CHALLENGED " SO IT IS AMAZING THAT I FIGURED OUT HOW TO SEND THIS MESSAGE!!!!!!!! I LOOK FORWARD TO " SPEAKING " TO SOMEONE WHO IS GOING THROUGH SIMILIAR THINGS THAT I AM. JO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Hi there Cydney, So glad you found www.goodshape.net. The bulletin board there is a wealth of information. If you request a sample of the histamine Goodshape will send you one, free of charge to try for a month. This is an alternative to the Prokarin which I heard is doing wonderful things for people as well. Just very expensive. Goodshape has a much more reasonable alternative if you cannot afford the Prokarin. I don't suffer from fatigue myself or have spasms so I did not notice any difference with the histamine. I'd be curious as to the difference between the Prokarin and the histamine drops myself. If you do stop the Prokarin in lieu of the drops please let us know if they afford the same result. You are so right about knowing all your options. Intelligent information leads to intelligent decisions, I've always thought. Good luck to you. Joyce. >From: "Cydney Avery" >Reply- >"'jcjo2004'" >CC: >Subject: RE: [low dose naltrexone] QUESTIONS >Date: Sun, 25 May 2003 15:06:30 -0700 > >Hi Jo! Hello to all! >I am new to group. This is my first posting. I have been plagued with >spasms it seem forever! They do seem to be getting a little better since >I have been on LDN for 2 1/2 wks. I use 3 mg. I also take homeopathy Mag >Phos for spasms. It also seems to help. My severe jerking & twitching >appears to have minimized. I don't know what Doc will do after 1 mo on >LDN.He said he may adjust dosage to 4.5 mg. We will see. > >I have been using the transdermal patch "Prokarin" for 1 yr. It seemed >to help w/fatigue,walking, & other areas of the body that need help. I >am not sure if I am going to stay on it or not. I am very interested in >LDN. I am so excited the Doc & my friend told me about LDN. I would >like to know if anyone else has used the histamine patch of other >histamine regiment, there is another web site for histamine in >combination with LDN. I haven't looked at web site yet. The pharmacist >where I got LDN sent it to me: www.goodshape.net Another concept for >this MS stuff! It is always good to know our options are. The more info >the better! Good luck to you & others. Let's all hang in there together. >Make someone happy share a smile. >Warmest regards >Cyd > >-----Original Message----- >From: jcjo2004 [mailto:jcummins@...] >Sent: Sunday, May 25, 2003 12:12 PM >low dose naltrexone >Subject: [low dose naltrexone] QUESTIONS > > >MY NAME IS JO. I AM NEW TO THIS GROUP SO THIS IS MY FIRST MESSAGE. >I WAS DIAGNOSED WITH RRMS IN 1972. THEN IN 1997 WITH SPMS. I USE A >WALKER AND WHEELCHAIR. >I BEGAN LDN 4.5 MG ABOUT 3 WEEKS AGO BUT SWITHCED TO 3MG LAST >WEEK LAST NIGHT I EXPERIENCED SEVERE LEG SPASMS WHICH I'VE NEVER >EXPERIENCED BEFORE. (I DID FORGET TO TAKE MY LDN LAST NIGHT) MY >QUESTIONS-----1. DOES ANYONE ELSE HAVE SPMS? 2. HAVE ANY OF YOU >TRIED BETA SERON? AND IF SO WHAT WERE THE RESULTS? 3. ARE THE LEG >SPASMS FROM THE LDN OR COULD MISSING ONE NIGHT CAUSE THEM? 4. HOW >LONG HAVE YOU ALL BEEN ON LDN AND WHAT ARE THE RESULTS? 5. HAVE YOU >TRIED ANYTHING ELSE THAT WAS SUCCESSFUL? >I LOOK FORWARD TO HEARING FROM YOU. I'M NOT ONLY PHYSICALLY >CHALLENGED BUT ALSO "TECHNOLOGICALLY CHALLENGED" SO IT IS AMAZING >THAT I FIGURED OUT HOW TO SEND THIS MESSAGE!!!!!!!! >I LOOK FORWARD TO "SPEAKING" TO SOMEONE WHO IS GOING THROUGH SIMILIAR >THINGS THAT I AM. >JO > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Hi Jo and welcome to the group, I really don't think that skipping one night would cause leg spasms but I'm not sure either. I do know that some people advocate going off of the LDN for a day or two here and there...some sort of intermittant therapy so I seriously doubt that one night off would create such a reaction. Of course we are all just experimenting with all of this in regards to doseage and such but I sure do hope this goes away soon. Keep going and see what happens. I've been on the LDN for about a year now and so far so good. Feeling pretty darned normal here. Good luck to you and please keep us posted. Joyce. >From: "jcjo2004" >low dose naltrexone >Subject: [low dose naltrexone] QUESTIONS >Date: Sun, 25 May 2003 19:11:47 -0000 > >MY NAME IS JO. I AM NEW TO THIS GROUP SO THIS IS MY FIRST MESSAGE. >I WAS DIAGNOSED WITH RRMS IN 1972. THEN IN 1997 WITH SPMS. I USE A >WALKER AND WHEELCHAIR. >I BEGAN LDN 4.5 MG ABOUT 3 WEEKS AGO BUT SWITHCED TO 3MG LAST >WEEK LAST NIGHT I EXPERIENCED SEVERE LEG SPASMS WHICH I'VE NEVER >EXPERIENCED BEFORE. (I DID FORGET TO TAKE MY LDN LAST NIGHT) >MY QUESTIONS-----1. DOES ANYONE ELSE HAVE SPMS? 2. HAVE ANY OF YOU >TRIED BETA SERON? AND IF SO WHAT WERE THE RESULTS? 3. ARE THE LEG >SPASMS FROM THE LDN OR COULD MISSING ONE NIGHT CAUSE THEM? 4. HOW >LONG HAVE YOU ALL BEEN ON LDN AND WHAT ARE THE RESULTS? 5. HAVE YOU >TRIED ANYTHING ELSE THAT WAS SUCCESSFUL? >I LOOK FORWARD TO HEARING FROM YOU. I'M NOT ONLY PHYSICALLY >CHALLENGED BUT ALSO "TECHNOLOGICALLY CHALLENGED" SO IT IS AMAZING >THAT I FIGURED OUT HOW TO SEND THIS MESSAGE!!!!!!!! >I LOOK FORWARD TO "SPEAKING" TO SOMEONE WHO IS GOING THROUGH SIMILIAR >THINGS THAT I AM. >JO > The new MSN 8: smart spam protection and 2 months FREE* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 I started on the histamine drops yesterday (along with LDN) and no results yet -- I hope they will assist my balance challenges... LDN is great so far but my walking remains unstable... especially after a beer or glass of wine! but I'm not ready to give those up just yet... I gave up coffee over Christmas (endured the headaches for a week) and maybe I'll give up alcohol sometime in the future but I don't want to get entirely boring -- yet. Anybody else given up alcohol altogether? Let me know. Phil Harding On Mon, 26 May 2003, wkendz 32 wrote: > > Hi there Cydney, > > So glad you found www.goodshape.net. The bulletin board there is a wealth > of information. If you request a sample of the histamine Goodshape will > send you one, free of charge to try for a month. This is an alternative > to the Prokarin which I heard is doing wonderful things for people as > well. Just very expensive. Goodshape has a much more reasonable > alternative if you cannot afford the Prokarin. I don't suffer from > fatigue myself or have spasms so I did not notice any difference with the > histamine. I'd be curious as to the difference between the Prokarin and > the histamine drops myself. If you do stop the Prokarin in lieu of the > drops please let us know if they afford the same result. You are so right > about knowing all your options. Intelligent information leads to > intelligent decisions, I've always thought. Good luck to you. Joyce. > > >From: " Cydney Avery " > >Reply-To: > > " 'jcjo2004' " > >CC: > >Subject: RE: [low dose naltrexone] QUESTIONS > >Date: Sun, 25 May 2003 15:06:30 -0700 > > > >Hi Jo! Hello to all! > >I am new to group. This is my first posting. I have been plagued with > >spasms it seem forever! They do seem to be getting a little better since > >I have been on LDN for 2 1/2 wks. I use 3 mg. I also take homeopathy Mag > >Phos for spasms. It also seems to help. My severe jerking & twitching > >appears to have minimized. I don't know what Doc will do after 1 mo on > >LDN.He said he may adjust dosage to 4.5 mg. We will see. > > > >I have been using the transdermal patch " Prokarin " for 1 yr. It seemed > >to help w/fatigue,walking, & other areas of the body that need help. I > >am not sure if I am going to stay on it or not. I am very interested in > >LDN. I am so excited the Doc & my friend told me about LDN. I would > >like to know if anyone else has used the histamine patch of other > >histamine regiment, there is another web site for histamine in > >combination with LDN. I haven't looked at web site yet. The pharmacist > >where I got LDN sent it to me: www.goodshape.net Another concept for > >this MS stuff! It is always good to know our options are. The more info > >the better! Good luck to you & others. Let's all hang in there together. > >Make someone happy share a smile. > >Warmest regards > >Cyd > > > >-----Original Message----- > >From: jcjo2004 [mailto:jcummins@...] > >Sent: Sunday, May 25, 2003 12:12 PM > >low dose naltrexone > >Subject: [low dose naltrexone] QUESTIONS > > > > > >MY NAME IS JO. I AM NEW TO THIS GROUP SO THIS IS MY FIRST MESSAGE. > >I WAS DIAGNOSED WITH RRMS IN 1972. THEN IN 1997 WITH SPMS. I USE A > >WALKER AND WHEELCHAIR. > >I BEGAN LDN 4.5 MG ABOUT 3 WEEKS AGO BUT SWITHCED TO 3MG LAST > >WEEK LAST NIGHT I EXPERIENCED SEVERE LEG SPASMS WHICH I'VE NEVER > >EXPERIENCED BEFORE. (I DID FORGET TO TAKE MY LDN LAST NIGHT) MY > >QUESTIONS-----1. DOES ANYONE ELSE HAVE SPMS? 2. HAVE ANY OF YOU > >TRIED BETA SERON? AND IF SO WHAT WERE THE RESULTS? 3. ARE THE LEG > >SPASMS FROM THE LDN OR COULD MISSING ONE NIGHT CAUSE THEM? 4. HOW > >LONG HAVE YOU ALL BEEN ON LDN AND WHAT ARE THE RESULTS? 5. HAVE YOU > >TRIED ANYTHING ELSE THAT WAS SUCCESSFUL? > >I LOOK FORWARD TO HEARING FROM YOU. I'M NOT ONLY PHYSICALLY > >CHALLENGED BUT ALSO " TECHNOLOGICALLY CHALLENGED " SO IT IS AMAZING > >THAT I FIGURED OUT HOW TO SEND THIS MESSAGE!!!!!!!! > >I LOOK FORWARD TO " SPEAKING " TO SOMEONE WHO IS GOING THROUGH SIMILIAR > >THINGS THAT I AM. > >JO > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 Now that I have LDN, will going to the Dentist and when he has to fill any cavities does the Novocain interfere with LDN. Cabbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2003 Report Share Posted November 4, 2003 Good morning, Mar Mar: Congratulations on your decision to take control of your life and treatment thereof by taking LDN. Remember that LDN's sole purpose and objective is to stop the progression of your disease, therefore, any other noticeable improvements are simply welcome side effects. Most people exhibit these side effects within a few days but a very small few never really exhibit any effects other than reduced exacerbations. However, please stay on the LDN for at least a year before deciding it isn't doing any good if you do not exhibit any noticeable side effects. Be sure to let all of us know how you do. We are all interested in your well-being. Have a good day, Noland ----- Original Message ----- From: " maryberry2us " <maryberry2us@...> <low dose naltrexone > Sent: Monday, November 03, 2003 1:59 PM Subject: [low dose naltrexone] questions > Hi all. Can any one help me I started taking this LDN last night I > was on Avonex once a week and I did not see any good in it so I heard > about this drug and decided to try it so can any body tell me how > long it takes before you see a difference. Thank you any help would > be appreciated. Mar mar > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 I'm going to the rheumatoid doc next Monday. My primary care doc has said I have RA. My RA levels are slightly elevated, my CRP elevated, but no high sed rate. CRP has fluctuated (is that typical as the inflammation flares up and subsides?) I have been having infrequent flare ups for almost two years, but didn't really think it could be RA until a year ago. My concerns are how aggressive should I treat this? I have a background of having hepatitis C. I did the chemotherapy like treatment with interferon injections 3x a week plus antiviral pills for 6 months. I often wonder if the RA is a side effect of these toxic drugs and wonder if I should do the DMARDS (if that's what the doctor recommends). I'd like to pick your brains and see what you all think. I have found through my hep c experience that the educated patients are often more informative than the doctors. Thanks for your input, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 To answer your last question first, yes, RA can be that hard to diagnose. There are numerous causes of joint pain besides arthritis and there are over 150 different kinds of arthritis so even if it is arthritis it might take a while to find out what kind (or how many kinds). The high RA factor is only one thing that points to RA. Most of the others deal with patient history and doctor's examination. The high RA factor neither means you have RA or a low one does not mean you do not have RA. Many factors go together to make a diagnosis. The SED rate is normally, but not necessarily, elevated with RA. If you have been taking a lot of Ibuprofen that might cause you to have a low SED rate in spite of having inflammation. I'm surprised your doctor did not prescribe Prednisone. That is a strong anti-inflammatory and often will relieve the symptoms of RA. Of course, if you have diabetes or risk factors for diabetes then Prednisone may not be a good idea. You mention "numbeous other health conditions" and one or more of these might limit the medications that are prudent for you to use. Similar considerations may apply to other pain medications. I think the additional blood work is to rule out other possible diseases rather than to confirm RA. Lyme disease, spotted fever, or inadequately controlled hypothyroidism could cause your symptoms and there are udoubtedly other things as well. Some vitamin or mineral deficiencies can also cause RA-like symptoms. You should get a copy of your blood work to find out what tests are being run and what the results are. I was diagnosed in less than a week but that is extremely rare. I had a clear set of symptoms and no abnormalities in my blood work to explain the problems. However, it took me about a year and a half to really get the RA controlled. People react to different medications in different ways so there is no single way to treat RA. We have to try a medication and wait a few months to see how it acts for us and then change the medications if necessary. The first year or so can be extremely difficult but things get a lot better with proper treatment. I'm sorry I'm not giving the answers you would like to hear. RA is not an easy disease to either diagnose or treat. You do have one tradeoff you can make. By enduring the pains of hunger and exercise you can lose weight that will help to reduce the stress on your joints. More pain now can mean reduced pain later. It's a tough choice to make but one where you have at least a little control. God bless. ----- Original Message ----- From: littletrollishbeing Rheumatoid Arthritis Sent: Saturday, August 20, 2005 12:10 PM Subject: questions I just saw my Rheumatologist for the first time today. I am confusedto be quite honest and VERY discouraged.My RA factor is high, however, it is my understanding that my SEDrate was normal as was my blood count. Is it possible that I stillhave RA? The Rheumatologist said that he wanted to do more bloodwork and that I needed to loose weight. He also said that mynumerous other health conditions could lend itself to my joint painand stiffness. I am just so confused and frustrated. I wanted painrelief and instead, I just have more blood work and some Alieveprescribed 2x a day. I already take Ibuprofen by the bottle it seemslike and it doesn't work so why waste the money? I have tried toloose weight, but that hasn't been successful. I have an underactivethyroid and as you know it is quite difficult to excercise inintense pain. Can anyone help me understand what is going on?I have more questions. How long did it take for people to getdiagnosed? How much blood work, tests, etc., did you have to gothrough before receiving a diagnosis and relief from the pain? MaybeI am just expecting too much too fast.Why would the doctor test my thyroid since we already know that Ihave hypothyroidism and am on medications? Why would he do hepatitisblood work because I had blood transfusions as a baby? What wouldthat have to do with anything? He is doing the C-reactive protein(CRP)and I do understand that one. I don't remember the others, butI was confused on the first two..thyroid and hepatitis. Any ideas?Thanks for the help and support! It really encourages me when I amdown. And right now I am down. I am in so much pain in my feet andin my shoulder which seems to be loosing its mobility range. I alsowas just told I have two herniated disks in my neck at C-5 & C-6,but yet no pain management. HELP! I don't see the neurosurgeonbefore the end of September! How am I ever going to get through allof this?Why if my RA count is high and I fulfill the other qualifications isthis so hard to diagnose?Thanks for any and all help.Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2005 Report Share Posted August 21, 2005 In a message dated 8/21/2005 4:38:17 AM Mid-Atlantic Standard Time, samrocci@... writes: FYI for STILLS DISEASE-and donation FYI. http://www.stillsdisease.org/ Be well everyone- Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2005 Report Share Posted August 21, 2005 Important Information for the board on Stills........http://www.stillsdisease.org/frequently_asked_questions.htm YOURS DEBORAH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2005 Report Share Posted August 21, 2005 Dear Sam- I do shopping on most all the donation sites listed including amazon and ebay. I will be sure to shop through these sites so that I can somewhat contribute to finding a cure. Yours, Deborah Quote Link to comment Share on other sites More sharing options...
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