Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 Tammy- Thanks for the encouragement as well. It was also surprising to me how grossly uneducated the docs are in this area. This is not biomedical they should know more. U are so right the pharmacy reps take turns parading into the docs offices pushing their products I'm so surprised they haven't hit on this area. She knew of pandas yet everything she " knew " was wrong. I just can't wait to send the info to her and I am also going to have the pandas doc send her a statement of my sons treatment so she sees that it is necessary. T Lynn wrote: >I have to say that I am stunned that more pedi's aren't up to speed with PANDAS >and this is why: >PANDAS is treated with antibiotics. Antibiotics are produced and patented by Big >Pharma. Big Pharma sends their foot soldiers out into the field to introduce the >latestest and the greatest to all the docs, pedi's and specialists. These foot >soldiers (salespeople) are in the doctor's offices each and every week making >sure the rx's keep flowing. I'm shocked they're not making a bigger push as >there is a " pill " for it. As sad and pathetic as it is, that is where the >hope lies that docs will get up to speed. > >-Tammy > > > > >________________________________ > >To: mb12 valtrex >Sent: Tue, February 22, 2011 10:43:06 PM >Subject: Re: pediatricians > > >With rare exception, we're still years away from a PANDAS kid/parent having a >phenomenal diagnostic experience with a pedi. The tough skin I had to develop >with the schools was nothing compared to the armor that had to be developed to >deal with uneducated docs. I'm sorry for your experience and happy that you >didn't take it lying down. Attagirl! > > > >________________________________ > >To: mb12 valtrex >Sent: Tue, February 22, 2011 10:23:08 PM >Subject: pediatricians > > >Hi all, >I just took my son to the pediatrician because he has been showing extreme >symptoms of pandas. He has been having extreme ocd, night terrors, seperation >anxiety, he hasn't gone to school for a month because he has violent outbursts >every time we try to take him out of the house, ect. I know with autism we are >accustomed to behavior issues, ocd, ect but this is way above and beyond his >normal personality. She basically indicated that I'm a terrible mother for even >trying to see if he has pandas. According to her pandas is something that NT >children get not kids with autism. She said he would have to have swollen >tonsils to even qualify. And all he needs is psychiatric meds. That we should >call 911 to get emergency psychiatry help during the next melt down and they >will probably put him in a mental hospital for a week but we have to go through >the bad in order to get him the help he needs??? Wth???? Are these doctors for >real? Why can't they just research a little so they could at least be accurate >with their info while they try to belittle us. I've done the hours of reasearch, >spoken to the people at the pandas network, spoken to the pandas researchers at >Yale university and spoken to the clinical director of pediatric immunology @ >Stanford and that Dr. Wants to see my son because he thinks that he has pandas >and can help us, not to mention this site with the most valuable knowledge from >moms that have been through it. Has she done any research on the subject to >where she could tell me to dismiss the idea? I just don't understand why >parents' haves to go through so much crap just to try to do right by our kids. >Sorry to vent so much just can't believe that the docs we r supposed to trust >are still so completely in the dark still :-( thanks for letting me vent I know >u all understand my frustration. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 Tammy you hit the nail on the head. It drives me crazy because when the docs throw their little fit a lot of parents trust them and fold to whatever they recommend and it is HARMING the kids. Many parents don't know that there is anything else out there and they trust the words of these pediatricians. Its horrible. Tammy Farmer wrote: >It is very sad to me to see this. I have the same experiences and know >many going through this also. The good thing is that we don't listen.We >push harder to help our children. > I feel for the children of the parents who don't push to get their >children well. Tammy F. >> >> Hi all, >> I just took my son to the pediatrician because he has been showing >> extreme symptoms of pandas. He has been having extreme ocd, night >> terrors, seperation anxiety, he hasn't gone to school for a month >> because he has violent outbursts every time we try to take him out of >> the house, ect. I know with autism we are accustomed to behavior >> issues, ocd, ect but this is way above and beyond his normal >> personality. She basically indicated that I'm a terrible mother for >> even trying to see if he has pandas. According to her pandas is >> something that NT children get not kids with autism. She said he would >> have to have swollen tonsils to even qualify. And all he needs is >> psychiatric meds. That we should call 911 to get emergency psychiatry >> help during the next melt down and they will probably put him in a >> mental hospital for a week but we have to go through the bad in order >> to get him the help he needs??? Wth???? Are these doctors for real? >> Why can't they just research a little so they could at least be >> accurate with their info while they try to belittle us. I've done the >> hours of reasearch, spoken to the people at the pandas network, spoken >> to the pandas researchers at Yale university and spoken to the >> clinical director of pediatric immunology @ Stanford and that Dr. >> Wants to see my son because he thinks that he has pandas and can help >> us, not to mention this site with the most valuable knowledge from >> moms that have been through it. Has she done any research on the >> subject to where she could tell me to dismiss the idea? I just don't >> understand why parents' haves to go through so much crap just to try >> to do right by our kids. Sorry to vent so much just can't believe that >> the docs we r supposed to trust are still so completely in the dark >> still :-( thanks for letting me vent I know u all understand my >> frustration. >> >> > Quote Link to comment Share on other sites More sharing options...
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