Re: Toni & Enbrel rejection

[Guest guest]

Hi Toni, This is Steph in VA. I am sorry your body has rejected your meds. Weighing the risks vs. benefits of these drugs is a decision all of us have to make. For me, my quality of life is worth the small risk. I respect your decision to say the risks are too great for you. I have been on Remicade for 5 years and it has been a miracle for me.Take care,Steph in VA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~>I was on Enbrel for about 9 months. It was never that effective and I had>to take MTX with it which was horrible. (but that is another story..and yes I>have tried MTX pills and injections). I had to stop all meds before I had>surgery and after surgery I never went back on because I had a remission of all>symptoms. When I started with symptoms again and tried to take the Enbrel>again I had terrible skin reactions, burning and itching, large painful lumps>at injection site which lasted from one injection to another. I also had>terrible headaches for about three days after taking the injection. So I>stopped it again.>>My rheummy wanted me to restart Enbrel and I told him no way...not to>mention I have two friends that were on it and now have Lymphoma...that is enough>to make me rethink taking this stuff. One friend is too far gone for anything>to be done and she was Dx 6 months ago....so she is terminal...they found>cancer in her lungs, liver, stomach and kidneys!!!>>My doctor offered my Humira...but after reading about it being painful to>inject, lymphoma risks as well as the costs I decided that NONE of the TNF drugs> are for me.>>I will also NEVER take MTX again due to all the side effects I had while on>it.>>Toni